Hi, firstly can I say thank God for this site! I had a hysterectomy 5 years ago and have had HS for the last 3/4 years. Through your site I am now realising that I may have had this disease for longer but before my hysterectomy I was on the contraceptive pill Diannette which I see from some previous posts has helped with HS.
I started off on the cures for boils as this was what I thought they were and went with the turmeric and garlic as I get severe outbreaks on my groin and buttock area. Neither of these worked for me unfortunately.
On reading through this wonderful site I now realise that I have HS and have been trying to treat it for the last 6 months as I was due to go back in for surgery and after having this done previously to no avail realised that I should start looking at alternatives.
At present I am on ACV with mother and Manuka Honey twice daily, shower daily with non scented soap and apply dressings with tea tree oil cream to affected areas to keep covered and stop spreading any further.
I haven't had a new outbreak for about 6 weeks (which is the longest in a while) but the problem that I have is that 1 of them is still leaking and there are 2 big holes at the area and the others just aren't going away. I am a very patient person (as you have to be with this) but wondered if anyone could provide any other things that I could try.
Thanking all of you for your help
I have had this HS disease for about 16 years including a pilonidal cyst .The pilonidal cyst was treated 5 yrs ago with some herbs from a herbalist.The hidradenitis superetiva has gotten 95 % better because of the use of the Avocado bark. Avocado leaves and bark are used to kill streplococous bacteria. I poured boiled water in a water jar rand put a small piece of bark, I always used fresh bark. After the mixture has cooled l drank it. I drank it five times a month during my period for about 3 mnths, mybe it might differ in people.
I hope someone will be healed by this too. I also tried turmeric but for me it made a little change. l also had one of the worst Hidradenitis suppurativa.If anyone wants to hear more just ask. Sorry for my English its a second language to me.
I used to get boils in the groin area and just could not figure out why. I finally figured out what was causing this ailment after years and years of wondering. I had for years used bubble bath and I used many different ones throughout the years. Once I ran out and forgot to get some and again kept forgetting to pick some up. I didn't get any boils for a while. I bought some more bubble bath and I again got boils. I finally realized that whatever ingredient was in these bubble baths was causing my problem and I stopped using it altogether thank goodness. I am now boil free. So if you think that products are not harmful something as simple as bubble bath, think again. I won't use it ever again. I am a bath person as I like to soak and relax in a tub and I loved my bubbles.. but have learned to live without them.
Like many, I suffered from HS since puberty (so now about 10 years). I only went to the doctor once as a teen, this was quite traumatic as she simply told me I wasn't keeping myself clean. After that I started showering multiple times a day which caused the infections to get so bad I couldn't even walk. Now I know I'm extremely allergic to synthetic parfum and sulfates (also suspecting benzoates). I can't have it in anything, even if I wear clothes that've been washed with a 'wrong' detergent I'll break out within the hour. However, when I avoid bad soaps I'm 100% healthy (skinwise). Dietwise I eat mostly organic with much fruits and veggies and no porc, little sugar etc.. So I'm not sure if I would have infections again if I'd eat unhealthy. BUT I do smoke, drink coffee and alchohol, which doesn't seem to have any (negative) influence whatsoever.
I have suffered from HS for 30 yrs and have tried all doctors have to offer alternative remedies for relief. Bach (origional flower remedies)Rescue Remedy in spray or liquid..on boils and absesses 4-5 times daily. When caught early it resorbs/when in full "bloom" it helps drain and heal. I find myself craving Indian and Morocan food lately..will try the Tumeric remedy.
Hey everyone! I'm 23 years old and had sufferend from HS from the age of 16 - 22. I tried turmeric, tea tree oil, anitbiotics, surgery, antibacterial soap, natural deodorant, no deodorant, no shaving, creams, accutane, birth control... none of it worked.
What finally worked for me was Baking Soda. Just plain old, straight up, arm and hammer baking soda. After I shave, I just pour some into my hands and rub it on my underarms and inner thighs. I haven't had a flare up for a good 6 months and I'm happier than ever. I know this solution may not work for others, but everyone's body is different, and it's possible this may help someone. I understand the shame and the pain involved with this disease, but I want to encourage you all that there is a solution. As I said before, everyone's body is different, so each of us need different solutions. Here was mine. Hope it helps someone.
With Hope, Shanay
I have been taking baking soda internally every morning with lemon juice, why this helps is because it balances the pH levels in your body. Infection can't thrive in a non acidic body, so this helps balance your pH and help the body become more alkaline. What doctors also MISDIAGNOSE about HS is the fact that a lot of times the staph bacteria is what turns HS from a minor issue to a debilitating condition. Ask your doctor to check for Staph and then if Doxycycline or Bactrim does not work, try the baking soda with lemon juice. I have tried everything under the sun and this is the only thing that works for me. It's not only hormones, it's an actual infection.
