Natural Trigeminal Neuralgia Treatment

B12
Posted by Anna (Buffalo, Usa) on 06/02/2011

Hello. Searching different ways to treat and/or cure trigeminal neuralgia. I see on your site that people are praising vitamin b12 for this. However, when I go to supplements and search b12 on your site, the benefits of taking this vitamin do not list TN at all. I am recently diagnosed with this and am trying to see light at the end of the tunnel. Why is that?

B12
Posted by Karen (Jacksonville, Fl ) on 05/16/2021

I was recently diagnosed with TN. I am freaking out. I had ACDF [Anterior Cervical Discectomy and Fusion, a type of neck surgery] on 26 March 2021 and was trying to recover from that and then 6 weeks after crying with this Awful pain, I get told I have TN and was given Tegretol. I do not like taking meds if I do not have to.

Can someone please tell me about this TN and if u think it was caused by my surgery?

And how can I treat this TN naturally?

Same question: Has anyone heard of tried Rosemary Tea and Ashwagandha Oil to help relieve TN pain?


Multiple Remedies
Posted by Connie (Slc, Ut) on 01/11/2011

Hi Sonia; After reading Tom's post to you and the links he provided, I realized that I have had TN, both classic and atypical in the past, and that I may be able to offer some help here. My symptoms were in the lower right jaw, and did result with shocks that made me gasp and jump. In years prior to the shocks, I had TMJ, bruxism, inflammation, and swelling that radiated to the sinus, ear, and neck areas. I've recently had a flare-up, so I've had to shift my approach somewhat. The symptoms that you describe can be called Atypical TN, although some of these neural condition terms can get technical. While there may be a little relief in having a name for this condition, we need to understand the cause. And Even though some Dentists, et al. , can worsen the problem with their Clumsy and primitive procedures, We've ended up in their chair because of health problems. ( Its certainly not that we would choose any of this. ) It is beyond my range to decide whether there's been wrong doing.

Fortunately, I can pass some info about what's brought relief from this condition. There is inflamation and there is infection. Reduce acids that are causing this. Because of Ted's posts to us here , for which I'm so grateful, I've realized repeatedly that so very much of my nerve pain, neuropathy, neuritis, neuralgia, neurosis, etc. , is a direct result of too many acids in the wrong place. This procedure is one of the most difficult ones I've tried. Its the best. I call it "acid accounting". (sorry its corny, maybe someone more poetic can improve this) Simple sugars of course are a cause, but I've had to press this much further. I'm one of the folks that has to suspend or minimize the use of ACV, citrus, citric acid, and even citrates for now. I keep finding new ones, most recently stearic acid, high amounts are found in chocolate. (sorry y'all) While we need good acid in the stomach, colon, vagina, etc. , we need to find ways keep acid in the right place, stop leaking it, and flush excess acid.

One of the kidneys many jobs is to rinse excess acid, so I recommend that we treat kidneys well. (dandelion root and leaf, marshmallow root, nettles, and lots of celery. ) Another kidney function is to balance electolytes. (there are also Other endocrine and exocrine glands that help with this, but the kidneys are a master. ) Magnesium supplementation stopped the shocks and helped much of the pain and inflammation. 6yrs ago, I began with 400 to 600mgs magnesium citrate In divided doses daily. Now Ive switched to Epsom Salts, 14 to 12 tsp. Daily. (It is 39% elemental magnesium) I also recommend a high potassium diet. Try to get 8grams daily or more. That's alot of chewing. Make vegetable juices and soups. Have some fruits with care, slow the delivery of sugars with a light Saute in coconut oil and sea salt. Get a nutrition almanac and search for high potassium foods. (careful with citric acid , high in tomatoes, simmer well. )

My best results with mouth infections have been with an iodine rinse. It may need to be rather strong, 6 drops 2% lugol's in 2oz. Water swished and held , like oil pulling For 1 to 3 minutes 2 to 4 times Daily. I also still use goldenseal tincture, but iodine goes deeper to the root. Someone posted that their TN was relieved with the herb bark called "toothache tree". (zanthoxylum clava, and zanthoxylum americanum), commonly called, prickly ash. Thanks Y'all, Connie

Multiple Remedies
Posted by Connie (Slc, Ut) on 01/12/2011

Apologies y'all, the quantities of epsom salts that I take are 1/4 tsp to 1/2 tsp daily. My typing mistake would be a very dangerous amount to suggest that someone take. Please dismiss the previous measurements for epsom salts. Thanks, Connie


Multiple Remedies
Posted by Shelia (North East, Md, Usa) on 01/23/2011

Connie, I have suffered with TN for 17 yrs. It started when I was 20. I have told people that orange juice, chocolate, and tomatos cause flair ups for me. I would like some more info on this acid thing. Thank you.


