hi, I am looking for help for my daughter. I am new to all this. found your post to be very interesting. could you give me further tips. would love to connect with someone that has been through this. thank you
Just an update to my prior comment. The high dose B12 (2,000 mcg) was keeping me up at night so I stopped it. I then switched to a B complex that had more than the 100 mcg from the one I had been using (400 mcg) and thankfully it was enough to maintain the therapeutic effect. I can still eat nightshades and other trigger foods without causing a flare. So play around with the dosage and find the one that is right for you. 100 mcg daily was not enough but the 400 mcg in my new B Complex was enough to keep the flare ups at bay.
I have several auto-immune conditions, one of which is Hidradenitis Suppurativa. I manage all of them by monitoring my diet. Over the years I have found several things to ease the HS but by far the best was just avoiding nightshades and other trigger foods. I found citric acid to be especially problematic. It was no fun avoiding my favorite foods like mashed potatoes or tomatoes, but I did so in order to achieve clear skin. Then one day I came across an old book called, "The Ultimate Healing System" where the author mentioned something I hadn't heard before. The author stated that if someone has a "sensitivity" to a food, there is usually an antidote for it, which is typically a deficiency. Meaning, that the "sensitivity" would be reversed if one corrects the deficiency. So I began to focus instead on making sure I was consuming all vitamins my body needed. I am unable to take anything, not even supplements, on a daily basis otherwise my body tends to become sensitive to that item.
So I started with taking a B complex supplement that contained about 100 mcg of B12, every other day (making sure to take only supplements with limited amounts of "extra" ingredients). I saw some improvements in my overall autoimmune symptoms. But when I went to get my B12 levels checked with my doctor, they were found to still be in the 400s range, which is not optimal at all. He recommended I take a higher B12 dose.
So I purchased a B12 supplement that contained 2,000 mcg per capsule. I began take 3 capsules per week (one on Mondays, Wednesdays, and Fridays). I continued with my regular B complex on Tuesdays, Thursdays, and Saturdays. A couple weeks after beginning this regimen with the added higher B12, I noticed I was no longer breaking out at all. I tested this by going for Mexican food and had enchiladas drenched with tomato sauce. No reaction. A few days later I ate mashed potatoes. Again no reaction. Since then I have eaten nightshades so many times with no reaction! The HS was gone!
I decided to stop the B12 for a week to see what would happen when I ate nightshades. The breakouts returned. I started the B12 again, and my skin cleared pretty quickly. I googled to see if there was a connection between B12 and HS and I did find one small study where someone's HS was cleared with higher doses of B12.
Anyway, I wanted to share this to hopefully help someone. Raise your B12 levels and other vitamins and minerals to optimal levels and you will see a marked improvement in your symptoms.