Hi All, First: thank you for all the help and advice, you are lifesavers. Second: the best thing I have found for LS is ozonated olive oil. I use it every other night and have NO symptoms and my red skin has turned a shockingly normal pink. I left my ozonated olive oil in the frig for about a month, scared to try it. It does burn at first, for about 10 minutes. It gets better each usage after because it is healing your sensitive skin! Good luck and good health to you all.
Ozonated Olive Oil
Ozonated olive oil has reversed my LS symptoms. I applied it to the labia area and it unfused the labia. I have applied a small amount 3 times daily for three weeks now.
I bought a small jar from a British Columbia company and when you receive it, keep it stored in the fridge. It's okay to ship via unrefrigerated mail though. It looks like solid vaseline. Reasonably priced.
There are many topical uses for this product, from acne to cuts and bruises.
After 5 years of suffering with Lichens Sclerosis, I must share what has given me relief and remission. My husband researched treatments and found an OB/ GYN in a neighboring county, who provides Platelet Rich Plasma Injection Therapy. This is an experimental treatment, and I am the 3rd patient she has treated with "PRP" for Lichens.
The 3 treatments with an out of pocket expense of $800 each have completely cleared all of my itching, Burning and white patches. Upon my follow up exam, my doctor stated she could not tell I had lichens! I do not have a reversal in vaginal tissue elasticity, but I believe my peri menopause contributes to that condition. My 3 outpatient treatments were completed in less than 2 hours each, and were non invasive. The process begins with your own blood draw that is put in a centrifuge for about 15 minutes. The platelet the rich plasma is drawn into a syringe and injected in the affected areas (with a large needle to protect the platelets) OUCH!, but the local helps a lot.
This 3 round treatment over 6 months completely cleared my lichens. No creams, steroids or prayers could do that. I was told to come back every 6 months, and that I may require more treatments. After a year I am still clear. This doctor was the first of 3 gynecologists to actually do a biopsy to confirm lichens sclerosis, I am forever grateful to her for taking the bold steps to help me.
FYI PRP is also known as the O shot and the Vampire Facelift, and is thought to restore healthy tissue and blood flow. Read up on it to see if this is an option for you. I know I would pay almost anything to rid myself of the agony of Lichens Sclerosis.
(San Francisco, Ca)
I have tried just about every natural remedy that is listed in EC even with help of my naturopath for a few years. I finally went to a dermo who is well versed in LS and he prescribed Acitritin (ended up on 25 mg per day until he decides to decrease again. We ramped up originally as he had good results with other patients ). I also use a topical as well. I still get flares but it is from stress or skipping the ointment a few days or weeks. He feels if I do this for a year I may be able to go off of everything. My skin is so much nicer. The ointment is called Tacrolimus 0.1% Doc also has me use Burt's Bees baby wipes. He is in Chapel Hill NC. Dr Kenneth Becker. Some of the natural stuff would work a few days or weeks and then I would get a horrible flare. This rash just seems to continuously morph... but that is autoimmune stuff. I keep reading just incase something diff comes along so I don't have to do the drugs. (btw, my LS was a dry spot outside vagina and then a 'hot spot' where my butt cheeks touch. I have gotten 'plaque' (really weird dry skin) in both those areas. I had also had like a thrush baby rash from my mound up and over my belly. I have my labia and clit. Good luck all.... lots of work. hugs~
Research serrapeptase for lichen sclerosus! Serrapeptase is an enzyme produced by silkworms that dissolves scar tissue in the body. I was diagnosed with LS five years ago and have been searching endlessly for a cure. Clobetasol and other natural remedies didn't help at all. My condition was relatively moderate, and my primary symptoms were fusing and whiteness with occasional discomfort.
I recently started taking serrapeptase to help with adhesions related to abdominal surgeries, and I discovered the LS benefit by accident. Taking 1 or 2 pills per day had no effect on the LS. I achieved remission only by taking higher doses of 4-6 pills per day. After about a week at this dose, I noticed that almost 100% of the fusing and whiteness had disappeared. The skin is completely normal now!
**Serrapeptase is contraindicated in people who take blood thinners. Consult your doctor before taking them. I am not on blood thinners, but I did experience a nosebleed at the higher dose.
I have has LS for 5 years now and I'm only 16 years old. So far no doctor has been able to figure out a cure to LS. I've done my own experiments and I've been using Shea Butter for 3 years and I rarely have flare ups or any itching. Though I notice I have more discharge but it's worth not having unbearable itching.
