Since I first became infected with bird mites, which I believe has now morphed into Morgellons, I have been receiving acupuncture treatments weekly, and taking Chinese herbs to help me sleep. Does anyone have any opinions/research on whether acupuncture is beneficial, or might be harmful?
Brooklyn, New York
Toronto, Ontario Canada
There is not much doubt left that I have contracted this devilish disease called Morgellons. I am certain of how I got it and who I got it from. I can tell everyone that I believe from the marrow of my bones that this plague is contagious, I keep my distance from loved ones! From prolonged skin to skin contact as in sex I got an unusual rash in the groin area from a girlfriend that said she had a heat rash. After a few weeks of dealing with sores and itching, we tried stromectol (Ivermectin) to rid us of any and all parasites. 2 rounds, 10 days apart, it did not work for us. I can say in my case, the itching is far from the worse of it, the fatigue is terrible and life changing. There is also neurological effects that are frightening. A few months ago I was the picture of health for a 52 year old man, now I feel as if I'm 72. I have a very good doctor that I have seen for years, now I'm faced with the decision of seeking medical help at the risk of being diagnosed as delusional, or trying to treat this myself as many others are doing. Tired n Texas
Hi Suffered with Morgellons for one year was horible. Started using Max GXL(Glutatione), Max one and Jarrows Glutatione 500 intercellular and many other things...But I do believe that it was the Glutathione that helped me get better. Due to my mom has it too and I only gave her Glutatione and she was able to get off the MMS. Diane
San Diego, Ca
Been dealing with Morgellons for 4 years now... And this is what I have discovered over that time... I think it might be a mistake to drive the morgies under the skin with the application of the tea tree and other harsh elements that just chase this monster deeper into the system... If you must use these skin solutions you must first take something orally so they don't drive deeper into your body.... like garlic or black walnut/wormwwood/clove. I regretted starting the TTO/alcohol solutions which ended up being a nightly event and got nuts after awhile... I put that stuff on my skin for 2-3 yrs and I can't tell you how much $$$ I spent on TTO and the damage to my health due to such strong oils on my skin all night. Recently I decided I had to change. I switched off the nightly skin wraps and now am using homeopathic "waters" that I make by putting 1-2 cups of water in a shatterproof bottle - add 4-8 tablets of the homeo into the bottle and then pound hard 7x as many times as you like each round bumps the power of the homeo up.... Lately I tried Teucrium which is a great worm remedy.... I put the water solution on my skin and was surprised... It seemed to actually kill the worms... I have found nothing that worked this well in 4 years... Literally a white creamy substance came out of the bottom of my feet... Dead worm material I believe... In fact the first time I ever picked up a Teucrium vile I could feel the worms rearing up in my feet in resonse to that remedy...
Homeopathy is an amazing thing - the right remedy can work better than anything your doctor has... I used 200ck Teucrium... I also got Cina (considered one of best worm homeos) after I read that someone was curing filarial disease w/it - they stated that 30x Cina was better than the 200 or greater potencies... So I think a cure could be attained between these two remedies... I got the Cina in 30, 200, 1M, 10M and 50M... I think the 50M killed many but not all... I have not dared to take any of these orally yet, just testing on skin... If you ever have a reaction to homeos you can counterract them with coffee, camphor/ menthol or mint which stop their effects or look online for the antidote remedy for that particular homeopathic. But again the Teucrium responded better and quicker than anything else so far and directly killed worms on the spot that were under the skin upon contact... I do believe this remedy may be the cure... I would love to try it in 1M, 10M or larger but my local store has only the 200. If you can't find locally in your area, order online. Remember to pound the remedy probably 30 times when you first are making this remedy.
Scottsdale, Az, United States
I am in contact with a biochemist who is experimenting with remedies for morgellons, the type that include sores w/fibers that are actually a type of nano polymer. Last contact info was using grated fresh horseradish root which contains an enzyme to break down the fibers. This enzyme can be searched as it has been isolated & concentrated by certain labs & it is very expensive to purchase. As this is in the experimental stage, I will update to advise progress, however, I thought that this info should be posted as in theory it appears to be beneficial. I would start with grating small amounts & to offset the burn, I would add some honey & take 2-3 times a day. I don't think that adding to foods would be a problem. Please post any results you may have & I will contact my source who is also trying this on themself. Horseradish is in a family botanical group that happens to have more of this enzyme than its other members. As always, go easy & let your body be your guide.
