Natural Trigeminal Neuralgia Treatment

Low Insulin Diet
Posted by Bee (Phoenix) on 02/02/2016

I have had Trigeminal Neuralgia for years, but have experienced extreme, immobilizing pain in the last three years.

I have been living on a low carbohydrate - keto diet in order to keep my blood sugar low, previously not connected (or so I thought) to TN. I'm, now, seeing a connection to high(er) insulin resulting in inflammation and flare ups of TN.

Now, being even more specific, Saturday I ate non gluten grains (not part of my regimen, but a treat), within 10 hours I had an episode, which is still happening today (3 days later). I'm not certain these are connected, however, I'm looking at all the aspects I can affect without drugs/surgery.

It has been researched that high insulin results in inflammation. Has anyone had experience with diet control resulting in TN remission?

If so, what are you doing and what has been your results.

Thank you, Bee


B12
Posted by Sara (Texas) on 10/17/2015

Thank You Steve, She will check her D3 levels and also thanks for the information on how much to use.


Vitamin B1 (Thiamine)
Posted by Alice (Europe) on 03/28/2018

@ Gary (North Carolina)

Are you still doing ok on the thiamine and how much do you take?

Thank you and please stay painfree,

Alice


Interferon
Posted by Natural Remedy Queen (Sarasota, Fl) on 06/24/2015
★★★★★

I suffered from Trigeminal Neuralgia on and off for about 15 years. I spent thousands of dollars going to Holistic Healers and trying natural remedies. The cause of the condition is Herpes. FINALLY, I found Hannah Kroeger's remedy for Herpes -- Interferon.

When you feel a bout of Trigeminal Neuralgia coming on -- do these 3 things:

1) Eat Interferon 3 meals a day until it goes away. The recipe for Interferon is: 1 cup cottage cheese mixed thoroughly with either 2 tbsp of walnut or almond oil.

2) At bedtime, take a double dose of an over the counter non-chewable antacid (Cimetidine). I use Tagamet.

3) Do not talk about the condition to anyone. Keep it to yourself.

Using these 3 steps, I have not suffered from Trigeminal Neuralgia in three years. Whenever I feel a tinge....a warning that it might be coming on, I follow these steps, and it backs off. Sometimes I need to do this for a few days. Luckily, I enjoy cottage cheese!

Interferon
Posted by Heidi (Michigan) on 09/01/2015

When you eat Interferon for treating Trigeminal Neuralgia, where do you get it? Can it be bought over the counter? What is it?

Thank You! Heidi


Zapper
Posted by Prioris (Fl, US) on 03/26/2015

here is a link to the second part of my comments

https://www.earthclinic.com/remedies/zapper.html#herpeszoster_147972


Cold Laser
Posted by Donna (Alaska) on 10/28/2015
★★★★★

Thanks Lindajb...that does renew my confidence in encouraging people to try laser therapy. Mine did stop after the therapy in M beach...although pricey, as you said. It is worth a try if you can find someone near who has that type of laser. Interestingly mine started too after a dental procedure, and also on the opposite side from the dental work. Strange. But you're right about the stress.


Acupuncture, Multiple Remedies
Posted by Karenl (Pittsburgh, Pa) on 01/05/2015

What types of doctors are you going to ~ I am trying to find a holistic doctor to treat and heal this.


Acupuncture, Multiple Remedies
Posted by Joe (Bay Shore, New York) on 01/30/2015

I have been suffering with upper branch trigeminal nerve pain since a shingles outbreak Aug. 2013 . I had Acupuncture 2 times ( yesterday and today ) along with a small Lidoderm Lidocaine patch above my eye where the breakout first occurred . The Acupuncture gave me relief .


Acupuncture, Multiple Remedies
Posted by Greg (Tucson, Az) on 07/26/2015

I had microvascular decompression surgery performed, and it made TN WORSE. Now my hearing is gone, and zingers are worse.


Acupuncture, Multiple Remedies
Posted by Sharon (Georgia ) on 05/28/2022

Do you apply into the face or the back of the neck?


Acupuncture, Multiple Remedies
Posted by Steve (Nevada) on 11/06/2015

You may want to try a zapper which kills the virus with micro current. Therapeutic doses of olive leaf extract would be very helpful.


Acupuncture, Multiple Remedies
Posted by Mrs. Jones (Co) on 04/26/2016

Hi Lynn

We too live in CO and I was hoping that you could refer what osteopath you went to? My dad is dealing with this now and I'm hoping to find him some options for relief. Thanks!


Acupuncture, Multiple Remedies
Posted by Rose (Malaysia) on 12/14/2016

Dear mages,

Where did your loved one undergo the procedure?

I am thinking about the gamma knife and looking for the right surgeon. Please let me know asap.


Acupuncture, Multiple Remedies
Posted by Linda (Ohio) on 02/02/2017

The EFT is a sure fire winner. Give it a chance. On line its free by Gary Craig. Do not fall for the pay ones. Read as much of the beginning to understand what he is saying, then move on to learning the receipt on a page. I sometimes forget to use it, but as soon as I remember I do it, and sure enough the pain will decrease then maybe have to do it a seconded time. but it always works.


Vitamin D
Posted by Jes (Usa) on 01/04/2015

Dear Bee,

I read your post last night and have been researching since. I've also been praying about this, and believe I am supposed to try it. I DO have a diagnosis of both MS and Trigeminal Neuralgia, and the TN pain has been unbearable for the past four months.

In addition, I know my Vitamin D levels have been low in past years, and at one time I was on 10,000iu a day and still didn't max out my Vitamin D blood test numbers.

I don't see a neurologist anymore, as my Primary Care Doctor is fantastic, and much more naturopathic than any neurologist I've ever seen. My Doc supported me in taking 10,000iu of Vitamin D, and it's when I ran low and didn't refill that the TN really set in.

After reading your post last night, I put all of the pieces together. I'm writing to ask if you would be willing to share with me how much you took on a daily basis. If I weren't desperate from the pain, I wouldn't bother you. However, I deeply appreciate your consideration.

I'm looking forward to being able to praise God for a miracle, too. I praise Him for so many other things on a daily basis, even through the pain. I so hope that I might know what it is to be pain and pain medicine free, though.

I'm already on a gluten-free; sugar-free; and 90% dairy free diet. I can cut the other 10% out with no problem.

Many thanks for your consideration.


Vitamin D
Posted by JM (Perth, Western Australia ) on 11/25/2021

Hi Bee, I know this is an old post but I'm wondering if you get this could I correspond with you directly? The Hotmail email you originally posted on this site is no longer valid. Even if you'd rather not have direct contact -and you do get this - I'd love to hear how you are going - hopefully well!

