My mother was diagnosed with TN over a month ago. She received treatment and is almost pain free after two weeks. She was treated at the lasermed centre in Myrtle Beach. They have been helping patients become pain and drug free from TN since 2006. She was in so much pain she wasn't eating, sleeping or drinking because the pain was unbearable. The treatment is non-invasive and I spoke to numerous patients in the clinic on a daily basis that were getting tremendous relief from the treatments. The laser is FDA approved and there are no short or long term side effects. If you are suffering with this disease you have nothing to lose, please they can offer you hope and I witnessed it with my own eyes. Don't suffer with this disease any longer than you have to. The medication they prescribe is horrible and the surgeries were not an option for us.
(Curacao, Neth. Antilles)
(Toronto, Ontario Canada)
(Las Vegas, Nevada, United States)
(Las Vegas, Nv)
(Las Vegas, Nevada)
(Weston. Colorado. Us)
(New Market, Va)
I have had Trigeminal Neuralgia for years, but have experienced extreme, immobilizing pain in the last three years.
I have been living on a low carbohydrate - keto diet in order to keep my blood sugar low, previously not connected (or so I thought) to TN. I'm, now, seeing a connection to high(er) insulin resulting in inflammation and flare ups of TN.
Now, being even more specific, Saturday I ate non gluten grains (not part of my regimen, but a treat), within 10 hours I had an episode, which is still happening today (3 days later). I'm not certain these are connected, however, I'm looking at all the aspects I can affect without drugs/surgery.
It has been researched that high insulin results in inflammation. Has anyone had experience with diet control resulting in TN remission?
If so, what are you doing and what has been your results.
Thank you, Bee
Hi everyone, I suffer from atypical trigeminal neuralgia, for which I take Lyrica, antidepressants, sublingual B12 and magnesium.
I've recently added MSM to my daily regime because I read many positive reviews on this supplement. I have since noticed that my pain has gone up in intensity, and I started getting pain also in my knees and arms and I pant like an old dog when I do any simple physical activity (I am 33 y.o. female and used to be in good shape til ATN hit me last year). I take the powder form, 1 teaspoon in a glass of water before bedtime. Maybe it's too much? How long does it usually take before one notices any positive change?
Many thanks for your replies, Oldriska
(Louisville, Ky, Usa)
Hi Sonia; After reading Tom's post to you and the links he provided, I realized that I have had TN, both classic and atypical in the past, and that I may be able to offer some help here. My symptoms were in the lower right jaw, and did result with shocks that made me gasp and jump. In years prior to the shocks, I had TMJ, bruxism, inflammation, and swelling that radiated to the sinus, ear, and neck areas. I've recently had a flare-up, so I've had to shift my approach somewhat. The symptoms that you describe can be called Atypical TN, although some of these neural condition terms can get technical. While there may be a little relief in having a name for this condition, we need to understand the cause. And Even though some Dentists, et al. , can worsen the problem with their Clumsy and primitive procedures, We've ended up in their chair because of health problems. ( Its certainly not that we would choose any of this. ) It is beyond my range to decide whether there's been wrong doing.
Fortunately, I can pass some info about what's brought relief from this condition. There is inflamation and there is infection. Reduce acids that are causing this. Because of Ted's posts to us here , for which I'm so grateful, I've realized repeatedly that so very much of my nerve pain, neuropathy, neuritis, neuralgia, neurosis, etc. , is a direct result of too many acids in the wrong place. This procedure is one of the most difficult ones I've tried. Its the best. I call it "acid accounting". (sorry its corny, maybe someone more poetic can improve this) Simple sugars of course are a cause, but I've had to press this much further. I'm one of the folks that has to suspend or minimize the use of ACV, citrus, citric acid, and even citrates for now. I keep finding new ones, most recently stearic acid, high amounts are found in chocolate. (sorry y'all) While we need good acid in the stomach, colon, vagina, etc. , we need to find ways keep acid in the right place, stop leaking it, and flush excess acid.
