Hidradenitis Suppurativa
Natural Remedies

Top Remedies for Hidradenitis Suppurativa

General Feedback

3 User Reviews
5 star (3) 
  100%


Posted by Janie (Bay City, Michigan, Usa) on 08/06/2011

I have had Hidradenitis Suppurativa (HS) for approximately 12 years. I never had HS until I went through a premature menopause at age 41. I also have psoriasis. I was recently diagnosed with diabetes.

In my opinion, HS is a "triangle disease". HS has very obvious hormonal, endocrine and inflammatory components. I understand it completely in women. Look when women are first and/or worst affected: puberty, menstration, birth control methods, childbirth, perimenopause and finally (and more rarely) menopause. Men with HS often have very low testosterone levels.

Why do some people see improvement when they lose weight or change their diet? Besides reduction of "skin-on-skin" contact and possible reduction of sweating, what could explain this phenomenon? If we look at the endocrine "leg" of the triangle, better blood sugar control could explain it. Adopting a diabetic diet with its low carbohydrate count CAN help you lose weight as it lowers your blood sugar. I like to call a good diet the "God Diet". If God created it in nature, it's on your diet. Notice how the "God Diet" is relatively low in carbohydrates, contains moderate protein and lots of vitamins and minerals? God did not make Twinkies; we did! Being overweight does not cause HS. It is far more complicated than that. Diabetes is strongly associated with other hormonal diseases. Women who are "hormonally challenged" like those with Poly Cystic Ovarian Syndrome (PCOS) are also prone to diabetes. Those women with PCOS who are having a hard time getting pregnant often can be helped with metformin, a drug used in the treatment of diabetes EVEN IF THEY ARE NOT DIABETIC. If you have a problem with yeast infections, think higher blood sugar levels. Men with low testosterone often have diabetes, too, or are at risk of developing it. I HIGHLY recommend all people who have been diagnosed with HS or think they may have HS, to visit an endrocrinologist and have the complete panel of blood tests done. You may be surprised what they show (like my premature ovarian failure or POF).

I have virtually cured the HS lesions in my underarms. I say "virtually" because I have had one lesion in 10 years. I had laser underarm hair removal. The one lesion that I did get was immediately following shaving of some leftover "whispies" (You can barely even see them). HS is a "clogging disease". Removing the hair shaft from its follicle allows for more "wiggle room" for sweat to be released. A number of HS sufferers stop using anti-perspirant because of its clogging factor. Drinking plenty of water helps to dilute one's sweat. Showering after exercise does not allow sweat to stay on the skin. I am considering having Botox treatments on my inner thighs done. I want to reduce the sweat factor as much as I can. I do very well in the wintertime, but not so great in the summertime. I have kept my disease as bay using as many preventative tips that I can learn from other sufferers (like boy-leg panties and tea tree oil, to name a couple).

I am interested in Tumeric. It makes sense. Long before antibiotics were discovered, people used other substances known for controlling infections. Tea tree oil is one. Honey is another. Wine was used as an antiseptic. Olive oil was used in biblical times for skin problems. When modern scientists examine these substances today, they can explain why they work.

One topic that I want to bring up that is not popular to hear is smoking. I've read several studies that implicate smoking in the development of HS. Quitting smoking doesn't seem to affect HS much, but never starting to smoke in the first place is a huge factor. There are genetics behind HS sufferers who have other famly members afflicted by HS, but smoking may be the kick off behind those without the obvious genetic link. The link between smoking and HS was as high as 90% in those studies. I once went to an HS support group meeting. There was a group of approximately 15 of us who went out to dinner together. I asked around the table who were smokers or ex-smokers. Of the 15 people present, only one person was a non-smoker/never been a smoker! That particular woman never had HS until after she had a complete hysterectomy - a hormonal-challenged woman of normal weight. Why didn't our group reflect the percentage of smoking adults in the United States? Why did our group reflect a smoking rate of over 90%? I mentioned earlier that I have psoriasis. Did you know that psoriasis and smoking have a connection, too?

I think HS can be conquered if we can attack it in its earliest stages. Most diseases are better managed before they really get bad. Early diagnosis is key. Please share with others what works for you!


General Feedback
Posted by Anervouswreck (Elizabethtown, North Carolina, U.s.a.) on 07/22/2011

Paula from NC. I like so many others are glad this site exist. HS is terrible to deal with. Have had mine for 40 years but not as bad as some. When I was in my 20's , living in SC, my OBGYN Dr put me on Erythromycin pills. The boils would be the size of a marble full of pus and blood. Some when touched would send a pain like a needle going straight in. The doseage was 2000 mgs a day for about a week. Taking Erythromycin has never caused me a days problem but some Drs may shake their heads no to put someone on this medicine for a long time. This dried up all the boils and inflamation for about 3 months then it would start up again. Process would have to be repeated. Of course I would get lazy and just deal with it. Over the years the infection has lightly spread up above the hair line. Now getting off my duff and going to a new OBGYN Dr she put me on Doxycycl. Before one week was up no boils, itching or inflamation. Just being knowledgeable about my symptons and treatments HS needs to be treated from the inside not outside. Hope some of this may shed some light on anothers situation. Best to all Hs suffers.


