I have had HS for about 4 years now. Sadly, most doctors are not aware of the skin disease, and I have been diagnosed with Boils, Cysts, ingrown hairs, and was told to wear loose clothing, don't shave; everything they told me not to do- didn't work.
I only get them in my groin area- and it is the worst pain you could imagine. I am not overweight, nor have I ever been; as many say that is a big cause. I have never smoked. I have tried so many things including antibiotics on several occassions, topical antiobiotic creams, eating healthy, etc.
I have been taking Colloidal Silver for the past 7 months, and have seen a drastic difference. I don't get flares anymore (as long as I take it) but I know I am not cured becuase I can still feel the sacs under the skin and my skin is discolored. I had a wound that didn't heal for 4 months! That was when I started the Colloidal Silver. (My mom had told me about it). If I forget to take it, I am reminded when I start to get a flare up.
I also take Zinc supplements, and Apple Cider Vinegar tablets. I read on one of the forums that Oils (such as Omega) helps, as the oil glands are blocked because it is hardened. To me, this makes the most sense. I am going to try to include Oils in my supplements. We are all different, and every person's body reacts differently- which it's so hard because what works for one, may not work for another. You just have to keep trying different remedies, until you find what works best. I'm not sure which of the supplements I am taking are actually helping the most (of if all are) but I'm not stopping since it's working!
Hidradenitis suppurativa: hello everyone, i'm back with more suggestions on how to help this annoying painful skin disease. I've decided to try a colonic, I realize that with our fiberless, and nutrient lacking diets that our immune systems and internal health could be contributing to this disorder. The buildup of toxins over the years from not fully expelling fecal material could be causing our immune systems not to properly perform, therefore allowing skin disorders such as acne, hs, anemia from malabsorption of nutrients, fatigue, insomnia, and so many other health problems.
A healthy diet free from refined sugars, and processed foods, and plenty of water could only help this disorder. I'm guilty of terrible eating habits and smoking which could only be contributing to this problem. I strongly believe that a colonic which is like an intense enema rids our body of old fecal material, parasites, and toxins that have built up in the colon over the years from unhealthy eating habits, I think that colonics and a drastic change in eating habits can drastically make a difference in the severity of hs.
I think that antibiotics and surgery are only a bandaid to the true cause of hs. Getting to the root of the problem is the only way to pinpoint the cause of hs. I wil try the colonic and make healthy diet choices and let you know the outcome as soon as I see results. I hope that someone suffering with hs as i have over the years will read this and give others ideas on what worked for them, take care and god bless.
I have had HS for years now and was diagnosed a little over a year ago. I was so relieved to finally have a professional tell me what I thought it was. My family doctor kept calling it hair bumps and told me to stop shaving down there. My outbreaks occur on my panty line so needless to say just walking hurt like heck. I was constantly wearing band-aids to stop my panties from rubbing up against them. I even wore boy short panties for awhile, but that did not help.
Well, I visited a couple of sites, including this one, and figured I would give the turmeric a try. I went to a health food store that I always go to get cleanses and stuff and the owner, who is very informative, told me to take the kind that says curcumin, not turmeric. Even though they are the same, for some reason curcumin seems to do better. I have no idea why since they are the same, but WOW! I had a sore that would not go away or heal for close to a year. It looked nasty and was very painful. It has finally healed and looks so much better. I am also taking zinc with it as well. I take one zinc pill that is 30mg and one curcumin pill that is 1000mg. When I first started I was taking 2 of each, but lowered the dosage once my sore closed up.
I have always been taking the zinc, but did not see any results. Right before I started taking the curcumin I started taking 2 zinc pills and actually noticed a difference. So I am not sure if the zinc may have worked on its own or not. I actually believe that curcumin helped. I will be taking the curcumin for life if I have to because the way my sores looked and the pain I felt before I started taking them is not something I ever want to feel again.
I hope this helps someone that is looking for some relief.
Oh, the curcumin also helped with my back pain since it is an anti-inflammatory as well. Knocked out two birds with one stone....
