I've been using MMS. It saved my life several times. I also have Lyme disease. I used a chelating product made from raw honey, bee pollen and royal jelly and experienced the most remarkable results within a few days. It was like night and day. I am homeless and poor and unable to purchase it so I get raw honey as I can and MMS is awesome and cheap.
I have morgs - and yes all the terrifying symptoms including unexplained bruising that wouldn't go away. I've read most of the posts here and agree that it seems to adapt to treatments. Anyway, I was desperate -had nothing to lose as conventional medicine had failed me miserably (I had gone though all the horrors of being told I was delusional etc); gone through herbal medicines 'routines'... and so I decided to try MMS. It got rid of the bruising almost immediately. I did suffer side effects -vomiting & diarrhea - so as recommended ceased the protocol. It cleared up most symptoms and the only sores I had were on my scalp. I (naturally) had reservations about continuing with MMS. Went back to the diet thingï. And since I was getting some relief from topical antibiotics - started using that on my scalp. Initially it healed the surface sores but I found that the antibiotic cream seemed to actually feed 'something', creating hard lumps under the scalp... Where I believe this 'thing' enters some kind of secondary breeding cycle. I stopped the antibiotics and went back to diet and herbs (hates chilli and cayenne) and topically eucalyptus oil and lavendar oil... Improved to a certain point.. Anyway sick and tired of the whole damn thing, and aware of the success I had with MMS I decided to start the MMS protocol again (and throw away the antibiotic cream)... 1 month later and I think I am so close to beating this thing. Read up on MMS. Do your homework. It's hit and miss - I know how terrifyingly frustrating this thing is - I'm still fearful of 'giving' it to my loved ones. Keep strong everyone. xxx I'll post again in a month or so with an update.
Yes, I have heard of the salt and vitamin C remedy, however, my own personal feedback from the salt and vitamin C remedy creates a lot of problems and symptoms from people who have used it.
The ones that I have most successes with the least problem from my end is the borax and baking soda remedy, plus plenty of magnesium. The worms or tiny insects (that is seen in the microscopes), sometimes with tiny furs, seems to be more peculiarly sensitive with borax than the salt. It alters their ability to reproduce and a die off is quick after only a week, about 90% reduction is seen, while the salt and vitamin C remedy took a lot longer, such as a couple of months.
Thank you so much for your initial email. I wanted to reply and share what I've learned. In my opinion, Morgellon's may likely be caught via a mite vector, but the disease itself is NOT from mites but from a more "worm-like" creature that seems to like living directly under the skin, hence the creepy-crawly feelings, etc. The creature also appears to lower the immune system, making the person vulnerable to a billion other infections/infestations/problems).
This worm/thing is EXTREMELY hardy and is not easy to get rid of, however, it is vulnerable to a few things, particularly the simple "condiment" we know of as SALT.
The following "remedies" are what I've been doing and seems to REALLY help. I thought I'd share in case it might help others. The first two are the most important.
1.) Salt and Vitamin C Protocol:
- 1 mg salt (1 salt tablet, "sodium chloride") per 10 lbs of body weight, not to exceed 18mgs per day), taken three times per day, along with 3,000 mg Vitamin C per day (taking 1,000 mg each time you take your salt tablets).
Both the salt tablets and the Vit C tablets are really inexpensive (you can get salt tablets at your local pharmacy---they are usually $5.00--$7.00 per bottle of 100.
For example, I weigh 120, so I am taking 12 salt tablets per day, though usually I add one or two extra pills in for good measure at night. Drink a full cup of water with your dose, as well as drink a LOT more water throughout the day. The full set of instructions can be found at lymephotos.com where I first read about this.
Whatever these things are, they *hate* salt!!!!
The salt creates quite a die off effect---the first couple weeks in particular will be rough. Most days I woke up feeling like I had the flu, though usually I was able to function okay. There were a few days that were more difficult than others (vomit, diarrhea). All in all, it's tolerable (hey, if they're dying, I'm happy--lol).
Though the die-off will continue, you should notice a very sharp decrease in symptoms after the first couple weeks. The salt protocol should be followed for as long as it takes---usually the length of time it's been since you were first infected, so that you can kill off all new hatchlings.
[Of course, people with high blood pressure will want to approach the salt therapy carefully---please do it only while monitering bp, or checking with your doctors, etc].
2.) Sugar Free Diet:
This diet is the same for parasites, candida, and Lyme Disease, interestingly enough. These things feed off of sugars, therefore sugars must be avoided.
As a natural vegetarian, I find this diet very hard (and thus have gone from 130 to under 120, at 5-8"), but it's invaluable, and I'm just trying to do a better job of eating more even though I don't like the food, so that I don't get too skinny! :o)
The basic jist of the diet is to eat only meats and non-sweet vegetables. No dairy, except for butter and eggs. No fruits or juices. No gluten grains, no breads, no starches (no potatoes, etc). No black tea, but black coffee is okay (and I've noticed that plain green tea seems okay for me) and stevia may be used as a sweetener.
Brown rice is okay, and non-gluten grains like quinoa *may* also be okay. Walnuts are okay, and some people can have almonds and almond butter without a problem, but most other nuts are a no.
If you notice an increase in symptoms after eating any food, then stop eating it. Symptoms can often last for a couple days before dying down, but eventually you'll figure out what you can have and can't have (example: can have shrimp, can't have sardines, etc) based on whether or not you feel the little "wigglers" wake up or stay asleep.
A few days into this diet and you should notice a sharp decrease in your symptoms (and it weakens them up so that the salt can really do a good job of killing), though you will likely also experience significant cravings for the forbidden sugars and grains. Break the diet and you should notice a sharp INCREASE in your symptoms.