Thank you for sharing the information about vitamin D therapy. It really gives me a lot of hope and I've been doing lots of investigating since reading this.

Cheers JM


Vitamin D
Posted by Dolores (MA) on 10/26/2023

Would like to know the maintenance dose taken by this person who was on high dose of vit D


Craniosacral Therapy
Posted by Angela (Toronto, Ontario) on 11/24/2014
★★★★☆

Hi there,

My mother (69) has trigeminal neuralgia and has found some relief with Craniosacral therapy.

Thanks,

Angela


General Feedback
Posted by Leonardo (Quebec) on 06/30/2021

Coconut oil by mouth or locally applied?


Trigeminal Neuralgia Diet
Posted by Francine (Vermont, USA) on 10/10/2014

Hi, I am suffering from TN for 10 years...I am glad to find this site...just started tonight...not able to sleep (too much pain). It started after the removal of a meningioma tumor in september 2004....the three branches are painful. Please help me here someone...the only thing I know is the meds given by too many doctors over the years make me so sick that I cannot even get out of my house....My younger children (12 and 9) never saw me healthy....i was pregnant with my little one when they remove the tumor...My oldest daughter(18yrs) barely remember...I am so sad and depressed to have loose all these years to be just a spectator of their lives and the life of my husband. May someone can tell or suggest me where I should start with....i am sorry to complain but I am at the end of my rope...


Trigeminal Neuralgia Diet
Posted by Nanowriter (Hotspot, Texas) on 10/10/2014

Francine, you may have a viral infection in the nerves. Dave Thomas uses colloidal silver topically and internally for viruses. You can look on here for his protocols against Bell's palsy, which seems similar to TN.

I like to use vitamin C--make up a paste with it and some vitamin E and place it over the painful area. Other good antivirals are lemon balm, olive leaf extract and lysine (1000 mg 3x per day).

I would just start taking different antivirals orally as well as experiment with some topically and see what makes the pain go away.


Trigeminal Neuralgia Diet
Posted by Mama To Many (Tennessee) on 10/10/2014

Dear Francine,

I am sorry you have had this pain for all these years and with little ones to raise...

If I could add a couple of things to Nanowriter's great advice...

Mullein Root is suggested by a couple of herbalists for TGN. It isn't easy to find, but I found some here to use for another purpose and I think it is a good brand:

https://www.beneficialbotanicals.com/tincture-information/mullein-root.html

I would also consider adding extra virgin coconut oil to your diet, up to 3 Tablespoons a day.

Please keep us posted on what you try and how it goes. I hope you will be feeling better very soon.

~Mama to Many~


Trigeminal Neuralgia Remedies
Posted by Ms Joy Arora (New Delhi, India) on 08/10/2013

I am in acute pain from trigeminal neuralgia-treatment. No benefits from allopathic since 10 days.

Trigeminal Neuralgia Remedies
Posted by Baldev (Maharashtra, India) on 08/12/2013 185 posts

Hi Joy, I can imagine the pain you must be going through. You should alkalize your body, it may give you some relief. You can try with ACV and sodium bi carbonate and also after 30 to 45 minutes of meals 1/4 tea spoon of sodium bi carbonate in a cup of water. You can also apply magnesium oil on the painful area. All this should give you some relief in the pain along with what ever medication you are taking. I am in Mumbai, if you have someone here, I can give some Magnesium Oil which you can try. I can be contacted on 09322887066. Good Luck. Baldev


B12
Posted by Pain In Seattle (Seattle, Wa) on 05/08/2013

B12 must be accompanied by B1. European studies showed that B12 injections and mixed with B1 injections (each cc mixed in a injection) help to relieve Trigeminal Neuralgia. It takes a few weeks until all symptoms show a large decline. Don't be fooled; B12 isn't as effective as the total mix.

B12
Posted by Trish (Europe, Eu) on 05/08/2013

In what ratio?


B12
Posted by Susan (Seattle, Wa) on 06/21/2013

For Trish: Ratio should be the same for each; one cc of B12 and one cc of B1. B1 is the painful injection. My doctor gives me some lydocaine to help dull the pain. Another course of action would be to get just the B12 injection and take a good B1 complex vitamin. Get the B12s twice a week, and take the B1 vitamin orally everyday.

I have also noticed my shocks get worse from Splenda. So I did some research; yes, Splenda can cause seizures in people who have never had seizures before. Very strange.

So watch your diet; it is important.


B12
Posted by Ramon (Monterey Park, Ca) on 09/21/2013

Is the dosage of B12 1000mcg, and B1 100mg as specified in the bottles OTC? And how long is the treatment - 8 weeks, 12 weeks, etc. ? Thank you for your feedback, Susan!


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by In Pain (Seattle, Wa) on 03/23/2013

Hello: where do you get the cell salts and the Magnesium that helped you? Thank you so much.


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by In Pain In Seattle (Seattle, Wa) on 03/25/2013

In response to person that mentioned cell salts: I could find the cell salts at the local super supplement stores but it did not come in 12x only 6c or 30c. Since you are experienced using this I wonder if you could give me more advice or refer me to a book or something?


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Donna (Anchorage, Ak) on 07/01/2013

To In Pain in Seattle, I am sorry, I have been travelling and haven't looked for awhile. I am still completely pain free 4 months after the laser therapy so I now believe it really did help. In answer to the cell salts, go ahead and take the 30C. There is a homeopathic mixture called nerve fix all one word.... It has the ingredients I use plus a few more. I haven't tried it, but since I am pain free now I am not even using the salts. There are some interesting articles on B12 and B1 for TN. I still take my oils, magnesium and B12. I will try to look at this site more often...


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Pain In Seattle (Seattle, Wa) on 07/17/2013

Hi Donna: please continue to check back and let us know how you are with your trigeminal neuralgia (TN). I am researching the Laser Med treatment center in S. Carolina but also have ordered the Cell Salts too. I have also been going to an upper cervical chiropractor only recently. So far my pain has been increasing, with the chiropractor but it has been only 2 adjustments. Just took the cell salts. Can't believe the pain and I am on 600 mg of Tegretol. Must go to another Neurologist too.

Well anyway, I know that remissions of trigeminal neuralgia can make one think that certain remedies work and others don't so it is hard. I tried some Biogetica.com homeopathic stuff for TN and it worked for 2 years but now does not. So I pray your cell salts help me, itleast so I can try the Upper Cervical Chiropractor long enough to give it a fair try.

