Natural Trigeminal Neuralgia Treatment

Upper Cervical Chiropractics
Posted by P (Seattle, Wa) on 12/22/2011
5 out of 5 stars

Hello:

I was trying the oral B12 B complex (the active forms) but after awhile, the shocks started coming back quite alot. I am back on injections for now, which seem to help completely. But I have also found that going to a upper cervical chiropractor may help many people with TN. It helped me immediately.

The upper cervical chiropractors are highly skilled in the spine and neck regions. A slight adjustment (hardly noticeable) puts your neck straight and then the spine follows. This allows the nerves to work properly and must have moved my nerves off the wrong portion on the skull where the Trigeminal Nerve lies. All I know is that it stopped the shocks. I have to be careful what I do to my neck now, and I follow the doctor's advice. I will still take the B vitamins, but because of a malapsorption problem, my body just doesn't assimilate it as well as it could. It maybe a year before my body heals from the gluten I have been giving it. I am very gluten intolerant and that can cause your body to have problems storing and activating nutrients.

Look up NUCCA, which stands for National Upper Cervical Chiropractors Assocation and see if you can find a referral list for one in your home area. Then don't wait, but go. It is the best decision I ever made. There is no painful period afterwards, either, as you hear there is from osteopathics. Just relief... Some people may take more than one adjustment for total relief... but I think it works great for this affliction.


B12
Posted by Sara (Texas) on 10/16/2015

Hi P, My mother uses Source Naturals MethylCobalamin Vitamin B-12 Cherry flavored Sublingual 5MG -- 120 tablets in the bottle. Hope this helps.


B12
Posted by Pat (Bothell, Wa) on 11/21/2011

Dear Connie:

I do not know what words I can say to let you know how much I appreciate your help. My doctor will not be in til Wednesday, and I have been having quite a few short shocks today and worried that they will get worse. I will have to wait for an injection and am not sure if I can keep affording them. They wind up being about $200 a month, so for the short term it is ok, but long term it is hard.

So I went to our natural supplement store. I did not buy what you take, since I am new at this and thought it would be hard to divide and break them apart. (the 5000 mcg) But I did get B12 Methylcobalamin, 1000 mcg that you place under the tongue and it melts pretty fast. I have taken 2 of these and will probably not take more for today.

I also got a peppermint flavored Coenzymate B complex with only B6 with 10 mg only a pill. It also contained folic acid at 400 mcg and also vitamin B12 from dibencozide (co-enzymated) and some other Bs such as ribloflavin, niacin, thiamine. I think I have enough Bs for the day and will see how I feel tomorrow morning.

I have acquired 4 auto-immune diseases since I contracted drug induced lupus a few years ago. So the no-gluten diet is helping to free me from these symptoms, but obviously not the TN. I got the lupus from an allergic reaction to Osteo-Biflex. Can you imagine that? Yes, I also have knee arthritis but have found some naturopathic remedies to heal this as well. I am a work in progress, but have learned alot about health and supplements on my road to a life with less pain. You have helped immeasurably, because lets face it, what is worse than Trigeminal Neuralgia?

Sometimes the B vitamins don't get absorbed as well because of low stomach acid. So supplementing carefully with hydrochloric acid and pepsin can help --and can aid in your body carrying the Bs to places it needs to be. Sometimes citric acid and vinegar is an alternative to the hydrochloric acid route as well.

My doctor feels that one shouldn't have to supplement the rest of their life for Trigem Neuralgia, but with Trigeminal Neuralgia, well, let's face it, vitamin Bs ain't a bad thing such as the drugs that disable your other organs. And you can know that your myelin sheath is healing in the process, which is a good feeling in itself.

I hope these oral Bs help me. I was really needing some help today and I am so thankful to God that I found this website, with someone as knowledgeable as you. Are you a Naturopath or something?

God bless you,

Pat


B12
Posted by Pat (Bothell, Wa) on 11/20/2011

Hi Connie:

The trigeminal Neuralgia has been coming back since my injections dropped from 2 a week to 1 a week. Trying now to determine if I have a malabsorption problem (I am on a gluten-free diet now-only 2 weeks) and also going to be tested for metals. ) I guess the no. of injections I have had have put most people in remission, except me.

I also found that vitamins that have high amounts of the B12 ((adenosylcobalamin), another active form, seemed to cause me more pain just yesterday. (I couldn't figure out why my pain was so much worse yesterday, until I checked out the B12 ingredients and reread your online info) So I am stopping this now.

If I start the sublingual B12, I will probably need close to as much as you do. (is that about 4000 mcg? daily-what are the mgs dose equivalence?) I wanted to ask you for the brand name of the Subliminal Methyl B12 and the B complex you take. Is the B complex subliminal? Also how long have you been taking these?

Do you have malabsorption issues too? Have you tried a gluten-free diet? Been tested for metals? Or have you tried Milk Thistle, which enhances the body's liver to absorb nutrients? Have you ever tried Homeopathic remedies for the control of symptoms? I have also heard that Ashwagandha (east indian herb for stress) greatly benefits people with this nerve disease. I know it helps me a little. It is an actual ingredient in the formula, Trigical, which I think is from Denmark and marketed that it stops the pain of Trigeminal Neuralgia.

Where did you come across the knowledge to try subliminal B12? Hope some of my comments can help you too. Is there a way we can get each others email privately?

