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I have had HS for around 7 years now. Some breakouts are bad and some are bearable. I think there is really no rhyme or reason to it. Around this time of the year (summer) is when it is at its worst for me. Luckily I have not had any outbreaks since last July of 2010. It ruined my world cup experience. My doctor had prescribed me Keflex also known as Cephalexin. The problem is you can't take Keflex year around because it is a strong anitbiotic. I typically have a jelly bean size and very hard bump under my armpits. I experience discomfort but it is bearable. When the infection starts to get bad it can turn into the size of an egg until it drains. When I can feel the infection worsen I take my Keflex and it has been keeping it in check but the bump never went away. I also clean with hibiclens but from what I understand hygeine has absolutely nothing to do with it. The Keflex has had my spirits up and feeling that I could contain this. I was also prescribed clindomyacin lotion.. But... NOW READ THIS. I SWEAR IT WORKED FOR ME. I FEEL OBLIGATED TO POST THIS.. ITS UP TO YOU IF YOU WANT TO TRY IT OUT. IT IS VERY INEXPENSIVE COMPARED TO THE THROBBING ACHING PAIN WHEN IT GETS BAD..
All of my friends are aware of my problem because I decided I wasn't going to be embarrased about it anymore or let it affect my personal life. When my friend told his dad his dad told him he he had a friend that had it too and he went to countless doctors who were unsuccessful in treating it. The last time he went to the doctor (because obviously he never had to go back since this worked for him) the doctor told him to simply eat swiss cheese. I know it souds crazy but please keep on reading. Apparently Swiss chesse has a different type of bacteria than any other cheese and the reason for the holes in the cheese are because the bacteria expels gasses. Something in that counter acts what we have. I can honestly say I have no bumps and have been eating Swiss Cheese for 2 weeks now. I don't eat an insane amount but I go through about 1 lb in 3 days. I only eat the swiss cheese from Switzerland not made in Connecticut or anything like that. I don't know if they use the same process. I found it at Sams club for $1.17 per lb. , which cost around $25 a week. Someone please try it. It WORKED for me.. I do not own a cheese company or invest in any stock of any kind. I just want someone else to try it because maybe this is a coincedence... But maybe not.
Feedback Please.
★★★★☆
General Feedback
Thanks
Salt Crystal Deodorant
★★★★☆
I tell you that my HS has cleared up 80%.... I no longer have to have all the band aids because it is drying up and there is no foul smell under my arms. I just had to share this and hope that it will help someone else that is dealing with this terrible disease. And remember GOD can heal you of this because he has healed me and I thank GOD for healing me.
Multiple Remedies
★★★★☆
I've had HS since high school and I'm in my 30s now. It's pretty much all over my body, face, neck upper and lower back, thighs, armpits and back of arms. It gets worse when I'm stressed or I eat sugar or drink alcohol. I have been diagnosed with Candida. I know that sugar and alcohol both make Candida grow. While I was on the Candida diet my abscesses got better but as soon as I got off the diet they got worse.
Somethings that work for me but are by no means a cure are as follows:
- exfoliating regularly
- apply ACV topically - ingesting is good too
- probiotics
- soaking in a hot bathtub when the cyst is infected/painful will help open it
- apply a paste of garlic topically as well as ingesting raw garlic
- Surgical removal
- Antibiotics don't work and if this is a form of Candida the antibiotics will just make the candida worse since they eat the good bacteria with the bad.
★★★★☆
Multiple Remedies
★★★★★
I can't believe it--after years of suffering and MANY hours of my own research, I found something that WORKS!!! I put the pieces together after doing my own research because docs kept putting me on antibiotics and I didn't want that. The meds cleared up the "bumps" (really bad under my breasts and in my armpits) for two weeks, then they'd come back with a vengeance. Also, I've tried collodial silver,
For the first time in 3 years, my bumps are gone and the scars are healing. I am 100% convinced that HS is related to yeast overgrowth in the body, which is aggravated by antibiotics and other things. Some symptoms are yeast infections (including under the finger or toe nails), vaginal yeast infections, chronic sinus problems, affected lymph nodes, and a white film on the tongue or a cracked tongue.
I've always had problems with vaginal yeast infections--very sensitive to sugar, though I eat my fair share of chocolate, of course. One beer makes me feel like that purple chick in the original Willy Wonka. On these HS support forums, many people swear by a gluten-free and dairy free diet... This is directly connected to the "yeast (candida)-free diet" which advises people with candida overgrowth to avoid fermented dairy products, pretzels, chips, bread, beer, wine, etc. Pretty much everything but veggies and meat. However, what's great is that it doesn't have to be a PERMANENT diet. Clear out your body for 3 or so months, then really monitor what is going into your body and how it makes you feel.
Sorry for the length of this post, but I feel compelled to pass this on to other sufferers!!! What finally cleared up my suffering is this:
NYSTATIN 100,000/g POWDER: prescription only (ask for the larger sized bottle), but not a controlled substance. Clean the area well, then put this in the groin area, under the armpits, and under the breasts (in your affected areas). I also had to use Nystatin cream on a small section of my groin and a little under my breasts, until I got it under control.
I am currently also taking (available from Vitamin or health stores):
Candidase Enzymatic supplement (to inhibit yeast growth)
Kyolic odorless garlic supplement (anti-candida formula)
Acidophilus Pearls (anti-yeast)
Turmeric one-a-day pills
(all of the above I plan to be on for one month, then try and monitor my yeast intake to keep levels under control).