General Feedback
Posted by Mary (Cincinnati, Ohio) on 06/27/2011

I read a lot about peoples boils draining on their own. I have only had HS for about 4 years now, and none of mine have ever opened on the surface. They are always deep and VERY painful! So painful that I have had them lanced and drained by a docter before they could get to that point. I can not even imagine waiting for them to surface.. Ouch!! Because of them always being deep I can not understand how anything applied to the skin will help?? Within one year I have had my armpit lanced 8 times and my groin once always deep and about nickle sized. Am I the only one who has a situation like this???

Replied by Tracy
(Toronto, Ontario/canada)
04/20/2012

In most recent time, I had one of the most painful episodes, it had been developing for 1/1/2 months and even with frequent hot water washing... The boils deep within developed. They have been recurring for 20 years and I do have an immune depressed system. Anyway, first I used hot tea bag compresses on the area. When the boil is hard and painful, the compress brings the pus ( whitehead ) area to the top. Then I used a 2 -1 ration of tumeric and baking soda in a gauze wrap and kept on changing as the blood and pus seeped out. It was painful, it took 2 days. I did them in the night. And when I went to show the doctor she was impressed with my natural remedy. The area of the boils is about my palm hand span, so they were big. But at least no surgery, or scarring.


General Feedback
Posted by Tonya (Atlanta, Ga) on 02/25/2011

Hidradenitis: It is great to find this web page to read what is and is not working for different people. I've been diagnosed with HS for three years now. Tried most of the things on this page and some would ease the pain and make HS bearable, but no remission for me. I pray and hope for all of us, that a "cure" is found sooner than later. Just wanted everyone suffering with this currently incurrable disease to keep your head up. BTW as a single female, how do you explain this to your boyfriend or potential boyfriend? It looks horrible to me, especiallly when there's drainage, much less someone else. I have been tested for MRSA and Staph infections and they came back negative. I've been told it's not contagious, but tell that to someone you want to be intimate with. Anyone have any suggestions on how to discuss HS with potential mates?


General Feedback
Posted by Wilma (Chino Valley, Az, Yavapai) on 02/03/2011

Hi. I am so glad that I found this site! :) I really thought I was alone with this terrible disease. I have had HS since I was around 10yrs old. I am now 38yrs. Like many of you every doctor that I went to for many years gave me a different answer and a different treatment. I have been on so many different treatments that it makes me sick just to think of it. What I did notice though is that both times I was pregnant that I hardly had any flare ups. I also notice that when my hormones are going bonkers the boils will subside or act up depending on what my hormones are doing. I always have at least two going at a time if not more. Because certain areas are now numb (i believe because of the boils) sometimes I don't know that they are there until I notice them draining.

I had surgery about 5 years ago under the breast to try and remove some lesions that would not quit draining. What the doctor did was "an upper tummy tuck". I scarred miserably and they were back within two years. I now take magnesium tablets and that seems to help some. I also have found that prescription strength Silica and Hehp Sulph works great at the onset of a boil. It speeds the process up for me. I also use a salve called RID. You can buy it at the pharmacy. This helps with the pain to a degree. I plan to try some of the suggestions that I have read today.

Thanks for listening.


General Feedback
Posted by Liam (Ramsgate, Nsw) on 01/17/2011

Hi there, my name is Liam and I am from Sydney Australia. I am a 30yo male.

I have had HS from the age of 15 roughly. I have even had a Dermatologist take a biopsy off me in 2000 and not tell me I had HS, all he said was it was a Follicle issue.

After breaking down several weeks ago at the local doctors is when the Doctor told I had "Hidradenitis Suppurativa".

At this point in time I am in severe pain as I have multiple boils under my armpit, and several on my bottom, oh, should I mention that I am sitting sideways! They have been there for about 8 months now and they go and come back. There are some days when I am in so much pain that I cannot go to work. The other worse thing is, I love tennis and coach the game also, due to this illness, I am no longer able to play & coach.

This disease has stopped me from maintaining a relationship and has made me so depressed.

Today I googled "Hidradenitis Suppurativa" and read as much as I could until I went cross-eyed, and I think on the 5th page in the search I clicked on this link.

I have now been reading everyones testimonials on this site for the last 2 hours and have not stopped crying . Snot everywhere, sadly pus later.. It is so much different hearing from others who have the same problem.. I honestly thought I was alone.

I can't even believe that I am writing this up to be posted, I have never been compelled to do anything like this on the net.

Whoever has taken time to maintain & create this site, thank you.

I will try the Turmeric Remedy and keep all posted.

Regards, Liam

Replied by Deb
(Melbourne , Australia)
01/18/2011

Liam you could also try one drop pure tea tree oil on the boils to draw out the toxins.

I have read that boils can be caused by an acidic body. It may help you to look at your diet and eat more alkaline foods so that your body has the proper pH level. Green smoothies, pineapple juice, water are mostly alkaline while coke, milk, meats, are acidic. Bathing in bicarb soda is also good as it is alkalising to the skin. There are some good books you could read which list which foods are acidic and which are alkaline. Disease and toxins apparently can't exist in an alkaline body. Cheers

Replied by Kiki
(Chicago, Il)
03/18/2011

Im so amazed at what ive read. Im so happy to know that im not alone. All these stories have motivated me to eat better try harder and not give up. I have had HS or been diagnois since I was 15. Im embarassed at times too about my scars. Ive had several surgeries and still they come back. My last surgrey left me with open wounds under my arm for almost 3yrs now. I keep them cealn and I dont take any more antibotics. I know that God can heal me if I put the effort to heal myself. Im going try so of the things ive read and see what happens. Im so happy to share this because like Liam I have not been able to maintain a healthy relationship for several reasons but not having anyone to relate makes the stress more stressful. Im so determined now to just accept the dis-ease and make it my everyday goal to do something to better my HS. One thing that helps is in the bible Job was one of the most faithful men of God and he got boils and God blessed him. So I know that we are all blessed and highly favored in his eyes.

