Mystery Diagnosis

Robyn

Posted by Robyn (Melbourne) on 07/10/2014

Some might understand how it feels to be in severe chronic pain that never ends. 21 yrs now, since 3 serious virus, actually my whole 53 yrs as I had a hangover every day of my life from food. Some might understand what it is like to be tortured by a speck of dust, of pollen, of chemicals, of people covered in deodorant, shampoos, washing powder, make up, I could quite literally die if they have perfume on. Not many understand what it is like to be a woman living in a car because you can't tolerate building materials much less pesticides and other chemicals that live in houses. Apparently I'm very toxic that I can't seem to remove, virals constantly, I can't metabolise foods, make ATP, liver, pancreas, thyroid, immune dysfunctional and adrenals are dead.

I can't have a pet to love. I have tried to find a purpose, something to live for or something to love but to no avail. EMFs prohibit me from using the computer for more than a few minutes, a phone never, I can't go near a person. I have no friends, family, place to live, work I can do, I can't sit up for long. I fail to find anything I can do or be. And since I've tried everything on here and the net (most making me worse) I have decided to give up. I am interested in how people are finding purpose.

Replied by Timh
KY
07/11/2014
2114 posts

Robyn: As distant as it may seem, there are a few people in this world that actually, to a substantial degree, love, care, and understand the condition of all living beings on this planet. Their heart breaks over people as yourself. These big-hearted people have been infused w/ divine love and that love lives to give. This all seems abstract on the surface, but in that mental space, they hold you in their arms. They are, as we would say, angels. Beyond this pleasure/pain world, they are dreaming their love for all things. The secret is to surrender to this divine love; it's the same love we were created from and are going back too. Unfortunately all will not return, they love evil and that's their thing.

I also, have been very ill for a long time, and have only recently begun to make some strides in recovery from a severe environmental illness much like your own (with the exception of extreme chemical sensitivity, although I may classify as moderate CS).

Now, back to your physical condition. It is very important to frame your beliefs & expectation around some point of possible wellness, however seeming impossible. Rsw has just been giving me that hope & encouragement that is beneficial for wellness. This works both ways. All my time here on E.C. is a getting/giving relationship. Part of your own recovery is going beyond yourself to help others, even if this involves only intent. Intent is another necessary aspect of the goal of wellness. And of course staying as positive as possible.

Back to specifics, have you not had EDTA chelation for the removal of the Copper?? Those Copper levels must come down somehow. Does Sodium Thiosulfate taken orally remove Copper? EDTA can also be LET'd and taken orally and will remove the Copper, but you must also replenish the body w/ broad spectrum mineral supplement. Calcium AEP & Hemp Oil have only recently made major improvements in me and I am sure I would be near dead or dead now without those natural remedies.

Replied by Mmsg
Somewhere, Europe
07/11/2014

Robyn, Timh is very right. Also, I once heard that "the fact that you were born, already means that G-d (or the Universe, or whatever) cares. We are not to take our own lives, they are not our own. Obviously you are doing something very positive by just BEING (besides everything you are trying) because, as you see, people do respond, so you are getting them thinking of ways to help you! And this in itself already spreads goodness in this world!

Replied by Mr Ree
Usa
07/11/2014

Robyn, "The bigger your problem...the bigger your destiny." Do not be intimadated by the size of your problem. God will fight your battles. He has connections to make things happen. Set your thermostat on healing, faith and victory...It can be done...

Try organic carrot juice and only that for 30 days...I'm sure it will change your status...4-6 glasses a day, of course spread out...If you can't afford the organic buy regular carrots and wash throughly.

The other thing is to take sea salt baths daily..OR if you live near the ocean, go in for 45 minutes daily...

Please report back with the results...

Replied by Mama To Many
Tennessee
07/11/2014

Dear Robyn,

I saw your post this morning but was unable to write until now. My heart goes out to you. I am sorry you are suffering so much.

I have been thinking of you since I read your post. Feeling hopeless is miserable, on top of terrible pain. What I do know is that of the people I have known in the past who were truly suicidal (made attempts but failed) all of them went on to live and indeed overcome their circumstances to an extent, some quite abundantly. While it never seems as if they will, things do always change.

Have you ever read the book, Joni by Joni Earekson Tada? It is an amazing book of human courage in the face of dreadful circumstances. In the 60's, Joni was in a diving accident that left her paralyzed from the neck down. She was suicidal. She was 17 at the time. She has lived decades of a fruitful, though often full-of-pain life. She would say she is glad she lived.

I agree with the others who affirm that your life is indeed precious. And you yourself understand a need to have someone to whom you can show love, but cannot figure out how under your current circumstances.

This morning my family was at a nursing home where our family goes monthly to sing with the residents. I was sitting by a 20 something year old girl who is in there for life. She was in a care accident that left her paralyzed and brain damaged. Another lady is elderly and dying of I am not sure what. Each of the residents there has their story of pain. But many still sang and smiled and talked. Humans do have a pretty strong will to live and connect with others. I always leave that place feeling very blessed to be able to walk and do dishes etc, things I usually take for granted.

For me, my purpose in life is God and my fellow man. Whenever I take my eyes off of that, I am prone to sink into melancholy.

Even when I have been failed by humans in some way, I always have Jesus, the Rock of my strength. At my lowest times, He has sustained me. And He has known pain, too. "He was despised and rejected of men, a man of sorrows and acquainted with grief." When I am low, the Psalms are a comfort, especially singing them.

I will pray for your healing. I think Mr. Rhee's carrot juice plan sounds excellent if you can implement it. And I will pray for you to find a way to reach out to others. People that have suffered much often have much to give, as it sounds in your case.

Please keep us posted. Take it a day at a time. An hour at a time, or a minute at a time.

Love,

~Mama to Many~

Replied by Robyn
Melbourne
07/15/2014

Thank you for your comments and thoughts. Before finding Dr Wilsons nutritional balancing, I could only eat cooked veg and never starchy veg. And it is recommended for those with adrenal problems and copper toxicity. Any kind of juice made me feel ill. Not that it has worked. My adrenals are still dead. And my metal load is high, mineral load almost nil. Almost no metabolism etc etc. I don't think I can digest the carrots but thanks for your thoughts.

Last year I watched JFK shows. He had addisons and thyroid disease, also in terrible chronic pain, IBS and the rest. He ran a country, a family, extended family, affairs, was adored by many, but he could live in a house, be in the same room with people, could breathe. Of course, he took a long list of drugs to do this. No one could say his life wasn't full and rich despite the pain. But I don't know how to achieve anything when I can't get any improvement on any front no matter what I try. It might help if I was a religious person. Unfortunately, my father was a minister of the church and also very abusive so I haven't followed that path.

I only had 2 EDTA IVs because I can't go in a building or near other people. I have used suppositories and orally. My understanding is EDTA will pull out the heaviest metal first. I have every toxicity possible except mercury. My lead and cadmium did come down a bit. But in trying to understand this I understand sick people don't detox well. My liver stage 1 works too well, stage 2 is too slow, my bowels, gut, kidneys are all too slow so I would have just reinfected myself. Copper is best removed with zinc, I believe, and no surprise mine was very low. And if you're adrenals are bombed you will accumulate copper so I'm not sure how good any detox is if you're adrenals are dead. I hope this helps someone else. I used clays, zeolite, chlorella, cilantro, ST; apparently all too harsh for someone sick. And it didn't bring the levels down. Hope this helps someone else.

Replied by Timh
KY
07/16/2014
2114 posts

Robyn: I tried Liposomal Encapsulated EDTA a few months ago for the removal of Manganese toxicity but I had to quickly stop as I also have all other minerals deficient. In this case, I was taking on radiation (which is a chronic problem w/ mineral deficiency but very much aggravated by this therapy).

You can purchase a $40 Ultrasonic Cleaner from Amazon plus a container of Lecithin Granules for about $15. An empty 32 or 48oz plastic bottle for mixing. Be sure to drink lots of water to help flush out the copper.

Replied by Andrea C
Wales
07/16/2014

Hi Robyn xxx I'm sorry for your suffering I too had MCS and it nearly killed me a few times. And I had to avoid people, places and things big time too. And I too got that I wanted to die rather than face more years of torture and isolation. Mine was caused by Medication, a mold, and breathing in fumes from cars on a main road I lived on.

And prior to that I lived in an area where there was a huge leak from a nearby Chemical plant at the time I walked past it so everything came to get me at once it seems. Blood test showed I was seriously toxic after Doctor's trying to say it was 'A Mental problem?'

I have recovered really well and some things only bother me a tiny bit now, but nothing to write home about. To be honest I know that it's residual fear from when certain things that used to effect me badly to the point of near death, or dying. But this will go away soon like many things now have, and life is worth living and a big adventure, and not just an every day trial for me just to live for one more minute.

By accident I found a community of MCS sufferers on-line a few day's ago while looking for something else. Here is the .com address... http://planetthrive.com.

There are many like you and worse than you although I know that right now that's the last thing in the universe that you're going to believe, but don't give up. Have faith in yourself and your bodies infinite wisdom to heal in the right circumstances. And faith in yourself to learn how and what to do. It will come, the Universe will send the answer, all you have to do is just be willing to watch, listen and do. And bit by bit everything will fall in to place and you will get well. Never-mind 'diagnoses': your ears are the one that hears that.

Your Body knows nothing about it except to look for what it need's to repair itself. And remember you are way more than your body, you are not your body, you just reside in it. And neither are you anyone else or their diagnoses or trials, we are all unique. But one thing we all have in common is the capacity to heal and hang any diagnoses.

It's too easy to get disheartened just because your pain has now got 'a name?' This does nor sum up who and what you are and diagnoses? There are more misdiagnoses than correct ones and wrong survival time line's given. If they where correct then I should have died more times than a quarter of earth's population by now man!!!

There is lots of things at 'Planet Thrive' that will help you and you can get in touch and there are more than you know understand exactly what you are going through. In fact they considered themselves 'A Tribe' as they all know what each other is going through and here is some where where you will and can fit in and get help and support from as well as all of us here at EC.

Love and hugs xx Andrea C xxxx

Replied by Robyn
Melbourne
07/17/2014

Hi, I've been visiting planetthrive for many years now. Although I don't suffer seizures all day long I do, I can't breathe most of the time, I am in pain ALL the time to the point I have to take morphine, then I have the reactions you would know of when I smell toxic things. I didn't meet anyone on there that has had this without knowing what's going on for 21 years, totally on their own and living in a car. They don't discuss much more than brain retraining now. I did nlp enthusiastically 15 yrs ago. But not knowing I was still breathing in, ingesting more poisons, allergic foods ruining my gut even further so now I have addisons & thyroid disease. From tests I apparently don't metabolise much. Doing new age stuff, tapping, nlp any of that stuff while being ignorant of what's really going on is bad! Whilst you don't want to make it worse by being stressed out of it in your mind I believe you can't ignore the biochemical. And no, I don't give a rats about diagnosis. Like fibromyalgia so they can give me a barrage of drugs, all that hurt me. The other diagnosis are real. I don't have the hormones that keep you alive. If you ignore a diagnosis of addisons you will be dead very soon. Thanks for making contact.

Replied by Robyn
Melbourne
07/21/2014

Thank you to those who commented. I looked up the Joni Eareckson Tada story as I have looked up many without limbs or in wheelchairs that have gone on to be politicians, sportspeople, run foundations or back causes. As Joni says she is not in pain 24/7 never ending. She has some days of pain. Even though she has people to help her and many that love her she still feels despair sometimes. But she has a life of purpose. To bring awareness to those with chemical sensitivity, actually it's an all encompassing sensitivity, we can have anaphalactic reactions or seizures to grass, dust, fragrance supposedly made from natural products 1. Many of us have pain non stop. It changes who you are. Living on morphine for the rest of your life is not much of a future. 2. Even though I have limbs attached and am not in a wheelchair and to all I look perfectly well most of the time I can't move my arms for a drink of water or to chop up veges, certainly not to pick up a phone, even if I could because it didn't electricute me causing me even further excruciating pain that lasts all day. I'm sensitive to emfs. 1 email a day is it for me & I pay for that. 3. Joni and most live in a house and sleep in a warm bed not like those that can't tolerate building materials. 4. Many have support otherwise how do you stay alive? Not being able to get food much less cook it. And that's just the basic. 5. What about being loved? Joni admits to being grateful for that. 6. And for that reason passes it on doing work with the disabled. This gives her purpose. If you are laying on the ground or in a car because you can't move with no improvement as each decade passes what is the purpose? 7. I found another woman laying on the floor unable to move very bitter about being abandoned by her family. I haven't seen or heard from mine for over a decade when I was called schizophrenic. I was hauled in by the police not once, twice but 3 times in an enclosed vehicle with their heavy deodorants, driven through a very busy area with all the petrol, dragged into a hospital with all the cleaning fluids with staff also with heavy deodorants, toxic washing powder in their clothes, put in a room with 8 students all with perfumes on & they tried to force drugs down my throat. I react very badly to any drugs. As the pain in my body reached unbelievable heights I was locked in a newly painted room without a window. My life was being threatened by a mentally disturbed woman while they decided my demise after having threatened me with keeping me in for a week for observation. Does this happen to people in wheelchairs? Noone could see the distress my body was in. They didn't test my liver, or cortisol levels, or mineral levels or heavy metals to see that I would have a genuine reason for being so distressed. 8. Many of us don't even have the most basic needs met, besides food, I haven't had a hug for over 10 yrs, it's been longer than that since I had a hair cut, I wear what I slept in because even though I have limbs I can't use them. I can't reach up to my head to wash my hair, over my head to put a jumper on, pick up a towel so showers are rare. I don't imagine this is how most quadriplegics live.

So how on that basis when you can't go near a phone, rarely use a computer, can't bathe or clothe yourself on most days, food is a nightmare would you do community work, run a foundation or do anything to help anyone else even though you would like to?

Replied by Mmsg
Somewhere, Europe
07/22/2014

Robyn, I don't know how I can help you but I love you and suspect that many here do too, without ever having seeing you!! Whoever we are, we send you hugs and hope, even though we don't yet know how/what will help you.

Replied by Robert Henry
Ten Mile, Tn.
07/22/2014

HI U ROBYN, , , , , , , , , for some reason, I don't believe a word you wrote. You say you can't get on a computer, but you had to stay on one for 30 minutes or so to write your story.

You want help? Then ask for it. These folks would love to help you, but you wrote a ditty that is supposed to put us all on a guilt trip. The USA now has 51% victims as citizens. Your story tells me that you too are a victim. A victim of what? I have hoed my own row and suggest others to do the same. When I get in deep stuff, I ask for help and this site responds. They will for you too.

======OLE ROBERT HENRY=======

Replied by Robyn
Melbourne
07/22/2014

Robert Henry, I wasn't on the computer for 30 mins because some of it was pretyped from the day before. That's what I have to do to send an email. There was no intention of guilt tripping. Not one for asking for help, being the rescuer was usually my role I started to ask for help 10 yrs ago as I got down to 36 kgs but got it from nowhere. Except recently people on here have offerered support and I'm very grateful. I've done everything anyone has ever suggested. And certainly hoed my own row for the 21 yrs I knew I had a problem, ordering my own lab tests, trying everything. If you can't carry food, prepare it, even put it to your mouth it certainly doesn't help you get better and does change your view of humanity. Many people haven't believed me. I can stand another. It doesn't mean I consider myself a victim. I also don't think I've been blessed with the "lucky" gene. The help I was asking for was ideas on how to live any sort of life this disabled. I've looked up all the hero stories I could but as one counsellor told me it's pretty hard to help others if you can't even get dressed or have a shower yourself.

Replied by Bess
Calgary, Alberta, Canada
07/23/2014

Well Robert Henry - it was just a few short weeks ago when you didn't believe Mama to Many was “real” ... now, you're on a rant about Robyn suggesting she is putting people on a guilt trip.

You said that the USA has “51% victims as citizens” (are these your statistics?). How does that help anyone on a site where people from around the world are looking for advice about their health problems or sharing their solutions?

A little bit of compassion and understanding goes a long way. Here's what Mmsg from Europe had to say to Robyn: 07/22/2014: Mmsg from Somewhere, Europe: "Robyn, I don't know how I can help you but I love you and suspect that many here do too, without ever having seeing you!! Whoever we are, we send you hugs and hope, even though we don't yet know how/what will help you."

Well said, Mmsg! I hope Robyn gains strength from your words.

Replied by Timh
KY
07/24/2014
2114 posts

Bess: It has long been suspect that no matter how much great advice, love, encouragement etc. that people have showered on Robyn here on E.C. she remains seeming chained to an undying pessimism. It seems like a hopeless case.

It's a sad state in much of the world. There are un-rehabilitate rescued pets, adopted children far to damaged to ever repair. Often, the caregiver takes a loss. My few yrs as a Nurse Assistant had several cases of being hit, bit, slapped, clawed, etc and there is nothing to be done as the patient has all the rights and the workers have no defense. The world is literally full of people that have pain as their closest friend. Alcoholism and substance abuse is overcrowded w/ this category.