Multiple Remedies
Posted by Patricia (Bothell, WA) on 05/04/2014

Like to know if anyone has gone to the LaserMed Center in Myrtle Beach, South Carolina and has had a remission of pain for a year or more, since then? Please let me know. It is a 3 week treatment for the average cases. I am planning to go soon, so I would really like to know if the $ costly fee for the treatment is worth it. It is not covered by insurance, and of course, the roundtrip plane fare costs, unless you live in the state.


Multiple Remedies
Posted by Donna (Prague) on 05/19/2021

Hello Pat, we used to communicate on this site. I did get 6 1/2 years of relief from LaserMed, but last year it flared up again, and I have tried everything including the things I posted on this site... I'm on Lyrica now, but I still get flare ups. Just wondering if you did go to LaserMed and how you did with it and how you are doing? I have a home laser that I got through them... I use it, but haven't got the relief this time. Obviously, it is a lower powered laser. I live in the Czech Republic so traveling to the US is impossible now for more reasons than just Covid. Just wondering how you are doing.


General Feedback
Posted by Susu (Sacramento, Ca) on 01/09/2011

I'm not a doctor but in my opinion, even though you aren't having all of the symptoms, you still may have it. I had it after some dental work with what felt like electrical shocks but the pain without the shocks was also unbearable. All of my teeth hurt and it felt like my gums were going into spasms. I couldn't sleep because of the pain, I could barely drive a car and I was still working full time. I found a doctor who would give me vicodin and I was able to keep working and driving, etc. I tried acupunture, and a few other therapies that didn't work but finally went to a homeopath who adjusted my neck. I think he said it was the C4 vertebrae.


General Feedback
Posted by Zoe (Harrison, Ar) on 07/03/2011
5 out of 5 stars

I was diagnosed with trigeminal neuralgia / atypical facial pain in 2009 after dental surgery to my jawbone. Sonia your description sounds very much like mine. I am so sorry. People who haven't experienced this pain, have no idea how horrible it is. It turned my life 180 degrees upside down. Thank goodness for the internet and the facial pain association and god's grace (I think it was formerly known as the trigeminal neuralgia association). Through their support groups I got in contact with a person near Dallas, Texas - who also had trigeminal type pain after dental surgery. I believe her name was Shelley Wilson and she had a benign tumor removed from her jawbone which led to her pain starting. She was on increasingly high doses of neurontin and painkillers for 5 years. I was so fortunate to have found her within 6 months of my pain starting. She led me to Dr. Allen Sprinkle - a dentist in Arlington Texas who specializes in chronic facial pain. He diagnosed the virus that had infected my trigeminal nerves and put me on the all natural Omura protocol (no more anti-seizure meds and painkillers)... It took about 6 months to regain my strength and health but now 2 years later I am pain free. Here is his contact information: Allen Sprinkle DDS 1106 W. Randoll Mill Road Suite 100 Arlington, TX 76012 (817) 461-9998. If you want more information from me you can contact me at batz(at)windstream.net

He also has a website if you google Dr. Allen Sprinkle in Arlington, TX. He's a very kind man and if you e-mail or call for him he's usually very quick in responding.

Don't be discouraged that he's not in your area. He may be able to refer you to someone closer as there are other practitioners of the Omura Protocol around the country. I pray for you that you are well on your way to healing and like I said I am glad to answer any e-mails or questions you may have.


General Feedback
Posted by Diane (Las Vegas, Nevada) on 09/30/2011

Dear Sonia,

I found a fantastic website that explains what Trigeminal Neuralgia is, what the cause is, symptoms and treatment. There is laser treatment for TN that is almost 100% successful. It is non-invasive and completely safe with no side effects. I hope this helps you. Diane


General Feedback
Posted by Maria (Sydney, Nsw) on 05/29/2012

To Diana, from Las Vegas, Nedada" could you please disclose the website and the laser treatment for trigeminal neuralgia?" Thanks.. Maria from Sydney.


General Feedback
Posted by Marie (Woodinville, Wa) on 05/24/2014

Re: Pain Free From Trigeminal Neuralgia. Sonia, your symptoms are very similar to mine. I've been suffering for a year and half - I'm curious if you have found a cure, or anything to help ease your symptoms??

Thank you for anything you can share!


