Interstitial Cystitis
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Interstitial Cystitis Remedies

Baking Soda, Peppermint Extract

1 User Review
5 star (1) 
  100%


Posted by Sharron (Grove, Ok Oklahoma) on 10/30/2011
5 out of 5 stars

I've been suffering a terrible flare of IC. Apparently, I've had it for years, although I just learned about it recently. I've adjusted my diet to eliminate all acidic type foods. Onions appear to have been a particularly bad thing for me, and I used to eat them all the time! Anyway, I'm still recovering from this flare -- it's been two weeks now that it's been bad. I came on the EC site about a week ago and read separate posts about peppermint tea and baking soda. Well, what I've discovered is that both of those things help me. However, what seems to help me best when I'm having a lot of pain and urgency is 1/2 teaspoon baking soda and a few drops of stevia extract mixed with either 7 drops of peppermint extract (not oil) OR a strong-brewed cup of peppermint (leaf) tea. Within minutes I'm feeling better. If it is during the night, I'm able to go back to sleep right away instead of laying awake with stabbing pain in my abdomen.

Additionally, I've lost 6 pounds in a week. I think it is related to all the inflammation that the IC was causing. I hope that it will continue!

I hope my little remedy will help others who are suffering. Thanks for a great site. I almost always come here first when I need a remedy for something.

Blessings!


Barley Milk

1 User Review
5 star (1) 
  100%


Posted by Mel (Portland, Or) on 11/25/2010

Whole Barley Milk with MSM Recipe

This recipe is very easy and cheap to make. Whole barley flour can usually be purchased from a health food store or ordered online for about $2/lb. The cheapest source of pure MSM powder I have found is an online bulk food supply site for $9.71/lb, and it lasts a really long time. Even if you omit MSM from the recipe, it is still wonderfully soothing and healing. Whole barley milk is smooth, creamy, and easy to drink. Personally, I find it tasty. It is a perfect beverage for mixing in other supplements such as ph drops, aloe, condroitin, d-mannose, liquid calcium, etc. It makes a nice smoothie shaken-up with 100% blueberry juice. I have been drinking about a quart of whole barley milk a day and it has helped me greatly. I recommend it for any one wanting to improve their health, especially those suffering with IC, UTIs, arthritis, or heartburn. Like marshmallow root water, barley water is demulcent. It is purportedly soothing and healing to soft tissues, such as internal organ linings and soft tissues surrounding joints throughout the body. Water boiled from barley has been used for digestive health and general soothing tonic for centuries. Whole barley is rich in fiber and good for cholesterol health. I usually triple this recipe, making three quarts at a time. Ingredients:

2 tablespoons whole barley flour, organic preferred, - not coarsely ground
1 pinch sea salt, optional
1 tablespoon raw honey or organic agave syrup, optional
1 tablespoon safflower, grapeseed, or coconut oil; cold-pressed/organic preferred
1 level teaspoon pure MSM powder
4 cups cold water

Have a clean quart jar and lid handy for each quart of milk being prepared. In a good non-reactive saucepan, whisk the barley flour into 3 cups of the cold water, and heat over medium-low heat, stirring regularly until steaming. Do not boil. Whisk or shake the MSM into the remain 1 cup of water, and set aside. Add salt and honey or agave to the saucepan, if desired. Continue to heat and stir until thickened (about 5 to 10 minutes). It should look something like skim milk the consistency of heavy cream, and should be well heated like hot soup. Remove from heat. Whisk in oil. Whisk in MSM mixture. Pour un-cooled into clean quart jar, cap and refrigerate. Chill barley milk overnight before using. This allows fine barley particles to fully absorb liquid. Shake well before serving. If you prefer a thinner beverage, mix with water or blueberry juice. Keep stored barley milk refrigerated and use within a week. Notes about adding other supplements: A single serving size (as directed) of supplements such as ph drops, liquid condroitin, and/or d-mannose powder may be mixed in the last cup of water along with the MSM, before incorporating into the barley milk and refridgerating. Heat sensitive supplements - such as Aloe, or supplements that should not be taken near bedtime - such as liquid calcium, may be added when serving, if desired.

About me:
I am a 38 yrs old. I believe that I have had too much acid in my system my whole life, both as a result of diet and exacerbated by times of stress. As I approach middle age, soft tissues throughout my body are suffering, especially my bladder lining and those involving my joints. I have been a natural foods junkie most of my adult life - but unfortunately I also had a serious daily habit for all things extremely spicy and sour, as well as copious amounts of caffeinated tea. I also drank alcohol and smoked cigarettes socially. For bodily comfort, I have omitted these things from my diet/habits. General stress reduction is also a must. Yoga helps! Best of luck and health!

Replied by Ziggy
(Franklin, Pa)
11/29/2010

I have read your post & see that you suffer from ic & joint pain. I am currently going thru the same thing at this time. Do you know why you have the joint pain. Just curious to know if you found out anything. Thanks so much!

Replied by Mel
(Portland, Or)
12/22/2010
5 out of 5 stars

I can not say for sure if there is a direct link between my personal joint pain and I.C. , however, I believe they are indeed related. I believe they are related because first because the dietary/supplement remedies that help one always seem to help the other. And correspondingly, when one is flaring, so is the other. I believe that they are conditions both exacerbated by high acidity in the system, either as a result of diet, or stress, or both. These are the dietary items I have found that seem to give me comfort, relief, and healing... -barley water, and barley milk

-eastern barley (also known as hato mugi, jobs tears, coix), also as water or milk

-unflavored gelatin, mixed with cold water, then dissolved in tea or hot water and drunk or added to kefir, nondairy drink, or low-acid juice

-agar, used with beverages the same way as gelatin, above
-whole grain hemp seed milk
-whole grain unsweetened brown rice milk
-whole mixed grain nondairy beverage (a healthfood chain sells one with quinoa and amaranth)
-coconut water/juice (all natural)
-carrot juice
-marshmallow root tea
-soaked basil seed drink (all natural/homemade)
-fresh broccoli and kale sprouts
-onions

-chondroitin supplement
-msm supplement
-d-mannose supplement

If there is anything above you have not heard of, search it online and you will find info. I am doing very well after changing my diet and drinking plenty of the assorted beverages listed here. Good luck!