Going across the country, blindly, to the LaserMed Center is a hard decision. With the treatment costing $5600 and plane fare and hotel fare and everything else, we are looking at $7000 or more for the 3 weeks treatment. And it could be something that only works for a short time. So I am still deliberating on this. I have had trigeminal neuralgia for 5 1/2 years but the first couple of years things seemed to work so much better than now.

So don't forget, keep us informed about the LaserMed Surgery.

My warning, though, don't go to a chiropractor for their LaserMed treatments. After I tried one, stupidly, it has caused me much more pain and now I am in this situation. The LaserMed center told me these kind of treatments at the chiropractor, using the Laser on only the pain paths, can cause more pain. Well of course, my personal experience tells me that now. I wish someone had warned me. LaserMed in S. Carolina, I believe, works on a different principle.


Coconut Oil, FIsh Oil, Magnesium, Cell Salts
Posted by Pain In Seattle (Seattle, Wa) on 07/17/2013

Dear Donna: I kept searching for the cell salts that you mentioned in your blog.

Since the laser treatment at a regular chiropractor, my condition has worsened about 80% or so; it has been 3 weeks and I seem to have it triggered by long noxious odors like bleach, burned gasoline, insecticides, etc. Well each time it gives me episode of horrible pain that lasts for 15 hours or so. This time I also found the cell salts that I ordered in my cupboard (Last night) and tried it. After 30 minutes, the pain went away. I had to do it again, 2 hours later, but then the pain went away. I slept and until the pain came back, took it again, as the company clearly explains to, and the pain went away. I have not had any pain now for 13 hours and if I get the smaller shocks, (as I have been even with the Tegretol for the past wks) I will take it again, but if not, I will assume that my body is healing and balancing itself. One of your cell salts mentions how it heals and balances inflamed tissue, which I think is what happened at the regular Chiropractor, With this K-Laser treatment.

Let me clarify, this K-Laser is about $4000, and my naturopath mentions that they teach the awareness of it for back aches or muscle pain.

Your mixture was nothing short of miraculous for me and the company obviously is very, very generous with their information. I have learned alot and will always have these cell salts on hand. thank you so much. I am early in the use of them, but I will keep this group informed. I am still going to continue to try the upper cervical chiropractor too.


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Louwrence (Rustenburg) on 07/26/2013

Pain in Seatle, Please look up on the net Sharry Edwards (Bioacoustics) plus Bob Beck Protocol & maybe that is what you need to treat your condition.


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Donna (Alaska) on 08/27/2013

Reply to Pain in Seattle.... I'm sorry I have not followed this thread for awhile. I was very happy to hear that the cell salts have really helped you. I just wrote to another person today who has written about TN. I have been absolutely pain free for 6 months now. I am back in Europe, something I thought would be impossible a year ago. I rarely take the cell salts (as you wrote, you only take them when you have symptoms), but I never fail taking the magnesium, sublingual B12 and oil - coconut or olive oil, 2-3 T. Daily. I am still convinced the laser treatment took it completely away. I tried upper cervical twice, but fear it triggered it again. I kind of believe it really would help to continue it, but am nervous to try it now... Let sleeping dogs lie! Anyway, I am again living completely normally, and even without fear. The big thing about the lasermed center is the price. I don't know why insurance won't at least help on it. But I also know from experience that these natural measures made it so I could live with it. Of course, I am thankful to have no symptoms now. I'll try to keep following along... and I'd love to hear how you are doing.


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Donna (Alaska) on 10/08/2013

Just checking in again. I am now 7 months pain free. I had my first VERY MINOR TWITCHES in 6 1/2 months, took cell salts, and no more twitches. I still do sublingual B12 and magnesium. To Pain in Seattle, I sincerely hope the salts are still helping you. I do think they are miraculous. Are you still having the horrible pains since you started the salts? Are you still considering LaserMed? If you want to email me directly, I would be glad to give you my email address. It is donna.j(at)seznam(dot)cz. I would be glad to hear from you (or anyone else still suffering).


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by David Gruesbeck (Alma, Michigan) on 11/04/2013

I have tried Colloidal Silver, not much help. My family Dr put me on Time Release Tegretol 400mg. No Help.

He referred me to a Neurologist at MSU. That doctor gave me same drug, just lower dose, (200mg) but x3 morning night. BAD Deal!!! Horrible!

So, MSU doctor switched me to Belcofen (bell+clow+fen) 10 mg 3 times a day - Praise God! Whew! It isn't totaly perfect as I once in awhile have a rough time getting pills down in morning.

I am thinking I may have to increase 5mg, but won't unless under Dr order.

I want to find something nature gives us to fix it. Tired of just more drugs.

The one person said Gabapentin. I take 1200mg twice daily, but that is for the Diabetic Neuropathy.

If anyone has had diabetic Neuropathy, they know it is horrible painful! Again, Nervous system.

Diabetes is taking its toll on me, my last A1C was 4.9, just to let some know, I do take it seriously.

My highest A1C was 6.8 because of an infection.

The best way I can describe TN to people is, take two wires from a AC outlet and stick it to your face!


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Pat (Washington) on 11/17/2013

Dear Donna:

you had gone to the LaserMed Center and went about 7 months with no symptoms. then you started feeling some minor symptoms. YOu went back on the cell salts (good choice) but I wanted to tell you that when I called LaserMed they told me once in a great rare time, a patient will have to have the treatment twice. So don't lose your hope about it curing you for life.

Keep in touch and let us know how you are doing.

Pat


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Kristin (Germany) on 09/16/2014

Have to be careful with Schuessler Salts, only 3 can be combined at a time, but can be taken 3 to 6 times a day.


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Tamika (Dallas Tx) on 12/21/2014

Hi my brother is suffering really bad from Trigeminal Neualgia he is in so much pain - has anyone ever tried Electroacupuncture? I saw this online and will take him for a treatment. I will also start the B12, Magnesium and Fish Oil that's recommeneded here- please offer anymore advice if you can - he will be here tomorrow and I want to make sure I'm fully prepared to help him. Thanks!


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Donna (Alaska, US) on 12/21/2014

Hello Tamika, I am so sorry about your brother. Definitely try the cell salts too...I have had quite a bit of feedback on them, a great help if not a cure. I am still pain free. Let me know about the electro acupuncture....Donna


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Steve (Nevada, US) on 12/22/2014

I think the electro-acupuncture would be helpful. Also have him check out the supplement GABA which is known to calm down nerve pain and muscle pain. Cold laser therapy, EFT (emotional freedom technique) and energy healing are also worth exploring as they have a good track record for relieving pain as well.


