Lichen Sclerosus
Natural Remedies

Lichen Sclerosus Remedies

Ozonated Olive Oil

2 User Reviews
5 star (2) 
  100%

Posted by Elle (United States) on 05/12/2020
★★★★★

Hi All, First: thank you for all the help and advice, you are lifesavers. Second: the best thing I have found for LS is ozonated olive oil. I use it every other night and have NO symptoms and my red skin has turned a shockingly normal pink. I left my ozonated olive oil in the frig for about a month, scared to try it. It does burn at first, for about 10 minutes. It gets better each usage after because it is healing your sensitive skin! Good luck and good health to you all.

Replied by Karen
(AZ)
12/05/2023

I've been using o instead hemp oil too. Powerful and hemp has the highest frequency out of the oils so I thought to go that route. Have you noticed the white patches returning to healthy link yet? Does that even happen?


Ozonated Olive Oil
Posted by Gertie (Ontario) on 09/14/2015
★★★★★

Ozonated olive oil has reversed my LS symptoms. I applied it to the labia area and it unfused the labia. I have applied a small amount 3 times daily for three weeks now.

I bought a small jar from a British Columbia company and when you receive it, keep it stored in the fridge. It's okay to ship via unrefrigerated mail though. It looks like solid vaseline. Reasonably priced.

There are many topical uses for this product, from acne to cuts and bruises.


Platelet Rich Plasma Injection Therapy

2 User Reviews
5 star (2) 
  100%

Posted by Ocean51 (Carmel, Ca) on 06/27/2016
★★★★★

After 5 years of suffering with Lichens Sclerosis, I must share what has given me relief and remission. My husband researched treatments and found an OB/ GYN in a neighboring county, who provides Platelet Rich Plasma Injection Therapy. This is an experimental treatment, and I am the 3rd patient she has treated with "PRP" for Lichens.

The 3 treatments with an out of pocket expense of $800 each have completely cleared all of my itching, Burning and white patches. Upon my follow up exam, my doctor stated she could not tell I had lichens! I do not have a reversal in vaginal tissue elasticity, but I believe my peri menopause contributes to that condition. My 3 outpatient treatments were completed in less than 2 hours each, and were non invasive. The process begins with your own blood draw that is put in a centrifuge for about 15 minutes. The platelet the rich plasma is drawn into a syringe and injected in the affected areas (with a large needle to protect the platelets) OUCH!, but the local helps a lot.

This 3 round treatment over 6 months completely cleared my lichens. No creams, steroids or prayers could do that. I was told to come back every 6 months, and that I may require more treatments. After a year I am still clear. This doctor was the first of 3 gynecologists to actually do a biopsy to confirm lichens sclerosis, I am forever grateful to her for taking the bold steps to help me.

FYI PRP is also known as the O shot and the Vampire Facelift, and is thought to restore healthy tissue and blood flow. Read up on it to see if this is an option for you. I know I would pay almost anything to rid myself of the agony of Lichens Sclerosis.

Replied by Kat
(San Francisco, Ca)
08/25/2016

Can you tell me or email me the name of your doctor? I live in the area and I have been researching the treatment. Thank you for sharing!

Replied by Kathy
(Capitola)
05/16/2017

Can you tell me what Dr. you went to? Would greatly appreciate it. Thank you.

Replied by Saro
(Nashville, Tn)
07/15/2017

Ocean51, could you be so kind and give an update on how you are doing now, please share your doctor that performed the treatment for you, thank you

Replied by Lana
(London)
04/15/2018

Hello Ocean51, how is your LS doing atm? This post is from 2 years ago but I hope you will read my message. I have recently been diagnosed with LS and I am looking to try PRP. Your feedback will be extremely helpful. Did you need to do another PRP treatment of several sessions? If yes, in how many months after the first one? Was the effect as strong as the first time? Are you using any steroid creams atm?

Warm regards,

Lana

Aloha Granny
(Maui)
09/08/2021

Dr. Coyle does PRP with laser treatment called the Tulip procedure. He is in Pensacola, Florida.