Replied by Jen
(Portland, Or)
05/17/2011

Mel, I am not sure if you will see this since you wrote a year ago here. I just found out I have IC and am wondering if you are still doing well from your changes and barley milk? I live in Portland too. Thanks

Replied by Renae
(Hastings, Mn)
09/02/2011
Replied by Lynne
(Titusville, Pa)
10/31/2011

Mel I also am curious if you are still doing well and what kind of bladder pain was yours cause mine is burning, pulsing pain in my bladder and back that has been 24/7 since 2006, and is the barley milk healing to the bladder? This pain is so horrrible I would like to try the milk- is that what has helped your bladder?


Best Bottled Water

Posted by Husseypat (Panama City, FL) on 10/06/2009

Interstitial Cystitis

I have IC and have suffered severe pelvic pain. Diet has helped a lot, but I am definitely not pain free. I have found that heat can help the pain temporarily and that the acid reducer listed on the IC NETWORK does help if you take it before every meal or snack. I know tomatoes drive me to a bad flare-up, so I try to avoid them at all cost. It's very hard to not eat foods with any preservatives-----that means nothing out of a box, can, or package. I do not drink ANYTHING but water. I wondered if anyone knows which of the bottled waters has the highest PH and the least of damaging processing for an IC patient. I can't walk much, stand much and definitely can't exercise. I get horrible pain. I bought an Elliptical Trainer machine and after a couple of days it had my pelvic in a complete knot. I have always exercised religiously, but not anymore. I find this condition can be very depressing because you know the lining in your bladder is gone forever and you have to deal with this the rest of your life. You look healthy when people see you, but they can't imagine the suffering you do in private. Good luck to all. pat

Replied by Julie
(San Diego, California)
03/03/2010

this is a reply to husseypat-- evian and fiji have the best ph, which is a 7. many people drink these when trying to alkalinize their bodies... hope this helps!

Replied by Lori
(Palatine, Il)
08/12/2010

Essentia 9.5 ph - I bought at Whole Foods

Replied by Christine
(Kentucky)
01/10/2015

Aqua Hydrate pH 9 + bought at GNC


Black Cohosh

1 User Review
5 star (1) 
  100%


Posted by L (Florida, Usa) on 10/26/2013
5 out of 5 stars

Wanted to share my story in the hopes it will help someone else...in the past I have been prone to uti or bladder or kidney infections...a trip to the doctor and Cipro would usually take care of it. This time I felt as if an infection was coming on, but it never did. Had my urine tested twice and no bacteria. I felt the urge to pee constantly, and though it was not painful, it was VERY uncomfortable. All day, everyday, feeling like I had to pee even after I had just gone. Slight twinge or ache in either kidney but nothing painful or particularly noticeable. Had CT scan to rule out kidney stones; had bladder scope to rule out anything else. With those and the urinalysis coming back ok, urologist, for lack of coming up with any other diagnosis, said it must be IC. Said to watch my diet and avoid coffee and alcohol and look it up on-line to see what foods were ok to have, etc. Came to this site and read everything that's been posted on IC. Made my lists and decided to try things one at a time. I could live with this feeling but didn't want to as it is a terrible thing to always have to feel like you need to pee.

Nothing helped until I tried Black Cohosh. Bought it at a health food store. It also has Isoflavones. I got it at work on my lunch hour and figured I had nothing to lose. So I took one after my lunch, about 1pm, to see how it would react. The urgency was gone within 30 minutes. Then again about 4pm I took another one. I had a night of relief from this terrible feeling for the first time in three weeks. In retrospect I would not take any after noon going forward as I do believe it kept me up taking one so late in the day. Today I will take one in the morning and one at lunch. I don't know if this is my answer, but I do know that I felt normal for the first time yesterday afternoon. Will keep you posted.

Replied by L
(Florida, Usa)
10/31/2013

Following up on my previous post...good news! I took the Black Cohosh for 4 days, one in the morning and one in the afternoon, and have not had to take any since! I am back to normal and that is a wonderful feeling. We are all unique and what works for one may not work for another, but this has been my Godsend. Blessings to all of you as you search for what works for you!

Replied by Sunny
(Ca)
10/31/2013

Can we know the brand of the product you took? Thanks!

Replied by Sunny
(Ca)
10/31/2013

Congrats! I am happy for you, you give us hope. <3 Thank you for sharring this info with us.

How do you take this Black Cohosh? Pills, softgels, tea, tincture?? How much/how many? With/without food, aDid you do anything else different?? You say you have not had to take any since.. Do you think you're cured?

Thank you in advance for your reply.

Pass love forward - Sunny

Replied by L
(Florida, Usa)
11/15/2013

Wanted to update you...after I posted that the Black Cohosh worked for me, I got another UTI that was very painful, with blood. I'm not sure if it was because my body was "cleaning house" or what...got a prescription for Macrobid. This took care of the infection but I still had the terrible urge to pee all the time.

I looked more seriously at the foods I was eating, trying to change to a more alkaline diet as well as cutting out all coffee, soda, alcohol. Then I started taking the baking soda and hydrogen peroxide each morning. I also began taking turmeric. I took warm baths with epsom salts before bed. But the thing that has seemed to help me the most was the Extra Virgin Coconut Oil. I rubbed it in externally over the bladder area for a couple of nights before going to sleep, and I am now also taking it with each meal.

I do believe our bodies want to heal themselves and I am trying to help with what I know and have read from others. I also know the Good Lord answered my prayers as I have been pain free now for a couple of days and I am so thankful.

Blessings to all--

Replied by L
(Fl)
11/24/2013

Another update...I have also begun taking something for the acid in my stomach (pantoprozole) and have been fine ever since. I believe the original problem causing ICC begins in the stomach/digestion. I am now starting to eat the foods that I had stopped eating when I was told that I had ICC. So far so good.

Replied by Orla
(Cork, Ireland)
06/25/2017

Hi there. Could u please tell me the brand of Black cohosh to use?


Bone Broth

3 User Reviews
5 star (2) 
  67%
4 star (1) 
  33%


Posted by Tyler A. (CA) on 05/17/2021
5 out of 5 stars

I was diagnosed with I.C. two years ago. Only in the last year has it become unbearable with my flare ups lasting for 6 weeks or longer. I eat extremely clean! I do not eat grain, sugar, or dairy. I only drink water and still the flare ups come. I just started drinking grass fed organic bone broth this weekend and OMG it is working! It almost immediately takes my pain and symptoms away. Starting today I will be doing a three day fast only drinking bone broth to really help my lining to heal. I will start to slowly add my lean protein and veggies back to my diet. This is such disease is horrible and only people that have it can possibly understand how depressing it is. I'm sharing this information in hopes that it can possibly help someone else.


