I was diagnosed with I.C. two years ago. Only in the last year has it become unbearable with my flare ups lasting for 6 weeks or longer. I eat extremely clean! I do not eat grain, sugar, or dairy. I only drink water and still the flare ups come. I just started drinking grass fed organic bone broth this weekend and OMG it is working! It almost immediately takes my pain and symptoms away. Starting today I will be doing a three day fast only drinking bone broth to really help my lining to heal. I will start to slowly add my lean protein and veggies back to my diet. This is such disease is horrible and only people that have it can possibly understand how depressing it is. I'm sharing this information in hopes that it can possibly help someone else.
Dietary Change, Probiotics
What kind of probiotics do you take? I would love to not get up to pee at night.
Apple Cider Vinegar and Hydrogen Peroxide Douche
What strength h202 did u use, please?
Baking Soda for Bladder Pain
Thanks for letting me clarify.
I don't think I am having pain from UTIs.
After give birth to 9 kids in 17 years, I had some serious pelvic prolapse problems. I tried a lot of things, including physical therapy but ultimately had surgery to get everything back in place. Well the trade off for fixing the prolapse was chronic burning bladder pain. :( At first I did think I was having constant UTI's but I think surgery left me with interstitial cystitis. The herbs helped a lot if I was really diligent. I still try to drink red raspberry leaf tea daily. But the baking soda taken a few times a day helps the most.
I do see that it is a popular remedy for UTI's here at Earth Clinic, so it probably has multiple benefits! I am prone to UTI's anyway...it will be interesting to see if regular baking soda use reduces the frequency of them!
~Mama to Many~
Baking Soda for Bladder Pain
Question for Mama to Many:
When people talk about "bladder pain", I assume this means a urinary tract infection or the start of one? I'm wondering if the baking soda actually stops the UTI in its tracts, I.e., completely gets rid of the infection? Can you please clarify? Thanks for all you contribute, too! :-)
Baking Soda for Bladder Pain
It's always good to have another remedy at the ready in my arsenal!
~Mama to Many~
Baking Soda for Bladder Pain
I'm glad baking soda helps your bladder pain. I remember reading that rutin is good for the bladder wall, although I never have had bladder pain, myself.
Mornings, I take one Swanson brand, 250 mg capsule of the bioflavonoid, rutin from SwansonVitamins.com. It's a bottle of 250 capsules.
But it sounds like you have your pain under good control.
Baking Soda for Bladder Pain
I have had trouble with bladder pain for the last year. Many things have helped, but baking soda has been the easiest, cheapest, most effective cure of all.
Red raspberry leaf tea helps if I drink at least 2 strong cups a day.
Marshmallow Root and Usa Urvi capsules help.
Quercetin and Bromelain help.
I was drinking the juice of a lemon for digestion and realized it was helping my bladder pain. I realized it was probably helping to make me more alkaline and perhaps that was what was helping.
Now I take some baking soda in water (1/4-1/2 teaspoon baking soda in 1/4-1/3 cup water) 2-3 times a day or as needed and rarely have pain.
I am thrilled to say the least. I hope others with this issue will have relief as well!
~Mama to Many~
I was diagnosed with Interstitial Cystitis 10 years ago after many unsuccessful rounds of antibiotics for a UTI. At my worst, I was house bound and could not leave the house. I was searching for another remedy and realised that I had never written down what helped me recover and so thought I would pass this along to anyone else who needs help. Supplements I used: Marshmallow Leaf Tea Cornsilk Tea Iron (I was anaemic) Probiotics D-Mannose I went on to an acid free diet and ate lots of lettuce and cucumber, which helped. I also used exercises from Amy Steins - Heal Pelvic Pain. It was slow at first, but I gradually began to improve. I went back to my normal life and diet eventually, although would limit foods like oranges and coffee. If I get ill or run down it flares slightly, but I can quickly get it back on track. I live normally and for the most part do not give it a second thought, so if you are struggling- remember it is not forever. I would also have bad days in the beginning by trying to do too much, but when I rested I would feel better than before. Good luck!