Replied by Melanie
(London)
02/28/2022

Hi,

Would you mind sharing the details of where we could find this dr please

EC: A number of doctors now perform Platelet Rich Plasma Therapy. You can search Google using those search terms for a local doctor in your area.

Replied by Lisa
(New Jersey)
01/18/2024
★★★★★

Stem cell PRP is the only thing out there that comes close to a cure for LS. Dr. Nathan Newman in Beverly Hills California has performed this technique on over 200 LS patients all 100% show improvement or go into complete remission for years. See his Yelp. People confuse the two techniques:

PRP: platelet rich plasma: They also call it the O-shot or Vampire shot. The technique is, they draw your blood, spin it down and extract the plasma which rich with platelets. Then they inject the plasma into the affected areas. The platelets release multiple growth factors that stimulate the regeneration of health tissue in the genital area. It last for about 6 months to a year, however some patients go into complete remission with just PRP alone.

Stem and PRP therapy: is combo of PRP and stem cells. They first inject the PRP into the LS areas, then do a small liposuction removing fat from one area of the body (e.g. tummy) and inject it into the LS areas. The fat contains stems cells that can turn into the surrounding tissue. These stem cells also release anti-inflammatory chemicals prevent further inflammation. Also the PRP stimulates the stem cells to grow, and they continue to grow and take over the whole area bringing the genital tissue back to normal. The immune system does not recognize these new cells and therefore stop attacking the area rendering the patient ASYMPOTOMATIC! IT WORKS!


Prescription Meds for LS

1 User Review
4 star (1) 
  100%

Posted by Jillery (Rawlly, Nc) on 12/24/2017 88 posts
★★★★☆

I have tried just about every natural remedy that is listed in EC even with help of my naturopath for a few years. I finally went to a dermo who is well versed in LS and he prescribed Acitritin (ended up on 25 mg per day until he decides to decrease again. We ramped up originally as he had good results with other patients ). I also use a topical as well. I still get flares but it is from stress or skipping the ointment a few days or weeks. He feels if I do this for a year I may be able to go off of everything. My skin is so much nicer. The ointment is called Tacrolimus 0.1% Doc also has me use Burt's Bees baby wipes. He is in Chapel Hill NC. Dr Kenneth Becker. Some of the natural stuff would work a few days or weeks and then I would get a horrible flare. This rash just seems to continuously morph... but that is autoimmune stuff. I keep reading just incase something diff comes along so I don't have to do the drugs. (btw, my LS was a dry spot outside vagina and then a 'hot spot' where my butt cheeks touch. I have gotten 'plaque' (really weird dry skin) in both those areas. I had also had like a thrush baby rash from my mound up and over my belly. I have my labia and clit. Good luck all.... lots of work. hugs~


Serrapeptase

1 User Review
5 star (1) 
  100%

Posted by Bluebird (Chicago, Il) on 06/11/2020
★★★★★

Research serrapeptase for lichen sclerosus! Serrapeptase is an enzyme produced by silkworms that dissolves scar tissue in the body. I was diagnosed with LS five years ago and have been searching endlessly for a cure. Clobetasol and other natural remedies didn't help at all. My condition was relatively moderate, and my primary symptoms were fusing and whiteness with occasional discomfort.

I recently started taking serrapeptase to help with adhesions related to abdominal surgeries, and I discovered the LS benefit by accident. Taking 1 or 2 pills per day had no effect on the LS. I achieved remission only by taking higher doses of 4-6 pills per day. After about a week at this dose, I noticed that almost 100% of the fusing and whiteness had disappeared. The skin is completely normal now!

**Serrapeptase is contraindicated in people who take blood thinners. Consult your doctor before taking them. I am not on blood thinners, but I did experience a nosebleed at the higher dose.

Replied by Emma
(Sweden)
05/12/2021

Sounds very interesting! What brand of SERRAPEPTASE did you use? How many SPU (serrapeptase units) per day?

Replied by Laurel
(OR)
12/10/2021

What was the dosage? I have 80,000 SPU.

6 of these would be 480,000 SPU Might that be too high? Thank you!

