I had interstitial cystitis for years, probably still have it, but I believe I found that my problem lies in too much sugar in my system.....so no carbs, or very little and definitely no sugar and Im pretty ok. As an added help, I take a good antihistamine once or twice a week or as needed and that so far has stopped the symptoms. Hope this can help others.
Pain Erasers for IC:
I have had interstitial cystitis for 35 years, what a blessing....not! I read an article that they think it is caused when you have sex cause you are not born with it so it is a bug. They said there are 3 medicines that help it, not cure it but calm it down is doxycycline 100 mg 2 tablets a day, one in am, one in pm (which is the best of the 3, the other two are augmentin, ) so I use it and it will make you feel so good at first then it levels out and at least gets rid of the pelvic pain.
I found that yeast cream the cheapy stuff works when I have a flare/infection on top of an infection. I have tried the apple cider deal and I thought I was going to die with pain.
Everyone is right, quit the sugar (do honey if you must), no flour of any kind, no sodas of any kind, no preservatives, and the acidic fruit. I also read it gets WORSE as you age and I can attest to that! Watch what kind of soap you use as well. It is a prison sentence but some things definitely help. I am trying the cabbage and colloidal silver next!
Good luck to all of you, if men got it in greater numbers, there would be a cure by now!! It's like ulcers were years ago, they blamed it on stress and it took them 50 years to figure out it was a bug! Sure hope we do not have to suffer another 50 years!
IC can be chronic streptococcus in bladder, in my opinion. Possibly triggered by dormant Epstein Barr Virus. A Herpes virus which can be at the root of strep infections. The burning pain can be Shingles without rash. Another Herpes virus that can inflame bladder and pelvic floor. Doctors only recognize Shingles with rash. They're clueless. Shingles can attack pelvic floor without any rash or itching.
Change your diet and you may watch symptoms get better. Trigger points in the pelvic floor, vagina, pubic bone, anus, or psoas muscle can also cause urgency, pain, frequency. I'd recommend seeing a pelvic floor therapist to rule out tight muscles and pudendal nerve entrapment. Pudendal nerve directly linked to bladder and pudendal neuralgia can be inflamed nerves caused by Epstein Barr.
An inflamed bladder is caused by something..it isn't a mystery and it's not incurable. Maybe to doctors it is, but to informed patients it's curable. Eggs feed viruses, as does dairy, corn and wheat. Viruses feed off of eggs and corn in laboratories. Dairy is just mucous causing food from cows fed antibiotics and hormones.
Wheat destroys the villi in intestines and nutrition cannot be absorbed. IC patients are told to avoid certain fruits and urged to eat eggs, milk and wheat. Ridiculous! When I changed my diet to exclude wheat, eggs, corn and dairy and started juicing green vegetables and many fruits my symptoms improved. It takes a while, maybe months, but you can get much better.
Juicing celery can really start to rid yourself of IC symptoms. Cucumbers, apples, asparagus, leafy greens, wild blueberries, other berries, bananas, melons, kale, coconut water, garlic, and anything grown in nature in whole forms are healing. Dairy, wheat and eggs are inflammatory foods. Even if they dont feel inflammatory.
Supplements like cats claw, L Lysine, Vitamn C, Zinc, colloidal silver, spirulina, and other anti viral, anti bacterials can lighten the viral load and strep in bladder starts to go away. If symptoms are coming from a tight pelvic floor then internal massage may help. The IC support groups refuse to accept that IC can and has been cured by diet, pelvic floor therapy, and/or supplements. They're stuck in the mindset that they need toxic drugs and told to eat a toxic diet. Rounds and rounds of antibiotics wreck havoc on the immune system and can actually cause IC. Benzodiazepines can cause IC to erupt. It's tragic that women and men are told there is no cure.
Many people have been cured by a high raw fruit and veggie diet and pelvic floor trigger point release. And antimicrobial supplements. There is hope but you won't find it with conventional doctors. They thrive on the chronically ill. God put Adam and Eve in a garden for a reason. Not a wheat field or dairy farm.
Interstitial Cystitis: Hi everybody! I have suffered terribly like so many of you with yeast infections and urinary problems. I found a solution after many hours of research. What works for me is 2 T of distilled water, 10 drops of potassium iodide and 10 drops of dmso in a small glass or ceramic bowl. I swirl it to mix and lay a tampon in it to absorb. I insert the tampon for 30-60 mins and all pain and inflammation is gone! Now when I feel a flare coming on, ( which I suspect it is from some kind of food), I treat myself. It works every time! I hope this helps!
IC for 10 years!
To do DMSO in the doctors office with major medical only insurance would have cost me $4,500.00. I didn't have that kind of money. I tried EVERYTHING on this site and the diet, also no gluten, sugar, alcohol, baking soda, and tired many drugs. Doing the Physical Therapy, Heprin/Bicarb, Ladicane, many other drugs also for IC, but in the WORST flair for last 12 months was going to give up, and remove my bladder when I realized I have Amazon's DMSO 99.99% Pharma Grade 99.99% on my medicine shelf. I use it for bruises, back aches, etc.
