I have bean extremely unwell for a couple of years now, I have had bowel and lung infection which was cured with antibiotics, but now nothing is working. I am suffering with severe pain right shoulder blade shoulder legs feeling like passing out some kind of infection we think. Please help me as the hospitals just keep sending me home saying my bloods are normal, I feel this is my last hope. Please help me...
I have been sick for 6 years and I am getting worse. I con not eat, Walk, Stand, or sit up do to unexplained pain. The docs just take some blood work and say don't know what to tell you. I know I had a bowel blockage for 5 of those years. I know some if not all has passed. I seem just flooded with this yellow fluid substance. My urine has extremely way to much pigment. No I'm not dehydrated it isn't dark or amber. The same exact color and tone in on my stool. I also can only eat about once a day and have extreme bone pain that I take morphine and codeine for. Any help would be awesome. thanks
I have had a few things occur concerning my health and I wanted to share to see if anyone can help, its been really worrying me.
Last at Christmas I came down with a cough and cold and then the day after new year in January 2011 I came down with acute sinusitis and pain in the legs, then my stomach was upset and I felt sick and could not eat. I then began to notice my eyes go yellow and my skin was itching I then had jaundice.
This is the point that I went to a doctor and had blood tests.The tests came back in Jan 2011 with high liver enzymes pointing to a hepatitis of some sort, the tests for hepatitis B and C were negative and for hepatitis caused by a virus ( hepatitis A ) the results were negative for an active virus ( present in the body ) but the blood tests were positive for IGG which shows that I have had hepatitis A and was in the recovery stage.
It all pointed to the hep A at this stage. I also had a scan and they said there was nothing there only the liver and spleen a little enlarged due to an infection possibly we thought related to the hepatitis A virus? I then began to get better slowly thoughout Feb, March and April. The eyes and skin recovering and the yellow going.
Anyway I had more blood tests again in June and July so to monitor my recovery ( assuming I was recovering from hepatitis A which they say you recover from in 3-9 months ) and although the readings were going down they were still quite high in June and July, I was still getting tired with little night low grade fevers here and there but was functioning ok with all my duties.
I also, in July went to see a hepatic specialist. However, she was quite negative after seeing the blood results saying I may have autoimmune hepatitis and it was not Hepatitis A virus as you recovery quickly within 3 months with blood values dropping quickly .. She then said to have tests on the immune system, which I did. The results came back mainly negative except for one- ANA necleo which was 1.329 which another medical person said not to worry about.
I then, this December 2011, went to have another blood test to see how it was looking as I have been having low grade fevers in the early morning between 4-6am and sometimes aching muscles in the legs etc. Anyway the reading this December said that the enzymes related to the liver were still high ( however they were lower than the blood test readings in June and july 2011 ) they were going down gradually but not back to normal. The doctor then said to have another blood test to see for any special viruses or bacterias that could be causing the infection and most of these were negative except it showed I had had in the past the Epstein barr virus.The doctor at the blood test place then said maybe there was a blockage from gallstones etc. and so we decided to book me in for a complete body scan 3 days ago ( very advanced scan you go in a tube, not nice :( ) After the scan they said no blockages or tumors or growths but the liver and spleen still a little enlarged from a virus maybe or the doctor there said some form of hepatitis.
So we returned yesterday to a visit with the lady Hepatic doctor who looked again at all th blood results and autoimmune blood results and again she said she was 100% convinced I had autoimmune hepatitis and was not recovering from Hepatitis A. It could have been the Hepatitis A that caused some damage and it brought something I already had dormant in my system which is Auto immune hepatitis ( which basically is the immune system attacks cells from another organ such as the liver.. She also said it's genenic but none of my family as I know have it or had it??? She said I need to have a liver biopsy to see the damage and then treatment of steroids ( cortisone ) to help the liver recovery and keep the autoimmune system in remission. I do not really want to take steroids as they have side effects?
Also I am not sure I have autoimmune hepatitis so I am going for a second opinion. Can anyone suggest anything? Is it slow recovery from Hep A as the blood values for the liver are going down or does it suggest autoimmune? Although it all started after a common cough and cold and sinusitis.. Many thanks
i have hives with another symptom. I have swollen fingers and joints that feel broken. Does anyone else have or had this too? in pain now for 4weeks
San Diego, Ca, Usa
I have a feeling of a lump in my throat, also my ears feel clogged. In addition I have a slight burning sensation at the very top of my chest. Two different doctors have found nothing on physical. I have a constant headache and top of neck, under jaw, feels sensitive when I push. Any suggestions on what this could be?