Back in the mid 20th century there was a psychologist that explored the basis of such insistence on pleasure/sex & pain & death; his findings (can't think of his name right now) expanded some of Freud's theories of Id-Ego w/ the fundamental pleasure/pain principle. Very simple, we are all conceived in pleasure and born in pain. Most world religions aim at transcending or mortifying these basic carnal imprints, compulsions, and behaviors.

Well, what a rant. At least there is some knowledge on this subject that can lead to the possibility of cure, otherwise it's a lost condition.

Replied by Robyn
Melbourne
07/25/2014

Timh, some people don't get rescued, adopted or have a caregiver to claw back at. Or talk to about treatment options would be great. You try sleeping in a car by yourself as a woman where you don't even fit, sick & unable to get food. Try 1 week, just one where you have one eye open half the night to ensure you don't get attacked. If doctors had the knowledge or more than 10 mins to give 20 yrs ago I'm sure I & my organs would be in a much better position for some of this advice to work. What sounds like undying pessimism to you is frustration that what has worked for others doesn't work for me and I keep trying. Pain changes you. Read some of the worst fms questionnaires - they're not a barrel of laughs either. If stating facts makes people uncomfortable I won't post on here anymore. There's not many places to look for advice and definately noone to talk to about it. This has been a source of comfort.

Replied by Robyn
Melbourne
07/25/2014

Toxicity, frontal lobe damage, inflammation, chromosome 22 damage, liver, gut, metabolic damage, hcl, mineral, good bacteria deficiency, missing aminos, thyroid, adrenal dysfunction, acidity, infections can all cause chemical sensitivity apart from a need to hang onto pessimism. If you haven't had to endure anaphalactic reactions several times a day for decades without having a clue what's going on perhaps you shouldn't comment. I have clinical depression also and can't take medication because of reactions to it. Although, until I can improve living conditions; ie. living in a car talking to noone not even on birthdays or xmas it wouldn't make a difference. You could hold a gun to someone's head with depression and they may not be able to think a positive thought. The world is full of people and till you swap places with them who are you to judge? Your comments might be just enough to tip them over the edge. You don't know what they're hanging on to or not.

Replied by Robyn
Melbourne
07/12/2015

Still unfathomable pain!!!!!!! , so allergic still homeless, still suicidal, not diagnosed as addisons anymore, am making some cortisol but way under normal, still thyroid, liver, kidneys, pancreas not working well, can't metabolise fats, protein, carbs, metal toxicities, am trying to get accurate tests re: virals after 4 mths of neurofeedback, then lens biofeedback apart from PTSD shows an underlying condition. I remember I tested positive for tricarballyate a SIBO condition so am looking for ways to treat as the prokionetic antibiotics are $500 and not covered under medicare.

Replied by Mmsg
Somewhere, Europe
07/12/2015

Robyn, I don't know what advice to give you but I just wanted to tell you that I am ever so glad that your're back with us here!!!

Replied by Robyn
Melbourne
10/28/2015

Dear Ted, I visited this site often whilst I was living in an old car because I was so reactive to building materials, allergic to the world & living in unfathomable pain. I learned I had adrenal, thyroid, pancreatic, liver, kidney, immune, digestive issues after tests I had to get myself. Noone was interested. My heavy metals are much less but I can't shift off the chart ca, mg, cu & other important minerals are low. Cheap food was blamed. I have just got tests back showing Borellia burgdoferi, lyme cysts, lyme neurotoxins, lyme biofilm, nanobacteria, barmah forest is still active- I got that 23 yrs ago, 3 forms of mycoplasma, ag chemicals, stachybotrys mold, group 644 molds, aspergillus fungus, bordetella, H Pylori and salistosoma.

I didn't mention the ross river, glandular fever or CMV that I got 23 yrs ago because I thought they'd just found the antibodies. Apparently they are still in my body, sometimes active.I am still totally on my own with this. Can't find a Dr. to treat me or a friend. All I have is the pain. I think I understand biofilms have to be removed first. And molds won't move while metals are still in place. Its taken yrs to balance my hormones, drink broths, take colloidal minerals, eat more salt, plenty greens, alkalise etc.

This is too much for 1 person.

Replied by Mmsg
Somewhere, Europe
10/30/2015

Robyn, we're here with you! You are not alone. You inspire me with your will to live and tenaciousness in trying to find what works for you!

THANK YOU!

Replied by Robyn
Melbourne
06/16/2016

25 yrs later still extreme pain that never stops, still severe mcs so I can't enter most buildings, go near most people, still alone. I have appreciated anyone that has taken interest in my situation. I remember Ted saying sometimes he gets frustrated as he makes recommendations but doesn't get any feedback. I give feedback but most times it isn't posted. I refer to Bill trying to help me out giving me strategies for removing excess calcium. My mg is just as off the charts. I have taken enzymes away from food for years, taken the chanca piedra, Virgin Coconut Oil I am unable to take as fats make me feel severely ill. (I can tolerate krill oil). The cilantro, chlorella nor zinc have removed the off the chart copper. I have read that the ca, mg, cu although is lying in my tissues and coming out through my hair looks as if I'm toxic but I'm actually deficient because I'm not absorbing them. Osteoperosis and chipped teeth could be evidence of that. So I have very poor adrenals, thyroid, liver, kidneys but I have perhaps just found out why. Diagnosed with lyme, still barmah forest which I got 25 yrs ago, possibly got lyme at the same time, lyme cysts, biofilm in my gut, h pylori, molds, 3 forms of mycoplasma, fungus & agricultural chemicals. We can't get medical attention here in Australia for lyme. I've tried many alternatives to no avail. Alkalising was extremely painful (I think I'm alkaline enough), bioresonance, vit c & salt therapy made me suicidal. The pain is already at a level I can't bear so taking herbs or other that makes the pain worse just isn't an option. The only thing I can think of to help myself is ozone. Just another thing that we can't get here in Aust. Does anyone have any recommendations? The mcs prohibits me from staying on the computer too long and there is so many ozone generators, costs as much as the machine itself to get it here. A lot of them could be rubbish. Can anyone help? I feel like I'm too sick to ever get better. I have used oxygen tanks before also to no avail.

Replied by Robert Henry
Ten Mile, Tn.
06/17/2016

HI U ROBYN,,,,,,,,,,,, just had a scission with our Anti- aging doctor and she agreed that Australia is light years from natural medicine.

They don't even allow natural harmony modulation. It's a $ greed thing.

My suggestion to you is to buy an Ozone medical system from Longevity in BC and do your own thing. That is what I've done.

Read the book, FLOOD YOUR BODY WITH OXYGEN.

==========ORH==========

Replied by Mmsg
Somewhere, Europe
06/18/2016

Robyn, I know nothing about ozone, but I'm sure glad to see you back here with us!

Replied by Suseeq
Sydney, Australia
06/18/2016

Dear ORH,

Yes, we are a bit backwards regarding natural medicine. I know I read something on here and when I try to obtain it, it's not available and I get blank looks, but the up side we don't have to worry about seeing a doctor. Everybody gets medical and hospital care.

Replied by Robert Henry
Ten Mile, Tn.
06/19/2016

HI U SUSEEQ,,,,,,,,,, don't want to drag this conversation out, but I really don't want to be tended to by an MD unless it's a physical trama thing. Otherwise, I can get my solution from EC, books or the internet.

I do have confidence in our Anti Aging doctor. She put me on bone marrow when my gut was in disarray. It is now good. She has treated several MD's that were in deep sheet using Allopathic meds and had no clue.

When she first started her practice in Knoxville about 12 years ago she was ostracized until all the hi dollar folks trying to stay in good health became her patients. Now she in demand. She spent over an hour with me last week going over my lab test results, and then filled my fanny with testosterone pellets. She trys to keep us healthy by keeping our hormones as they were in our youth.

Don't think they will do that in Australia.

Love you girl. =======ORH======

Replied by Robyn
Melbourne
06/19/2016

Um.... medical care... it depends. If you have something that shows up on a standard blood test then yes. Otherwise, you are put in the chronic fatigue syndrome or fibromyalgia or too hard basket. No medical care for those with lyme disease. Many doctors have been banned for treating it. It took 25 yrs for a diagnosis & I still can't get a Dr.to treat me. And when there was going to be a senate enquiry there was over 1000 submissions from others who could not get medical treatment. Some of us do have to worry about seeing a dr.

Replied by Robyn
Melbourne
06/23/2016

I updated that I have lyme disease, many other virus & bacterial infections which might explain the collapse of adrenal, thyroid, liver, kidney function, the terrible pain & mcs. As my ca & mg is off the chart & I have such a painful reaction to alkalising I thought I might already be too alkaline (also read this can occur with addisons). However, whilst saliva litmus testing during the day shows me perfect (7.4) the first one in the morning is only 6.5. My doc says everyone is acidic first thing in the morning but all he does is hand me scripts for morphine so I thought everyone here would know more. Whilst it may seem an obvious thing to do when you are ill - alkalise there are some that are too alkaline. Although my tissues are alkaline my during the day saliva test shows me to be normal. I don't know which to take notice of. Just trying to think of anything to kill of all these pathogens.

Replied by Lisa
Florida
06/23/2016

Benzathine penicillin intramuscular 1/month for one year, was the end of Lyme disease for my neighbor.

Replied by Robyn
Melbourne
07/27/2016

After following this site for years whilst living in a car because my MCS was so bad I recently reported I was diagnosed with lyme, cysts, gut biofilm, h pylori, barmah forest, 3 forms of mycoplasma, molds & toxic metals. I knew my adrenals, thyroid, liver, pancreas weren't working. So whilst tea tree oil (special formula), antibiotics, salt & vit C, herbs, CBD oil worked for others it put me into another realm of pain that I can't tell is a reaction or a herx. In any case, I was completely suicidal. Himalayan salt I can take at any time, same with vit c but together not. I was also doing clove oil & Apple Cider Vinegar from here, oil pulling. I can't eat vco. I didn't do all these at once by the way. I get cold sores often so at those times take olive leaf & lysine. If I have gut biofilm no wonder my tests say I can't metabolise carbs, proteins, fats & I don't make ATP. So for that was taking enzymes away from meals, acv, clove oil. Nothing works! Has anyone tried stem cells? I have osteoarthritus in my neck which is what they are using it for here or mostly knees. But can the cells divert to needed areas like immune system? Here they are doing lipo, extracting the cells & putting them back in you same day which I believe only gives you 1% stem cells compared to having them harvested for a few weeks. Since I have addisons I don't know that this wouldn't be too stressful for me anyway. The only other thing I can think of is ozone. Of course, we don't have that here & my attempts at getting a machine here hasn't worked but I'll keep trying.

Replied by Robyn
Melbourne
12/15/2016

I have been looking on here for years. I am still homeless, in severe pain, mcs still bad, shocking fatigue, in other words nothing has changed. I had reported my adrenals, thyroid, liver, pancreas are very dysfunctional, according to tests no metabolism going on. I knew I was very metal toxic. The cu toxicity that won't budge could also be non absorption not a toxicity at all. The ca similar. But I didn't know I had all these virus. Nothing I seem to do helps. Given that its 25 yrs of this hell antibiotics nor antivirals are probably not going to help now. I'm sure people can relate to some of this but I've just had a birthday to remind me 1/2 of my life has been lost to crying in pain & xmas. I never see or talk to anyone on either. Family don't believe you can be sick for so long. I was just relooking at methylene blue because here they are doing some research on acriflavine for killing virus, boosting immune. HELP! I really don't see any hope.

Replied by Mmsg
Somewhere, Europe
12/17/2016

Oh Robyn, it's so good to hear from you!!! Hang in there, we're rooting for you!

The only thing that comes to my mind for your complicated situation, is Clay baths, if that's feasible.

Replied by Timh
Ky
12/18/2016
2114 posts

I sleep on a Magnetic Bed Pad and another Magnet Belt on my pillow which works well for my bottom and especially the Kidneys, the belt is good for my shoulders and back.

Detox Foot Pads would help. You can find these on Ebay at near wholesale prices if you buy like 100pcs.


Posted by Robyn (Melbourne, Australia) on 08/03/2012

Dear Lisa, Bill, Ted, anyone, since I cant seem to discover the crux of this problem even after doing what everyone has suggested - is there any clue in, I have mentioned my white tongue, my adrenal problems, viral, metal toxicities, liver - phase 1 too high, phase 2 too low except Id been taking some dmso so there was a sulfur pathway, even though in terrible pain I try to do some ex so I walk & I cant get away from a petrol & perfume exposure. More recently I have tried a yoga, pilates class. Big room well ventilated, not too many problems with deodorants I can do a pilates class if I dont do anything that uses my neck or shoulders, bulging disc at c4, 5, t5 - that or just the fibro if I did all the they wanted me to Id be on the floor for a week. But yoga stretches 1 or 2 is OK. Anymore than that and I feel like Im poisoned. Its so incredibly painful Im almost in a coma. And can last for days. Am I ever going to find out whats going on?

Replied by Timh
Louisville, Ky, Usa
08/04/2012
2114 posts

Robyn, if you are not responding to oral nutritional supplementation or modified diet, it is very likely you have digestive problems like H Pylori, Stomach or Intestinal (duodenal) Ulcer, Leaky Gut Syndrome, Crohn's etc. H Pylori or Candida or any pathogen will cause these ulcerative conditions. Must first kill the pathogens then rebuild the digestive system.

Or, you could have some unknown Congenital Disorder. After suffering many physical and mental weaknesses over the course of my life, I have come to the conclusion that I must have suffered some nutritional deficiencies in embryonic development as the result of my mother being over prescribed a pharm diuretic. Recapitulate your life and note any or all major or minor illnesses and even try to learn of your mom's condition or any meds during your development.

If your Cytochrome P450 1 is too high and 2 is too low, it seems appropriate to use the herb/spice Turmeric or Curcumin.

To get down to the level of DNA repair, fasting or the antioxidant Resveritrol activates survival codons. Add Grapeseed or Pinebark Extracts to Resveritrol so as to boost the effects. Tune into YouTube and listen to healing DNA repair 528 hz harmonics. Here is one that has been helping me lately: 528Hz DNA Frequency - UNLOCK Your Codons!!!

Hope this helps and good luck!

Replied by Robyn
Melbourne, Australia
08/05/2012

thank you!! After many yrs of not being able to work and seeing many docs my mother did whisper she had taken that banned fertility drug to have me. I have had food allergies and bad insomnia since birth. Often sick, then the 3 biggies at age 32, now I live on morphine. So yes, stomach problems. The food allergies was never diagnosed, we didnt have the internet back then, no doc back then would ever suggest food allergies. I was probably born with candida and celiac. Any carb foods used to make me gag. But I kept eating them. I often wonder if I stopped eating my gut would heal. I use tumeric powder on my veg but its not as good as the real thing, is it?

Replied by Mmsg
Somewhere, Europe
08/06/2012

Robyn, the plain ol' turmeric powder from the grocery store is very useful. Could be the actual root is better, but the powder is powerful too.

Replied by Robyn
Melbourne, Australia
07/04/2013

I am still suffering severe pain but much worse is being allergic to everything so I can't stay in a building for long, be near anyone (they're covered in chemicals) or even go for a walk or to the park - too many allergants. Using computer is very painful. So my organic acids tell me that I am diabetic or almost - perhaps that is why I have all this nerve pain (for 20 yrs & no Dr.Is interested in finding out why) and what is like lactic acid burn. Also don't make any atp. Don't spose you can if you cant metabolise carbs or protein. Also 4 phases of detox don't work hence the metal poisoning. So I have taken all the supplements recommended for over a yr and to boost the 4 phases. I've been on this site for a few yrs and Im still homeless. I think the Apple Cider Vinegar helped my asthma but not much else. The tests showed candida was there but normal so I dont think I can blame all my allergies on that. I do have addisons but have been on low dose natural cortisol for also a few years. I assume the natural way to help the diabetes is Apple Cider Vinegar (4 yrs and it hasn't helped yet) & no sugar. I'm so allergic I definately dont eat processed or fast or restaurant foods. I have halved the dose of morphine (which doesn't abate the pain much but brings me off screaming) however it can worsen asthma. DMSO didn't help. The only msm supplement I can get has glucosamine and chondroitin in it which I read can increase sugar levels. And the decaf (because of adrenal and liver problems never have caffeine) green tea which I drink all day could also make the asthma worse??? perhaps it has pesticides in it but I like it. How do I fix the pain? the allergants is the worst? the asthma is just annoying, then maybe one day I could have some human contact and live in a house.

Oh, I also have very high t and nk cells indicating infection on top of a very long viral list. I've resorted to taking antibiotics which is when the pain reduced a little, the reason I was able to reduce the morphine.

Replied by Mmsg
Somewhere, Europe
07/04/2013

Robyn, read up on Essiac Tea.