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Brittany (Canada) on 03/22/2015

Hello, after suffering for about 7 years amd trying all western medical medicine had to offer including 5 different surgeries, I had micro vascular decompression done which worked for about 4 years. Now it's started to occur in the same way on the other side. I can not imagine doing this again. Can you ball park the cost for the laser? Thanks so much


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Donna (Alaska) on 03/22/2015

I'm so sorry to hear yours has returned. I'm two years pain free now. The laser cost about 7,000 dollars. I'm ambiguous now about knowing if that was what really 'cured' me...I've been in touch with some who hasn't had such good results. I still attribute my 'success' to the multiple things I was doing. I believe I would still consider the laser if mine returns, which I hope and pray it doesn't. I am consistent about doing the magnesium and B12...and hope that will keep my nerves healthy enough to never get TN again. You can email me if you want more info or google TN laser S. Carolina and you will find it. I do wish you speedy help...the sooner the better.


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Prioris (Fl) on 03/22/2015

Have you considered that your neuralgia could be caused by an infection like herpes zoster that infects the nerves ?

I have occipital neuralgia and that is what is causing my neuralgia. This isn't something a doctor can actually prove either. I don't experience shingles outbreak on my skin either. Just tingling. I have a highly active immune system.


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Bessie (Pa) on 10/25/2015

Donna, how did you discovered those things/dosages would be helpful? Was it a boom, article or doctor? My stepmom has TN and the medicine is not working. We're desperate for a solution! Your method is worth a shot. Just wondering how you came to it because everyone's body is different. We want to make sure to try something that will safely help her. Thanks!


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Donna (Alaska) on 10/27/2015
★★★★★

Dear Bessie, It's really hard to say. I did a lot of research after getting my first ray of hope/help from homeopathy. My naturopath prescribed the B12, coconut oil, I read about magnesium, and experimented with the cell salts (because they are related to homeopathy). And then did the laser. But I am in touch with a few people and none have had the results I've had... so it's hard to really know what helped me. I was so confident about all these things because of still being 100% pain free but no one else I am in touch with is. I don't know if they are doing all these things that I did. Everyone's body is different...

As I have written before, I still do the coconut oil, magnesium and B12. I use cell salts occasionally, but not for TN now, but for other things. A lot of it is just research and looking for anything that might help...I don't know how helpful this is to you. Please feel free to email me....I can send you some of the sites I have looked at and some of the things I've researched. I hardly look now as I don't have any symptoms whatsoever. So I really hope that you can find some help for your mother. It is a dreadful condition. Donna


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Susan (Fullerton ) on 01/02/2016

Hi! Question: What are Kali Phos, Mag Phos, Cal Phos, Fer Phos? Does Phos mean phosphate?

EC: Hi Susan,

These are names of Cell Salts, a group of homeopathic remedies made from minerals. Google for more information!


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Imran Ahmad (Lahore, Punjab, Pakistan.) on 03/25/2016

My Dear I am 34 year male. I am involved in Trigeminal Neuralgia disease after a horizontal wisdom tooth extraction. Dear I am very worry to this pain. In my country no proper treatment and I didn't want to do surgery. My pain is on my right side please help me if you have any treatment. Now I am taking pills tegretol and beclofen from last 3 years butt now these tablets are not effective. Kindly help me I'll be thankful to you.


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Donna (Alaska) on 03/29/2016

Dear Imran, I am very sorry to hear about your pain. I have no idea what natural medical treatments are available in your country. If you have the possibility of seeing a homeopathic doctor, that would be my best recommendation. It is a difficult condition to treat, but not impossible, I am still painfree after 3 years, so I do feel there is hope. I wish you all the best.


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Priscilla Singh (Fiji) on 06/17/2016

My husband is suffering from TN and I am really worried about his condition. Doctors have prescribed medication but he gets only temporary relief and is in a lot of pain.

A homeopathy doctor has recommended that he stops have any dairy products which he has.....still no improvement. Am interested in the cell salts that have been mentioned and hope to get check with my pharmacist today.

We are scheduled to see a neuro specialist next week.


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Donna (Alaska) on 06/18/2016

Dear Priscilla, I am very sorry about your husband's pain. Have you read the input on cold laser treatment? I don't know if it is available where you are. Has the homeopath prescribed any remedies?


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Suseeq (Sydney, Australia) on 06/18/2016

My husband had TM. Everything we tried didn't work. Only the oil pulling did.


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Constance Klushkan (Yakutat, Alaska) on 11/05/2016

Hi Donna, I Just wanted to say I am from Alaska also and have been suffering from this terrible disease (Trigeminal neuralgia) for the past 12 years. I am grateful for finding the information you provided on this site and am currently taking the regimen you suggested and it is working. I had the microvascular decompression procedure done in 2011 and it didn't work unfortunately. I know these posts are old but, are you still taking the regimen and is it still working for you? Once again thank you for passing the information on it has been a god send.


Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Donna (Alaska) on 11/08/2016

Dear Constance, thank you for your email. What a coincidence, I lived in Yakutat in 1973! Also for a little while in 1987... It's a beautiful place when the sun shines! Yes, I do continue on this regime, I don't do the cell salts now as I have no pain, but I faithfully continue to B12, magnesium and coconut oil (not as rigidly as I did when in pain). I have been pain free for 3 3/4 years now so I am thankful. I am so glad to hear this regime is helping you... Please feel free to write me through my email address: donna.j(at)seznam.cz. I would love to hear from you.

Donna


Colliodal Silver, DMSO
Posted by Dave (Fountain Inn, SC) on 04/05/2013

The liquid, composed of colloidal silver and DMSO, is used to soak a white paper towel. Press against the hurting area of face. Use a few tablespoons of colloidal silver and add about twenty drops of DMSO. Hold on surface of hurting area: that, in theory, is where the nerves are infected by the viral infection. If the TN is of long duration, there may be nerve damage but at least the virus will be killed and it should not spread down neck or worse, up into the brain.

Apply the mixture of colloidal silver and DMSO to a white paper towel to the surface of the skin where you are hurting. The silver will kill the virus and the DMSO will carry it to the into the skin. Be careful not to let the liquid in the towel to get into eyes. Apply every third day. If the TN has been present for a long time then the nerves may be damaged but at least the silver solution will kill the virus/fungus and should go no further...down the neck or worse, up to the brain. Apply every third day for at least a month. If you suspect virus has gone to brain, I would apply same poultice of silver solution and DMSO to base of skull... base of neck and again, the DMSO will carry the silver to brain to kill the virus there.