Replied by Lisa
(California)
02/02/2022

How much mg did you take?

Replied by Laura
(Florida)
03/07/2023

Hello,

I also have LS and I'm hoping to reverse scar tissue with serrapeptase. Was it 40,000SPU that you used four to six times a day? or the stronger 120,000SPU?

Thanks,

Laura

Replied by Christy
(Cameron, WV)
06/27/2023

What dosage are the tablets that you take. I have been reading of the wonderful benefits of serrapeptase

Replied by Stacey
(Nc)
07/25/2023

Does anyone know what milligram of serrapeptase is recommended?


Shea Butter

1 User Review
5 star (1) 
  100%

Posted by Tiya (Bellflower, California) on 04/01/2013
★★★★★

I have has LS for 5 years now and I'm only 16 years old. So far no doctor has been able to figure out a cure to LS. I've done my own experiments and I've been using Shea Butter for 3 years and I rarely have flare ups or any itching. Though I notice I have more discharge but it's worth not having unbearable itching.


Sitz Baths

1 User Review
4 star (1) 
  100%

Posted by Wolf5alpha (Portland, Oregon) on 08/22/2015
★★★★☆

I have recently been diagnosed with lichen sclerosis. I have had severe itching and after trying many things which seem to relieve it for about a week and then it is like it develops some immunity to it, I tried vagisil. This has given me the most relief as a cream. But what has actually been helping to heal it and give much longer relief is sitz baths. I use some epsom salt, lavender, chamomile, comfrey, yarrow, and marigold, steep this in a sitz bag for a bit and add it to a very shallow warm bath. Then I add baking soda to the water and soak for 20-30 minutes. Doing this twice a day is best. This is still very new to me and I'm horrified to find out it is chronic and the damage it causes. I haven't tried the steroid cream yet but after reading the many replies, I'm very concerned about using it at all.


Skin Cream

Posted by Vg (Sc, US) on 01/28/2015

Egyptian Magic All Purpose Skin Cream works as well (if not better) then the prescription Clobetasol. It has all natural ingredients so can be used long term with no bad side effects. My OBGYN said that it was ok to use. The thought of using a steroid cream for the rest of my life bothered me. Glad to have found something safe. Buy it at Costco (best price), Whole Foods or online. Just use as often needed.


Urine Therapy

1 User Review
4 star (1) 
  100%

Posted by Yofi (USA) on 02/01/2020
★★★★☆

A bit of your own urine stops the itching of LS almost immediately but only temporarily. I also agree with others who have reported that staying alkaline helps.

Replied by Yofi
(USA)
02/01/2020

I just apply the urine topically when I pee and let it dry naturally if I have the time or pat excess off with toilet paper. A probiotic and/or anti-candida enzymes before bed also help w/ night-time itching. I learned about the urine tx from a traditional healer who did not charge me for the advice. Needless to say, this remedy is free and readily available. It's the most effective thing I've used in many years of dealing with LS.


Replied by Carol
(Agoura Hills)
10/09/2013

My daughter has been suffering with LS she is 12 and has had it for some time. I didn't use the steroid creams but now I am as fear it has progressed. It is very itchy and lots of discomfort. We had tried holistic treatments and herbs and acupuncture as well. I am very interested in the light therapy where do you go to get that? Where do they use the light exactly? Please help. Thank you


Replied by Katy
(New York)
10/10/2013

Carol... Not sure exactly what you have tried or if you read thru the other posts on the site. I can only suggest what I has worked for one of my clients who had it. I had her use infused oregano oil 3 to 4 drops under the tongue, twice daily. I also suggested making a vaginal douche consisting of 50% apple cider vinegar, 50% distilled water with a healthy tablespoon of plain yogurt mixed in. This will be very soothing as well as help the tissues to heal. Diet is also a concern as I'm sure you know and I'm sure you've talked with her about diet, but it is important - getting her to stay away from sugar may be a challenge, but it is necessary.