Replied by Carly
Usa
07/04/2013

Hi Robyn, my heart goes out to you. A few things you might not have tried yet that I would look into if I were you are: Earthing - and if you are anywhere near a body of water in OZ, sand and saltwater at great conductors. Read up on it.... Supposed to take away pain to be barefoot on damp ground. Supplements to try would be IP-6 and Serrapeptase.... Just some things you may not have tried yet. Don't give up hope! Good luck to you.

Replied by Steve
Oakland, Il
07/04/2013

Hi Robyn, Sounds sort of like Multiple Chemical Sensitivities/Environmental Illness (MCS/EI). I attended a seminar for one week on healing in Georgia, USA about two years ago. A woman was there who had many symptoms; I don't remember them all, but she arrived wearing a face mask. She said that she had to remove carpeting, wall coverings, in her home was reacting to just about everything. What she received was spiritual healing. About day 2 the mask came off and by the end of week she was perfectly healthy. Based on a book by Henry W. Wright, "A More Excellent Way to Be In Health". The orientation is Christian and intensive but for her very effective. He can be found on Internet at beinhealth.com Great for information as to sources of trouble and healing. Hope this or something helps, God Bless!

Replied by Robyn
Melbourne
09/05/2013

Body in compete exhaustion, parasympathetic state, adrenals, thyroid, liver, cells dysfunctional

I get these tests every 3 yrs hoping for some insight, I post on here hoping for some insight, I wish I'd started these tests 20 yrs ago when I was screaming in pain but back then women in pain are just hysterical. Now they call it fibromyalgia or chronic fatigue syndrome when infact, it has a real cause. My dilemna is not much has changed over the 6 yrs of doing these tests. My body is still in extreme exhaustion, in the parasympathetic state. My adrenals don't work at all, my thyroid, liver, pancreas & kidneys not much. My oxidation or metabolism is very very slow, don't metabolise protein or carbs. My body is eating its own tissue. I'm 6 x too high in calcium & mg, copper and manganese, xylene, ammonia. The lead and cadmium has come down over that time but aluminium has gone up. I'm deficient in many minerals. I can't make energy, the 4 phases of detox don't work or are only just working. I don't make any hormones, no cell permeability. Because of the state of my adrenals & thyroid my immune system is shot, I get every infection, serious ones, allergies are so bad I can't go into most buildings or near most people, gardens, animals etc. I've been following this site for some years now and a new practitioner with this most recent report but the supplements, diet, exercise, lifestyle and emotional adjustments have done little to change anything.

I can't see any hope for continuing. And I'm still homeless.

Replied by Addie
Wilmington Nc
09/07/2013

Have you ever tried Elderberries? Great for fighting off colds and flus also is an anti-inflamatory. It is very high in anti-oxidents. At least you could keep future illnesses at bay.

Replied by Mmsg
Somewhere, Europe
09/07/2013

Robyn, first off DON'T GIVE UP!!! There is always hope, and like Robert Henry said: just trying stuff keeps your mind busy and alert and that's good.

Second: Have you read up on Ann Wigmore? When she was in pretty bad shape, she tried wheatgrass juice, or was it rejuvelac, and it got her back on her feet.

Replied by Robyn
Melbourne
04/16/2014

Hello Bill, I thought I'd give one more try. I am still homeless, STILL in severe pain, that never stops, STILL so allergic and don't know what to do. I dont make ATP, can't metabolise carbs or proteins, have ammonia, xylen and other poisonings.

Liver profile, phase 1 too high, phase 2 too low. I don't know what to eat because my copper levels are extraordinary!! I have read what high copper does to you. All the veges I eat have copper. I have addisons disease and it is advised that protein be eaten at each meal. But I have so much trouble eating it. I can't digest it. The lighter proteins (fish & poultry) I am allergic to. Grains I am allergic to. I don't eat much carbs which may be a good thing if I can't metabolise it. I am in ketosis (also on my lab report which is not necessarily a good thing).

I got a stool test back recently that also confirms I'm not digesting. and that I have no good bacteria, 1 strain, I think. That's not good news. So I found an 8 strain live 30 billion and take that twice a day.

For a new year, I went to a new Dr.(environmental). Not much help except to increase most of the supplements I'm taking which haven't helped. And my dheas was almost nil. My adrenals are dead. They produce almost nothing. But I take estrogen, progesterone, dheas, testerone bioidentical troche but I am converting the dheas straight to testerone. Some think progesterone should be taken for 14 days a month, others 25 and I take it the whole month.

Here I can't go into a shop and get any of these things in a cream like you can. Or order them off the internet. They're banned. So getting a different form of dheas is not easily achieved. From what I read dheas is responsible for, it seems like it is not a hormone you want to be without. I just read an article that says for adrenal people vitamin B, C, stimulating herbs such as licorice, ginseng, hormones such as dheas, pregnegelone are all too stimulating. And now I'm even thinking that salicylates are probably a problem for me.

That would give me nothing to eat. I was using coffee enemas (organic) to try to clear my liver but that seems a joke too. Coffee is full of copper and I don't believe you don't absorb in your rectum. Then there's the train of thought that enemas wash out the good bacteria. Being too acidic is often blamed for osteoperosis, which I have, and calcium lying around in your tissues. But copper can do that too. And it seems I have alkaline tissues everywhere. Alkalising with lemon and bicarb was excruciating. I did a lemon fast for a day. That was excruciating too. I can't get the copper out. From what I gather, that is probably not possible until the adrenals are healed. Which I have been told is not going to happen.

I feel totally in despair. Im sorry I've covered a few topics here but I don't know what to eat. I've tried most of the remedies here but I didn't know I had such a copper problem and many of the remedies have a lot of copper in them (eg. coconut oil). So eat? supplements? hormones? and if I have no good bacteria candida must have taken over. I have a very coated white tongue (20 yrs or more). I asked the doc if that was candida to which he replied no. I wasn't digesting anything.

Replied by Bill
San Fenando, Philippines
04/17/2014

Hi Robyn...It's good to hear from you again and I'm sorry that your problems are still so serious. Because of your complex and widespread problems, I will just describe my own opinion and perhaps suggest some ways out for you. I also know that you have a lack of funds problem, so I'll try to keep the remedies cheap wherever possible.?

From what you describe, you seem to have the following problems:

Serious digestive and Intestinal Issues
Serious candida and bacterial issues
Osteoporosis
No Energy
High Copper toxicity in the body
Liver problems
Kidney/Addison's Disease/Adrenal Problems
Probable Thyroid issues
Not digesting proteins Stressed pancreas(low insulin)
Allergies/Chemical Sensitivities
Keto-Acidosis

The greatest and most serious problem that you have, mainly caused by your candida and other bacterial infections, is poorly functioning digestion and poor nutrient absorption in the intestines. The intestines is the throne of candida; this is where the majority of candida toxins are being pumped out into your intestines and your body; lack of nutrients in your blood(from poor digestion and absorbtion) together with inefficient excretory clearance of toxic waste by your stressed liver/kidney is what is causing the toxin build up resulting in all the mental, physical, hormonal and metabolic distress in your body; this is also what is putting such severe stress on organs like your liver and kidneys.

So, above all and as a priority, you must act and do all you can to revive and heal your intestines first. Then your body will not be poisoned from all those toxins and you can excrete the toxins quickly and properly. Your healed intestines will then be able to absorb all nutrients properly into the blood and organs via the blood in order to feed your own body properly. Healing the intestines like this will also stop chemical sensitivities and allergies which is such a huge problem for you.

Some suggestions for you.

If you can do it, obtain sodium molybdate and take 25 mgs a day with water for two weeks. This acts to kill candida, it removes copper and will neutralize all the candida aldehyde toxins rapidly. You should take this protocol, which is Ted's protocol, for two weeks on and then one week off in a cycle like that. If you cannot find sodium molybdate, use the ordinary molybdenum sold in the health shops. Buy molybdenum at the highest RDA dosage -- which is 900 mcgs -- and take that at least 3 times a day(outside mealtimes) if you can. You should also take 25 mgs zinc every day. Zinc also helps to get rid of excess copper in the body. Both Vitamin C and Manganese (mineral that supports SOD) will also help reduce excess copper in the body. See this link.

http://www.holistichelp.net/blog/copper-toxicity-and-how-to-reduce-elevated-levels/

Supplement organic Aloe Vera Oil at mealtimes -- one teaspoon. The extracts from this plant are extremely healing for the body and for the intestines. Aloe vera works to heal no matter whether you have an alkaline or acid body. It's a healer and a balancer that also acts to kill candida and bad bacteria. Another beneficial oil -- especially healing for allergies -- is organic Black Seed Oil (Nigella sativa). Taken with meals -- one teaspoon.

Here is a drink that will help you with your candida issues. In a glass of water, add the following:

MSM (Methyl-Sulfonyl-Methane)-- One teaspoon -- Supplies essential sulfur to the body. Helps to heal the intestines. Heals allergies as well.

5% Lugols Iodine -- 6 drops. The benefits of iodine are too numerous to list but here are some of them: kills candida and bacteria, supports healthy thyroid, supports proper bone formation, needed for proper digestion, ammunition for the immune system. Work up to the full dosage slowly!! Follow the guidelines for iodine supplementation and take the extra nutrients shown here:

https://home.comcast.net/~jocy1/junk/The Guide to?Supplementing with Iodine.pdf

Ascorbic Acid-- 1/4 teaspoon.

Lemon Juice-- one lemon

Add sodium bicarbonate until the fizzing stops -- this creates the alkaline form -- ascorbate(anti-oxidant) and citrate(for energy) which are highly beneficial for the body. If you have sodium issues then you should take potassium gluconate to balance the sodium. Take this drink twice a day outside mealtimes.

Other remedies to try:

Borax Water (as shown on EC) -- Kills candida and mycoplasma, removes fluoride, helps bone formation, and rebalances hormones. Superb anti-fungal and parasite killer.

Magnesium Chloride as Magnesium OiL. 10 drops twice a day with water at mealtimes. Helps to regulate excess calcium in the blood and does 300 other useful things in the body. If you can't find mag oil -- use magnesium citrate -- 250 mgs twice a day.

The Pure Gum Turpentine or Kerosene Protocol. This protocol kills a huge range of pathogens including candida and parasites. It is also the only protocol I know of that can efficiently get rid of candida and bacterial biofilms in the intestines. See the Turpentine section on EC for dosages. Normally turpentine is supplemented at one teaspoon a day three times a week. It is normally taken mixed with either molasses or honey and castor oil. The castor oil also kills the candida but also helps to spread the turps throughout the intestines. Word of warning: if you are heavily infested with candida then you will get a Herx reaction from this remedy -- so start small and go slow with the dosages. See this link:

http://www.health-science-spirit.com/kero.htm

Poor Digestion-- Take betaine HCL with pancreatic enzymes (pancreatin)at every meal. Also eat papaya fruit at every meal. Papaya contains papain which will digest proteins in either an acid or alkaline environment. Add BCAAs (Branched Chain Amino Acids) to your diet. This will help to fix allergy problems and will also help tp boost protein digestion.

Liver/Kidney Support-- Alpha Lipoic Acid(300 mgs twice a day at meals), Milk Thistle (500 mgs twice a day at meals) and Selenium(200 mcgs twice a day at meals). You can also eat 4 to 6 brazil nuts a day to obtain proper daily amounts of selenium and glutamine.

Adrenal and Thyroid Problems-- As well as Lugol's Iodine, I would also consider using bio-identical hormones from porcine or bovine sources. This is really the quickest way to improve your adrenal and thyroid issues. But you will have to get tested and recommendations first from a qualified naturopath on this.

Enemas-- If you are taking molybdenum to remove copper then coffee enemas that you say contain copper become a non-problem. For the coffee enemas you should really be using ground organic coffee beans. All sorts of pathogens can hide away and become untouchable in the lower intestines -- including parasites and candida. Enemas will get rid of this hiding place and help to clear out and make your lower intestines healthy again. Coffee enemas also expel all the toxic waste that tends to accumulate in and stress the liver. That's why coffee enemas are so important and beneficial -- because it helps the body to excrete and get rid of liver toxins fast.

Another suggestion for you. Walter Last, a well-known Australian alternative healer, lives not far from Melbourne and his views on candida and problems such as yours are knowledgeable and honest. If you can, I would try contacting him in your area as a reliable naturopath for some support.

Replied by Robyn
Australia
04/23/2014

Dear Bill, thank you. Enemas with organic ground coffee, milk thistle, ala, selenium, hcl & enzymes I have been taking for years. Moly and iodine, borax I also did for a long time but stopped some time ago when I ran out. And thank you very much for the rest of the info. I dont think I could do the lemon & bicarb again - excruciating! I thought perhaps being so alkaline I didnt need it although I have lemon in warm water first thing in the morning. Perhaps I could do it well after the fizz but do I need it if I am so alkaline already? I am on a low dose cortisol. It was necessary as I had such a negligible cortisol reading I should have been hospitalised. Instead I was lying in a car dying and doctors refused to help me. MSM is almost impossible to get in this country. But I'll start working on the rest of your info.

Remembering computers electricute me I managed to comb through info about turpentine or kerosine protocols. I saw parrafin oil mentioned. I used to take that to help with lifelong constipation until I saw somewhere it was petroleum and it tastes like it. Then again I dont like the taste of castor oil much either. It seems like the diggers low odour might be the best.

Thank you. I'm hoping after 50 years of hell this might finally work.

Replied by Robyn
Melbourne
04/27/2014

Dear Bill, help! I have been on the turpentine for 5 days, 1 tsp of a mix of castor oil & turpentine so probably 1/2 tsp of each. I am alone. This has been such a long time of unbearable pain, the worst more than 2 decades. The pain is worse. I don't feel I can do this. We dont even know if we are doing anything except making me suicidal. We can only assume you are correct in your assumptions which I do. I don't know If I have candida except I read if you are copper toxic you must have. And I assume if I am having a reaction to this mixture it must be killing off something. I don't know how to do this myself. And bear this worse pain especially when I dont know how long it will be for. Any suggestions?

Replied by Bill
San Fernando, Philippines
04/29/2014

Hi Robyn...Unfortunately, as you say, there are so many things wrong with you, with many dysfunctional problems that are tending to hinder your progress. For instance, your huge allergies/sensitivites problem is preventing you from taking nutrients that will help you. Your high copper toxicity(and other heavy metals) may also cause detox reactions similar to Herx. And any huge candida die-off from the advised nutrients will most likely cause significant Herx reactions as well as anxiety from the sudden release of toxins from the die-off. These types of detox/Herx reactions can also cause pain in the tissues or joints. So you can either reduce the dosages of the offending nutrients or simply stop taking them.

The most awkward problem that you have is your chemical sensitivities and allergies problem which is preventing you from taking healthy nutrients and food. So I would, for now, simply concentrate on healing the intestines, liver and kidneys and purifying the the blood. Take the drink that I advised for you in my last post(with or without the alkalizing ingredients -- take what you can) and take the borax water and the liver/kidney support nutrients as well. It's also very important to take the molybdenum at the advised higher dose if you can. This will act to sharply reduce the aldehyde poisons and will also help to reduce the excess copper in your body as well as helping to kill the candida and reduce the pain.

The excess ammonia in your blood is also quite a worry. This situation is evidence of heavy stress upon your liver, kidneys and your protein/urea pathways. I've already advised you to see Walter Last but if you cannot do this, then please try and find a more knowledgeable and compassionate naturopath or doctor in you own area to help you. I feel that you really need someone with you, by your side, who can assist you through these awful problems.

Replied by Robyn
Melbourne
04/30/2014

Dear Bill, do you have a comment on these candida cleansers that promise to eat through the tough candida shell?

I've had literally close to a hundred docs & naturopaths over the years, more recently, new year, new doc, I had to try something different. These environmental docs think they can charge SO ... much but he's not with me. I already had all the tests done so he could see all the damage & poisonings etc. Other than increase my dosages he told me not to come back for 3 months. The only thing that is new to me from your suggestions is turpentine so it must be that. And all the other you suggested made no difference unless my dosage was too small.

best regards,

Replied by Bill
San Fernando, Philippines
04/30/2014

Hi Robyn...The majority of store bought or guru recommended candida remedies will probably help you a little bit on the symptoms but, having read so many blogs on candida, these candida remedies seem to often fail for two basic reasons.

First, none of these remedies have anything in their protocols that removes fungal biofilms. So the candida is able to hide away from the anti-fungals in these protocols and reappear after your stop the protocol. Second, most of these remedies concentrate on just removing candida from just the intestinal area. These protocols seem to completely ignore the fact that candida is dimorphic -- it has two different forms. The yeast form -- a saprophyte -- normally infests local areas like the intestines and skin. The fungal or systemic form -- a true parasite -- is able to infest the blood, organs and tissues. These two reasons also help to fully explain the inadequacy of these protocols and why the candida just keeps returning after you stop these store-bought and candida guru protocols.