Colliodal Silver, DMSO
Posted by David Gruesbeck (Alma, Michigan) on 11/04/2013

Someone wrote this part wrong! It should NOT be two (2) Tablespoons.

100 drops of Colloidal Silver a minumum of 10 PPM, and 10 drops DMSO.

Put on a toilet tissue, (on tissue folded into a square [folded and the folded again])

DMSO by itself will penetrate any human skin, even including the tongue. Be very careful with the DMSO as it will penetrate many manmade materials as well.

DMSO is used to carry any type of medicines into the skin and can penetrate quite deeply.

Take care, Colloidal Silver 10 PPM will do things to your face, make the skin tawt. Not pliable. I have used C Silver for over a week without any success.

Some recipes call for 6 applications a day for 3 days. Some say 3 times a day for a week. I think it is basically a trial and error deal. What works for one person may not another.

From reading many people's input on TN, it appears that most of you do not know where TN comes from or its origin.

It originates from the 5th Nerve out of the Cranium. That 5th nerve then seperates into 5 Nerves.

Two of them control the right and the left Jaw areas. The other 3 control the rest of our frontal facial area(s).

I have the Right TN (or right Jaw). That Nerve come from behind the ear. It passes through two Salivia and taste glands.

This is the reason why when we put anything in our mouth, the nerve is instantly affected.

What I have found that does help (drug free) is to mash your toungue to the roof of your mouth, you can then at least swallow. Getting Pills down, this can help emensely!

I have used the internet to my advantage, and I use anything that will give me information! From any website, which includes Amazon.com.

Amazon as most know has Feedback, some of us just say a few words and thats all while others are very elaborate and that is where I found out about Colloidal Silver in much more detail.

Colloidal Silver, there is many different strengths, the Colloidal Silver that is below 10 ppm is not designed for internal use and most is 2 to 5 is for exterenal use only and is a rust color.

For Internal Use; 10 ppm and above is for internal use, it is clear like water.

For TN you need to use at least 10 to 11 ppm.

Colloidal Sliver also will heal other things, such as Heart Burn. for Heart Burn: 3 teaspoons a day for a week. I learned that on Amazon feedback. The fellow taking it was taking for another reason, he had been ailing with it so badly that his diet was affected and taking drugs didn't even help and had aflicted him most of his life. He all of a sudden noticed that Jalopenia didn't bother anymore, he could eat hot sauce and not be bothered by it. Yea, it cured his Heart Burn.

I talked to the local Natural Foods place in town, he told me, it doesn't matter then name brand, what you need to a minimum of 10ppm or higher. Roger's Foods, he sells natural remedies, Herbs, oils, organic stuff and at a price I cannot buy cheaper elsewhere, even including mail order catalogs. $22.50 for 8 ounces of NOW Silver Col.


Colliodal Silver, DMSO
Posted by Christine (Sydney, Australia) on 03/15/2014

Can u advise how to apply and what dosage and duration for TM Neuralgia.


Colliodal Silver, DMSO
Posted by Dave (Fountain Inn, Sc) on 03/16/2014

To Christine,

Re TN...

You ask how to use the Colloidal Silver with DMSO. Easy to do....Apply about two tablespoons of each (maybe more of CS because the DMSO will sting a bit if not sufficiently diluted) and soak a white (WHITE) cloth and apply on affected area for at least ten minutes. The idea is if the TN is being caused by a virus the CS (and the DMSO is anti viral too, as well as a carrier) will kill the virus....

Repeat three times weekly.

I only have direct experience with Bells Palsey which is believed to be a virus running along the side of face; same theory. I killed the BP in fifteen minutes...unlocked a frozen right side of face that quickly. (The RIGHT side of my face was frozen...very embarrassing for a conservative....HA.)

Unless the virus has damaged nerves, results should be rapid. So assuming nerve damage, I'd also take Cal AEP (not just calcium... the key is the AEP) which works to rebuild nerves on cellular level...Google "Nutrition Review, Calcium AEP"... EVERYONE should be on Cal AEP...a miracle nutrient!!!!!!!!!!!!!!!


Colliodal Silver, DMSO
Posted by Stan Uy (Manila) on 04/08/2017

Dave, I dont want to apply dmso anywhere near my eye. Is there any other area where I can apply it to ease the pain? Thanks


Alkaline Diet, Peppermint Oil
Posted by Ashwini (Houston, United States) on 01/22/2014

Please elaborate on the procedure. I'd like to try the treatment on using the colloidal silver poultice. How do I exactly prepare it and where do I apply? Thanks, Ashwini


Alkaline Diet, Peppermint Oil
Posted by Dave (Fountain Inn, Sc) on 01/22/2014

Hello Ashwini,

Re how to do the topical application of CS and DMSO for Trigeminal Neuralgia ...

My post on this first cited an authority connecting a virus with TN and then I laid out how to prepare Colloidal Silver with DMSO. I get a white paper towel and soak it till very wet and nearly dripping. Then I apply to the surface of the skin where the TN pain is located.

Please re-read my post (to which you posted on the thread). The article I wrote was precise as to proportions and how often to use.

If you have other questions please write back.


Alkaline Diet, Peppermint Oil
Posted by Dave (Fountain Inn, Sc) on 07/16/2014

Hello Jana,

Thank you for your addition to the thread...

You add a knowledge of genome and DNA that I am not able to bring...

In your practice do you use Colloidal Silver or just the zapper...or both?


Alkaline Diet, Peppermint Oil
Posted by Tom (Usa) on 04/28/2017

Dave, how often are you using the combination of CS and DSMO?


Multiple Remedies
Posted by Oldriska (Prague, Czech Republic) on 11/27/2012

Hi everyone, I suffer from atypical trigeminal neuralgia, for which I take Lyrica, antidepressants, sublingual B12 and magnesium.

I've recently added MSM to my daily regime because I read many positive reviews on this supplement. I have since noticed that my pain has gone up in intensity, and I started getting pain also in my knees and arms and I pant like an old dog when I do any simple physical activity (I am 33 y.o. female and used to be in good shape til ATN hit me last year). I take the powder form, 1 teaspoon in a glass of water before bedtime. Maybe it's too much? How long does it usually take before one notices any positive change?

Many thanks for your replies, Oldriska

Multiple Remedies
Posted by Timh (Louisville, Ky, Usa) on 11/27/2012 2063 posts

Oldriska: You seem to be doing some good therapy. Try taking the MSM 2 or 3 times thru the day and not before retiring. Take the Amino Acid GABA (1 grm) before retiring. Try Mineral hot baths (which is good for about everything). I use Agriculture grade micronized minerals from local farmers supply co.