With her diet, if she can get a lot of probiotics into her from yogurt, kefir, sauerkraut (it's got to be fresh - not canned, bottled - pasturized), also kombucha is a good source. Hope she finds relief soon! Katy


Vaginal Medication Link to Ls

5 User Reviews
5 star (1) 
  20%
4 star (1) 
  20%
1 star (3) 
  60%

Posted by Kathy (Brisbane, Australia) on 09/10/2009
★☆☆☆☆

WARNING!

Lichen Scelrosis - theory yet to be proved:

I have a theory that moderate to high use of Vaginal creams for Thrush etc aggravate or possibly even CAUSE LS. The only way to find this out is to get as many women as possible with LS to say whether they have used these creams a lot in the past. I had a history of repeated Thrush and used the creams many times - I notice now that use of these creams aggravate the itchiness and thinness of the area for up to 2 weeks after use. Please post a answer and see if we can 'find' the cause - the Drs have no idea, so....

Replied by Kim
(Los Angeles, California)
01/07/2010
★☆☆☆☆

WARNING!

Vaginal Meds causing LS symptoms

This is in response to Kathy from Brisbane, Australia:

I have had the same theory for 4 years, that moderate to high use of Vaginal creams for thrush, vaginitis etc aggravate or possibly even CAUSE LS. 6 Months after taking precription medication for bacterial vaginitis the thinning, tearing, itchyness around th vulva area began.

Ladies please be aware when taking such meds.

Best of luck.

Qkas704
(60466)
07/01/2022

I too had been treated several times for BV and later came down with LS.

Replied by Jami
(Roanoke, Va)
01/30/2010

I've just been diagnosed with LS, how fun. I have been treated many times in the past for yeast infections and bacterial vaginosis. I believe you may be on to something BIG. I also believe that stress and perhaps past trauma/emotions may have an impact on what is happening now.

Replied by Amy
(Tucson, Az)
02/22/2010
★☆☆☆☆

I was diagnosed with LS a few years back. Contrary to your theory I had never used any vaginal creams for any ailment.

Replied by Montanamama4b
(Billings, Mt)
05/08/2010

I read on another website that it is common with LS to be extremely sensitive to any creams that have any of the -parabens in them. This can be methylparaben, propylparaben, etc. Since nearly every single cream out there needs the parabens to make it "creamy", be sure to read the labels very carefully.

Take care!

Replied by Adrianna
(Chicago, Il, Usa)
07/26/2010

I was diagnosed with LS 10 years ago. It happened shortly after having oral sex. I have used a vaginal cream since then, but off and on. Not on a regular basis. About 2 years ago I had surgery in which I took antibiotics and pain meds. Within 2 months I started noticing some really weird things happening to me that never happened before. Since then I've been researching relentlessly on what could be wrong with me. My conclusion is the antibiotics, drugs, creams etc. . . are bad for us. I have candidiasis because antibiotics not only kill the bad bacteria, but the good. This in return let yeast grow out of control in my body causing skin issues, digestive issues, dizziness, drunkenness, etc. . . I believe the only way to get better is to change your life away from the SAD (Standard American Diet). Eat healthy, meaning fresh fruits (very little), meats and vegetables. Try to buy organic, if possible. The pesticides and hormones sprayed/injected into our foods ultimately get inside us and also affect us. No processed, canned, packaged foods. No lunchmeats, sweets, etc. Obviously it can be very difficult to completely stay away from these foods for the rest of your life. I love sweets so I know. I try to eat healthy 99% of the time though. Educate yourself. Research candidiasis, get on a good probiotic, see if you could benefit from digestive enzymes, fish oils, read the Metabolic Typing Diet, search for Yeast Infection No More online book, how dental work can have you suffering (mercury in your mouth), metal in your body. I recently had an eery feeling my LS was linked to my diet as well as all the other issues I've dealt with in the last year. I believe it is true because when I was following a super healthy diet for 5 months (no dairy, only brown rice pasta, brown rice cakes, brown rice, fresh veggies, little fruit (mainly berries) and protein) NO sugar whatsoever and only drank water or decaf herbal teas, continued to exercise, reduce my stress level and take some supplements I had no anal itching and very little if any vulva pain/discomfort.