One of the kidneys many jobs is to rinse excess acid, so I recommend that we treat kidneys well. (dandelion root and leaf, marshmallow root, nettles, and lots of celery. ) Another kidney function is to balance electolytes. (there are also Other endocrine and exocrine glands that help with this, but the kidneys are a master. ) Magnesium supplementation stopped the shocks and helped much of the pain and inflammation. 6yrs ago, I began with 400 to 600mgs magnesium citrate In divided doses daily. Now Ive switched to Epsom Salts, 14 to 12 tsp. Daily. (It is 39% elemental magnesium) I also recommend a high potassium diet. Try to get 8grams daily or more. That's alot of chewing. Make vegetable juices and soups. Have some fruits with care, slow the delivery of sugars with a light Saute in coconut oil and sea salt. Get a nutrition almanac and search for high potassium foods. (careful with citric acid , high in tomatoes, simmer well. )
My best results with mouth infections have been with an iodine rinse. It may need to be rather strong, 6 drops 2% lugol's in 2oz. Water swished and held , like oil pulling For 1 to 3 minutes 2 to 4 times Daily. I also still use goldenseal tincture, but iodine goes deeper to the root. Someone posted that their TN was relieved with the herb bark called "toothache tree". (zanthoxylum clava, and zanthoxylum americanum), commonly called, prickly ash. Thanks Y'all, Connie
(North East, Md, Usa)
Sorry for using this way of contacting you, but I did not see anyware to place a post. So my question is do you know if this Oil Pulling has helped any one with Trigeminal Nerve disorder?
Hi! I think I have been dealing with occipital neuralgia. I have always been a headachy person but the intensity and frequency of my headaches was become quite a burden. I would call them migraines and they would last for days. And maybe they are migraines. I still don't have an official diagnosis in spite of being more proactive than usual to get medical help and a diagnosis. Anyway, my headaches would begin in my neck and I would have pain at the base of my skull. It radiates to behind my eyes. When severe I begin to have numbness in my face. One day, out of the blue, I had a shock pain in my neck. Well, that got my attention. I know a couple of people with trigeminal neuralgia and that was my first thought. But when I looked it up, I realized that the shock wasn't in the right place for that. But there is a nerve in the neck, where the shock was, and you can have occipital neuralgia. My chiropractor thinks the root problem is arthritis in my neck. I had significant inflammation in my neck when she last adjusted me. I started taking glucosamine at her suggestion a week ago. We shall see if that helps. But I have been doing something else that has been helping a lot and i have had very little pain in the last couple of weeks even though I have been under severe stress. I have an essential oil blend called "Sciatica" from Hopewell oils. It contains peppermint and cistus. I have used it on my lower back with success for occasional sciatica. I put this oil on my neck along my spine and at the base of my skill and anywhere else on my neck that feels painful. I do this at the first sign of pain and repeat every couple of hours. It really seems to help the pain and keep a headache from coming on. Meanwhile, the chiropractor has also given me exercises for my neck. I have also done a couple of youtube stretches designed for occipital nerve pain. If I find anything else that helps, I will report back! ~Mama to Many~
For the Trigeminal Neuralgia heading, I wanted to mention that I've had ATN (constant pain in T2 and T3) for nearly three years due to an incompetent dentist. Prior to diagnosis, I was trying all kinds of things to stop the pain. I discovered just about any kind of peppermint gum (preferably the kind with a hard shell initially) will stop or greatly reduce the pain within a minute or two. As long as I can taste the peppermint flavor as I'm chewing, the pain is reduced. As the flavor goes away, the pain comes back. Now that I've been diagnosed and am on medications, I still chew gum in the afternoons when the pills decide they're not going to work anymore! This is very helpful when I'm driving somewhere and would prefer not to cry. Oh, peppermint flavored mouthwash does the trick, too. Do some major swishing for at least two minutes, and afterwards, your mouth will feel a lot better.
Prolotherapy & PRP. If your trigeminal neuralgia was caused by an injury or accident this might indeed be exactly what you need. It's a natural healing therapy done most frequently by Physiatrists, natural doctors (NDs) and sportsmedicine MDs. One of the leading practitioners in the world is in Hawaii (Hilo). It's premise is to heal.
Hi I also suffered trigeminal pain really terrible .. I noticed it was linked to a pattern of being weak in relationships (not standing up for myself) ... everytime it happened I had a flare up. I had to become more empowered and everytime I started saying No to others .. the pain faded away. Very rarely now do I feel a twinge and I always know that I must be giving my power away normally because I don't like to upset others. I can't afford that luxury now!