As an additional protocol which might also help you, Dave from Fountain Inn has been experimenting with papaya. He has various serious allergies and reactions against spices and milk based products. He found that if he ate raw papaya fruit with ice cream or salsa(which normally cause his allergic reactions), he got no allergic reactions. Papaya contains papain, a protein digesting enzyme that is easily absorbed into the blood. Papain then works to properly digest foreign protein bodies in the blood caused by a leaky gut problem. With these foreign protein bodies quickly digested, neutralized and removed from the blood by papain -- no inflammation, no pain with no allergic reactions. This worked well for him, despite eating large quantities of spicy salsa and ice cream and chocolate at the same time as eating papaya(and mango). You can read about his papaya experiments here. So either eat papaya or take the papain enzyme(triple the advised dose) at every meal to help you cure your allergies.

To remove xenobiotics -- other poisons that the body does not recognize like xylenes, plastics etc which cause chemical sensitivities, then particularly turpentine and milk thistle would also be helpful as I've already mentioned. Molybdenum or molybdate would also remove the candida aldehyde poisons from your body. Once you heal your intestines, remove the foreign protein bodies and remove all other poisons and xenobiotics thus purifying the blood, your allergies and sensitivities should diminish and you should be able to better withstand the other candida protocols without such adverse reactions.

Replied by Robyn
Melbourne
05/23/2014

Dear Bill, you know I also have the food allergies, fungal, candida, viral & very heavy metal toxicities, digestive tract to heal & addisons disease which causes all sorts of mineral imbalances particularly low na, k which causes ca, mg build up in the tissues which is very painful. I had been taking (for some years) all the supplements you suggested except the turpentine. So I started it. The pain was so much more intense it was making me suicidal so I stopped. My saliva ph is only 5.5. But I have told you before the Apple Cider Vinegar & bicarb makes the pain similarly intense. I dont eat much acidic as dairy & meat make me ill. I am allergic to fish & chicken so I have to try to eat some lamb or I would get no protein. I would not consider my diet acidic but I do have to take drugs. I used to think the extreme extra pain was perhaps because I was not acidic but alkaline given my tissue alkalinity. But I dont understand the extra pain. Its not something I can endure. I am screaming. Just Apple Cider Vinegar or bicarb on their own are OK. I've been taking it last thing at night hoping I'll be in the extra pain all night & it will be a bit better during the day but not so. It lasts 24 hrs. Same as the turpentine. Do you have any suggestions? 5.5 cant be good!

Replied by Mmsg
Somewhere, Europe
05/24/2014

Robyn, I've been following your posts but haven't been able to comment till now. What I wanted to say is that I tried ONE DROP of turpentine and felt it all day. So just maybe the "minimum dosage" is too much for you to start with. Perhaps try with a WAY smaller amount. Same with anything else that might be helpful, but causes pain.

Replied by Robyn
Melbourne, AU
05/26/2014

Mmsg, thank you. Took 1/2 tsp turpentine + castor oil, will try less. I'm also wondering about colloidal silver for candida. I accept I have it with a copper toxicity & a nil good bacteria stool test. But I am still not sure there are not other chronic viral. I have a very long viral list. And at least 1 Dr.that says I have a stealth infection such as mycoplasma, borellia. And wrote me scripts for 3 strong antibiotics to take for a yr. Even though I took probiotics 12 hrs apart it cleaned me out of any good bacteria. But the minute I go off the antibiotics, I got down to only taking the bactrim the intensity of pain & all symptoms are back. So it seems it didn't kill anything, only suppressed.

Replied by Mmsg
Somewhere, Europe
05/26/2014

Robyn, read up on Bee Propolis as an antibiotic and antiviral, plus an immune system enhancer.

Replied by Robyn
Melbourne
06/02/2014

I am wondering if anyone has a suggestion for increasing cell permeability. I take all these supplements to repair my gut, detox, repair malnutrition, hormones for all those missing because my adrenals aren't working but all this is useless (the hormones go in through the skin so they may be more helpful? although still probably not if they can't enter the cells) all this is probably not helping if nutrition or oxygen isn't entering the cells & toxins aren't leaving. I just googled how to remove acetaldehyde; the poison from candida and I don't have the enzymes to help with that. And I can't take the turps I've decided. I react as bad to that as most drugs, poisons, many herbs.

And I can't seem to get the copper out. It might help a bit if I'm not putting it in by way of beet juice or coconut oil & the rest, coffee, choc, avocado, seafood.

Anyway, perhaps the pain would be less if my cells were being nourished.

Ill try papaya tea if I can find it. We call it paw paw here. Quite nice to eat with meals but it is very sweet.

Replied by Mmsg
Somewhere, Europe
06/02/2014

Robyn, good for you that you are keeping on trying!!

About the Papaya: the leaf tea can be made with fresh leaves if you have access to a tree.

Also, if you are eating the fruit, chew on a few pips from the middle. It's supposed to do you good too.

Replied by Robyn
Melbourne
06/18/2014

Re: Addison's Disease

21 yrs of torture, severe pain & allergic to everything including building materials so homeless for 5 yrs now. I cant take anymore. Theres no hope anymore. Ive been to every environmental Dr.in this country and everyone else. 6 mg natural cortisol x 2 a day gives me the right cortisol levels on the blood tests. The problem is everything else is out of whack because of this illness. According to the lab Im the most copper toxic person in this country. I've got equivalent to 27 mg of amphetamines in my system constantly x more than a decade. What does that do to your nervous system? And I cant get it out. My liver, kidneys, bowels, digestion, immune, thyroid don't work properly. Im sick of all the supplements which have helped none. I dont want to do any meditation again ever. Or enemas or saunas and sit by myself all alone with nothing to do or nothing I can do. Because of the adrenals my na/k levels in my tissues are too low. That allows calcium to build up which is also very painful. How could I not be acidic with all that metal in me? Also painful. I eat alkaline but thats not enough. Ive had enough detoxing crap. Very very slowly it did remove some of the lead & cadmium but not the copper. And what about the hormones? After menopause all your hormones come from the adrenal glands. I have none. Try living without any hormones. Is anyone else with addisons able to manage their mineral balances? Is anyone else in screaming non stop pain? Anyone else this allergic? Or am I battling a heavy duty candida aswell causing these symptoms? If I am I cant get rid of that either. Ive done my will and I cant even think of anything I could eat for my last supper. Even food is awful.

Replied by Timh
KY
06/19/2014
2114 posts

Robyn: Did you not try the MolyB for removing the copper as Bill suggested? How about a spoonful of Activated Charcoal before retiring? That would surely absorb much copper.

Before giving up, have you tried Medical Marijuana? I have had very good results w/ Hemp Oil/CBD for my severe environmental disease. These Cannabinoids are the ultimate total body & mind balancers. Our bodies (as well as many or most warm blooded animals) are created w/ Cannabinoid receptors of 2 types ---C1 and C2 which regulate most body systems.

Please do not give up until you try these suggestions.

Replied by Mmsg
Somewhere, Europe
06/19/2014

Robyn, I'm not knowledgeable enough to know what to advise you, but I have been reading up recently on Cannabis oil and saw that besides everything else it does, it reduces pain. Someone here has suggested it, maybe you can find it where you are.

Replied by Robyn
Melbourne
06/20/2014

Yes, Ive tried all that. I've done enemas, saunas, charcoal, moly, zinc, selenium, chlorella, everything suggested on this site. Everything suggested on my lab reports. In fact, Im sick of taking so many pills. Yet I could see I had very limited everything the liver is supposed to produce so I persisted. Zinc and chelators and still the copper has not reduced. But remember I have addisons. No adrenal function and the body will store copper. But really the zinc should have helped. Tried marijuana for the pain many years ago but I am very chemically sensitive. Not a chance I can go near that stuff without a reaction.

thanks for the suggestions.

Replied by Timh
KY
06/20/2014
2114 posts

Robyn: You say you "tried Marijuana", does this mean you "smoked" MJ??? Forget the free radicals produced thru smoking and use the liquid Hemp/CBD Oil orally; your condition will improve maybe to the level that your many other therapies will actually begin to make some positive difference (as it now seems they are not). Calcium-2AEP + The Hemp Oil/CBD have substantially enhanced the effectiveness of all my other therapies. Manganese toxicity is my primary problem.

Replied by Robyn
Melbourne
06/20/2014

Re: Addison's Disease and Medical Marijuana: There was a show on it last week that it should be legalised for medical use. It's illegal here and I don't have any human contact at all so I would have no clue where to get it. I have manganese toxicity too.

Replied by Robyn
Melbourne
09/26/2015

After 23 yrs of excruciating pain, cfs and mcs, failed adrenals, thyroid, liver, pancreas missing out on a career or a family or friends, living in a car for 5 yrs because the mcs became so bad, I have finally been diagnosed with Lyme Disease.

I have had many serious viruses so I followed an antibiotic protocol for 18 mths until I had to stop for another expensive environmental Dr. who ordered a stool test. What a shocker! Wtih no bacteria I never started up the protocol again.

After all this time and barely being able to move except for the screaming in the middle of the night due to the pain, 1/2 the time the pain was unbearable!!!!! Due to reacting to the bed.

So now with a diagnosis of lyme I'm even more depressed. I know people who have not got better with antibiotics Or its taken them 5 yrs. I've already lost 1/2 my life, nearly all of it because I was always sick before I got really sick.

And the natural protocol I've pretty much been doing for the last 8 yrs, since I got my first hair analysis saying I was off the chart toxic with copper, calcium, mg, mn. Apparently that is common with lyme people and its not a toxicity but a deficiency. I'm still trying to repair my gut and with colloidal minerals I should be able to repair the deficiency.

But removing burdens, detoxing, removing amalgums, staying away from all chemicals (that was a had to or I just stop breathing), repairing adrenals although hard to be stress free when you're in this much pain, never ending. Using a computer is only a few mins a day, mobile phone is never, no stress from family or friends coz I have none.

Then trying to boost my immune system.

My liver is shot so liver boosters, cleansing and NAC etc.

Lots of detoxing.

I'm in despair. none of this worked. I just don't want to have another day of mind boggling pain. I'm on morphine although I keep it as low as I can after all I'm trying to take care of my liver. HELP!

Replied by Mmsg
Somewhere, Europe
09/26/2015

Robyn!! Am so glad you're back here!! I hope others come up with good ideas for you, since I haven't a clue except maybe for eating more fruits and veggies which will give your body building blocks so that whatever you do use, should work!


Robynrenee

Posted by Robynrenee (Austin, Tx) on 03/23/2015

Greetings EarthClinic Family,

I read Bill's book on candida and my life is slowly changing. I feel better in many ways even though I'm still undergoing the treatment and into my 5th month. I take it seriously and do the ACV, iodine + baking soda, turpentine and borax powder water, avoid bad foods. My stomach is flat and I've lost 7 lbs (I weigh 107 and am 52.) My complexion is much better although I had a severe breakout recently (4th month), I think I may have had a delayed herxheimer effect or was slow in getting rid of the systemic fungus. Does that make sense?

My new husband, a very handsome 55-year-old who looks 40, is not good internally. I've looked online to find what he may have and cannot locate except he could have fibromyalgia (I don't believe that's it which is why I'm throwing this email out to you guys, and Bill and Ted, of course.)

He's bloated often, except when he wakes up in morning. He's got acute anxiety--let's people know how wrong they are on the phone, and often asks for "their supervisor." (He's really a gentleman inside but gets this way often.) He volunteers as a prison minister on Thursdays for four hours and has been doing this for 10 years. He's a cyclist and works out at gym (although he's slacked off a bit lately.) He does not work for anyone but works a tad (spinning his wheels making occasional loans.) I don't think he's capable of working a real job for anyone else. He'd be miserable.

Here's his symptoms: extreme sensitivity to many things such as light, sound and smell. He can smell something bad in the fridge while its in a closed drawer and must have "just gone" bad. I cannot really smell it even close up! We clean out fridge every Monday.

He is sensitive to others and gets feelings hurt easily. He gets acid reflux and gas occasionally (unsure if this has anything to do with what he's got, but I'm listing everything I can in case any of you have any ideas on what this could be. He thinks he needs an anti-depressant (I do too sometimes) or some type of anti-anxiety medication. He has to maintain order in house or gets stressed. He's almost a hoarder but not--treasures many things in general and saves them. He brushes teeth and drinks those protein shakes but has a film on his tongue and uses a scraper to remove the film (he swears it's just the "shake.") He's got breath issues sometimes too. Eats "okay"--definitely wouldn't work with my candida so we rarely eat together.

Please someone help or his anxiety could destroy us. He gets angry and disrespects me often, speaking down at me. It will destroy our relationship and we're just 10 months in. If you have any ideas I would appreciate your input.

Replied by Oscar
Syracuse, New York
03/23/2015

Dear Robby, It seems to me your husband is very neurotic. Now neurosis is a condition that stems from unresolved feelings. Therefore you can not figure your way out of said feelings. This is why he keeps looking for odors in the frig. and such. Unless he is a war veteran who suffered severe trauma, or car accident and such his neurosis may have started as a child or infant. There is PRIMAL THERAPY but it is not readily available. Hopefully he can find a therapist who can help him and you and or some self help group.

Replied by Charity
Faithville, Us
03/23/2015

We all have issues in many areas , physical, relational, spiritual and I hit mine from every direction. John Bergman has teachings on improving yourself from many directions . thoughts, words, choices, posture, and you might get some insights from him. I have.

https://www.youtube.com/watch?v=s0MYe25ro1o

This one is self talk but he has others that are very interesting too.

DON'T take this post as me judging you but remember we can only change ourselves and that changes our environment. Define boundary lines on behavours you permit, and talk through issues that are unacceptable. You loved him enough to get married. Please don't take this wrong ...my heart is right.


Posted by Robynrenee (Austin, Tx) on 03/23/2015

Greetings EarthClinic Family,

I read Bill's book on candida and my life is slowly changing. I feel better in many ways even though I'm still undergoing the treatment and into my 5th month. I take it seriously and do the ACV, iodine + baking soda, turpentine and borax powder water, avoid bad foods. My stomach is flat and I've lost 7 lbs (I weigh 107 and am 52.) My complexion is much better although I had a severe breakout recently (4th month), I think I may have had a delayed herxheimer effect or was slow in getting rid of the systemic fungus. Does that make sense?

My new husband, a very handsome 55-year-old who looks 40, is not good internally. I've looked online to find what he may have and cannot locate except he could have fibromyalgia (I don't believe that's it which is why I'm throwing this email out to you guys, and Bill and Ted, of course.)

He's bloated often, except when he wakes up in morning. He's got acute anxiety--let's people know how wrong they are on the phone, and often asks for "their supervisor." (He's really a gentleman inside but gets this way often.) He volunteers as a prison minister on Thursdays for four hours and has been doing this for 10 years. He's a cyclist and works out at gym (although he's slacked off a bit lately.) He does not work for anyone but works a tad (spinning his wheels making occasional loans.) I don't think he's capable of working a real job for anyone else. He'd be miserable.

Here's his symptoms: extreme sensitivity to many things such as light, sound and smell. He can smell something bad in the fridge while its in a closed drawer and must have "just gone" bad. I cannot really smell it even close up! We clean out fridge every Monday.

He is sensitive to others and gets feelings hurt easily. He gets acid reflux and gas occasionally (unsure if this has anything to do with what he's got, but I'm listing everything I can in case any of you have any ideas on what this could be. He thinks he needs an anti-depressant (I do too sometimes) or some type of anti-anxiety medication. He has to maintain order in house or gets stressed. He's almost a hoarder but not--treasures many things in general and saves them. He brushes teeth and drinks those protein shakes but has a film on his tongue and uses a scraper to remove the film (he swears it's just the "shake.") He's got breath issues sometimes too. Eats "okay"--definitely wouldn't work with my candida so we rarely eat together.

Please someone help or his anxiety could destroy us. He gets angry and disrespects me often, speaking down at me. It will destroy our relationship and we're just 10 months in. If you have any ideas I would appreciate your input.

Replied by Dave
Fountain Inn, Sc
03/23/2015

Hello Robynrenee, Re your husband...

Sounds like system wide infection. The coated tongue is more evidence. That condition is likely fungal and or viral. I used to have a coated tongue but after taking a swallow of Colloidal Silver a few times a week and leaving in the mouth for a minute so the tongue was covered, that problem went away. If the problem is, indeed system wide, swallowing two tablespoons twice daily for me, was enough to turn around systemic infection. Assuming the infection is not in the brain via an old ear infection, six months on CS might be sufficient. Ask him if he has had persistent or a few VERY severe ear infection that predated the sensitivity matter...hearing, smelling light sensitivity. If so, write back; I'd suggest ramping up the protocol.