I also recently decided to research the cream I've been using over the years for my LS and one of the things it says can occur is folliculitis. Last October I woke up one morning with tiny red bumps all over my legs. I have not confirmed by a doctor that it is folliculitis, because I refuse to have anyone try to make me take any medications/creams (drugs)or antibiotics. I am on a mission to change my life for the better and it involves natural/holistic treatments. Always question your doctor and if you don't believe what they are suggesting it is best for you get a second opinion. I recently had to have my wisdom teeth removed and the first oral surgeon I met with said I would have to go on antibiotics and pain killers. I refused because I knew what that mess of meds got me in a year and a half ago. I searched for a holistic dentist and found one who guided me in the right path so I was able to do stay away from the antibiotics and pain meds by using a great quality probiotic and digestive enzymes for inflammation/pain.

I hope some of this helps someone else!

Replied by Sandra
(Grantham, United Kingdom)
08/14/2010

HI

MY DOCTOR AS ADVISED ME TO USE AN EMOLIENT CREAM FOR WASHING/CLEANING THE VAGINAL AREA. THIS HELPS TO STOP IT FROM DRYING OUT, WHICH IN TURN WILL GIVE THE AREA TIME TO HEAL.

Replied by Jonimoso
(Fraser, Michigan, Us)
05/01/2011

I was diagnosed with Lichen Sclerosis 7 years ago. According to my doctor "no known cause no known cure" -- just take this prescription for the rest of your life and you'll never get better. I also thought it may be linked to use of products for vaginal candida which I used just about every other month for about 5 years before being diagnosed with Lichen Sclerosis. Struggled with vaginal candida for many years, but now am free of it. I used 1 teaspoon of dissolved ionic mineral salt in 1 ounce of water, followed by 1 liter of purified water daily for 3 weeks and have had no more candida and also, no more flare ups of lichen sclerosis. Can't say I'm cured, since I haven't seen a doctor after using it, but am extremely happy with the results. Also in the past, I have used organic coconut oil in the vaginal area (anti-viral, anti-bacterial, anti-microbial, anti-fungal) for lubrication and sensitivity. IMPORTANT NOTE: Coconut oil breaks down latex condoms, so use polyurethane instead. Hope this helps.

Barb
(Wi)
02/29/2016

Did you use this topically or internally or drink it? Did it have lasting results?.

1 teaspoon of dissolved ionic mineral salt in 1 ounce of water, followed by 1 liter of purified water daily for 3 weeks and have had no more candida and also, no more flare ups of lichen sclerosis.

Replied by Wendy
(Bristol, Avon, Uk)
09/23/2011
★★★★☆

I'd like to add my pennyworth to this thread for what it is worth and in the hope that it may help just one person, more even better. I have suffered from food allergies for some 40 years, I was never able to get rid of them, only control them by eating less. I was diagnosed with LS about a year ago, but I think I may have had it in a more minor form for much longer. For the first two months it didn't seem much of a problem, but then it developed rapidly into a major discomfort and pain. I threw everything but the kitchen sink at it, in order to find a solution. I found that lots of things helped but only temporarily.

Then finally as a result of a paragraph I saw written by a Doctor about psoriasis, his theory was that toxins were unable to escape through the normal route ie liver kidneys so they moved to the next available organ which was the skin, causing serious skin eruptions. This made a lot of sense to me, so I started to treat LS like it was one of my allergic reactions, and bingo, the first real success in 8 months of trying. All I did was cut down on my consumption of food by approximately one third. The sores, pimples and razor like cuts cleared up instantly, and the itching wasn't far behind. My symptoms are now 90% reduced, and I can control the symptoms by dieting. Someone mentioned a low carb diet, and I noticed that certainly applied to me also. Ironically vegetables and fruit, the things you would think were good for you, were causing a lot of surface itching that kept me awake all night. I try to eat any major meal early in the day, and at night it might just be a small high protein meal, like a leg of chicken, but no veg or fruit especially potatoes.