Hi. I wrote in last month about the wonders of baking soda for underarm body odor. Well I still agree that it's a great remedy, however I had a side effect that I wanted to share. A few days ago I shaved and after getting out of the shower, put baking soda under my arms. I guess I had knicked an area because it hurt like crazy after the baking soda hit it. That night, I started to feel shooting pain in the same area... it lasted all night. The next morning, still in pain, I looked in the mirror at my armpit and discovered a big ole boil forming. I am guessing that a chunk of baking soda got in and irritated the area. Knowing how great turmeric is for cysts and boils, I immediately went and got some warm water and put a teaspoon of turmeric in it and chugged it down. The shooting pain stopped in about 3 hours and the next day the boil was half the size. 2 days later it is gone. My suggestion is not to apply baking soda to your armpits if you have knicked them while shaving! I continue to use the b.s. but haven't had any more inflammation in that area.
i used to get horrible boils (golf ball to baseball size) under my arm pits. i had a doctor suggest that i may have a condition known as (http://www.mayoclinic.com/health/hidradenitis-suppurativa/DS00818) Hidradenitis Suppurativa, he said this was incurable. i do not believe in incurable conditions. After lots of research and a trip to a local allergy specialist i found that was actually allergic to aluminum zirconium, a very common ingredient in antiperspirants (see http://health.howstuffworks.com/question627.htm for more information) i switched to an antiperspirant withouts actually allergic to aluminum zirconium and the boils stopped.
My allergy Dr. told me that alot of people actually get misdiagnosed with Hidradenitis Suppurativa because of boils in the armpit when all that is wrong with them is their choice of antiperspirant. i also want to point out that i have seen this ingredient listed on several feminine hygiene products for moisture control.
DMSO for HS.
I have tried every remedy on earth clinic and many that aren't listed. Sometimes I got a bit of symptomatic relief. I still wash with antibacterial soaps and use fresh lime juice as my deodorant. My HS effects my underarms and groin area. Even when there is no active infected boils the lumps remain.
Last week I started applying a topical solution of 70% DMSO and 30% pure organic aloe vera gel. I bought the items and mix them myself in a small glass beaker after my bath. I apply every other day. The difference is like night and day. The long lumps under my skin are gone. There is one slight one left under one arm but it is reduced 90% and I expect it to completely resolve within a few days. The only dietary changes I have ever made is to cut out hot sauces and cayenne of any kind.
The DMSO was the CURE. I had to post...for those of you who have given up on being rid of this horrible ailment there is hope!
I am trying the Turmeric for the first time and will try to post my results. I have had HS for about 10 years. For those who try to pop the cysts.... Don't. It will make it worse and spread. You can have your doctor lance it and pack it which will be temporary. One thing that gave me temporary relief is a combination of Doxycylcline, Rifampin and Clydamycin lotion. Of course these are not natural, but it will give you relief for long periods of time, while you try the homeopathic remedies. See a good dermatologist to get them. The clyndamycin lotion applied at least twice a day will relieve that infernal itch. You can use it whenever you need to though. Advil at night help me to get the swelling down. I am praying that the turmeric will help me to eliminate the medications. Thanks for all the great postings here!
Hi, I've suffered from HS for 15 years. I have tried turmeric and that has worked for me to a certain extent. But I wanted to share something that has worked for me and has transformed my life. If I ate my last meal of the day after 8pm you can guarantee that the next day I would have a flare up. And the later I ate the worse the flare up would be. Eating dinner/last meal of the day between 7-8pm has changed my life. Now for the last 3 years I have been ok, only having occasional flare ups when my body is extremely tired from overwork or I eat late when I don't have a choice. I hope this helps someone else too. Give it a try for a week and see if it helps. Good luck, I wish you well.
Get a food allergy test (from a naturopath). People with HS tend to have food sensitivities (due to weak immune systems)... Trust me - it changed my life."
I can not say it enough times on here - it is the CURE and will change your life!! Take out what your body can't digest and you will be back to normal!!!
I would like to help as many ppl as possible who have had this horrible disease - - I have this horrible disease for 3-4 years.... And I have now finally overcome it and am now living a "normal" life once again!!!
This MESSAGE needs to BE SPREAD to ALL HS SUFFERERS!!!
Hidratinosis Supperativa is an auto-immune disease. What works for me is to use a 1 percent dilution of either Frankincense or Lemongrass in fractionated coconut oil. You can apply this to existing cysts 1-3 times a day and they will drain, then heal. Manuka essential oils is another good one, but I prefer the Frankincense as I must put this in delicate places.
Using a one-percent dilution (about 2-3 DROPS into 10 ml - 2 teaspoons) of fractionated coconut oil or jojoba oil will allow you to use this continuously. You should continue to use it after the cyst has cleared to ensure all inflammation is gone. Oil of oregano can be used, but it is a HOT oil and you need to be careful around tender tissues. I would not use more than 2 DROPS of oil of oregano in 2 tsps carrier oil, but it IS effective.
After trying the gamut of internal and external treatments for the past 30 years - everything short of surgery - I have had some promising results (touch wood) with two simple products: exfoliating body scrub and a tea tree oil-based deodorant. This will not necessarily clear up an existing outbreak but it may help prevent or reduce the severity of future ones.
