Lichen Sclerosus
Natural Remedies

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Lichen Sclerosus Remedies

Clobetasol

4 User Reviews
5 star (2) 
  50%
4 star (2) 
  50%


Posted by Marlene (Nc) on 09/25/2020
5 out of 5 stars

I have had LS for years and only had it diagnosed 2 years ago. My dermatologist put me on Clobetasol Propionate and it works wonders.


Clobetasol
Posted by Madeleine (Sherbrooke, Quebec, Canada) on 10/10/2014
4 out of 5 stars

Worked Temporarily

I have had LS for 10 years and was prescribed Clobatesol. It did help in the beginning with the white patches and the itch but still got flare-ups that are excrutiating. I have never been able to stop using it for any lenght of time and would have flare-ups that lasted for weeks. This creme has done absolutely nothing for my LS for the past 4 months, I don't know if the area is now immune to it. I'm willing to change my diet but do not have a clue where to start. Are there certain foods that I should stay away from? I don't eat processed food or junk food, I eat lots of fruits and vegetables, I eat poultry and some fish. I thank you for any advice you can give me.

Replied by Janice
(Florida)
09/24/2015
4 out of 5 stars

I have had LS for 4 years. The clobetasol worked for the itch but I still and very sensitive there and cannot have relations with my husband I'm afraid the skin is too thin and It may tear. This is a problem! I recently got a book the autoimmune solution by Dr. Amy Meyers and yes a change in diet which she goes over in detail. I started 16 days ago and have been caffeine, sugar, wheat, dairy, and gluten free ever since and I am losing weight, and strengthening my gut. I have hypothyroid and want OFF of the medicine which in 30 days she can have you well on your way The recipes are easy clean and so nourishing that I am NEVER hungry I recommend the auto immune paleo cookbook. Made several recipes and I LOVE it

Replied by Art
(California)
09/26/2020
953 posts

Hi Marlene,

The clobetasol is one of the strongest topical steroids and the body seems to build resistance to it and it can not be used in multiple areas of the body such as the face, genital areas and the armpits as it can cause other issues such as thinning of the skin and discolorations of the skin. It can also cause high blood pressure if used over large areas of the body as well as blurred vision and high cholesterol. Hair loss is another side effect as is stretch marks. Itching is also a common one These side effects may or may not be reversible once the clobetasol is stopped.

https://www.drugs.com/sfx/clobetasol-topical-side-effects.html

I say this, not to scare you, but from experience.

Art


Coconut Oil

Posted by Victoria (Wichita, Kansas) on 12/06/2010

Has anyone tried Coconut Oil for this condition (LS) ?

Replied by Deziner
(Pennsylvania)
07/24/2020

Soy and Canola oils both cause severe itching swelling and inflammation. Grains of any kind also cause reactions. Eliminate wheat, oats, corn, rice, mullet, quinoa, barley, and all oils made from them. I'm convinced it's an allergy for me.


Coconut Oil, Homeopathy

2 User Reviews
4 star (2) 
  100%


Posted by Linda (Auburn, Ca) on 05/01/2015
4 out of 5 stars

I was diagnosed with Lichen Sclerosis on April 16, 2015 after my OB GYN did a vulvar biopsy. I had been suffering for 20 months with symptoms but the current flare up has been the worst ever. My doctor prescribed the steroid, clobetasol, but I must be allergic to one of the preservatives because my symptoms became even more intense. I have stopped the steroids and I'm searching for some type of relief. What has been very soothing is using organic coconut oil before (used as a barrier) and after going to the bathroom. Two days ago I picked up a homeopathic remedy for shingles at the health food store that has greatly reduced the itching and pain. It did sting when I applied it so I have been diluting it with castor oil.

My question: Has anyone tried UV Light Therapy as a treatment for LS?? I had a horrific eczema outbreak on my legs and after using the UV Light Therapy, it completely sent away and has never returned.

Replied by Rusty
(Lansing, Mi)
05/08/2015

Hi Linda, May I ask where you had your UV therapy done? Was it at a dermatologists office? Thanks.

Replied by Rusty
(Lansing, Mi)
05/08/2015

Hi Linda, May I ask where you had your UV therapy done? Was it at a dermatologists office? Thanks.

