I wanted to add some information to my comment that may help someone else in their struggle with interstitial cystitis (IC).
I had been taking the green coffee bean extract to lose weight, but used it far longer than what is recommended. According to a recent Dr. Oz (big promoter of this supplement) comment, the green coffee bean extract capsules are only to be used as a "jump start" to losing weight - especially fat around the waistline. I did not know this until after I had been taking it for two years! A friend told me about the Dr. Oz comment which was made during a TV segment.
I noticed that the green coffee bean extract label contains 50% chlorogenic acid (200 mg). I was taking one capsule twice a day, so I was ingesting 400 mg of this acid each day!
When my gyno suggested that I either lessen or eliminate acidic foods, it occurred to me that this supplement was probably worsening my urinary tract problems!
Since stopping the green coffee bean extract (over 2 months now) I haven't been completely cured of IC, but the pain and frequent urination has been greatly reduced! Therefore, I think that the extract was a big part of my particular problem with IC.
I hope that this additional information will be helpful to those who may have been taking green coffee bean extract and have been suffering with interstitial cystitis.
Peroxide, Iodine and Organic foods for Interstitial Cystitis
I started having IC symptoms over a year ago, and was diagnosed earlier this year. I tried prescription antibiotics, antifungals with minimal results. I am convinced now that IC is an infection of the bladder by microscopic parasites (schistosomes - look up Hulda Clark and IC) and fungus, because antiparasitic herbs, salts, iodine, peroxide, antifungal herbs, and other antimicrobial treatments have kept my symptoms completely gone for many months.
I started on one drop of 35% food grade h2o2 x3 daily to 25 drops. I stayed on the max dose for 3 months. I am now on a maintenance dose of 5. I also consumed about 300-500mg of iodine thoroughly mixed in 1/2 gallon fresh homemade wheatgrass juice daily. I was on this range for about 3 months also. I am now on a maintenance dose of 50-100mg daily. Other changes I made this past year was to switch to all organic, down to my condiments, personal care products, etc. I also moved out to the country here in MT, where water and air is fresher and cleaner. I regularly douche with a mixture of equal parts peroxide and acv, with a tbsp of borax per cup of liquid mixture.
IC is a complex illness, and it takes commitment to major fundamental changes in one's life to see significant changes for the better.
(Anaheim Hills, Ca)
(Coral Springs, Fl)
(Fl - Florida Margate)
I linked Interstitial Cystitis, IC to a cause.
I had a new habit of chewing on cough drops daily. I just like the peppermint taste and I was having vitamin C ascorbic acid IVs the stuff was burning my arm and now I have IC. I wonder if it burned my bladder, weakened it, and became susceptible to ureaplasma.I drink tons of water, fresh squeezed lemons and 2 drops of SSKI with baking soda,
I have read that Interstitial Cystitis may be caused by Ureaplasma. The doctors do NOT check for this. Also, bacteria can go into the lining of the bladder and live there and it does NOT show up in the urinalysis. So then you need to take medicine for 6 weeks I read, also first the biofilm needs to be dissolved then 15 minutes later then take prescribed medicine or find a natural medicine. See a toxicologist they will know what to do.
I was diagnosed with IC a little over a year ago after going through pain for three years and several urologists and obgyns that didn't know squat... Give out a script and see ya! I finally got rippin mad and told them to recommend someone out of town that knows whats going on. I had to travel an hour from home to get better information. I was treated for the IC in a couple of ways and symptoms came back again and we tried another avenue... I had day surgery to explore my bladder and they discovered a stone... Just had this removed a month ago at a well known facility in the other direction two hours away... Relief is wonderful... No more pain (and previous pelvic mesh was part of my problem)... Please do not just accept one person's opinion or diagnosis... Go for more - IT IS WORTH THE TRIP!
To Mr. Ted: Can you please advice on cures or treatment for terrible IC.
Interstitial cystitis is a painful, chronic condition in which the walls of the bladder are inflamed. Also called painful bladder syndrome, the condition does not have an evident cause, and it is often confused with bladder infections and other conditions with similar symptoms.
Common symptoms of interstitial cystitis include pain in the pelvis, discomfort during sex, and changes in urinary habits, specifically: more frequent urination, pain on urination, and intense bladder pressure.
To me it feels like a very strong infection, I also feel for some reason the gut has a great deal to do with it. I pray that you are able to reply.
Thank you so much. Ted and E.C. Team! <3
Low does naltrexone works very well for IC. It is an FDA approved drug at 50 mg/day, but was found in the 1980's to work at very low doses of 1.5-4.5mg/day, taken at night, to put into remission many autoimmune disease, MS, Crohn's and many more illnesses. It is non-toxic, no side effects (except possible sleep disturbances for a week or two, in which case it can be taken in the morning) out of patent so very inexpensive drug used by thousands. Here are reports from users for IC:
Find the site at www.ldninfo.org and join the Yahoo Group at the top part of the page. It has over 13,000 members who take LDN, and they are very helpful in answering any questions you may have. Best wishes to feel better!