Replied by Kara
(Chicago, Il)
05/03/2011

I don't even know where to began but I know that seeing others post on this site has been soo helpful and encouraging for me. I have had HS for 15 plus years now and have been through many of things mentioned on this page. I have draining from openings in the groin & armpits areas for years now. I have had many surgeries but decided I didn't want to be cut anymore as they always returned. I have been on antibiotic regimines/antibiotic topical creams/hibiclens/tea tree oil/turmeric/probiotics/multi vitamins/omega 3 oils/turmeric topical cream/espon salt baths/800mg ibuprofen for the pain the list goes on. I also played ginea pig for the drug Humira in a trial study... NOTHING has worked for me as of yet.. I am currently in the process of changing my diet to a more veggie/fruit/fish adding some exercise into my life as well... I am at my wits end so I hope the diet change along with my current regime of vitamin b-12 stress complex, omega 3 2000mg daily, clyndamycin antibiotic 2x a day(I hope to take out of my regime), washin with hibiclens/tea tree oil on new boils & tea tree antiseptic cream on existing draining boils, probiotic. I will be adding turmeric back into my daily regime. I will keep all posted.

Thanks


General Feedback
Posted by Michael (Suzhou, China) on 04/15/2010

Hello,

I'm Michael and suspect I have this condition called Hidradenitis Suppurativa. Although I'm British I live in China and have had two operations in the last three years over here. I'm feeling quite depressed at the moment since my last operation was only three months ago and the wounds have not healed fully.

I had three big holes in my groin area after the operation and words cannot express the pain I went through. I've been reading up on this disease and it seems to fit exactly with all the sypmtoms I got.

It all started with lumps in the groin area. These became swollen after a while and eventually burst. I had three interconnected tubes connecting the different sores and so the doctors removed all the surrounding flesh and went quite deep as well.

After the first operation I said to myself I would never have that done again. After the second operation recently I thought the same again. Never again.

The thought that this problem might just re-occur over and over for the rest of my life is just unbearable. The thought that I may need another operation in 12 months or two years just fills me with dread.

I just don't know what to do. Phrase 3 Hidradenitis Suppurativa really sucks!!!

I was reading about a surgery procedure that looks far more painful than what I have endured to date. And the Doctor at the local hospital showed me some pictures of the patient after the surgery and it looks like all the flesh around his buttocks has been removed.

Has anyone out there had this operation or something similar? Was it successful? Can you offer any advise or suggestions?

My email is: [email protected]

Thanks for any help you may have!

Michael

Replied by Lisa
(Thousand Oaks, Ca, Usa)
04/16/2010

Hi Michael,

I am so sorry to hear of your suffering. Work to keep your spirits up. I know it's hard when sometimes the odds seem against you. So, since you are in China, have you explored Chinese medicine? Often, what cannot be explained in Western medicine, answers can be found in Chinese medicine. Also, our diet governs so much about our health. It is what creates our body. Whatever goes into it, our body uses to make it up. In that respect, how is your diet? Lots of greens will give healing energy to your body, raw mostly. And green juices as well. Recently, I read the anti-cancer diet book and there was fascinating evidence that turmeric is an extremely effective spice to take in helping heal the body and especially effective with "boil-type" issues and inflammatory problems. One of the key things it said that its effectiveness is raised exponentially by ingesting it with black pepper. This is traditionally what is in curry and could be the wisdom behind this combo of folk/culture knowledge. Burdock root is also used to purify blood and help remove toxins. It is known to be effective in antibacterials and antifungals- a concern in hd sufferers. The western drs. seem to recommend antibacterial soaps to be used with hd but, my concern would be that those soaps would throw off the natural, very important balance of the skin. For myself, I feel that cleaning up your diet changes everything.

I wish you the best and hope that some of this info can help you. Don't give up- answers are there but you have to search and sometimes quite deeply. I do not have hd but have had my own health issues. I have restored my health after 5 years of research and exploration. The final answer was truly found with diet. I eat a lot of raw greens and veggies, sprouts, green juicing daily, lots of garlic and onions and have cut out dairy and gluten which can wreak havoc in the body. I pass on this information because I have spent a lot of time and energy looking for answers so if I can help just one person by passing on what I've learned, that would be great! I just want to let others know it is not a "hopeless situation" as drs. will sometimes diagnose because in my own quest, I have heard story after story of these diagnoses turned around through natural means.