Replied by Pan
(Holland)
05/28/2015

I read about a 60 year old woman, here on EarthClinic, who has been healed by UVB light treatment (eximer laser). Her symptoms have been completely reversed. I wish she could tell us who gave her the treatment. And how comes this is not world news?

I will ask (again) for some Dutch doctors here and will let you know. In the meantime I sit in the sun, in lotus... now and then.

Replied by Ref
(Iowa)
09/11/2016
4 out of 5 stars

I also have found coconut oil to be very helpful and it does not have the odor or expense associated with the creams for LS sold on Amazon. Also, I am afraid of using too much clobetasol proprionate and allowing it to thin the skin. Coconut oil lets me to spread the steroid on thinner and use it less frequently.


Cold Water, Evening Primrose Oil

2 User Reviews
5 star (2) 
  100%


Posted by Ann (Kennesaw, Ga) on 05/18/2013
5 out of 5 stars

Have had LS for last six years. Severe pain and itching. Some days could hardly walk. I starting using cold water in a sitz bath every day what a relief. Every time I urinated poured cold water from tap overVJ. Also take evening primrose oil two or three a day. At night open a gel cap of the oil put on VJ. I am 90% better. I have tried everything. Cold Water is working for me.

Replied by Frankie
(Brooklyn Ny)
11/02/2016
5 out of 5 stars

You're right, cold water always work.

Replied by Thebiscuit
(Woodstock, Ga)
07/13/2020

Ann- I just read your post from years earlier. I am next door in Woodstock and similarly situated re the LS. How are you?

Replied by Elsa
(Beaupr)
04/23/2021

By VJ do you mean vulva?


Colloidal Silver

2 User Reviews
5 star (1) 
  50%
4 star (1) 
  50%


Posted by Cari (Ca) on 03/26/2016
5 out of 5 stars

I use colloidal silver gel for lichen sclerosis. Helps immediately.

Replied by Elisa
(Utah)
06/06/2016
4 out of 5 stars

For lichen sclerosis: I'm happy to see someone else on here trying colloidal silver gel. I have been using this also and it has helped a lot.

Replied by Rebecca
(Penna)
09/07/2017

I have been using this also.

I also do the borax and baking soda soaks, which have given amazing results!


Comfrey

1 User Review
5 star (1) 
  100%


Posted by Anna (Queens, Ny) on 09/25/2016
5 out of 5 stars

I cured the LS with a comfrey cream imported from Croatia. I suffered so much the whole last year that I did not want to live. My Croatian friend gave me the comfrey root based Croatian cream. It healed me. I don't have the itch and the inflammation anymore. I use it once or twice a day consistently.

Replied by Compastella
(Middle East)
11/28/2016

Anna,

Please I need to know exactly what the cream is and where to get it urgently. The pain is immense.

Sue
(Fl)
10/24/2018

How about cbd cream?

Replied by Laurie
(Lady Lake, Fl)
01/24/2017

How can I get some of the comfrey cream from Croatia? I am desperate😟


CoQ10

1 User Review
5 star (1) 
  100%


Posted by Ellie (Kansas City, Mo) on 08/17/2015
5 out of 5 stars

Recently diagnosed. Location in anal area, on chest, stomach, and legs. Oh holy night the Chronic anal itching during day is terrible!!! The SEVERE, wake me up, loss of sleep, night itch... makes me want to scream into my pillow and cry. Wait I have done that!!!! Punctured a COQ10 softgel and placed directly on anal affected area at 7:00 a.m. (Warning!!!! ' it Burned like hell but I felt instant itch relief. Burning sensation lasted 10 minutes) Just for testing purposes, I placed it again at 5:00 (still burned but way less this time) It is now 9:19, not one time did I have to sneak off into the bathroom at work to scratch and I have been laying in bed for over an hour without a hint of an itch. Crossing fingers (haven't had a solid night's sleep in 14 months & I hope this allows me to sleep through the night)!


Dietary Changes

4 User Reviews
5 star (4) 
  100%


Posted by Robin (United States) on 05/05/2020
5 out of 5 stars

Hi All, want to share my story so others may benefit from my struggles.

I had LS for more than 10 maybe 15 years. Saw my gynecologist (no idea of what it was); saw my skin doctor who did help and I can't remember what the ointment was but could only use it for a short amount of time, 2-3 times per week for a limited amount of time. This did take the itching away but the ointment was not healthy to take every. single. day. Which is what I needed to eliminate the itching.