I recently went through an emotional upset in my life that brought on the worst lesions I have experienced in years from Morgellons. I have lesions on my face, butt, arms, chest and back of upper legs. I was trying everything to calm the lesions down, including vitamins, acv, hydrogen eroxide, polysporin, and whatever else I could think of.
not sure how to explain how I thought of this, but I have realized for quite some time my body temp has been very low, usually 97.5 and as low as 95.5 throughout the day.
I took pictures of my lesions last week as I wanted to record my progress. My intent was to raise my body temp in the bath gradually to get a "fever" as I know they do this in third world countries to kill off parasites and viruses. I put a cup of ebpsom salts so I could relax as temp changes, especially heat bothers me. So I started off with my bath at 99 degrees, and waited about 15 mintutes until my body got used to the temp change, my temp raised to almost 98 degress. I drained some water, and put more hot water, this time a little hotter than before, about 101 degrees. my body temp increased to 98.3 and was rising, I kept doing this until I finally reached 98.6, and tayred in the bath until my body temp reached 99.2, which took about 45 minutes. I wrappred myself in a robe, wrapped my hair in a towel and went to bed and cried. My body ever felt so relaxed.
After about an hour I rinsed off in the shower and took my body temp, it was 98.6!!!!!!! I could not believe my eyes. I noticed something else unusual, I felt hungry for the first time in years. I ate food, put mineral make-up on and went to my parents house for a planned dinner. My face and lesions felt like they were healing, and the localized pain I felt was gone, I would press on the lesions and they had no pain whatsoever. When I got to my parents, my stomach was grumbling, I loved that feeling, and I had eaten twice before I got there.
When I got home at 10pm, I took my temp it was 98.3 and my lesions had actually scabbed over for the first time ever. The next morning I got up and my scabs were already ready to come off, and my body temp was 98.6!!!!!
I then went for a jog took my temp which had plummeted to 95.9 I was devastated..... I took my temp throughout the day, it went back to 97.5 normal (for me) and my lesions started to look like they were aggrivated, and I could see the little white things underneath. My usual protocal was to get the tweezers to remove them, but then I thought "why not" raise my body temp again? and see what happens.
I got my temp to 99.1 which is high as I could get that time.. Got out of bath and again my lesion were flat, painless and healing. I did not have any epsom salts for this bath.
As I sit here writing this, I woke up this morning with my 97.5. Did the bath until my body temp raised to 99.2, my lesions are almost gone, I mean healed! My temp at this moment is 98.6 and my stomach is growling for food, and I ate 3 hours ago. This is as much of a miracle as the lesions healing. The downside is I feel very relaxed at this body temp, almost lazy, the tension is gone in my body, but it is such a weird feeling not to feel tension in my jaw or hands. Judging by my spit this morning I am getting better RAPIDLY. My spit was 70% floating and clear with bubbles in a glass, usually it just drops right to bottom with tons of white debris and yucky stuff.
I got this idea from reading that Lyme and morgellons people suffer low body temp, like me, which according to articles on the web, can be normal. I knew in my heart and soul, that it was NOT normal for me. Just so you know I have an infared sauna which also can cause hyperthermia, but I sweat too much which cools my body temp, so I can't get the results I get from a hot bath.
My last piece of advise is take it slow, draw a bath that feels comfortable to start, and keep draining and filling until you get the water to 102 to 104 which is the same as a hot tub temp. I did try taking a hyperthermia bath in the past, but I never got my temp up cuz I was trying to achieve 103 body temp to get a fever, but I could never last in the tub because it felt TOO HOT, and I went get out before I felt any benefits. I have concluded that whatever we have it is heat senstive in our bodies, and it multplies when are bodies run a low temp, and connot survive in our normal temp.
My intention is too evetually get to the point I can break a fever, as my doctor told me, that is the bodies natural defense to invading organisms. I pray this helps someone suffering, please post results so thers may befenit.