So hey, I researched for 2 months, and then with my Dr's (barely) approval, I put some in my catheter w/my meds. (5 drops (diluted to 50% w/Reverse Osmosis water from Target) No pain, so I held it for 1.5 hrs. The flair stayed the same. But the next week I did it again. WOW. Instead of waking every hr to pee all night, I only got up 2x. Was more comfortable all day! I need to do 6 total. (one per wk).
You should also put 50% DMSO on belly and back (7 drops or so per day) as DMSO is also absorbed in the skin. (See Dr Jacob's site on DMSO. He says MSM is even better for this.) I will continue with the 6 weeks. God knows, this is a miracle drug! My Dr (an ANGEL) wants me to report to her my results. I will update to you all as I go.
RESEARCH THIS before doing or you can have HORRIFIC results, with permanent damage.
*** Never use it straight, nor with only a tiny amount of liquid, nor too often. ***
DMSO per 6.5 drops diluted w/6.5 drops of water would have cost me $592.00 at the pharmacy per week w/out the dr's appointment. It cost me about 4 cents. What a money grab!
God Bless. If?s, (Please respond here. )
Hello, I'm 22 year old female suffering with a bad flare up of IC. For the past 2 years I've been getting DSMO treatments every 6 months (once a week for about 6 weeks). I've found these to be amazingly helpful. It's been about 8 months since my last treatments and that is why I think I have a bad flare up now.
I am able to drink coffee (sometimes) and basically anything I want for up for 6 months after the treatments and feel fine!
During this current bad flare up (the worst it's ever been) I've tried cinnamon pills, baking soda, and colliaded silver. So far cinnamon pills and baking soda may have helped a little and just took the silver so I'm not sure how that will work.
I would HIGHLY advise to get DSMO. The first treatment or 2 can be pretty painful in itself, but after that the results are so worth it.
Good luck everyone :)
You know, DMSO is approved by FDA for treatment of hemorragic cystitis. I about died when I confirmed this, as DMSO has be characterized as quackery by the medical powers that be. I don't understand why lesser forms of cystitis are not being catagorized as treatable with DMSO. My suspicion is that the hemoragic cystitis is so crippling and so evil that somebody with a heart at the FDA couldn't igonore the clinical research suggesting efficacy for this horrific illness. Cystitis has been called "autoimmune," naturally! By now many people reading this can predict that I will associate it with a virus or elusive infection.
How does DMSO work? Many, many theories but very few pertaining to viruses. It would be too simple and easy to say that DMSO best known as oxygen donor, attacks anaerobic viruses by depriving them of their anaerobic environment. This would be too easy! Too cheap!
Baking soda, I was skeptical at first about this broad range therapy. But, after reading so many,many testimonials from people not promoting themselves or selling anything, hell, I am about to write something about this cheap, simple remedy on my own research website. I will of course try it myself as I too am battling a chronic illness, a confirmed infection of the prostate.
Ted, in this regard has been benificial by taking the time a providing the chemistry to me which explains Baking soda's relationship to CO2.
Baking soda, higher urine ph, is in fact anti viral as viruses just love slightly acidic environments. Alkaline ph actually prevents viral transcription of RNA for replication. Base pair matching cannot happen at certain ph levels. Even in cancer. Whatever we believe causes cystitis one thing is for certain, once again, higher oxygen and higher ph are god sent remedies.
(Northern Ca, Usa)
Interstitial Cystitis and DNA Testing One place to start is to rule out an infection however although culture techniques have improved since first adopted in the sixties they aren't always accurate and/or effective and can miss a surprisingly large majority of pathogens. However today's technological advancements in science have allowed labs to merge microbiology with DNA in order to accurately identify the unique genetic code of over 30,000 known pathogens (bacterial & fungal) along with susceptibility testing which leads to better treatment outcomes and less antibiotic resistance. There is a company called Microgen that specializes in this very field and is used throughout the US by savvy physicians. This test was once very expensive upwards of $700-$1200 but with continued advancements in DNA testing price points have considerably dropped. Microgen in particular will accept most insurance carriers and if for whatever reason your insurance refuses to cover the cost, they charge patients a very reasonable cash price (just under $200). This is at the very least something to do utilizing cutting edge modern science before tumbling down the IC rabbit hole. It could save you alot of suffering and aggravation not to mention countless prescriptions of needless antibiotics that can do more harm than good.
