Lichen Sclerosus Remedies

I have tried just about every natural remedy that is listed in EC even with help of my naturopath for a few years. I finally went to a dermo who is well versed in LS and he prescribed Acitritin (ended up on 25 mg per day until he decides to decrease again. We ramped up originally as he had good results with other patients ). I also use a topical as well. I still get flares but it is from stress or skipping the ointment a few days or weeks. He feels if I do this for a year I may be able to go off of everything. My skin is so much nicer. The ointment is called Tacrolimus 0.1% Doc also has me use Burt's Bees baby wipes. He is in Chapel Hill NC. Dr Kenneth Becker. Some of the natural stuff would work a few days or weeks and then I would get a horrible flare. This rash just seems to continuously morph... but that is autoimmune stuff. I keep reading just incase something diff comes along so I don't have to do the drugs. (btw, my LS was a dry spot outside vagina and then a 'hot spot' where my butt cheeks touch. I have gotten 'plaque' (really weird dry skin) in both those areas. I had also had like a thrush baby rash from my mound up and over my belly. I have my labia and clit. Good luck all.... lots of work. hugs~

I have also been diagnosed with Lichen Sclerosus and the meds from the Dr have not helped. I have purchased an organic Castor Oil (Aura Cacia) but it says for external use only. Is it still ok to use inside the vaginal area? Along with the Lavender and lemongrass essential oils.

Any help is appreciated!!

Thank you

Lora, can you tell me where you read about the connection to Lyme's diesase?

You may have more success using white oak bark supplement and baking soda in your bath and for soaks.

Another possible cause of LS...

I have had LS for 20 years and while it mostly stayed calm, lately the itch around my genital area is off the chart so I am delighted to find lots of options on your site to try out. I had a suspicion, which others have validated, that years of wearing sanitary towels is a possible contributor, especially if during the 70's, 80's etc.

Anna,

Please I need to know exactly what the cream is and where to get it urgently. The pain is immense.

How can I get some of the comfrey cream from Croatia? I am desperate😟

UN-FUSE, I mean.

I am hopeful! I suffer every day! Pain to even sit down!

How do I mix this? Is it straight castor oil?

Is the castor oil with essential oils still working for you? Can you tell me what kinds of changes you noticed, and how often you apply?

How did you mix these things up? Please give specifics. Thanks!

Just found out I have Lichen sclerosus on my forearm .. That's a good place I'm finding out .. I only hope it doesn't,, show up >>somewhere else>> doing what the doctor ordered .. Right now clobetasol for three weeks. Keeping it covered .. But thing is it doesn't itch,, not yet .. I've had it about two months .. So I'm looking for natural cures.. I see I have many I already found out .. Trying baking soda,, helps most fungus .. don't like alkali environments,, same as cancers .. I'll keep you all posted on my results..

Try Mama's dilution mentioned above in this thread.

What is the ratio to mix the caster oil lavender and lemongrass oil?

I've been mixing a batch of castor oil and lemongrass and lavender oils rather than mixing every time I use it. It isn't helping very much and I've been using it daily for months. I use clobestol sparingly as it can make the situation worse my doctor said. Any other natural remedies that someone has tried.

I've had LS in my genital and anal area for years. Stopped using steroids because of the thinning of skin in that area. It would split and bleed. I've used 1% hydrocortisone cream for the itiching and try to remember to put it on several times a day before the itching starts. I recently saw a spot on my underside of my breast. The dermatologist diagnosed it as LS without knowing I'd have a previous history. the strange thing is, it has never itched. I'm wondering if the itching is more common if the LS is located in parts of the body where it's skin on skin, or if natural moisture has something to do with it. I am going to try some of the remedies suggested on here. Right now, at the direction of the doctor, I'm back to using a steriod cream, but I want to get away from it as soon as possible. Thanks to all for your input. I've learned a lot.

Hi there, I have recently been diagnosed with LS and would like to try natural therapy. I have lemongrass & lavender essential oils, along with castor oil. I was just wondering if you could please advise how often and for how long you applied? Is it something that needs to be applied daily for the rest of my life? I was also wondering how u insert it? I feel that I'm strugggling with this part. Thanks for your time.

Can you tell me or email me the name of your doctor? I live in the area and I have been researching the treatment. Thank you for sharing!

Can you tell me what Dr. you went to? Would greatly appreciate it. Thank you.

Ocean51, could you be so kind and give an update on how you are doing now, please share your doctor that performed the treatment for you, thank you

Hello Ocean51, how is your LS doing atm? This post is from 2 years ago but I hope you will read my message. I have recently been diagnosed with LS and I am looking to try PRP. Your feedback will be extremely helpful. Did you need to do another PRP treatment of several sessions? If yes, in how many months after the first one? Was the effect as strong as the first time? Are you using any steroid creams atm?

