I truly feel for everyone in here. I have had HS (undiagnosed - but treated) for going on 15 year now (I'm 30). I guess that I'm a rarer case from the sounds of things, one being that I'm a guy, and two being that doxycycline actually worked for me. I have been on the med for a couple of years now and wash previously troubled areas daily with hibiclens soap and I have been boil free (for the most part) since I started the med.
From my experience... drinking alcohol makes things bad, as the alcohol in my system pushes the doxycycline out of my system and the disease comes back for 24 hours or so with a vengeance. I've also had success putting the hibiclens on troubled areas with a cotton ball during flare ups (don't wash off and re-apply when you feel the itch coming back), which somehow helps to prevent things from getting worse and spreading.
What brings me back to the online community after years of control is that my new insurance won't pay much for the doxycycline, making the drug $70 a month... I reluctantly paid for one more month of meds and received word today that I'm going to be switched over to Cephalexin going forward. Has anyone had success with docycycline and then made the switch over to cephalexin? I should mention that I've been on the doxy daily for going on 3 to 4 years now. However, I've been reading that the cephalexin cannot be taken daily due to its strength... I'd be very grateful for any feedback. Good luck everyone, here's to hoping that modern science and medicine will someday soon figure out a cure to this life-altering disease, which is surprisingly affecting a large part of the worlds population.
On that note, I also hope my experience will help someone out there who is struggling to find answers.
By the way, I did have a cerec crown put on a tooth almost 9 months ago (I don't recommend the cerec it has only been a problem if you need a crown do it the old fashioned way). My bite has never been the same, and the tooth is still sensitive. I do believe this could be a or the initial cause of my HS problem. I still have to have a root canal now since the tooth has never been right. Perhaps our HS problems are staph due to dental work that invades our body. Toxins have to come out and it's through our lymph nodes. Its a common denominator worth looking at.
Antibiotic Ointment in the Nose
Hi, I wanted to tell you my remedy for HS. I did use the bacitracin up my nose, still do every evening, sometimes during the day just to keep it moist. I noticed prior to my first ever HS (June 2015) this year (I'm 55) that I had a pimple like sensitivity in the tip of my nose; inside; I thought I had a pimple. I got this sensitivity twice, prior to my eruption under my right arm pit. Since I read the post about it being a strep, which makes so much sense, I stopped shaving at all, (I was afraid it could come from the metal of the razor).
I started taking Turmeric 450 mg 3x a day (Costco brand with olive leaf) I also DO NOT use deodorant anymore. What I do is have a bowl of Baking Soda and pat it under my arm, let the excess fall into the sink, and Voila, no odor ever! I also cut out night shades (peppers, mushrooms, eggplant), I was eating a red, or yellow, pepper almost every other night in a salad. I stopped. No tomato sauce, or spices like paprika, or Spike, or even seasoned foods like Orange Chicken.
I had cut out milk products 3 months earlier only because I didn't want to have the fat hormones that accompany milk products. No cheese. You must be vigilant. We must first look at our diets.
The first HS I had, the doctor cut and packed it - never again. I screamed so bad he lost 5 patients that day. That one healed, still red though and I shaved to test it, and 3 more erupted. Back to doctor for antibiotics 2nd time in 2 months. (I hadn't taken antibiotics for over 20 years). These I did not have the doctor touch. But he said I may have to have that surgery. In my mind I said NO WAY. The surgeries have not stopped HS from what I read. I followed my routine above and have not had another. It has made me look at food, my shower, razors, my gut, my stress. Hey any of you have mold in your shower? Strep is all around us, however when your immune system is compromised, or taxed we can't fight this off. I hope this information helps someone!
Tea Tree Oil
Food absolutely can cause flare ups. For me it is gluten. Within 12 hours I will have new cysts and the number and severity are directly proportional to how much gluten I had. I had more improvement from cutting out gluten than the antibiotics so my doctor took me off them.
Patients with severe HS tend to have low iron and can easily become anemic. Recent research is beginning to discover there seems to be a connection between inappropriate amino acid metabolism in relation to particular classes of digestive bacteria. While it's not definitive and more research needs to be done this would suggest a high protein diet as a source of iron may actually worsen symptoms. I would instead suggest increasing iron through a source such as curly dock seed.
