Doctor informed me I had hidradenitis supperativa. Symptoms included boils and inflamed lymph nodes. Alternative effective treatments included daily high doses of Vitamins C, E, zinc, mucinex. New information and treatment described below has lead to cessation of symptoms.
Recently received root canal re-treatment and discovered abscess into bone tissue. No longer experience hidradenitis superativa symptoms. Taking Vitamin D and Calcium to support bone restoration, which also appears to be reducing the appearance of scars on skin. Bone damage was not visible on x-rays.
Hello Everyone! I am 25 years old and my first flare up of Hidradenitis Suppurativa happened when I was 10 years old. Doctors were surprised it happened even before puberty. There is a number of family members with the same condition; however, every single one of them dealt with it privately and didn't offer help. Didn't help that we are all very distant from one another. This site has provided so much advice and natural remedies that I had not thought of. I wish I had some tricks up my sleeve as far as treatment but I do not.
The only thing I can share that helped me through high school was exercise; I had only one flare up from the age of 14 to 18 and I believe that's because I was crazy active in high school. That and my doctor recommended to not wear underwear at night- no bra and no panties, and that proved very helpful. Once I went to college and my activity level dropped, however, by sophomore year I had HS in my underarms. I am at a point where I have to change my lifestyle; I have graduated college and starting a great career. I have found a wonderful partner who knows about HS and is very supportive.
I have flare ups at least once a month, I have scars and I can not wear tank tops anymore- or short shorts for that matter. I have been to the emergency room with a bump as big as a golf ball; I have tried medication that never helped; I have had surgery on the groin area at the age of 14. I sometimes do get bumps on my buttocks- that is a new development. I did experience loneliness and isolation to some degree. But I am so very happy to have found this community, to see how big this disease is and to know that I am not alone. I will be definitely trying the Turmeric pills and tea as well as a Paleo diet for starters and go from there. I just wanted to share my experiences in hopes that someone can relate and see that, well, there's nowhere else to go but forward.
Warm hugs to everyone reading.
i have been suffering from HS for more than 20 years. I did homeopathic medicine which resulted in reduced occuring of boils but it started again. I have notice lack of sleep creates more of infections in the armpit. If any one has permanent remedy for this please let me know...
hello to all i was reading the Hidradenitis Suppurativa Remedies,i have been battling this since 11 off and on. had my sweat glands removed from arm pits at 12 so i know the pain but now in my twenties i had this lump forming under my breast and i knew what i was.i didn't want any cutting done to me, i still remember the pain and the disfigurement and scars. so it formed about 3 weeks ago size of a large marble but it felt deep. so i did the turmeric 1teaspoon with i teaspoon of organic cinnamon and half a teaspoon of raw honey.the cinnamon and raw honey has a lot of anti- fungal and other properties, mix it with half a cup of warm water twice a day,i want to take it three times but i am a student that works = no time. and i remember what the nurse told me when i was a child which brought it to an head immediately and started draining, was blow drying it with a hot hair blow dryer also i used apple cinder vinegar to help dry it out and of course tea tree oil. im on day 2 and it's totally flat. God bless i really hope this will help others. One more thing eat as clean as possible more veggie than fruit and drink turmeric regularly. thanks
Hi, like most of you on here I have been suffering from HS for about 10 years. Like most of you I have endured it silently. I get them in groin area, armpits and weirdly enough only under left breast. I have seen a few doctors but they say its an infection and give me antibiotics. They can become sooo painful all you can do is cry. I highly believe in holistic medicine and decided to treat them with tea tree oil. I found tea tree just wasn't enough so I added lemon oil to the mix. This seemed to help them clear up much faster but I would still get outbreaks. I did notice though that there wasn't a bad smell when they burst. This is because tee tree kills bacteria. I also have pcos and insulin resistence. I am also a smoker which doesn't help.
So fed up I did some research and discovered turmeric. I started mixing it with almond milk, cinnamon and honey. It tastes really good. I noticed my outbreaks lessened and when I did get anything the pain would be gone within a day or two and then it would drain. I no longer really get any in my groin mostly now just under left breast. It makes me sad all the scars and deep purple scars it has left behind. Time does lessen the appearance and I also use rose water to help with the scars. I have been using an essential oil liver cleanse which has helped tremendously. It's peppermint oil and lemon oil cleanse. You use it by adding one drop of each in a cup of distilled water and I squeeze a half lemon in it and drinking it first thing in the morning. The peppermint does wonders by cooling the inflammation and the lemon helps cleanse and alkalanize the ph in body. It gives me more energy and cleans liver at the same time. I also just started using black cumin oil. I don't know how much it is helping yet since I have just started using it a few days ago.