Try an exfoliating body scrub daily on problem areas. I have been using a Neutrogena acne scrub containing salycilic acid, as well as a delightful coconut scrub from Pure Fiji. They help keep pores and follicles clear and may keep nasties from getting a foothold.
Have also switched to a tea trea oil-based deodorant (by Jason), applying it to armpits as well as other problem areas.
I started this about 4 months ago after an especially nasty and persistent outbreak that affected several parts of my body at once. It finally cleared up with a course of heavy antibiotics supplemented by several of the home remedies described on this forum (especially turmeric tea, turmeric paste, and tea trea oil). In 4 months I have had only a couple of very small and superficial "pimples" that subsided in 1 or 2 days. Good luck.
I had suffered for years with boils. Doctors did nothing but lanced them. I got them under my arms and in my groin area. I must of had a least one hundred of them. I have been boil free for over 7 years. They got really big about the size of a half a egg and were very painful.
Glory be to God... I bumped into the simple remedy... Raw fresh garlic, a whole head daily. In my salads and with all my food and sauces.
I just wanted to post my experience with this awful condition disease, I didn't know why I was getting these painful boils in my buttocks that was my teen years I was so embarrassed I couldnt talk to anyone about it. I thought I had hemorrhoids, which was crazy to me, I used Neosporin and magically they went away fast forward to after graduation I got my first of many cyst on my lower back...I continue to get these painful cyst on my upper back as my husband as pointed out my scars are in the shape of my bra I guess I sweat in these areas.
When I was pregnant with my son who is now 8 yrs old, I was finally told of what I have and there's no cure, I've been on antibiotics which to me sometimes helps but if anything they can bring the cyst to a head and I drain it, it's a thick pus that comes out and blood...there's instant relief no more pain, no more pressure. But I don't want to take antibiotics my whole life. I do notice I get one around my cycle, I've have had one under my armpit which sent me to the ER...worst experience ever!! I remember screaming out in pain as it was landed. I've been told I'm a very attractive lady I was married before and now remarried my ex was very supportive of this condition, and my husband now is just as supportive if not more, but I will say this disease has made me feel so ugly, my back is completely scarred from years of cyst, I can't wear certain tops or clothes. I didn't have to deal with the cyst in the groin area until now. I have a peppermint size cyst near the buttocks area it's so painful Imy having trouble walking, I feel hopeless right now. This condition is no joke!! I thought It would be a deal breaker when I found myself single again and I needed to tell my NOW husband what I was diagnosed with.
I truly believe it's connected to my hormones and that can be connected to my diet. I really just have to make some changes in my diet...I will be more disciplined with my apple cider vinegar drinking and really taking all night shade veggies out my diet, I will diligently take my turmeric no more alcohol no sugar or caffeine use my tea tree oil and buy organic protein and fruit and veggies no more gluten...I'm so (*beepin*) sick of this (*beep*) condition oh I plan on getting some zinc today. God please help us all who suffer...I really wanted to vent! I'm 37 and this has been going on since I was 17.
I have been living with HS for a little over a year though I was being misdiagnosed with Staph. My boyfriend found this site for me, and I have been pouring into all the information I can about HS. I feel a glimmer of hope that I could live with this. Before last October I didn't have health insurance. Everytime I would get another boil I'd go the hospital they would never help me or really even care. And even now, I have been to a million doctors, many of who do not believe my pain and could never help me. All they would do is pump me with antibiotics which made me sooo sick! But I just got surgery on my right underarm because I had about 3 lumps there for several months. It's been about a month since the surgery and it's been healing nicely. I have had several occurences before that in my underarms and groin area. Today I realised one of my old areas is getting inflammed once again. It's just really hard. I can't go to work alot because I am in so much pain. I feel sick constantly and I'm always super exhausted. I just want my life back. However, now that I found this site and with all of your suggestions I feel like maybe I can start figuring my life out. If anyone of you have any other suggestions, please let me know! I am willing to try anything! Also, I will update again soon because I'm going to start the Turmeric and will be getting a food allergey test soon. I'm just really happy that I have found some answers, and I'm really just trying to stay positive. It is just all so stressful.... Anyway, thank you all so much for sharing your stories. And hope everyone is doing well! =)
(The Beach, Canada)
I see many people saying that turmeric helps with their chronic boils on this site. I wonder if these people have what I have, which is a skin condition called Hidradenitis Suppurativa. I've found that applying turmeric topically helps the boils greatly. HS has no cure, and no medical treatments so it's great to find something natural that can be so helpful. I do worry however about the blood thinning properties of turmeric....