Laser Treatment
Posted by Herbert (Curacao, Neth. Antilles) on 02/08/2011

I would like to get the address of the clinic that gave the treatment with laser to cure people from TN.
Herbert


Laser Treatment
Posted by Steve (Las Vegas, Nevada, United States) on 08/12/2011

Have you tried EFT? Very easy to learn and helps with many issues doctors can't touch with meds/surgery. Energy healers? A lot of people have found pain relief this way. You can also buy your own cold laser these days for not a lot of money. I've found laser therapy pens to be very effective for relieving many types of pain. Hope that helps.

Steve


Laser Treatment
Posted by Pat In Seattle (Seattle, Wa) on 07/04/2013
0 out of 5 stars

Daniel: You said you had nothing to lose to try this lasermed treatment in Myrtle Beach. Well I tried a laser med treatment from the Chiropractor, just one, and for only 5 minutes, and have been much worse than before I went.

I am talking to the LaserMed treatment center in Myrtle Beach, and it is about $7000 for flight, treatment and a hotel room for the 3 weeks. A pretty expensive thing, but now I am even more afraid to try Laser treatment, since this one caused me so much more agony.

Do you have any insight to give me. I thought I would be able to wait another year for this expensive treatment, but now I am so much more progressed in pain. It has been about 8 days since I had the 5 minute treatment, only to the pain paths, not on the Trigeminal Nerve itself.

thanks


Laser Treatment
Posted by Steve (Las Vegas, Nv) on 07/04/2013

I know a few people that have had success treating trigeminal neuralgia with energy healing. All of the research I have seen on treating this condition with low level lasers indicates that many laser treatments are necessary to have any effect. The initial studies on this said 12 weeks of 2 treatments/week had the best effect. One 5min treatment will have almost no effect at all.


Laser Treatment
Posted by Imelda (USA) on 07/05/2013

Hi Steve, do you have any details on the energy healing?


Laser Treatment
Posted by Steve (Las Vegas, Nevada) on 07/05/2013

As an energy healer what I do is focus the energy on the trigeminal nerves. It generally takes at least a few sessions to get the pain level down to a manageable level. There are lots of great healers listed on this site as well. But it hardly ever gets mentioned which is a big shame. So many people can be helped by this therapy alone. If there was a distance healing request page we could help a lot of people. Peace, Steve


Laser Treatment
Posted by Leonardo (Quebec) on 06/18/2021

Hello, which kind of therapist would be good for this problem (Trigeminal Neuralgia)? Thanks.


Laser Treatment
Posted by Pain In Seattle (Seattle) on 07/29/2013

Hi Daniela: you mentioned that your mother got treatment at the LaserMed Center in Myrtle Beach, S Carolina. How is she doing now? I am researching this to see if it is a viable option.

It is not covered by most insurances because it is considered experimental. It is about $5600 for the treatment and then add round trip plane fare and motel for 3 weeks and all the other things you need, it is quite a package for most people to pay and the time away from home as well is costly.

SO please keep us informed on how your mother is progressing. Yes, I did call them, and I got one reference to call me back. I am not sure why there can't be more people willing to share, if they have successful results, but there doesn't seem to be more.

I am wary about just seeing testimonies on their websites; just good advertising that is all. I want to hear more from the people who have nothing to gain but want to share how they actually got rid of the agony of TN just for altruistic reasons. So please keep us informed how your mother is doing.

I wonder why Neurologists haven't heard of this? They have heard of Upper Cervical Chiropractors though and it has helped people with TN and is covered by most insurances. So is this worth a try first? I don't know.


Laser Treatment
Posted by Steve (Nevada) on 07/29/2013

Laser therapy is a good treatment option for Trigeminal Neuralgia. There is lots of international research that points to the fact that it is an effective therapy for TN. Here is a research link. It's written in medical research terminology but the gist of it is that Laser Therapy works.

http://www.ncbi.nlm.nih.gov/pubmed/11197651

$5600 is an awful lot of money for the treatment plus all the expenses. For that much money you can buy your own therapy laser and have unlimited treatments. In fact you can get one for a lot less than that. Many options out there.

Peace, Steve


Laser Treatment
Posted by Karen (Weston. Colorado. Us) on 11/10/2014

How long has your mother been pain free?


Laser Treatment
Posted by Tifanie (Dothan, Usa) on 11/17/2014

Hi, I was wondering what the laser treatment was? In or outpatient? I got TN at 22 & tried everything I could find including surgery, which spaced out the pain from every 2-3 seconds to every 20-30 seconds. So not great results but better than nothing. I'd like to know if your mom is still pain free or if it's a maintenance type of treatment? Thanks so much in advance!