After the initial big die-off's with the salt treatment, I began having small amounts of sugar (a piece of whole wheat bread here and there, etc) without noticing a huge problem.
There are people who claim to have beat this disease by diet only, if that helps to emphasize just how important the diet is. The stricter you can be, the better.
3.) Helpful herbs:
Olive leaf extract and olive leaf tea. I drink 2-4 cups of the olive leaf tea per day (it does cause a herx reaction---you will initially feel flu-like as it kills stuff). I don't know if it kills whatever is behind Morgellons, but it sure helps kill off something and keep your body healthy. I get my olive leaf tea leaves from oliveus.com, because I can buy it in bulk there and thus save money. The olive leaf *extract* is the more powerful one of the two, though, and can be found in capsule form just about anywhere that sells herbs.
I take Garlic and garlic supplements and also Oil of Oregano (capsules are easier to swallow than the oil). Garlic and onions in all your food is always a good thing---the more, the better. Many Morgellon's sufferers have reported that heavy doses of garlic really helps them.
Cat's Claw is reported to be amazing for Morgellons---I just started taking it so I can't really say either way, but I've read that it's VERY powerful against whatever this is. I've been taking 3 capsules, 3-4 times daily with meals, but I just started this week, so I can't really report either way, but it's such a health-giving supplement that I figure it can only be a positive addition! :)
Grapefruit Seed Extract (in pill form) is another thing I am taking, though only here and there. I've also heard good things about Teasel and Pomegranate Extract w/ Ellagic Acid (both in fighting Morgellons), but haven't tried either of those yet.
I've heard amazing things about ionic silver (3 mgs in mornings) and ionic copper (4 or 5 mgs nightly) (both from kornax.com, Water oz or Angstrom brands, and I'm sure other places as well), which I have just ordered but also haven't actually tried yet. The copper is supposed to be very beneficial, but just as a reminder, is dangerous to take in tablet form, so the ionic liquid is best. Ionic sulfur (10 mgs daily) is supposed to be very helpful at healing lesions on the inside and outside of the body.
Lavendar Essential Oil works very well on the initial "bites" (the large red zit-like things). It dries them up quickly---apply often and they should start healing up within a few days.
4. Espom Salt baths are helpful (2 cups in a tub) and adding a bottle of hydrogen peroxide helps it get deeper into the skin. I now take a bath almost nightly.
30-40 minutes worth of soaking is important---the salt won't draw stuff out if you only sit in the bath for 10 minutes, so get a good book from the library and relax.
5. Clean with Enzymes!
Enzyme cleaners are good---I've heard raves about Ecovie, but I have Bac-Out in my area, so I bought that instead. I put a bit in a spray bottle and dilute it with water so that I can spray myself down (including eyes and ears) as well as my environment (including the sheets I sleep in, etc). Anytime I feel itchy, I spray down myself, as well as everytime I get out of the tub or shower. It's also nice to add to the laundry to kill things that might be on the cloths. I take a bath in the Bac-Out a couple times a week instead of the Epsom Salts ---probably a 1/3 cup of the enzyme cleaner or so to the bath water.
Another enzyme clearer is Kleen-em-Away---any enzyme cleaners should work well, really. I also bought some Orange TKO (very economical---a little goes a long way) and use that regularly as a spray cleaner that kills everything (including mites) and is also safe for humans.
I know this sounds weird, but I shaved my arm hairs and found it very helpful. One of the terrible parts about Morgellons is how "sensitive" you get to anything that feels like movement. The air against my arm hair made me feel like something was crawling on it, simply because of the creepy-crawly feelings that sometimes really WERE there. Shaving hair off really helps me.
I am taking all these natural herb weapons, along with doing the salt and the diet, just because...I prefer a "full guns" approach to this thing, as it appears to get VERY nasty when allowed to progress. It seems like the Morgellons breaks the body down in so many ways, I figure a many-pronged approach to fighting it is in order. Some things go after whatever is behind Morgellons, while the other herbs help the body stay strong.
Personally, the worst thing about Morgellons for me has been admitting that I think I have it. It is horrific. I've caught myself wishing many times that I just had cancer---something KNOWN, you know, for which there are certain protocols, etc, or something like that. It has been a true terror-filled nightmare to realize that I am dealing with this mysterious *thing* that seems to be crawling all throughout my body. Falling asleep at night while something is literally crawling up your face is just plain NOT a pleasant feeling!
I struggled with just wanting it to be GONE, to be fixed, for God to just heal me or something (as if He owes it to me). I also struggled with GREAT fear---fear that my children and husband would become infected, fear that we would infect our friends...
But eventually, and I think in good part due to God's grace, I have settled in to this, to admitting that it's real, that it's very strong and WILL damage me if allowed, and thus have committed to FIGHTING it, as in full-scale war. It is not something that is going to get us---WE are going to get IT. This has been a very helpful change in thinking.
I hope this helps others. I am greatful for all the help I've found via a million sites on the internet, including this one. Working together, we can beat this thing!
San Antonio, Texas
Shreveport, Louisiana United States
A new research article in the scholarly journal, BMC Dermatology, has found the presence of Borrelia spirochetes, the organism responsible for Lyme Disease in 24 of the 25 Morgellons patients included in the study. The study proves that the fibers are not cellulose as previously stated by the less than rigorous study conducted by the CDC and Kaiser. Rather, they are composed of keratin and collagen from an overproduction of fibroblasts and keratinocytes in the epithelial cells located in the "deeper layers of the epidermis and root sheath of hair follicles " The fibers demonstrate the same appearance: nucleated at the base, composed of collagen, and blue in color due to the production and presence of melanin pigment.