I do think this disease is multifaceted and there is no one solution for everyone. One thing I want to say about this. It had spread from my vulva to anus, cleavage, bust, and all over my back, and finally to my mouth where the white skin was about an inch long and half inch wide. I managed to easily get rid of the mouth problem by putting garlic oil on about 6 times a day. It completely disappeared within 3 to 4 days, and didn't reappear for about two months, when I again repeated the treatment and it went again. The diet cleared up the itching on my back and breasts and anus. The manic itching in the vulva area disappears 90% of the time as long as I don't overeat at all, and I am still experimenting with food to get an even better result. But right now I am in a very good place, and maybe this approach might help others. That is my sincere wish - if only to help one person with this awful disease.

I don't know if garlic oil repeatedly applied to white patches in any other area would work, as it seems to me that every place you get it, it behaves differently, so I would be interested to hear if anyone else has had any success with that. My sincere best wished to all. Just because they tell us this disease is incurable, doesn't mean we shouldn't try to cure it.

Replied by Angela
(Pasadena, Ca, Usa)
10/11/2011

I think that you will find that many people with LS were treated with creams before diagnosis because they or their doctors thought their symptoms were candida. So that would mean they already had LS, not that the creams caused it. That is what happened to me. I was diagnosed with LS after 10 years or more of symptoms that were missed by many doctors and midwives. One midwife saw that it wasn't candida, and saw the changes in the skin, but she apparently knew nothing of LS and called it non-specific bacterial infection, and had me take peridine baths. I've been using clobetasol sparingly for 19 years, and it has arrested the progress, but I don't want to use it anymore.

Replied by Lynn
(Madison, Ms)
11/05/2011
★★★★★

Hi Everyone, I've been looking for anwers in many places regarding LS, I've had this for over 10 years myself and it affects my bottom/anal area mostly and I just got fed up with it all!

#1 I've greatly redued the amount of gluten I take in, amost impossible to go Gluten free, but baby steps...

#2 Whole foods, veggies, meats, fruits... I TRY to stay away from processed foods.

#3 and the most important Take a GOOD probiotic. NSM sells a great probiotic, available online.

#4 DO NOT Use the Steroid cream if you can help it! I use A&D ointment on my bottom after every bathroom visit. I also use an aloe/vitatmin E Infused toilet paper, cottonnelle with Aloe & E and Unscented Baby Wipes with Aloe and E after every BM.

The LS is very manageable, I'll even have sex again, my Hubby is so happy... My Gyno is amazed, he said my bottom looked normal! No Steroid cream for over 4 months... IF I have a flareup he suggested minute amounts of the steroid mixed with the A&D ointment... But so for ok, the ointment takes the "edge off" any itchy burny sensation. I know this doesn't cure the LS, but it greatly reduces the effects. Some holistic MD's say the issue is fungus so I'm on it about the probiotics.. I take a double dose once a day... Stay away from Dairy as well even yogurt w/ probiotics...

Replied by Mary
(Encino, California)
01/04/2012

I am 60 years old. I was diagnosed with LS about 3 years ago and prescribed clobetasol which seemed to keep it from progressing. About a year ago and about 6 months after I had a gyn exam, I was horrified to discover that my labia was all but gone, I had scar tissue covering my clitoris, and the hood was at least 50% fused.

I have been receiving UVB light treatments (excimer laser) twice a week at first and now once a week for almost a year. Plus I use the clobetasol 2 weeks on and 1 week off. My symptoms have completely reversed. The scarring/lesions are gone. It took a bit of effort to get my insurance company to pay for the treatments, but they couldn't deny the supporting research. The clitoris, hood, labia have returned to normal. Occasionally I have some white patches and itching on the week I'm off the clobetasol. I have also eliminated sugar, wheat, dairy, and artificial sweeteners from my diet for about six months, which is why I think I have been able to reduce the treatments to once a week.

In my research I found and visited a cosmetic gyn who developed a surgery to unbury the clitoris without damaging the nerves. His name is Dr. Ostrenski. He is located in St. Petersburg, Florida. Doctors comes from all over the world to study his technique.