Warm regards,

Lana

Dr. Coyle does PRP with laser treatment called the Tulip procedure. He is in Pensacola, Florida.

Hi,

Would you mind sharing the details of where we could find this dr please

Jodi, I think you've got something there. I've had LS for almost 30 years. It started in 1987. I was having sex with my ex-husband 5 years after we were divorced. I think mentally I was trying to stop and that was my defense mechanism. Thank goodness he met someone and stopped needing me. You mentioned Aloe Vera but didn't say if it helped. Please let me know.

does it cure it?

Is it still working and any changes in the fusing?

Hi Linda, May I ask where you had your UV therapy done? Was it at a dermatologists office? Thanks.

Hi Linda, May I ask where you had your UV therapy done? Was it at a dermatologists office? Thanks.

I have a theory about lichen sclerosus and wondered if it applies to anyone else. I heard that girls born to women with an overactive thyroid whilst pregnant have a high chance of developing LS. This applies to me, does anyone else have a mother with LS and who had it whilst pregnant?

My mother had a thyroid operation when I was very young. I think she had it removed and subsequently was told that it was underactive as she gained weight. She developed LS of the vulva in her 50s and now has scleroderma in her fingers. I have never had any health problems but at the age of 43 I developed LS of the vulva. Could be an interesting line of enquiry to see if there is a connection.

Did you drink this concoction or insert it?

How are you doing now??? Has anyone else tried the borax? I would assume it was as a drink.

Lichen sclerosus: I've been taking 1/8 tsp of Borax powder dissolved in water twice a day. I'm using Borax that is found in the laundry detergent section. It has not helped after 2+ weeks. Any suggestions?

Does anyone know if this mixture would burn, I hear baking soda is strong?

Can you tell me if baking soda is the same as our bicarbonate of soda please?

Does it stop the spreading of the affected area?

Yes, in Austalia, probably same in Scotland, Baking soda is the same as bicarbonate of soda. I use bicarb. of soda in a spray bottle of distilled water after urinating. Easier than using heaps in a bath. It does ease the itch but doesn't stop the condition, which is an autoimmune disease according to naturopath. GP's just recommend the high-strength steroid ointment.

How often did you apply the "castor oil, lemon grass lavender" mixture. I'm having a flare up and it's painful. Can't see my Dr.till April...she's booked up. need relief now!

I was wondering is your niece still doing well with LS....using the lavender and lemon grass ..frankincense?

Eve,

Could you please update on your Lichen Sclerosis.

Thank you for sharing. I will try this.

Do you mix all 3 and just apply to affected area?

Hi Emily, Do you mean you are cured? Is it really gone, or 'just' the symptoms? I can prevend the itching by using oil on the white area, but the pain stays. I do not eat/drink: gluten, sugar, dairy, alcohol, black coffee, black tea. I meditate and sport a lot. My main whish is to get back the soft skin around my clitoris. It is hidden now...and I would love to dare being intimate again, without pain and with more joy!

Emily, Do you mean you have cured your Lichen Sclerosis by eating a raw food diet? How many weeks of eating the raw vegetables, including the greens, and berries as fruit did it take?

Are you still cured? Do you no longer have 'itch" or 'white patches" in the pubic area?

I bought a book called " LICHEN SCLEROSIS -HEALING THE DISEASE" by Ginny Chandoha...Helping the Body Heal Naturally" ISBN9781836711345, , , how she cured her lichen sclerosis..

Among other things, she used organic, unrefined, coconut oil on her itch and stopped the itch at that moment...etc She eats organically.. Also heard that Dermatologist Doctor prescribed steroid cream DESONOIDE CREAM 0,05% that took itch away..to be used sparingly.

Has anyone read this book or tried this cream? And cured themselves? I just got this book this week. Great ideas in it that helped me a lot.

Priscilla-on March 4,2016

If you happen to see this, could you post how you did the essiac tonic detox? I drank essiac every day for a year and it made no difference but I didn't change my diet.

I have LS and hypo/hyperthyroidism depending on thyroid med dosage :) It fluctuates all the time. I currently started using Ashwagandah for thyroid and adjust it according to hypo/hyperthyroid symptoms (Now using three a week - Mon, Wed, Fri). Seems to be a good fit for me. Haven't had a blood test since starting it almost a year ago; but according to the symptoms it is working well. It is good for many other medical issues too.