Sooooo, I quit using it and suffered, for years. I tried all the diets, no sugar for more than 5 years, no gluten which I'm still off both these. Sometimes, no sugar/gluten would help but then it would flare up and no help again. I had the paper slits on both sides of my labia, one side was always worse than the other. The itching was INTENSE! Then the pain from the slits or the itching too much would be intense...AARGH.

Ok, so fast forward to today, errr well, 2 months ago. I read about the carnivore diet many years ago and this was one I had never tried. 2 months ago, I tried it...100%. Amazed me. 3 days after starting the carnivore diet, 100%, the itching stopped and has never returned. I still have the paper slits scars but there is no, opps repeat here, NO itching! None, zero, ziltch! And, it's been over 2 months with me being on the carnivore diet with only one minor cheat (hot herbal tea, 2 cups, with 2 hours inbetween) terrible reaction but still...NO itching. The diet is easy but greasy. No food craving...none.

The itching has never returned. My eczema rashes are nearly gone, just discolored skin. They have flared up during this 2 months but I associate that with loss of fat. I've lost 22 #'s and feel great. NO ITCHING! Heaven. I truly hope this helps someone.

Replied by Karen
(Meridian, ID)
05/06/2020

Robin, this is amazing! Please share with us a typical day's meals, and update after being on this diet for a longer term. Blessings to you!

Robin
(United States)
05/07/2020

Hi Karen,

The Carnivore Code written by Dr. Paul Saladino has all the science/know how you could ask for. He also has a website with loads of info. Watch some of Strong.sistas youtube videos. Here is a link to one that describes what they eat in a day on the carnivore diet, https://www.youtube.com/watch?v=k9C2O7F1UA4 .

They are a lot of fun to watch. They have been eating this way lots longer than myself. I'm so new and feel uncomfortable as I am such a beginner. The important thing here is, my crotch is normal now except for the scarring. It feels normal and behaves normal in every way. There are also lots of facebook pages on the carnivore diet; Women Carnivore Tribe, Carnivore for Beginners. I just found Strong.sistas and have learned a lot from them but you can get direct answers to your questions on the facebook pages. Finding out about all the toxins in plants to protect themselves from being preyed upon was an eye opener.

I've been organic and very healthy eating for years, not vegan tho but mostly salads with chicken or some sort of protein and a carb like sweet potato. You'll read a lot of healing stores from people who quit plants and went carnivore. It may not be for everyone but my LS took a quick nose dive and has not returned. My eczema is nearly all gone, just discolered skin. Lots of other subtle healings going on and I intend to stick to this diet, at first, for 3 months to see but the improvements are just great so am sticking to this diet for at least a year.

Good Luck on your journey and if you have LS, I pray you manage to get rid of it!


Dietary Changes
Posted by Carol (Canada) on 02/06/2020
5 out of 5 stars

I have found diet extremely important for lichens healing. I eat a vegan diet with salmon, no sugar, alcohol or night shade vegetables, I also use apple cider vinegar and water sprayed on after urinating. I bath in baking soda every second night and I use only natural products for cleaning. Don't scratch. I am healing more everyday and have no itch.

Replied by EB
(So US)
02/14/2020

Carol, do you eat wheat or other grains? Are you sure it is LS? Have you had a biopsy? Thanks.

Replied by Jen
(USA)
05/25/2020

Carol, I agree with your statement.

I was diagnosed a little over a year ago, and like many women, I've tried a variety of steroids, creams, potions, lotions, and salves etc.. with little to no relief. After having a severe flare 3.5 weeks ago, I was desperate and refused to go back to my 3rd gyno, who was no help at all. I researched and googled in desperation, and found several forums and Pinterest articles, where patients have treated it as a leaky gut/ and fungal overgrowth.