Richardson, Tx, Usa
Was wondering if you could help me find any solutions for getting menstrual-like cramps at he age of 64!
2 weeks ago I awoke in agony in both feet, both ankles and 8 - 10" up both legs. Edema, big red splotches all over my feet, unable to move my toes. Dr took blood test which showed no rheumatoid arthritis, no lupus, no lyme disease and no gout, gave me steroid shot and sent me to a Rheumatologist who I saw today. Neither he nor his partner had ever seen anything like what I am presenting. He had 8 vials of blood drawn and x-rays taken. I go back in 3 weeks. After hours of research on the internet I have not seen one person who has described the same symptoms. Does anyone have an idea what it could be? Can't walk. Dr said bursitis does not have the "skin color change" as he called it. Thank You
San Antonio, Texas, United States
Hi. This is my first time on your web site and find the information on acid reflux very informative. I have been diagnosed with GERD, but I also have a serious problem and I'm wondering if it's related. Over the last 5 months I have had 8 episodes that go as follows. First thing in the morning I will start to feel funny. First, my legs get very weak. Then I get immediate diarrea and extreme nausea follows. I get very light headed. The other interesting fact is that my blood pressure soars. I have to lie down and stay still in order to prevent vomiting. Soon, I start to shake uncontrollably...not from cold but it's like my nerves are over reacting and shaking. Usually it will take 5 or 6 hours for this to subside...then I start with gatorade and soda crackers and slowly improve. My doctor thought perhaps I have a tumor on my adrenal gland that presents these intermittent symptoms and we did a 24 hour urine test. Problem was that it was 3 days after my attack and probably not accurate. I guess you need the urine test while the episode is happening and I haven't been able to do that. My Dr. told me that I could take imodium and benedryl for diarrea and nausea. This does help. I also take anti-anxiety pill which seems to help with the shaking. But I have no diagnosis and I am controlled by the fear that this attack will come on when I am away from home. My doctor prescribed a berium ex-ray which confirmed that I have bad acid reflux...which I already knew. I am scheduled to go to a gastroenterologist and will be having the scope down my throat. My fear is that he will prescribe some rx for the acid reflux and I still will not have a diagnosis on my episodes. Has anyone had similar problems? I have tried to see if certain foods or liquids eaten the night before might be a cause but there does not seem to be any common denominators with each episode. Please, I am so frustrated. Does anyone have any thoughts?
Calgary, Alberta, Canada
Grand Junction, Co
Hi I am Mohammad, 44 years of old male patient is non-diabetic, nor-motensive and currently complaining of severe abdominal pain on & off , too much acid & gas formation, occasional vomiting once pain on and constipation for few months. For this reason last one year I was treated in the hospital for several times as an in-patient and conservative treatment was given at local Canada hospital. I had been suffering from this similar episodic pain since 2011 and also from Last 7 months I developed severe abdominal pain, rigidity and unable to perform daily activities and was admitted in the hospital and seen by Senior Gastroenterologist. Several tests were performed including ultrasound scan, endoscopy, Capsule Enterscopy, single-baloon enteroscopy and showing nothing abnormality. Canada Gastroenterologist suspecting that I am suffering ULCERATIVE COLITIES, I was prescribed prednisolone 20mg for two weeks initially and then tapering doses for six weeks. But my condition is not improving at all rather than deteriorating. MY CURRENT SITUATION ARE FOLLOWINGS ; a). ONCE THE PAIN START MY SMALL BOWEL BECOME VERY HARD AND TOO MUCH PAIN, ALSO INTESTINE, COLON BECOME TOO MUCH PAIN. AND RIGHT AWAY I HAVE TO GO HOSPITAL ADMITTED FOR MIN 7 EACH TIME. b) I CAN'T WALK NORMALLY BECAUSE WHEN I START WALK, I FEEL PAIN SMALL BOWEL AND INTESTINE, COLON. Past Medical History: 1. Abdominal pain since 1985 and treated as peptic ulcer in Bangladesh. 2. Pancreatic stone was diagnosed in 1999 TO 2000 and E R C P was done and stent placed at the same time. 3. In 2000, pancreas was found tortuous and dilated with recurrent pancreatitis and side to side pancreatico jejunostomy was performed on 20th June, 2000. 4. in 2008 I had colonscopy and 4 pcs polyps had been removed. Drug History: ( At present) 1. Prednisolone, 20mg daily 2. Dexesmeprazole 3. Digestive enzyme 2 capsule with food 4. Hydromormorphone, 2mg if severe pain Thanks Mohammed maz112r at live dot com
Fountain Inn, Sc
My son who is now 17 has a mysterious condition that doctors just can't figure out. He was born full term and went home as normal. Five days later back to the hospital and he was diagnosed with sepsis seven days of antibiotics and was released to go home. That was just the start. He was developing normal but a little delayed and was told it was due to the sepsis.