So this may be archaic but I found bandaid Tough Strips (not the fabric ones) are a godsend for me. They are waterproof and stay on through showering and sex. I have HS in my groin area and it is triggered by stress and hormones. I can not wear underwear on a regular basis or the friction will cause an abscess. This poses a problem during my periods because I need to wear underwear on at least 2 of the days and hope I do not get one. What I do is put one of those bandages over an existing abscess or budding abscess. It creates a barrier between my groin and the side of my leg so that when I walk there is no friction and I can stop limping. It doesn't hurt and if I leave it on long enough my body will reabsorb what is inside the abscess and it will go away on its own. This has taken up to a couple of weeks before, but that was when I was super stressed so it was trying to get worse not better anyway. Usually less than a week. If the bandage comes off for some reason I just put on another one. It has just been so helpful so I wanted to share.
Winston Salem Nc
good news for everyone who are suffering with this disease. my daughter was suffering with this disease for the last 2yrs , i have tried everything u name it and one day in my home i found a herbal antibiotic. actually my uncle use this herbal antibiotic for general purpose and asked me to try this one. you can't believe it the very next day i saw the difference. boils which were open were like going to be disappear soon.
i am writing you the details of this antibiotic but would like to say one thing. this medicine effects on my daughter very quickly probably she is very young and respond immediately to this medicine. but as more adults are suffering with this.. i have a feeling its will take slightly more time probably it will take a month or more . but please try it. she takes one tablet everyday for the last 4 months. i dont know how long i am going to give this medicine but certainly not going to stop soon. at least she is not a victim of Hidradenitis Suppurativa anymore.
the name of the _____ is bee propolis. its a wood supplement. if you couldn't able to find it feel free to contact me.
my daughter is 9yrs old, she is suffering from painfull boils and swollen lumph in a groin area for the last 2 yrs . dermatologist has told us two months ago that she has Hidradenitis Suppurativa and there is no cure for this disease. she is on anitbioitc but believe me it doesnt help.
few weeks ago i read in a book about " black onion seeds" Tiny and black seeds of the nigella plant. in hindi and urdu it calls [kalonji] if you search on the google you will find more information about it. easily can buy from asian shops or buy online.
believe me her boils and swollen lymp nearly gone now.there is no new boil appear for the last few week. and i also give her turmeric powder as well it helps for wounds definately.
1: half tea spoone of "black onion seeds" with water everyday. before breakfast would be better.
2: turmeric powder,half tea spoone with water any time in a day.
3: drink atleast 8 glass of water.
4: try to eat healthy food and fruits instead of oil or fried food.
i m reffering this email to Charlene from Hope Mills, NC.
please believe on "black onion seeds" and try it ..it should work.atleast try 1 or 2 months.
i would be greatfull if i get a feed back.
i saw my daughter how she suffers and i can understand how much people r in pain ..please try black onion seeds..
thank u very much
Moreno Valley, Ca
I was doing research on this site for autoimmune disease and mycoplasma treatment and decided to try borax protocol. I took 1/4 TSP borax dissolved in one liter distilled water for 5 days a week for months. I never got a new HS boil after taking the first drink the first day! It took me about six weeks to heal the ones I already had, but it's been 18 months with no more boils, not a single one. I still drink maintenance dose of borax, but only because I feel all around better when I do. Good luck!
I have been struggling with HS for quite a few years, but recently I had BOTOX injections in my armpits that has provided me relief ever since. My doctor told me that the effect will last for around a year and then i might need another round. Initial results are very good. Good luck.
Patients with severe HS tend to have low iron and can easily become anemic. Recent research is beginning to discover there seems to be a connection between inappropriate amino acid metabolism in relation to particular classes of digestive bacteria. While it's not definitive and more research needs to be done this would suggest a high protein diet as a source of iron may actually worsen symptoms. I would instead suggest increasing iron through a source such as curly dock seed.
I have suffered with HS since I had a surgery that put me into peri menopause 5 years ago. I have been taking Tumeric for prevention and it works somewhat - I recently read that Burdock Root (capsule form) is a blood cleanser and can help with detoxifying the skin. I have only been taking for a few weeks and have seen a vast improvement (although it does promote sweating). I also want to share that I get Magnesium gel caps, punch a hole in it and squeeze out the contents, I use this as a topical when the HS is red and inflamed - instant relief and reduces the lump overnight. It's messy but works - I have yet to find a topical magnesium cream. I do hope one day there will be a cure!
Hidradenitis Suppurativa cure:
one thing that can cure your Hidradenitis Suppurativa is Burdock root. Take Burdock root for 3 months ( 3 times daily) and then stop for 3 months, then repeat... you will not have any problems anymore. Eat lots of read meat ( Burdock may lower iron), lots of fatty fish, limit dairy (once again because of iron absorption) and fruit + vegies. WORK OUT A LOT
Laugh a lot