You are in my thoughts, Lisa

Replied by Alfred
(Bangkok, Thailand)
04/17/2010

Michael.. you have gone thru Hell..My Thai Father in Law.. Had a baseball growth under his rib cage.the massage lady found it.. He is 86 ..too old to operate.. which i was glad.. my Theory about Apple Cider Vinegar..NOTHING I Mean nothing bad will grow in your system, if you take ACV.. my father in law from Old Thai School.. Trusted me. he took ACV 3 times a day. 2 tea-spoon full in glass of water.. In Only 2 1/2 month the Tumor or what ever was gone.He keeps taking ACV because he feels better.. Now we have YOU..I am upset.. those Doctors cutting you up. Michael PLEASE start taking ACV Today..You can not take too much of ACV.. you can not overdose on ACV. No side effects.Please start now .. two TABLE SPOONS IN GLASS OF WATER.. 4 times a day.. i KNOW it will FLUSH all that bad stuff out of your system.. If you have boils now..they will disapear.. NO new boils will start.. Michael.. It sounds too easy.. It is easy.. IT WORKS.dO NOT TELL YOUR dOCTOR.. HE KNOWS NOTHING ABOUT ACV.yOU MUST FLUSH OUT YOUR SYSTEM WITH acv. YOU WILL FEEL BETTER AS YOU DO IT. I TAKE ACV DAILY.
you will feel better soon
Alfred

Replied by Anita
(Edison, New Jersey, Usa)
04/18/2010

turmeric and neosporin were what i tried. i am from india and that is what i went for first. the boil has burst, is hard and hot and i now have infected glands in my groin. a chinese herbalist has given me a combo of a natural tincture and cal sulph 6x homeopathy. dont know yet but it seems not to work still. starting a fever now and will have to go to a regular doc tomorrow for a strong anti biotic. yikes

Replied by Michael
(Suzhou, Jiangsu, China)
04/19/2010

Hello Lisa, Alfred and Anita,

Thanks for replying to my message. It seems my wounds are slowly healing, and after a visit to the hospital yesterday the doctor said I didn't need to go back unless there was a problem. I spent a month in hospital after the last operation and have had to go back every three days to have the wounds cleaned for the past two and a half months.

I'm very conscious that the problem could return at any moment so I guess I should give some serious thought, and action to preventative care.

I'm going to try that Apple Cider Vinegar that you suggest Alfred, and the Turmeric with the black pepper, thanks for your encouragement Lisa.

It helps just to know that I'm not alone with this thing. That there are others out there that understand the pain and trauma of dealing with this.

I also like your suggestions on changing my diet Lisa. Although I've never been a big fan of vegetables and fruit, it makes sense to me, so I'm going do my best to make some serious life changes. If anything can help to prevent another operation then I'm game.

Thanks so much for your support and understanding. It's much appreciated.

Michael xx

Replied by Alfred
(Bangkok, Thailand)
04/19/2010

Michael, You got some info from Ted & Lisa..Now its up to You..YOU ARE WHAT YOU EAT. First I suggest you clean out your system.. A lot of bad crud, that hanging around in your body. In San diego they have a health spa.. people who have one month to live.. They clean them out with Wheat Grass juice and Rejuvalac. See if you can find wheat grass juice, put into your body via enema. Twice a day..Drink 3 oz of juice twice a day..Put the juice in your eyes, ears.. anything growing on your body, put the wheatgrass pulp on the growths.. attach with masking tape..Then drink all the Rejuvalac you can drink. After two week ..Your insides will be like a baby.. then as Lisa said.. change your eating habits. No salt or food loaded with salt, no soft drinks, no fried foods, no food with fat, Stay close to raw foods or as close as possible.. Eat vegtables and fruit.. Green vegtables are very healthy.

Michael.. the ball is in your court.. it up to you.. get healthy with fruits and vegtables.
Much caring
Alfred

EC: Oh sorry, we posted Ted's information dated 04/19/2010 in a new thread at the top of the section: https://www.earthclinic.com/cures/hidradenitis_suppurativa.html#TEDS

Replied by Ana
(Las Vegas, Nv)
04/24/2010

Michael...I can empathize with you. I have had surgeries to remove individual lesions, tried every antibiotic; topical and oral, tried ACV, Zinc, Magnesium, Turmeric all the way to Mercury (homeopathically). I've been back to surgeons for help again and now have been turned down by 5 plastic surgeons because of the extent of my disease. My physician has pretty much thrown in the towel because her only answer is for me to be on antibiotics for the rest of my life and I refused. I fortunately work in a medical facility that has physicians who are at least willing to troubleshoot for me. Problem is; there is so little information on the disease that even the best physicians are at a loss as what to do. As far as the weight issue goes; I was not over weight when they started. After children; yes but I have lost 65# in the last year and have seen no improvement at all; as matter of fact they have worsened. I now have what I believe to be cellutitis. (yes I am medically educated)Onset was just a day ago and the pain is increasing so I may need to be seen by my physician at this juncture.

Quick info about me: I am 38 y/o, was diagnosed with Obsessive Compulsive Disorder at age 14, no underlying medical conditions, no family history of this disease, had HS for almost 10 years, supportive family, and the ability to see physicians all over the country for this because we are a military family. I pointed out the OCD because that should indicate to you how compulsively I clean "everything". There is no cure! I take ibuprofen and take hot baths for the pain, Xanax for the anxiety it causes and ocassionally a nice stiff drink. (Ibuprofen because my physician will not prescribe anything else) I cover them with gauze since they constantly drain and ooze, wash the area several times a day with "normal" soap that I keep in my purse (the small travel size) and keep the area as dry as possible.

I have recently realized this may just be my cross to bear. It is a horrible disease that I wouldn't wish on anyone but I get through by thinking of those who have health problems that are far worse than my own. I haven't given up; I just refuse to do any more than I already do everyday; lead a healthy life by eating right, exercise and prayer.

I hope you all find peace and maybe one day they will find a cure. God's blessings to all.

