Re: hidradenitis suppurativa. I've had the disorder since I was 22 and i'm 30 now. I was just officially diagnosed last year. Long story short i've had an area the size of a mini golf ball near my labia, you can imagine the pain, they have been lanced and drained only to return. It's gotton worse over the years, it started out as one large area on the left labia and now i have areas that affect both sides of my entire groin. Lately i've been cleasing the area with dial antibacterial soap, old fashioned yellow bar. 2 times/day, follwed by a few drops of tea tree oil, i also take 2 300mg tumeric tablets daily. When i feel a flare-up coming i take one alleve which prevents a full blown flare up. I suggest trying a variety of treatments and would advise staying away from antibiotics, they don't work.there are sites which i'm not allowed to name that guarantee a cure that are all natural, i would suggest choosing the one that gives you the ingredients of their product only. Don't let this disorder discourage you. It can be maintained. I can't stress this enough surgery and antibiotic therapy don't work, use natural herbal remedies for this disorder. I've had surgery only for the boil to return in the exact same spot. I'm a rn and i see so many of my patients think that surgery and antibiotics are the only answer. Please continue to research and find natural cures and lifestyle changes that can manage this annoying skin disorder.
I came upon this site out of desperation looking for some help with the hydradenitis. I have been dealing with this for at least 30 years. I have only had a few at a time and sometimes none at all for a few years, I get them in my groin area and on the labia. I have only had really large ones on 3 occasions that sent me to the Dr.
Just a few weeks ago I developed a very large abscess that became about the size of a lime on the labia on left side. I called the Dr. and went in right away and was put in the hospital to run IV antibiotics. On day 2 it drained and he let me go home on day 3 with 2 different strong antibiotics. It went down to very small size but did not go away and I started to develop a smaller one on the left side.
So coming to this site and reading all that people were using I decided to start using the turmeric and zinc. Also using tea tree oil mixed with olive oil. I have to say that this seems to be working better than the antibiotics. They drained for a few days after starting this, now the drainage has stopped and they seem to be going away. I am taking 450 mg. of turmeric 3 times a day and 50 mg zinc twice a day. The tea tree oil I am applying after shower and then one or two times again during the day. I hope that they continue to go away and I don't have any more for a while anyway. Thank you for all the information and help. Glad to know that this is not a rare thing and lots of other people are going through this also. I did have four surgically removed 2 years ago and did not have any more for a while. But the ones that just came up have come back in the same places. So I guess the surgery wasn't that successful. Here's hoping that I continue to get better with the use of these supplements.
Hello Earth Clinic! I'm a white female, 23. I've been suffering with hidradenitis suppurativa for 3 or 4 years. I've been to the doctors, and have been tested for everything under the sun, and it just isn't an std. It also just isn't cured with anti-biotics. Upon looking at earth clinic, I have applied:
- -bathed with borax
- -tea tree oil
- -coconut oil
- -neem oil
- -zinc supplements
- -salt water
All of these remedies helped a little, and at least educated me on the ways of living a natural life, but did not wipe this condition out. I was desperate, and I had heard of urine therapy curing MRSA for a family member. I have been using urine therapy for probably 2 to 3 weeks. Basically- every time I go pee, especially in the morning, I drink it, and rub some on the sores.
In the very beginning, I had one, but kind of 3 sores stuck together, that were sore, inflammed, red, raised up, and they are kind of like a pus filled tunnel under the skin. I started drinking the urine, immediately I felt better inside my body. I'm the definition of tired all the time, with a screwed up sleep schedule, and I actually started waking up in the morning. It seemed like the sores became worse, after a week or so. Because they were worse, I applied urine compress on them while I slept. Always in the morning, there would be massive improvement as far as inflammation. The sores were still there, but flatter, less red.
At this point I have had 3 weeks with no new boils, and these ones are on their way out. They are not full of puss any more, they're pain free at this point, all though there is pretty bad scarring. I feel lucky to have to deal with the scars- the scars mean their healing! Finally!
So my point is, I think the urine therapy is working. Now, most people think it's gross, but we're earth clinic people- people who are willing to put our egos aside and just do something, anything to be healthy! Good luck to all the other sufferers out there!
PS, has anyone fully healed up from this yet? I'm interested in the phases of healing of the scars... Thanks :)
I have been having trouble with boils for about 8 months. They were in my genital area and my under arm. I tried everything from turmeric to salt, to acv. Finally, one weekend, I had been at a party with friends, and had a flare up. I had read about several things to try online. I tried a tablespoon of buffered vitamin C and a teaspoon of aloe vera gel in a glass of water, with 2 500 mg tablets of spirulina, and by morning the boils were completely gone! I could not believe it. I have now been taking this 3 times a day for several weeks, and NO boils have come back. I am so happy. Just wanted to share. Thank you Earth Clinic.