Sara

Posted by Sara (El Prado New Mexico, Usa) on 04/15/2011

I am frustrated about my health, I have been to 3 different Neurolgists and owe them 3 grand, first diag. was maybe als. Then guiliame barre syn, I went to an infectious disease Dr.I was on massive amounts of drugs for 8 months. I then started throwing up and lost 38 pounds. She diagnosed me with severe lymes disease. I had and still have sometimes, stinging in nerve endings. I took care of my son who had vacirella zoster and my husband just got over hep. C. And I got noro virus on a cruise ship. My immune system is shot, and my neck is arthritic and stiff, I have also had severe migraines for years, and stomachaches. I do not want to go to another Doctor! regards sara

Replied by Rrrr382003
San Jose, Ca
04/15/2011

Wow! I haven't had your kind of diagnosis but I have had to play musical chairs with dr's, trying to find the one that gives the right diagnosis and meds, on and on and on..... Have you gotten desperate enough to try a wholistic dr? It took awhile to find the right one but we're healther than we've ever been. We can talk more if you like.... Good luck either way!!

Replied by Faith
Cincinnati, Ohio
04/17/2011

Alkalize your body, who cares what the official diagnosis is...


Sarhapp

Posted by Sarhapp (Stockholm) on 04/21/2017

Please help! Lately I have experienced super strange symptoms. There are few minutes per day that something doesnt hurt! First its some pain in my leg, then my wrist hurts like crazy, my hand, the upper side hurts and I can hardly move my wrist. The day it lessens, my ear starts hurting, as well as my eye and I get these sudden shooting pain sensations in my head, and it hurts so much that I shout out every time it comes. It lasts for half a second, and then its just dull headache at the back of my head. Every time I swallowed, my ear hurt. My eye stopped hurting, but my scalp started. Then it lessened today, just few shooting sensation, mostly when exposed to cold, but ear is ok. Wrist starts hurting again. Then it hurts on my breast for a minute. Then my leg starts hurting fo a few seconds. Then nothing. Then my back hurts. Then my arm. Then a shooting in my head. Then nothing. I am so so scared. This started with my wrist, maybe 9 days ago. Since then its been all these sensations. I dont know what to do. I am a single mum of a five year old, I am all he has. PLEASE dont scare me with MS or other horrible diseases, I already thought of the worst, and I can physically not take it. I researched everything, but finding only scary stuff :( I cant even concentrate on my job, on my kid, I am scared s**tless!

I took some natural stuff, iodine, vit c etc, I just dont know what this is, and I am desperate! Please help me!

Replied by Charity
Faithville, Usa
04/22/2017

I have had this madness, so what happened nine days ago when this started? An event with you or an event in your environment?

Replied by Art
California
04/22/2017
576 posts

In reply to Sarhapp (Stockholm),

I was wondering if your symptoms are more frequent at a specific time of day? Some of your symptoms are similar to fibromyalgia symptoms, but there is no specific test for fibromyalgia and you have not had the symptoms long enough to meet the criteria for it. Usually you are diagnosed based on your symptoms as well as the length of time you have had the symptoms. Also there should be a process of elimination to eliminate other potential health issues as the cause. Without a diagnosis, it is basically guessing how you should try and treat your health issue. Here is a basic description of fibromyalgia symptoms that you can compare to what you are feeling:

http://www.fibrocenter.com/fibromyalgia-symptoms

You can review this brief article to help narrow things down or possibly eliminate the idea of fibromyalgia altogether. The more focused you can be in describing "all of your symptoms" as well as when they occur, the easier it will be for people to help you. It might be helpful to write down "every single symptom" you have and when exactly it occurs during the day or night. If you end up going to a doctor or post back here on EC, those notes will be very helpful in determining how to approach this problem.

Art

Replied by Art
California
04/23/2017
576 posts

In reply to Sarhapp (Stockholm),

I forgot to mention in my previous reply to you that your symptoms are also similar to Lyme disease as well as the fibromyalgia that I mentioned in that post. The fact that the symptoms move and come and go are typical to both diseases.

The fact that you are in Stockholm adds to the idea of Lyme also.

http://www.yourlivingcity.com/stockholm/lifestyle/families/ticks/

Here are typical symptoms for Lyme disease:

https://www.lymedisease.org/lyme-disease-symptom-checklist/

Art


Saul

Posted by Helpyourself (Houston, Texas, Usa) on 08/20/2011

To Sol /For your wife's mystery illness.

Try 20 drops of Tabasco (it only has three ingredients, no preservatives) in about 4 ounces of water, and drink it. Do this a couple times per week.

Then use only as needed. So many benefits from this recipe.

To The Person with BO.

Use a lemon or lime. roll on counter putting pressure on lem/lime. cut in two and rub on problem area. You will not need to re-apply for 3 to 4 days. No more deoderant and harmful ingredients.


Posted by Saul42 (Ny) on 08/17/2011

Dear Ted,

First of all I wanted to ask you if you offer consulations as I would like to pay for your help.

My wife has a strange disorder that completely affects the quality of her life. When she eats certain foods and the list is never constant, her nose suddenly gets clogged up and she has to blow her nose all the time as if she caught the flue or severe cold. Her nose just runs. Because this has been going on for a while she developed polyps. We went to many doctors in Ukraine and a few in the US (not too many in the US as they are expensive and we cannot afford them). In ukraine one herbalist told her to smoke chicory and exhale it out through her nostrils. This seems to have helped with the polyps and her breathing. Oh I forgot to mention that this problem has affected her breathing. She almost always breathes very heavily as if she is struggling to get in air, this is very noticeable at night.

Now in Ukraine one doctor suggested some of her symptoms might have to do with lactic acid. It seems to be increasing albeit slowly. Her symptoms usually worsen if she eats dairy products and at times sugary products. though the sugary products from the US tend to have a bigger impact than the ones in ukraine.

Nose Xrays and lung Xrays were done, they revealed nothing. Sinusitis was ruled out.

Another factor is that after eating food seems to be getting stuck in her intestines, many times she gets bloated. One doctor suggested IBS but again all these other symptoms started coming after the phelgm/mucous I. E runny nose. She has been suffering from this for now close to 10 years. Sometimes when she goes on a detox her symptoms get better or they go away temporarily but nothing has cured her.

We have tried very severe detox programs. limiting meat, diary, etc but while they have helped nothing has cured her.

Finally she cannot seem to take too much raw food as in lots of salads etc, they seem to irritate her digestive system.

Many years ago she was diagnosed with the Epstein Barr virus. I don't know if this is having some sort of effect, but recent tests did not reveal anything, maybe its dormant.

I would really appreciate some help, because when her nose gets blocked it runs for hours and she cannot talk or lead a normal life, Sometimes it gets so red it looks like its going to bleed because of the amount of time she has to blow her nose. I have seen her go through whole box of tissues in a few hours.

Any help you could offer would be appreciated. I am new member here. So could you tell me how I would check if you posted a reply.

And if you do offer consultations over the phone please let me know. I know you are very busy and any help you can offer will be truly appreciated.

Kind Regards, Sol

Replied by Oscar
Syracuse, New York
08/18/2011

There are two things I can think of that have helped many people with a broad range of conditions and diseases. There is wheat grass juice. A woman by the name of Ann Wigmore developed this treatment back in the 1960s. It does not cost much. You can learn about that on the web. The same with BHT [ butylated hydroxytoluene ]. BHT costs very little and seems to work for many viral diseases and some other conditions also. I think they are at least worth a try. They don`t cost much and many people swear by them....Oscar

Replied by Ted
Bangkok, Thailand
08/22/2011
384 posts

There are a couple things you should try first: lysine, N acetyl Cysteine, zinc acetate, and green tea extract, and selenium yeast. The lysine is 1000 mg, N acetyl cysteine 250 mg. These are taken every hour for six hours, and in evening taken hourly for two hours, before bedtime, If taken for 3 days, the supplement of glutamine is then added hourly dose thereafter along with lysine. Sugar of all kinds is avoided, even fruit sugars, the only thing you can eat is fruit extracts without any sweet, such as red wine extract, The beta glucan is taken twice a day at 3000 mg, zinc acetate is only taken 25 mg for a week only, thereafter weekly dose. The green tea extract is taken twice a day, the preferred one is ECGC (epigallocatechin gallate) but without caffeine. The beta glucan will remove some of allergy symptoms. Bloodroot tincture 10 drops 5 times a day will remove the polyps. If this doesn't work, you can contact my email. If she does not have high blood pressure, the morning dose is sea salt 1/4 teaspoon per cup of water should help reduce the sneezing and runny nose immediately, within 5 minutes, if partial reduction then may try 1/4 teaspoon more. If it doesn't work at all, you can see if taking more will help. This usually work. I don't usually do chicory for smoking but a chicory extract in drops, as bloodroot tincture may also help.
Ted

Replied by Lisa
Pleasant Prairie, Wisconsin
08/29/2011

Sol... I had similar symptoms, although not as severe, as your wife... The runny nose when eating, digestion troubles, etc... I have been on a gluten, dairy, sugar, and caffeine free "diet" for the past few months and feel much better all around. At this time I am still partially cooking most of my food but am starting to slowly add back raw foods. My nose no longer runs when I eat. I am being treated by a naturopathic doctor. Good luck!


Sha

Posted by Sha (Kerala, India ) on 10/14/2014

For years I am suddenly waking up from sleep with heart palpitation and a feeling that I am going to die. Whenever I lay to sleep I have same problems. Taken many tranquilsers and recently magnesium citrate, no cure. Is it panic attack or any other problems? How can I diagnose it?


Posted by Sha (Kerala, India ) on 10/14/2014

For years I am suddenly waking up from sleep with heart palpitation and a feeling that I am going to die. Whenever I lay to sleep I have same problems. Taken many tranquilsers and recently magnesium citrate, no cure. Is it panic attack or any other problems? How can I diagnose it?

Replied by Cda
Tucson, AZ
01/28/2015

The heart needs vitamin D3 ( adequate sunshine) and the major minerals, and perhaps you're lacking in Calcium, Magnesium, and the very important Potassium. Heart palpitations, arrythmia, can result, is scary, and makes laying down very uncomfortable, even impossible for some as the heart then wants to be elevated by sitting up. Blackstrap Molasses is rich in Calcium, Potassium and Iron, and eating even a teaspoon to a tablespoon of it can help stabilize the heart's rhythm within a minute or two. Taking in a larger quantity of potassium can also ease the bathroom process, and a lot can loosen the stool, just so you know.


Sheila's Husband

Posted by Sheila (San Diego, Ca) on 02/21/2012

Husband went to Urgent Care, saw 2 doctors, and his condition is a mystery to them too.

Symptoms:

- complained of a sinus problem/pain 2 weeks ago

- dizziness

- chills, constantly cold during even when bundled

- stiff neck and shoulder, excruciatingly painful; ice pack and hot pack helped relieve pain, especially the ice pack

- night sweats

This has been present for the last 5-7 days. He had blood drawn. He's not anemic, not diabetic, his Thyroid hormone is being checked, he doesn't have an infection, but the doctors mentioned that it could be an unknown virus.

Any ideas on what it could be so that we can ask his regular doctor to test for? Any recommendations for remedies?

I've been giving him electrolytes to prevent dehydration and ginger tea for his dizziness. The poor man can't seem to get warm. He's so miserable.

Please respond to: the_murdocks2004(at)yahoo.com

Replied by Debbie
Melbourne, Australia
02/21/2012

Does he have a lot of processed foods? Diet sodas? These contain MSG and/or aspartame which are excitotoxins and very dangerous in the diet.

It could be an MSG toxicity problem.

Replied by Cat
Tauranga, New Zealand
02/21/2012

Did they test for meningitis? The stiff neck symptom is one of the tell tale signs of this illness. That needs to be treated urgently!!! Good luck.

Replied by Carly
Seattle, Wa -USA
02/21/2012

Hi Sheila, I agree with Debbie, it may have to do with diet and MSG.... Anyway, cutting out all processed foods for a few days certainly wouldn't hurt him, might just help. Heads up, if he is eating a lot of broths or soups.... they are just LOADED with MSG.

Also was thinking possible thyroid while reading.... Which Organic Virgin Coconut oil is good for the support of, as is Zinc. Maybe read about it on here under the ailments page. Lots of good info on here re MSG also.

Good luck, and please keep us posted as to how your husband is and what they figure out! Carly

Replied by Andrea C
Cardiff, Wales
02/21/2012

Hi xx yep! Looks like a virus that is going around the world at the moment hun x x x I myself and other friends had exactly the SAME symtoms!! Also STRESS will also cause similar symptons xxx n e way, if it 'the dreaded virus' it takes a few weeks 2 shake it off. He may feel as if he's getting 'some' relief occaisionally, then 'bam!! ' it knocks you again. Is he on n e meds? opiate, or other 'drug with drawal' and even 'alchohol' and cigarette with drawal' will cause these symptoms. But although unpleasant, it is a sign his body is fighting what-ever it is. I have friends across the world and we ALL had these viral symptoms and were all very rough x x x as long as he's hydryated and if he can't eat much look for 'clear broth reccipes' on the web and also 'how to make your own rehydration fluid'. There is also 'natural 'anti-viruls on E. C. LOVE Andrea c x x x P.S.google 'HEALING CRISIS as well xxxxxxxxxxxxx

Replied by Louwrence
Rustenburg, North West South Africa
02/22/2012

Hi Sheila, If I were you I would put him on liposomal vit c as it cures just about anything. Look it up on the net & then decide, it is cheaper than IV vit c, also do a liver flush & intestinal cleanse. Gallstones can also cause a stiff neck & shoulders so the liver flush should help with that If you want to test if the gallstones are causing the stiff neck shoulders take a big dose of epsom salts & if you get relief you know the cause is the gallstones. For info on how to do the liver flush the net will give you all the info that you need.

Replied by Sheila
San Diego, Ca
02/23/2012

Lots to consider. Thank you for your responses.

My husband is still experiencing coldness at night and sweats. His stiffened neck and shoulders have relaxed -- alternating cold and hot packs have helped with easing that. I gave him a very small dose of niacin the night before and he only felt chilled once that night; forgot last night and he was up in the middle of the night changing clothes again due to sweat and chills.

He was tested for meningitis; nope.

It could be stress with other physical problems. I asked him to get his hormones checked, adrenal and thyroid.

We are strictly off MSG, aspartame and other additives at home, so unless he's sneaking nasty foods, I don't think it's currently his food. We cook regularly at home and use organic and primarily non-gmo foods, lots of fresh. We're also minimizing plastics.

It'd be nice if it weren't so much a mystery. If it is viral, I'd like to know what it is!

I'll look into the vit C recommended.

Please post anything else you can think of.

Appreciate it,

Sheila

Replied by Debbie
Melbourne, Australia
02/23/2012

Does he take iodine? Upping the dose may kill off any virus/pathogen. Colloidal silver is also an option. Chlorella and green juices would help cleanse the blood and also alkalise him. Also lemon juice is good for alkalizing.

Replied by Maria
Gippsland, Vic, Australia
02/23/2012

Hi Sheila, I'm just going to run through some of my thoughts so if any ring a bell do a bit more research. Take his temperature even if its only a slightly raised one I would treat him for an infection/virus (albeit an unknown one). If his temperature is normally in the low range and is now at the highest of the normal then I would still treat it as a low grade fever. Personally I would definitely do this as even your Drs. think it could be, plus the symptoms do fit.

Another one is chemical exposure prior to the symptoms.

Sweating does help get rid the body of toxins especially if your liver is not functioning at its peak. Did they test (blood) for liver function? Some support for it would be helpful for chemical exposure and for when killing viruses etc.

Magnesium oil rubbed over the stiff areas 2-3 times a day may help.

Do you eat a lot of corn? The reason I ask is that your husband received benefit from niacin. Which can become deficient in those eating corn/maize products regularly. Unless of course you are doing the ancient way of cooking it with lime (not the fruit). http://en.wikipedia.org/wiki/Nixtamalization

Replied by Cat
Austin, Tx
02/24/2012

This sounds exactly like my husband when he has had something that he is allergic to inside food. Sometimes he would curve into a ball on the floor with chills, frozen arm, chest pain, or some other symptom. Going to the hospital/doctor never helped... They would find nothing. After much self-testing, we finally pinned it down to peppers and this includes chili peppers & bell peppers but not black pepper. He alleviates symptoms (an inflammatory response) by taking vitamin-C with baking soda, Quercitin, HCL or Bromelin.

Tell your husband to fast 24 hours and laxative-empty his stomach and rectum. Then, start testing (individually) what he eats, first sticking mainly with fresh, raw fruit & veggies, then plain meat with salt; then start adding ingredients to cooked food. This is what we had to do until we found the culprit -- peppers. People put so many ingredients together when eating that we can't pinpoint what is adversely affecting our bodies.

Also, whenever we (all members of my family, now) go out to eat at ANY restaurant, afterward, we pass around a garlic capsule to each family member. At least 1 or more of us carries a bottle. We've learned through many experiences that taking a garlic capsule destroys E-Coli and other nasty germs that restaurants harbor. Family members who poo-pawed this practice got sick, but, are now believers. I hope this helps him. Much hope for your success..... CAT


Shelly

Posted by Shelly (Chicago, Il, United States) on 02/21/2013

So, I'm new here to earthclinic (as a member). Reading through this site has really given me much hope and encouragement in helping me cope with the many ailments I am currently dealing with. I was wondering if anyone could help me? This is how it all started...