Replied by Ana
(Las Vegas, Nv)
05/16/2010

As you can see from my previous post; I had stated I was going to do nothing more than I already had. Well unfortunately I must say my HS took a serious turn for the worse. I had several days of feeling yuckier than usual and started getting red streaks down my legs and up on my abdomen. I had a fever and was told by my MD to go to the ER. Long story short they took all kinds of wound and blood cultures and low and behold I had a blood infection. Several days in the hospital with so many IV medications I lost count. Only good part of it all was the Morphine they gave me for the pain. :) Well it's been 2 weeks and I'm still not well. I'm taking 3 antibiotics, an antifungal because the wound culture grew fungus, antinausea meds and a narcotic. My new dermatologist prescribed me a drug that is not approved in the US so I had to order it from Canada. He thinks outside of the box and I like that. It's called Diane35. It's basically a birthcontrol pill so only women can use it but it has some pretty interesting data when it comes to HS or severe acne cases. It's very affordable, you don't need a prescription and it also helps with excessive hair growth and sweating. Kills 3 birds with one stone. Worth a shot.

Replied by Francisca
(Michelbach-le-bas, Alsace, France)
05/16/2010

Hi Ana, the Diane pill has been used for acne here in Europe for decades and it seems to work very well. Here it is prescribed by normal doctors. I hope that you get better soon!

Replied by Sara
(The Beach, Canada)
05/17/2010

I have PCOS and my doctor mentioned putting me on the pill if he could get my periods started back again. He has induced them with meds. They go for a month and stop again, then induced go for another month and stop. He says he would like to put me on the pill so they might come consistently if they stop coming on their own. I have to go back and tell him they have stopped. The problem is I would like to find out if the diane35 is suitable for a 46 year old woman with PCOS. I would benefit from the relief for HS as well I have had it
since I was in my early teens. Does anyone have any adverse effects to the Diane Pill? With similar circumstances? Thanks, Sara.

Replied by Ana
(Las Vegas, Nv)
05/18/2010

Thank you Francisca. I hope to feel better soon and I have ordered the Diane35 so just awaiting its arrival. Good to hear that it works and has been used for years in Europe.

Sara; I don't have any info on PCOS and Diane35 but I have had a hysterectomy so I obviously don't have a period either. I've researched other BC pills available in the US and none of them have the same formula as Diane35 even though they state they help with moderate acne. I've spoken to 3 different MDs in different specialties and they all agree that Diane35 is the way to go in regards to HS. Hopefully someone will be able to answer your questions soon. Take care Francisca and Sara.

Replied by An
(Las Vegas, Nv)
06/14/2010

Well it has been a month since I started Diane35. To be honest I questioned whether not they were worth taking. The nausea, mood swings and irritablity were pretty intense but I noticed a change in the HS so I'm sticking it out. All of my doctors did tell me that I should take them for 3 months before I would see any significant change. As a bonus; I also have facial hair growth that has slowed down immensely. The mood swings and irritability have started to level out but keep in mind I had a hysterectomy so I've been without normal female hormones for several years. Overall I'd give them a thumbs up.


General Feedback
Posted by Efgirl (Chattanooga, Tn) on 04/15/2010

I guess one could say that I've suffered from HS for close to a decade. Yet, didn't really have a name for it for years and years. I am a few months shy of my 30th birthday and I remember when I first started to get the lesions in my groin area and thought they were an irritation from ingrown hairs and shaving. Not much later I feared they were some demented STD that I hadn't heard of... even though my fiance didn't have they same symptoms. I spoke to three different doctors that said they were weight related, if I lose weight and keep them clean they will go away. I have always been cautious about body odor so keeping it clean wasn't the problem and my weight has fluctuated over the past ten years but the sores got progressively worse. It wasn't until about a year ago that I started to try and research for myself what exactly was going on with my body. I believe that I have been blessed to not have ever experienced some of the worst of it yet. At their worst, the sores were no larger that a large grape. Still painful and still distracting from work and relaxation and so embarrassing that I had lost all confidence in my sex life. My armpits, stomach and groin area, i fear, are permanently scarred. I am writing to say that at the very least, finding this website has allowed me to feel less alone. Knowing that HS is a real ailment that others live with daily helps me to not feel so stupid for the misdiagnosis of uninformed health practitioners, or the awful days when I had to change my clothes three times in order to find the outfit that HURT the least, or the utter disgust I have felt seeing my naked body (let alone letting others see it). I have read advise from others who understand this pain, others who have tried remedies and failed or succeeded. I work at a health food store, and until tonight, haven't truly thought that there could be some relief to be found in the place I am everyday! I am planning on trying Tumeric starting tomorrow. I can only keep my fingers crossed that the first time trying to end this pain will be the charm. However, if it is not, at least I have so many other helpful suggestions on this site that I can always keep trying until I find the answer. Thank you Thank you Thank you!


General Feedback
Posted by M. (Wenatchee, Wa) on 04/06/2010

Im only 15 years old and i found out i had HS about 2 years ago but the symptoms started when i had started to get my period around age 12. I thought it was from my weight so for the last 3 years i have been unsuccesfully trying to loose weight. I only just started to think about my future with this. and so i researched it. I dont have the severity of this condition as some people do but it still scares me. So, thank you for the tips. Since i suffer from depression as well, this disease doesnt make it any better. This is probably going to be more helpful than what my dermatoligists give me. HS has ruined part of my social life.. i was wondering if any body has any Wifes or Boyfriends or any signifacant other and how you told them about it.