This study offers hope to people suffering with Morgellons disease who are often mistreated by the medical community and dismissed as a patients with a purely psychological condition called Delusional Parasitosis. Hopefully, a larger scale study will replicate the results of this small, yet extremely important, study so that the people with Morgellons disease can finally get the proper medical treatment they desperately deserve for a condition now proven to have a somatic cause, rather than a purely psychiatric cause.
The following article is taken from http://www.biomedcentral.com/1471-5945/15/1
Here is the title -
Exploring the association between Morgellons disease and Lyme disease: identification of Borrelia burgdorferi in Morgellons disease patients.
Marianne J Middelveen1, Cheryl Bandoski2, Jennie Burke3, Eva Sapi2, Katherine R Filush2, Yean Wang3, Agustin Franco3, Peter J Mayne1 and Raphael B Stricker14*
Morgellons disease (MD) is a complex skin disorder characterized by ulcerating lesions that have protruding or embedded filaments. Many clinicians refer to this condition as delusional parasitosis or delusional infestation and consider the filaments to be introduced textile fibers. In contrast, recent studies indicate that MD is a true somatic illness associated with tickborne infection, that the filaments are keratin and collagen in composition and that they result from proliferation and activation of keratinocytes and fibroblasts in the skin. Previously, spirochetes have been detected in the dermatological specimens from four MD patients, thus providing evidence of an infectious process.
Methods & Results
Based on culture, histology, immunohistochemistry, electron microscopy and molecular testing, we present corroborating evidence of spirochetal infection in a larger group of 25 MD patients. Irrespective of Lyme serological reactivity, all patients in our study group demonstrated histological evidence of epithelial spirochetal infection. Strength of evidence based on other testing varied among patients. Spirochetes identified as Borrelia strains by polymerase chain reaction (PCR) and/or in-situ DNA hybridization were detected in 24/25 of our study patients. Skin cultures containing Borrelia spirochetes were obtained from four patients, thus demonstrating that the organisms present in dermatological specimens were viable. Spirochetes identified by PCR as Borrelia burgdorferi were cultured from blood in seven patients and from vaginal secretions in three patients, demonstrating systemic infection. Based on these observations, a clinical classification system for MD is proposed.
***Our study using multiple detection methods confirms that MD is a true somatic illness associated with Borrelia spirochetes that cause Lyme disease. ***
Further studies are needed to determine the optimal treatment for this spirochete-associated dermopathy.
The latest research points to a relationship between Morgellons and Lyme disease. Check out these research articles to see for yourself. http://f1000research.com/articles/2-118/v1 and http://f1000research.com/articles/2-25/v1. Only a systemic approach to treatment will cure it. My experience has shown me that doctors don't know this. All the best.
Hi all. Firstly this site is a godsend to all of us sufferers of the unknown attack .. I have a thought for Ted.. Bless his wonderfull advice.. Is there any chance that the condition known as morgellons could be similar or from the same strain as dry rot?? That throws out fibres and is not bothered what it hits?. Just a thought... I'm currently doing the borax and cider vinegar with hydrogen peroxide.. After a week I think I'm feeling a little better. Or is it because I'm not alone any more..not sure I have morgellons but it's the closest to how I feel.. Thank you all for all your stories xxx
I feel I need to be more specific about Morgellons. Yes, again it is the human equvialint to Mange but, in actuality what is it-
Morgellons defined: is a bacterial disease that effects the sweat glands in the epadermus layer of the skin.
In acctuallity what is happening is the bacterial gets in the skin threw a bacterial thread and then from there rests in the sweat gland and starts to mutate. From there it needs air... So it surfaces. When it does this it starts to sting and tingle and feels like bug bites But it is surfacing because one it needs to stay moist in order to survive but two it needs air also. When it surfaces and you scratch it it then transfers the bacteria to other sweat glands in the surface of the skin and it in turn repeats it's pattern. A few days before rain the body or epadermus layer acts like a cloud and collects exterier moister and oxygen in turns feeding the bacteria. This will also effect you when the humidity levels change because again the body needs two types of moisture: Externall and inturnal
You know how I figured this all out. Because I never have suffered from Morgellons in the arm pit area Why? Because by using deoderant I repress it from intaking and realeasing moisture.
My advice again... Never ever exfoliate or use exfoliation products you are only spreading the problem and making it worse. Boil Yukka root 30 min Let it cool. Shower... Turn off water and pour Yukka on you. Air dry... Apply any kind of deoderant over entire body Take an asprin and do not scratch. Rub gently if stinging sentations accure, adding more deoderant if needed. Going to feel a little discomfort as it is taking effect but trust me I've suffered from this problem for 13 years I know where the bacteria originates from and I am learning how to kill it and I feel better than I have in a long time with this remedy combination
Dear Ted, I have morgellon. And I am an RN. And I have the fibers, that are really tunnels. I have eggs that I have watched hatch in my skin and tunnel away and of course I am diagnosed with delusions. Also, I have removed bugs from my body and have kept them in saline. Anyway I want to get to the point. I control and diminish the sores, bug growth, worms and Queens with RAID ant and roach. I use it as a pediculocyte. It must stay on the body for 2 hrs to kill the bugs. And I take benadryl with it to stop side effects. Of course it's painful. But it works. It needs to be repeated every 2 weeks and total body coverage is needed if you can stand it. Pain medication helps. I get so frustrated that people are out there suffering without help. Please let everyone know. Thank you for the opportunity to share. Merryon
Baton Rouge, La
New Mexico, US
Baton Rouge, La
Hi, sorry I took so long to get back to you. There has been so many changes in the findings about Morgellons, that seems like just as I was going to post something, I made changes.