In Jan 2012, I gave birth to my daughter. I was also pre-eclamptic, & had high protien levels in my urine. My blood pressure was high, and remained high until 3 or so months after the birth. I wanted a natural birth SO bad! Ended up getting the epidural & other drugs. I did everything organic, right down to my bedsheets. I ate really well, and took good liquid vitamins. My birth experience was pretty stressful, & I had some post-pardum depression. So, I nursed until the end of April '12, when I was then forced to stop, because my milk supply just dropped dramatically. I tried all kinds of natural things, herbs, teas, etc. I didnt know why this was happening. Then, my bladder started to hurt. I got checked for what seemed like a UTI, but it came back negative, 3 times (in 2 weeks). After an evening run, I went to bed later, and awoke to feeling REALLY SICK. I thought I was getting a stomach/bacterial "bug", but it just wouldnt go away. I decided to go to the ER, and they sent me to ultrasound and checked my blood/urine. I had slightly low pancreatic enzymes ( prob cus I have not eaten in several hours! ). They sent me home with some drug that didnt help, and my "condition" or sickness, continued to linger.

These were my symptoms: ongoing nausea, pain/frequency in bladder, using the bathroom (BMs) 8-10x (mostly in morning; diarreah), extreme weakness, fatigue, dizziness, heart palpatations/high blood pressure, & hair loss! Over the course of the last 10 months since this has happened, I went to only a few docs, one was a gastroenterologist. She did a colonoscopy, and found I had microscopic colitis (duh- from the diarreah I was having! ). I did all sorts of experimenting with foods, etc.. and found that through much research, and Ted's advice through reading here, that I may have a candida overgrowth (really bad).

I don't understand HOW I got this sick! I ate realllly well, and was not on antibiotics. Well, one of the docs I was seeing gave me some antibiotics AFTER this episode, which didnt help, 'cus I told her I thought I had a parasite. What now? Do I really have a parasite? I had 2 stool samples, came back negative for them ( I hear they are not accurate though). I am going to see a Naturopath FINALLY next week, because we just didnt have money before. Am I wasting my time? Will they only give me supplements? Ive never been to a naturopath. Ive tried tons and tons of supplements, enzymes, etc, etc... And it seems like being on the candida diet has really helped the most, along with minerals, probiotics, & husband support. I also put myself on iodine that Ted suggested, and that helped stop my hair loss a LOT, and helped with some weakness. ANY time I g to eat carbs, starch, sugar (esp), or sugary-fruit, my symptoms come back within 2 days. I just need help. I don't know what to take, who to see, and I need to take care of a 13 month old and my large house, while trying to take care of myself! I am DESPERATE to get better. I am a new, young Mom here trying my best. It's been a battle. PLEASE... Suggestions! ???

Replied by Jellie
Sioux Falls, SD
02/21/2013

Dear Shelly, This sounds like a b12 deficiency which is common after birth. Are you a vegetarian by chance? If not, it doesn't really matter you can still be b-12 deficient. If yes, one more reason to think this is your problem. Look up the symptoms and you will see that many of them fit your list. Do your homework by reading--there is a lot on the net about this. I use Methylcobalamin sublinguals and start with 1000 mcg twice per day. You should also use real folate not folic acid. It takes a while to work.

Replied by Timh
Louisville, Ky, Usa
02/22/2013
2114 posts

Shelly: You have begun your healing journey and will surely see some improvements after seeing the Naturalpath. If you could paste the notes you've taken from your recent diagnostics, that will help during your visit.

You seem to have a parasite infestation as well as some type pathogen. You will need to do Immune Boosting Therapies and maybe some blood building (take BlackStrap Molasses for this). Filter the air and water in your home. Take any nutritional supplements that are recommended in any of your symptoms. If your lucky you can make an almost 100% turn-a-round, but be warned that in many cases, these type conditions are chronic and are sometimes never completely resolved. Case-in-point, Mycoplasma or Lyme infections are very difficult to rectify. Round, Pin, and Hookworm can be resolved, but the Liver Fluke and Tapeworm infestations can be very difficult to irradiate.

Try to allocate some time reading up on conditions here on E.C., update your questions and progress, and we (E.C. members) will help you get your health back.

Replied by Shelly
Chicago, Il
02/25/2013

Jillie... Yes I take b-12, amoungst other things. And Timh, I tried a parasite program, but it didnt seem very successful =/ I wouldnt know what program to take now. Any lab suggestions on where to go for that? I used to eat at salad bars often, and ate pretty organic... So maybe I picked something nasty up? I recall drinking water from a water fountain after my run the night that I got "sick".. So maybe there was something lurking in there? Who knows! I will try to get tested for pathogens (again).. And of course, the whole candida thing as I have been peeing white specks out for awhile now, along with reaccurant yeast infections. Why is this candida, if that's what it is, SO BAD! ? Can stress/hormone imbalance cause this to happen to such a severe degree?

Replied by Timh
Louisville, Ky, Usa
02/26/2013
2114 posts

Shelly: Conventional Medicine is 90% reluctant to test for parasites, so a ND would be your best bet. He/She can order a stool test that can determine pathogens as well as parasites. The Parasite hypothesis is likely true because they weaken the immune system and then you get a fungal infection that resist treatment. You can also get an Hair Analysis from your ND to determine mineral levels ie deficiencies, as well as possible heavy metal contamination (which would also induce untreatable fungal infection).

I made the same mistake of drinking ground water on more than one occasion and seem to have contracted the flukes. The standard herbal protocol for Parasites is Black Walnut Hulls, Clove, and Wormwood. For flukes in particular, Myrrh is recommended in addition to the prior. The flukes in particular are insidious because there are five stages that can inhabit the body, which in all could number in the millions. Research fluke symptoms to further determine your case.

Begin boosting your immunity with Zinc and Vit-A; these will also hasten healing particularly the intestines (which get eroded by Candida). Any of the detox protocols here on E. C. would be recommended in your situation.

Lots of info and personal testimonies here on E.C. for your perusal. Find a good Naturopath in your area.

Update us on your condition. Hoping you will get well soon.

Replied by Heather
Santa Rosa, Ca
02/26/2013

Shelly~ I just replied to Abby too.... Again, I think this could possibly be an adrenal problem. Your signs are very "classic. " In the last year, you've undergone much physical and emotional trauma with the pregnancy, birth & nursing of your child. Please look up adrenal depletion here on EC. You will probably recognize almost every symptom.

I saw an ND and was prescribed a high quality Adrenal supplement. I felt better in no time & I know you will too. God bless & let us know what works for you!

Replied by Shelly
Chicago, Il, United States
03/27/2013

Hey All... So just an update with me.... I am seeing a ND outside of the city, and I got my results from the yeast/bacterial analysis through a stool culture. The results are that my bifido strains are low, and lacto are also a bit low... E-coli is good.. And it says I have 'yeast' but NOT candida albicans. She put me on 5 things: a good probiotic (in addition to what I have), colostrum, pancreatic enzymes, plant tannins ( it has 30mg of casien which I wasnt so crazy about), and also some candida-fighting supplement. I've heard of the brand she gave me for the candida/probiotic supplement, so I'm hopeful for that. I just hope this is strong enough to kick the yeast out!!! So.. Should I be doing anything else on top of this? Should I tell her, if I start taking borax? I haven't tried it yet... Would like to though!! I hope that this is the ACTUAL PROBLEM she is addressing.... Well see... & hope that I don't really have parasites like I though. Keep me in prayer!!!

Replied by Shelly
Chicago, Il
04/14/2013

More of a recent update with myself. I don't know whether to stop looking, stop going to my ND (which is costly! ), or to just give up. I've been ill for a WHOLE YEAR now! This is ridiculous. The only "result" I've gotten in tests, is that I have a yeast, that is not candida albicans. BUT I don't know if THAT'S what's causing the chains reaction of symptoms I'm still having. My most annoying symptoms are REALLY tired, I mean, WIPED OUT, weakness, and Interstitial cystitis. I also have bowel probs that come and go.. And a crawling feeling that goes from one side of my body, to the other. I've felt it when I had to stop nursing (when I got sick, initially) across my left breast. I've tried parasite stuff, and it seems like its not working. So, Im thinking a VERY stubborn yeast prob. Does anyone know if Teds/Bills fungus protocol is for ANY type of fungus/yeast??? I NEED to get onto something QUICK! I want to have more babies, live happily and NORMAL! Geez... Life can be a pain sometimes =/

Replied by Sweat Pea
Somewhere, Usa
04/15/2013

Shelly, Here is what I would suggest you try. You need mega doses of Vitamin C, like 500 mg per hour for a few days. You should feel the effects within an hour or two. If not, up it to 1000 mg per hour during your waking hours. Also try a mega dose of Lugol's iodine, anywhere from 50 to 100 mgs in a day. I would also take B-12, coconut oil, and at least 100 mcgs of selenium per day. I strongly suggest you check out Solgar's multiple vitamins with Chelated minerals and take two a day. You can get them online if not in a health food store. I am coming to realize what a lot of people are missing are minerals. Minerals are a catalyst for vitamins. You can be sufficient in every single vitamin yet if you lack minerals they simply won't work. Please, I beg you to try all these things and I bet you will start to feel better on day 1! Please keep us up to date and let us know if you feel better.

Replied by Bill
San Fernando, Philippines
04/15/2013

Hi Shelley... It's fairly well known through research that yeast/fungal infections leave the door wide open for a multitude of other pathogens to enter the body. This is why no two people, who are infected with a yeast/fungal infection, will ever have exactly the same symptoms -- because there are a plethora of bacterial and viral co-infections(with their own symptoms) that can also be associated with a candida or yeast/fungal infection. As a result of this yeast/fungal infection together with increasing co-infections, the body tends to go into a never-ending downward health spiral as the immune system gets weaker and weaker. The way of modern medicine is to just recommend ant-fungals and antibiotics for yeast/fungal infections. In my opinion, antibiotics are both useless and dangerous against candida or yeast/fungal infections that will only ever act to increase its virulence and spread. This is referred to as the Antibiotic Syndrome. It's also well known that the anti-fungals recommended by doctors are not very effective at removing yeast/fungal infections because candida can easily adjust to them or hide in biofilms to avoid their effects. Modern medicine also has quite a poor record and reputation at diagnosing candida problems. Here is some recent research on these points:

Biofilm Formation by the Fungal Pathogen Candida albicans: Development, Architecture, and Drug Resistance.
Role of dimorphism in the development of Candida albicans biofilms
Recurrent Candidiasis: One Step Forward, Still Backward, (2004)

The above research should open your eyes to the fact that modern medicine still remains quite clueless as to how you should both treat and eradicate candida. Diagnosis of candida by modern medical techniques is also known to be poor and inaccurate:

Biological diagnosis of systemic candidiasis: difficulties and future prospects (2007)

Growing Concern: Inability to Diagnose Vulvovaginal Infections Correctly (2004).

The gist of the above is that modern medicine has not got a good record of either diagnosing or treating candida problems. Indeed Dr Orian Truss's well known book on candida is called Candida: The Missing Diagnosis -- which would seem to blatantly confirm modern medicine's clueless approach in diagnosing candida.

If you want to confirm whether you do indeed have a candida or fungal problem then you should take William Crook's questionnaire. William Crook wrote the book: The Yeast Connection: A Medical Breakthrough. From the book, this questionnaire will confirm, fairly accurately and in minutes at no cost, whether you have an internal yeast/fungal infection. This questionnaire works off a points system to give you a definite result:

William Crook's Questionnaire

To cure your yeast/fungal and co-infections problem I would further recommend that you take the following anti-candida protocol described lower down in this post stream.

Replied by Timh
Louisville, Ky, Usa
04/16/2013
2114 posts

Shelly: First try and center yourself with confidence ("I will get better"), with the acceptance that patience and dedication are required for complex and chronic illnesses. Spend some time reading here on E. C.

I suppose you didn't find any snails in the water hole from which you drank???

For immediate relief take hot baths w/ 1/4 cup Epsom Salt, 1/4 cup Baking Soda, 1/4 cup Borax.

Take Garlic Oil Softgels in the AM for parasites and pathogens. Take Oregano Oil Softgels in the PM for parasites and pathogens.

Purchase and use a Zapper to help eradicate parasites and pathogens; Zapper is also good for replenishing energy.

Purchase and use Detox Foot Pads for heavy metal elimination: http://www.ebay.com/sch/i.html?_trksid=p2050601.m570.l1313.TR6.TRC1&_nkw=detox foot pads&_sacat=0&_from=R40

Also try Oil Pulling as it is very good for detoxing. Be sure to use mouthwash or rinse before and after.

Also use Coconut Oil daily. Also begin Potassium Iodi(n)(d) supplement to kill pathogens and restore energy.

Replied by Mary
Regina, Saskchewan
04/16/2013

Why does zapping replenish energy?

Replied by Timh
Louisville, Ky, Usa
04/18/2013
2114 posts

Mary: Zapping restores cell voltage either directly or indirectly. All disease states lower cell voltage. Cancer voltage is way lower than a normal healthy cell. Zapping kills pathogens, parasites, and cancers, thus restoring normal cell voltage.

Replied by Gavin
Manganui, Northland, New Zealand
04/18/2013

Funny thing was that after they abandoned ECT. (Electro convulsive therapy) for depression etc., they found that it stimulated new cell growth in the brain. I heard another thing where this guy hooks up an electro zapper to a patient's hand who has been in a long term coma, and the pulses go up through the finger nerves, back to the brain and the patient wakes up. So there is something in it. It makes you wonder if this would be another therapy for Altzhimers or Parkinsons.

Replied by Shelly
Chicago, Il
04/20/2013

Bill... So.. I bought almost all the stuff for the fungal protocol.. And acutally, have read through it and printed it out... Several months ago. I'm just afraid of the detox reactions, I guess, esp with the borox. I have some questions though.. Maybe you or TIMH could answer??

1. Can I eat root veggies, carrots, peas, sweet potatoes at all?
2. Is the there a way to mix any of the protocol/fungus killing stuff.. As there is a LOT of stuff w/ liquid to take!!
3. Isn't fungus/yeast always mutating or resistant? So.. Doesnt the protocol have to change every 5 days (so I hear)?
4. Is taking a good probiotic ok?
5. Fermented foods ( Ive been hearing great stuff about it.. Trillions of good bacteria! )..
5. Will the fungus-killing stuff like borox and the MB kill GOOD bacteria?
6. What about ingesting essential oils?
7. Have you heard of parasites giving off a lot of yeast, or is it the yeast overgrowth that attracts the parasites?
8. Isn't it possible to just get rid of parasites by eating REALLY good organic, alkaline, raw foods... Detoxing the kidneys, liver, colon, and blood... and stay on that for awhile? Won't they just 'leave'?

TIMH... No.. No snails.. Hm.. But can it be ingesting through the water? The flukes? How do I know I really have flukes? Can you tell me where I can get good quality parasite stuff... Theres SO much out there, I dont know what to get! I've noticed significant improvement in energy when I juice... I juice 2x/day. Helps with energy! All organic, green juice.. Cucumber.. Celery.. Garlic.. Ginger.. Wheatgrass.. Lemon.. Kale.. Spinach... That is all. Thank you SO much for your input!!!!! God bless!

Replied by Bill
San Fernando, Philippines
04/21/2013

Hi Shelly... In response to all your questions:

1. Can I eat root veggies, carrots, peas, sweet potatoes at all?

That diet is fine but only eat small amounts of carbohydrate(sweet potatoes) because they are converted to sugar in the body and sugar feeds candida.

2. Is the there a way to mix any of the protocol/fungus killing stuff.. As there is a LOT of stuff w/ liquid to take!!

You can mx them in the following ways:

Borax can be mixed with any of the alkalizing remedies.

Drops of Lugols Iodine can be mixed, alone, with a solution Vitamin C.

Hydrogen Peroxide can be mixed with any of the alakalizing remedies without problems.

Always mix the Methylene Blue (if you decide to use it) with a solution of Vitamin C.

The Liver Support Protocols are normally taken all together just before or after mealtimes.

The niacin(or niacinamide) and B50 complex should also be taken at mealtimes together with the Liver protocol. Niacin works synergistically with both B50 complex and ALA for improved effect. ALA was once also regarded as part of the B Vitamins (as thioctic acid)

For more on this see Ted's List here: Remedy Combinations on EC

3. Isn't fungus/yeast always mutating or resistant? So.. Doesnt the protocol have to change every 5 days (so I hear)?

Both Iodine and Hydrogen Peroxide kill pathogens very quickly. These anti-pathogen nutrients work completely differently to antibiotics, they kill the pathogens -- including yeast/fungus -- very fast so no chance or opportunity for them to breed in resistance to these chemicals.

The five days on and two days off regimen is up to you.

For borax particularly -- the borax water must always be taken on a 5 days on, 2 days off basis.

4. Is taking a good probiotic ok? 5. Fermented foods ( Ive been hearing great stuff about it.. Trillions of good bacteria! )..