It is good news knowing that there is hope to heal these nerves. Most traditional doctors can't agree on the cause of this most painful horrible condition. Most MRIs don't really show it and only rule out a possibility of it being a brain tumor. Who wants to go for brain surgery with so many risks and little, if any, long term relief?

Looking forward to your comments. They have given us all hope.

P

B12
Posted by Susan (Seattle, Wa) on 06/26/2013

Please Wes, tell me how long did the pain free or remission of severe pain last from the laser treatments? Your entry is in Feb 2012. We hear nothing of you since. We need to know. How long have you had TN too?


B12
Posted by Connie (Slc, Ut) on 11/15/2011

Hi Pat ; It's great that you've found relief from TN, as it is one of the most shocking of pains... Now, you've reached another hurdle, the question of whether to maintain nerve health with supplements. It's true that too much of one can disturb the balance of the others. I can only guess what you personally may need, but I'll try to help you with a method of finding this. If you have had no other signs of B12 deficiency, particularly ones such as balance problems, numbness with tingling, vision disturbance, incontinence, etc. , then you may need less than other people (such as me).

If the cause of the TN was a mechanical injury, such as dentistry, then you may be fine by continuing good dietary practices alone. If there has been chronic exposure to heavy metals, such as mercury, or to noxious gases, there may be more of a need for regular supplementation. If there is a malabsorption problem, that so many of us may have, then regular supplementation can even be a lifesaver. Although many people can take large amounts of the B's and have no problems; they excrete the excess, I have to take them in a more measured way. I take a smaller amount with each meal. I'll divide a cap of , say a B-25, and take 1/2 of that with a meal. Some of the B's, such as B1 and B6 can be helpful to nerves in the right amounts, but irritating with high amounts. I have a high need for B12, so I take extra, 5000 mcgs. of sublingual methylcobalamin every day, or I begin to suffer nerve damage. Even though there are people that need much more than I, it looks like many more people need much less than this to maintain nerve health. Some people thrive with 1000 mcgs daily, and many may find that they need B12 two or three times weekly or less. I suggest that you watch for the return of symptoms, even the slightest twinge may indicate a need for more regular supplementation.


Alkaline Diet, Peppermint Oil
Posted by Ginny (El Paso, Tx) on 11/03/2011
5 out of 5 stars

I just began getting the symptoms of TN, and began googling my symptons like crazy. I am so thankful to have come across this site. Since I knew peppermint oil helped with headaches, I decided to rub the oil all over the areas that hurt, and it does relieve the pain! I use Dr. Young Living oils or if you want to pay less you can order them from Mountain Rose Oils. (Try and get their highest grade)

I am so thankful to have come across this site, as I am totally against taking drugs. I am going to order the supplements mentioned here. I am thankful to have done the alkaline diet previously for Chronic Fatigue. But fell somewhat off the wagon for the past 6 years. I want to stop this in its track, before it gets worse, so I am back to eating greens, greens, greens, breakfast, lunch and dinner. The good part is, I will finally lose those stubborn 10 lbs I had put on. The book that helped me cure my CF was THE PH MIRACLE. Dr. Robert Young (different from the OIL Dr Young) teaches all disease comes from an overacid diet. I am hoping I have the same success with this TN that I had with CF. I can't imagine what the pain that some of you experience as mine is still mild, with electric feeling shocks thru mostly the left side. It started with a very sharp shooting pain 4 days ago, and immediately I started alkaline and noticed the pain subsided. But I still have the electrical shock thingies. (I had nerve damage on that side from surgery in 2000, but only now is it starting to act up)! Wish I had never had that face lift, LOL.

Alkaline Diet, Peppermint Oil
Posted by Aileen (Miami Beach, FL) on 06/23/2014

As I read your comment, I think of myself. I came down with Trigeminal Neuralgia 1yr and 4 months ago. I can understand why it has also the reputation of being called the suicide disease. After 4 Drs. and 2 teeth being pulled, I was told about 2 Drs at a university down here in Florida that have been studying this condition for 30 yrs or so. Unfortunately they lean more toward the pharmaceutical industries. So I am now on oxycarbapentine and carbamazepine. 2 seizure medicines.

It has made a differance in my life. I can now live normal. I too was unable to eat, talk, laugh stand up quickly, sit down quickly, exercise. I was on baby food and had lost 15 pounds. (Not good for me). Plus these damn drugs have given me an ulcer. My life had come to a complete stop the nite it hit me. I had to quit my job as a restaurant Mgr.

I love all natural and holistic remedies and cures. I would like to start them but don't know what to do first. Am scared to get of the drugs because the pain was so excruciating. ( And I must say I have a wonderful husband that did all he could do for me at the time even tho he was without understanding the problem That was a huge help. ). Looking for the natural way. Please help.


Alkaline Diet, Peppermint Oil
Posted by Dave (Fountain Inn, Sc) on 06/23/2014

Dear Aileen, So glad you are open to "natural"...and if you look under Ailments (Earth Clinic) ... under "T" and scroll to Trigeminal Neuralgia ... the first post if a post by me from a few years ago. Please read the thread and you'll find my proposal for what is causing TN and what I'd try to rid myself of it if I had TN. I believe TN is caused by a virus...like Bells Palsy. Or like Shingles.

Please take a look at what I suggest. I did cure myself of shingles by using this method.