(Pittsfield, Massachusetts, Usa)
Last year, my horse was diagnosed with trigeminal neuralgia which is very rare in horses. I tried many types of medications and functional devices. Spirulina was a miracle "cure." I began to see the results within 48 hours of giving it to him. I slowly ramped up the dose over several weeks. My horse is doing great, happy, rideable again. I was very close to having to let him go due to the extreme pain and distress he was experiencing.
A few months ago, I was diagnosed with geniculate neuralgia which is similar to TGN except that a different nerve being impacted. Having seen the amazing results achieved by giving my horse spirulina, I tried it.
It substantially reduced (by ~ 80%) the intense pain and other symptoms. I am taking 10,000mg per day, 5000am and 5000pm though splitting the dose into 3 would probably be better. I take the same spirulina as my horse which is made by Springtimeinc. They test their products and stand behind them if any issues arise.
Try it!! You have nothing to lose and everything to gain!!
I have had this trigeminal neuralgia for too long. The side of my face was a piercing electrical shocking feeling, that would send me flying. I believe that this had some bearing on high blood pressure. Because of other health issues, I started taking 1000 mg fish oil, magnesium citrate, 500 mg, Liquid B12, and Phosphatitdyl Serine, 100 mg, before going to bed. . I am almost totally without pain. I had gone to two dentists, because it appeared it was pain stemming from teeth. Not so. I have had luck with this regimen, that I purchased at the health food store. I really believe that the phosphatidyl serine is the curing factor that has helped. My theory is that this being a facial disorder, and phosphatidyl may just heal the nerves causing the pain. Try this for some help!! My blood pressure is also stabilized. Good luck!!
(Hilton Head, Sc)
I am a patient advocate with the Trigeminal Neuralgia Association. I would like to bring attention to a recently discovered diet for stopping TN pain. Patients in 10 countries became pain free by dramatically reducing the saturated fat in their diet. Dr. Narayan Verma at the 2012 Annual Meeting of the American Academy of Neurology, presented the results of a 14-year study establishing the efficacy of this therapy. Dr. Verma is a professor of neurology at a medical college, in private practice, listed in Who's Who, and authored 70 peer-reviewed papers. Failed percutaneous procedures, radiation, or the MVD surgery do not necessarily reduce the diet's effectiveness. It takes less than a month to know if the diet is effective. For a 10-page report with diet instructions, the amount of saturated fat in 140 foods, and recipes, email a Post Office mailing address to ([email protected]). The report is free to any country. The American Heart Association recommends this diet.
I am in acute pain from trigeminal neuralgia-treatment. No benefits from allopathic since 10 days.
Better But With Side Effects
Just wanted to warn people: after my 4th adjustment from the cervical chiropractor, I had about 14 shocks in a 3 hr period following. I think I irritated my nerves more and sometimes things have to get worse before they get better--but I don't want to continue. For some people, this manipulation may work, but be aware that it can be painful at first, for Trigeminal Neuralgia.
Upper Cervical Chiropractics
I was trying the oral B12 B complex (the active forms) but after awhile, the shocks started coming back quite alot. I am back on injections for now, which seem to help completely. But I have also found that going to a upper cervical chiropractor may help many people with TN. It helped me immediately.
The upper cervical chiropractors are highly skilled in the spine and neck regions. A slight adjustment (hardly noticeable) puts your neck straight and then the spine follows. This allows the nerves to work properly and must have moved my nerves off the wrong portion on the skull where the Trigeminal Nerve lies. All I know is that it stopped the shocks. I have to be careful what I do to my neck now, and I follow the doctor's advice. I will still take the B vitamins, but because of a malapsorption problem, my body just doesn't assimilate it as well as it could. It maybe a year before my body heals from the gluten I have been giving it. I am very gluten intolerant and that can cause your body to have problems storing and activating nutrients.
Look up NUCCA, which stands for National Upper Cervical Chiropractors Assocation and see if you can find a referral list for one in your home area. Then don't wait, but go. It is the best decision I ever made. There is no painful period afterwards, either, as you hear there is from osteopathics. Just relief... Some people may take more than one adjustment for total relief... but I think it works great for this affliction.