I would wait at least until you've been on the anti-candida protocol for a month before you take probiotics or pre-biotics because, initially, there may be alot of toxins from heavy metals as well as fungal die-off poisons that will be dumped into the intestines first. This is not beneficial for promoting good bacteria in the gut and which may take a little while to subside. But when the Herxheimer and detoxing effects eventually diminish and the intestines are clear of toxins then that would be the best time to start take the probiotics/prebiotics.

5. Will the fungus-killing stuff like borox and the MB kill GOOD bacteria?

I initially used both borax and MB as well as coconut oil for my own candida problems. Within two weeks my long term constipation problems reverted to normal dark brown healthy stools(from hard pale yellow stools). So obviously, this protocol was also beneficial for my own gut bacteria.

6. What about ingesting essential oils?

I am currently road testing essential pine oil on myself using coconut oil, castor oil or black seed oil as a carrier for the pine oil (all these carrier oils kill candida as well). I can't get the proper spirit of gum turpentine in the Philippines so I bought the essential pine oil (Pinus sylvestris) which is stronger than ordinary gum spirit turpentine instead.

There are two ways to use the pine oil. Either taken mixed with milk or water where the pine oil will be quickly absorbed into the blood from the stomach -- which will kill pathogens in the blood, detox the blood and help to purify the blood due to strong antioxidant action with little effect in the intestines. But if you have candida in the intestines you must take it with a carrier like sugar(see Jennifer Daniels article) or take it with a carrier oil to avoid direct absorption into the blood from the stomach and, instead, the carrier oil helps to carry the pine oil directly into the intestines where it rapidly acts to kill the candida yeast/fungus and other pathogens. I've also read that a man from Germany took pine oil or kerosene for his own candida problem and cured himself quickly of this disease. And when the doc checked his stool -- the candida was gone and healthy gut bacteria were present in the correct amounts. For more on the healing effects of pine oil -- see this research article by Walter Last.

Here is an article which shows how effective pine oil is against pathogens -- including candida:

http://www.imp.lodz.pl/upload/oficyna/artykuly/pdf/full/--04_09_Mercier.pdf

I currently am using 10 drops of this essential pine oil mixed with a teaspoon of carrier oil, twice a week as a preventative and tonic. I worked up to this dose slowly from an initial 2 drop dose.

7. Have you heard of parasites giving off a lot of yeast, or is it the yeast overgrowth that attracts the parasites?

Usually it is the parasite that infects first due to poor diet and poor digestion, with the bacteria and fungal pathogens piggy-backing on the parasites into our bodies. If you confirm a parasite problem then Hulda Clark's Parasite Protocol -- consisting of Wormwood, Cloves and Black Walnut extract -- is one of the best. This protocol also helps to kill fungus/yeast as well.

8. Isn't it possible to just get rid of parasites by eating REALLY good organic, alkaline, raw foods... Detoxing the kidneys, liver, colon, and blood... And stay on that for awhile? Won't they just 'leave'?

You might be able to get rid of some of your problems through diet but I think a multi-protocol approach that directly attacks the candida and all other bacterial co-infections, disrupts biofilms, detoxes the body andneutralizes mycotoxins, helps support the immune system and the liver together with a good healthy diet will stand a much better chance of being successful.

Many people with candida and other associated pathogen problems or bacterial co-infections very wrongly assume that if they can get rid of candida from their intestines then they will be cured. But candida is a dimorphic organism that can exist as both a yeast or a fungus -- two totally different biological forms of candida that have completely different structural, behavioural and locational forms. The yeast form is a saprophytic feeder -- it only feeds off dead organic matter but the fungal form is a proper parasite that feeds off the host itself. So if you have the fungal form -- this means that the fungal spores will have not only infected your intestines together with the yeast form but they will also be widely disseminated throughout your body -- fully capable of infecting the blood, tissues and organs with the fungal form of candida. So, if you have both the fungal form together with the yeast form of candida then this is particularly difficult to cure unless you use a sensible and wide ranging anti-candida protocol, including a good diet, that not only acts in your intestines but sufficiently acts throughout your body as well as acting to kill both the yeast and fungal forms of candida as well as killing all other bacterial co-infections which might also be involved. So this makes both the yeast and fungal forms of candida together with all other involved co-infections, extremely difficult to eradicate. To believe that candidiasis -- systemic candida -- is as easy to cure as the common cold is therefore a grave mistake.

Most people use the wrong approach or strategy to get rid of candida because they think its a simple disease or they think they are only infected with just the yeast form of candida or they think the problem is just in their intestines. Wrong thinking. In such cases, when people use anti-candida strategies that are too simplistic, ineffective or inappropriate -- what normally happens is that the candida may go away for awhile but it always comes back with a vengeance again and again. I have read this so many times on EC and on many other health blogs too.

Replied by Shelly
Chicago, Il
04/24/2013

Hey Bill... More questions for you.. Sorry! I like to probe... it makes me more at peace! ;)

1. Is xylitol ok? Its in my liquid multi, cal/mag, and b-complex... its 3g of carbs per serving of each.
2. Will adding some antifungal herbs/teas to the regime, or rotating the pau d'arco tea be beneficial? I dont think my body is responding to the tea anymore.
3. Recently Ive been getting numbness in my feet and hands, esp during the night.. And tingling. I awoke in the morning 4 days ago, with a sharp needle-like pain in one place, and its been 4 days... Hasn't gone... Kinda hurts when I touch it. What could this be?
4. Good lab for parasite testing?? I felt FINE for a few weeks.. Then yesterday, out of nowhere, while ont he diet and protocol, I just felt "sick" again. Slightly feverish.. And malaise. My colon was doing something.. Thought I was gonna have the runs.. still feeling sick...=/ Does yeast stay undetected then show up or is this more parasite-like?
5. Hot peppers/spices...help with yeast/fungus/parsites?
6. What are mycotoxins?
7. What are mycobacteria?
8. Is MB safe to take everyday?
9. Does yeast cause palpatations/high bp? I used to get that a lot last yr.. and recently, a little bit.
10. Is pre-eclampsia related to fungal overgrowth? Thats what I had when I was pregnant.. or is it liver related?
11. What is the cause of IC? I want my bladder healed! Lots of white stuff coming out when I pee...=/
12. Lastly, can fungus/yeast be spread to others?

Thanks again for your time....=)!!

Replied by Shelly
Chicago, Il
05/04/2013

Just an update with me (and to you, Bill, a few more questions.. When you get the time??)... I seem to be doing better energy-wise, but am not taking all the protocol things. I had waaaay too much die-off. I also, am afraid of losing all my good bacteria. Is this an issue? Will the protocol cause me to lose some or all of it? Taking the probiotics from my ND seem to help a lot.. And I stopped feeling like my blood was full of yeast, right when I started to juice ( I have a really good juicer! ). I only juice: cucumbers, celery, lemons, kale, lettuce, a little carrot/beet, ginger, parsley, cilantro, and tumeric. I noticed much imporovement after juicing, and drink about 30 oz/day split up into 3x/day before meals. My questions:

1. Can juicing replace the alkalizing (BS & lemon)?? I feel its helping me much, and figure it has a whole lemon in it tons of enzymes & chlorophyll.. AND my TEETH are getting really sensitive to the lemon/acv!!! I have 2 teeth that are decaying as well.. so have to monitor this!!

2. I bought the Niacin (flush) vitamin in 1000mgs... And take that with my dinner... I cant really split it up. Is this problematic? I feel like this is whats causing the small "pinch/needle-like" feelings I get that linger.. I have about 4 of them now.

3. Instead of taking all these supplements, which I cant afford all the time, esp the ALA ($$$!! ), is there a way to get it in food???

4. My hair is STILL not back to what it should be, after falling out.. The lugols helped once I started taking it, but its still thin, esp in the front. I used to have THICK curly hair. Ive lost some curl, too =( Any suggestions about growing back hair! ?

5. Ive been getting more & more spider viens!! What is the cause! ? How do I make these STOP and REVERSE! ? Im 27!!! Oy.

6. Hormones. I need to balance my hormones. I cant tolerate heat very well... I get SO HOT at night! Also, libido is very low.. And still low energy. =( Ive been taking maca.. And the lugols iodine.. Anything else?

Thanks thanks thanks!!!!!!!!!!!!

Replied by Bill
San Fernando, Philippines
05/05/2013

Hi Shelly... The best time to take probiotics is after you have detoxed heavy metals and poisons and your body is clear. Once these poisons are eradicated from your intestines and your body then probioics will have a much more beneficial effect. Currently, all sorts of poisons, candida toxins and heavy metals are being dumped into your intestines so probiotics will not be effective because of these poisons in your intestines. Probiotics will, therefore not be so helpful until these poisons are completely eradicated from the body. Also, taking probiotics now may cause further die-off and or digestive problems when taken too early.

In answer to your questions:

1. Can juicing replace the alkalizing (BS & lemon)?? I feel its helping me much, and figure it has a whole lemon in it tons of enzymes & chlorophyll.. AND my TEETH are getting really sensitive to the lemon/acv!!! I have 2 teeth that are decaying as well.. So have to monitor this!!

Take the lemon/acv mixed with sodium bicarbonate as advised by Ted in his Alkalizing Remedies. Doing this helps you to avoid acid -- which, when combined with an acid food diet, is what is destroying your teeth. Bacteria can't eat tooth calcium, acid is what causes teeth to decay. I would continue both with the juicing but still take both the Sodium Bicarb plus water as well as take the alkaline form of lemon/ACV remedies as recommended by Ted. Also, I would stop adding lemon(citric acid) to your juicing to avoid the acid form. Juicing will certainly help to provide minerals and vitamins for the body and it is really up to you whether want to do this. The dosages of vitamins and minerals that I recommend in the protocol are very specific - particularly vitamin c, niacin, B vitamins, iodine, magnesium, alkalizing etc and are much higher orthomolecular dosages that would be well nigh impossible to achieve through diet.

2. I bought the Niacin (flush) vitamin in 1000mgs... And take that with my dinner... I cant really split it up. Is this problematic? I feel like this is whats causing the small "pinch/needle-like" feelings I get that linger.. I have about 4 of them now.

You can take niacin with meals -- this lowers the flush effect. But now, I tend to take 1000 mgs niacin 3 times a day but I take an aspirin dissolved in water twenty minutes before I take the niacin. Aspirin also opens up the blood vessels and so there is no flushing effect from the niacin when you take it after taking the aspirin. Magnesium Oil (magnesium chloride in water) - in larger dose -- with water, when taken before niacin, also helps to prevent or reduce the niacin flush for the same reasons. Taking niacin this way, outside mealtimes, also ensures that more niacin is absorbed into the body than if it is taken at mealtimes.

3. Instead of taking all these supplements, which I cant afford all the time, esp the ALA ($$$!! ), is there a way to get it in food???

Supplements, although not ideal, do allow you too regulate dosage amounts more precisely. If you tried to get these same orthomolecular dosage amounts through eating food, then these dosage amounts would be hit and miss -- not accurate. I am very suspicious of all food now -- even organic food is suspect in my own opinion.

4. My hair is STILL not back to what it should be, after falling out.. The lugols helped once I started taking it, but its still thin, esp in the front. I used to have THICK curly hair. Ive lost some curl, too =( Any suggestions about growing back hair! ?

Loss of hair can be caused for many reasons - the favourite being that candida fungus is attacking your scalp causing your hair to fall out. But hair loss can also be caused by low thyriod as well (also as a consequence of candida infections). If the outer rim of your eyebrows are hairless and your eyebrows appear too short in length then this may indicate that you may well have low thyroid as well as a fungal problem. The anti-candida protocol should both help to both kill the scalp candida as well as help to normalize your thyroid.

You can try topical remdeys like 5 drops of lavendar oil mixed with a teaspoon of VCO rubbed into the scalp. You can also try borax with 3% hydrogen peroxide in water left on your scalp overnight. But if none of these topical remedies work then your scalp infection has arisen from the candida infection in your blood and not from just an infection on the skin so that is why topical remedies won't cure it. I had tinea cruris or jock itch when I had systemic candida and I could not get rid of this fungal problem until after I got rid of my systemic candida(candida in the blood). Therefore curing this problem may take some time, so please be patient.

5. Ive been getting more & more spider viens!! What is the cause! ? How do I make these STOP and REVERSE! ? Im 27!!! Oy.

Taking protease enzymes(enzymes that digest dead organic proteins) in larger amounts helps to digest blockages in veins and capillaries. At the moment, I am taking pancreatic enzymes with added bromelain and papain enzymes twice a day (2 X 900 mgs doses) outsode mealtimes as a regular detox procedure. Protease enzymes are not toxic or poisonous. In Dr Gonazalez's Metabolic Protocol for cancer -- he recommends a daily dosage of between 130 -- 160 pancreatic enzyme tablets per day in his protocol. The pancreatc enzymes help to remove the dead organic proteins that may be blocking the capillaries causing swelling and spider veins. Using a 70% solution of DMSO topically (with aloe vera oil) will also help to dissolve the blockages in the capillaries. MSM, supplemented at 2,000mgs to 6,000 mgs a day should also help to clear spider veins. Avoid calcium or dairy in your diet -- as advised in the anti-candida protocol.

6. Hormones. I need to balance my hormones. I cant tolerate heat very well... I get SO HOT at night! Also, libido is very low. And still low energy. =( Ive been taking maca.. And the lugols iodine.. Anything else?

When you have low energy and a weakened immune system, then generally a weakened libido is the result. Again, you need to get rid of the candida, which is continually weakening your immune system with its own myctoxins, as well as build up the body with healthy nutrients. Supplementing borax and iodine as well as a proper anti-candida diet will greatly help to stabilize and balance your hormones(as advised in the anti-candida protocol).

An intolerance to heat would also seem to indicate a thyroid problem. To check if you have a thyroid problem, on waking up first thing in the morning you should use a basal thermometer to check underarm whether your body temperature is too high or too low. If your temperature is not 98.6°F then you probably have a thyroid problem.

Replied by Kt
the USA
05/14/2013

Hi Shelly, I'm only posting this because you said you wanted more babies and would probably prefer to breast-feed. I worked full time until the day I delivered my first (left work early about 2 PM and had her at 9PM). I was told longer I breast-fed the better so when I went back to work I expressed during my breaks and at lunch so I could keep the baby on breast milk for a year. When my milk supply started to decrease, the nurse practitioner suggested pumping more more. I asked my immediate supervisor if I gave up my breaks and lunch (I would eat at my desk) could I pump every two hours. He approved it but continuously harassed me by asking me to give him the times I would be "doing that".

I kept her on breast milk for a year, got pregnant the next month (I was thirty-six and my clock was running out. I felt she had to have a sibling) then I was set up and terminated when I was five months pregnant with my second child for frequently being away from my desk and a decline in performance. DUH!!

The point I was trying to make was pumping more and drinking gallons of water kept up my milk supply even though working full-time and being harassed on the job. I drank the chlorinated city water and never had a problem with yeast or any of the multiple problems you shared. I drank water after every meal and after every time I pumped. Hope this gives you some hope! Where there is a will there is a way.

Replied by Shelly
Chicago, Il, United States
07/01/2013

Update with me....

So lately, I've been feeling unusually strange. I have new symptoms, and am like "what the heck is going on with me!!! ". I'm actually kind of scared. Before I make a big deal, I thought that others may be dealing with the same. So... I still have the IBS (now, moreso constipation-like, but pretty regular with the candida diet - 2-3x/day. normal looking mostly), and the bladder issues (IC). I have some nausea here and there... And now my joints are starting to hurt, in my hands and arms. I also get tingling/numbness in my extremities. that come and go. and my arms/legs/feet/butt fall asleep easily if I lay down/sit a certain way. I sometimes even feel a overall 'buzzing' feeling in my entire body. Like in my nerves. The tingling & numbness bothers me the most. And is very concerning. It is def nerve/circulatory related, IMO. I dont like that my joints and back are hurting (I've had back issues since I was 14, and Im 27). My head has been itching a lot lately, too... Which hasnt happened before. I looked and theres nothing there, though. I still have low-grade yeast infections, and having relations is pretty painful. =( I am SO sick os being sick! Gosh. What is going on!!!! Tired of spending all my $$ on supplements and vitamins that dont seem to help much. I want answers. I want my body back! Im only 27, and Ive been like this for 14 months now! This is ridiculous. I am waiting on a parasitology test from AZ (a well-known expert) to see if there are parasites contributing to this issue, but my question is- does yeast really cause ALL THESE SYMPTOMS! ? I feel like theres a lot more going on... And how did I get to be this bad?? I ate organic & ran 15 miles/week for the past 5 yrs! I dont even know what tests to do anymore, which ones are accurate, what to take, how much to take, what to think... Lord Jesus, help me!

Replied by Kt
Usa
07/01/2013

Hi Shelly... I feel you could be taking too many supplements/vitamins that could be countering each other or you are having reactions to the binders and/or fillers especially if they contain aspartame. The binders and/or fillers probably come from plants that have been genetically modified... (GMO). It appears you are taking stuff to get well but you are getting worse. All of our food has been tainted. The animals we eat or get milk and eggs from are being fed GMO grains and grasses. Our fruits and vegetables have been engineered to last longer. This is harder to digest.