I have recently been diagnosed with lichen sclerosis. I have had severe itching and after trying many things which seem to relieve it for about a week and then it is like it develops some immunity to it, I tried vagisil. This has given me the most relief as a cream. But what has actually been helping to heal it and give much longer relief is sitz baths. I use some epsom salt, lavender, chamomile, comfrey, yarrow, and marigold, steep this in a sitz bag for a bit and add it to a very shallow warm bath. Then I add baking soda to the water and soak for 20-30 minutes. Doing this twice a day is best. This is still very new to me and I'm horrified to find out it is chronic and the damage it causes. I haven't tried the steroid cream yet but after reading the many replies, I'm very concerned about using it at all.
Egyptian Magic All Purpose Skin Cream works as well (if not better) then the prescription Clobetasol. It has all natural ingredients so can be used long term with no bad side effects. My OBGYN said that it was ok to use. The thought of using a steroid cream for the rest of my life bothered me. Glad to have found something safe. Buy it at Costco (best price), Whole Foods or online. Just use as often needed.
A bit of your own urine stops the itching of LS almost immediately but only temporarily. I also agree with others who have reported that staying alkaline helps.
Lichen Scelrosis - theory yet to be proved:
I have a theory that moderate to high use of Vaginal creams for Thrush etc aggravate or possibly even CAUSE LS. The only way to find this out is to get as many women as possible with LS to say whether they have used these creams a lot in the past. I had a history of repeated Thrush and used the creams many times - I notice now that use of these creams aggravate the itchiness and thinness of the area for up to 2 weeks after use. Please post a answer and see if we can 'find' the cause - the Drs have no idea, so....
(Los Angeles, California)
(Chicago, Il, Usa)
(Grantham, United Kingdom)
(Fraser, Michigan, Us)
(Bristol, Avon, Uk)
(Pasadena, Ca, Usa)
Castor oil is wonderful and soothing and aids skin healing.... BUT the CAUSE Of LS is a VITAMIN D deficiency which my integrative medicine MD, who is also a cardiologist, luckily knew all about (but not the gynecologist, go figure).
Take LOTS Of Vitamin D3 and also a small amount of Vitamin K2 to complement it, and the other cofactors for D which include magnesium, Omega-3s, and boron.
Your Vitamin D levels must get up to about 60-80 ng/dl. but not over 90 ng/dl. I was out of pain within 2 days of taking chewable Vitamin D3 3 X a day 5,000 units each. Still need to keep on top of it all. And now also include MSM, sulfur, another mneral we really need. ALSO Colloidal silver works to heal skin and other soft tissues.
I have found that the burning sensation I get from Lichen Sclerosus (biopsy diagnosed) is alleviated by Vitamin E oil! I just apply to my “hot” area as often as needed. Amazing relief. I have a steroid prescription too, but I'm concerned about using a product that tells you to use as little as possible. 😳
For Lichen Sclerosus, I have found that using a vitamin E capsule like a suppository overnight usually takes care of symptoms overnight. My MD prescribed steriod creams, which also work, but not as well. However, they are more convenient to use during the day. Although steriod creams are not natural, I believe a natural estrogen cream may work the same way. I have read lately that lichen schlerosis is often triggered by a decrease in estrogen in the body, so I'm experimenting with increasing intake of soy products, which contain natural estrogens. My MD also recommended probiotics and turmeric to control symptoms. Apparently, there is no cure available, just good symptom management.
Vitamin E and Quercitin Cream for Lichen Sclerosus
After years of steroid use and skin being worse. I recently tried a compound of 3% vitamin E with 1% Quercetin cream and it's worked beautifully. My skin was in such poor shape and painful and has been healing great. I've also used Vaseline with the fissures, but the quercetin has been healing my skin up and helps with inflammation
Lichen Sclerosus: Based on some of the suggestions on this site, I began using vitamin E oil and certified pure therapeutic grade Lavender oil on the affected area and all symptoms have stopped. Lavender oil has analgesic, antifungal, anti-inflammatory, antimicrobial and antiseptic properties, to name a few. I have had LS since puberty but was misdiagnosed until 3 years ago. No cure and steroids are a no-go for me so management is my focus. Symptoms vary based on diet, exercise, and hormones, though this combo seems to be working well so far. I may try the purple emu oil in the future or possibly make an essential oil combination using lavender, melaleuca (tea tree), and oregano. Thanks to the makers of this site! It helps a lot!