Bone Broth
Posted by Lea (Ca) on 03/20/2017
5 out of 5 stars

Years ago I started having symptoms of IC, the same symptoms as a bladder infection, without the infection. (Google it) Symptoms would come and go through out the years. The inflammation would cause me to feel weak and tired. Then I remembered that my bladder problems always seemed to act up after I took antibiotics. So, this got me to thinking...."Candida fungus was probably at the root of my bladder problem."

So, I went on a Candida diet, for 3 weeks and I not only lost weight and started feeling better, but my IC symptoms seemed to let up...but not entirely.

Then, after my latest flare, I did some research and discovered Bone Broth. I mixed a cup, half and half with vegetable broth, heated it, drank it and within 4 hours the pain had let up.

My understanding is that the Candida fungus causes little holes to form in the protective lining of the bladder, causing pain when the wrong food is consumed, and the broth helps heal that lining. Much like it is suppose to help heal leaky gut.

I thought, "It can't be this simple." So, I tested it, ate some citrus (a big no-no for IC suffers), symptoms flared, I drank the broth and the pain let up. I now drink at least one hot cup of broth a day and, knock on wood, I think it's my answer.

I believe that the Candida fungus was the root cause of the IC. Going off bad carbs was really hard at first, but now I seldom feel hungry. I eat very little but what I do eat is very nutritious. I have so much more energy and feel much younger. I told my hubby..."Unless I'm dying, DON'T let me take any more antibiotics! "

Hope my story helps at least one IC sufferer.

Replied by Carla
(Atlanta, Ga)
01/17/2018
4 out of 5 stars

That is great that the bone broth healed your IC! I have been having it every day and it has helped a lot with burning, but I'm still having the urgency. Did it also help with your urgency/frequency? I know that's only a symptom in some IC patients. Thanks!

Lea
(Ca.)
05/17/2021

Tyler! I am so glad that the bone broth is helping you. You will still find that there will be foods that will cause you to flare. Sour cream and something in brown gravies cause me to flare. But I can once again have an occasional piece of citrus and can eat tomatoes.


Boric Acid Suppositories +

1 User Review
5 star (1) 
  100%


Posted by Kaylap (Abbotsford, Bc) on 02/03/2018 5 posts
5 out of 5 stars

Yes, I agree on the boric acid. I found that recurrent yeast infections were exacerbating the inflammation in the pelvic region and thus causing IC flare ups. I experienced lots of relief from IC once I started taking probiotics as well as another herbal supplement (forget the name) to heal my gut, and boric acid to fight yeast.


Cayenne

3 User Reviews
5 star (2) 
  67%
4 star (1) 
  33%


Posted by Tina (Knoxville, Tennessee) on 05/29/2014
5 out of 5 stars

I've had Interstitial cystitis for 30 years. I was finally diagnosed with it 9 years ago. My doctor told me not to drink caffeine. I never had drank coffee before I was 40. In the last 5 years I've had 4 or 5 flare-ups. Today I filled a capsule with 1/4 teaspoon of cayenne pepper and in 3 hours there was NO PAIN. There was no burning from the pepper either. The reason cayenne pepper works, is because it goes to the places in the body that need healing, stimulates the blood flow in that area, and the blood is what heals the wound. This also works for bleeding ulcers.


Cayenne
Posted by Angela (Federal Way, WA) on 07/28/2009
5 out of 5 stars

I am so sorry to read of soo many struggling with bladder problems and UTI's. It is miserable and costly and sometimes embarrassing!!!

I had what I thought was constant UTI's or feeling like I was getting one for about a year. I did get many uti's but even when i didn't 'officially' have one it felt one was coming on. I was finally diagnosed with Interstitial Cystitis. This is when part of the lining in your bladder is thinned or damaged- causing tissue, muscle, and nerves to be exposed to your urine causing debilitating pain. If you get an infection on top of this it is excruciating. I thought I was dying one time. After being diagnosed and not ok with "experimental drugs" I looked into natural options and prayed a good deal. I asked God for wisdom as no one here seems to know what to do to end the pain.

I started taking cayenne pepper. Believe it or not it actually works! I was scared to death to try it but the incredible pain i already had made me feel "it can't get any worse". I found capsules that also had ginger root in them to help the pepper not burn your tummy. Cayenne is an amazing healer of Interstitial tissue (bladder lining included). Start slow.. maybe two pills a day at 40,000 hu. It does burn some but that means it is working. After a couple of days add more pills to your intake until you can take 3 in the morning and 3 at night. Always take with food. Hang in there through the initial tough parts... you will get some diarreah and it can be painful. Also, cut out coffee, fruits and berries for awhile. After a couple of weeks try a half cup of coffee with an antacid and see if you can tolerate. Add lots of greens to your diet.

I have been doing this for over two months now. I can drink small amounts of coffee and little bits of fruit. I went from a 10 in pain to a 0... no pain at all. At times a little discomfort but I can tell my bladder is healing. The heat of the pepper is supposed to help fight infection too.

Replied by Jim
(Franklin Park, Illinois)
06/27/2010

My girlfriend has suffered from IC for years. She has loosely controlled (only a couple of flare ups a year) it with diet. The taking of Cayenne sounds crazy for those suffering from IC. I am looking an update from anyone using Cayenne to treat IC. Thanks for any help.

Replied by Shampoo
(Los Angeles, California)
06/10/2012

ok guys, I am updating my interstitial cystitus game plan here as Ive drawn a few more conclusions over the last few days.

Im getting better. I feel great today, but I did have pain return with a vengeance 3 days ago, to the point where Ive made an appointment with a urologist, and I was looking up worst case scenerios stories on the net about having my bladder removed! :(( $%#@!!

Ive come to conclusion that this is a bacterial issue and not a physical or ulcerated bladder problem. How do I know this??

Ive upped my dosage of essential oils.

I did some research about curing stubborn bladder problems with alternative medicine, and I found out about a product sold in canada and eastern europe called nano drops. I found one random company in eastern europe that sells it. Its $80. There is also a youtube video under "nano drops" cure UTI. I wondered if it was a scam, and anywho, I dont have the money. However, Credited naturopaths had seen it clear incurable serious, interstitial cystitus cases, etc, etc, I found alot of different posts about it so I figured it was for real.

I looked up the ingredients. Juniper essential oil, Lavender, Eucalyptus and Pine needle oil. Thats all. $80. And thats it. In the directions it said, put 10 to 20 drops in a glass of water 3 times a day for up to a month until symptoms dissappear.