Laser Treatment
Posted by Yolanda (New Market, Va ) on 02/19/2015

I was diagnosed with Trigeminal Neuralgia in the year of 1998. Did not have any symptoms of this very painful #10 pain until after dentist sessions with trying to change my bite, which by the way, I was losing teeth, had root canals, etc. that these symptoms became very, very evident. After many visits to the medical profession, and research on my part, I decided I needed to see an Neurologist in Staunton, Va. who was associated with the University of Va, Charlottesville, VA, Neurological Dept., and learned that a blood vessel was leaning on a nerve. After x-rays showed this condition, I was recommended to be a candidate for sterostatic radio therapy that I decided to do.

Dec. 9,2000, was when I was admitted to the University of VA hospital for an overnight stay. There was no invasion of the skull. I was fitted with a helmet that was carefully centered and then wheeled into another room with an attendant behind a glass window. I then was placed in the next room and this beam was centered on the necessary position, asked the kind of music I liked with ear phones, for about an hour. Just this one treatment and released. After stopping Tegretol, Gabapentin, etc, I was slowly eliminating these medications.

I was pain free until the year of 2008. At that time minor disturbances with sinusitis aggravating the nerve on the side of my face occasionally but nothing like the #10 pain preceding the treatment. I am grateful and thankful that I am not going thru what I had been. I was 76 years old at that time. Every two years I had a contrast brain scan. Now I have been reading that B 12 is beneficial to patients, but since I am from the old school of common sense, I thought it is much better for the body to absorb the natural vitamins from our food intake. I am now eating fresh liver from a local butcher at least once a week, fresh caught fish at least once a week, fresh green vegetables to keep the bowels open and lots and lots of prayer, a necessary ingredient for daily life.


Laser Treatment
Posted by Brit (London, Ontario) on 03/22/2015

Is this treatment offered in Canada ?


Laser Treatment
Posted by Ellena (South Africa) on 04/06/2015

I have TN. I live in South Africa and will have have to look for a facility that uses Laser Treatment for Trigeminal Neuralgia. Please give me more info. What kind of laser treatment and what kind of clinic?


Laser Treatment
Posted by Kathy ( Ny) on 04/21/2015

What is the name of the clinic and the laser she had done? What's the name of it? Thanks, Kathy


Supplements
Posted by Carol (Fairfield, Ct) on 02/07/2010
5 out of 5 stars

I have had this trigeminal neuralgia for too long. The side of my face was a piercing electrical shocking feeling, that would send me flying. I believe that this had some bearing on high blood pressure. Because of other health issues, I started taking 1000 mg fish oil, magnesium citrate, 500 mg, Liquid B12, and Phosphatitdyl Serine, 100 mg, before going to bed. . I am almost totally without pain. I had gone to two dentists, because it appeared it was pain stemming from teeth. Not so. I have had luck with this regimen, that I purchased at the health food store. I really believe that the phosphatidyl serine is the curing factor that has helped. My theory is that this being a facial disorder, and phosphatidyl may just heal the nerves causing the pain. Try this for some help!! My blood pressure is also stabilized. Good luck!!

Supplements
Posted by Bonnie (Hilton Head, Sc) on 08/26/2010

Could you please tell me how long before you noticed significant improvement? Also why do you think the Phosphatitdyl serine was the most effective? I am just now trying to get help using natural remedies.


Supplements
Posted by Barabara (Bothell, Washington) on 10/22/2012

Hi Bonnie and Carol: in regards to Phosphatititdyl Serine of 100 mg a day, it is researched on the web as helping with memory and cognition and is important in the cell structure esp. Of the brain. It improves the cell membranes so it might help with Trigeminal Neuralgia.

Unfortunately, with TN, it is difficult to tell what really helps unless it is used for a long period of time. This is because TN has periods of remission and unless something has been helping for almost a 7-8 months or a year, it is really hard to determine whether it is the treatment or just a natural remission of the disease. I have had remissions but usually only for a month or two.

So Carol, I am asking you again, if the Phosphatitdyl Serine is still helping you with the Trigeminal Neuralgia, before, I again, try another supplement for pain. It is so expensive, and I have pill bottles that I can't use as it is.

I have also found that joint supplements, such as Hyaronic Acid, seem to make the TN worse; why I don't know. Maybe in its attempt to make things more lubricated and flexible, my arteries and nerves are slipping around against the Trigeminal Nerve more. I am wondering is anyone has experienced this before?

Thanks, Barbara


General Feedback
Posted by Shawanna (Chapel Hill, North Carolina Orange) on 12/19/2009

Hello, i just wanted to let you know these post have been very helpful. My mother who is 40, is suffering from Trigeminal Neuralgia. It saddens me to see her depressed everyday! She is scared to have any surgeries done, but i hope some of these home remedies help. Again, thanks!