The idea is that something prompted the infection... maybe dental work or a serious sinus infection. And you'd have a clue as to this possible source if you can go back in time before the onset of your symptoms and if you recall a few months/six months or so prior to symptoms, if you had some dental work or a serious infection. That's a clue that indeed the problem might be a virus.


Alkaline Diet, Peppermint Oil
Posted by Ines (San Juan, Puerto Rico) on 08/21/2016

I agree with you regarding the virus theory; hence MMS can also be a excellent option. Do you agree?


Alkaline Diet, Peppermint Oil
Posted by Marnie (Madera, Ca) on 01/08/2018

Have you looked into colloidal silver and lysine supplementation?


B12
Posted by Connie (Slc, Ut) on 06/02/2011

Hi Anna; Since I posted in both the TN and B-12 sections here, I feel I should write. When I search Earth Clinic for info, I check ailments sections, but I also use the search box because there is so much of an overlap with conditions and treatments here. I duly respect the Editors here, and I feel a little sheepish because I have not made filing easy for them. I also want to elaborate more about B-12 for you that you may best benefit from its use.

There are several ways and types of B-12 to try, and I haven't tried them all, but I'll suggest what has worked best for me. I haven't tried injectons. Some people require them even weekly. Cyanocobalamin is most often used, but it must be converted to active forms by the liver. Methylcobalamin is an active form of B-12 that is most often recommended for neuralgia. I take sublingual Methylcobalamin now daily. I divide a 5000 mcg. Lozenge into 4 parts and take a wedge 3 or 4 times daily. Even though B-12 is supposed to be stored in the liver and tissues for use by the body, mine doesn't do this. B-12 is also easily destroyed by gases and pollutants. This method doesn't make scientific sense, but it works for me. I did try another form of B-12, dibencozide, (adenosylcobalamin), another active form, but it increased the pain in my nerves, especially the mouth. I do recommend also taking a B-complex with sublingual Methyl-B-12, but try a smaller dosage to see if it is agreeable. Some of the B's can irritate nerves if the amount is too high. I don't have any more than 25-50 mgs. of B-6, for instance, as I've experienced nerve pain from it. I tried the "P5P" form of B-6 and also had pain. This may not apply to other people, but I caution people with any sort of nerve pain.

B12
Posted by Liz (Arizona) on 10/08/2015

Hi Connie - Thank you for the update. I am new to Earth Clinic and am glad I found this site. It's encouraging to see that some natural remedies have helped people find relief from TN pain.

I was diagnosed with TN in 2000. I was prescribed Tegretrol and have been taking it since then. I read somewhere on Google years ago about B12 injections but didn't have enough information it. So I chose not to try it. I did try the sub-lingual B12 which didn't seem to help, but I probably didn't take enough.

I have so many questions that I hope someone will be able to address.

  • How long did you take it before you started relief from pain?
  • Do you recommend a certain brand?
  • How many mcg should I start out with?
  • Does anyone know of a Naturopathic doctor in the Phoenix, Glendale Arizona area?
  • Has anyone heard of tried Rosemary Tea and Ashwagandha Oil to help relieve TN pain?

I have suffered with this horrible disease for 15 years, but I continue to have hope and pray that the Lord will lead me to my pathway of healing. I pray for everyone who has been diagnosed TN that you would discover your pathway of healing too.


General Feedback
Posted by Sonia (Green Brook, Nj) on 01/06/2011

I have constant pain on on my teeth where an dental implant was removed due to severe pain since removal pain is constant on my right upper jaw with radiating to cheek bone, constant pain and burning. Is this trigeminal neuralgia because I never felt shocking or numbness or tingling? I have taken Lyric , carbamazipine and afraid to do anymore dental work , I use a topical anesthetic compounded by my dentist which helps pain. I WANT CURE. PLEASE HELP I AM WILLING TO TRY ANYTHING AND WILLING TO SHARE RESULTS. PLEASE INCLUDE YOUR SYMPTOMS, PROPER THERAPY SO I CAN FOLLOW. WHAT IS TRIGEMINAL NEURALGIA HOW DID I DEVELOP AFTER DENTAL PROCEDURE AND HOW CAN I WARN OTHERS? THANK YOU AND MAY GOD BLESS YOU

General Feedback
Posted by Tom (Regina, Sk) on 01/08/2011

Sonia:

It looks like no one has replied to you, and since you're in dire straits I'll try to give you some information which unfortunately is not from first-hand experience until hopefully someone else replies.

First , to your question, here's a good medical description of true TN:

Physical damage to the nerve caused by dental or surgical procedures, injury to the face or infections.

Here's the trigeminal (aka semilunar) ganglia, splitting to each side:

http://img.medscape.com/pi/emed/ckb/neurosurgery/247017-1505614-248933-1879073.jpg

More images of same:

http://www.bing.com/images/search?q=TRIGEMINAL NERVE&go=&form=QBLH&scope=images&filt=all

I assume you are in too much pain to try things like oil-pulling, or even swishing some colloidal silver around orally?

It is very likely that you have nerve trauma, not an infection, and that the pain should decrease slowly as the nerves heal and rejoin. To that end, and I realize you may not be able to eat much if at all, you want to speed up the nerves healing with a few nutrients:

Can you afford, or do you even have access to, a naturo who can give you Vitamin B12 injections by needle? This is used by people with nerve problems, like MS patients and people with TN. If not available or too expensive, can you get a bottle of B12 sublingual 1000 ug or even 5000 ug tablets?

