★★★★★
★★★★★
I thought the same as you. The Earth is wet so it can't be effective, but it is!!!! It even removed swelling from around my knees, which I didn't even know existed.
Lyme Disease Caused IC
Macrobid
Look up Dr Paul Fugazzoto, but with interstitial cystitis in the search or you will get some dentist. He died a few years ago, but before that had a chance to help many-many women figure out they had a bacterial infection that simply didn't show up on a regular urine test. He passed on the culture method he used to the lab, but I believe it was actually used at the very beginning of urinanalysis, and then we switched to the simple test that showed no bacteria in your urine.
Diatomaceous Earth
Lemon Water, Marshmallow, Cantharis
★★★★★
My girlfriend has been suffering from IC for over 15 years now. Had gotten to the point where she was in the hospital every 4 weeks getting a cystoscopy with hydrodistention. I did a TON of research and found some treatments (NOT A CURE but helped)
The simplest way we found and best tasting way to do alkaline water is pour 8 cups of water into a jug, cut up a lemon into 8 pieces and let sit at room temperature for 12 hours (do NOT squeeze the lemons). Drink it throughout the day. It helps ALOT to get your alkalinity UP
The second one has had the best results with her and her friend that has had IC for 20 years, is a mix of two herbal remedies: A marshmallow root tea (as many as you want during the day. I get her the already bagged version that also contains the marshmallow leaves. Tastes actually pretty good. and I even take 2 cups of water, pour in 3 tea bags cut open and a half a peppermint tea bag and let sit in the fridge for 12 hours, take it out and strain it and serve cold. She says its delicious.). Then we add CANTHARIS. (please read up on these before you use them) She finally emptied her bladder, first pee in the morning, first time going to the bathroom that day.
This has not happened in 15 years for her. This is just food for thought, I am not a doctor I just want her to lead as close to a normal life as possible and keep her out of the hospital. And help anyone out that I can that feels there is no answers for you pain.
Fyi I am now researching MONURIL (made of FOSFOMYCIN) so if any improvements come of that I will let you know. If you use any of this and it works keep going, if it doesn't try mixing some stuff up but please remember to always consult a doctor when introducing anything as it could counter react your meds.
And for IC suffers please always remember "To the world you may be just one person, but to one person you may be the world."
NEVER GIVE UP!!!!!!!
Dietary Changes
★★★★☆
I have had interstitial cystitis for 35 years, what a blessing....not! I read an article that they think it is caused when you have sex cause you are not born with it so it is a bug. They said there are 3 medicines that help it, not cure it but calm it down is doxycycline 100 mg 2 tablets a day, one in am, one in pm (which is the best of the 3, the other two are augmentin, ) so I use it and it will make you feel so good at first then it levels out and at least gets rid of the pelvic pain.
I found that yeast cream the cheapy stuff works when I have a flare/infection on top of an infection. I have tried the apple cider deal and I thought I was going to die with pain.
Everyone is right, quit the sugar (do honey if you must), no flour of any kind, no sodas of any kind, no preservatives, and the acidic fruit. I also read it gets WORSE as you age and I can attest to that! Watch what kind of soap you use as well. It is a prison sentence but some things definitely help. I am trying the cabbage and colloidal silver next!
Good luck to all of you, if men got it in greater numbers, there would be a cure by now!! It's like ulcers were years ago, they blamed it on stress and it took them 50 years to figure out it was a bug! Sure hope we do not have to suffer another 50 years!
Some information tho or hope for others going through this. I went to a Naturopath 2 months ago who found I had massive amounts of solvents (I work in automotive) in my body along with too much yeast. I started taking solvent removers and Unda 38/8 and after 1 week I quit having the symptoms of IC and have not had any in 2 months. I sleep through the night without having to go to the washroom and don't have the sudden OMG urges I used to.
IC is caused by something and once that "something" is removed, the bladder starts to heal. It's worth a shot!
Diet, Turmeric, Exercise
D-Mannose, Dietary Changes
Macrobid
★★★★★
28 years old, diagnosed with Interstitial Cystitis in March 2015. Had horrible pain, frequency, etc. Tried bladder instillations that gave little to no relief, tried a very restrictive IC diet, went to 4 different Urologists, and tested negative for Ureaplasm and for any bacteria. Finally mid-April I couldn't handle the unrelenting pain and frequency (every 15 minutes). I tested positive on two home UTI tests and went to the Minute Clinic. Nurse prescribed Macrobid for 7 days - even though the tests showed no infection. Within 24 hours - I was basically cured - mild pain - ran 12 miles, felt 95% normal - no frequency. Then within 3 days of finishing the Macrobid the pain and symptoms came back. In May called my Urologist begging for more Macrobid. Within 3 days of starting the Macrobid - 100% relief. Then I had a cystoscopy that confirmed IC diagnosis. After taking Macrobid for 10 days, I feel normal - except of the soreness from the cystoscopy/slight hydrodistension.
Macrobid cured me and the hydro helped with my bladder capacity but none of my doctors will listen to me! It has been 3 weeks so far. I have gotten away with eating cheesecake, dried cherries, bananas, etc.
★☆☆☆☆
My IC is very mild compared to many posting on this thread and I'm very grateful for that. In my case I've found that carbonated beverages and, sadly, coffee can be irritating. I avoid soda ('pop') for the most part, drink coffee sporadically and never strong brew.
I just discovered that apple cider vinegar (w/a small amount of raw, unfiltered locally-produced honey) helps the IC as well as the various aches and pains from my constellation of auto-immune disorders. Mainstream medicine has saved my life a few times now but I don't do well with so many chemicals (medicines) that I just avoid unless life-threatening circumstances require them.