General Feedback
Posted by Kay (In The Valley, Ca) on 12/20/2009

Shawanna from Chapel Hill, I have a very dear friend that suffers from this same problem and has found no relief. Could you let us know what remedies your mother tries and what does and doesn't work for her. I wish her luck with this very painful, life altering condition. Thanks for sharing with us.


Oil Pulling
Posted by Gary Tovey (Edmoton, Alberta Canada) on 03/19/2009

Sorry for using this way of contacting you, but I did not see anyware to place a post. So my question is do you know if this Oil Pulling has helped any one with Trigeminal Nerve disorder?

Gary Tovey


Setting Boundaries
Posted by Elizabeth (Buchanan, MI) on 04/30/2009

I've had nerve blocks, lyrica, tegretol, neuronton, marinol(marijuana relieves the pain temporarily), migraine meds+++ I'm a guinea pig for the pharmaceutical companies. I've had 6+ jaw surgeries and facial reconstruction surgery with 3 bone graphs which I think caused this pain.

I suffer terribly from trigeminal neuralgia. When I have an emotional upset, the pain elevates... intolerable, + extreme...I'm a very emotional person who has been suffering from the pain for 10+ years. I've been on every prescription possible with no relief and adverse side effects.

When I read your comment, I was very curious as to how much pain you have endured and how you can control not giving your power away. I do everything for everyone anytime and rarely receive anything in return. Sometimes, I think that I should live alone for the rest of my life because any conflict triggers the neuralgia pain. I should move to a remote place where I'm the only human.

Stress is killing me...or at least it feels like I'm dying slowly from the pain.

Please let me know some of your secrets to holding onto your power and not giving sooooo much.

I look forward to hearing from you....Pleeeeeeeeease!!!

I have an appoinment coming up with the U of M...costs $400+ and I don't feel confident about the doctors at all.

Thank You


Setting Boundaries
Posted by Ann (Pittsfield, Massachusetts, Usa) on 07/19/2010

Hi, Just found your comment as well as the site. I believe I am having a mild bout of TN. But as I have had a number of patients with it, I am able to hypothesize that that is what's going on with me. I hope you are doing better. I am a psychologist who specializes in helping people with chronic pain. I suffer myself from Rheumatoid Arthritis which I was diagnosed with at age 3. Anyway I cannot stress enough the importance of meditating. It is essential for anyone under chronic stress and or chronic pain which of course is a stressor. It takes a lot of guts to deal with pain but there are some important strategies that help. My best to you and your fight. Ann


Setting Boundaries
Posted by Nikki (Tampa, Fl) on 07/07/2015

This is me! I also get it when I'm indecisive. I haven't learned to stand up for myself yet, though.


Vitamin B Depleted by Flax Seed Connection
Posted by Hartensia (Houston, Texas) on 07/15/2008
5 out of 5 stars

After living with Trigeminal Neuralgia for about 4 years I was at the end of my rope. I had tried everything but nothing seem to help, but I searched on. On day I came across a article that said Flaxseed and Flaxseed oil sometimes effects the effectiveness of vitamin B. I was amazed, I love flaxseed and the oil and use them daily. I decided to stop my flaxseed uses and try vitamins again. Praise God it worked. It has only been six days but each day the pain is less and less, today I am about 75% pain-free. I hope this helps someone.

Vitamin B Depleted by Flax Seed Connection
Posted by J (Houston, Tx) on 11/01/2009

Wow, it's really surprising to hear that there are some negative attributes to flax seed. Congratulations on your healing.


Vitamin B Depleted by Flax Seed Connection
Posted by Br549 (Lake Orion, Mi) on 05/17/2011

Bone cavities, if not fixed at the time of an extraction, will continue to cause radiating face pain. It's just like having a cavity in your tooth only it is in the bone above the tooth. It took 2-3 weeks after the extraction before the pain was completely gone and that is with a dentist that was familiar with bone cavities. Some are clueless as to what they are. The cavity was on my left side and it made the whole left side of my face ache.


Vitamin B Depleted by Flax Seed Connection
Posted by Mary Perkins (Murfreesboro, Tn) on 06/21/2011

I have had the excruciating pain of trigeminal neuralgia even when my B12 level was over 1,000. I have foun trigeminal neuralgia specifically linked to the amound of saturated fat that I have eaten. I was searching for some kind of relief and came across a diet for trigeminial neuralgia. It was written by Frank Sherwood. I tried it and it worked. I went off of the diet and am home today suffering the consequences. It took about one week on the diet to reep the benefits. I was also taking about one to two tegretol pills a day with the diet. It was because I felt a flicker of pain and was afraid of a full blown attack. I have not suffered a full blown attack today because I am taking tegretol but I am not feeling well because of the medication. I am convinced that the diet was the key. I also went to the chiropractor. That is also beneficial.