Do you have a basic lecithin supplement handy, in any form like granules, capsules, or bulk container? It has a small percent of sphingolipids in it, which are important in forming the nerve myelin (outer insulation sheath).

The above 2 will require NO chewing action, very important.

Hopefully it needs only time and nutrition to heal, since any oral surgeon doing additional work cannot guarantee that you won't be worse off than when you went in.

It would be good if someone with first-hand knowledge could reply to you while you're healing.


General Feedback
Posted by Charles (Yakutat, Alaska) on 06/07/2018

HI Zoe,

I am interested in your experience with the Omura protocol, my wife has been suffering with what the doctors call atypical trigeminal neurlagia. She had the microvascular decompression done in 2011, which didnt work. She had chicken pox as an older teenager and I am beginning to wonder if it wasn't activated during a root canal procedure done in 2003. If you wouldn't mind sharing more of the specifics of the omura protocol I would appreciate it. My wife is at her wits end and we have tried many of the ideas mentioned on the website but, nothing has been sustainable. I do believe it could be a virus because she says the pain seems to move to different parts of her face. Once again, thank God for this website and anything you could share with us on the specifics of the omura protocol would much appreciated, we live in a small isolated community in Alaska and it is very expensive to travel out to schedule some of these consultations only to not have them work.


General Feedback
Posted by Daryl (Kuala Lumpur, Malaysia) on 05/17/2016

LLLT laazer therapy can be replicated in the home with a ten dollar red laser pointer. 5 minutes twice/day on facial nerve ganglia and cervical spine. This works 90% time- no more stabbing pains; also have a chiro check vetebrae for misalignments; add fish oil and black cumin sedd oil. All work.


Laser Treatment
Posted by Daniela (Toronto, Ontario Canada) on 12/21/2010
5 out of 5 stars

My mother was diagnosed with TN over a month ago. She received treatment and is almost pain free after two weeks. She was treated at the lasermed centre in Myrtle Beach. They have been helping patients become pain and drug free from TN since 2006. She was in so much pain she wasn't eating, sleeping or drinking because the pain was unbearable. The treatment is non-invasive and I spoke to numerous patients in the clinic on a daily basis that were getting tremendous relief from the treatments. The laser is FDA approved and there are no short or long term side effects. If you are suffering with this disease you have nothing to lose, please they can offer you hope and I witnessed it with my own eyes. Don't suffer with this disease any longer than you have to. The medication they prescribe is horrible and the surgeries were not an option for us.

Laser Treatment
Posted by Daniela (Toronto, Ontario Canada) on 02/13/2011

Hi Herbert,
The clinic that helped my mother is in Myrtle Beach they have a website lasermedcenter. com and they have a facebook page www.facebook.com/#! /pages/Laser-Med-Center/119990178056852

My mother is Carmela and you can view her testimony either on the facebook page or on the website. Give them a call and they will answer all of your questions about the treatment.

All the best!

Daniela


Laser Treatment
Posted by Leslie (Memphis, Tn) on 08/11/2011

I suffer from TN. After going to 3 Dentist and 2 Oral Surgeons because I thought it was my teeth, I googled pain in the face only to find TN. I went to my MD and he immediatly knew what it was. I have been taking Gabapentin. Started out 300mg once a day, then 3 times a day, now 600mg 3 times a day. The pain started out in my lower teeth, then upper teeth, it moved to my check and eye. All the pain I have read about describes exactly what I feel. Pain washing my face, brushing my teeth, talking, sleeping. From the shocking pain to the burning sensation in my teeth. I just read about the Laser Med center but was curiuos as to the price. Could you give me a price range. Also, I see that you have to stay there two weeks in order to get the treatment for 30 min twice a day.... Thanks to all for sharing your treatment. I keep seeing B-12 and Omega 3, but how much. I too am willing to try most anything but surgery and more drugs.


Setting Boundaries
Posted by Jackie (UK) on 03/12/2009
5 out of 5 stars

Hi I also suffered trigeminal pain really terrible .. I noticed it was linked to a pattern of being weak in relationships (not standing up for myself) ... everytime it happened I had a flare up. I had to become more empowered and everytime I started saying No to others .. the pain faded away. Very rarely now do I feel a twinge and I always know that I must be giving my power away normally because I don't like to upset others. I can't afford that luxury now!

Vitamin B Depleted by Flax Seed Connection
Posted by Debbie (Melbourne, Australia) on 07/26/2011

Pete, Saturated fats are actually needed by the body. The brain for one needs saturated fats. It is made up of saturated fat. Here is a youtube video on cholesterol and saturated fat and why we need it. I recommend you watch it. http://www.youtube.com/watch?v=M9HFZT5x9Xc


Vitamin B Depleted by Flax Seed Connection
Posted by Kenbkb (Glen Ellyn, Il) on 08/13/2011

I have been healed of this brutal affliction, trigeminal neuralgia, after suffering from it for over 10 years. The procedure was called a Balloon Gangliolysis. Anyone wanting to receive more information please contact me at kenbkb(at)wowway.com.

I realize how incredibly painful this is but I am living proof there is a remedy for it. Regards,

Ken


Vitamin B Depleted by Flax Seed Connection
Posted by Kimberly Ann (Usa) on 05/16/2018

Look for info and groups on AIP diet, auto immune protocol. Sounds similar to what you are describing


Peppermint Gum
Posted by Dee (Durham, Nc) on 02/21/2011

I don't understand why the mouthwash sometimes works, but I can concur with the effects of peppermint mouthwash. At one point, this became a very simple remedy for me, but over the years seems to have become less and less effective. I was diagnosed with TN in my mid-twenties and have been under a doctor's care on and off for more than twenty years.