So, I increased my lavender and juniper oil intake signifigantly. I then ordered more juniper, and lavender, cuz I knew Id go thru the bottles in no time flat. I also ordered Cinnamon and Lemon oil cuz along with Clove, those are the main ingredients to the "thieves Oil" which is really helping me.

I take about 5-10 drops of juniper and 4 drops lavender in a capsule 4-5 times a day, no joke along with random gelcaps of 1 or 2 drops rosemary(cuz rosemary can be toxic) and more lavender 1 or 2 drops 2 drops peppermint, 1 or 2 drops sandlewood oil, or 1 drop clove here and there. Its been sporadic, Im just trying to get this fixed. Whenever I feel pain , I pop a gelcap with a few drops of random oils, being cautios about the more toxic ones (rosemary, clove) Everyday I push the envelope a little more. My bladder is healing. I can feel it. I cant believe it. It is awesome. I also have been dosing myself with cayenne, and turmeric basically, Ive been stuck at home, with the burning, flaming rocket runs :))) But its worth it. Drinking lots and lots of water, cuz I noticed symptoms started really returning when I slacked off on the water intake. Ive been at home, not going anywhere, focused, on trying to beat this thing.

I do not want biopsies, dont want to have them fill my bladder with potassium iodide or whatever, dont want these horribly invasive tests and procedures. Dont want this to ruin my life. I dont want the nitemare, and now that this has happened to me, its made me aware of this awful disease, I didnt even really know existed.

Ill sometimes do a random capsule of thieves, when I get hit with real pain, usually after I go to the bathroom. About 10 drops. Its pretty safe. I experiment with myself. Sometimes I get racing heart, or strange sensations when I do clove, or too many oils at once, I get paranoid, drink milk, and monitor myself. Its fine. And then I do more. Ive researched younglivingessential oils, and this is fairly safe, as there are recipes on the net calling for quit a few drops of oils, that I thought might be volatile, or unsafe to take. Just be careful.

Do your research guys. I have. Im determined. Im scared and determined. Im 32 years old, and Im not ready to throw the rest of my life away on this disease.

Replied by Mariela
(Northampton, Ma)
04/25/2015
4 out of 5 stars

I am 36 years old, I tried the cayenne pepper today and I took the two capsules of 40,0000 miligrams it still hurt like hell to pee. For some hours afterwards, I felt the heat of the cayenne pepper down my urinary tract, it does not hurt, but it does sting when I pee.

How many times should I take 2 capsules? I have no ginseng root and I was wondering will the ginseng shots (DRINK) work?


Cayenne +

1 User Review
5 star (1) 
  100%


Posted by Shampoo (Sandusky, Ohio) on 06/02/2012
5 out of 5 stars

ok guys. I know how debilitating this can be so Im putting my post on here.

About 3 months ago, I got a UTI. What else is new, I get them all the time, but this was an especially bad one. I normally take probiotics everyday and it prevents them for me, so I hadnt got one in like 6 months, it was all gravy. But I missed about 3 days of my probiotics and BAM!! I got like, the worst UTI of my life, I was on the toilet weeping. Anywho, went to the doc, got a script for cipro, took it, didnt go away, got another script, took it, STILL didnt go away.

Now, antibiotics normally NEVER work for me. This is why Im very into alternative medicine, but I was desperate this time. and ofcourse, didnt work.

All the usual things I do for a UTI, didnt work at all, I tried every herb known to man, baking soda, 40 pills of vitain c in one day with gallons of water, apple cider vinegar, olive leaf extract, uva ursi, echinacia, even d mannose, (3 jars) didnt get rid of it. I was in EXTREME PAIN, and I was terrified.

Id been reading alot on the net, about overactive bladder, and a condition called interstitial cystitus on the net HOPING TO GOD, I didnt have it. Alot of women said it started with a bad UTI and ended with YEARS of chronic daily debilatating pain. I guess the theory is, the bladder lining somehow gets damaged, or ulcerated, or mayne you have a bacteria or virus that is hiding, or embedded somehow deep in the bladder walls, where antibiotics or anything else cant get to it. We are talking YEARS of this pain, even, to the point where these women cannot work, cant sleep, cant have sex, cant even function, cant ride rollercoasters, run or exercise. I already have so many problems with my female region as it is, I have struggled so long with other health problems, screw that! They even compare interstitial cystitus on the pain level scales to CANCER. Thats how awful it is. And there is no cure. And I was getting all the symptoms, and it didnt feel like these antibiotics or anything else I was doing was helping this pain. They prescibe Methadone to these folks.

I did some serious, serious research, and I came up with a game plan that is beating this interstitial cystitis.

In the morning I take:

a gel cap filled with one drop each clove oil, rosemary essential oil, lavender, sandlewood, and peppermint oils. Followed by 2 full glasses of water and 1-2 pills cayenne AFRICAN RED PEPPER(xtra hot) has a bright orange red color. 1 pill MSM, and 3-4 gelcaps of Turmeric powder, and 1-2 Dong Quai. I cap these herbs myself. Then I take:: 2 milk thistle, 2 echinacea. I bought those ones at the store.

2-3 hours later. I fill another del cap 2 drops each peppermint oil, and rosemary oil. 2-3 hurs after that, 1 pill filled with; one drop each, lavender, rosemary, peppermint, and sandlewood, followed by 1 MSM, 1 cayenne, 2-3 turmeric, 1 dong quai. 2-3 hours later, 1 gelcap, 1 drop each peppermint, rosemary, or lavender )optional) I do this according to my pain levels. If the pain is especially bad, I will add more cayenne, or turmeric, as it is not dangerous to OD on those herbs. You cannot OD on cayenne or turmeric, unless you have a bad, sensitive stomach. Im only 30 years old, and I seem to have a cast Iron stomach, lol! LOTS and LOTS of water. Then before bed, 1 cayenne, 2-3 turmeric, 1 dong quai, 2 echinacia, 1 MSM. you can reduce herbs in the days following as you get better.

The essential oils: I used to be afraid to take essential oils, as I thought they might be extremely toxic. They are in large amounts, you just have to be careful. I never exceed 2 drops usually of anything. Clove, and lavender oil, can be pretty dangerous, especially clove, as only 6 drops can be toxic. Remember to get pure essential oils, not perfumes.

I went hardcore, and I didn't care if I got kidney failure, or liver damage from the herbs I was taking. This painful bladder condition has ruined lives, and I wasn't about to let that happen to me, after everything else Ive been thru. Of course, I'm fine. and I did not poison myself, and I am 95% pain free today, and It gets better every single day..so..