The remedies were all similar so I tried them! • I started to drink 1-2 tablespoons of Organic apple Cider vinegar with the mother every morning with 12 oz of hot water on empty stomach. • Purchased raw organics vaginal probiotic taken by mouth. • cut out sugars, gluten & diary • increased my vitamin D3 to 4000 ius daily as I was low confirmed by my Gp . • took vitamin K2 with D3 as it helps absorb the D3. • bought Nordics omega 3 supplement • raw juiced mid morning • purchased black African body wash • increased my b12 • drank a non dairy probiotic drink everyday • took 1 500 mg dmannose with cranberry daily. Helps with die off effects of fungus/yeast • applied over the counter clortimazole nightly on the white patches and labia • only used a little Cándula salve on labias and clit for moisture. • started taking collegen powder. • started taking plant digestive enzymes • drank lots of clean purified water After 5 days I got the relief I desired. The white patches are all gone, and the atrophy is much better and my tissue all around looks healthy and pink! I had no idea in my case that yeast/fungus was a factor. Who knew? I was even tested for it in the beginning.

It came back negative! I don't trust doctors. I don't think they are knowledgeable at all about this. I'm so thankful for forums like this.


Dietary Changes
Posted by Theresa (Kentucky) on 06/21/2018
5 out of 5 stars

Lichen Sclerosus is a terrible disease but it is manageable. I have zero pain or itching anymore. I would get rid of all processed foods and soft drinks. Take probiotics and drink kombucha tea. I have learned in my case that nightshade vegetables set me on fire. Take a natural hormone. Another thing get some DR Bonners organic peppermint soap. Only use that. I use the liquid. Also dr Bonners peppermint lotion is the biggest relief ever during an eruption. Take colloidal silver too.


Dietary Changes
Posted by Emily (Los Angeles, Ca) on 10/08/2014
5 out of 5 stars

All of my Lichen Sclerosus symptoms disappeared within about a week of starting the raw food diet + supplement. I had horrible LS symptoms for 2.5 years and was 12 doctors before being diagnosed. I also have contact dermatitis (skin allergies) and was prone to yeast infections, both of which made it even more inflamed. Anyway, after trying tons of home remedies and not wanting to be on steroids long term I decided to focus on my immune system.

So, I started taking Culturelle and eating a 90% raw food diet (MOSTLY vegetables and SOME fruits). I like to blend them up so the sweetness of the fruit makes it more enjoyable to eat a lot of greens. I recommend watching documentaries like "Fat, Sick & Nearly Dead" and "Food Matters" to kick start your new diet. Supplements I take are liquid B Complex, Zinc, Fish Oil, and a did a 2 week Essiac tonic detox which is easy and inexpensive. YOUR BODY IS ABLE TO CURE ANY DISEASE OR ILLNESS IF YOU PROVIDE IT WITH THE RIGHT FOODS. You should avoid sugar and minimize animal products (milk, eggs, meat). Less than 6% of Doctors get any nutritional education in school so don't listen to them if they tell you you don't need to make dietary changes like they told me.

Replied by Pan
(Holland)
12/06/2014

Hi Emily, Do you mean you are cured? Is it really gone, or 'just' the symptoms? I can prevend the itching by using oil on the white area, but the pain stays. I do not eat/drink: gluten, sugar, dairy, alcohol, black coffee, black tea. I meditate and sport a lot. My main whish is to get back the soft skin around my clitoris. It is hidden now...and I would love to dare being intimate again, without pain and with more joy!

Replied by Priscilla
(San Mateo, Ca)
03/05/2016

Emily, Do you mean you have cured your Lichen Sclerosis by eating a raw food diet? How many weeks of eating the raw vegetables, including the greens, and berries as fruit did it take?

Are you still cured? Do you no longer have 'itch" or 'white patches" in the pubic area?

I bought a book called " LICHEN SCLEROSIS -HEALING THE DISEASE" by Ginny Chandoha...Helping the Body Heal Naturally" ISBN9781836711345, , , how she cured her lichen sclerosis..

Among other things, she used organic, unrefined, coconut oil on her itch and stopped the itch at that moment...etc She eats organically.. Also heard that Dermatologist Doctor prescribed steroid cream DESONOIDE CREAM 0,05% that took itch away..to be used sparingly.

Has anyone read this book or tried this cream? And cured themselves? I just got this book this week. Great ideas in it that helped me a lot.