B12, Omega 3, Facial Tissue Stimulation
Posted by Patty (Brockton, Ma) on 06/14/2011
5 out of 5 stars

b12 is important so is Krill but what I found that got rid of TN "face pain" after 40 years was Cervical Chiropractor. thank God I tried the Chiropractor!!


Peppermint + Cistus Essential Oils
Posted by Mama to Many (TN) on 05/11/2019
4 out of 5 stars

Hi! I think I have been dealing with occipital neuralgia. I have always been a headachy person but the intensity and frequency of my headaches was become quite a burden. I would call them migraines and they would last for days. And maybe they are migraines. I still don't have an official diagnosis in spite of being more proactive than usual to get medical help and a diagnosis. Anyway, my headaches would begin in my neck and I would have pain at the base of my skull. It radiates to behind my eyes. When severe I begin to have numbness in my face. One day, out of the blue, I had a shock pain in my neck. Well, that got my attention. I know a couple of people with trigeminal neuralgia and that was my first thought. But when I looked it up, I realized that the shock wasn't in the right place for that. But there is a nerve in the neck, where the shock was, and you can have occipital neuralgia. My chiropractor thinks the root problem is arthritis in my neck. I had significant inflammation in my neck when she last adjusted me. I started taking glucosamine at her suggestion a week ago. We shall see if that helps. But I have been doing something else that has been helping a lot and i have had very little pain in the last couple of weeks even though I have been under severe stress. I have an essential oil blend called "Sciatica" from Hopewell oils. It contains peppermint and cistus. I have used it on my lower back with success for occasional sciatica. I put this oil on my neck along my spine and at the base of my skill and anywhere else on my neck that feels painful. I do this at the first sign of pain and repeat every couple of hours. It really seems to help the pain and keep a headache from coming on. Meanwhile, the chiropractor has also given me exercises for my neck. I have also done a couple of youtube stretches designed for occipital nerve pain. If I find anything else that helps, I will report back! ~Mama to Many~


White Radish, Ginger
Posted by Jeanene (Lyman SC) on 07/22/2021

Please tell me how often I should drink this and for how long a time period. What do you suggest be done with the radishes afterwards? Any help you can provide is greatly appreciated. Thank you.


Ear Infection as Possible Cause
Posted by Reno (Memphis, Tn) on 01/26/2017

PS to Ear Infection as Possible Cause:

This is one of the best homeopathic home remedies ever:

If you have or suspect an ear infection and can't get antibiotic drops for any reason, take a small cup of fresh warm urine, turn the affected ear sideways or lie down with the affected ear up, fill the ear with urine and pop a cotton ball gently into the ear. Try to keep the ear upright for at least an hour and keep the cotton in overnight if possible, changing the urine daily until infection is cured.

Relief will be felt soon and this really works almost or as well as antibiotics...

And, the remedy is free and you don't have to worry about running out!

Also great for use on blisters and sunburn (application method known)

medical ingredient (contains Uric Acid)


Ear Infection as Possible Cause
Posted by Reno (Memphis Tn) on 01/27/2017

P.S. this remedy also may facilitate the healing of pimples, pustules, and between the toes fungus or any external fungus. For pimples and pustules gently wash the area with water and a little body wash or gentle hand soap, rinse and pat and air dry well. Soak a cloth with urine and press it down on the affected area making sure the affected area is wet. Leave on at least an hour. Apply as often as possible until area is clear. Do not use cologne or perfume on area, and if on face turn your back to the shower when you shampoo and let the used shampoo run down your back when you rinse then scrub back with a back brush. Many pimple problems are caused by hair and scalp oil remaining on the face after shampoo. (I wish I had known that when I was 15 or 16)...

For between the toe fungus soak toes in urine for 1 hour a couple times a day if possible until fungus goes away...


Ear Infection as Possible Cause
Posted by Reno (Memphis Tn) on 02/04/2017

Hi again fellow TN sufferers,

Everything I have posted to you I have done and haven't had an attack for 3 weeks. Until Tonight. Being Saturday night, the eve of Super Bowl 51, and after a lot of hard work, I thought I could reward myself a couple of shots of rum. WRONG! Within an hour I had an attack.

I knew this was my so called "period" for attacks and I should have known better.

So I am advising that you give up alcohol forever. I know it's like your best friend but actually it's your worst enemy. I have known this for years but from time to time I revert to the belief that there is something in the bottom of that bottle when there is nothing but heartache.

So if you have an attack and have had a drink in the last hour this could be your "trigger", or one of them....


Prolotherapy
Posted by Faerie Dogmother (Hawaii) on 01/06/2017
5 out of 5 stars

Prolotherapy & PRP. If your trigeminal neuralgia was caused by an injury or accident this might indeed be exactly what you need. It's a natural healing therapy done most frequently by Physiatrists, natural doctors (NDs) and sportsmedicine MDs. One of the leading practitioners in the world is in Hawaii (Hilo). It's premise is to heal.