It's scary when you feel helpless and hopeless, and no doctors can help you.

I did alot of research on cayenne pepper actually healing bladder tissue.

Some people have cured themselves in less that a week using cayenne. They say you should build up to 3 in the morning, 3 in the eveneing, but I am already seeing at 2 a day, results so. Turmeric also heals mucas membrabe tissue, and MSM, is a sulpher based herb, and is excellent for pain. Alot of people are also talking about colostrum. and Ive already ordered that, its coming in the mail.

Replied by Shampoo
(Los Angeles, California)
06/05/2012

Ok guys, Im back! And so far, so good!! I had hardly nothing, no pain today, awesome!!!! :))))))))))))

You guys, I was SURE, I had intersticial cystitus. Unexplainable bladder pain, getting up 8 times a night to pee, etc. Nothing was even touching it. My protocol is healing this, and in this journey, I have discovered the wonders of essential oil therapy. When antibiotics dont work, essential oils. Its a freakin miracal. O thought I had a prolapsed bladder or some physical problem, not bacterial. Unbelievable. Ive been taking the thieves and juniper along with the other oil recipes. I take about 3-5 drops theives, 1-2 drops juniper in a gelcap, couple times a day along with the others

Im researching Lemongrass, Thieves, Dragontime, Juniper, Pine, ravansara, Tyme, Oregano oil.

I actually found a page, listing essential oil recipes, and it was very interesting, as far most of my life I didnt think you can safely take essential oils, etc. I also started on the colostrum today, and it tastes very pleasant, and I feel great, Im excited about it :)

Replied by Shampoo
(Los Angeles, California)
06/28/2012

UPDATE OMG!!! Breakthru, breakthru, breakthru!! Two words. Ureaplasma. Just got diagnosed with this by my urologist, OMG!!!!!

Ok. Parsley, essential oils, colostrum, cayenne... needless to say, did not really work to eradicate this infection.

I made an appointment with a Urologist. Breakthru!!!! She immediately tested me in my vaginal culture for everything, including a test for a microbe called Ureaplasma. I have never heard of this. Now, Ive been tested numerous times over the years, and everything always came out negative, but I get a call about 4 days ago from her saying I tested positive for this. She put me on zinthromax and I am taking it now. She tells me this is not an STD, but a sexually transmitted disease??? present in 70% of the human populations normal flora, (rectal, genital, and bladder tracts), but it is transmitted sexually, meaning, we are not born with this, we get it thruout the course of our sexually active lives. , and usually it does not cause problems for people, however.... There is now a compelling link between IC and this bacteria, or mycoplasma. I guess the test is expensive. Which is why most doctors will blow you off, and try to not test you , or REFUSE you and tell you tat since this is considered common flora for most people it wouldnt be considered a factor in causing, your IC. Cleveland Ohio is rated second best in the country for urology, with sum of the best urologists in the country studying and researching, IC. The first test they perform is for Ureaplasma. They say they get a 50% cure rate right there for people, once they treat it with antibiotics. However, my symptoms have improved vastly, I must go back again, and get retested. I was reading just now, online, that many people end up going back and still testing positive, and then after a three week course of doxycycline, get a complete cure. Googling it, I can hardly find any imformation at all about this, I cant believe how ignorant and reticent physicians are about testing for this, its awful, and scary. I was just reading about a gal, who had to fight to get tested and then fight to get treated for it, she saw 8 different doctors, and urologists... So be prepared to fight. There is compelling link here guys google it. I was really doomed. It scary, how a little microbe can jeopardize your whole future and life.

Replied by Shampoo
(Los Angeles, California)
06/28/2012

I also want to add that, its been 4 days on the zinthromax, or erythmycin, and I feel great, but I still have some pain, and I will be returning to my urologist in a week to get retested and hopefully get on long term antibiotics, as I've read thats what most people end up having to do with IC. So, now I KNOW this is an infection from a Bacteria, since I wasn't sure whether I had a damaged bladder or what?? A few more things about essential oil. Ive stopped that, as I wasnt getting over the hump, and it seemed to be very harsh on my body, but I was reading alot about BIOFILMS. Ureaplasma is considered a biofilm infection, by the way. Please learn and google this guys. In a research study, they tested 15 different essential oils, in breaking down Biofilms. Of the 15 only 4 broke the biofilms, of stubborn bacteria, and that is Tea tree, Eucalyptus, Palmarosa, and Rosemary.

Also, Ureaplasma is linked to miscarriage, and infertilty, which would explain my failure to conceive over the last 3 years. Like 50% of couples failing to conceive, looking for in vitro fertilization tested positive for this bacteria. But then AGAIN. Many people have this. Its just some people seem to have real problems with it, as it is SO LINKED to IC. Maybe some people's bodies dont like it, as one girl I read on a forum said. Ive also added coconut water to my regime. As I read some people cured bladder infections with it. It also makes your skin glow :))

Replied by Shampoo
(Los Angeles, California)
07/03/2012

Update::::: By now, I feel pretty foolish with all Ive gone thru these last 4 months with this horrible IC with natural remedies that didnt work for me, when all I had to do was take antibiotics, and Id be cured.

However, I had already tried 2 rounds of Cipro, and macrobid, and then started testing negative on all urine cultures, and being sent home empty handed, in horrible, horrible, horrible, crippling pain, feeling like I still have a bladder infection.

After finishing the z pack, I was almost all better, But 2 days later, symptoms returned full force and the nitemare was starting all over again for me. However, I knew the symptoms would return, and I couldnt get an appointment with my urologist, (which was 2 and a half hours away by the way, and I dont have a car) for another month. She wouldnt precscribe me another z pack, unless I retested again for the Ureaplasma. I would have to wait a month. Get retested, and wait an additional 4 days, then get more antibiotics, and hopefully be cured, but I knew it was impossible to wait the long, and it seemed horribly cruel, when I felt so close to a cure. Id have to start all over.

From the research Ive done on Ureaplasma, you almost always have to take more than one round of strong antibiotics to cure it, and some people take low dose long term antibiotics, from months to years to eradicate it. I saw a long painful road ahead, and I decided, getting Genital Herpes would have been a better fate for me than this, as at least with herpes u get periods of respite and you can SOMETIMES have sex, if your not having an outbreak. I was ready to Die.

I got the numbers of several Urologists closer to my area, about four. NONE of them tested for Ureaplasma, or even heard of it. I asked if they would do a test, they said no. You see. Many Urologist do not believe or even acknowledge the role Ureaplasma plays in IC, since 70% of the population carries this in their genital, bladder tracts without any problems. The community is split on the issue.