Hidradenitis. I was researching this disease on the internet since my HS has recently spread to my armpits. I have always had it on my thighs and groin area, but now in my armpits as well. I found that some people had success with Vitamin E since it naturally boosts your immune system. I took 3 of the 400 milligram capsles at night, and when I woke up the next day, the boils were already softer. I took 3 more that night, and they are even better today. The pain is gone, and there is just loose skin where the boils were. I am going to keep taking 3 pills a day as long as it works. Hope this helps.
I have had no luck with anything my doctor/dermotoligist has suggested, mostly long term antibiotics. I have has some luck with A&D with Zinc (it is a diaper rash ointment). It makes the swelling go down over night (warning: it does drain quite a bit) and makes them much less painful. I have also had good results with red and blue led lights under my arms for 15 minutes a day.
Hi, all, I am 54 years old and was diagnosed with HS around 6 or 7 years ago. My case was basically contained in my armpits. My doctor drained and excised many boils (he referred to them as "carbuncles") and I have the scars to prove it! Never once, however, did he prescribe antibiotics. He told me to stop shaving and find another method of hair removal, try to find a deodorant alternative and, most importantly in his opinion, he told me to *lose weight*, saying that this condition is largely exacerbated by carrying around extra weight. Over a period of two years I lost 60 pounds and I have not been bothered with HS again, not in the least bit. I am convinced that there is a link. By all means, if turmeric works for your case and gives you relief, go for it! But if you're overweight, I highly encourage you to resolve to slim down (for multiple reasons! ). Even after losing 20 pounds I noticed a huge difference in how this disease presented itself.
Hi guys, I have had this for quite a number of years. And while I'm sure tumeric and the other remedies discussed on here work, for me protein shakes seem to be the answer. Of course it is not a cure but it makes the HS very manageble and takes away almost all of the pain.
How did I find this out? Well I heard someone say they were going to try it for their HS and I thought I should look into this. Apparently there is an enzyme in protein shake that reduces inflamation, this being an imflammatory disease affecting the biggest organ ( the skin) I thought it might work and it does.
You don't have to even drink it everyday. I would say like 3/4 times a week should be fine. Also protein shake does NOT make you muscle bound. Please don't be naive.
I hope it works for you. Lets pray the find a cure.
I have been suffering with this for about the past 10 - 12 years too. The most significant surgery I've had was to remove golfball sized lesions from my armpits. I have had no problems there since the surgery about 2 years ago.
I have certainly found one thing that DEFINITELY works. When the boil forms, the fastest way to bring it to a head and have it drain itself without having to prick it yourself or go to the doctor is this: Take a regular brown paper bag (a lunch bag), cut it into squares just large enough to cover the boil. Cut 3 squares. Place these in a bowl and pour just enough White Vinegar to cover them. Allow them to soak about 30 minutes. Get a box of Tegaderm dressings (2 3/8" X 2 3/4") Place the soaked paper bag squares on the Tegaderm and put it over the boil. If you put it on at night, by the time you take it off the next morning, the boil will have come to the surface and burst. Sometimes, for the really bad ones, you may have the repeat the procedure once or twice more.
This is my testimony on dealing with a partner who is suffering from HS. Very long but I just needed to write this. I hope someone will find it useful.
My boyfriend and I started dating 1 year ago, we actually did not date but met and started living together almost right away, it was love at first sight and we haven't been apart ever since. Once we first started, as with every relationship, hands all over the place, sex 5-6 times a day, it was crazy, we both work from home, so we spent pretty much every minute of every day together. He always told me how he loved my flawless skin and how amazed he was because of it, I never quite understood that, he also never took his shirt off, not even when the lights were off... I never made a big deal out of it, I just found it strange. Three months into the relationship we stopped having sex, completely, all of the sudden, I could feel he wanting but not trying to. Though I am a very communicative person, at first I never felt like asking him the reason why we stopped having sex, I just questioned myself all day all night, fell rejected, undesired, some days I thought I was being cheated on, some other days after visiting stupid internet forums thinking he was gay. This led to a lot of pain and anguish from my side, sleeping everyday with someone who kisses, caress and loves me, but has not intention of having sex. After three months I finally asked him what was going on and he told me he had a boil on his groin, alright I said, bought him medicines, stupid me trying to cure him. The boil went away, and although I didn't pressure him, the sex wasn't coming back. Six months after that, I told him I couldn't keep on and didn't want to be in a sexless relationship (lots of internet research led me to that conclusion, again with the stupid housewives forums), I wasn't in a rush, nor I was mad or desperate, I was just bored, I told him he could take the time to search for a new place. About a week after that I noticed a boil on his neck, he told me he was getting this boils since he was 17, he is 38 now.