Finally got a chance to sit down and put some things together. I started a shower protocol, which really was helpful in absence of all else at the time, and I still follow it to some degree, because it really helped.
OK I have never really typed or written this out, but have thought a lot about doing so, be patient. I had BAD BAD brain problems about 2 or 3 years ago, but have somewhat recovered, I do my best.
Sams Shower protocol:
The main idea/concept is to get as much of the outgrowth off each time you Shower. You should shower at LEAST every other day. Everyday would be ideal, however, I Know how tired one can get and understand it is hard. If I had known what was going on back in 1999 when I got this, I Probably could have stopped it eventually with this shower protocol. Keep in mind that different parts of the county have different "versions" of this MANGE. So what is working for me here in the desert of Las Vegas, may not exactly work for you, but with a few adjustments for your area, based on your Symptoms, this should help you out a lot. I started this at about 10-12 years into being infested, and it made quite a bit of difference.
A couple of suggestions before I write down this protocol: Get your diet as alkaline as possible. Learn about Acidic foods and Alkaline Foods. Remember that this stuff easily becomes resistant to anything it regularly has contact with. SWITCH THINGS UP, do not use the same thing over and over. I have several items in the shower, and I did not get them all in one day. This stuff came over time, and trial and error. It is still subject to change, and you should keep your defense tactics "open to Update:". All of the items I list here are used exclusively EXTERNALLY.
Items I use are:
Coal Tar Soap
Sulfa shampoo / sulfa ointment / sufla soap
Different pumace stones:
Natural, synthetic, sharp, not sharp, etc
2 really good brushes with long handles, mine are plastic about 2. 5 feet long
And long bristled, hard
I keep a gallon bottle with white vinegar and one with apple cider vinegar, lids
On, in the shower for rinsing
I keep squirt bottles of:
1. Clorox & water (1/3 clorox and distilled water)
2. Borax and hydrogen peroxide (about 1/4 cup of borax and regular drugstore
3. Willard water & distilled water (the recommended drinking formula, 2 oz per
4. MMS ( go to Jim's MMS web site)
5. Any kind of shaving cream/gel
6. Body scrubbing cloth that can be washed after use ( best to have a few around
7 white towels only, use only once before washing (note: all laundry, material cleaning, must be soaked in borax (put borax , use directions on the box, in the
Washing machine, fill with water, let it agitate, then add clothes, let soak for 30 mins or longer then wash as usual, AND MMS, per website instructions. MMS is very good at KILLING MORGELLONS ON CONTACT, borax is good at killing other parasites. This minimizes any living crap survival. Keep in mind this is a MANGE, meaning a combination of "living things" that survive well together. Gotta concentrate on killing more than just the mysterious morgellons. I keep my head shaved, as I have no intention of providing more places for these suckers to live in/on me.
Use a NEW RAZOR each shower. Dollar store razors are fine. Sometimes I get the 3 blade kind, otherwise the twin blade works fine. Er by scrubbing down and rinsing with soap, or the dandrfuff shampoo or combination of them, then I shave again with a new razor every time, rinse then I target each area with willard spray or hydrogen peroxide/borax mix or bleach diluted, then I use a bar soap and scrub the back side, and thighs, I then take the other brush (each brush is used exclusively for that particular area) for the calfs ankles and feet. I then rinse and get the pummace stone and work as needed from head to toe.
All items I use are bleached after use and before use by spraying or soaking depending on how much they are used. Make sure and throughly scrub cuticles of feet and hands and the black string/ribbon things tend to collect in the dead skin there, I even pumace my fingernails as the crap is in them too. Then I rinse with the shower head , and then fill up a gallon jug of water, luke warm, plus vinegar, switching between white and vinegar depending on the day. I use about 1/4 cup of vinegar per gallon, this is a lot and a few tablespoons will do, be ready for the STING! But it does not last long. I sometimes add in the willard, and the borax hydrogen peroxide and bleach, and vary the combination each time. I air dry, and then use only coconut oil to moisturize the entire body, also using the mms which is very important to use topically as well as internally.
This whole ordeal was and still works for me but I have now added topical tetracycline and diatemeceous earth, food grade, externally only. There is a rather new study showing the similarities between Morgellons and Bovine digital dermatitis, it is very interesting, and points out that ANIMALS got treatment quicker and faster and more effective than humans with the same probelm all because of the lack of support from dermatology. NO ON SHOULD HAVE EVER given dermatologist any power or any diagnostic criteria for ANY MENTAL issue, they are NOT TRAINED for it, and it has actually killed people that have died from real bad problems because no one would believe them. That's my learned opinion and I am sticking to it!!!!
Here is the link for the study, I found this UK Morgellons site a million times better than the USA or any other site, the links are EXCELLENT and very helpful. The spots on me that have been horrrible for many many years, are now clearing up!!! The topical tetracycline plus the mms is really doing the trick, and topical is also the important thing to remember. I have been mixing the tetracycline in thick lotion or shea butter and lathering it on all over. I also tried vasaline, but it does not mix up well. I also add the diatmaceous earth (sorry for my spelling), which is a. Very cheap, and b. Really effective. I have been putting a couple of tablespoons in juice or anything every day and I feel better every day. My body is really kicking out the morgellons, streaks and wild things are being emitted from my body, and places are clearing up. I hope that I do not reach a plateau, but am ready for any eventuality, since I have been through hell and back, I am prepared for what ever comes my way.