After much trial and error here is what tamps down a flare up of IC for me every time. Hope it works for others as well. Here is what I take: Grapefruit seed extract: 2caps. ( I think this works as an antibiotic.) UVA Ursi: 2 caps Prelief: 2 caps (I order from amazon but hear Walgreens carries it). D-Mannose: 2 caps ( I now buy this in bulk from bulk supplements on amazon. Way cheaper. Take a Tlb.) AZO 2 tablets. ( for the pain and urinary urgency) Aspirin, ibuprophen or Tylenol ( for the pain). I either lie down with a heating pad or I buy from dollar store a stick on heating pad.
One that heats up when air touches it. Has round disks embedded in fabric that heat up. There is no medication in it. Just warmth which lasts for hours. I usually can only find the kind that goes on shoulders but I put it on my lower stomach and it's held in place with the two self stick ends and my own pants. Feels very comforting. Usually I just have to do one round of this but occasionally I've had to do two rounds in a day. This works every time and stays away until something triggers it again. Sometimes I use it right away before symptoms flare up if I know I'm going to be triggered such as after intimate relations. This works as a preventative in that situation.
After trying several remedies and acupuncture that would temporarily relieve the pain but would not prevent flare ups, I finally found one that worked. I haven't had a flare up in 5 months! First thing when I wake up in the morning, I dissolve 2 tablespoons of Diatomaceous Earth in 1/2 cup of water. I will drink coffee but won't eat breakfast until 2-3 hours later. This allows the DE to sit in my bladder and absorb any inflammation.
This was a game changer for me! When I first started taking DE, I was in the middle of a bad flare up. It took a week to fully subside the inflammation but I could tell it was working. I take DE every morning. If I start to slack off, I begin to feel tingles in my bladder.
Don't miss a dose.
Antidepressants Caused IC
I have wondered the same about my Xanax. I did see something online about benzodiazepines causing interstitial cystitis. I have stopped taking it.
Antidepressants Caused IC
It took about five days after stopping SSRI antidepressant Sertraline for my IC symptoms to clear up.
Researching this issue, I found plenty of medical evidence that SSRI medications along with other common medications are notorious for causing IC and bladder contractions and symptoms of IC. Please check your medications and see if bladder or urinary symptoms is listed as a side effect.
I have suffered chronic pain and infections for over nine months and it all cleared up in five days after stopping Zoloft/Sertraline.
After 9 months of antibiotics and Doctors visits for interstitial cystitis and biofilms, I drank one quart of colloidal silver 10-15 ppm and ate 9-12 cloves of garlic which I chopped and swallowed each day. I spaced the silver and garlic out for three or four doses a day not exceeding a quart of colloidal silver a day. I was advised to use this protocol for three months. After one month, I am symptom free unless I start missing doses. I will complete the 3 months.
Online I found a video on how to make a colloidal silver generator cheaply using three 9 volt batteries, two .9999 silver wires, distilled water and two dual ended alligator clips. It costs me about .37 cents a guart to make a quart in 45 minutes using two 10 gage silver wires. I started out slow and increased my dose of garlic and silver until I was at the full dose.
My regular lab will do susceptibility testing with a urine culture if it is ordered by a physician. Way cheaper than Microgen, and gives the same information.
Interstitial Cystitis and DNA Testing One place to start is to rule out an infection however although culture techniques have improved since first adopted in the sixties they aren't always accurate and/or effective and can miss a surprisingly large majority of pathogens. However today's technological advancements in science have allowed labs to merge microbiology with DNA in order to accurately identify the unique genetic code of over 30,000 known pathogens (bacterial & fungal) along with susceptibility testing which leads to better treatment outcomes and less antibiotic resistance. There is a company called Microgen that specializes in this very field and is used throughout the US by savvy physicians. This test was once very expensive upwards of $700-$1200 but with continued advancements in DNA testing price points have considerably dropped. Microgen in particular will accept most insurance carriers and if for whatever reason your insurance refuses to cover the cost, they charge patients a very reasonable cash price (just under $200). This is at the very least something to do utilizing cutting edge modern science before tumbling down the IC rabbit hole. It could save you alot of suffering and aggravation not to mention countless prescriptions of needless antibiotics that can do more harm than good.