Garlic powder (on peanut toast), antibiotic cream in nose 3x day for at least 7 days, don't share un bleached tub and towels. Grape seed extract diluted and sprayed on boils heals quickest, also good for drying of skin before using suntan lotion or being in humid weather, lose clothes for a couple days after, no synthetics if hot. Hibiscus soap/ tea tree drops in dial soap to clean. Avoid aluminum in lotions and deodorants which keeps moisture trapped. 1 tsp Tumeric in half cup warm milk, mustard let dry on boils or spray w diluted GSE so it doesn't over dry cause skin lightning, which if you need to lighten skin works.
My daughter is 23 years old, she complains of HS for 5 years, its painful physically and emotionally, she tried all type of medicine and surgical but no benefit. until she removed all spices of her diet and start swimming in sea, within a month she recovered. but after recovery she went back to take spice in her food and stop going to sea, again started to suffer. I'm not sure what is affect of spice and swimming in sea, but you can try, they make good change.
I started to get boils in both armpits after getting chikungunya virus from an infected mosquito bite.
I live in the tropics where the virus swept through last summer causing thousands of people to become ill.
This started September 2014, and has caused me terrible joint pain, styes, skin rash, and the boils. I bought some tea tree oil soap which has helped a lot, I bathe with it, rinse and dry thoroughly, then rub soap on the boils and dab on talc. They seem to be going now, still hard lumps but no pus. I also drink a tea made with fresh grated ginger and turmeric, you can use dried powder, cinnamon, honey and lime juice plus hot water. I have taken 4 types of antibiotics which did nothing, doctors seem disinterested and have offered no advice or medication. There is no cure or treatment for chikungunya virus, only painkillers, the effects can last for years, I had never heard of HS until I started researching the cause of boils/lesions in the armpit area. Hope there is a treatment soon for all the people suffering from HS.
I have suffered with HS since I had a surgery that put me into peri menopause 5 years ago. I have been taking Tumeric for prevention and it works somewhat - I recently read that Burdock Root (capsule form) is a blood cleanser and can help with detoxifying the skin. I have only been taking for a few weeks and have seen a vast improvement (although it does promote sweating). I also want to share that I get Magnesium gel caps, punch a hole in it and squeeze out the contents, I use this as a topical when the HS is red and inflamed - instant relief and reduces the lump overnight. It's messy but works - I have yet to find a topical magnesium cream. I do hope one day there will be a cure!
Turmeric, Tea Tree Oil
I'm saddened to hear about what you are going through. I had a large wound in my left arm pit from 12/10/12 - 5/20/15. Antibodies didn't really help. I cut all high fruitrose corn syrup from my diet, and tried to just consume foods that weren't genetically modified. I try to only shop at trader joes & whole foods.
I read some place that oranges contain a vitamin that reduces inflammation. So I eat 3-4 daily. Within two months of these changes the wound that's was present for years is gone. I'm beyond thrilled. It's worth giving it a try. Miko
Colloidal Silver, Zinc, Apple Cider Vinegar
Thank you for sharing your experiences with this chronic condition. My husband had it and neatly list his life to it. One outbreak landed him in an ICU for six months. All three of my children inherited it and living in a sweltering desert, someone is always infected at any given time. Outside of surgery with steroids and antibiotics, we have never found any advice on how we can control and or prevent outbreaks. Thank you. God bless and heal you.
Turmeric, Tea Tree Oil
I see a lot people that say a remedy worked for HS disease. I have used tea oil an turmeric and it has not helped. I see lot people say they have HS disease but do they really? There is a difference between boils an abscess an HS. One is not cured an comes back. I am just tryin to find out more info on the HS disease. I've had no luck really with antibiotics either. I have two holes in my armpits, my butt an groin.
Cocoa butter helps with the appearance of scars. But as far as your future relationships, if he loves you for you, then the scars won't matter. Take the time to explain to him the condition and that, while annoying, is not something he needs to be worried about. When someone cares about you, they support you through the good and bad times.
Apple Cider Vinegar
Put manuka honey UMF 20+ and cover it with an aloe vera antiseptic band aid..
I had pretty bad scars they were purple, blue, black and green. They were there for years, I read somewhere about taking a supplement of flax/fish/borage seed oil daily would help. I figured it couldn't hurt. One day about 4-6 months later I passed by the mirror and relized they were gone. I hope it works for you. Also avoid sugar and processed foods.