Acupuncture
Posted by Faerie Dogmother (Hawaii) on 01/06/2017

Another great solution: Prolotherapy & PRP


Acupuncture
Posted by Shona (Nottinghamshire) on 02/16/2017

Hi there I think I have just developed TN. Janet it would be great to know which acupuncturist you saw id whether you think all can treat this nerve? and how you were first formally diagnosed with it. Thanking you. Shona.


Acupuncture
Posted by Donna (Alaska) on 03/29/2021

Hello Lilli Ann, can you tell me how you are doing? I posted 8 years ago, had good look with the protocol I suggested. But now I am suffering from a relapse for 1 1/2 years, tried everything that helped me before. Resorted to meds 9 months ago. But now it is hit with such a violent vengeance that I am totally desperate. Your protocol looks interesting, I'll try anything now, including cutting off my head. But how are you doing now? It's four years later... Thanks for answering me. You could answer me privately if you want...thanks so much. Donna


Antioxidants, NMDA Antagonist, Diet
Posted by Nir (Israel) on 01/02/2017

You are so right! B12 aggravated my ATN also.

Seems many things that helps TN can aggravate ATN :(


Low Insulin Diet
Posted by Bee (Phoenix) on 02/02/2016

I have had Trigeminal Neuralgia for years, but have experienced extreme, immobilizing pain in the last three years.

I have been living on a low carbohydrate - keto diet in order to keep my blood sugar low, previously not connected (or so I thought) to TN. I'm, now, seeing a connection to high(er) insulin resulting in inflammation and flare ups of TN.

Now, being even more specific, Saturday I ate non gluten grains (not part of my regimen, but a treat), within 10 hours I had an episode, which is still happening today (3 days later). I'm not certain these are connected, however, I'm looking at all the aspects I can affect without drugs/surgery.

It has been researched that high insulin results in inflammation. Has anyone had experience with diet control resulting in TN remission?

If so, what are you doing and what has been your results.

Thank you, Bee


B12
Posted by Steve (Nevada) on 10/16/2015

Has she had Vit D3 levels checked. Lots of people with chronic pain issues are usually low in D3. 10,000 IU/day is a good start. Many hospitals will prescribe 50,000IU of D3 when levels are low. If they are low D3 can helpful on so many levels.


B12
Posted by Sara (Texas) on 10/17/2015

Thank You Steve, She will check her D3 levels and also thanks for the information on how much to use.


Vitamin B1 (Thiamine)
Posted by Alice (Europe) on 03/28/2018

@ Gary (North Carolina)

Are you still doing ok on the thiamine and how much do you take?

Thank you and please stay painfree,

Alice


B12
Posted by Anon (Usa) on 07/22/2015

Sandy, so very happy for your wonderful discovery to help your daughter. Thank you for finding a solution and sharing on Earthclinic.

Wishing you and your family all the best!


B12
Posted by Om (Hope, Bc Canada) on 07/23/2015

Dear Sandy, I would like as well join in congratulating you on your effort and success in helping your daughter. I have previously read that other people contracted this disease through dental root canals and one man could not take it any longer...

So it makes me very happy. Namaste, Om


B12
Posted by Sara (Texas) on 10/15/2015

My mother has trigeminal neuralgia also. The things that have helped her most are: B-12 (METHYLCOBALAMIN) form, it is absorbed better. Do not use the cyclcobalamin form, as it is not absorbed well. 5000 mg tablet is what she uses. Also recently, trying fish oil with the B-12. No Caffeine, No sugar, No alcohol. No foods that have a stimulating effect, such as mushrooms.

We have noticed over several years now, that her pain flares up when the seasons change from hot to the cold. We wonder if barometric pressure may also affect it. Every October here in Texas where we live, when the weather begins to change from hot to cold, she starts having the pain and then it flares up again when season goes from cold to hot.


Interferon
Posted by Natural Remedy Queen (Sarasota, Fl) on 06/24/2015
5 out of 5 stars

I suffered from Trigeminal Neuralgia on and off for about 15 years. I spent thousands of dollars going to Holistic Healers and trying natural remedies. The cause of the condition is Herpes. FINALLY, I found Hannah Kroeger's remedy for Herpes -- Interferon.

When you feel a bout of Trigeminal Neuralgia coming on -- do these 3 things:

1) Eat Interferon 3 meals a day until it goes away. The recipe for Interferon is: 1 cup cottage cheese mixed thoroughly with either 2 tbsp of walnut or almond oil.

2) At bedtime, take a double dose of an over the counter non-chewable antacid (Cimetidine). I use Tagamet.

3) Do not talk about the condition to anyone. Keep it to yourself.

Using these 3 steps, I have not suffered from Trigeminal Neuralgia in three years. Whenever I feel a tinge....a warning that it might be coming on, I follow these steps, and it backs off. Sometimes I need to do this for a few days. Luckily, I enjoy cottage cheese!

Interferon
Posted by Heidi (Michigan) on 09/01/2015

When you eat Interferon for treating Trigeminal Neuralgia, where do you get it? Can it be bought over the counter? What is it?

Thank You! Heidi


Zapper
Posted by Prioris (Fl, US) on 03/26/2015

here is a link to the second part of my comments

https://www.earthclinic.com/remedies/zapper.html#herpeszoster_147972


Cold Laser
Posted by Donna (Alaska) on 10/28/2015
5 out of 5 stars

Thanks Lindajb...that does renew my confidence in encouraging people to try laser therapy. Mine did stop after the therapy in M beach...although pricey, as you said. It is worth a try if you can find someone near who has that type of laser. Interestingly mine started too after a dental procedure, and also on the opposite side from the dental work. Strange. But you're right about the stress.