Ive been doing alot of research on this little bug, Ureaplasma. Its getting more and more attention, as more and more people are having problems with vulvodynia, and IC. Like I said, its considered sexually transmitted (but not), as we arent born with it, we get it thru sex.

A good gynecologist will also test for ureaplasma if you are having problems becoming pregnant, or have a history of miscarriages, or early deliveries. There's alot of talk about it on infertility boards on the net. The test is expensive. And the cure requires the use of long term antibiotics. Many doctors are hesitant to do that, these days.

As there is more and more hype about the overuse of antibiotics. Especially long term.

So I panicked, and I took matters in my own hands. I knew I needed more antibiotics. I had a reoccuring sinus infection for months. I made an appointment with my family doctor, and explained the situation, plus I made great emphasis on my sinus infection, (which had actually gotten better) but I wanted to make myself sound really sick (hammed it up), and she gave me Augmentin. A 10 day, supply and guess what. It is the third day, and I feel 95% awesomeness.

I then made a few more calls, and found out, I can get my doctor (the one that actually believes in Ureaplasma) to fax over an order to my family doctor or lab of my choice to do the test and everything will be gravy. So Im gonna test again for it, a week after I finish the Augmentin. Its also interesting to note that after researching IC, unrelentingly, for the last 4 months, and visiting, every IC website, and healthboard on the planet, and hearing people talk, Augmentin is considered one of the successful antibiotics for IC.

Thers only 3 that work against IC, only three.

Zinthromax (z Pack)

Doxicycline

Augmentin.

From what I read, its hard, hard, hard to cure. Harder than any STD. But its not incurable. It usually takes months to eradicate it.

many women just live with the pain, and take steroids, pain killers, and ANTIDEPRESSANTS. Isnt that sad?? Thats part of the protocol for IC patients. They give you an antidressant too, to cope with your life being over!!

I know on a gut level, this was some kind of elusive, hidden bacteria, embedded deep inside my bladder. Most people develop IC after a bad bladder infection. The pain lasts for years, YEARS. and its almost impossible to get a Urologist to help or even hear you.

I prayed to God to help me.

Its a miracle, and I will never doubt his presense and his ability to heal me again. Its a miracle the first Urologist I saw helped me, and was cutting edge enough to do this test.

Replied by Shampoo
(Los Angeles, California)
08/29/2012

UPDATE: I cured my interstitial cystitis. And Believe me. I had it. I couldnt eat tomatoes or anything acidic, I was constantly flaring, especially a week before my period, I was unable to get out of bed, or even think, and I havnt had sex in 6 months either. I considered my life over. I would have rather got a diagnosis of Cancer or Herpes, as with Herpes, you get a break, and with Cancer, there is atleast hope for a cure or remission. 6 months of Hell.

Heres what I did. A month and a half of Doxicycline, first 3 weeks, 100mg morning and evening. Still was in alot of pain, still had symptoms. She upped my dose to 200mg morning and evening. 400mg a day... 2 weeks of that. Tested for Ureaplasma. Long gone!

But I still had symptoms. Altho I was much better, able to eat what I wanted (including tea, and acidic foods) and was able to walk around, and function with my life somewhat... Still wasnt testing positive for bacteria in the Urine. Technically I did not have a UTI.

One night, I got desperate. Was thinking I was having a "flare", it became unbearable, went to the emergency room. Tears pouring down my face, lying down, couldnt even get up when the doctor came in the room, wouldnt let them put anything in my urethra, cuz I was in so much pain. Gave me a script for Macrobid, (10 day supply, 100mg every six hours)

10 days later it was gone.

Ive been reading alot lately about UTI resistant antibiotics, and the link to supermarket/storebought chicken. They say, its becoming more and more of a problem. I think thats what was wrong with me, even tho I dont know why, the bacteria wasnt showing in my urine. So, 2 rounds of Cipro, 10 days of augmentin, 3 Z packs, and a months worth of Lyme disease dosage doxi, and macrobid finally cured me.

A not about the Doxi:: at 400mg a day, ti was very harsh on my body. I threw it up half the time, cuz it was so hard on my stomach. I got a SEVERE sunburn on my feet, (cuz it made me extremely photosensitive) I was tired all the time, sleeping all the time, and I was very hungry, and I had to eat alot of food just to keep it down, so I gained 25lbs. Its been Hell. But Ive learned to never to take my health for granted again. Im not sure what just happened to me, but im aware now about antibiotic resistance becoming an increasing problem. and I hardly ever take antibiotics, I always try the natural route first.

What Im plan to do now, to make sure this never, ever, happens to me again. I plan on taking my womens probiotic every single day, and add D Mannose to the regime as well. At least 2 teaspoons a day. (moring and evening) prevents bacteria from clinging to bladder wall. Especially when Im sexually active. Its expensive. But nothing can be more life ruining than interstitial cystitus.

To not be able to eat like a normal person again. (read several cases of people being able to cure their pain, by living on a diet, exclusively, of vegetables, brown rice, and nut butters, no salt, no sugar, no fruits (acidic) and claiming remision after a few years. Some women gradually being able to add in small amounts the old foods again, they used to eat again. "cheating" by eating Cheescake and Curry and to never be able to have sex again?? How sad is that? What kind of life is that?? and Im young women. Horrible. Id rather have gotten Cancer, or Genital Herpes any day of the week.

Im gonna give full credit to God, and Jesus Christ for my remision. There were prayer circles at my Church, and friends were praying for me. I prayed every morning to be healed. Plus I was on the prayer line, my life, my very life hung on the balance.

In the past Ive been promiscuous.. And I know Im not perfect, and I pray to God to guide me on this issue. I just know to be much more careful now, next time. Its worth it to stay in a monogomous relationship.

Replied by Shampoo
(Los Angeles, Ca)
08/29/2012

I also want to add that, diseases are becoming increasingly resistant to antibiotics, including Gonorrhea, and tuberculosis. The guy I was sleeping with who I think gave me all these problems, was very primiscous himself, its not fair to say I was the one, when in actuality I know people personally that are far more "active" and with multipal people than I was, but then Im also seeing more and more people less willing to commit, and taking a very, and increasingly casual attitude towards sex but GOD KNOWs, I wouldnt want a drug resistant form of the clap, would you??!!

Replied by Shampoo
(Los Angeles, Ca)
10/31/2012

Hey, just an update about whats up with me lately. I cured my IC with 3 rounds of the antibiotic Bactrim, finally, however, Im sensitive to all acidic foods now, and as long as I avoid them, Im back to normal again.