Hidradenitis Suppurativa: Has anyone tried taking a probiotic? I have HS and recently read an article about "leaky gut syndrome". Initially eliminated gluten from my diet and started taking zinc tablets, which I had success with (not 100%). However, it is not really an option to take zinc long term and I find complete elimination of gluten to be very difficult. I have consumed gluten multiple times through cross contamination, causing a reaction.
I recently (about 2 months ago) found an article about leaky gut syndrome and started taking a probiotic twice a day, which really seems to be helping! I have not had a breakout since and I even started adding small amounts of gluten back into my diet (i.e. soy sauce, beer, boneless breaded chicken wings, etc.)!! Not sure if it is a "cure", but it helped me and worth a shot- although I am still weary of pizza and pasta dishes. Probiotics are easily available and not expensive at all, so perhaps worth a shot?
Turmeric, Zinc and Tea Tree Oil
I came upon this site out of desperation looking for some help with the hydradenitis. I have been dealing with this for at least 30 years. I have only had a few at a time and sometimes none at all for a few years, I get them in my groin area and on the labia. I have only had really large ones on 3 occasions that sent me to the Dr.
Just a few weeks ago I developed a very large abscess that became about the size of a lime on the labia on left side. I called the Dr. and went in right away and was put in the hospital to run IV antibiotics. On day 2 it drained and he let me go home on day 3 with 2 different strong antibiotics. It went down to very small size but did not go away and I started to develop a smaller one on the left side.
So coming to this site and reading all that people were using I decided to start using the turmeric and zinc. Also using tea tree oil mixed with olive oil. I have to say that this seems to be working better than the antibiotics. They drained for a few days after starting this, now the drainage has stopped and they seem to be going away. I am taking 450 mg. of turmeric 3 times a day and 50 mg zinc twice a day. The tea tree oil I am applying after shower and then one or two times again during the day. I hope that they continue to go away and I don't have any more for a while anyway. Thank you for all the information and help. Glad to know that this is not a rare thing and lots of other people are going through this also. I did have four surgically removed 2 years ago and did not have any more for a while. But the ones that just came up have come back in the same places. So I guess the surgery wasn't that successful. Here's hoping that I continue to get better with the use of these supplements.
Top Remedies Summary
i wasn't going to share my story until I saw yours. You don't know how much your comment has helped me. I didn't think anyone else got it so young . I have had this since I was 11. I thought it was a punishment from God for shaving off my hair because it didn't want to embrace puberty. I hid it from my family until I was 14, it got so bad I thought I was never going to recover. The first doctor I went to shamed me and gave me antibiotics that almost killed me -literally. The other doctor that I went to save me from the antibiotics was male and too shamed to even try to help me. It's been 5 years and I haven't been back to a doctor since. And have never been romantically with someone because of this. I am hoping this tea tree oil and turmeric work!
I'm wondering if there's something that will lighten up Hidradenitis Suppurativa scars? I take 3 turmeric pills a day and so far, they work great! I don't have huge breakouts anymore, but I have really dark ugly scars. I'm 17 and I'm worried that the scars will affect my future relationships. I have HS around my groin area and behind. Someone please help :(
I had suffered for years with boils. Doctors did nothing but lanced them. I got them under my arms and in my groin area. I must of had a least one hundred of them. I have been boil free for over 7 years. They got really big about the size of a half a egg and were very painful.
Glory be to God... I bumped into the simple remedy... Raw fresh garlic, a whole head daily. In my salads and with all my food and sauces.
Tea tree oil does nothing for HS, there is a new clinical trial that proves it does nothing, your dermatologists dont know nothing obviously... Ask him to send you for humira injections, I have been in remission for a year now, and my lesions were as big as golf balls under my groin, and even worse on the arm pitts, so get a new dermy, cuz the symptons are only gonna get worse with time, I am only 25 by the way, started with hs when I was 15, was told it was nothing, kept searching and searching for a good derm till I finally found mine, get the injections, and do your research, dont go to a dermy misinformed, because 75% of them dont know crap.
Ginger, Garlic, Mint, Pomegranate
Dear All who is suffering from this horrible disease Hidradenitis Suppurativa,
I have been facing this issue since last one year and doctors say we can not help in this case even they don't understand what is causing this disease. Two weeks ago I visited my dad and he told me one remedy and I came back and tried and trust me I was surprised. It's herbal Antibiotic which seems 1000 times more effective than medical stuff.