Vitamin B Depleted by Flax Seed Connection
Posted by Pete (Minneapolis, Mn) on 07/25/2011

I'm glad to see this thread! Have suffered with TN for almost 5 years. Am a vegan most of the time, sometimes go into eating dairy for periods of months, tried Frank Sherwood's TN diet (strict control of saturated fats), found that it seemed to help for a number of months but the TN came back during a stressful time with less sleep a few weeks ago. Got disheartened, "fell off the wagon, " have been eating some junk food again, having more and worse attacks...

I was super strict from Oct. 3 through about three weeks ago: in fact by Jan. Was not only eating less than 3 grams of saturated fat a day, but also all raw--was living on raw fruit, raw veggies, raw seeds and nuts (mostly pumpkin seeds and sunflower seeds and walnuts, in carefully measured small daily amounts) and just enough flax to get omega 3s. No sugar, no flour, no refined anything, no cooked or toasted foods... and exercising every day until I tried going outdoors to walk in May and began having TN attacks again--partly stress/overwork/undersleep but also pollen/pollution/mold and outdoor weather seem to trigger them off no matter how perfect my diet is.

Some things I have found that help, often work miraculously are:

HOMEOPATHIC ALLERGY/SINUS TABS. Homeopathic tabs that if I take them right at the beginning of an attack, often stop the attack completely. I always need two. Sometimes they do not work at all.

SUBMERGING MY HEAD in water. Yes, literally, "soaking my head! " I fill the bathtub with medium-warm or lukewarm or cool water depending on the ambient air temp, and kneel down and dunk my head under, slowly blowing out through my nose, holding my head under as long as possible, coming up for air and immediately going under again... After a little while it often stops the pain completely. Again, not always but it works often enough to be worth the trouble and attempt.

I will try B12-maybe my veganism is causing the TN, in part! Lack of B12. I was taking more B12 during the period when I was having fewer attacks, did not realize there was a reputation for it to help with this. Just happened to slack off by chance...

Try the homeopathic tabs! I suspect TN may have many different triggers for diff. People, but for many of us may be akin to an autoimmune/allergic response to environment. Lately I feel like a tropical fish, oversensitive to the extreme to minute changes in the air. Weather really sets these off. The tabs somehow seem to help me restabilize when my trigeminal nerves start to "go postal.


Vitamin B Depleted by Flax Seed Connection
Posted by N (Tel Aviv, Israel) on 12/24/2011

I'm a 34 yo guy from Israel, suffering 'just' a year and 8 months... after a tooth filling at the lower left molar tooth.

I suffer from constant pain all day and night... It's not a life worth living. I was a healthy guy.

And although I went to tens of doctors (took neurological medicine etc. ) - still don't have a solid diagnose. I feel that saying "atypical facial pain" - is like saying - "we don't really know - we don't really care". I still feel there's something dental that's wrong in my mouth.

Also - my jaw bone at this side of the face changed during this year. It got more "pointy". Or "boney". and by touch it feels like a very small bone grew in the angle of the mandible

Anyone had that? (a slight change in thier bones?)

Don't know what it means - and what to do with the pains...:(

libcard2000(at)yahoo.com


Vitamin B Depleted by Flax Seed Connection
Posted by Pauline (Uk) on 08/31/2016

Being in Israel have you heard of NanoVibronix? If you are still suffering try contacting them about their ultra sound invention. Not cheap but interesting. I have one standing by but acupuncture has helped me in the mean time.


Vitamin B Depleted by Flax Seed Connection
Posted by Pat (Seattle, Wa) on 09/07/2013

Low Fat Diet May Fail Many for Trigeminal Neuralgia:

This is for Pete and others who have tried the Sherwood low fat diet of 10mg or less of fat a day. I tried it and I tried it for 2 months. It did nothing for me and may fail many others.

There is real facts and research about the low carbohydrate diet and how it has helped children with epilepsy. 1/3 of the children put on the diet had their epilepsy completely gone, 1/3 had it reduced significantly and the last 1/3 saw no improvement.

The Mayo Clinic called it the Ketogenic diet. However, since the advent of antiseizure drugs the knowledge about this diet became unknown; it is easier to treat a patient with a drug than to educate and motivate a family to make major dietary changes.

Well my doctor told me to try the Atkins Diet because it is low carbohydrate. Well I am willing to try anything before I have to go for surgery (ugh-drilling a hole in your brain is the top surgical approach recommended now but often fails)

So please anyone know about low carbohydrates and if it has helped you with Trigeminal Neuralgia, please respond. I know I have heard of one person long time ago, that said it helped her, but I can't find her entry.