At age two he had a febrile seizure and was diagnosed with pnemonia and from that point on he started to loss miles stones gradually. He was talking and walking now he was walking with assistance and losing his words.
By the age of four he was crawling and not talking. He also was having abnormal movements of his body. He was diagnosed with seizures and put on medication but still having the movements only when he got excited or tried to use his muscles. He was taken off seizure medication two years later. Doctors were still baffled and thought is was the sepsis until his younger brother started having symptoms of the same thing. Now they figure it was genetic. So now all the testing started with all coming back normal but only thing found was the MRI showed lesions in the part of the brain called the Basil Ganglia but still nothing specific that they could diagnose. It presents itself with hearing loss, dystonia type movements, not able to talk walk or control his muscles and he has been the same way since four years of age. They just gave it a generic term for it familia infantile bilaterl stiatal necrosis. Both boys had the same MRI results. His younger brother did not start losing his mile stones until he was 6 years old and unexpectedly passed in 05 at age eight and autopsy could not show any cause of death and brain biopsy didn't show anything.
I was wondering if anyone had any ideas as to something that would help my son to improve or anyone know of someone who has the same condition. Thank you.
Rusteburg, North West South Africa
Up The Creek In, Wv, Usa
Louisville, Ky, Usa
Up The Creek In, Wv, Usa
Some weeks ago there was a plea for a diagnosis in respect of "a clogging sensation in the temples, as if cling-film were tightly wrapped round the head" (though entirely pain free) - a sensation that had already persisted for a number of years. So far as I know the only response was from a fellow-sufferer.
I too am desperate to find the cause of this mysterious malady. Could it be the sinuses? But the sinuses are nowhere near the temples.
Pain-free it may be, but desperately debilitating, and there seems no end in sight. Is there perhaps a newcomer to this site, who missed the first query but who knows the answer?
Fountain Inn, Sc
hi, i have a symptom of throbbing feeling on my chest, I went under twice endoscopy, one time angiogram for my heart and one time esophagus spasm test through my nose.result is nothing until a doctor in turkey told me I have pangastritis.what ever tablets im taking the pain is always there a specialy in the morning after breakfast until around 4 pm.all these started as I was having like stop now order in my chest if I wanted to run, now after 4 years this is where I am/is there anything you may think of? Regards
Fountain Inn, Sc
New York, US
Please help my wife.
For 2 months now (since 15 August 2013) she cannot walk properly. She walks slowly like a hundred year old and she has to hold onto walls and tables. She is only 45 years young with two kids.
For a brief history please read below. Its three pages long.
Please advice weather there is a special doctor who can help her or if natural therapy can help. Where did we go wrong??? I believe she got an infection inside her head between her ears. Please give some time to read her brief story.
Please please please. I feel like im losing her. Our life is a nightmare.
Myria's brief medical history
Since 1985 to today
My wife Myria has had menstrual migraines since she was 17 years old. (For 28 years now) It lasts for three days on one side, before menstrual, and three days on other side, after menstrual. Her migraines stopped only for 9 months when she was pregnant with our first child. On her second pregnancy she had migraines as usual.
For her migraine we visited many-many doctors. Naturopaths, neurologists and others. This year's drugs were amongst others, Tranxene 5 mg 1x1 (Bp), Clonotril 2mg 1x1, Deaxit 1x1 1-1-0, Nimm 1-1-0, Later, Clonotril 2
She stopped taking them since there was no result.
In July 2013 she had an Eye operation to stop wearing eye glasses and embedded eye lenses in the eyes.
15 August 2013 started having Vertigo with vomiting. I took her to a private clinic to a respectable doctor and she was held in for 2 days until her vomiting stopped.
She was given: Betaserc 1x2, Omeprazole 20 1x1, Vertogo-vomex 1x2, Stemetil 5 1x3, Diazepam 5mg ? - 0 – 1, Primperan but no result. Every time she moved she was sick with vomiting. We kept her upright for as long as we could to stop vomiting and the next day we went home. The vertigo was still there.