Replied by Jessica
(Lyndhurst, Nj)
10/08/2011

I am interested in talking to you more about how to introduce the " bad news" about HS to your potential mates, I have actually been married for 5 years and had several boyfriends before that, none of my partners ever cared as long as you explain it-


General Feedback
Posted by Crystal (Wallace, Ks) on 12/30/2009

I just figured out what I have tonight on this site. I have had HS for 11 years. It started when I was twelve years old. It started on my neck, causing embarrassing/painful lumps that people could see. A doctor told me that is was in the "fungus family" and told me to use compound W. This got rid of it, and left scarred holes in my neck. A year or two later it started between my thighs and under my stomach, and the compound W had no effect other than severely burning. Tried fungus creams... My husband has been supportive, but I feel for and understand the self-conciousness for the women (or men)who are finding new mates. It is embarrassing. I can't believe a cure may have been in my cuboard the whole time (i may have to purchase the capsules)! Anything is worth a try. I was getting to the point of wanting to scald all of my skin with as many chemicals as I could think of to get rid of it...the turmeric seem like a wonderful alternative, thank you all for the info. I will try to report back if I find this cure helpful!


General Feedback
Posted by Stephanie (Eugene, Or, USA) on 12/20/2009

Suffering from Hidradenitis Suppurativa (HS), Looking for cures!

Hello, I've been suffering from HS ever since I can remember. I'm now 20, and my mother tells me I've had it since I was very young. Around the age of 11, I saw a [rather uneducated] dermatologist regarding the hideous and painful sores I had in my groin and inner thigh areas. After showing her, she actually had to consult another dermatologist, and refer to some Skin Disease Encyclopedia, based on what the boils looked like. This dermatologist offered me an antibiotic to treat it, and I remained on the drug for roughly 6 months, with no relent in sight. After the antibiotic failed, I was prescribed an ointment (clindamycin), which too failed to have any impact on the sores after months of diligent use. When all this failed, the dermatologist recommended intralesional injections-- they basically inject something (I don't recall what was in the syringe) directly into each boil. Left with really no other options, I agreed to take the injections. The dermatologist administered three injections one day, which were pretty painful (mostly due to the sensitive area of the body) and left scars, BUT scared off the boils. I had two more injections after that day before I couldn't take it anymore. The scars still remain, but I'm happy to say I haven't had any outbreaks in those 5 spots since the injections.

I went a few years in remission, with the occasional flair, however nothing I couldn't handle. About two years ago, I had another outbreak-- a very, very bad one. I didn't do anything about it, thinking it was just stress or irritation, and I'd go back into remission shortly. Long story short, that didn't happen, and the HS actually traveled north, so to speak, and I now have very embarrassing scarring and boils underneath my breasts. When I first noticed the spread to my breasts, I immediately called a dermatologist (a different one from the first, since I moved out of state for college). This dermatologist recognized the disease right away and seemed very familiar with it. She explained the lack of a cure for HS, and after telling her of all the medicines I'd tried years prior, she said the only option left was isotretinoin (sp?), aka Accutane. I was hesitant to begin a cycle on Accutane, since the FDA highly regulates the drug due to its connection with blindness, frequency of headaches, severe depression, and severe birth defects, if the child were to survive birth (miscarriage and stillborn children are common while on Accutane). However, with my options dwindling, I agreed to start Accutane. I'm currently in my third month, and have seen slight improvement, but nothing to jump up and down about. :/

I plan on seeing this cycle through (I have about 6 months left), but don't foresee anymore cycles. The risks are too high, and the payout is too low. I've read some other posters' remedies, such as epsom salt baths, tea tree oil, antibacterial bar soap, etc., and plan on giving some of those a try. I'm hoping something helps, because the condition is extremely embarrassing. I feel exposed, damaged, and don't feel like I can have an intimate life with my boyfriend, comfortably.

I am so happy to have found this site, it's a reminder that I'm not alone in my physical and emotional pain and suffering. I hope one day I live to see a cure for HS, and pray that doctors, especially dermatologists, become more educated on the subject.

Thanks, and good luck to everyone sharing this fight with me.

Replied by Childofgod82
(Los Angeles, Ca)
01/10/2010

im sorry for the pain both of you guys are experiencing. Happened to me at 12 always had reoccurring boils went to the doctors they just lanced and gave me meds. At 12 i had my sweat glands removed from under my arms, skin grafts the works. So now im a woman in my twenties i have them sometimes but very small usually around time of my period when the hormones are crazy anyway. then they go away afterwards. This is what i do everyday to keep things clean, i clean the area(s) with dial gold soap or safeguard bars only. i blow dry the area with an hair dryer to keep it dry, then rub witchazel on area and dry it again, thats had worked for e remember to keep the area as dry as possible so try panty liners, and try to keep the hair as short as possible never shave just clipped. Oh yea if i have one i mixed teatree oil a bit it will dry then itch really bad so just a lil mix with a thicker ointment if your want just natural try castor oil, maybe a lil raw honey and place it on it will quickly dry up. remember always keep areas dry. Hugs alicia


General Feedback
Posted by Lola (Selangor, Malaysia) on 11/11/2009

hi im 23 and i have hs. After reading and seeing what other people have gone through and looking at some of the state that their HS have developed into, im really really upset and sad and i just need to know from everyone who is suffering from HS does HS get worse and worse as i age? please someone help answer this. Its really stressing me out. Im heartbroken. PS i really dont know where to post my questions. im so sorry, im new.