I encourage all Morgellons folks to HANG IN THERE. I have had it over 12 years, and got so brain fogged I could not finish a sentence, but out of desperation used beach on my skin a few times daily and the cloud began to clear within months. Make sure what is going on with your thyroid as this shit is a thyroid killer! Try to keep up with your teeth, because this stuff has componenets that eat away dentin in the teeth, causing them to break off, decay etc. I am going to have to have all of my teeth upper and lower behind the eye teeth eigher removed and replaced, or crowned, or root cananled... Expensive.
I don't have a dr right now that help me, and when I have a dr rather a fmp, she would not help, she did not believe me and manipulated and lied to me at every turn. So I went to the fish store and got the fish grade tetracycline, I was in granulated form. I take one packet and dissolve it in a small amount of willard water, the add it to what ever will stick on my boty. ON the bad parts that have been active for years, I spread on the shea butter with tetracycline thick, put a layer of plactic bag over it and wear it all night long. I am curious about your borox baths! How are you gettting your head and face covered? It seems you would need to make sure you get your head soaked too... As this stuff seems to really love hair and hair focilicles.
Well, I am now looking forward to a full recovery some day, things are going better than they have, ever, since this shit started. I still have energy probelms, like NONE, but I also have no thyroid working so that probably does not help matters. I am getting a zapper, monster zapper and will be using it too. I am also hoping that once I get this crap outta my thyroid, I might find some way to jump start it again. ANYTHING my friend ANYTHING is possible with the right attitude, and outlook added to dogged determination. So hang in there, DO NOT EVER GIVE UP. Rest when you need it, get SUNSHINE!! It is the same as buying far infared technology, or do both!!! Check out the article I sent you and let me know what you think about the web site if you have not seen it before! http://www.morgellonsuk.org.uk/researchers.htm click on the Middelveen MJ & Stricker RB (2011) Filament formation associated with spirochetal infection: a comparative approach to Morgellons disease, Clinical, Cosmetic and Investigational Dermatology, Volume 2011:4 16177 article to get the latest.Turn, you may have an experience like this Ms. Denise who makes decisions for others based on her whim instead of empirical data or evidence or study. Don't waste time with them, keep looking for someone who is sympathetic to your problems.. So I went to the fish store and got the fish grade tetracycline, I was in Granulated form. The poorly trained and overly opinionated and criminally insane providers like Ms Denise, will have to atone some day for their lack of ability, insight and hypocratic oath.. I take one packet and dissolve it in a small amount of Willard water, the add it to what ever will stick on my boty. For the mean time, I just keep working on myself to get myself better. ON the bad parts that have been active for years, I spread on the shea butter with tetracycline thick, put a layer of plactic bag over it and wear it all night long. Well, I am now looking forward to a full recovery some day, the stuff I am now doing is going so much better but better than they before, ever, since this shit started. I still have no energy, like NONE, but I also have no thyroid working so that probably does not help matters. I am getting a zapper, monster zapper and will be using it too. I am also
Hoping that once I get this crap outta my thyroid, I might find some way to jump
Start it again. ANYTHING my friend ANYTHING is possible with the right
Attitude, and outlook added to dogged determination. So hang in there, DO NOT EVER GIVE UP> rest when you need it, get SUNSHINE!! It is the same as buying Farinfared technology, or do both!!! Let me know what you think about the website if you have not seen it before! Check out the article I sent you and this is the web site I mentioned: href="https://webmail.west.cox.net/do/redirect?url=http://www.morgellonsuk.org.uk/researchers.htm" target=_blank>http://www.morgellonsuk.org.uk/researchers.htm
Click on the
Middelveen MJ & Stricker RB (2011) Filament formation associated with
Spirochetal infection: a comparative approach to Morgellons disease, Clinical,
Cosmetic and Investigational Dermatology, Volume 2011:4 167-177
Article to get the latest. I am looking forward to finding others and their successes as we finally get some answers over the next few years.
from a person who has suffered from this for over 12 years, DO NOT EVER GIVE UP!!!
I know it is really hard, and you get really tired and sad from lack of resources and help, but the stuff that works is very very cheap and more effective than anything I have seen.
TRY THE MMS, do it carefully and by the book, and do it topically, orally, internally, enma, and if you think you are able through your sinus. Just read the directions carefully
search the sites I have given you they are the morgellons UK is FILLED with great resources for about every body part and the MMS is extremely effective but you must use it topically at least, and do not over do it.
In addition an emphasis on keeping your diet ALKALINE (there is excellent resources and decription s about this in the Morgellons UK links)
I got really severe about this for a few days and killed off a bunch of stuff.
I have spent the last 5 or 6 years using my poor little self as a guiena pig, and would like for this information to help others from feeling like they have to do the same.
If you think you have Morgellons, and all this stuff seems like too much, which in one dose it is, try stating just one thing at a time, giving yourself ample time to understand what you are doing. You may have brain fog and that really slows everything down, but you can make it go away!
Just keep up trying, keep checking the web sites for new research and developments. Keep believing in yourself. The biggest thing I found out about myself is that I WANT TO LIVE, and I LOVE LIFE. I am not on antidepressnats. So this may tell you that somehting or the combination of the above has helped. I drink Willard Water daily and I swear by it too. Finally, spirituality prayer and study in this area will be of great comfort to you, in your journey. I am particularly fond of Sylvia Browne and find her writings completey in line with my innate beliefs, but I am sure that your particular religion will be just the ticket for you.
I will check back in if I hear of any late breaking changes that I add that works. Don't be your own lab rat, I have done this for you!!!! I did some dumb stuff and can only hope that no permanent damage was done. Everything here works to some degree and is not likely to harm you if you follow the directions. It is up to you.