21 August 2013 Still with vertigo, the ambulance took her to the Emergency room, had a CT – brain scan. We were told the results were ok. They had her on intravenous drugs because she couldn't hold anything in her stomach. Hours later I took her home again.
31 August 2013 again was taken to the emergency with Vertigo and Migraine.
Luckily there was a good E.N.T. doctor on call who had training on Vertigo and after seeing her he said she has Benign Paroxysmal Positional Vertigo.
She was admitted to casualty/ward in hospital.
She had Temperature 36.7 Celsius Pulse 80 Pressure 140/90
Was given N/D 250ML + 1amp Primperan Apstol, Valium 5mg (im), Stemetil 1 (im), LR500ml
31 August 2013 she had a Microbiology/Parasitology test:
pH 5, 0 EB 1015 culture: Microbes isolated – amount: Not important number of microbes.
31 August 2013 Blood test results:
WBC 9.42 (10Ë„3/uL)
RBC 5.26 (10Ë„6/uL)
HGB 14.7 (g/dL)
HCT 43.0 (%)
MCV 81.7 (fL)
MCH 27.9 (pg)
MCHC 34.2 (g/dL)
PLT 179 (10Ë„3/uL)
RDW-SD 41.4 (fL)
RDW-CV 14.0 (%)
PDW 12.0 (fL)
MPV 9.5 (fL)
P-LCR 22.8 (%)
PCT 0.17 (%)
NEUT 5.25 (10Ë„3/uL) 55.8(%)
LYMPH 3.09 (10Ë„3/uL) 32.8(%)
MONO 1.01 + (10Ë„3/uL) 10.7 (%)
EO 0.05 (10Ë„3/uL) 0.5(%)
BASO 0.02 (10Ë„3/uL) 0.2(%)
IG 0.14 (10Ë„3/uL) 1.5(%)
RET 0.91 (%) 0.0479(10Ë„6/uL)
IRF 3.5 (%)
MFR 3.0 (%)
HFR 0.5 (%)
RET-He 24.8 (pg)
Glucose 109 mg/dL (74 -106 )
Urea 38mg/dL (17 - 43)
Creatinin 0.51mg/dL (0.51 -0.95 )
Calcium 9.6mg/dL (8.8 – 10.6)
Total protein 7.3 g/dL (6.6 – 8.3)
Albumen 4g/dL (3.5 – 5.2)
Globain 3.3g/dL (1.4 – 4.8)
Na 137mmol/L (135 - 145)
Kαλλιο 4.94mmol/L (3.50 – 5.00)
LDH (γαλακτικÎ® αφυδρογονÎ¬ση) 322 U/L (208-480)
The hospital E.N.T. doctor wrote on her log book.
Primary Horizontal nystagmus of the 1st degree.
Testing bilateral geotropic nystagmus in testing horizontal semicircular tube Dix. Hallpike (.)
He did a Log-Roll maneuver AP
Recommended Diazepan 8mg IV in a slow outpouring in N/S 500ml.
“Reevaluation on Monday. Recommended neurological evaluation for her migraine attacks”.
31August – 4 Sept 2013 Was kept in hospital for 4 days for Vertigo and vomit.
2 Sept. 2013: E.N.T. Doctor's logbook:
Reevaluation. recession of automatic vertigo without nystagmus.
Did an Eppley maneuver AP great clinical improvement >80%
On migraine attacks, neurologist evaluation needed.
4 Sept. 2013 E.N.T. Doctor's logbook:
improved clinically ... must see a neurologist.
Much improved clinical
Intravenous N/S - N/D 500ml + valium 5mg every 8hours..............1/2 amp diazepan
4 Sept. 2013 for migraine therapy was given Topamax 25mg No 60 0-0-1, 1-0-1, 1-0-2
9 Sept 2013 E.N.T. Doctor's logbook:
Clinical improvement of the rotating element. Instability persists to some extent.
Did a Dix – Hallpike maneuver without nystagmus.
Did a Log-Roll AP & Epley AP. Maneuvers.
Reevaluate in σε 72hours.
13 Sept 2013 E.N.T. doctor logbook: Did 2 Log-Roll & 2 Epley maneuvers.
She was prescribed Zomig for her migraine pain and Topamax 25-0-50 for migraine therapy.
18 Sept 2013 E.N.T. doctor logbook:
Did Epley AP maneuver. Great recession in nystagmus
19 Sept 2013 E.N.T. doctor logbook:
No nystagmus in Dix-Hallpike maneuver of horizontal semicircles. Instability Insists
Romberg (1) to MRI
20 Sept 2013 MRI brain
Conclusion: no intracerebral abnormalities are seen
Diffusion and flair and T1W SE and T2W TSE axial.