B12
Posted by P (Seattle, Washington) on 08/23/2012
★★★★★

Hi again; this is P from Bothell. I have found that taking Glutamine helped me heal faster from the gluten allergy and the malabsorption problem and also prayer (bigtime) and now I seem to be able to go with just one B12 injection about every 6 days or once a week for maintenanance (of no symptoms. ) this is considered (I believe) a therapeutic injection, on my insurance but would like insurance companies to know that this is for pain control. Still have out of pocket expenses (such as co-insurance, about $10. 50 an injection) but it is worth it if it controls the pain. B12 (hydrocobalamine) is FDA approved and B1 complex given together in one injection is what I have been recieving. All B12 has to convert to methocobalamine to be absorbed by the body. Stay away from cyanacobalamine-it is not the same thing... And has cyanide in it. Few traditional doctors know this it seems.

Hope this news helps someone. I did try the biogetical herbs but after 6 months they didn't help anymore. The B12 seems to be working...... So far... so good.

My advice to T. Smalls is get the B12 and B1 injections (in one injectable)for Trigeminal Neuralgia or go to a certified homeopathic doctor who can prescribe an individual treatment plan for you, if the Biogetical herbs stop working.


Alkaline Diet, Peppermint Oil
Posted by Krishan (San Jose, California) on 09/28/2015

Hi - My Wife suffers from Trigiminal neuralgia since August 2008. Could u let me the above mentioned supplements where can I order them.and are they helpful in Trigeminal Neuralgia. Plz do mention if it has any side effects. Thanking u in adavnce, Krishan


Homeopathy
Posted by Ljbows (Albany Ohio) on 03/28/2014
★☆☆☆☆

I have been suffering from TN post dental implant since May. It worsened in November when the weather turned colder. As most sufferers will tell you, cold is an enemy of this superficial facial nerve. Although it appears I am one of the few who experiences it in the Ophthalmic branch of the Trigeminal, I still have a portion of my upper lip and cheek involved and have had difficulty eating/ chewing/ brushing teeth/ flossing at times. I have not found the Biogetica products specially formulated for Tn to work for me and resorted to Gabapentin. I was good for about 6 weeks and began to get back into life and have had a week of setbacks recently. Has anyone had any experience with the Laser Med Clinic in Myrtle Beach ?


Homeopathy
Posted by P (Tacoma, Wa) on 03/21/2012

Hi. Yes I have just started Biogetica.com again, with the homeopathy for Trigeminal Neuralgia (OM 13 and Trigeminal Neuralgia CM the Ayruvedic herb combination) The herbs are something new for me. Maybe they make the homeopathic pellets work faster. I am also on 900 mg of Trileptal right now for pain until the Homeopathy kicks in. My question is how long did it take for the pellets to start working for you? This is the first time the trileptal at this dose really doesn't relieve the shocks so I need someone to tell me how long I need to wait. Thank you.

Also I found that B12 injections, took me about 2 months before they started to work to reduce pain. It allowed me to reduce Trileptal to 225 mg instead of 900 mg. (but couldn't get off the pain meds without more symptoms but only tried B12 for 2 1/2 months) I found the injections hard to continue- (cost and inconvenience) so I am transitioning from that to homeopathy now-unless I can't wait and the pain gets too bad.

Homeopathy
Posted by Tn_will_cure (Usa) on 09/06/2013

Did the homeopathy remedy help anybody here in this? I am on Tegratol 600 to 800 and now 1200 mg and it is increasing.. Any help is appreciated.


Homeopathy
Posted by Tony (Spokane, WA) on 03/11/2012

How long were you on the homeopathic remedy before you noticed the pain was gone? did you ever go back on the Trileptal?


DMSO
Posted by David (Alma, Michigan) on 11/04/2013

DMSO comes full strength. It is a chemical. Bing or yahoo it.


DMSO
Posted by Jody (Tryon nc) on 12/06/2023

Hi! My mom and sister suffer from Trigeminal Neuralgia. My mom had the gamm(?) knife surgery and now suffers from over radiation pain..

I am studying ways to help them. Unfortunately, they r not very open to natural treatments but I'm still trying. lol. I have found dmso and think it could be a step in the right direction. Have u used it and did it help? Also any other ideas or thoughts?

thank you!

jody


DMSO
Posted by Brooksie (Louisiana, US) on 11/05/2014

I was recently diagnosed with Trigeminal Neuralgia. However, I have only had numbness and a little shock wave here and there for the past 3 months. I am told that it could progress and would like to stop it in its path. Could you please give me more information on the doctor you recommend. And, are you still pain free?


DMSO
Posted by Vera (Colorado) on 12/08/2023

My trigeminal neuralgia was caused by a badly done filling. The tooth was so damaged that I eventually chose to have it pulled. The neuralgia completely cleared up a few months after that.


B12
Posted by P (Bothell, Usa) on 01/29/2012

Sheila: Hi. I figured that I had a malabsorption problem because it usually accompanies a gluten allergy. My Vitamin D levels were only on the small side of average (after a blood test at the doctor) and that is after taking 5000 mg a day of Vitamin D. I also tested for thyroid antigens of TPO and TGO and they were really off the normal amount. I am not sure if you have Classic Trigeminal Neuralgia or not, but vitamin B12 injections take some time to work; about 8-12 injections over a period of a few weeks-and then they do work for the above disorder. Taking oral vitamin B didn't work for me, as it might for others who do not have my disorder. (classic TN)It is important to be diagnosed with the correct disorder so you know what will be effective or not.

My best advice to you is see if your doctor is willing to give you the B12 (methocarbo--with the B1 complex- 1cc of each) it least twice a week, and don't go off the antiseizure meds until you see a real reduction in symptoms. B12 injections are now covered by my insurance company (Regence of Washington) Some neurologists are also prescribing oral B12 but the oral kind is not potent enough for me. (ho hum.... ) MS patients also are being prescribed B12 injections. It helps the pain and disorder of the nerves.

Another way to help the pain is to try homeopathic remedies. We get a lot of our prescription drugs from India in the US. (such as glenmark mfg. ) I have used their kit for Trigeminal Neuralgia. It can take 1-2 months to work though, but gradually you will see a reduction in symptoms and can get off your anti-seizure meds completely in about 2 months or so.

Hope this helps. I know my neurologist advises surgery for everyone but I will wait as long as I can.