Acupuncture, Multiple Remedies
Posted by Karenl (Pittsburgh, Pa) on 01/05/2015

What types of doctors are you going to ~ I am trying to find a holistic doctor to treat and heal this.


Acupuncture, Multiple Remedies
Posted by Joe (Bay Shore, New York) on 01/30/2015

I have been suffering with upper branch trigeminal nerve pain since a shingles outbreak Aug. 2013 . I had Acupuncture 2 times ( yesterday and today ) along with a small Lidoderm Lidocaine patch above my eye where the breakout first occurred . The Acupuncture gave me relief .


Acupuncture, Multiple Remedies
Posted by Greg (Tucson, Az) on 07/26/2015

I had microvascular decompression surgery performed, and it made TN WORSE. Now my hearing is gone, and zingers are worse.


Acupuncture, Multiple Remedies
Posted by Pris (California) on 08/06/2015

Diagnosed with trigeminal neuralgia 9 years ago. After 3 years of pain I opted for the Gamma Knife radiation. I was pain free for 6 years. Pain is coming back again so I am requesting to have procedure done again.


Acupuncture, Multiple Remedies
Posted by Elena (Philippines) on 02/16/2016

I've had this pain since 2010, but I was just diagnosed last 2014 because of financial problem. Gamma Knife was already introduced here in Philippines. But it was so expensive. It is more painful to know that I can't afford myself to be cured.


Acupuncture, Multiple Remedies
Posted by Sharon (Oregon) on 08/19/2015

August 2,2015 I fell from the top of a step ladder and smashed the corner of my eye and cheek bone on the corner of a dresser. Cut to the bone. The nerve pain is so strange. When I press on my brow my teeth hurt. The pins and needles, burning and stabbing pain is very distracting. I though I had fractured my face but CT scan said no. Now that I know it's trigeminal nerve damage I at least don't think my teeth are fractured. What do you think of Biogetica's Freedom Kit with OM13 TNeuralgease Formula? I found it here whilst educating myself on this pain. I'm sure my concussion is some of it. But the nerve pain is something else. Really feel for all of you here that are experiencing this. ugh...


Acupuncture, Multiple Remedies
Posted by Steve (Nevada) on 11/06/2015

You may want to try a zapper which kills the virus with micro current. Therapeutic doses of olive leaf extract would be very helpful.


Acupuncture, Multiple Remedies
Posted by Joe (Bay Shore Ny) on 01/30/2016

If anyone replies to my address please put reference to PHN otherwise I won't open E-Mail. I am the 2nd. person listed above from top .

I am currently dealing w/ Ulcer and did my usual reading, treatment , diet , exercise etc. that may help , as it turns out I've been here before regarding Vitamin B12 .

My PHN developed 6/2013 and still continues, as it continues I'm noting the pain is less frequent and severe , I've tried most any med along with sleeping w/ a cold compress placed on head . I fashioned a water / ice bag to fit the contour of area placed . I lined it w/ a plastic bag to avoid any leakage , apparently minerals found in water supply ate through the first bag causing me to wake from the H2o Dripping , that doesn't occur w/ lining of bag .

After reading about Ulcer Remedies / Help there was a mention of Vitamin B12 , the Methylcobalamin type , there is another B12 , the Cyancobalamin type , that converts into Methylocbalamin , I first took a pill ( Methy type ) last night 1000mg upon waking this morning , the V5 Upper Branch Trigeminal Nerve Pain was less than the most recent past ( THANK GOD! ) here it is 14 hrs. later the Nerve Pain is still " in check " .

I can only surmise the Cold Compress I put on head nightly lessens most any inflammation of any affected blood vessel close to skin.


Acupuncture, Multiple Remedies
Posted by Mrs. Jones (Co) on 04/26/2016

Hi Lynn

We too live in CO and I was hoping that you could refer what osteopath you went to? My dad is dealing with this now and I'm hoping to find him some options for relief. Thanks!


Acupuncture, Multiple Remedies
Posted by The Clyde (Ohio) on 07/12/2016

I read your letter. My thoughts were the same, suicide. It is stated in the bible thy shall not kill thy self. My thoughts were the same, I could not figure out how to keep my soul from burning in hell. Brother/sister, all I can tell you is welcome to hell on earth. Now let's team up and kick the thoughts of suicide, and hells together. I am at 14 months of 24/7hours of pain everything from face, top of head down to c-6 vertabea. This tries to help macaroni salad with spinach & soften the broccoli with steam mix in big bowel eating calms the pains. fruit salads with red grapes watermelon cantaloupe pineapple and salted light.


Acupuncture, Multiple Remedies
Posted by Patz (Tennessee) on 07/18/2016

Mages, I am so sorry for the loss of your loved one. I just want you to know that you have helped me and probably many others by telling your story. I was already against the medicine and also the surgery. I have heard mostly bad about both of them. It also helped me to know that his pain wasn't so bad in the beginning.

I was diagnosed sometime in the past year. I didn't believe it at first b/c my pain wasn't as bad as people described and also b/c it had come on gradually. I also have a horrible balance problem which has never been corelated with TN. Then I began to believe it when my pain worsened quite a bit and was brought on by drinking cold milk too fast. My pain was also much worse last night when trying to sleep. After sleeping a few hours I awoke to throbbing pain all over my head which felt like my brain had swelled. I am still not sure I don't have a tumor even though the neurologist says I don't after an MRI. I didn't have the contrast dye and wonder if they can tell for sure.