Priscilla-on March 4,2016

Replied by Ingrid
(Belgium)
04/06/2017

So strange, what a disease, a hope giving post and then silence. Disapppointing


Dietary Changes, Essential Oils

1 User Review
4 star (1) 
  100%


Posted by Cindy (Newberry Fl) on 03/13/2016
4 out of 5 stars

I started with Lichen Sclerosis at 56 years old in 2014 with a spot on my breast and white patches starting on the underneath side. This diagnose came shortly after I fell and ended up with a par fracture and bulging disks in my back. I used whatever cream they had giving me along with eating 80/20 alkaline. I completely healed that area and it hasn't come back to this day and it's 2016.

Over the holidays I splurged eating too much of the good stuff and started with it in the vulva area. At first I thought I just scratched myself while wiping. I started getting worse in the next three weeks. Sleepless nights and the scratching and rubbing was getting out of control. I finally called the gyno. I couldn't get in until Monday so that meant go the whole weekend. I faithfully took me essential oils and immediately got off everything that had sugar in it. I was in and out of the tub with a few inches of water and baking soda at least 25 times or more to get relief.

I had called the doctor on call that Saturday morning she told me to use desitin. It helped a little along with the bath. I also took some Benedryl. I finally got a mirror out and looked down there. I knew right away the Lichen Sclerosis had got me. Saw the gyno next day. She wrote the script for a steroid. When I went to pick it up they wanted 250.00 I just about started crying. I have been out of work for almost two years from that fall.

Little did I know at the time this was in my favor. When I looked up the Lichen Sclerosis I read terrible things about what the steroid cream does to you. There was no way I would use that down there. That stuff shouldn't be allowed. What the doctors should do is hook up with a homeopathic doctor and get educated. I couldn't get it so I went home looked up lichen sclerosis vs alkaline and lichen sclerosis vs essential oils. I get them from a reputable company. Find yourself a health coach that knows how to use them.

I stopped all the sugar, flours, fruits and vegetables high in sugar. (No carrot-sweet potato-potato-rice etc.). When I cheat (like have a few organic gmo free chips) I know it because my lichen sclerosis acts up again. I also used a product called emu oil-then switch to emuaid. They helped a lot. I'm running out of emuaid so someone told me her oncologist told her to tell me to use bag balm.

I am using that now. I also got a squirt bottle and rinse every time I pee with water high in PH/alkaline water. Tap water makes it sting. I no longer have any splitting and cracking and my color is back. I barely have any scarring left. You must take care of leaky gut to get this to clear.

Oh by the way I've already been able to have sex again. I am on the road to recovery and feeling better than I have in many years and I've lost some weight and inches too. I also found stress can also add to this problem. From my experience so far I'm finding for me that changing my eating habits is the way to heal and get past this lichen sclerosis.

Replied by Pam
(Wv)
07/20/2018

I was using bag balm when I didn't really know what I had, saw a blister...anyway, went to gyno and was diagnosed with LS. I also have IBS so that is a constant issue...Dr told me bag balm though wasn't really effective and may have made it worse. I had a complete hysterectomy last year. I do take estrogen because I was severely depressed. I do believe what you eat is a big factor. Before this diagnosis I lost 23 on WeightWatchers. The dr also said that a low estrogen level and rapid weight loss has also been noted as a cause of LS.

Besides all this, I already have had skin cancer, recently they found a freckle in my eye, this year it is raised so I see a retina specialist to rule out ocular cancer..and my Mother had anal-rectal cancer and a colostomy bag..she was in remission for 7 years but passed away in 2014 of liver cancer. My grandmother had Uterine cancer.

I'm no dr but I'm trying to figure out what things are linked together. I have nerve issues as well and my IBS has been going on since I returned from Desert Storm 27 years ago, we believe we were exposed to chemical agents. Now this LS thing is worrying me that I may get cancer in that area...


Eliminating Artificial Sweeteners

2 User Reviews
5 star (2) 
  100%


Posted by Lori7nty7 (Nashville, Tn/usa) on 01/21/2011
5 out of 5 stars

For Lichen Sclerosus, eliminate diet drinks, Soda and Crystal Light sweetened with aspartame from your diet. Aspartame is made out of wood alcohol, a toxin. When Aspartame 1st came out many years ago, I had the same symptoms, they now call Lichen Sclerosis. My doctor worked with me eliminating foods and drinks I was ingesting. We found my symptoms would elevate after aspartame drinks. After eliminating aspartame from my diet, I felt relief within a few weeks. Although it took a year to clear up all symptoms. I have been free of all symptoms for many years now. I read all labels, I do not eat or drink anything with aspartame.