Replied by Clara
(Massachusetts)
09/24/2014

Mary, I'm having some of the same issues. What kind of doctor performed the UVB laser treatments for you? An OB/GYN or Dermatologist? Have the results lasted for you since your last post? Thank you for your help. The steroid cream is helping but not doing enough and some symptoms are progressing.

Replied by Jillery
(North Carolina)
01/09/2016
88 posts

An ok theory for some, but there are little kids who get LS and people who have never used vaginal meds... But true I think that stuff can precipitate LS in others. Look at all the variations of symptoms too.

Replied by Jamie
(Canada)
02/14/2016

Wendy, your post is so interesting to me. I have had skin issues since I was a teenage (40 years). My skin would itch and burn and small sores would erupt that were like a burn and sometimes would grow to and inch big. I have scarring all over my upper arms, upper back and legs. As a teenager, I was diagnosed with psoriasis. After many years of dermatologists and naturopaths, everyone was perplexed because nothing helped.

I developed LS a year ago and through research was led to Trying Low Oxalates. I went on a low oxalate diet and this has helped tremendously! Many vegetables, fruits, beans, nuts, etc are not my friends.

Like you, the less food I eat, the better I feel! I only have LS breakouts, itchy, burning skin when I eat higher oxalate foods.

Thanks for sharing. I rarely run across anyone who has experienced the whole skin thing.

Replied by Patty
(Me)
05/01/2017

I have had the hood of my clitoris removed 3 times over the past years, it always grows back with LS. Like many people, I was diagnosed with candida years before LS was recognized. It certainly is not a pleasant condition. I plan on trying many of the treatments people have posted here. This is a wonderful site, I'm sure glad I came across it. I wish every one the best of luck. If I find something that works for me, I will be sure to post it.

Replied by Irene
(Timmins Ontario)
05/09/2017

Seeking more info regarding A&D creme.


Vitamin D3

1 User Review
5 star (1) 
  100%

Posted by Nancy Kb (Asheville, Nc) on 01/30/2018
★★★★★

Castor oil is wonderful and soothing and aids skin healing.... BUT the CAUSE Of LS is a VITAMIN D deficiency which my integrative medicine MD, who is also a cardiologist, luckily knew all about (but not the gynecologist, go figure).

Take LOTS Of Vitamin D3 and also a small amount of Vitamin K2 to complement it, and the other cofactors for D which include magnesium, Omega-3s, and boron.

Your Vitamin D levels must get up to about 60-80 ng/dl. but not over 90 ng/dl. I was out of pain within 2 days of taking chewable Vitamin D3 3 X a day 5,000 units each. Still need to keep on top of it all. And now also include MSM, sulfur, another mneral we really need. ALSO Colloidal silver works to heal skin and other soft tissues.

Replied by Liz
(Florida)
10/08/2022

Are you in remission?


Vitamin E

1 User Review
5 star (1) 
  100%

Posted by Terri (Wisconsin) on 03/30/2021
★★★★★

I have found that the burning sensation I get from Lichen Sclerosus (biopsy diagnosed) is alleviated by Vitamin E oil! I just apply to my “hot” area as often as needed. Amazing relief. I have a steroid prescription too, but I'm concerned about using a product that tells you to use as little as possible. 😳


Vitamin E
Posted by Andrea (Asheville, NC) on 03/01/2009

For Lichen Sclerosus, I have found that using a vitamin E capsule like a suppository overnight usually takes care of symptoms overnight. My MD prescribed steriod creams, which also work, but not as well. However, they are more convenient to use during the day. Although steriod creams are not natural, I believe a natural estrogen cream may work the same way. I have read lately that lichen schlerosis is often triggered by a decrease in estrogen in the body, so I'm experimenting with increasing intake of soy products, which contain natural estrogens. My MD also recommended probiotics and turmeric to control symptoms. Apparently, there is no cure available, just good symptom management.

Replied by Jillery
(Nc)
02/14/2016
88 posts

Try adding Red Clover herbal pills... they supposedly increase estrogen. They have helped my LS symptoms a GREAT DEAL!!