Hi, to the original poster who used equal parts acv/hydrogen peroxide douche, I would love if you could provide an update (10 years later). Did this continue to work for you? Did it cause any other issues? Were you able to discontinue and not have symptoms return? I'm concerned that such a douche would strip good bacteria and cause other problems, but am open to hearing how this worked out in the long run. Thanks!
Pumpkin Seed Oil
Has anyone else tried this?
What medications in your instills?
What is the update with your bladder now? Did the DMSO heal it fully? Do you think rubbing it on the skin of the bladder could be enough? Would MSM work better?
I realised quite recently that I have suffered from interstitial cystitis for a long time. It has been aggravated at times when I was on the pill and again now that I am on HRT. In the past I thought it was straight cystitis - but often the urine samples came back as negative for infection.
After it became bad again recently, and I was getting up in the night a lot - even though I was only doing a tiny bit of wee each time, I decided to research further. I found a research paper online. It was a very small study. The key learning was that women who DON'T suffer from interstitial cystitis have more menthol in their urine than women who do have IC. Menthol is a by product of kidney function I believe. Peppermint is the plant that contains menthol.
Immediately I started to drink peppermint tea which helped somewhat. Then I bought some peppermint oil capsules. Mine are the High Strength 100mg soft gel capsules and I take one in the morning and one before bed. I'm in the UK so I get the brand Nature's Best. Complete gamechanger! I am getting up only once in the night now. Going much less often during the day. Also just less aware of bladder pain. They are not very expensive so perhaps worth a try?
So utterly grateful to you for the measurements of turmeric. I've just tried this and I swear already I can feel a settling of my bladder. I shall keep on with this - positive thinking, no doubt, will help. Utterly fed up of these ‘bees in my bladder and other parts'. Hopefully my low grade fever will improve too as I'm shattered.
That's what the Interstitial Cystitis help site says. “Take Calcium Glycerophosphate daily to reduce unintended acids in your diet and decrease IC symptoms which result from ingesting bladder irritants.”
They recommend L-arginine, Chondroitin Sulfate, and Probiotics from studies indicating that they help relieve IC symptoms. I've upped my dose of L-arginine and ordered Chondroitin Sulfate. You probably know of Glucosamine & Chondroitin a popular supplement.
What is DE?
EC: DE - Diatomaceous Earth
Follow up by LynnAnn in Florida: OK, so after two days of doing extracts and healthy supplements for the bladder, the pain returned. I was so disappointed that these healthy things did not have a long-lasting effect. Back to the drawing board, since the pain was unrelenting and I simply could not stand it. Further research led me to info about the Wise-Anderson protocol, a series of stretches for bladder and pelvic pain. I pulled up the first video I saw (I did not realize it was intended for men, by the way). But whatever, I gave it a shot.
After the first round of these stretches, I was 50% better! I did the stretches four times a day for the next five days and today, I am pain free!!! No pain meds of any kind. Apparently, all the sitting I was doing at work and the stress I was going through had irritated the nerves that go from the spinal column just to the bladder. I can't believe this much pain was caused from sitting and stress. These stretches saved me!
Also, I ordered a standing desk, and now alternate between sitting and standing which is so much better! Takes some getting used to, but it is way healthier for the body.
So folks, if you have severe bladder pain, you might want to try these stretches. They certainly can't hurt. Any stretching is good for the body.
Good luck to all, and good health!
After two weeks of misery and what I thought was a UTI, I came to the conclusion it's something more serious. After reading up on IC, it seems like this is what I have, and after two rounds of antibiotics plus tylenol, ibuprofen and AZO around the clock I was still in extreme pain. I have cried more in the last week than I have in the last 3 years. I was beside myself. I realize now that long hours of sitting at my desk and working a stressful job where I am overloaded were clearly contributors to my condition. Since the antiobiotics weren't working, I did some research here and found much helpful info from all you folks! Thank God so many people get on here and report what works for them. I went to the health food store and loaded up: uva ursi extract, marshmallow extract, a powdered berry drink called UT Vibrance, colloidal silver, tumeric caps, cinammon caps, parsley caps, quercetin.
