Natural Trigeminal Neuralgia Treatment

My mother had been suffering the excruciating trigeminal neuralgia (TN) attacks for almost 30 years. She was given painkillers/steroids which help only a temporarily relief of her pain. She had also tried many traditional medications without much success. It was only recently that she was introduced the below natural remedy that we see vast improvement in alleviating her pain.

Ingredients:

2 cups of water
1 average size of White Radish (White Carrot)
Slices of fresh Ginger (optional)

Steps :

1. Wash the white radish, cut into smaller pieces

2. Add 2 cups of water to ceramic pot, close the lid, put to boil

3. Switch off when liquid content reduced from 2 cupful to 1 cup.

4. Drink the liquid between dinner time 7pm to 8pm only

Note : For those elderly who experience discomfort due to radish being a cooling vegie, ginger slices can then be added in step 2.

My mother has seen major improvement after only few attempt, she can now comfortably chew on almond nuts too which she never did for a long time. We like to give thanks and hope by the sharing of this wonderful recipe, many others could benefit from this horrible experiences.

I have also come to realize that I had another problem. I was also UNDER METHYLATED. This will also translate to sleep problems also. This is why I reacted negatively to coenzyme B vitamins, B12 and choline. My body can't process these well. So avoiding B12 and B complex especially folic acid was another piece of the puzzle. People who are over methylated will benefit with these.

The antidote I did take to counteract the effect of the these b vitamins etc was taking the supplement SAMe. SAMe is the best supplement to use as a methyl donor and also quickest to rehab with.

I need to address the methylation cycle in order to get the building blocks to a complete cure.

Hi, my mother has Trigeminal Neuralgia. This is what has helped her: B12 (METHYLCOBALAMIN) form. This form is absorbed better. Do not use the cyanocobalamin form, as it is not absorbed well. She uses cherry flavored sublingual- 5MG. No stimulates: No caffeine, no sugar, no alcohol, and no foods that are stimulates such as mushrooms.

We have also noticed that here in TX where we live, when the seasons change from hot to cold-- it flares up. Every October is when it changes from hot to cold, and she has problems with it then and then again when it starts to get warm. We are wondering if the barometric pressure has something to do with hers acting up. She has had it for a long time now. She first noticed it after her teeth were pulled and she got dentures.

She recently added fish oil to take also to see how that works with the B12. If we see more improvement with that added to the B12, I will post again. I hope this might help others. It hasn't cured it, but it has helped.

Last year, my horse was diagnosed with trigeminal neuralgia which is very rare in horses. I tried many types of medications and functional devices. Spirulina was a miracle "cure." I began to see the results within 48 hours of giving it to him. I slowly ramped up the dose over several weeks. My horse is doing great, happy, rideable again. I was very close to having to let him go due to the extreme pain and distress he was experiencing.

A few months ago, I was diagnosed with geniculate neuralgia which is similar to TGN except that a different nerve being impacted. Having seen the amazing results achieved by giving my horse spirulina, I tried it.

It substantially reduced (by ~ 80%) the intense pain and other symptoms. I am taking 10,000mg per day, 5000am and 5000pm though splitting the dose into 3 would probably be better. I take the same spirulina as my horse which is made by Springtimeinc. They test their products and stand behind them if any issues arise.

Try it!! You have nothing to lose and everything to gain!!

I have been suffering from Trigeminal Neuralgia for 15 years. Doctors passed it off as stress. Early on an MRI and Spinal tap revealed nothing and I was told the pain was psychological. The pain is getting worse and lasting longer although suicide is not an option the pain can certainly cause one to wish they were dead anything to ease the pain. I received an official diagnosis June 19th 2015 and immediately referred to a drug by the name of Tegretol xr 100. I am thankful that I read the side effects prior to taking the drug. I have now considered surgery but realize surgery last aprox. 2 years and the pain could resurface even stronger. My pain is jolting lighting bolts striking the left side of my face lasting for seconds back no back no relief. This is my 12th day still going. I am now looking for healthy ways to handle this disease I will fight and I will win open to suggestions and research please help.

Mary!!! Go see an osteopath immediately! I had this for only 30 hours, and with one treatment it was resolved. (I had almost passed out from the pain.) Neck muscles spasm and pull the vertebra out of place. Massage also helps. Don't suffer anymore, and please look up someone that can do Osteopathic or Cranialsacral work. Biodynamic approach is even gentler than normal osteopathic work. If you have questions, look back here and I will try to check back.

To Anita from Fayetteville;

Trigeminal Neuralgia issue...

In studying TN, the problem you are having and ask about are very likely an extension of the TN.

Anita, if you read any of my recent posts I talk a lot about my theory that virus is behind a lot of mystery diseases.

I use colloidal silver mixed fifty/fifty with DMSO (google "youtube Dr. Jacob DMSO 60 minutes). If I had TN (like Bells Palsy) I take a white cloth and apply the mix to the affected area. I might use a greater amount of the water based CS, because the DMSO can sting. The idea of such a series of applications is that CS (and DMSO...an anti inflammatory too) can kill virus. Thus, IF the TN is viral based, then perhaps it could be arrested by apps of poultices with such a mix.