However, its nerve wracking trying to prevent another UTI, as nothing, not even probiotics seem to work for me anymore.

Ive come to the conclusion I had some kind of fluke staph, or MRSA infection that was antibiotic resistant. The doctor and I discussed the further concerning problem of antibiotic resistance. , it seems antibiotics hardly work for anything really serious anymore.

Replied by Sunny
(Ca)
10/10/2013

To: Shampoo from Los Angeles!! Wow your a warrior, you have tried so many things. How are you now and what are you doing for your IC now? Thank you, Sunny

Replied by Veronicac
(San Antonio, Texas)
10/18/2013

@shampoo. That was a wealth of information. Now I know some of the things to research and what to ask about when I make an appointment with a urologist. Thanks for such a detailed journey. I hope I can finally end this horrible illness.

Replied by Dave
(Fountain Inn, Sc)
10/19/2013

Hello Veronica,

About IC, I scanned the posts on IC under Ailments (Earth Clinic) and didn't find DMSO discussed as a remedy.

DMSO is the only approved use officially given for it by the FDA. Doctors will topically apply weekly for six to eight weeks. DMSO is remarkable and ignored by the regular medical community although used by Vets all the time. And for IC, as I say, the FDA says "yes" to DMSO.

Could one self apply? Well it absorbs into skin and the whole body so one could simply apply topically to gain the same, or near some effect as applied by Doctor via urethra to surface of bladder.

Google "youtube DMSO Dr Jacobs" for a great 3 part study of DMSO.

Many Alternative Doctors who administer IV nutritional treatments finish the treatment with 25 cc of DMSO to make the nutrients fully infuse into the body. And as my Doctor told me, the DMSO carries the nutrients in such IVs past the blood brain barrier into the brain. My point here is that DMSO can go direct via IV (or orally) and is safe to use even straight into the system. If used orally, you'd want to use Dr Jacobs brand and dilute with purified water. Use a tablespoon of DMSO to ten tablespoons of purified water. I'd use distilled water.

So for those suffering with IC, consider DMSO. You can google, "interstitial cystitis dmso" and you'll find a Mayo Clinic site that discusses DMSO use by MDs.

Replied by Drumchild
(Los Angeles, Ca)
11/22/2013

Wow. Would u suggest to do the doxy for ureaplasma agani? I'm scared ..as u sounded like it was really hard on your body!
Thank you.

Replied by Christian
(Portland, OR)
12/24/2014

Interstitial Cystitis is caused by UREAPLASMA this is not new news. It is known, but apparently some doctor haven't gotten the memo The cure is simple - you need to take biofilm dissolver 15 minutes before you take your antibiotics. Also take probiotics away from antibiotics, the probiotic my doctor says will save your stomach is Saccharomyces boulardii. This is a tropical strain of yeast. Take several different strains of probiotics; it is imperative when on antibiotics.

Stay away from wheat, sugar, dairy, meat and nightshade vegetables for a while. In most cities, you do not need a doctor order to get the test; just go to any lab test where you pay out of pocket or find a doctor that will listen to you and take the research with you and ask them to order to the test. There are things you can do to make yourself more comfortable, drinking water in baking soda, drinking lemon water seems to help; drinking parsley water is helpful as well. Warm heating pad on the lower back with castor oil. A couple drops Tea tree oil really diluted in sterilized water; soak in tampon and insert into the vagina over night helps. My ND gives me boric acid capsules to insert into my vagina in the evenings, before bed, to fight off the yeast infection from antibiotics. If you're terrified of antibiotics, get with a naturopathic doctor or Chinese Medicine doctor.

Replied by Mimi
(Green Bay, Wi)
05/17/2017

I also believe IC is caused by bacteria and I am taking steps to be tested as well. I went to my local urologist after being tested negative for a UTI and yeast infection. They didn't test or examine me. They just told me to go home and follow the IC diet and drink a lot of water. I left feeling very helpless and very misinformed on what this even meant and how to proceed. I spent weeks reading everything I could on the boards. Until I get tested I'm taking bladder ease which is a godsent.

I'm so glad you were persistent and followed through. I feel the same way, I am not going to take no for an answer by a urologist.

Replied by Wendy
(Columbus, Oh)
04/04/2018

I've dealt with UTIs my entire adult life. Since my kidney transplant in June 2016, I average one every other month! My go-to antibiotic has always been Cipro, BUT, after the UrgentCare lab did a CULTURE (VERY IMPORTANT TO DO A CULTURE, since this will pinpoint exactly which antibiotic will kill the bacterial infection! ), the lab prescribed Augmentin. I discussed this change with my post-transplant coordinator and he and I both thought that I was becoming resistant to the Cipro, and that I still had remnants of the infection after taking the Cipro! I'm now on day 3 of 10 days of the Augmentin. We'll see if this totally gets rid of the infection. I'll check back in a month or two with the status!

I also agree with prior posts about avoiding wheat, sugar, dairy, meat and nightshade vegetables for a while. Lately I've be eating more bread and sugar, so this probably was contributing to the issue.


Chondroitin, Glucosamine, MSM

3 User Reviews
5 star (1) 
  33%
4 star (1) 
  33%
(1) 
  33%


Posted by Md4im (Orlando, Fl - Florida, United States) on 04/14/2011
5 out of 5 stars

after immense daily suffering, I found an article on glucosamine-chondroitin-MSM for IC relief. Provides cellular components that are essential to the epithelial bladder lining. Made a 180* difference - very noticeable after just 2 days. I am still taking it 6 years later, and I can TELL when I miss a few days.

It has been a real life saver. I hope this helps other women out there!

Replied by Mary
(Hastings, Mn)
07/07/2011
0 out of 5 stars

Side effects for me are bad digestion, IBS. CAN"T take it. Also can't take that hyaluronic acid either (eyes feel like sand in them) Any other ideas to heal the GAG layer (glycosaminoglycan layer)?

Replied by Mary
(Hastings, Mn)
08/16/2011
4 out of 5 stars

Found a Glucosamine and Chondritan that doesn't bother my GI tract that much if taken w/food. It's sold at an IC site CystoP*****. Maybe it's because it's got Olive Kernal in it, which makes it more bio available. I take 4x per day (1 capsel per day) rather than twice per day (2 capsels per meal). Already see a small differance after 4 months. Constant flair is gone, and can have salty snacks and sometimes blueberries now. I had gone crazy w/blueberries over the last few yrs since getting this and I seem to have developed a problem w/them.