Hello, i would like to share this: I was diagnosed with Interstitial Cystitis (IC) two years ago. And I am cured, thank God. The woman who brought me on the healing path is a nurse practitioner in Washington DC, who has ahd IC herself. She has treated AND cured hundreds of persons suffering from this terrible disease. She sees that most of the time, IC patients have Lyme disease, without knowing it. Once you treat Lyme, IC goes away. Before getting to know her, all my urine test would come negative. But she is working with a lab in Virginia, which is the only lab in the world which specialised in IC.
I hope that other IC patients can read this post and find their health back again like I did. Evelyn
(Los Angeles, Ca)
**Relief from Macrobid yet tests show no infection.
28 years old, diagnosed with Interstitial Cystitis in March 2015. Had horrible pain, frequency, etc. Tried bladder instillations that gave little to no relief, tried a very restrictive IC diet, went to 4 different Urologists, and tested negative for Ureaplasm and for any bacteria. Finally mid-April I couldn't handle the unrelenting pain and frequency (every 15 minutes). I tested positive on two home UTI tests and went to the Minute Clinic. Nurse prescribed Macrobid for 7 days - even though the tests showed no infection. Within 24 hours - I was basically cured - mild pain - ran 12 miles, felt 95% normal - no frequency. Then within 3 days of finishing the Macrobid the pain and symptoms came back. In May called my Urologist begging for more Macrobid. Within 3 days of starting the Macrobid - 100% relief. Then I had a cystoscopy that confirmed IC diagnosis. After taking Macrobid for 10 days, I feel normal - except of the soreness from the cystoscopy/slight hydrodistension.
Macrobid cured me and the hydro helped with my bladder capacity but none of my doctors will listen to me! It has been 3 weeks so far. I have gotten away with eating cheesecake, dried cherries, bananas, etc.
IC- the spasming, pain, frequency and all the other symptoms went away completely when I rubbed magnesium oil on my lower abdomen. I used about 10 drops and was almost 100% better, then used 10 more drops just to be sure. Because it worked wonders, I believe it was a muscle issue.
I have been *mostly* free from any IC flare ups for probably at least 3 years now (THANK GOSH). I say mostly because sometimes after intercourse if I am not very careful about keeping the area very clean, using lots of lube (coconut oil) and soothing any inflammation then I feel a wee bit of irritation that is mild but may last up to a week. I second the marshmallow root or leaf. My naturopath recommended that I drink it in tea format. I drank lots of that tea, probably 3x per day. This tea in combination with other natural remedies cleared things up within a matter of months. HUGE amazing results seeing as I had been suffering for over a year under the care of a general doctor who just kept prescribing me drugs. I feel it is very important to note as well the possible correlation between yeast infections, GI issues and IC. I feel like my IC cleared up once I also worked with my naturopath to clear my recurrent yeast infections and strengthen my GI tract. The gut has LOTS to do with health and inflammation, so what with my gut being out of wack, consuming too much sugar and fighting yeast infections, it was no wonder my bladder was getting inflamed also since it is in that same general body area.
Marshmellow root, a true miracle.
I have been so lost, confused, depressed and in a whole lotta pain until I read about this miracle drug and tried it. I am 47 and have been through two operations for endo. I developed severe pain in my lower stomach and pelvis area and went to urinate constantly. Although drs always told me I had ic and endo, I never was told what to take for relief. Couldn't sleep for a complete night without having to pee. Back pain got worse and I ended up going to my obgyn again. He looked at me and said that when I have had enough pain I'll agree to have a hysterectomy that he recommends. Sent me home with birth control pills. Why don't drs tell u about these possible drugs that can actually help? Seems like there just out for themselves. I came home and started searching on the internet for help. And there I saw marshmellow root and the reviews. I decided I was gonna try it and after two days, my pain has drop tremendously and the swelling has went down a lot. I also have ibs and it seems to help with that too. I gave up my diet soda which I'm sure that has a lot to do with the irratation. But I am willing to try just about anything to feel like me again. So far I'm so impressed with the marshmellow root capsule. I hope this gets out there to someone who is at the end of there rope like I was. Give this a try, u have nothing to lose. I only paid ten dollars for 100 capsules and so far, it has been worth every penny. God bless.
I was diagnosed with mild IC a little over 4 years ago, but think I've had it more like 20...I remember trip after trip to the dr's for a UTI, finding nothing wrong, but being prescribed antibiotics. Been taking Elmiron on/off for the past 4 years and have finally had it. I've lost so much hair over the past year, and finally faced the fact that it does nothing for me! Also done the whole DMSO thing, but think that's more painful that helpful. Anyone else felt the same way? I'm usually in bed the rest of the day from pain. I've got Marshmallow Root and Whole Leaf Aloe on the way, and use baking soda for a quick fix. Will let you know how my experiment goes! : )
I starting taking msm supplements for joint pain and noticed my IC has cleared up nicely. I don't know the science behind it but it worked well for both things joint pain and IC. I hope this helps someone else.
I have IC. I found that MSM, a nicer derivative of DMSO works quite well. It reduces inflammation and that is what IC is, chronic bladder inflammation.
I am taking the supplement MSM for IC, asmtha, IBS among other things. The problem is that I cannot take Vitamin C due to my bladder problem...Is there another form of Vitamin C that would not aggravate my IC? I'm asking because I have read that Vitamin C helps the absorption of MSM tremendously.
(San Diego, Ca)