In the mean time, for me, it will be more topical tetracycline *(from the pet store until I can get another Dr lined up), MMS, Willard Water, Hydrogen peroxide/borax, diluted bleach, and an alkaline diet as much as possible.I look forward to reading about other peoples discoveries and successes. Sammie
Las Vegas. Nevada
I have been going through this as well, the best remedy I have found for Morgellons is a balanced PH (veggies/baking soda in water/good water) and also 1 tsp. Sea salt in water What I eat affects how I feel. If I eat too much yeast/breads/donuts within 1 hour symptoms appear worse. Pop is not good for it. Garlic helps. Sulphur Cream is great. Blow dryer helps. Benadryl helps with night time sleep. If I have some symptoms reappear, all I need to do at this point is drink sea salt in water. I still have this horrible thing, it is just a part of my life until I stumble across a cure. It is a very humbling experience and helps me be more compassionate to others with their ailments. I have tried over 20 things and this is what I have found to be most helpful.
Well I've been feeling pretty down, lately, feeling trapped, unable to find sollutions to some of my life's agonizing difficulties, all surrounding this morgellons situation. I was thinking I might just give up... I knew I couldn't, because of my son, but SO depressed and tired, and feeling hopeless and helpless, nonetheless.
I was washing dishes and praying, simoultaneously, and some good thoughts came back to me, so I wrote them down, and now I would like to post what I wrote, hoping it can be a strength and a help to those fellow suffers of this condition. I have always believed that "everything happens for a reason", even though usually, one cannot see what it is until, in this case, the crisis passes. I've also always believed that life is one big school, and the purpose of it is to learn and become the best - the most true manifestation of our spirit/soul as we can become.
Here is my "epiphany" - my current thoughts and feelings, and what I will use to help me get through this, coming out the other side a stronger and wiser human being:
WHAT IS THIS EXPERIENCE TEACHING ME?
* To take excellent care of my body
* To (choose to) calm my mind (rather than lose it)
*To truly value my life - to fight for ME
*To have faith
WHEN I AM BETTER, I WILL HAVE LEARNED:
* To appreciate every moment of life and health
* To be stronger than I thought possible
* To not only ask God for help, but to praise and thank Him every day for my life
* To recognize, learn from, and appreciate the lessons of life
* To have true empathy for all who are suffering
* That I need to take an active role in restoring and protecting nature
* To seek out people to inspire and help
I am a whole new person today. I am still deep in the physical and sometimes psychological trenches of this unfortunate dis-ease, yet I now feel Divine power behind me, before me, within me. I will use this precious gift to restore my health and well-being. I am most grateful for this new wisdom, and I feel lighter, and I now have the faith to carry on.
I hope sharing this gives strength, hope, courage, joy and perseverance to all those walking THROUGH this dark and thorned path with me.
lOVE AND PEACE AND HEALTH TO ALL!
Amsterdam, Ny, Usa
Yucca Valley, United States
How to move, without taking this with me? My son is still in transitional housing, waiting for me to move to another apartment. He has autism, and he very clearly communicated to me on the phone last night that he wants to come home. This is breaking his heart and mine. I KNOW I have to leave this place to heal. I know he cannot come here. Moving into this place in December is how I got infected. For the first couple of weeks after I moved in, I had opened many boxes, and was putting things away; but I have way too much stuff to fit into this tiny apt. , and so the black specks, etc. , are on and in everything. I have already decided to throw away all cotton clothing, as the things really love to cling to it. I am on a supplement and diet protocol now that I feel confident will heal me enough to have my son come "home", AFTER I move from this place. I will put all important papers in ziplock bags; and I am willing to throw away most of my stuff! I am concerned, though, that people will find and go through the stuff, and will get infected. Is there an agency I can call to pick up and dispose of what might be termed "hazardous waste"?
Please give me any suggestions you may have about how to safely move... Safe for me, and for others, too; so I can move and let my son come home to me ASAP.
Thank you, Kristi
There is no more doubt that I do indeed have this morgellons dis-ease. It is so complex, with the "beast's" different manifestations, with all the different symptoms, the progression of thoughts and emotions - from disbelief, to questioning one's sanity, wondering, researching, frustration, finally to admit, in my case, that I really do have this bizarre thing. The physical and mental symptoms are bad enough, but the isolation this has caused me is perhaps the worst of all. I finally did go to see my son (he is autistic and in transitional housing right now, after a 3-month stay in a hospital specializing in autism and behavior problems) after 3-4 weeks... he was telling his caregivers how he missed me and wanted to see me. I showered, scoured, put the mixture (one of Ted's suggestions) of 30% orange essential oil and alcohol, on all obviously affected areas, after spraying my entire body with ACV... I put all freshly borax-washed clothing on, including gloves, as my lesions are currently abundant on one arm and hand. I tied my disinfected hair back and brought a hat... I was pretty much covered. I explained how I could not give him a hug, although he tried several times, breaking my heart. We danced to the radio music, sang songs, played "follow the leader", kicked back and forth a huge rubber ball... we laughed and played. It was a very good and needed visit. I did kiss him on the forhead, and verbally express my love... we had great eye contact, and he and I shared many big smiles. Today I find myself worrying if any of the "bugs" got left there... If I could possibly have infected him. It was an hour and a half visit, we were in the basement play area... I didn't touch much, and I never sat down. If I don't get myself better soon, he will end up in a group home, rather than returning to me. I will NOT risk him living with me until I and our home are CLEAN. I know I will need to move first. Does anyone know a step-by-step procedure in order to move without "them"? There are manifestations of them all over the apt. , and all over my stuff (much is actually still in boxes... Opened boxes. ) I understand about putting all clothing and other soft items in plastic bags, and I've been working on it. Does anyone know how to treat all my other stuff that can't be sealed in garbage bags... because they are on everything hard or soft. I do not have much money, so I can't just throw all my stuff away(?! ) Any suggestions would be greatly appreciated, so I can work toward moving, ridding myself of this, and reunite with my son. Somehow this apt. Was infested with the little buggers when I moved in - end of December. I don't believe I can ever be fully rid of them/this dis-ease until I am able to safely move out of here. Please respond if you have any answers or suggestions for me... I am kind of new to this.