Your post lets me know to vigorously search for the right answer and to not spend time on anything else. I am looking into methyl-b12 and trying to learn all about that possibility of healing.

Again, I am so sorry for your loss and I see that it has only been two months. Thank you.


Acupuncture, Multiple Remedies
Posted by Rose (Malaysia) on 12/14/2016

Dear mages,

Where did your loved one undergo the procedure?

I am thinking about the gamma knife and looking for the right surgeon. Please let me know asap.


Acupuncture, Multiple Remedies
Posted by Linda (Ohio) on 02/02/2017

The EFT is a sure fire winner. Give it a chance. On line its free by Gary Craig. Do not fall for the pay ones. Read as much of the beginning to understand what he is saying, then move on to learning the receipt on a page. I sometimes forget to use it, but as soon as I remember I do it, and sure enough the pain will decrease then maybe have to do it a seconded time. but it always works.


Vitamin D
Posted by Jes (Usa) on 01/04/2015

Dear Bee,

I read your post last night and have been researching since. I've also been praying about this, and believe I am supposed to try it. I DO have a diagnosis of both MS and Trigeminal Neuralgia, and the TN pain has been unbearable for the past four months.

In addition, I know my Vitamin D levels have been low in past years, and at one time I was on 10,000iu a day and still didn't max out my Vitamin D blood test numbers.

I don't see a neurologist anymore, as my Primary Care Doctor is fantastic, and much more naturopathic than any neurologist I've ever seen. My Doc supported me in taking 10,000iu of Vitamin D, and it's when I ran low and didn't refill that the TN really set in.

After reading your post last night, I put all of the pieces together. I'm writing to ask if you would be willing to share with me how much you took on a daily basis. If I weren't desperate from the pain, I wouldn't bother you. However, I deeply appreciate your consideration.

I'm looking forward to being able to praise God for a miracle, too. I praise Him for so many other things on a daily basis, even through the pain. I so hope that I might know what it is to be pain and pain medicine free, though.

I'm already on a gluten-free; sugar-free; and 90% dairy free diet. I can cut the other 10% out with no problem.

Many thanks for your consideration.


Vitamin D
Posted by JM (Perth, Western Australia ) on 11/25/2021

Hi Bee, I know this is an old post but I'm wondering if you get this could I correspond with you directly? The Hotmail email you originally posted on this site is no longer valid. Even if you'd rather not have direct contact -and you do get this - I'd love to hear how you are going - hopefully well!

Thank you for sharing the information about vitamin D therapy. It really gives me a lot of hope and I've been doing lots of investigating since reading this.

Cheers JM


Craniosacral Therapy
Posted by Angela (Toronto, Ontario) on 11/24/2014
4 out of 5 stars

Hi there,

My mother (69) has trigeminal neuralgia and has found some relief with Craniosacral therapy.

Thanks,

Angela


General Feedback
Posted by Anita (Fayetteville, Arkansas) on 06/10/2014

Trigeminal Pain: I get the icy cheeks, pain in head... But does anyone get the very sore head - scalp where I can't even find a good spot to sleep because of the soreness on my scalp? Is this TN also?

General Feedback
Posted by Leonardo (Quebec) on 06/30/2021

Coconut oil by mouth or locally applied?


Trigeminal Neuralgia Diet
Posted by Francine (Vermont, USA) on 10/10/2014

Hi, I am suffering from TN for 10 years...I am glad to find this site...just started tonight...not able to sleep (too much pain). It started after the removal of a meningioma tumor in september 2004....the three branches are painful. Please help me here someone...the only thing I know is the meds given by too many doctors over the years make me so sick that I cannot even get out of my house....My younger children (12 and 9) never saw me healthy....i was pregnant with my little one when they remove the tumor...My oldest daughter(18yrs) barely remember...I am so sad and depressed to have loose all these years to be just a spectator of their lives and the life of my husband. May someone can tell or suggest me where I should start with....i am sorry to complain but I am at the end of my rope...


Trigeminal Neuralgia Diet
Posted by Nanowriter (Hotspot, Texas) on 10/10/2014

Francine, you may have a viral infection in the nerves. Dave Thomas uses colloidal silver topically and internally for viruses. You can look on here for his protocols against Bell's palsy, which seems similar to TN.

I like to use vitamin C--make up a paste with it and some vitamin E and place it over the painful area. Other good antivirals are lemon balm, olive leaf extract and lysine (1000 mg 3x per day).

I would just start taking different antivirals orally as well as experiment with some topically and see what makes the pain go away.


Trigeminal Neuralgia Diet
Posted by Mama To Many (Tennessee) on 10/10/2014

Dear Francine,

I am sorry you have had this pain for all these years and with little ones to raise...

If I could add a couple of things to Nanowriter's great advice...

Mullein Root is suggested by a couple of herbalists for TGN. It isn't easy to find, but I found some here to use for another purpose and I think it is a good brand:

https://www.beneficialbotanicals.com/tincture-information/mullein-root.html

I would also consider adding extra virgin coconut oil to your diet, up to 3 Tablespoons a day.

Please keep us posted on what you try and how it goes. I hope you will be feeling better very soon.

~Mama to Many~



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