When he first started getting them his parents took him everywhere, the conclusion was always severe acne, and the remedies all kinds of antibiotics or anti-acne treatments, he never got better so they told him he'd just have to live with that. When we met he was on remission (and had been for about a year) 3 months after that he got a boil, and then another, an then another, and then two at a time, and so on. I started reading about his symptoms and came across with the name Hidradenitis Suppurativa on a British Council document, I translated it and read it to him and he could relate 100% with it, I told him to go back to another dermatologist and asked for another diagnosis, he went and again they told him severe acne, and 7 months of accutane, which he has already taken before with nothing but bad side effects and no remission. I was mad, and sad, and started doing my own research, I found this forum, and after reading every single comment on HS Ailments I did my own treatment plan and asked him to give me a month for results.
We live in South America, so there is no such thing as a Food Allergy Test as far as I'm concerned. I am a very enthusiastic amateur baker, and I used to make him a 1 pound cake a week, he is a very enthusiastic amateur barista so he drinks about 3 or 4 cups coffee a day. He is about 150 pounds, not overweight at all, but I could see how our food intake might be affecting his condition.
We stopped eating wheat, sugar and coffee about a week ago, we also lower significantly our consumption of carbs such as potatoes, rice.
He started taking:
Turmeric - internal, one teaspoon a day with warm olive oil
Zinc - internal, one tablet a day
Calendula - internal, infused
Omega 3 - internal, one tablet a day
Tea tree oil - external
We still can't tell if he is getting any results from what we are doing, I just hope he is, it is worth a try. If his life is better mine is a hundred times better. I don't want to see him living in pain, more so if he is trying to hide it from me. There are three more weeks to go, we'll see. He has being living with this disease for 20 years and as much as a part of him the condition is, I want to be with the man I met without it, in remission, enjoying physically and emotionally every second he spent with me.
Hopefully I would post a reply with positive feedback in a few days. Good night and good luck to all of you.
Zinc supplements are giving me AMAZING results. A study in Nantes France showed great results, taking 90mg of zinc daily. I have followed this regimen for 2 1/2 wks. and have had no new outbreaks, and (dare I say) my infections seem to be healing. This is the first time since I have been in my teens,I am now 55, that anything positive has happened regarding my H.S.
I highly recommend zinc supplements, if you can tolerate it. I have had no side effects at all, although the study said upset stomachs could occur. That being said, an upset stomach is a very minor thing compared to the pain and discomfort with this sad disease. Good Luck to all who try this. I am AMAZED!!!!
(Rio De Janeiro, Brazil)
(Toronto, Ontario, Canada)
well..I just started taking zinc gluconate for HS. Mayo Clinic recommends this as an alternate medicine. I had been doing well with just ibruprofen before when I would get the abscesses every month with my period under my arms. My family doctor thought it was hormonal so he referred my to an ob/gyn. I got lab work done and all my hormone levels are normal. The ob/gny then referred me back to my family doctor. Good thing that my friend is a surgeon and told me it was probaly HS. I had NEVER heard of such a thing...so here I am. I will keep you posted to see how the Zinc supplements (50 mg/ 1 a day) work.
(Groton, Ct, Usa)
(San Antonio, Texas)
Like most of you reading this I have suffered with HS for many years. I suffered with this on my buttocks and inner thigh and I thought I had tried everything. I endured multiple day surgeries to open the glands and have them stuffed with antibiotic gauze, and just about every ointment/pill the Dr would prescribe. I decided there had to be something better that would give better results, bc the surgery was so painful and it just wasn't doing much. I tried taking Tumeric and using antibacterial soap, and both were helpful but I still wasn't getting the results I wanted and this was starting to really effect my personal life!
I did some research of my own and discovered that dr's in Europe have been using Zinc Gluconate in clinical trials and found that most people had remission of symptoms that lasted! I decided to try it bc really what did I have to lose, right? I did everything the same as the trials, 100 mg of zinc gluconate/ day. I also decided to try diaper rash cream as a topical agent since it contains a lot of zinc. All the areas are almost gone! I have been doing this for 2 weeks are the results are amazing! I finally feel like I have found something that really works!!!!!!
I would say prior to this I had moderate HS and now it is almost gone, I hope this treatment works for all of you as it did for me :) I know how terrible thie condition is and the toll it can take on your life!
And for less that 15$, something that really worked for me!
I have found that for HS tea tree oil helps alot and taking extra zinc supplements!