I do have some observations and suggestions that I hope might help you all, as I have found some relief with these things:
Clove oil! Last night I was SO exhausted I couldn't find the energy to shower and scour myself, and my two fleece blankets that I sleep with had not been washed, nor my sheet/pillowcase. I put my finger over the top of my clove oil bottle, passing it over my sheet, blankets, etc. , allowing little drops to scatter over it all. I slept well, without them noticably bothering me at all! This morning I brought one of the blankets out and laid it over my computer chair. I examined the blanket then, and was dismayed to find several black specks (bugs! ) on it, and I picked them off to go put them in the toilet, which is my custom. They were dead! If they'd been alive, they would have tried to burrow into my fingers on the way to the bathroom, and they did not move on me or in the toilet. Yea!
I put this in my ears with my pinky fingers before bed, and when I'm sitting at the computer, or when ever I feel one crawling in there... it stops 'em from crawling... It's supposed to kill them on contact, but it seems to take a minute or two. I also sprinkle this around my bed and the floor by my computer, and under my dog's blanket. I made a thin paste uning this as the base, then I added olive oil and some essential oils I had around... clove, cedar, peppermint, fennel... It's a bit difficult to get the consistency just right. The first time it came out great, but for some reason the second time it came out lumpy and too thick... I think I'll try to fix it in my small food processor. So, if you get it to come out well, like a very thin paste, cover your whole body with it after evening shower, before bed. It leaves a fine, comfortable and soft coating, and you'll be much less bothered by the bugs. The essential oils feel clean and tingly... nice. You'll have to experiment with it, because I just added a bit of this and that till it felt right. Oh, I just remembered on my first (successful) batch, I added about 10% borax powder and a little salt, mixed the powders all up, then started adding the other stuff until it "felt right".
I have no bathtub here, so I can't do the soaks that some report have the things coming out in droves, so I keep rubbing various concoctions on my skin, to see if some will come out. I pulverized a whole, peeled head of garlic in my small food processor, then added about 4 heaping tablespoons of virgin coconut oil and a splash of olive oil, and whipped it up again. I rubbed this on my right arm, where there have been a lot of lesions lately. After awhile of intermittent rubbing, some of the black specks surfaced, but they were very alive. Each time they would surface, I'd run to the bathroom and grab some off me, putting them into the toilet. I've found that if you pull one off they will start trying to burrow into your fingers, so I rub my fingers together while I'm on my way to dispose of them, which seems to somehow keep them on the surface, then quickly flick it into the toilet.
I rubbed intermittently, a lemon half over my many-legioned arm last night while at the computer, just to see if it would make any surface. It didn't seem to, but I went to the bathroom, looked into the mirror, and watched in amazement as a black speck quickly darted out of my nose... not my nostril... the side of my actual nose! I was able to quickly grab it and put it into the toilet... Flush! I wish I could have gotten that on video... THAT would surely show the disbelievers something interesting. It was like from the X-Files. The living "black specks" look flat and square to me, and they can move and burrow very quickly... they remind me of tiny square, black bits of razor blades.
I just had an idea, while writing this... I do not own a video camera, or I would try to capture some moments like the one described above. Many of us have collections of artifacts... Mine are taped to notebook paper or envelopes, showing the various manifestations of these things; and when we go to the doctor and show them this stuff, IF they even bother to look at them with a microscope, they come back and say that "there are no identifiable insect parts... They are not living things... " - well, that is what has happened to myself, and others, I've read. How about this? Anyone owning any sort of video camera, please try capturing some of this "action" on tape, so we can show it to the CDC, etc. , and all the disbelievers that might be of some help if they saw it. I've read a lot of posts telling of applying something to the skin or bathing in different mixtures, and the black specks and fibers coming out dramatically. If you people who can get them to come out like that would make videos of it... that could really help, I think.
Good luck, and God bless us all!
Alone, isolated, sleep-deprived, horrified, I pull myself out of my discomforting bed and stumble in the dark toward the dining room table. I'd left pieces of clear tape hung over the sides, waiting for when I need them next. I pull off one piece of the tape, and carfully, in the semi darkness, place the small contents between my left little finger and thumb, unto the sticky side, then I affix this to the blank notebook page there. I'll wait to examine it later, after trying to get a little more sleep, as it's only 5:00 am, and I'm so exhausted. I'm in desperate need of sleep, but there are others in my bed with no intention of rest, but only to continue tormenting me. As I lay there and close my eyes, I feel their presence both physically and psychologically, persisting in their apparant mission: to drive me insane or eat me alive, which ever comes first.
I got out of bed at 10:00 am, maybe with about 2 hours of constantly interrupted sleep, feeling foggy and sluggish, but decided it was time to get up for the day. There are many chores needing to be done, all in the interest of trying to better my current agonizing situation. I don't know yet what I'll really be able to accomplish though, given my depleted state. It's time now for my morning tea and trying to wake up. I thought writing about this might help somehow.