Didn't know LS and thyroid were linked. This is interesting. I use various combos of essential oils in emu oil topically for the LS ... the itching of LS is less with ashwagandah, but the rash and patches are still there.

How has the honey treatment been going?

A further question about the use of Frankincense Oil - did you use it topically or did you take it internally?

I'm very interested in your post as I have had Lichen Sclerosus for 2 years and been on Steroid cream, which has stopped working. I would love to use a more natural approach, so thought I would try Frankincense oil - do you put it in a carrier oil? And do you apply it directly to the area affected? Thank you so much! I am looking forward to enjoying itch free evenings. Debbie

Frankincense - why not, I have tried everything else. It has got to work. I have gotten rid of bread, sugar and dairy.

Can I mix francinsense mixed with coconut oil for lessions on vg?

What brand frankensense oil did you use?

Which frankincense did you use, pls. The product of India or Yemen? The latter very expensive.

Hi. Did you take the frankensense oil internally or use it topically? Thanks.

Hello. I've been suffering with lichen sclerosus for about 5 years now. I was wondering if the frankincense oil completely cured you of it. Are you having any issues to this day? Thank you! -Shelby

I tried the Frankincense and it caused a flare with me. I used it diluted with coconut oil and again with Emu oil. Nope, not for me :-(

Mama to Many, I tried mixing colloidal silver water with distilled water and coconut oil and drops of frankincense and lavender. It burned so bad! What to do? Lessen oils? even coconut oil with baking soda burns badly. I don't know what to do anymore! It is spreading. I am going to try emu oil or castor oil now.

What kind of lavender oil did you use? And where do you apply it at?

Buy organic lavender oil on Amazon or EBay.

You're right, cold water always work.

Ann- I just read your post from years earlier. I am next door in Woodstock and similarly situated re the LS. How are you?

By VJ do you mean vulva?

Did you just go wheat free and sugar free, or grain free? Due to my jst flashes, insomnia, my nutrtionist said I should give up all grains which I did for almost two months and things were getting better but not quite perfect, I think nightshades and dairy are culprits... It was just so expensive eating organic, buying all my vitamins, etc that I. Ould to keep it up. I ended up going on bioidentical hormones which mostly work. I believe I have had LS for over ten years and just now my Dr did a biopsy for it. I'm using cortisone but it's only been two weeks and things are a bit better but far from perfect. I have raw areas around my opening that aren't healing much, I have not been able to have intercourse for six months. Wondering what to do. I will try wheat free and sugar free and go from there I guess.

What brand of Essiac tea did you use? I am desperate. There are different brands... Liquid and powder. Please advise. Thank you.

Hello.. Re: LS... Where did you purchase the Essiac Tea?
How are you feeling now?
Thanks!! Victoria

I have Lichen Sclerosus and am 16 wks pregnant. Would essiac tea be safe?

How is the Kreosotum and petroleum used? Is Kreosotum an over the counter cream or pill?

I think that's what I have. Where do you order the tea because I itch the most at night

Hello, I'm wondering how to use the essiac tea for lichen Sclerosis, I'm reading that people have said they followed the directions, you mean just what the bottle says? Or is there a specific way to take it for lichen Sclerosis? Thanks so much for any help!

I am newly diagnosed and after reading so much about this disease, I am terrified. I already suffer from fibromyalgia and Rheumatoid arthritis. I really feel that a cleansing diet and natural remedies are the way to go. The high strength steroid cream just made it worse. My Dr. won't listen and insists I keep using it! My body is telling me something different. Going to try all these natural remedies until I find what works for me. Thanks for all the support on this site.

Can you tell me how you are doing after the TULIP procedure?

I am having a hard time locating folks that have had the procedure +1 years ago.

Any info would be greatly appreciated.

Is the TULIP treatment like the MonaLisa Touch procedure? I have had the 3 treatments and still have the white skin but not the bouts of wicked itching. It is manageable now to wear clothes. I also soak in baking soda and epsom salts with lavender oil added to the bath. I am curious if the TULIP treatment would help.

Hi Daisy, Can you tel us how long you took the essiac tea tonic and how many times a day did you take it? How many drops? You are the first person who has ever been cured of LS that I have seen. I have Lichen Planus and have been trying to cure it for almost ten years. My doctor and dentist admit they don't understand the disease. Mine is all internal and systemic, no skin outbreaks.

I have been trying Lisa's suggestion for water kefir for about a month and I think it is good for the whole body. I have ordered some essiac tea with high hopes, and passed your tip along to others with LP. I am praying this works for me and others. Thank you so much for posting!

Daisy, where do you buy your essiac toner with no alcohol? Looking on the internet and seeing only ones with alcohol in them.