Please let us know. Actually the diet allows veggies, salads, and some fruit right from the start, and you do not feel hungry. It increases your HDL (good cholesterol)and decrease the triglicerides.

Please share any information.


Peppermint Gum
Posted by Michele (Oak Hills, FL) on 12/07/2006
5 out of 5 stars

For the Trigeminal Neuralgia heading, I wanted to mention that I've had ATN (constant pain in T2 and T3) for nearly three years due to an incompetent dentist. Prior to diagnosis, I was trying all kinds of things to stop the pain. I discovered just about any kind of peppermint gum (preferably the kind with a hard shell initially) will stop or greatly reduce the pain within a minute or two. As long as I can taste the peppermint flavor as I'm chewing, the pain is reduced. As the flavor goes away, the pain comes back. Now that I've been diagnosed and am on medications, I still chew gum in the afternoons when the pills decide they're not going to work anymore! This is very helpful when I'm driving somewhere and would prefer not to cry. Oh, peppermint flavored mouthwash does the trick, too. Do some major swishing for at least two minutes, and afterwards, your mouth will feel a lot better.

Peppermint Gum
Posted by Teresa (Ipswich, Ma) on 02/23/2010
5 out of 5 stars

You know I've actually noticed this but I assumed it was because of the jaw movements rather than the pepperment. I originally chewed the gum for fresh breath. I was also spoken to for chewing gum at school.


Peppermint Gum
Posted by Melissa (Chattanooga, Tennessee) on 03/25/2010
1 out of 5 stars

Warning

Just a word of caution for those of us with TN and not ATN. Chewing is a trigger of pain for most of us. So gum chewing is usually not advised.


Peppermint Gum
Posted by Mag (Edinburgh, Scotland) on 08/16/2010
1 out of 5 stars

Warning

Hi, as like what Melissa said, chewing gum triggers my TN off, so be careful, good luck though x


Peppermint Gum
Posted by Ls (Houston, Texas) on 08/16/2011

I was diagnosed with TN about 2 weeks ago. I first notice the pain while putting on my make-up. Later I had pain in my teeth. Went to the dentist and he said nothing was wrong with my teeth. I went to a doctor in Mexico and I told him I had sinus infection. Well he checked me and said there was nothing wrong with my teeth or my sinus and but that he thought it had to do with my face muscle. A week later went the emergency room with the pain and I was diagnosed with TN. I know that TN does not cause paralyses but I feel my lips don't have that puffiness and a lot drier so I use a peppermint chap stick. It funny Peppermint was mention because when I put it on I don't know if it's the smell or what but it calms my pain too. Maybe I will try a peppermint tea.


B12, Omega 3, Facial Tissue Stimulation
Posted by Bridget (Hamilton, NJ) on 03/10/2009

I have been using acupuncture to successfully treat Trigeminal Neuralgia. Was on medicines but the side effects were too much to handle. The constant pain from TN have been greatly reduced by acupuncture. 25 points, once a week. At first it took three times a week to produce a change, then twice a week, I am now down to once per week. Give it a try.


B12, Omega 3, Facial Tissue Stimulation
Posted by Luca Cazzaniga (London, United Kingdom) on 01/21/2011

Dear Veerle, My name is Luca and I am writing you because my 26 years old girlfriend is experiencing trigeminal neuralgia associated to cluster headache. Since the 31st December 2009 she had headache everyday. The several exams did not evidence any specific cause and despite different medication she's still experience an unbearable pain and too many side effects. Obviously her quality of life is largely influenced and she is currently not able to work, practice sport and live with serenity her life. I have been really impressed by your words and your story and I am wondering if you could give us your mail contact just to ask you some advices. I am a physiotherapy student and to realize that I may potentially help her is fantastic. I am aware that this post is really old but I hope that you may answer. This is my mail: cazza67(at)live(dot)it.

Many thanks. Luca and Manu


B12, Omega 3, Facial Tissue Stimulation
Posted by Nathalie (La-london, Us/england) on 06/22/2011
4 out of 5 stars

This is directed to Luca and others who suffer from Tn as well as cluster headaches. I was diagnosed with both conditions, August 2010. Unfortunately, I suffered in pain without any relief for 9 months prior, as the doctors could not get a handle the fact that I had multiple conditions.