B12
Posted by Nishka (Johannesburg, South Africa) on 10/18/2013

What kit are you referring to from Glenmark


Upper Cervical Chiropractics
Posted by P (Seattle, Wa) on 01/03/2012
★★★☆☆

BETTER BUT WITH SIDE EFFECTS

Just wanted to warn people: after my 4th adjustment from the cervical chiropractor, I had about 14 shocks in a 3 hr period following. I think I irritated my nerves more and sometimes things have to get worse before they get better--but I don't want to continue. For some people, this manipulation may work, but be aware that it can be painful at first, for Trigeminal Neuralgia.


Iodine
Posted by P (Bothell, Wa) on 11/28/2011

Dear Stella:

Do you continue still with the iodine? What led you to discover this? (in other words, is it doctor prescribed?) Are you able to skip a day or more not doing the iodine and does the pain still stay away? How long have you been supplementing with the iodine? I have heard of this treatment for other ailments but never for TN, but obviously naturopathic treatments are just starting to become more public with the internet.

I am not sure if there are any side effects to iodine overdose or not. I will definitely ask my doctor about this. I am glad that you found something to help you.

Methyl-B12 orally or injections have been known to help with Trigeminal Neuralgia for a long time. Naturopathic doctors and some traditional MDs know about this treatment which does not have any side effects of overdose. The good thing about B vitamins is that your body excretes any excess it doesn't use.

Thanks for your tip about the iodine.

P


B12
Posted by Pat (Bothell, Wa) on 11/24/2011

P.S. To those who suffer from Trigeminal Neuralgia:

I wanted to give you the exact website url to the Biogetica. com Trigeminal Neuralgia products;

http://www.biogetica.com/cure-trigeminal-neuralgia.php?gclid=CKyLzLOI5J8CFRwUawodBCDyHQ#

I also want to let you know that with this product I bought, it worked. Traditional Medicine balks at it because it doesn't contain really any measurable pharmeutical agent; that is the main reason it is so safe. But it does work; on the principal of physics-the original agents were diluted enought times in purified water, to keep the original vibrations of the agents. Now just the "water pill" works by itself. they have been arguing about this company for ages on the website. I am hear to tell you that Traditiional Medicine only offers us terrible dangerous drugs that lose their effectiveness after a period of time. This Natural way offers you real help without the danger. I am a living witness to this; I would just like to be doing more than just masking my symptoms--so I am trying the Methyl B12 road.

P

B12
Posted by Christina (Sammamish Washington) on 02/09/2014

I am interested in learning more about your expedience with Biogetica for TN. Did any of the products cause side effects? Etc. Thank you


B12
Posted by Pat (Bothell, Wa) on 11/24/2011

Happy thanksgiving, Connie. Happy Thanksgiving Deidre who has given us this opportunity to frankly advise and report to each other about what can help this most horribly painful condition.

I am back on a Homeopathic remedy which does seem to help in about 3-5 days. I am also on 2 injections per week, until I get tests to see why I can't hold or absorb the B vitamins like most people.

I need to find a way to take sublinigual Methyl B12 and the B complex vitamins orally, instead of the expensive injections. I am very terribly afraid of needles and don't seem to be able to do it myself. Even giving it to myself, it would cost about $100 a month from a safe and reputable place I trust. It only costs about $20 for 2 months for the oral Methyl B12.

The doctor can't figure out why this form of B12 )dibenzocide)hurts my nerves more and wonders if it is something else in the product. But 2 different products with the same version of Active B12 hurt my nerves, so I am staying off it.

To report: my nerves are better, much better today. Only feel a little symptoms, nothing worse. When I stop feeling any symptoms, I will get off the homeoathic remedy (which has almost saved my life this past year-but doesn't really heal the problem-just masks the symptoms)

SO I need to find a sublingual B-complex that doesn't have PABA in it. I am allergice to PABA and find alot of people are as well. IT can almost put me in anaphylactic shock, so I have to not buy the same B complex you use. My doctor says to try to get a sublingual form of B complex-yeah, good luck without the PABA.

Any way, also, my doctor says it should be safe to augment my injections with 4000-5000 mcg of the Methyl B orally a day, and a B complex, when I don't get the injections that day. It can't hurt you since your body gets rid of any extra B12 it doesn't need.

I would advise people to try the Methyl B12 who have any nerve, brain, problem to help them, cause it is pretty safe.

It lease I haven't had a full=blown attack since I used the homeopathic remedies. My last full-blown attack was when I was diagnosed with TN almost 2 years ago, (in Feb)A day I will never forget.

Hope this info helps others. If anyone wants to buy homeopathic remedies that help with the pain safely, until you can figure out what med plan works for you best, then others can log into: biogetica.com. Try the $55 kit-it should last about 2-3 months--it is safe and it really takes the pain away.

Have a wonderful holiday,

P

B12
Posted by Bess (Calgary, Alberta, Canada) on 11/25/2011

Hi Pat - You were looking for other ways to take B12 instead of sublingual or injections. There is a B12 spray from mercola.com.

http://products.mercola.com/vitamin-b12-spray/

Also, if you do an Internet search for DMSO B12, some people have mixed the two and applied to the skin. You will need to read up on DMSO before trying this. Earth Clinic has the following page:

https://www.earthclinic.com/supplements/DMSO.html

Good luck Pat! Bess


B12
Posted by Pat (Bothell, Wa) on 11/21/2011

Dear Veerle:

You mentioned you have been taking B12 for Trigeminal Neuralgia. What kind of B12? Is it sublingual and is it methylcobalamin and what is the amount? do you take it orally or thru injections? It sounds good if it can help you back to being pain free in 2 weeks.

I need to buy some of this to have it on hand to take myself. I am also thinking of chiropractic care with the neck, since I have heard that this helps too.

Thanks, P-

B12
Posted by Lou (Tyler, Tx) on 12/16/2011

I think I have a malabsorption problem too. Have you read about Mastic Gum? It come from Chios, Greece. It has been known to cure a lot of digestive problems, which can be the source of many ailments. I took it a few weeks ago and now I am so "regular. " IBS symptoms gone!


B12
Posted by Sheila C (Brunswick, Ga) on 12/31/2011

Can someone tell me how you figure out if you have a malabsorption problem. My condition sounds somewhat different than some of the posts I have read here. I am in pain everyday. I'm not sure how you really confirm the diagnoisis? I am going downhill fast. I am trying to get into mayo, they gave me an appointment 2 months from now. I am barely functioning. I also had numerous dental procedures. I have horrible ringing in my ears.

