Antibacterial soap is the only thing I have found that prevents boils from developing. I use the dial gold bars of soap and use it a few times a week in the areas prone to develop boils. In hot weather, use it more often. I forgot for one week and I am sitting here in pain. Try the soap. I went nearly 8 months without a boil...vs...1 or 2 a month. Try not to use on other parts of your body, this will dry out your skin.
I have had HS for 10yrs now. I've had surgeries which have helped it subside in certain areas. I have read on here that some people use dial soap and it didnt work...you need to use the DIAL LIQUID ANTIBACTERIAL Soap/bodywash. I use it and it helps a lot. I also found that using Gold Bond Baby powder triple action relief is a huge helper when irritation occurs. As for flair-ups...I just deal with them..it's painful but I do what I was taught to do; keep the area clean, dry and use Bacitracin ointment and I stay strong. Thats all I know how to do!
(St Thomas, Ontario)
(East Greenwich, Rhode Island)
I have seen two doctors in the last two weeks in regards to my HS. I learned two things from these people. The first is that Dial soap is actually bad for the area. Dial is a detergent based soap which actually breaks down the skin and weakens its defense power. The both suggested Lever 2000 which is moisturizer based. I have actually seen a huge difference in my affected areas since I switched to the Lever 2000. I have also been struggling with the odor that has been associated with my HS and had seen somewhere something about a crystal deodorant. I did find the product and began using it. I asked both doctors their thought and both were rather excited to hear about the product and said that it may actually aid in the healing process as well. The crystal deodorant is a stick of mineral salts that is dampened for use. I found it available at both the grocery store and Wal-Green Pharmacy.
Good luck and hope this helps.
(Christchurch, New Zealand)
a few months back i was on here and started taking turmeric spice in warm water, after a couple of weeks i was feeling better and had less "hurts" but one morning i got sick and couldnt take the turmeric since then. my hurts have gotten bad again so i decided i would take the pills, just started today! this time i will be taking 2 pills 2x's a day. and washing with plain old dial soap. after reading about the dial soap i did realize my HS got worse when i started using more body washes and not dial bar soap. i hope everyone that has this problem finds this website, and i would never wish this on anyone! the pain is unimaginable at times, as u all know! good luck to everyone! email me if anyone has any questions, or just plain support. bye!
hi I am a 23 year old female i have been with HS for 7 years. As alot of people on here has done, I have also been to alot of doctor and as most know that there is no cure. I was diagnoise with it about 2 months ago. My doctor told me to use dial bar soap and ever since, my lump have became smaller and less painful. I have not tryed the apple cider vinigar, baking soda, or Epsom salt, but I'm going to try it. thank you for your useful advise
Ailment: HIDRADENITIS SUPPURTIVA Remedy: ANTIBACTERIAL SOAP!
Ive been reading all the wonderful remedies and suggestions here on your site when i came across a section dedicated to HIDRADENITIS SUPPURTIVA and I just had to share my story as well.
I have a congenital birth defect that caused me to be born missing my left foot, I received my prosthesis by my first b-day. I grew up with NO problems with my leg what so ever and never considered myself to have any limitations. That is until i was in my very early 20's and began getting (what i thought at the time were) cists on my stump. This issue became worse and worse with each passing year and after doctors Lansing two or three of them I couldn't handle the recovery of each one anymore so I started dealing with them myself as they would appear. Nothing I did would work other then forcing my leg on, no matter how swollen I was and forcing them to break so that the horrible pain would go away. You see as anyone with HIDRADENITIS SUPPURTIVA knows the pain is unbearable so imagine having to walk on it. Most people who have HIDRADENITIS SUPPURTIVA suffer these sores in their armpits, groin, and under their breasts. I had never had any sores in any of those places. Only on my leg. Then as my leg got worse I began to get them under my arms as well.
After suffering through the pain for a few years I finally realized this issue I was having was way bigger then I could handle myself and truly feared doing more damage to my leg so I finally began seeing doctors to get answers. Honestly, this was a total waist of my time and my money!! I went to over 10 doctors, 5 dermatologists and NONE of them had any idea what was causing my sores. After being told that I would have to have the remainder of my leg removed, told that it was my hygiene problem and that I wasn't bathing properly, being told to stop wearing any prosthetics and be bound to a wheel chair for the rest of my life & even being told that I was too vain and needed to get over myself and realize that there was no need to wear a prosthetic I finally gave up on doctors once again and went back to dealing with the pain myself.
At that point in my life I was getting anywhere for 4 - 5 sores on my leg per week and had lost two jobs due to the inability to wear my prosthesis. I was just about ready to give into the doctor (dermatologist) who wanted me to have my leg amputated when I met a friend of a friend who asked me what was wrong with my leg that I wasn't able to put it on. After talking to her for only a few minutes and her begging me to see my sores she shockingly lifted her shirt and showed me the scars under her arms and explained HIDRADENITIS SUPPURTIVA to me. She had been diagnosed 5 years before after having two surgeries to remove her sweat glands.
I literally began to cry!! Finally I knew what was wrong with me....after 10 doctors and 5 dermatologists there was someone who knew what the hell it was. WOW! The next day I made an appointment at the dermatologists who wanted me to have my leg amputated and told him of HIDRADENITIS SUPPURTIVA. He and 4 other dermatologists after him had never heard of it and didn't have any answers as to how to treat this condition. Finally I found this amazing dermatologists who did know and I am now happy to say that 6 years later I have only had 2 sores and those failed in comparison to the size or pain of those in the past. The only remedy I have used in the past 6 years is ANTIBACTERIAL SOAP!!! Not the liquid or body washes the only one that works is the good ole fashion antibacterial bar soap. It is truly a miracle worker where my sores are concerned and I swear by it. I have even gone on vacations and didn't have ___ soap and immediately after only one day of not showering using ____ I have gotten a sore.
I hope in some small way this story helps someone else out there cause I know how hard it was going through day by day in pain and no one having the answers to help!! Good Luck!!
(Corpus Christi, Texas)
(N Billerica, Ma)