OK try this ...I am same like you, searched on google for whole year, tried many things but nothing worked but this thing which I am going to share here. Cures me 70 % in 10 days ..
I am sure you don't believe but try it and then inform me within two weeks..within 2 3 days you will be letting me know that it's killing the disease..
Here you go
1) fresh ginger 50 grams
2) fresh garlic 25 grams
3) mint leaves 50 gram (fresh)
4) pomegranate seeds 50 grams (dried one)
Put in a blender and make a sauce; now put in an air tight jar.
Dosage:: 1 tablespoon (full) after breakfast, 1 after lunch, 1 after dinner.(with water) ...OR you can put this paste on the Bread and eat it...
Please Please for one week don't eat fast food; you will sea the result which will amaze you.. Please guys share it with everyone .. May Allah cure everyone from all the diseases... Best Of Luck Waiting for your response...
Top Remedies Summary
I am doing research for my brother, he has got Hidradenitis Suppurativa under his armpit, will try turmeric.
Tea Tree Oil
Thank you Aalexand,
I will give that a try. I have this issue chronically on my thighs and "nothing" has worked for me.
I'm 47 years old, decided to clean up my act put myself on all organic, all natural diet, take supplements & yes, I needed to lose about 60 lbs. So, when I bought yet another deodorant, that claimed to be all natural, I actually thought I'm doing something good for my body. About 6 hrs after applying this deodorant, I felt a discomfort under my left armpit only, it also smelled sweaty; but because I started a new work out routine, I just attributed it to the muscle soreness. Same night increased soreness woke me up from sleep. I found raised red bumps under my left armpit, with what felt like swollen lymph nodes, pain radiated to left side of left breast. Naturally I freaked a bit, started searching & found many sites, but the:
confirmed that it is Hidradenitis Suppurativa. This was 4 days ago. My armpit is pain-free and clear now. This is what I did:
1. I drank 1 Tbs of organic turmeric powder in 16 oz warm, (not hot), filtered water flavored with 1 oz of ACV, & 1 Tbs of Manuka raw organic honey -- all of this 3 times per each day.
2. Twice a day I cleansed my armpit with sensitive liquid soap, (used Dove) with a tsp of tea tree oil mixed into it; gently rubbing it with cotton puff if preferred, or just use fingers, absolutely no need to scrub, run warm water over as much as you can stand. It felt ridiculously painful when it first appeared, I could barely stand rinsing it with water.
3. after cleansing & gently patting it dry with toilet paper, I applied a mix of 1 oz of organic turmeric with 1 Tbs of same Manuka honey, making rather thick paste & then spread it on my entire armpit, it will run a bit, so wear black, as turmeric stains everything permanent yellow, but make sure no cloth is touching your pit, (or you will waste the paste you just made by having your clothing absorb it, just clamp your arm down & ace wrap it if neccessary.
4. Started taking 1 gram of Vit C, 300 mg Vit E with 50 mg Zinc, all 3 x day. This is in addition to my other supplements that I had been taking prior to this.
The swelling, redness & pain went away within 2 hrs of 1st application of the turmeric/manuka paste! I cried with joy, because the pain & swelling relief was so apparent.
I do not shave, just occasionally trim my armpit hair & have never had this happen to my entire armpit. When I used to shave I remember that I had one "pimple" pop out, which I quickly stopped with epsom salt soak, but cotton ball quickly became rough & it was painful, so I stopped shaving, had no problem until this deodorant application, or at least I think this did it.
Also, online, there is a rising consensus & a possibility that HS is an autoimmune disease. Now I already have rheumatoid arthritis, and HS is listed on many sites, as a "side-effect" of autoimmune disease. As much as I love my tomatoes & potatoes, eliminating all nightshade family plants from my diet helped greatly in controlling RA.
What were the names of the meds prescribed that cured you?
Thank God for this site and for your post, Michelle! After trying so many suggestions (Tumeric, baking soda, drawing salve, etc.) Burdock root tablets have succeeded in helping my HS! I have no angry red lesions for the first time in 3 years!
That said, this isn't a complete cure. You need to figure out if you have a food intolerance (mine are excess sugar and corn) and drastically reduce those/that food in your diet. Looking into leaky gut syndrome may also be helpful (I swear by acv, kefir, and probiotics. My stomach has never been this happy). Best of luck to everyone! So encouraged and thankful to have found this site!