Of course the neurologist I have seen has put me on multiple anti-seizure meds, none of them work well, but when I stop, I have one major attack after the other. I am so worried about losing my job after 23 years. This is terrifying! I went from being perfectly healthy to having so many ailments, I have no idea which ones are related. I would honestly welcome surgery at this point. How do you figure out how much of the B12 you should take? Is there anyone that has actually tried the laser med center?


B12
Posted by Debbie (Melbourne, Australia ) on 12/31/2011

Sheila, you can get a hair mineral analysis done. That should tell you whether you are lacking in minerals.

Do you drink much diet soda or sugar free foods? Artificial sweetners? Chewing gum. Processed foods? Energy drinks?

Ringing in ears is a major symptom of aspartame poisoning. There are other major problems associated with aspartame consumption. I am just throwing it out there for your consideration and to rule that out if you do not consume those.


B12
Posted by Pat (Seattle, Washington) on 11/15/2011

I have been getting the injections and the last 2 have seemed to irritate my nerves a little. they did help with the Trigeminal Neuralgia and I wonder and am so thankful that I came across Connie's entry about B6-be careful that this can irritate the nerves if overdosed.

I am off all shots and meds now and feeling pretty good so far. Time will tell. I don't know if the injections of B12 and the B complex vitamins put people in remission or not. I have had 19 injections so far and probably only needed 17. After the last 2, is when I felt some nerve irritation. I am concerned about it being a slight overdose.

People can go indefinitely without any other meds or shots for Trigeminal Neuralgia or in the case of a few, just need a maintenance dose-only 1/3 of the cases need a maintenance dose of once a week, after 2-8 months from stopping the injections. 2/3 need nothing more indefinately, I am not sure what part I will be.

I go to my Naturopath later to talk about this. I wonder about the subliminal B12 and B6 and if you are supposed to take them everyday forever?

Pat


Alkaline Diet, Peppermint Oil
Posted by Sue (Minneapolis, Mn) on 07/11/2012

If you were able to rub oil on your face I assume your pain was minimal. I could not touch my face much less talk, brush my teeth or eat when inflicted.


Alkaline Diet, Peppermint Oil
Posted by Marianne (Livermore, Ca) on 12/19/2012

Where exactly do you apply this poultice??


Alkaline Diet, Peppermint Oil
Posted by Dave (Fountain Inn, Sc) on 06/23/2014

Hello, Aileen, Re your Trigeminal Neuralgia. If you go to a thread under Earth Clinic: Ailments and then "Trigeminal Neuralgia" the very first post is my theory and possible help to solving the TN nightmare. Please take a look at it. It is a viral theory of what is going on ... same as shingles and Bells Palsy.


Alkaline Diet, Peppermint Oil
Posted by Suseeq (Sydney, Australia) on 06/23/2014

Dear Aileen I understand what you are going through, my husband suffered with this for years. He thought it was a tooth problem at first but the dentist diagnosed it, it was so good to at last have a name to this awful condition . It was so bad he asked me to help him end his life . he couldn't even wash his hair because water touching his face would set off an attack but what helped was acupuncture plus like you said seizure medication. He finally had the operation and has been pretty good since. so maybe that's the way for you to go to, there is light at the end of tunnel.So good luck I wish you the best


Alkaline Diet, Peppermint Oil
Posted by Liz (Arizona) on 10/08/2015

Hi Suseeq - Not sure if you still come to this site but I am curious to know how your husband is doing since the surgery. I've read that most people have the surgery (MVP..I think that's what it's called.) and it only made it worse and in addition resulted in loss of hearing, eyesight or numbness. If your husband didn't have this procedure done, would you mind telling me what it was? Thank you


Alkaline Diet, Peppermint Oil
Posted by Liz (Arizona) on 10/09/2015

Hi Suseeq - Thank you so much for replying! So glad to hear your husband is doing well. You're right that a little tingling and loss of hearing is a small price to pay. What type of surgery did he have? Gamma Knife? I am going to be seeing a new neurologist next week and want to discuss all possible options.

Did your husband try any alternative methods like B12 injections? I am considering that before going the more invasive approach.

Thanks for any insight you can offer.

Liz


Alkaline Diet, Peppermint Oil
Posted by Suseeq (Sydney, Australia) on 10/09/2015

Dear Liz,

I am not sure what the surgery was called, but it separated the nerves with a sponge between, well that's how it was explained to us. He also had acupuncture, it helped for a short time. Good luck. I hope everything works out for you. Let us know how it goes.


Alkaline Diet, Peppermint Oil
Posted by Alan Hudson (Homestead, Fl.) on 10/09/2015

Hey there SuseeQ...I have recently experienced complete and (so far) lasting relief from trigeminal neuralgia!

After trying many of the suggestions of the EC community...36 hours into that seemingly endless pain...I read a post on another site where a guy tried this...for the Madness of the pain...and it stopped BOTH in 30 minutes...never to return! Now folks, I have avoided doctors and pharmaceuticals for 40+ years and come to EC first to manage my health.

BUT, I took un-prescribed medication for an off-label use, on un-substantiated advise because DEATH seemed like a reasonable alternative. Forgive me..it WORKED!! I took Alprazolam (Xanax) .25mg (pediatric dose). This is a common anxiety medication. It can lead to abuse as we build tolerance quickly and can become dependent.

I am compelled to share my indiscretion because it was a miraculous end to an excruciating event. It seems, reducing inflammation that causes the trigeminal nerve to fire up...by constriction or abrasion...ends the event but not the initial cause of that inflammation. For me, the unknown cause was resolved and has not returned. It's been 4 months...in addition, I have changed my television seating and duration to avoid neck aches that seemed to precede the TG. I have read of other factors that inflame the Trigeminal nerve that may not benefit from the Alprazolam...but it is a very small dose...of a widely used medication...that costs $2......


Alkaline Diet, Peppermint Oil
Posted by Suseeq (Sydney, Australia) on 10/12/2015

Dear Alan,

I hope you can keep your pain under control. We tried many meds but nothing kept him pain free, we struggled for years to find something to give him relief as he couldn't even stand a breeze to hit his face and many a time he told me he didn't want to live, sometimes something would work for a couple of weeks but nothing lasted very long. The op was the best and he was very sick after but he improved every day.

Good luck and hope you have found the right thing for you


Alkaline Diet, Peppermint Oil
Posted by Susan Bee (Houston, Tx) on 01/06/2018

I believe it was a bad tooth infection which first caused my TN as I had a horrible infection and had to have a tooth pulled and ever since I wasn't the same. If this is a virus like you said what can I do to get rid of it? I'm dying. I want to have a normal life again.



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