Replied by Rita
(United States)
05/22/2014

I have noticed a lot of comments about artificial sweeteners being suspect. Not true in my case. I am 45 years old and have always avoided artificial sweeteners due to the controversies. I have found that less sugar, in general, has helped with mine. When I was first diagnosed, I was given Clobetasol. At the time, my vulva had scarring but nothing like it does now. I won't be graphic but I do believe the steroid cream/ointment is what has caused even more narrowing/scarring at my vaginal opening and various other important areas. I also, strongly believe, I have an undiagnosed thyroid issue.

Replied by Lynn
(California)
07/23/2014

Rita...for scarring: have you ever been offered estrogen cream (estradiol--prescription only in the U.S.) to apply to the scars? I have been reading that many people have seen their scars "break up" with the use of the cream. It doesn't matter what your age..even young children have shown improvement with it's use. It's not enough hormone to be absorbed by the body or change your own hormones. It's just a small amount rubbed into the scarred area. Do a search for Lichen Schlerosus and Estrogen Cream.

Replied by Elizabeth
(New Zealand)
02/27/2015
5 out of 5 stars

I don't know what the relationship is but I have flare ups if I drink sweet soda whether artificially sweetened or not, organic or the usual. I haven't noticed any other strong correlations.


Eliminating Dairy

2 User Reviews
5 star (2) 
  100%


Posted by Kerry (Wenatchee, WA) on 07/23/2009
5 out of 5 stars

I was diagnosed with Lichen Sclerosis 4 years ago in genital area and my eye lids. What I found that helps the most is to eliminate dairy from my diet. For a year or more, I had to eliminate all mammal products too. So no dairy, pig, cow, lamb, etc. So first, figure out if you have a food sensitivity. Second, DON'T eat foods that bother you. Gas, diarrhea, bloating, constipation. These are all signs that your body can't tolerate what ever you ate. Symptoms can be fairly immediate to 24 hours later.

Third, take a high quality fish oil. For me, 4,ooo mg seem to do the trick. I don't have any vaginal itching and my eyelids don't stick to my eyeballs at night as long as I unless I indulge in cheesecake on my birthday or forget to take the fish oil.

As a side note, as of two years ago, I have adrenal fatigue too. These measures help with that too.

Replied by Jackie
(Houston, Tx)
09/24/2009

Hi Kerry,

I noticed that you mentioned you had this Lichen Sclerosis on your eyelids. Can you describe what the symptoms are on the eye? I believe I have LS in the nether regions but noticed that my eyes have been very dry and itchy. I thought that maybe there is a connection.

Thank you,
Jackie : )

Replied by Paula
(Garrison, Ky)
09/29/2009

I have noticed the same thing, all meat, dairy and even sugar acts up my LS horribly. Ive basically went Vegan since the perscribed cream did nothing for me and my dr ran out of options and I was told to "learn to deal with it". I went on an all juice diet thinking it might be linked to my thyroid or something else so I juiced daily, then I noticed I felt great during the 7 days of all juice, when I added in food back in its when I noticed the symptoms back with in minutes of eating certain food. The only time my LS goes away is when Im sick then I have No LS at all until my cold/flu goes away then it comes back with a vengance!!!

Replied by Frannie
(Wilsonville, Or)
09/12/2010

Kerry from Winatchee....... I also suffer from both ailments - adrenal fatigue and lichen schlerosis. I had the lichen schlerosis under control with steroids, but now it's back worse than ever a few years later. I'm looking for a better solution. Natural if possible.

Replied by Rob
(Manhattan, New York)
09/12/2010

Some herbs to address adrenal fatigue are, Ashwaganda, and Rhodiola.... I would add to that a good mushroom formula with Reishi... Or AHCC if you can afford it. Also the B12, B6 and Folic acid to low homocysteine.. You will notice a difference with the above... But most importantly, exercise, (yoga) and meditation (walking, breathing)

Replied by Elizabeth
(New Zealand)
02/27/2015
5 out of 5 stars

Wow, I hadn't put the two together. My eyes are dry and red when I have the flare ups. Never realized that before this post. Thank you.



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