About a week ago I went to the movies and ate salty buttery popcorn and halfway through the movie I noticed a very painful little friend just popped up in groin area. The next morning I drank my cleanse and poof it popped and drained that day. They used to last weeks. I also just noticed a bright red one that appeared under breast but without any pain. I have been putting Turmeric directly on it and it's gone already. It's amazing what these treatments have done for me. Yes I still break out but the pain isn't there anymore at least not nearly as bad as it used to be, no smell, and they go away sooo quickly. Oh and I had a bad one under breast a few weeks ago and I treated it and the pain went away but the lump didn't bt it also didn't spread. Then about one week ago I noticed it felt wet under breast and it had popped and was draining. I didn't even know it was still there. No pain or anything.
I hope this can help some of you. I have read others posts about mixing turmeric with warm water and drinking it but gross. Mixing it with cinnamon and milk makes it tastes almost like chai tea. I really enjoy the taste. I haven't needed it though for awhile since I began the liver cleanse.
I see a lot people that say a remedy worked for HS disease. I have used tea oil an turmeric and it has not helped. I see lot people say they have HS disease but do they really? There is a difference between boils an abscess an HS. One is not cured an comes back. I am just tryin to find out more info on the HS disease. I've had no luck really with antibiotics either. I have two holes in my armpits, my butt an groin.
I came to your site for info. again this autumn for alternative treatments for HS. For 32 yrs I tried every thing with NO long term success.At that point I was considering a 5th operation, for a year or two of relief. But now I can be hopeful!! For 0ne month now I 've been taking: TURMERIC (in # 2caplets /4 to 6 a day/ also in foods I eat ) TEA TREE OIL ( apply twice a day ) and DIAL soap BAR Gold (wash 2x a day). The improvement is amazing!
Thanks to sufferers coming on line and sharing with others, I can start to feel hopeful again...
Other things that help me but are not a "cure " Epson salts to soak, drinking lots of water, staying away from processed foods, chocolate, cafeine,alcool...But for me, stress/ sweating and tight clothes are the 3 main triggers.
Hope I can help someone ...
PS If anyone can tell me where in CANADA I can buy Dial Gold BARS I would appreciate this info./ had to order from US.
Re: hidradenitis suppurativa. I've had the disorder since I was 22 and i'm 30 now. I was just officially diagnosed last year. Long story short i've had an area the size of a mini golf ball near my labia, you can imagine the pain, they have been lanced and drained only to return. It's gotton worse over the years, it started out as one large area on the left labia and now i have areas that affect both sides of my entire groin. Lately i've been cleasing the area with dial antibacterial soap, old fashioned yellow bar. 2 times/day, follwed by a few drops of tea tree oil, i also take 2 300mg tumeric tablets daily. When i feel a flare-up coming i take one alleve which prevents a full blown flare up. I suggest trying a variety of treatments and would advise staying away from antibiotics, they don't work.there are sites which i'm not allowed to name that guarantee a cure that are all natural, i would suggest choosing the one that gives you the ingredients of their product only. Don't let this disorder discourage you. It can be maintained. I can't stress this enough surgery and antibiotic therapy don't work, use natural herbal remedies for this disorder. I've had surgery only for the boil to return in the exact same spot. I'm a rn and i see so many of my patients think that surgery and antibiotics are the only answer. Please continue to research and find natural cures and lifestyle changes that can manage this annoying skin disorder.
I came upon this site out of desperation looking for some help with the hydradenitis. I have been dealing with this for at least 30 years. I have only had a few at a time and sometimes none at all for a few years, I get them in my groin area and on the labia. I have only had really large ones on 3 occasions that sent me to the Dr.
Just a few weeks ago I developed a very large abscess that became about the size of a lime on the labia on left side. I called the Dr. and went in right away and was put in the hospital to run IV antibiotics. On day 2 it drained and he let me go home on day 3 with 2 different strong antibiotics. It went down to very small size but did not go away and I started to develop a smaller one on the left side.
So coming to this site and reading all that people were using I decided to start using the turmeric and zinc. Also using tea tree oil mixed with olive oil. I have to say that this seems to be working better than the antibiotics. They drained for a few days after starting this, now the drainage has stopped and they seem to be going away. I am taking 450 mg. of turmeric 3 times a day and 50 mg zinc twice a day. The tea tree oil I am applying after shower and then one or two times again during the day. I hope that they continue to go away and I don't have any more for a while anyway. Thank you for all the information and help. Glad to know that this is not a rare thing and lots of other people are going through this also. I did have four surgically removed 2 years ago and did not have any more for a while. But the ones that just came up have come back in the same places. So I guess the surgery wasn't that successful. Here's hoping that I continue to get better with the use of these supplements.