Replied by Mary
(Hastings, Mn)
11/23/2011

Update on this Glucosomine & Chondroitin: I found that when I take it, the Quercetin makes me VERY hot only at night. I tested this by just taking Quercetin. Same result. The heat radiates from my vagina! I am 48 yrs old, and having night flashes, but this is ridiculous. I had to quit the product. I had tried it for a few months and I wasn't gettting much sleep. I just got hotter and hotter. I hear it helps alot of other people though as stated by their testimonials on-line. I called the company, and they said that they had not had this complaint before. Maybe I will need to try another brand.


Cinnamon

4 User Reviews
5 star (2) 
  50%
1 star (2) 
  50%


Posted by Ichater (Northern, California Usa) on 01/19/2012
1 out of 5 stars

Prior to the worst flare up in my life, I had already been taking cinnamon capsules daily for a year prior... So I don't think that cinnamon works for everyone. I was taking 1000 mg a day and I still had a flare up. :/


Cinnamon
Posted by Donna (Royal Oak, Mi) on 01/05/2010
5 out of 5 stars

I've battled bladder issues all my life, and for a while, high contentrations of cranberry (pills, not juice - juice has too much sugar which feeds the infection) helped. That was until I got IC and became antibiotic resistant. Felt like I was peeing glass. By fluke I read 3 sentences in a magazine that saved me - it basically said that cinnamon kills off E-coli. E-coli is often the cause of bladder issues and IC. I started taking cinnamon capsules and felt major relief in a matter of a few days. I highly recommend it to anyone who suffers from IC. You'll sing its praises too.

Replied by Elizabeth
(Nashville, Tn)
01/06/2010

How much cinnamon do you take daily? Do you take capsules already premade or use fresh? Thanks.

Replied by Donna
(Royal Oak, Mi)
01/08/2010
5 out of 5 stars

Fresh is of course always better, but I basically took premade capsules for the convenience. Started out with 4-6 a day, a couple in the morning, afternoon and evening. After the symptoms were alleviated, I gradually reduced my intake. I still will take one a day, and sprinkle fresh cinnamon on my toast or apples just for maintenance purposes. Wonderful thing is that cinnamon also helps stomach issues! (gas, bloating,etc) It is a miracle worker as far as I am concerned.

Replied by Emily
(Charlotte, Nc)
08/16/2010

Hi Donna,

I live in NC but used to live in Ann Arbor, Mi! Hope you are doing well. I have suffered from pelvic pain for a while - I believe it's IC, as it flares up after I drink coffee, eat chocolate, or eat strawberries or tomatoes. I read your post and bought cinnamon capsules. I would love to know if you or anybody on this post has had luck with cinnamon - how many 500 mg capsules should I take every day to feel a difference?

Thanks! Emily

Replied by Jen
(Ann Arbor, Mi)
09/08/2010

Be careful with Cinnamon, it's a major IC bladder irritant for me.

Replied by Steph
(Lake Erie, Pa)
01/28/2014
1 out of 5 stars

Warning

According to healthyICrecipes, the problem with Cinnamon (most likely including capsules) in the US, is that it isn't "real" Cinn.! We use a cheaper alternative, called "Cassia", while "real" Cinn is "Ceylon". The cheap stuff contains a toxic compound called "coumarin", which is known to cause liver and kidney damage in high concentrations (I think I read something about it being poisonous to dogs once.). This is why IC patients have trouble with it.

For me, Cinnamon is wonderful to my stomach, and not so to my IC. I found the waaay expensive Ceylon at my Whole Foods Store and am doing an experiment. I am also anxious to try, despite the price ($27.99/lb. this part of US! ), b/c of the grain-free, low sugar diet I am also trying. It is in very many recipes. Also, Cinnamon helps regulate blood sugar by "tricking the taste buds that sugar is present", so one can use less! Yea!

I haven't read yet on Cardamon, the only other spice I feel is a similar taste & therefore substitution. Does anyone else know if Cardamon has the same "Coumarin"?


Coconut Oil

2 User Reviews
5 star (2) 
  100%


Posted by Maggie (Philadelphia, Pa) on 08/10/2013
5 out of 5 stars

I had interstital cystitis in the form of bladder aches and pains for about 4 years or so. Some days it was more painful than others, but it often felt irritated. I changed my diet completely about 6 months after onset (veggies and lean protein - no sugar or carbs) and about a year and a half ago, I stearted taking a lot of coconut oil - up to 5 tbs per day. The diet helped, but the coconut oil put me over the top. I almost never have any issues anymore unless I get an infection (I take garlic and grapefruit seed extract for those) and I can eat fruit, although I only eat it occasionally because of the sugar, and drink decaf coffee with no issues. I also can take B vitamins several times a day, which is often a no no for people with IC. Try coconut oil and cleaning up your diet, but stick with it for a while and you will notice that your symptoms will diminish with time.

Replied by Isabel
(Guelph Canada)
01/21/2014

This is very interesting. For a while I have thought that IC is caused my by leaky gut syndrome in my case so the coconut oil would make sense because it helps shut the gut.


Coconut Oil
Posted by Hannah (Paris, France) on 12/14/2012
5 out of 5 stars

Hello all, I have what seems to be IC, and have had vaginal burning/itching/discomfort, pretty much everywhere and in every situation for the past two or three years.

I just recently eliminated acidic foods from my diet, since I'm trying to treat the IC, and I noticed the vaginal itching and burning has been gone completely since.

When I first started having vaginal pain, I did notice that certain foods, like chocolate would trigger almost immediate burning. This was before I developed IC symptoms.

Now, I notice the only time I've had burning or itching has been during or right before and/or after my period. I started taking coconut oil regularly (1 tsp in the morning and 1 at night) and I haven't had any burning or discomfort this cycle expect for the one day that I didn't take the coconut oil!

Everyone's body is different, and perhaps this isn't a solution for everyone... but for those of us that have really sensitive bodies (prone to IBS/vulvodynia etc) like me, I have a feeling that diet plays a really important role.

I wonder if trying to eliminate acidic foods for a while would help relieve the symptoms for other vulvodynia sufferers? I would recommend starting with the IC diet and then adding in foods little by little to find the real culprits... I was surprised when I realized I could eat dairy, which I thought was a big no no, but not oranges!

I guess what I realized was that food was playing a huge role in my suffering, maybe for some it has nothing to do with acid at all, but the burning is a symptom of another food sensitivity that could easily be eliminated.

I hope this is helpful to someone!



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