The first thing I did though, was ACV and baking soda, and this did seem to help right away. 2 Tbs ACV, 1/4 tsp baking soda (I tried 1/2 Tbs and it was too much, I got diarreah! My bladder did feel better though), and 8 oz of water. I ran out of Stevia so put a little honey in there. It wasn't bad.
Yesterday I stopped all meds, including pain meds, and I did the extracts, the powder and the colloidal silver on an empty stomach, then ate some healthy greens and such a while later and did all the caps. Today I've done a couple rounds of extracts and caps with food, and I am still pretty much pain free! I have hope again! I still feel a little discomfort, but I am not writhing in pain anymore. I do the ACV an hour after I've done the extracts. Don't do this with food as it interferes with digestion.
I am convinced that some of the problem is that my pH was terribly out of balance, and that was a lot of the problem. But stress and sitting for too long were definite contributors. Time to change my life! I truly thought I was a goner, I was in so much pain. I'm going on a trip to Italy with my family in a little over a week and I was afraid I would not be able to go. I have hope today! So don't give up trying, folks. Try these remedies or others on this site to see what works for you, especially if you've tried antiobiotics and have no relief. Also, eat foods that make your body more alkaline, consider juicing (guess I'm going back to this good habit! ). Don't give up. You will find what works. My best to you all!
I've dealt with UTIs my entire adult life. Since my kidney transplant in June 2016, I average one every other month! My go-to antibiotic has always been Cipro, BUT, after the UrgentCare lab did a CULTURE (VERY IMPORTANT TO DO A CULTURE, since this will pinpoint exactly which antibiotic will kill the bacterial infection! ), the lab prescribed Augmentin. I discussed this change with my post-transplant coordinator and he and I both thought that I was becoming resistant to the Cipro, and that I still had remnants of the infection after taking the Cipro! I'm now on day 3 of 10 days of the Augmentin. We'll see if this totally gets rid of the infection. I'll check back in a month or two with the status!
I also agree with prior posts about avoiding wheat, sugar, dairy, meat and nightshade vegetables for a while. Lately I've be eating more bread and sugar, so this probably was contributing to the issue.
Dietary Change, Probiotics
Healing my painful bladder problems:
For years I suffered with over-active bladder and later Interstitial Cystitis. Major OUCH! I couldn't eat many foods, such as tomatoes or citrus, without it irritating my bladder. I would be up all night, needing to urinate every half hour. The symptoms were much like a bad UTI, of which I had many.
The doctors were of no help, often prescribing antibiotics, ever though the UTI causing bacteria was no longer found in my urine. The symptoms would come and go. Some weeks I would be fine, then the pain would mysteriously start up again. As the years went on, I soon discovered a pattern. Eating too much sugar, or taking antibiotics would bring on a serious flare. Yeah, I'm a slow learner.
After a UTI and being on antibiotics, I would be fine for about a week, and then the painful IC symptoms would return with a vengeance.
Then, while on this very site, Earth Clinic, I ran across a post describing exactly what was happening to me.
The antibiotics I had been taking had killed off the good bacteria in my bladder and had also given me a horrid sinus problem. I had read somewhere that the two issues usually go hand in hand, but I had never connected the dots.
I discovered I had Candida, an over abundance of bad yeast. The sugar I ate had been feeding the bad bacteria. So, this made sense. The yeast had created little holes in my bladder lining, causing certain foods to irritate it. This also made sense.
The cure, for me, was cutting way back on sugar, staying on a good diet, drinking lots of water and taking GOOD Probiotics. Lots of GOOD Probiotics! That was the real answer, but it wasn't cheap. I didn't care at this point and just bought them.