I moved into a new apartment about the last week in December, thinking I'd stay here through the winter, and maybe save a bit of money to move into a two-bedroom come Spring. My 11-year-old son, after a three-month stay at Spring Harbor Hospital, is now in transitional housing, and is scheduled to be coming back home with me around that time. My son has autism with "danger behaviors" including aggression and a compulsion to run off, usually into the street. He has miraculously defied death or serious injury many times in the past several years. He needs constant care and supervision. That caregiver is usually me, as I would like it to be. During this transitional period, it is suggested and scheduled that I go to see him at his temporary home and school, to spend needed quality time together, and to learn new techniques, schedules, behavior management tips and etc. , to prepare us both for his return. Today is Thursday, February 10th. Wednesday is our day to get together. I have not been able to see him in over three weeks... the first was because of a blizzard. The reason I had to cancel this and the previous Wednesday, is because I have developed a contageous disease; and I cannot risk passing this on to him.
I went to the E. R. On Tuesday, February 1st. I brought an envelope with many dozens of strange sesame seed-sized (but elongated in shape) "deposits" that I had picked out from bites all over my chest and abdomen area. I showed them to the doctor, and he looked at both them and me with a strange, doubting, almost humorous expression. He said: "I have never seen anything like this in all my life". He took them back and showed them to his colleagues, and they looked at them with magnifying equipment, he told me, when he returned. He said "These are not bugs". He told me they had no identifiable markings like legs, heads, and I intuited that he was questioning whether or not I was simply playing some hoax on him. He told me that "for all I know, they could be scabs from you scratching at yourself". I asked him if he really thought I'd just gauge myself up like that, just to show up at the E. R. To freak him out or something... and his facial expression showed that he really didn't believe that, but just didn't know what to think. I asked him to take a look at the newer wounds/lesions that had reciently appeared on my upper back, which he did. He did note a pattern or trail there, which he thought was consistent with scabies. So, he gave me a prescription for Permethrin cream, and some pills (Hydroxyzine) for itching. I tried the cream from head to toe, as instructed, one night after my shower. I really felt some relief, and had my first decent night of sleep in weeks. Unfortunately, it all started up again the next day... crawling sensations under my skin, being bitten, more lesions, and the next night was sleepless, again. I don't get extremely itchy like many do, for me it is more painful, with the biting, and creepy with them crawling into my eyes, nose, and ears, etc. By now, I don't think there is a speck of flesh on my body they've not visited. Although the lesions are mostly on my abdomen, back, and arms, I have been bitten on my head, face and genital area. They particularly like crawling into my ears, biting me, laying eggs, "partying" in there. I've been dusting my body, inlcuding my ears, around my eyes, and a bit into my nose with food grade diatomaceous earth. This stuff is supposed to kill them on contact, and it does help, but they still seem to have enough time to do some damage to me before they die, and I'm able to pull them out. Even though I place some diatomaceous earth into my ears each night before bed, I still feel them crawl into my ears. I quickly get a bit of the D. E. (always by my bed) and put more into my ears. Sometimes I feel a lot of crusty stuff in there; and often when I rub this, I will pull out eggs (3-4 slightly smaller than a pinhead). Lately at times, instead of eggs, I will pull out a worm or worm-like creature, about 1/2 inch long. This is really horrifying to me! I now see these worm-like things in the house, usually on clothing or something soft. There are also black specs on things, and the little things that look to me like splinters of wood, about 1/8-1/4" long, thin, and pointier on one end than the other... These were the first creatures (?) I saw in the apartment, weeks ago, and they still far out-number the other things described above. I believe these are the mites that first bite me, and then all the crazy lesions and mutations happen after that. I'm confused about this, because with all I've read about mites in general, and especially the scabies mite, they are all described as much smaller than what I'm seeing here... "barely visible to the human eye", they say. They are everywhere... hard surfaces, soft surfaces, in my teacup, everywhere. The black specks are everywhere too, just not as plentiful. I have not experienced the fibers coming out of my body - just those hard deposits, and new freckle-looking marks, which some say are connected. I have, however, just in the past couple of days, seen strange fibers (blue, black and red) on the floor/carpet, mostly. This morning I found a blue ball of fiber with what looked like a white ball inside... It reminded me of a coccoon, and I taped it unto the notebook page with the other strange stuff. The worms really scare me, and I wonder how their population will increase. I wonder how many are living INSIDE my body.
This situation has caused me to become very isolated. I need to see my counselor I usually see on Tuesdays, but for the last 2-3 weeks I've had to cancel because I will not risk infecting her/her office; and she cannot meet me somewhere else because of "billing regulations". I cannot see my son, which is causing me deep sorrow for him, for me, for us. I cannot ask for help going to the store or the laundry mat, as I feel the need to be responsible about not passing this on to anyone else. My downstairs neighbors knocked on my door yesterday afternoon asking if I'd like to go downstairs and play cards and hang out. They really seem like good people I'd love to hang with, but... I went down stairs and knocked on my neighbor's door last evening and explained why I could not sociallize with them at this time (as they had asked me if I might join them the next day (today) instead), and I'd said, "That sounds good", not knowing then what else to say. I was verging on tears, feeling the need to tell her the truth. I feel dirty, even though I am not. I feel like a leper. I am lonely and traumatized. I need help, but have no idea where to go. I need to try some products like "Kleen Green", and I'm running out of money... the child support money has not come in yet, and I've not paid my rent. I don't feel it's right to pay my rent, because I got this thing from moving here; but I am too weak to fight anyone. I don't know if I'm dying or losing my mind, or both. I feel TRAPPED and helpless.
This disease that has caused me (and countless others) so much harm is called Morgellons. It is REAL.
Los Angeles, Ca