Top Remedies Summary
Hello Everyone! I am 25 years old and my first flare up of Hidradenitis Suppurativa happened when I was 10 years old. Doctors were surprised it happened even before puberty. There is a number of family members with the same condition; however, every single one of them dealt with it privately and didn't offer help. Didn't help that we are all very distant from one another. This site has provided so much advice and natural remedies that I had not thought of. I wish I had some tricks up my sleeve as far as treatment but I do not.
The only thing I can share that helped me through high school was exercise; I had only one flare up from the age of 14 to 18 and I believe that's because I was crazy active in high school. That and my doctor recommended to not wear underwear at night- no bra and no panties, and that proved very helpful. Once I went to college and my activity level dropped, however, by sophomore year I had HS in my underarms. I am at a point where I have to change my lifestyle; I have graduated college and starting a great career. I have found a wonderful partner who knows about HS and is very supportive.
I have flare ups at least once a month, I have scars and I can not wear tank tops anymore- or short shorts for that matter. I have been to the emergency room with a bump as big as a golf ball; I have tried medication that never helped; I have had surgery on the groin area at the age of 14. I sometimes do get bumps on my buttocks- that is a new development. I did experience loneliness and isolation to some degree. But I am so very happy to have found this community, to see how big this disease is and to know that I am not alone. I will be definitely trying the Turmeric pills and tea as well as a Paleo diet for starters and go from there. I just wanted to share my experiences in hopes that someone can relate and see that, well, there's nowhere else to go but forward.
Warm hugs to everyone reading.
Hi, I've suffered from HS for 15 years. I have tried turmeric and that has worked for me to a certain extent. But I wanted to share something that has worked for me and has transformed my life. If I ate my last meal of the day after 8pm you can guarantee that the next day I would have a flare up. And the later I ate the worse the flare up would be. Eating dinner/last meal of the day between 7-8pm has changed my life. Now for the last 3 years I have been ok, only having occasional flare ups when my body is extremely tired from overwork or I eat late when I don't have a choice. I hope this helps someone else too. Give it a try for a week and see if it helps. Good luck, I wish you well.
You can cure Hidradenitis Suppurativa, I did this :)
All you need to do is to apply apple vinegar using cotton to your affected area. Leave it there all night long . Do this for 1 week and you will start to see the results.
It is so simple but really effective.
I used a LED-UV light for 5 minutes and within 24 hours, the boil popped. I also used Ichthammol Ointment prior to using the LED-UV light (from an Auto-Leak-Detection Kit), and also am taking zinc and Turmeric. After the boil popped by itself I put Neosporin with a bandage on the boil.
Turmeric, Diet and Water
Hi, I'm leaving this post as I think it's important that people realize, there is no "cure" for Hidradenitis. I believe it is auto-immune related, instead I would say there is however a right "balance".
Turmeric has worked fantastically for me. Had an indulgent weekend with family, upped the dosage and my lesions are still flat, which is unheard of for me.
However, I feel overall quite shitty. I drank crap, ate crap and now I will have a couple of weeks of really giving my body nutritious TLC before it is better. When my diet is good, I don't need that much Turmeric.
I would suggest an elimination diet to all sufferers, my triggers are all sugars (natural or otherwise) and all mammal meat/dairy. Cutting out the mammal meat and dairy products has been HUGE for me. It has allowed me to take a minimal dose of Turmeric. I no longer get bloated and eat a diet rich in fish and non starchy veggies. I allow myself some red rice, when I am being "extra" healthy because when I detox, if I don't eat adequate fibre I don't feel like the toxins cleanse well enough and as soon as I eat more fibre, the headaches go away and I feel great again.
In addition, I am not a super healthy person, always but the only way for me to keep this condition under control is to eat well as much as I can and drink water!
Turns out, my body needs a lot of water, I always thought I drank enough but when you get a bad flare, really look at how much you have been drinking (all of my previous terrible flares were at times when I was overheating and experiencing dehydration) and ensure to take Magnesium supplements. Sugars use up a lot of magnesium, it seems, so best to cut them out as much as you can.
In short, turmeric is by far the best herb I've tried for inflammation. Watch your diet as much as you can, drink lots of water and it makes this condition far more manageable. If you do binge, don't throw everything out the window, your body is not broken, it is trying to let you know something isn't quite right. Listen to it and be kind to yourself.