Vitamin A
Vitamin D3
B-vitamin complex
Prenatal vitamins (always take them as my multi because I like the effect on my skin and nails)
I only use IVORY bar soap under my breasts and in my armpits and groin. I use a new razor every time I shave under my arms. Now that the bumps have gone down, I try to exfoliate under my armpits with a loofah to remove dead skin. I also do NOT use anti-persperant, but rather spray Crystal deodorant in the clear bottle with a purple label.
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When you are in a breakout--use pure tea tree oil on your bumps that haven't come to a head. It works wonders. If you get a bump behind your ear, don't mess with it, and the lymph node will eventually go back to normal. Take ibuprofen 800mg to reduce swelling in the deap-seated large abscesses.
The nystatin will help you! GO GET IT! I can't urge it enough. The anti-candida supplements helped too! There is another article I read that said people have had luck on long term anti-fungal prescription medication, but this can be damaging to the liver, so I opted to try the supplement route first.
I also gave up dairy a few months ago, and still severely limit my intake. I know that until I get the candida under control, I'll have to keep using the nystatin powder, but I am making an effort to try and cut out the yeast foods. Avoid sugar/sugary drinks at all costs if you can.
I have been in severe pain, spent hundreds of dollars for surgeons to drain and pack cysts, and been depressed and shameful. Please try this, I think it may help many people.
General Feedback
Multiple Remedies
★★★★☆
For me, all of these things help:turmeric, topical antibiotics (evoclin), and using antibacterial soap. In addition, I'm mindful of the fabrics I wear (cotton almost always), the personal hygiene products I use (natural deodorants), and usually go "commando. " Lol. However, nothing has "cured" my HS yet.
I've quit smoking cigarettes and am working on losing weight. I am specifically focusing on having a clean and healthy body from the inside out. Eventually, I will do a comprehensive detox like a raw food cleanse for a few weeks this summer. It makes sense that this will be the best option because it has worked for others and these types of regimens have healed cancer and other vile diseases.
I'll keep you all posted <3
Samantha
General Feedback
Antibacterial Soap, Weight Loss
Antibacterial Soap, Weight Loss
The thing is I never hear anyone say they have had it on their scalp but me and I am female so you know how devastating that must be. Is there anyone out there who has had it on their scalp or know someone who does? I feel very isolated in this. All I want is for something to flattent these keloids on my head or recommend something to grow my hair back in these areas. I used to have thivk abundant hair and now this disease has destroyed it. It makes me sad to look in the mirror and see what a evastating affect this thing has had on me and that I probably will have to live the rest of my life with these raised scars on my head and thr hair loss that comes with it. If anyone know of anything, please let me know. Thx.
I had surgery about 5 years ago under the breast to try and remove some lesions that would not quit draining. What the doctor did was "an upper tummy tuck". I scarred miserably and they were back within two years. I now take magnesium tablets and that seems to help some. I also have found that prescription strength Silica and Hehp Sulph works great at the onset of a boil. It speeds the process up for me. I also use a salve called RID. You can buy it at the pharmacy. This helps with the pain to a degree. I plan to try some of the suggestions that I have read today.
Thanks for listening.
Triggers
i have been suffering from HS for more than 20 years. I did homeopathic medicine which resulted in reduced occuring of boils but it started again. I have notice lack of sleep creates more of infections in the armpit. If any one has permanent remedy for this please let me know...
General Feedback
I have read that boils can be caused by an acidic body. It may help you to look at your diet and eat more alkaline foods so that your body has the proper pH level. Green smoothies, pineapple juice, water are mostly alkaline while coke, milk, meats, are acidic. Bathing in bicarb soda is also good as it is alkalising to the skin. There are some good books you could read which list which foods are acidic and which are alkaline. Disease and toxins apparently can't exist in an alkaline body. Cheers
General Feedback
I have had HS from the age of 15 roughly. I have even had a Dermatologist take a biopsy off me in 2000 and not tell me I had HS, all he said was it was a Follicle issue.
After breaking down several weeks ago at the local doctors is when the Doctor told I had "Hidradenitis Suppurativa".
At this point in time I am in severe pain as I have multiple boils under my armpit, and several on my bottom, oh, should I mention that I am sitting sideways! They have been there for about 8 months now and they go and come back. There are some days when I am in so much pain that I cannot go to work. The other worse thing is, I love tennis and coach the game also, due to this illness, I am no longer able to play & coach.
This disease has stopped me from maintaining a relationship and has made me so depressed.
Today I googled "Hidradenitis Suppurativa" and read as much as I could until I went cross-eyed, and I think on the 5th page in the search I clicked on this link.
I have now been reading everyones testimonials on this site for the last 2 hours and have not stopped crying . Snot everywhere, sadly pus later.. It is so much different hearing from others who have the same problem.. I honestly thought I was alone.
I can't even believe that I am writing this up to be posted, I have never been compelled to do anything like this on the net.
Whoever has taken time to maintain & create this site, thank you.
I will try the Turmeric Remedy and keep all posted.
Regards, Liam
★★★★★
Multiple Remedies
I suspect many of you with HS also suffer from autoimmune disorders as well as pilonidal cyst/sinus. I've had a couple of surgeries to remove a pilonidal sinus. I believe it's all part of online you will find some interesting info. Symptoms these remedies treat and personality traits seem to go hand in hand. These remedies treat both for mind/body wellness. An interesting way to go. I don't completely understand how it all works. However, it seems to be doing the trick for me.