Firstly, Oxygen on level 7 works miracles for my clusters. I am also on Topamax but have reduced the dosage from 275mg to 50 mg over the year. Secondly, the TN did settle a little with Lyrica, but is wasn't until I started vitamin therapy that I started a significant change in my pain level. I still react to certain food enzymes and odours as well as cold air... However, I have gone from a daily pain threshold of 6-7 to a 1-3 from Glutathione and Meyers IV infusions. I recommend them. N


B12, Omega 3, Facial Tissue Stimulation
Posted by Chris (Sammamish, Wa) on 02/16/2013

Can you tell me specifically what kind of facial stimulation you did... E.G., Scenar. Also, can you be more specific on B12?


B12, Omega 3, Facial Tissue Stimulation
Posted by Nan (Jakarta, Indonesia) on 05/17/2013

oh my god, yea, me too! I'm 18 but I think I have this terrible symptom.. how could teenager get this symptom? First time this disease came is when I have wrong sleeping position. ah :(


B12, Omega 3, Facial Tissue Stimulation
Posted by Daisy (Greenville, Pa) on 05/19/2013

I also have Type 1 TN but for the past couple of years, when I have the shock-like pains in my right temple, it almost always seems to be connected with having a lot of pain in my right hip and thigh (I also have fibromyalgia). Sometimes a chiropractic adjustment will completely relieve the pain, but other times it doesn't help at all. Has anyone else experienced this?


B12, Omega 3, Facial Tissue Stimulation
Posted by Wanda (Saint Helena Island, S.c.) on 09/21/2016

Yes I have sharp pain at the temple on the right side also. Hoping and praying to find something to help with the throbbing pain. So anyone know if I can get disability for this? I have applied once and was denied. I find it hard to work on this condition especially as a rural carrier and when the weather changes so does the pain.


B12, Omega 3, Facial Tissue Stimulation
Posted by Wendy (Swaziland) on 05/01/2014

Hi, my husband had a operation to stop the whole pain shock waves he got, He lost his job etc due to this. It was too good to be true, and the pain is back after about 3 years. We are just starting on tissue salts and hope it will work. Any other suggestions? Thanks, Wendy


B12, Omega 3, Facial Tissue Stimulation
Posted by Dave (Fountain Inn, Sc) on 05/01/2014

Wendy, hello.

Trigeminal Neuralgia some sources say is caused by a virus. If me, I'd apply Colloidal Silver mixed with DMSO, 50/50 and apply topically with a white cloth on affected area. I'd repeat four times a week for a month. The DMSO is a penetrant and carrier and will deliver the CS inside the nerves to kill the virus. Also DMSO is anti inflammatory.

Google "DMSO Dr. Jacobs 60 Minutes" and you'll find a great 3 part series that played on 60 Minutes about DMSO. Also on Earth Clinic under Remedies, there are two articles on CS. Helpful.


B12, Omega 3, Facial Tissue Stimulation
Posted by Andrew (Toronto, Canada) on 12/14/2014

Hi Veerle;

What are the neck and facial exercises that you did to relieve the facial pain?

Best regards, Andrew


B12, Omega 3, Facial Tissue Stimulation
Posted by Elena (Austin, US) on 12/25/2014

Hi Dave, I've read that one of the possible side effects of CS is that it would stain this side of your face, like a silver/gray colour. Any information about this? Thanks million

EC: You will find some information here:

https://www.earthclinic.com/supplements/colloidal_silver.html

https://www.earthclinic.com/remedies/colloidal-silver-blue-man-or-miracle-supplement.html


B12, Omega 3, Facial Tissue Stimulation
Posted by Jorgen (Thailand) on 01/28/2015

Would appreciate if you could give me the daily dosage of b13 and omega 3.
Thank you


B12, Omega 3, Facial Tissue Stimulation
Posted by Nikki (Tampa, Fl) on 07/07/2015

What doses did you use and what type of stimulation? Thanks :)


B12, Omega 3, Facial Tissue Stimulation
Posted by Laura (York, Pa) on 11/25/2015

I have the same issue. Can you please explain the facial stimulation and strengthening exercises?


B12, Omega 3, Facial Tissue Stimulation
Posted by Anne (Texas) on 01/04/2016

Are you still pain free? I am looking desperately for some relief for my son who has had atypical TJN for three years. He is depressed and feels there is no end to it.


B12, Omega 3, Facial Tissue Stimulation
Posted by Wanda (Saint Helena Island, S.c.) on 09/21/2016

Can this be done at any chiropractor? I have tn and suffer from time to time with pain on the right side of my face.


B12, Omega 3, Facial Tissue Stimulation
Posted by Steve (Nv) on 09/21/2016

Check out cold laser therapy. There is some good research that shows it can definitely help with TN. DMSO is also helpful in relieving TN pain.



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