Replied by Dolly
(Cairo, Egypt)
11/12/2009

Hi Lola, I read your post and really feel for you as I have HS myself and it is a heartbreaking, depressing and stressful condition. Everywhere I read says its a progressive illness meaning to most people it starts with the 1st stage and by time gets worse, the good thing is by taking your remedies (found on earthclinic)and keeping a clean diet it could be controlled. I read in many HS forums that there are people who have been boil free for 2 years since they kept taking their remedies religiously.

I got this for the first time in 2008 under my arm and been very depressed since, I was in constant terrible pain it was the size of a golf ball until I lanced it, I am taking Turmeric 2 to 3 times daily, cayenne every other day, burdock root powder in times I feel pain and tingling under my arm (I add to the turmeric powder)and I take metformin 500g and Zinc 50g one pill each daily.

It is very important to stay away from sugar its really bad for HS, caffeine and stress, focus on vegy's and fruits, also avoid fats it is bad, for some people there are other foods that trigger their HS you will have to be aware of what you eat to know what to avoid.

I hope this helps, always pray for healing.

Good Luck, Dolly

Replied by Bill
(San Fernando, Philippines)
11/16/2009

Hi Dolly...HS sounds very difficult to control. I had tinea cruris (jock itch) for about 7 years, nothing I ever tried -- all the drugs, antibiotics, rubs -- all useless.

Then I read here that Milk of Magnesia (MoM) was a cure for tinea cruris which is fungal and not bacterial like HD. I had tinea in my crotch that went right round to my rectal area.

Using MoM every night after my shower, I would apply MoM externally all over the affected areas, and shower it off the next morning before breakfast. I have also read that MoM dries out and that you should wash it off after 10-20 mins because MoM also has a drying effect on the skin. Up to you really, I just did it my way.

Took 2 days to eradicate my tinea, after 7 whole years !!!

My belief is that because MoM has a pH of about 10, and all bacteria, fungus and microbes will be completely destroyed by this extreme alkalinity which does little harm to the skin. MoM even kills MRSA -- which is bacterial -- according to this site and I well believe it.

So perhaps a topical application of MoM is worth a try for HS. Try MoM on a small patch or area of HS first to see if it works. Worth a try.

Good luck !!

Replied by Dolly
(Cairo, Egypt)
11/18/2009

Hi Bill

Thanks a lot for your feedback, I am happy for you for getting rid of tinea. Its so true that HS is difficult to control as its a terrible disease and it has caused me unbelievable pains, I am trying to do my best though trying everything there is possible to handle this. I have tried to find MoM in Egypt months ago, but its not available, I would try to get it online & see.

Thanks again Bill.


General Feedback
Posted by Terry (Spring Valley, New York) on 05/15/2009

My daughter has Downs Syndrome and has been suffering from Hydradenitis Suppurativa since she was 9 years old. She is now 25 years old and in fact she is home today with breakouts under both arms. It seems to flair-up just a few days before her menstual starts. Apparently for her it may be a hormonal deficiency. We have been to numerous physicians but not one has offered any kind of support for this condition. She has been on the Omega 3 after every meal but it does not seem to help. I find that soaks in Epson salt and warm water hastens it to a head. At night I apply Ichthammol ointment 20% to the area (which really damages your clothes - stain will never come out), however it does bring it to a head. Since my daughter has hyperthyroidism and is on Synthroid daily, I am afraid to try different remedies that may compromise the effects of the Synthroid. So if anyone out there who may be in the situation my daughter is in, I am so very excited to hear from you.

Replied by Tina
(Nova Scotia)
05/16/2009

i take Synthroid as well i am hypo and what helps my HS is tumeric i take a tsp of tumeric and mix it with a tsp of peanut butter or another nut butter to make a paste and swallow it down that way. depending on the flare up i may do this morning and evening. most times it is just once a day. this does not contradict my Synthroid at all and really helps my HS.

good luck, tina


General Feedback
Posted by 32 female (Lakeland, GA) on 05/06/2009

Im 32 and has suffered with HS for about 17 yrs, I have tried everything from antibiotics to steroid treatments. Oh did I mention Nothing worked I am more saddend by the psycological affect that it has. I have been with the same guy for 15 years he is now my husband and Im still ashamed to show him my outbreaks. I try all that I can do to not let him see my armpits, and times that he wants to be intimate I have to turn him down because I have an outbreak in my private area. Very stressful but I have been dealing with a very long time, I just want some relief because no one I know can understand my pain.


General Feedback
Posted by Nek (Evansville, Indiana) on 11/04/2008

I have suffered from hidradenitis since puberty. I am now 40 and male. I have read comments about the effectiveness of turmeric for hidradenitis on this site and on others and having suffered in silence for so long I am optomistic, yet skeptical, as to whether it will work. I, too, have tried accutane (God-aweful experience), antibiotics, tretenoin cream, various soaps, etc. (all to no avail) and am very close to making the choice to have a sinus tract surgically removed from my groin. The pain is, as everyone knows, excruciating and until recently (probably the last 1 1/2 years) the disease has manifest itself on both buttocks cheeks. I have connecting sinus tracts all over my bottom (and also have the embarrassing scarring to prove it) and I can only guess that the tissue is so damaged from years of boils on my bottom that the disease needed "fresh meat" and headed to my groin in search of new apocrine sweat glands. Lovely, huh? All of this said, I hope it is understood that I have lived with this affliction for 30-some painfully (literally and figuratively) and, at times, humiliating years and no physician has been able to prescribe a medication that helps.