Lastly, if you have said "oh I take baths all the time, it never has helped", I would say, use your therm until you achieve 99 degrees and THEN decide if this helps you or not. Ideally 100 degrees is a fever, so this would be a goal to achieve over time. It is normal for your heart to race as your body temp rises, it will normalize as lay to rest after your bath.
I have morgellons and i am being treated by dr. staninger in los angeles. She uses Far infra red radiant heat therapy treatment and i think that anyone that has morgellons should use this treatment. I was in the hospital emergency room three times the week i went to see dr. staninger. I couldn't breath due to the morgellons attacking my throat, lungs and esophagus. It took 3 weeks using her far infra red machines and other machines she has at her clinic and now i can breath again when i didn't know if i was going to live when i was in the hospital. I purchased two of her far infra red machines to use at home and i sleep under them every night. I recommend this therapy for morgellons. And i just want to mention that Far infra red is different then just Infra red. And the machines dr. staninger uses are specifically tested for morgellons patients. I would only purchase the ones that she sells for safety reasons since morgellons patients have silicon in their bodies.
Oh and one other thing. If you want to test and see that your morgellons is not a parasite and is a man made technology. Buy Pedifix tea tree oil lotion and Endure 2000 lotion. Rub the pedifix on your lesions and then rub the endure 2000 on your lesions. You will be amazed at the silicon plastic goo that comes out of the lesions. This technique will help to flatten them as well. Also, if you look at your lesions under ultra violet light you will notice they have a flourecent glow. This is a man made disease we are dealing with another natural.
Port St Lucie, Florida
Los Angeles, California
A family member had morgellons symptoms and visited multiple dermatologists.The prognosis was either a bacterial infection or nothing was disclosed. Each one billed around $500.00. An over the counter medication or antibiotics was superficially thrown out. but no relief or little relief was achieved.The prognosis of mental instability was unsympathetically given. And in all honesty she partaked in crystal methamphetamine. So I started to "as physicians are quick to spit out " self uneducated diagnosis to justify their hefty bill. Even though their educated diagnoses had no relief. Just money in their pocket. Well as it turns out Morgellons disease with the mysterious fibers protruding from their skin pores turned out to be subcutaneous parasites. Yes parasitic worms that survive by being undiscovered.
Apparently when crystal methamphetamine is introduced in the blood stream these invisible parasites get super amped and against their genetically instilled antics. and expose themselves. And the almost humorous antidotes and therapies were desperately tried to no avail. We tried to get a prescription for a drug that after much research sounded like the answer, but was denied by some "educated physicians".
So after a little research this very effective medication called ivermectin, was discovered to be the same medication used by ranchers to treat their cattle and horses for these parasites. After much consideration and desperation we gave it a chance. After almost an entire year of aroma therapies, vinegar, ice baths and sticking rolled up news paper cones set on fire into ears. To smoke em out or form some a super vacuum to suck them out. We figured that we had nothing lose.
Well the feed store only carries ivermectin in 1% sterile, injectable solution. I imagine to deter suffering people to cough up more money in prescription form. Well since it is water soluble, we watered it down and used it as a topical skin lather. And low and behold after about 10 minutes these "so called imaginary parasites" started to viciously evacuate from arms, scalp, face, neck, shoulders and particularly close to the eye region.
Now I'm not saying it was that easy and everything was rainbows and unicorns.These parasites must be eradicated in adult and larva forms that thrive in your intestines.So medication must also be ingested and due deligence must be incorporated in the attempt of eradication. Everyone including pets must be treated and everything sterilized and disinfected. and multiple dosis must be taken.
And uncomfortable stool examinations must be closely examined to insure the larva are dead and includes diuretic medication, but most importantly research, research, and research. because unfortunately in our case these educated physicians cared more about monetary gain than helping suffering patients.So nobody is going to be more diligent in your cure than yourself.