The good bacteria in the Probiotics soon over took the bad bacteria and healed the little holes in my bladder.
For 2 weeks, I would take one pill with every meal. Soon my sore bladder issues were gone and so far have not come back. It's been two months now. Fingers crossed.
I can now eat anything without a problem. No more getting up all night, going to the bathroom. I still have a slight sinus problem, but it's getting better. I am no longer getting UTI's, so am able to avoid antibiotics. I still take daily maintenance Probiotics and can now tolerate Cranberry pills, which keeps the UTI's away.
Why oh why could any doctor not have told me this years ago? All they would say is "Stay away from the foods that hurt your bladder." They could not direct me to the root of the problem.
I have read that there are thousands of women who have over active bladders and now believe that in many cases Candida is the problem.
I hope me taking the time to write this helps at least one sufferer.
I can now enjoy life again. Hugs to you all.
I have had a uti for 2 weeks on a pain level 10 so does turmeric work
If you can find an IC specialist in your area ask about DMSO this is a procedure where they inject a chemical cocktail into your bladder for 20 mins once a week. It is what gave me back my life. I suffered for about 6 years before I found Dr. Philip Hanno (Philly). He now lives in California.
I have been *mostly* free from any IC flare ups for probably at least 3 years now (THANK GOSH). I say mostly because sometimes after intercourse if I am not very careful about keeping the area very clean, using lots of lube (coconut oil) and soothing any inflammation then I feel a wee bit of irritation that is mild but may last up to a week. I second the marshmallow root or leaf. My naturopath recommended that I drink it in tea format. I drank lots of that tea, probably 3x per day. This tea in combination with other natural remedies cleared things up within a matter of months. HUGE amazing results seeing as I had been suffering for over a year under the care of a general doctor who just kept prescribing me drugs. I feel it is very important to note as well the possible correlation between yeast infections, GI issues and IC. I feel like my IC cleared up once I also worked with my naturopath to clear my recurrent yeast infections and strengthen my GI tract. The gut has LOTS to do with health and inflammation, so what with my gut being out of wack, consuming too much sugar and fighting yeast infections, it was no wonder my bladder was getting inflamed also since it is in that same general body area.
Cornsilk tea for IC
This tea, along with marshmallow tea, really helped! Several cups per day (at least 3). I would try and let it steep for as long as possible so that it is nice and potent. I forget as I have been IC free (and so have not used this tea) for about 3 years, but I believe my naturopath said to put very warm but NOT boiling water over the tea so that it does not over heat the tea and destroy the healing nutrients.
Boric Acid Suppositories +
Yes, I agree on the boric acid. I found that recurrent yeast infections were exacerbating the inflammation in the pelvic region and thus causing IC flare ups. I experienced lots of relief from IC once I started taking probiotics as well as another herbal supplement (forget the name) to heal my gut, and boric acid to fight yeast.
Pelvic Floor Therapy
Yes I would second pelvic floor therapy for Interstitial Cystitis. My physio who I saw said that I had muscles firing when they shouldn't be (overactive) and no muscles firing when they should (underactive). My muscles were all confused and stressed out from the chronic inflammation and pain. Intercourse was an absolute NO for a solid year because my muscles were just in a spasm knot. IC free for several years now. I do still need to be careful with intercourse to relax and not tense. I feel like pelvic floor therapy helped though once I was over the worst part of IC and was working on long term healing and future prevention. It did not really help with any of the acute immediate pain.
That is great that the bone broth healed your IC! I have been having it every day and it has helped a lot with burning, but I'm still having the urgency. Did it also help with your urgency/frequency? I know that's only a symptom in some IC patients. Thanks!
Just today I was researching Mullein Root Tincture for a friend and noticed that it said it is sometimes used for Interstitial Cystitis. Mullein root is difficult to find. I have bought it from beneficial botanicals and made my own from mullein root in my yard. I have used it for my joints with success.
A dose for Mullein Root Tincture are 5-15 drops.
I also wonder if frankincense essential oil, a quality one (Hopewell oils are my favorite) would help. A drop or two applied to the abdomen has helped me before with a UTI and also with ovarian cysts.