Vitamin E and Quercetin Cream

1 User Review
5 star (1) 
  100%

Posted by Lifesawhspr (San Diego CA) on 08/08/2022
★★★★★

Vitamin E and Quercitin Cream for Lichen Sclerosus

After years of steroid use and skin being worse. I recently tried a compound of 3% vitamin E with 1% Quercetin cream and it's worked beautifully. My skin was in such poor shape and painful and has been healing great. I've also used Vaseline with the fissures, but the quercetin has been healing my skin up and helps with inflammation

Replied by Julie
(Pittsburgh, Pennsylvania)
11/10/2022

Could you tell me the name of this cream and where you purchased it?


Vitamin E, Lavender Oil

4 User Reviews
5 star (4) 
  100%

Posted by Ajm (Alabama) on 12/22/2013
★★★★★

Lichen Sclerosus: Based on some of the suggestions on this site, I began using vitamin E oil and certified pure therapeutic grade Lavender oil on the affected area and all symptoms have stopped. Lavender oil has analgesic, antifungal, anti-inflammatory, antimicrobial and antiseptic properties, to name a few. I have had LS since puberty but was misdiagnosed until 3 years ago. No cure and steroids are a no-go for me so management is my focus. Symptoms vary based on diet, exercise, and hormones, though this combo seems to be working well so far. I may try the purple emu oil in the future or possibly make an essential oil combination using lavender, melaleuca (tea tree), and oregano. Thanks to the makers of this site! It helps a lot!

Replied by Lg
(Sacramento, Ca)
08/14/2015
★★★★★

Thank you for sharing, I was skeptical that this would help. It has more than helped it has almost completely healed. I have dealt with this for over 20 years and I am amazed at the results. I use cotton rounds with a few drops of lavender and dilute with water 3 times a day. I also purchased some Frankincense as someone else suggested on here and plan on using it as well just as a precautionary.It is a little pricey, but we'll worth it and it's not a steroid! Thank you again for sharing! I hope this information will be helpful to others as well.

Replied by Freda
(Lancaster, Tx)
03/05/2016
★★★★★

I can't begin to thank you enough!!! I've had LS for 11 years and I can deal with the pain and bleeding and all that but the itching!!!!!!! The kind where you want to take a knife and cut it out or the relief from scratching is better than sex. Anyway, I was having one of those episodes last night... It is always at night... And so came searching once again and found this. I use essential oils and have a bottle of lavender mixed with cedarwood, mineral water and witch hazel that I use on my pillows and thought maybe this would work. I added a few more drops of lavender and many drops of frankincense and all I can say is I was in heaven from the instant relief! I usually have itching in the morning also right after my shower and I used the spray again and what joy! THANK YOU THANK THANK YOU

Replied by Thankful
(Trinidad)
03/29/2016
★★★★★

I swear I used lavender oil vitamin e, witch hazel and castor oil and I am as free as a bird from lichen sclerosis after reading your remedies. I was suffering from it for a year and prayed for a solution and found it on your page. Thanks a million for everything I can live a better life without the itching. That was one of the Worst things ever Thanks😀

Elyse
(Ri)
04/29/2016

Thanks for posting! How did you go about mixing these together?

Vicky
(N. Carolina)
11/29/2021

Can you be specific in amounts of lavender oil, frankincense, castor oil and whatever else?

Replied by Robbie
(Missouri (mo))
04/07/2016

How much of each of these ingredients for Lichen Sclerosus?

Replied by B
(Ca)
06/20/2016
31 posts

Could you please post how you used the oils, how much...

Replied by Cheryl
(Tennessee)
05/12/2017

Review post.... how did you use these oils? How much of each?

Replied by Terri
(WI)
08/24/2021

I have had wonderful success with Vitamin E oil as well! I posted this under “remedies.” I get a burning sensation, so I just apply a drop of the oil to the hot area, and it soothes it almost immediately. I haven't had a flare-up for a couple of weeks, so I'm just applying it after I shower every morning as I'd rather stave it off than deal with a flare-up.



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