I had Morgellons for about 16 years and visited many doctors who all stated that I had Ekbom Syndrome "Delusory parasitosis, a belief that one's body is infested by invisible bugs." Funny thing is none of the doctors took the time to even look at my skin or take a biopsy. My latest Doctor gave me the same diagnosis but provided me with a prescription for Ivermectin and explained that it is what they use in Dogs for Heart Worm and for humans with River Blindness also known as Onchocerciasis. I was Morgellons free within a week of taking the medication but it did take 6 weeks or so till the areas healed where the bugs died under my skin and eventually came out as small pimples over many parts of my body. I had several people comment on how smooth my back felt during that time as my back has been rough with small bumps for many years. All was well for 6 months till my daughter moved back into my house with the family dog. It is almost as if I have caught it again from either the dog or my daughter who has a visible skin condition all over her body even worse than I had with the disease. Hard part about this is she does not believe that she has Morgellons and refuses to bring this up to a doctor. I guess if you treat one you must treat all at the same time including pets or you will catch it right back.
Salt Lake City, Utah
40% lactic acid is referred to by some Morgellons sufferers as an effective treatment for external use in this part of the world use for months.
re: Help for mites in hair-- I belive that I have Morgellons, and this is what I do that has the greatest effect on getting it out of my hair. Suave coconut shampoo and conditioner (the conditioner is optional) every other day, and on the other days, spray hair until very damp and comb through with a solution of half reconstituted lemon juice and water. This is what I have been doing for over a month now, and my head hardly ever itches or gets sores.
Lexington Park, Maryland
Lemon Soaks for Morgellons
I have spent thousands on remedies for Morgellons , ( I have the insect or nanosect kind ) Yesterday I tried something just on a whim and got a surprise with wonderful results but before I get to that I want to say I don't have lesions so keep that in mind should you want to try this, I took 1 cup of concentrated lemon juice I bought cheap at a dollar type store, put it in my bath water and got my ears down under the water and kept them there for ten minutes and stayed soaking for 30 minutes, I saw bugs in the water ! After my ear soak I put dandruff shampoo on my head continued my soak, then washed my hair and rinsed off, I have not had one crawly or biting feeling anywhere on my body except in my left ear ! I feel whatever is in there can't be killed as I have exausted my efforts trying to kill it. I'm going on the second day now and feeling pretty good, but I will alternate my soaks between Borax, then Hydro Peroxide & sea salt , then back to the lemon, these things seem to become resistant to just one remedy. Sipping 1/2 tsp of lemon in a bottle of water a couple bottles a day, also seems to help. Good Luck n God bless
Wearing only linen clothes (100% of course) and using linen sheets has brought some relief. It also speeds the healing process of the skin.
I suspect I have Morgellon's Disease...I contracted many Black Fly bites while golfing up north 2 1/2 yrs. ago. These bites seemed to evolve into many more of which bled profusely, itched, stung and had many, many black dots which I suspect were the bugs/insects contracted from the fly bites. I have been to 4 GP's 2 Dermatologists. The last Dr. claimed it is a "bacterial infection". I have 3 creams - all from the cortisone family - "lyderm" (applies 2x per day) is most effective. The lesions are now beginning to clear up. When they start (a small pin prick of a lesion), I apply the Lyderm cream and it clears the lesions up more quickly. I was tested for Lyme Disease which proved negative. However, I firmly believe this problem evolved from the black fly bites. I might add - sea salt baths help in a big way as sea salt softens and soothes the skin. I also have experienced hair thinning/loss, which seems also to be a symptom as my hair begain to fall out shortly after the fly bites occurred. Stress seems to be a factor (so I have read) and frankly, I have had a great deal of stress in the past 3 years. Whether this is a factor, I'm not so sure. Black flies carry germs and parasites. I hope and pray someone finds a cure for this hideous disease. I also wish to add, since I started using the Lyderm cream, the itchy feeling in my eyes, ears, nose and scalp has disappeared and the black specks on the lesions seem to be somewhat diminished. Hope this helps.
Wb, Nj, Usa
I have read contradictory info. on various sites re the use of magnets, far infrared heat pads and the zappers. I am using the borax, peroxide, baking soda the past two months; unfortunately has made the symptoms worse. Before I invest in expensive products, has anyone used either with any success?
Harbor City, Ca