Hello Earth Clinic! I'm a white female, 23. I've been suffering with hidradenitis suppurativa for 3 or 4 years. I've been to the doctors, and have been tested for everything under the sun, and it just isn't an std. It also just isn't cured with anti-biotics. Upon looking at earth clinic, I have applied:
- -bathed with borax
- -tea tree oil
- -coconut oil
- -neem oil
- -zinc supplements
- -salt water
All of these remedies helped a little, and at least educated me on the ways of living a natural life, but did not wipe this condition out. I was desperate, and I had heard of urine therapy curing MRSA for a family member. I have been using urine therapy for probably 2 to 3 weeks. Basically- every time I go pee, especially in the morning, I drink it, and rub some on the sores.
In the very beginning, I had one, but kind of 3 sores stuck together, that were sore, inflammed, red, raised up, and they are kind of like a pus filled tunnel under the skin. I started drinking the urine, immediately I felt better inside my body. I'm the definition of tired all the time, with a screwed up sleep schedule, and I actually started waking up in the morning. It seemed like the sores became worse, after a week or so. Because they were worse, I applied urine compress on them while I slept. Always in the morning, there would be massive improvement as far as inflammation. The sores were still there, but flatter, less red.
At this point I have had 3 weeks with no new boils, and these ones are on their way out. They are not full of puss any more, they're pain free at this point, all though there is pretty bad scarring. I feel lucky to have to deal with the scars- the scars mean their healing! Finally!
So my point is, I think the urine therapy is working. Now, most people think it's gross, but we're earth clinic people- people who are willing to put our egos aside and just do something, anything to be healthy! Good luck to all the other sufferers out there!
PS, has anyone fully healed up from this yet? I'm interested in the phases of healing of the scars... Thanks :)
I have been having trouble with boils for about 8 months. They were in my genital area and my under arm. I tried everything from turmeric to salt, to acv. Finally, one weekend, I had been at a party with friends, and had a flare up. I had read about several things to try online. I tried a tablespoon of buffered vitamin C and a teaspoon of aloe vera gel in a glass of water, with 2 500 mg tablets of spirulina, and by morning the boils were completely gone! I could not believe it. I have now been taking this 3 times a day for several weeks, and NO boils have come back. I am so happy. Just wanted to share. Thank you Earth Clinic.
Hidradenitis. I was researching this disease on the internet since my HS has recently spread to my armpits. I have always had it on my thighs and groin area, but now in my armpits as well. I found that some people had success with Vitamin E since it naturally boosts your immune system. I took 3 of the 400 milligram capsles at night, and when I woke up the next day, the boils were already softer. I took 3 more that night, and they are even better today. The pain is gone, and there is just loose skin where the boils were. I am going to keep taking 3 pills a day as long as it works. Hope this helps.
I have had no luck with anything my doctor/dermotoligist has suggested, mostly long term antibiotics. I have has some luck with A&D with Zinc (it is a diaper rash ointment). It makes the swelling go down over night (warning: it does drain quite a bit) and makes them much less painful. I have also had good results with red and blue led lights under my arms for 15 minutes a day.
Hi, all, I am 54 years old and was diagnosed with HS around 6 or 7 years ago. My case was basically contained in my armpits. My doctor drained and excised many boils (he referred to them as "carbuncles") and I have the scars to prove it! Never once, however, did he prescribe antibiotics. He told me to stop shaving and find another method of hair removal, try to find a deodorant alternative and, most importantly in his opinion, he told me to *lose weight*, saying that this condition is largely exacerbated by carrying around extra weight. Over a period of two years I lost 60 pounds and I have not been bothered with HS again, not in the least bit. I am convinced that there is a link. By all means, if turmeric works for your case and gives you relief, go for it! But if you're overweight, I highly encourage you to resolve to slim down (for multiple reasons! ). Even after losing 20 pounds I noticed a huge difference in how this disease presented itself.
Hi guys, I have had this for quite a number of years. And while I'm sure tumeric and the other remedies discussed on here work, for me protein shakes seem to be the answer. Of course it is not a cure but it makes the HS very manageble and takes away almost all of the pain.
How did I find this out? Well I heard someone say they were going to try it for their HS and I thought I should look into this. Apparently there is an enzyme in protein shake that reduces inflamation, this being an imflammatory disease affecting the biggest organ ( the skin) I thought it might work and it does.
You don't have to even drink it everyday. I would say like 3/4 times a week should be fine. Also protein shake does NOT make you muscle bound. Please don't be naive.
I hope it works for you. Lets pray the find a cure.