Just a couple of things I would try myself if I were dealing with IC.
~Mama to Many~
Same. I've been suffering from this horrible condition since 2012. Occasionally my urine culture comes back positive, but not always. One time I was prescribed Macrobid/Nitrofurantoin for a mild UTI and it made my IC symptoms disappear for a couple of months. It was amazing! A few months later my symptoms came back, but I tested negative for a UTI and a bunch of other stuff. At some point I got so sick of my IC symptoms and asked to try this antibiotic again even though I tested negative for UTI. Within a few days my symptoms were gone! So yeah, this medication definitely works but then the symptoms always seem to come back within 2-6 months, so it doesn't seem to be a long term solution.
Does anyone know why this medication works for IC? Most of the doctors I've seen can't explain it. Some of them were actually pretty surprised when I told them it makes my symptoms go away.
Hydrogen Peroxide, Iodine, Organic Food
Am very interested in the couch grass. cannot locate it. Where did you find it?
Dietary Changes, Supplements
Raw dairy from grass fed animals can be healing, Weston Price did a worldwide study in the 1930's to discover the causes of modern degenerative diseases- Nutrition and Physical Degeneration, and he found that the refined foods were the culprit, granted that was before refined grain oils, and GMO's and all the additives after the 30's. But he found proper raw milk and cheese from mineral dense pasture was the ticket. I am trying to replicate that on my small farm. I have goats and milking sheep. There is definitely a difference- my goat milk when the girls are on raw greens is yellow, and so is milk from our Jersey we used to have, who ate foxtails, bless her heart, but green foxtails, and yellow, yellow, yellow milk. There is truly a different chemistry going on there. I am also trying to do greenhouses in winter for chicken and rabbit greens and they get yellow fat too from the greens. sometimes striking yellow. My husband thought something was wrong. But that's beta carotene as well as vitamin K2. We try to supplement with 60 minerals, and put limestone and dolomite on the garden and weeds.
Look up Weston Price's book free PDF here;http://gutenberg.net.au/ebooks02/0200251h.html and listen to Dr Joel Wallach who is an amazing Doc Dead Doctors Don't Lie; https://www.youtube.com/watch?v=ARB73jV4mro
Ulcers are not alwways H Pylori. There are ongoing studies using rats, mice pigs, and horses understress showing that fasting and stress ( like moving them in a trailer for pigs and horses, shocking their feet or making them swim in cold water for rats and mice), continue to shed light on adrenal cortisol stress related ulcers. I have always been negative for H Pylori and yet the ulcers persist. I know it's stress, but found recently on NCBI that butyric acid (in butter) heals damaged villi, and more recently gelatin and collogen type II, which is what I am researching here.
Hi, I did ozone in my bladder for IC ad it made me ten times worse. Ozone will deteriorate the lining of the bladder wall. I did with Dr. S and I wish I had not. Tread lightly.
So glad to see your post here about taking diatomaceous earth and using the senna tea also for the constipation. I've been trying to teach people about this very same regimen to take for IC and using Dieter's tea made with senna, especially in the beginning, since constipation is the number one side effect when starting the DE. It's worked so well for me that I've not had any IC flare since my last one in the middle of December 2016. I used to have flares at least 4-5 times a year, and I would take prescribed Pyridium to relieve the pain. I would have to take 2 tablets twice a day for 5 days before the pain was completely gone. My last flare was when after starting DE, I began my first break. On the second day of the break from DE, I had a flare of my IC. I decided instead of taking my prescribed med that I would just restart the DE; and I kid you not, my pain was gone within hours! That's when I decided that I would only take a break from the DE when I felt it was necessary. I've only taken one other 7-day break and luckily no flare of the IC during that break. So I am totally convinced that not only did the DE clear up my IBS and/or leaky gut but it also helped my IC among other physical problems... that I could write a list about. I will not be without DE probably for the rest of my life. My doctors have been absolutely amazed at what it's done for me, and I'm almost 63 years old!