Inasmuch as I continue to search for a cure, to no avail, I am cautiously optomistically that turmeric is finally the magic bullet that will end the years of pain, scarring, embarrassment, smelly discharge and useless/expensive trips to doctors, who nearly always say that I should be glad it is "down there" and not on a visible part of my body. I always have been glad for that but somehow their words lack true sympathy for the debilitating nature of the disease.

So, last evening, after reading posts regarding turmeric helping combat/cure hidradenitis I ran out and bought turmeric from Walgreens. The pills are 950mg with pepper as a buffer (I guess). I took two pills last night and then made a salve from another pill mixed with neosporin and applied it to the boil (with sinus tract) on my groin. I have had this particular oozing, painful boil at this location for about 10 months. It started to tract about 2 months ago. This morning I took another 950mg pill, a second around noon and a third around 6PM. I'll let you know how the treatment works out after a week.

Replied by Shelly
(Toronto, Ontario, Canada)
11/05/2008

I'm curious if anyone has mentioned botox injections at the groin area for you. it has been a life saver for a few people i know. i know it can be expensive, but you can look into health care coverage, i would rather be out of pocket,than to live through that pain and i totaly sympathize with you i've been there too.

Replied by JOane
(Newcastle, England)
05/10/2009

Hi my name is joanne and since i was diagnosed with HS a few months ago (had symptoms for 20 yr), I like many are trying to find what works best for us. Ive heard that tumeric powder is more effective than capsules, although it does taste a bit "funky".

Replied by Renee
(Atlanta, Georgia, USA)
11/17/2009

I'm writing more so because my daughter who is now 25 years old has had HS since she was 12, at which time I authorized surgery to remove sweat glands from under her arm pits. That worked for a few years actually; however, over the past few years, she's had really bad outbreaks in her groin area and it is also regenerated under her armpits. She gets depressed more often lately and I feel so helpless. She has two young children, 4 years and 5 months old, works a full-time job, and is completing her Bachelor's degree on line. She's a wonderful young lady. I try to help in every possible way that I can, by dressing and bathing the children, feeding them, buying her dressings for her sores, planning events to keep her mind occupied and to keep her happy. I feel for all of you because I have seen the debilatating effect of this disease. I have faith in God and I trust him and believe that he will heal her. In the meantime, I'm looking for a way to help her to live through this both physically and psychologically. We're going to try Tumeric and she's trying to get her weight back down after having the baby. Although her children's father seems to really care a lot about her, I think she would do better than him if she didn't have this condition and had more confidence in her appearance. I finally got her to go to counseling one time and she invited me to participate. For a long time, I thought she was dealing really well in accepting and dealing with the condition. I found out in the session that she's been hiding her real feeling. Everything I thought she must be feeling as a young lady, she was feeling. I'm going to keep trying to make her feel comfortable and deal with things one day at a time. I'll keep looking and taking her to every doctor and clinic I can until we find a cure. I won't give up and don't you give up either!

Replied by Ellen
(Sherwood Park, Alberta, Canada)
11/18/2009

You may find some relief if you apply coconut oil to the affected area and then apply 1 drop of oil of oregano. The oregano will help allieviate the pain for a while and both oils are very healing and are antiviral, antibacterial and antiparasitic.

Replied by Lisa
(Thousand Oaks, Ca, USA)
11/18/2009

Hi Renee,

I just read your post and felt I had to write. I'm glad your daughter has you to help her. I can hear your sincerity in your desire to help her. I understand because I have a son who is 24, daughter 23 and son 21. (Two more much younger.) When they get older it can be hard because they are "adults" and you have to respect them and yet you want so much to help them too. Anyway, my heart goes out to both of you. The reason I'm writing is because even though I've posted several times about the mini beet protocol, it has led me into a vast storehouse of amazing information from the raw food world and superfood world. I would urge you to look into this as I have seen miraculous things and testimonies from people who were hopeless and turned their lives around. It is full of inspiration which you need right now. Try to find my posts as I talk about it in them. See if you can start by juicing and getting fresh raw vegetables into your diet. That would be a good start. Remember too, the doctors don't have the answers to the healing process. Their knowledge is in drugs and surgery. We must all start taking our bodies back and finding the true answers. You say you have faith in God- well, guess what, God has given us so many ways to be healthy and stay that way from plants and herbs found on our planet. Go on youtube and find David Wolfe and Daniel Vitalis which will then lead you to other very inspiring people- Hulda Clark, Angela Stokes, Gabriel Cousens and more that will turn what we have been told on its head! There is hope, there are answers just do the research- it's all at our fingertips with the internet. I wish you the very best and my thoughts are with you. I have faith that with this knowledge, you could turn all of this around. Lisa

Replied by Erika
(Houston, Tx)
04/11/2017

That is terrible to hear, I'm sorry about that. It is very debilitating and definitely affects your self-esteem. It sounds like you already do support her and encourage her to look beyond this, and that's great. I too live with HS. I've had it for 4 years now and can relate to the feeling. I hope she continues with counseling. Best wishes to her and God bless.



NEXT