The only way to find out if this is what is happening to you is to stop all of your supplements and eat the foods that supply the necessary vitamins and minerals you need. Don't eat raw fruits and vegetables. Cook them until tender so they are easier to digest and you are able to get the nutrients from them instead of just "passing through" your body. Blackstrap Molasses has the B-vitamins you need and is a good source of other nutrients. Get the frozen "country" orange juice concentrate for your Vit C.

I get up very early and right now I'm really tired but I wanted to reply to you... I hope I am making sense to you. It may take awhile to detox from the supplement/vitamin ingredients that could be making you feel so bad. The symptoms you described are what I felt when I was drinking aspartame sweetened drinks and taking vitamins that I thought I needed.

Get clean first, then if you find you are low in something add it back into your diet. You could be taking too much of something. The toxic effects of some vitamins are the same symptoms as a deficiency.

Replied by Pbird
Everett, Wa, Usa
07/02/2013

Shelly, your mentioning of a buzzing feeling reminded me of something. I have heard that in descriptions of MS. I don't wish to frighten you or something but its something to get checked.

Maybe you are just really tired though. Tired is awful.

Replied by Timh
Louisville, Ky, Usa
07/02/2013
2114 posts

Shelly: What to do when you don't know what to do? And all this information, and which is disinformation?

You must adopt a method, some path toward which at some point things begin making sense.

With all the complexity of the human anatomy and pathology, one must regress back to a textbook primary understanding. Short of going to pre-med school, I would very strongly recommend Dr Murray and Pizzorno's book The Encyclopedia Of Natural Medicine 2nd (maybe a 3rd) edition. The book is divided into sections, the first is this simplification method we need, the major body systems: Circulatory, Digestive, Immune, Detoxification, and Endocrine. Other section includes all the major illnesses affecting people.

Hope this helps.

Replied by Shelly
Chicago, Il
07/02/2013

No... Its not the supplements. When adding them in, I feel better (somewhat). If I dont take my lugols iodine, my hair starts falling out again. I know I have a hormonal imbalance. As far as diet, I cannot tolerate sugar, which led me to the candida diet. I also pee white stuff ( I have IC) and that plus the IBS and chronic yeast infections make me think its a yeast overgrowth. I just want to know if there is ANY ACCURATE TEST out there to confirm this! And, what doctor to go to! They are so so pricey too, which makes matter more difficult, seeing I dont have much money. I eat organic, all the way. Nothing out of a bag, box, or can. I juice a lot, too. All my supplements are pretty darn good ( my hubby works for a few vitamin companies, that are amazing.. So we know a lot about the supplement 'fillers' binders.. Etc.. ). Thanks for the concerns! I am going to go ahead and start cleansing. I am going on a kidney cleanse soon ( theyve been hurting a little), then coffee enemas and a few liver cleanses.

Replied by Sophie
Dayton, Ohio, Usa
07/02/2013

Have you had your thyroid checked? Many of your symptoms sound like a hypothyroid, especially the tingling hands/feet. Do you find you are often cold, or very sensitive to temperature? Ask your doctor for a complete thyroid panel, not just TSH - you need T4, T3, reverse T3 and thyroid antibodies.

It may be worth while to have a urine hormone analysis as well. Often it's not just the thyroid that is out of balance, but several hormones at the same time. Blood analysis is not sufficient, you really need to have a urine analysis. If your doctor won't order the test (not unusual! ) find an independent bioidentical hormone replacement clinic. You can have the testing done there. Your insurance may cover the test, if not it is usually around $300 to test all your hormones.

Good luck! I'm going through something very similar, and I wish you the best!

Replied by Kt
The Usa
07/02/2013

Parasites could be a reality so you might want to add garlic and onions (not the sweet ones) to your food. I have read that you want to make your body uninhabitable to the critters. I can't get my hands on my nutrition book this instant but I think cloves, oregano and St. Johnn's Wort are listed.

Replied by Bill
San Fernando, Philippines
07/03/2013

Hi Shelley... Perhaps another useful thing you could do is to contact Dr David Brownstein, who lives and works in West Bloomfield in Michigan -- quite close to where you live. He is a certified doctor and naturopath. Here is the address of his clinic:

The Center for Holistic Medicine
5821 W. Maple Rd., Ste 192
West Bloomfield, MI 48322
Tel: (248) 851-1600
Website: http://www.drbrownstein.com/

Dr Brownstein has written many well-known books on iodine, fibromylalgia, bio-identical hormones, sea salt, gluten, allergies and vitamins.

I'm sure that Dr Brownstein will be able to help you more to resolve all your current issues which seem to be a mixture of problems that includes fungal and bacterial infections, hormone imbalance, toxins from candida and possibly both thyroid and adrenal insufficiency. Dr Brownstein will know exactly what tests you must take -- he is a very knowledgeable naturopathic doctor whose approach to healing is quite different to most regular medical doctors.

Replied by Shelly
Il, United States
08/07/2013

So an update with me and my problems! Ha! I had a test done 5 weeks ago.. Parasitology/bacteriology/yeast (samples and swab) by a VERY good lab in AZ. Here are my results:

Candida. Candida dividing. Undigested tissue. Undigested food. Mucus. White blood cells. Fatty acid crystals. Starch granules. Moderate amount of bacteria: E. Coli & Klebsiella sp. Pollen. Epithelial cells (squamous & columnar). Charcot-Leyden crystals *COULD be an indicator of E. Histolytica... and no other pathogens found. SO! Whats next? I dont know! I need to contact my ND next... I am hoping she doesnt put me on a bunch of expensive pills.

For the record, I am on Teds/Bills candida protocol. I eat ONLY organic. Jog 2 miles 3x/week ( If I can! ), drink LOTS of distilled water w/ minerals.. Take a good liquid multi.. LOTS of garlic.. Coconut oil.. green juice (32 oz/day). I also take some probiotics once before breakfast, found at the health food store. I make a coconut milk/vegan protein shake when needed. My tingling hands/feet and extreme tiredness/lethargy are the most concerning. NO MORE yeast infestions, though =) Also.. I am half way through a heavy metal cleanse.. I think its taking out some stuff, because I feel a bit different, and my IC is acting up.

I want to do hair mineral analysis and blood work. Any good suggestions anyone for this? What tests to take? Which ones are accurate? I dont want to waste ANY MORE money!


Shifra

Posted by Connie (Slc, Ut) on 08/01/2011

Hi Shifra ; I understand the pain you are having. It truly can make all life functions become impossible. I have tried so very many practices, especially dietary ones for pain, and while I fully support a nutrient dense diet including certain superfoods , made from scratch broths, and naturally fermented foods; I found that I was not recovering health without supplementation of B-12 (methylcobalamin). Without this supplement, I would be diapered in a wheelchair, with little of my 5 basic senses left. I would have no feeling in many areas of my body, and excruciating pain everywhere else. I'm sorry to put this so graphically, but I feel I must.

Now, the B12 will help most with pain, but it will take many months for this. Some places that are numb will begin to tingle as feeling returns. These areas will also become sensitive, temporarily, and some fleeting pain will be felt. I have found that increasing potassium also helps pain. Again, I fully support that one should try to get it in their diet as much as possible, but, I also supplement potassium. It also helps moods as healing progresses. I mix a powder of potassium gluconate, 250 mg. , into about 6 oz. of water. This can be taken once an hour for pain. I admit that sometimes I take 500 mg. in this way, but I do not recommend taking any more that this as a supplement, because side effects may occur that would be antithetical to healing. With food and vegetable juices, one can take many more mgs. of potassium than that, unless sodium is low. If that is the case, then I recommend adding sea salt to any food or supplement that may have too high a ratio of potassium to sodium and chloride. ( I think that may be why people may have a "detox". ) I have had pretty good results with amino acids such as tryptophan, and tyrosine. I have also had very good results with Peppermint oil, oil of Oregano, and DMSO. I sometimes take small amounts of them internally, but mostly transdermally. Someone may scold me, but I do put a rather heavy coat of peppermint oil on painful areas. Maybe these suggestions will allay pain until the B-12 heals it.


Posted by Shifra (Brookline, Ma) on 07/30/2011

Hi,

I really need help. I am in excruciating pain almost all the time, mainly in my neck and shoulders, but also on the sides of my stomach and lower back. the pain is just under my skin, and feels gravelly, like there are granules in there, and some hard stuff that feels like shards of glass.

Nothing seems to help, not acupunture, (which I find excruciating adn ineffective), or chiro, or massage-it inflames it more etc. The pain is so bad, I find myself not wanting to live-I'm not sucidal.

also I am so tired!! I have had chronic fatigue FOR a long time, but now, I can barely drag myself around, I want to sleep all the time, but I have lots of trouble sleeping. I feel groggy and almost drunk tho I never drink booze.

Also, my feet are kind of numb as are my lower legs. I have all kinds of gastric distress-gas, bloating, belching farting reflux, irritable colon, spittng up, ocassinal nausea

I am totally hooked on food, especailly sugar, carbs and salty stuff, I cant stop. Until very recently I was too thin, but now I am starting to pack on the pounds.

I also feel depressed, enraged, resentful, afraid and terribly sad, negative, I cant remember stuff and have trouble learning new things.

By far, the worst is the pain and the fatigue. I dont think the Apple Cider Vinegar would be good for me as I have candida and vinegar makes me feel awful.

Any help would be greatly apprecaited,

shifra

Replied by Mmsg
Somewhere, Europe
07/31/2011

Try starting your "wellness journey" with a small lick of Celtic Sea Salt every time you drink a glass of water (which should be more times a day than you do now, but don't overdo it).

Replied by Lanos
Socalif, Usa
07/31/2011

SHIFRA.. I am sorry you are in so much pain.. However your life is precious, and I'll bet you have some special qualities about yourself that bring joy to others.. Don't throw your life away because of pain.. Get help from somewhere, I could suggest you seek a friend, a relative, or a spiritual route that might help you move in the right direction.. Remember you are loved by God. Love yourself. I"ll say a prayer for you. Keep your chin up.. This site has some info on dealing with diet and pain issues.

Replied by Shifra
Brookline, Ma
07/31/2011

Hi, thanks for the friendly response. I have not given up nor do I plan to to die, but I need help for the pain. If you know of what I could do please let me know.

Replied by Shifra
Brookline, Ma
07/31/2011

Hi,

thanks for responding and I will take your suggestions, but it is the pain esp in my necka and shouders that is the worst symptom. I am in so much pain. do you know what I cud do for the pain.

I feel kind of drunk but my gait is not drunken. I feel like my balance is way off but it is not visible.

Thanks shifra

Replied by Debbie
Melbourne, Australia
07/31/2011

If I had multiple symptoms like you do I would be immediately taking sugar/processed foods out of the diet. No processed salt, only use Unrefined sea salt. Go on a green juice fast; wheatgrass included as well as Aloe Vera. I would be taking spirulina and chlorella as well as Chlorophyl. These will all detox the body. I would also be taking mega doses (maybe start off small) of Vitamin C. Also some Essential Fatty Acids (cod liver oil.. fermented is best).

Added to the above I would be taking ACV (1-2 tablespoons) in 8oz water per day.

Coconut oil

Raw honey

I would stay away from synthetic vitamins and try to stick with the "super foods".

Chicken broth is great for vitamins and minerals as well.

Stay away from diet drinks and MSG. Diet drinks usually contain aspartame which is poison to our bodies.

They say that health begins in the gut/digestion. I would be looking at my diet.

Would be helpful to know what your diet is like?

Replied by Maria
Gippsland, Australia
08/01/2011

Hi Shifra, To help break the pain cycle you could try dl-phenylalanine. It may take three to four weeks to start to see results but it really can help. For its theraputic benefits it must be taken on an empty stomache and wait 30 mins after taking it before eating. You can take it with a little juice or water. I found I needed to take it first thing in the morning and also late afternoon (I had been in servere pain for many years) after the pain was not noticable I continued for a while with only the am dose. Also some of the alkalizing remedies may help you with the pain, particularly muscle pain. With the fatigue as well it is hard to do much, but once the pain cycle is broken it is easier and you can think clearer. All the best, Maria

Replied by Shifra
Brookline, Ma
08/01/2011

hi, thanks for the advice. Are there any countra indications for taking dl-phenylalanine, I mean, is it a problem to take if you have certain medical condittions and also I take trazadone, nerontin, and effexor -which I am slowing coming off of- any bad interactions with thsoe meds as far as anynone knows?

Thanks, shifra

Replied by Rachel
Reinholds, Pa
08/01/2011

Did you consider testing for Lyme?

You may have a B defieciency like someone said. You should change your diet anyway. But many of your symptoms sound Lyme-like.

Replied by Maria
Gippsland, Australia
08/02/2011

Shifra, Most of your symtoms could be side effects of the three meds you listed, unless you had all of the symptoms before you started taking them. I'm sure you realize that you need to be careful in weaning yourself off them especially if the neurontin was prescribed for seizures.

Neurontin's side effects - numbness of an arm or legs; clumsiness; dizziness; tiredness; weight gain; back pain.

Neurontin is sometimes used for Fibromyalgia, although when you look at its list of side effects maybe it can make it worse. Alpha lipoic acid can be a good alternative for Neurontin if it's for Fibromyalgia or diabetic issues. Scroll down to #5 at http://www.stopagingnow.com/liveinthenow/article/10-drugs-with-great-natural-alternatives

One of Effexor's side effects is a state of near sleep.

Trazodone's side effects include; drowsiness; mood swings; memory problems.

There can also be interreactions between effexor and trazodone when taken together because they both increase seratonin.

Here is a link for possible interactions with phenylalanine. http://mental-health.emedtv.com/phenylalanine/phenylalanine-drug-interactions.html

Replied by Sue Ellen
Los Angeles, Ca
08/02/2011

Your symptoms are textbook gout symptoms. Gout is when your body over produces uric acid and the excess forms crystals between your joints and under the skin. A diet high in trans fats, sugar and starches is very acid forming and will trigger gout in those who are predisposed to it as well as creating a climate where yeast and fungus thrive.

Eliminating sugar, starch and trans fats is a must for you to start to alkalize your system which should help considerably. In addition, drinking pitcher of water with a 1/2 cup of lemon juice and a 1/2 tsp of baking soda and taking a tsp of virgin coconut oil 4 times a day will relieve gout symptoms if it has not progressed to foar and should clear up the candida.

Replied by Oscar
Syracuse, New York
08/02/2011

I also live in considerable constant pain resulting from an old, but severe gunshot wound to my abdomen that blew my right kidney and most of my liver and half my large intestine out my back. At times the pain seems very bad to me. The one thing that really does help is to cry like a baby for as long as I feel like it. This really does work. Sometimes I feel pretty good for 2 or 3 days after a good cry. I guess you could call it CRY BABY THERAPY. It does work, at least for me....Oscar

Replied by John
Plymouth, Ma.
08/02/2011

Hi Oscar,

There is a product out called "Go Out Plex. " It's made out of cherries... It is great for pain and inflamation... It's natural and not very expensive... Give it a try if your so inclined...

Good luck,

John from Plymouth

Replied by Shifra
Brookline, Ma
08/03/2011

hi,

I am going to check out the go out flex, thanks. I wonder if anyone has any ideas of what my condition may be- I have intense pain in my neck adn shoulders and also in back and sidea of my tummy. I feel crystaline stuff under my skin, kind so gravelliy and hard, and like under my skin is not smoothe, like it used to be this is most everywher under my skin- somenone said it might be gout, but its not in my toes or hands.

Also I am bone tired, sluggish with bad digestion adn numbness in legs and feet. Does anything dissolve the crystals? Also is anything good for suagar cravings- I am out of control with sugar and carbs and salt

Thanks

Replied by Mmsg
Somewhere, Europe
08/04/2011

You might try ACV for cravings and stomach issues (i have found wine vinegar to do the same), but, contrary to what many are doing here: start small!!! I barely take 1/2 dropperful twice a day (with or without a pinch of baking soda) in a glass of water, and it seems to be helping for a number of things.


Shybimbette

Posted by Shybimbette (Evanston, Wy, Usa) on 11/27/2011

I'm just wondering about something that is on my foot. It started out months ago about the size of a head of a pencil. Looked at first like just a shoe rub. Now it's about the size of a quarter. And looks like a metal allergy. And it seems to come up when I get a sweet tooth. I've seen diabetic leg ulcers, and pictures of diabetic foot ulcers, and this doesn't look like that. When I put a bandage soaked with ACV on it overnight, it seems to subside, not heal, but subside, and when it does, I end up forgetting to follow through with the ACV on it at night. And then the next sweet tooth brings it back bigger.

Any ideas on what it could be, and how to get rid of it? I understand now, to stop the sweet tooth crap, I do ACV and water twice daily. Sometimes I oil pull, but it hasn't become a habit yet. Any input would be appreciated.



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