Daisy, thanks for your reply. Is this tonic something you need to take everyday? You mentioned using 3 bottles for a whole year.

Hi Daisy, I ordered essiac tea, which I will brew at home, and it should be here this coming week. I hope it will work as well as the tea tonic, which I didn't see on the Internet. If this works, you will have found a very elusive cure and many people will finally find some relief from these miserable autoimmunes. I have tried every lead that seems plausible for ten years and I'm so excited to try this! Thank you, Daisy, for posting your experience on EC. I hope we get a bunch of success stories!

Thanks Daisy, I am going to get some Essiac and will certainly let you know the results. I absolutely believe in miracles. God doesn't always work in the same way for all people, but I won't know if this will be my miracle too until I try!

Daisy, I am going to try it and I will let you know for sure if it works.

I have LS and want to know how to apply the essaic tonic.

You drink it.

If you type in Essiac Tea in your browser you will find all the information you need to make a decision about using this product. I have just started to use it.

Do you drink it straight or mix it with something?

So Daisy, after 5 years, how is the LS? Did the Essaic Tonic Tea work?

I have had LS for 18 years. I have tried everything my doctor has suggested and had it under control for many years. About 1 1/2 years ago I had a flare up that has persisited. I am burning and itching. I can no longer use the prescription medications. I have tried Perrins products which helped at first but are no longer giving any relief. I am considering other options such as Emuaid and the Zinc Oxide powder or Scar-Zone mentioned above. I have tried Desitin which contains zinc oxide, in the past however, and am wondering if I need to even try to zinc oxide products. Can someone tell me if there is a significant difference? Has anyone tried the Emuaid?

Also, for immediate, calming relief there is a product which is mixed with water and used as a compress. It is available at most drug stores and is similar to the vinegar idea. I have used this for years with flare ups.

I brought some zinc oxide powder. Do I make a paste and put it on the affected area?

Hi - I have had LS for 30 years, but until recently I have not had to treat. I use emuaid, in fact I just ordered the moisturizer bar today. It works very well for the itching and burning. I stopped using it to treat with hormone cream my dr prescribed, and this was a big mistake. I cancelled my follow up appt with the dr and started using the emuaid again. Like every one else, I am looking for something to fix me, so I am also trying many things which I have found on this site. Lavender has also worked well, I mix a few drops in with the emuaid. Good luck!

Hi. Did you make a salve of the baking soda and baby oil or soak in it?

I was diagnosised with Lichen Sclerosus August 2014 and prescribed Clobatesol which worked great for initial flare up. I have had two additional flare ups which seem worse each time. I am seeking natural healing options. How do you use the ACV and Baking soda, as a soak or place directly on inflammed area?

Hello, I am thinking I may have LS just because of the symptoms I am experiencing. Can all of the essential oils be used in conjunction with one another? Also would Vitamin E oil work as well?

How are you using the essential oils (Thieves)? Taking orally or applying to the site?

Until you have figured out the cause maybe you could use a homeopathic cream such as Hypericum and Urtica. This is extremely mild and soothing and can be used for burns and stings etc, if it doesn't help, it certainly won't hurt.

Please, tell me more about the low-oxalate diet. I have not been diagnosed with Licen Sclerosus but I have all the symptoms and they are getting worse. My life has become terrible with my husband, I lost sleep from itching and pain, the obgyns ignore me. Only now I found out what I have.

I need all the help to diminish my agony.

Have you heard of sitting in a bath with borax and baking soda? Look up the borax conspiracy.

I have had it for 3 years. For intense itching I use desitin maximum strength, wear white cotton panties with unscented panty liners, and drink organic apple cider vinegar all natural drink, ( found at health food stores and festival food store) 8 ounces 3 times a week. Also when I followed a gluten free diet and no artificial sweeteners my LS was gone. Now I restarted the gluten free diet and no aspartame.

I have had lichen sclerosis for years, it got so bad I went to a Specialist at a Nuffield hospital, finally I found out the name of it. I'm 79 and 3/4!

I tried the "Emuaid" cream, it came from America and was nearly 68 dollars!!! I found out later that it's on "E-bay" much cheaper, it only lasted me a week but it was so good! So soothing, but I can't afford it!

I'm going to try the "Gluten free and Low Oxalates diet, I have done a lot of research on line, my ls is particularly bad at the moment. Wish me luck!! Margaret.

Please help on this diet and how long till see results?

Try an antihistamine for the itching. I use non-drowsy and regular. It really works. Be aware that you need to take BEFORE the itching starts. Good to help you sleep.