Diatomaceous Earth
★★★★☆
I have read so many helpful things to try on here so I would like to give something back. I only found out I had IC by trial and error and a lot of research. The pain was so bad a couple of years ago that I went to the emergency room. You know how they have you in those curtained partitions, right? So this older Dr. Comes in with a learning the ropes young intern and they are just not taking me seriously about how bad the pain is and saying I didn't have kidney stones and didn't have this or that and I got enough of that and yelled, " Look! My VAGINA is killing me! " You should've seen their faces, lol. I had no infection of course and they were clueless. My regular Dr. told me I would need to see 3 different specialists to rule out different things and after we pay over $600 a month for insurance there's no money for 1 office visit, let alone 3 specialist ones.
Anyway I am still on a journey to find what will work best but I do have some experience with cleaning out parasites and/or Candida and since 80 to 90% of your health starts in your gut and has to do with your immune system I thought you all might benefit from this. Diatomaceous Earth food grade is totally organic and natural. There is even a test you can do in the morning first thing to see if you have Candida and I promise you most of us do. It is a powder with no taste and are actually very tiny little fossilized skeletons? that have edges that will clean out and kill parasites and also clean out the sludge that has been building in your colon for years. (Poor John Wayne's autopsy showed he had over 25 lbs. of well poo in his intestines). It does not give you diarrhea at all I promise but you must start off small and build very slowly to 2 full Tablespoons. You will not believe the stuff that will come out of you.
Try to stay away from anything with sugar as that just feeds the little sh1ts. Do Kefir to restore your good gut bacteria but not dairy kefir. Very simple to do your own from coconut milk or even water. It is good for your pets too as unless you feed them raw they have Candida too. As a bonus you can sprinkle some on them to keep fleas off natural if you let them out in the yard. Remember ONLY food grade and I got mine on Amazon really cheap. Best to you all and I was so heartened to see so many of you spurning main stream medicine and their treating of symptoms rather than fixing the problem. In today's world, we have to take our health and our loved ones into our own hands. Stay away from Cymbalta; thought I would die from the withdrawal. No liver tests for 6 years, very bad.
Antibiotics
★★★★★
★★★★★
Cabbage can be juiced and drunk, it is alkalizing; perhaps the cure is in keeping the urine alkalized. The high content of sulphur in cabbage removes (free radicals and uric acid) which are the main causes of arthritis, skin diseases, rheumatism, and gout.
Magnesium Oil (Transdermal Method)
★★★★★
★★★★★
Multiple Remedies
★★★★★
I called my naturopathic doctor and he told me chop up parsley and put it in warmer water and sip it all day. I also I took organic coconut oil made from fresh coconuts, three times a day. My ND told me to buy some boric acid capsules ( DO NOT TAKE BY MOUTH) to be used as a suppository, since now I had a yeast infection the antibiotics gave me. I would put the boric acid capsule suppository in at night before bed I did that for 12 days I also took organic powdered sulfur, which I now realize is MSM I took it twice a day in water. I also took two tablespoons of apple cider vinegar with 1/4 tsp baking soda I glass of water daily.
I wanted to cure this thing so I just did all of these things. Anyhow, I'm cured thank you, God!
Dietary Changes
Coconut Oil, Coconut Water
★★★★★
Treat for Ureaplasma
★★★★★
Stay away from wheat, sugar, dairy, meat and nightshade vegetables for a while. In most cities, you do not need a doctor order to get the test; just go to any lab test where you pay out of pocket or find a doctor that will listen to you and take the research with you and ask them to order to the test. There are things you can do to make yourself more comfortable, drinking water in baking soda, drinking lemon water seems to help; drinking parsley water is helpful as well. Warm heating pad on the lower back with castor oil. A couple drops Tea tree oil really diluted in sterilized water; soak in tampon and insert into the vagina over night helps. My ND gives me boric acid capsules to insert into my vagina in the evenings, before bed, to fight off the yeast infection from antibiotics. If you're terrified of antibiotics, get with a naturopathic doctor or Chinese Medicine doctor.
★★★★★
I had a new habit of chewing on cough drops daily. I just like the peppermint taste and I was having vitamin C ascorbic acid IVs the stuff was burning my arm and now I have IC. I wonder if it burned my bladder, weakened it, and became susceptible to ureaplasma.I drink tons of water, fresh squeezed lemons and 2 drops of SSKI with baking soda,
I have read that Interstitial Cystitis may be caused by Ureaplasma. The doctors do NOT check for this. Also, bacteria can go into the lining of the bladder and live there and it does NOT show up in the urinalysis. So then you need to take medicine for 6 weeks I read, also first the biofilm needs to be dissolved then 15 minutes later then take prescribed medicine or find a natural medicine. See a toxicologist they will know what to do.
Dietary Changes
★★★★☆
Multiple Remedies
Apple Cider Vinegar
Alkaline pH
Green Coffee Bean Extract Caused IC
★★★★★
I had been taking the green coffee bean extract to lose weight, but used it far longer than what is recommended. According to a recent Dr. Oz (big promoter of this supplement) comment, the green coffee bean extract capsules are only to be used as a "jump start" to losing weight - especially fat around the waistline. I did not know this until after I had been taking it for two years! A friend told me about the Dr. Oz comment which was made during a TV segment.
I noticed that the green coffee bean extract label contains 50% chlorogenic acid (200 mg). I was taking one capsule twice a day, so I was ingesting 400 mg of this acid each day!
When my gyno suggested that I either lessen or eliminate acidic foods, it occurred to me that this supplement was probably worsening my urinary tract problems!
Since stopping the green coffee bean extract (over 2 months now) I haven't been completely cured of IC, but the pain and frequent urination has been greatly reduced! Therefore, I think that the extract was a big part of my particular problem with IC.
I hope that this additional information will be helpful to those who may have been taking green coffee bean extract and have been suffering with interstitial cystitis.