I had interstitial cystitis for 3-4 years and vulvodynia for about 1.5 years. Coconut oil really helped get me started on getting well, but I was only 85% there and still having little set backs every now and then. I started taking Buluoke (an enzyme that breaks down fibrin in your blood and also biofilm) and Wobenzym (enzymes that helps with inflammation) and it has gotten me much further along. At first, my frequency increased (likely to the breakdown in the biofilm and the release of bugs in my bladder) - though not unbearably as I was having normal intervals at that point, but after a month or so, I noticed a lot of improvement. virtually no setbacks. I totally changed my diet not long after I got sick and I have tried every type of alternative treatment out there. I take apple cider vinegar every day (which helps with yeast) and coconut oil as well. It was the addition of the Buluoke and Wobenzym that got me that last mile. Good luck!
For a recent painful IC bout that I feel was brought on by stress, a naturopath recommended Flax oil capsules. Flax is an anti-inflammatory and capsules are the strongest, 1000mg, look for organic. The suggestion was for 5 per day ( taken all at once ) for 5 days and then 2 per day for a month after.
I also add energy medicine support with meridian tapping ( EFT ) for the pain, as well as acupressure bladder points. You can search on-line for these. Hope this might help!
My line of thinking is something is causing interstitial cystitis a possible food allergy. I read that there are two possible reasons one is the bacteria is in hiding in the lining of the bladder which does not show up in a urinalysis the other cause may be interstitial cystitis is from ureaplasma you need a doctor run the test they will not find an infectious disease MD the other cause may be infection of the paraurethral glands, or a bladder infection in which the bacteria have gone inside the bladder lining, and cannot be detected in a urine sample. See a specialist and get treated.
In the past couple months I have had dramatic success with IC symptoms using plain, unflavored gelatin. After reading a medical report that suggested evidence Chondroitin may bond to compromised areas of bladder lining tissue, and knowing that Chondroitin is processed from cartilaginous matter, I decided to try adding a regimen of unflavored gelatin to my usual IC mindful diet and supplements (see posts). Obviously, vegetarians would not be able to try this, and those with religiously restricted diets would need to locate an appropriate type of gelatin. I started dissolving single packets of unflavored gelatin in hot teas and soups: consuming 3 packets a day. Within a week, not only had I noticed an absence of any painful flareups - but my bladder really did feel somehow stronger - something like less "bloated" or "distended" when "full". I have continued this for two months and I feel it may be the most restorative (as opposed to just soothing) IC specific remedy I use. I think it may be "building-up" bladder lining. If anyone else is game to try this for a few months, please post your results - I am eager to hear if others experince any similar changes.
I have always tried to stay reasonably healthy, not get hooked on junk or vises. In spite of that, I have come up with few health problems, partly due to lack of knowledge and partly due to breaking my own rules. It can be expensive staying healthy but even more being sick. My recent annual physical, with insurance just cost under $1,000. I have given up a few things but for fun I figured out what I could save by cutting out certain things, some I have cut completely, some mostly cut. So take a look at my list and see what you might cut to save your health and money. I came up with over $800.00 a year: fancy coffee drinks $104!, fresh ground coffee ($192 a yr! ) fast food $360 a yr!, wine ($156 a yr.!) It adds up fast. Fast food is rare for me any more and so is wine and fancy coffees. I used to drink more than 5 cups of coffee a day! That is completely gone, IC can't take it. I have been careful with sugar for a long time but since I can't have gluten anymore, I rarely bake unless for company so even sugar and flour cost is way down. Hurrah! Go ahead and try this. You will be surprised at what you can afford to do.
I have suffered from IC for 5 years but was only diagnosed 2 years ago. The urologist perscribed me Elmiron and I noticed that only works sometime and when I stopped taking it completely the symptoms came right back. I have noticed hair loss due to taking this medication. I have read all of the other remedies on this site and I will be trying a few of them tomorrow.
(Mount Laurel, Nj)
Dear Friends Who Suffer from IC- What a disease this is, with lots of pain, urgency and most of all not knowing what to do; that can make you think you are crazy!
I have had IC since I was a child but never knew, until my daughter was diagnosed with it at the age of 12 years. I had to live through her pain and anguish for years, and I'm not only living through her pain now; but mine too.
I have tried herbal remedies, and diet and I find one herbal remedy that will help calm that pain down within seconds, and that is Goldenseal! Try it!
I was told by a massage therapist I visited to try Cayenne peppers for ulcers; and I was desperate to try anything to calm this pain down... and do you know that within a few days, I feel great! It has not only helped my pain, but it has also given me energy and helped the muscles and lower back pain I have with IC.
I have also tried over the counter vaginal cream and that helps the burning you get with IC; it does the trick. I have never used medicines doctors have prescribed because of side effects, so I try the natural way always and lots of prayer!
There is another herbal product that will help with the goldenseal already in it and that is Kidney/Bladder by Natures Way, this product really helps and just follow the instructions on how much to take and carry it in your purse with you; and take it with each meal.
A candida diet helps too and stay away fron sodas, it will do you in!
I do hope some of this helps you, because it has helped me and I help my daughter with herbs!
May God Bless you all! Gwyn