Thank you for the response, so good to read this.

I will try the argile verte and castor oil and the baking soda, I will try everything!

Tomorrow I go take acupuncture, see if this is any help.

How much Zinc Oxide powder, and how often. Do you apply it or ingest it?

Zinc oxide powder is only for external use. You can look for a diaper rash cream with zinc in it for external use.

How are you now? Do you still need the Zinc? Has all the skin returned to normal? Hope you are doing well.

Can you please post what kind of neem cream please!

Hi Cindy, I have been with LS for 2 years now, my symptoms had disappeared during this past year but came back with a vengeance, you said you bought powerful antioxidants, can you share which kind, were they powder form, last night had a sitz bath with ACV for the itching and put some clobetazole or else wouldn't have slept much

Coconut oil works for me. Very natural.

I have vaginal Lichen symptoms and have had chronic vaginal candidas for many years. I am wondering if vaginal yeast infection is THE precursor to vaginal Lichen Sclerosus? Has anyone had the Lichen problem without a pre-existing candidas problem? Just trying to locate the possible origin of my condition. Thanks.

Hmmmm... Interesting, I've had Lichen Sclerosus for about 8 years. Over the past year I've had chronic yeast infections. Any suggestions would be great!! Thanks

How did you use the ACV? Please share measurements for your mixture. Thank you!

How is apple cider vinegar demineralizing your bones? I thought it made the calcium in foods more absorbable? Please explain.

That's interesting, I have developed the condition since having an ovary removed. I wonder if correlated with the surgery?

Please tell us what this concoction is that you mentioned? I refuse to use mainstream medications to treat this!

Thank you for sharing your remedies. Do you apply the lysine and aloe Vera topically or take it orally?

For the LS to stop the intense itching... Take the lysine powder and mix it in the Aloe Vera and apply topically. You may need to start doing it 3x/day until it puts the fire out, then you will only have to do it daily. It worked for me. Best and stay blessed. This is an awful disease.

Finally.. A website that gives me some hope. I have written down EVERYone's suggestions and may have to give up work just to manage this LS!! (I wish). But, thanks all for sharing the tips.. I about to embark on a gluten & dairy (&sugar) free diet, see a naturapath AND try many of the 'remedies' on this page. My wish is to stop the steroid creams.. that stop itching but not the progression.. And keep enjoying sex!!

Aine, If a person has an autoimmune illness, this would overstimulate the system to attack the body even more.

“Hyperimmune egg is an egg from a hen that has been vaccinated against certain infectious diseases. The hen develops specific antibodies that rev up the immune system to fight the specific diseases included in the vaccination. These antibodies pass into the hen's eggs. People harvest the eggs and remove the antibodies. These antibodies are then used to treat diseases in people.”

“How does it work? – Antibodies contained in hyperimmune egg are thought to stimulate the immune system and help the body fight disease.” – www.webmd.com

I have never used the creams or vagisil and I have lichens sclerosis. I do eat primarily organic foods sourced from local farmers markets along with ranch raised eggs dairy and meat.

I find recent stress has aggravated my lichens, that had been in remission. I will go back to the obgyn for evaluation today.

I will seek more prp treatments and one of the topical treatments on this site. I can't tolerate the steroids. The platelette rich plasma treatment has kept the symptoms at bay for over a year. I will keep my hope and faith that it will push it back into remission. I am afraid I will have to change my work out routine as well. It's a life style thing, I'm afraid.

Has anyone tried Coconut Oil for this condition (LS) ?

I have had LS for a few years to the puzzlement of my gyn until September when the white spotting finally appeared. I tried calendula oil then castor oil and now I am in my 2nd week of Neem oil with a green tree extract added 2 or 3X a day. It is messy but it brought me healing relief.

The others brought relief from the itching and bleeding which is a blessing but I want it to heal and not continue to split.

I have had Lichen Sclerosus (LS) for 2 1/2 yrs with almost no itching but lots of inflammation and soreness. The steroid ointments just seemed to make it worse. I tried apple cider vinagar on a little cotton with water and this seems to help the inflammation. I can't wear underwear/long pants as it seems to irritate the area. Does anyone else have the same type of LS? I am tired of going around in my nightgown. Thanks

Ook mijn ayurvedische arts zegt geen fabrieksmatig verwerkt voedsel gebruiken.

Dutch Translation: Also my Ayurvedic doctor says don't use factory processed food.

Kerry from Winatchee....... I also suffer from both ailments - adrenal fatigue and lichen schlerosis. I had the lichen schlerosis under control with steroids, but now it's back worse than ever a few years later. I'm looking for a better solution. Natural if possible.