Flair sagittal and T2W 3D VISTA of the posterior fossa and T1W TSE axial of the posterior fossa and TIW TSE axial of the posterior fossa after IV contrast administration and T1W SE axial of the whole brain after IV contrast administration
23 Sept 2013 Another E.N.T. doctor did an audiometric test (listening test. She has Hypersensitivity to hearing)
26 Sept 2013 Blood test for: Vitamin B12 271pg/mL (normal 150-1000)
Folic Acid 1.7ng/mL (normal 1.00-24.0)
Was prescribed Topamax 25mg No 180 1-0-2 for migraine therapy.
10 oct 2013 she took an Instrument control balance test (Electronystagmography)
Conclusion: hypo function of the labyrinth. She did not get dizzy at all with the cold water in her ears.
11 Oct 2013 E.N.T. doctor logbook: VNG Hyposensitivity at caloric(?)
The E.N.T. doctor could not accept the results of the test and wants her to take the test again.
15 Oct 2013 Optical fields test (glaucoma threshold)
Results: Left eye with abnormally high sensitivity
Right eye: within normal limits
25 Oct 2013 The Neurologist said the problem is not neurological because the MRI was clean.
The Neurologist prescribed her with Topamac 20-0-50 for migraine therapy. We announced our decision to stop taking this drug for now because one of the side effects is dizziness. And the doctor said ok. It's your choice.
The E.N.T. doctor really spent too much time and helped her a lot too, especially with vertigo that stopped with the different maneuvers. But now he does not want to accept that the labyrinth hypo functions. He wants Myria to redo the Instrument control balance test (Electronystagmography) but with ice water (ice cubes) and not just cold water.
Today she still has:
2. oscillopsia. She cannot walk freely without assistance. She must hold on to somewhere.
3. Blocked ears but also hears noises that finds very loud. Even her own voice, when she talks, sounds very loud.
4. By moving her head (especially up and down) or when walking (very slowly) feels something into her head of which she cannot describe. It feels like there is a spring inside her head and simultaneously pushing her ears out.
5. At night when it's dark and she sleeps, when she turns in bed , she has a feeling inside the head of something like dizziness. She feels that the dizziness comes from inside her head . While she is talking , her ears vibrate. She cannot explain (even though she is very intelligent). There are many things that are strange and cannot explain it. For her to be good and not unstable, she should not speak nor hear anything, nor move.
6. When swallows (perhaps her head moving) her ears again, feel.... she doesn't know ... hears her voice and cannot stand it. It's like, her voice is pushing her ears outwardly and cannot bear it... the migraine off course makes it worse.
Thank you for anything you do.
Amman, Jordan, Jordan
Fountain Inn, Sc
Fountain Inn, Sc
Fountain Inn, Sc
Fountain Inn, Sc
Fountain Inn, Sc
Fountain Inn, Sc
Fountain Inn, Sc
My sister is very ill it's been a month now and is not eating anything because when she tried to eat, she vomits and she is 23 years of age. I think she is poisoned. Now I just want to know what must I do because I have gone to a lot of doctors- they do their tests but nothing has been found.
From The Woods Of, Wv, Usa
To whom it may concern,
I'll try to keep it short, I'm not sure if this is the correct place to ask questions, if not I'm sorry in advance.
Throughout the years I've had really bad anxiety on and off, blank mind, memory loss, I can mostly remember back to middle school being when it started.
After trial and error, with food and diets and all kinds of things, I've recently found that fluorescent lighting causes my hands to turn red and splotchy as well as other undesired affects such as mood swings (mania to depression), clouded thoughts, fleeting thoughts, drastic change in personality and interests, just by being under the light for a mere few seconds.
The rash looks like this,
Around this time my thoughts jumble up, I can't remember what I'm planning on doing and have a hard time focusing on the task at hand, even something as simple as communicating becomes taxing.
My hands are generally not red at all, but all of those red patches suddenly appear and they feel almost swollen as well as the rest of my body. This also affects my ability to sweat, while inflamed I have an extremly hard time sweating even in 120 degree temperature
Once outside in sunlight the redness generally takes 30 minutes to an hour to go away but my thoughts can be messed up for days at a time, and especially my emotions.
If you guys have heard of anything like this please let me know, I can't really pay attention to the mental symptoms because I am living them and when they happen I forget everything up to that point, so I can't even tell EXACTLY what changed, I just know that I feel different suddenly.
Syracuse, New York