That's my theory on TN. That is what I'd do if I had TN.

Hello Jessica;

Re TN and using DMSO and colloidal silver...

You ask how long should the treatments be used? Well, I mention a number that I'd use to see if the formula would bring relief. You are certainly perceptive in your understanding of DMSO. DMSO has been a "friend" for twenty years. It is anti inflammatory so by itself (as you mention) it could give some relief and also DMSO is an anti viral or so I've read. But I use it with CS, knowing that CS definitely kills viral infections. So IF TN is viral based, then (like Bells Palsy) in theory the TN could be helped with a DMSO/CS poultice.

I'd apply three times a week for a few months...or until the symptoms are gone. AND, I would drink the CS (without the DMSO) .... two tablespoons three times a day for a few months to make sure the virus is killed in the system. Take the CS orally on empty stomach.

Aconitum 9Ch, Arsenicum album 30CH and Hypericum 30CH, 3-5 times a day will help.

Hi Jody,

You may want to look into high dose thiamine in the TTFD form. See Elliot Overton's article

https://www.objectivenutrients.com/insights/thiamine-ttfd-nerve-damage-trigeminal-neuralgia-hearing-loss/

Will try the B12 and Omega just diagnosing TN. Praying for all who suffer to have the mind of Christ and know this is just for a moment.

Donnac: Sick people are scared. When I was sick I was afraid to buy a $40 can of spirulina even though I had $2000 in the bank. At some point you have to find the courage to experiment and the initiative to take some positive action. The fear of learning anything new can be paralyzing. The first thing you want to do is take 4 cups a day of homemade water kefir. The cost is 10 cents per cup. The next thing you want to do is take some of God's Goodies that are affordable like wyoming clay 5 g 10 cents, organic cayenne 90000hu 1 g per gallon of water 2 cents, dead sea salt for magnesium 4 g 8 cents, water soluable humic acid 1 g 4 cents, and raw kelp from canada 10 g 20 cents. Then increase glutathione with raw whey because glutathione makes redox signaling molecules. Then take absorbable colostrum for the special substances and growth factors. Then you need a good strategy. The best strategy is to get most of your nutrients from raw organic grass fed wildharvested soaked sprouted and ferments foods that have been properly prepared by reputable companies highly recommended by naturopath doctors who understand the way food affects cellular biology and the mechanisms of aging. 2 years ago I was a feeble old man. Today I feel and think better than in my entire life because I take 600 g of raw organic whole dried cane juice and raw honey, 1/2 pound of raw organic berries, 20 g expellar pressed coconut oil, 30 g raw cheese, 12 g raw organic sesame oil, 60 g soaked black chia seeds, 15 g hawaiin spirulina, 7 1/2 g chlorella, 10 g nondefatted dessicated liver, 1 oz. Organic tomato paste, 40 g nondenatured microfiltered whey protein isolate, 30 g raw cocoa powder, 10 g absorbable colostrum, 3 g freeze dried 4:1 goji concentrate, 1 g hawaiin cordyceps, 3 g raw fermented skate liver oil, 30 g raw thai fish sauce that has been fermented for 2 years, 8 drops nascent iodine stablized with alcohol, and 2 1/2 gallons of water. Together these contain over 150 of the most bioactive carbs, fatty acids, amino acids, vitamins, minerals, phytochemicals, special substances, and growth factors that enable the body and brain to function at peak performance. Most of these items are shipped to me at wholesale prices. For inspiration watch raw superfood and raw organic 80/10/10 vegan videos on youtube.

Hi! I think I have been dealing with occipital neuralgia. I have always been a headachy person but the intensity and frequency of my headaches was become quite a burden. I would call them migraines and they would last for days. And maybe they are migraines. I still don't have an official diagnosis in spite of being more proactive than usual to get medical help and a diagnosis. Anyway, my headaches would begin in my neck and I would have pain at the base of my skull. It radiates to behind my eyes. When severe I begin to have numbness in my face. One day, out of the blue, I had a shock pain in my neck. Well, that got my attention. I know a couple of people with trigeminal neuralgia and that was my first thought. But when I looked it up, I realized that the shock wasn't in the right place for that. But there is a nerve in the neck, where the shock was, and you can have occipital neuralgia. My chiropractor thinks the root problem is arthritis in my neck. I had significant inflammation in my neck when she last adjusted me. I started taking glucosamine at her suggestion a week ago. We shall see if that helps. But I have been doing something else that has been helping a lot and i have had very little pain in the last couple of weeks even though I have been under severe stress. I have an essential oil blend called "Sciatica" from Hopewell oils. It contains peppermint and cistus. I have used it on my lower back with success for occasional sciatica. I put this oil on my neck along my spine and at the base of my skill and anywhere else on my neck that feels painful. I do this at the first sign of pain and repeat every couple of hours. It really seems to help the pain and keep a headache from coming on. Meanwhile, the chiropractor has also given me exercises for my neck. I have also done a couple of youtube stretches designed for occipital nerve pain. If I find anything else that helps, I will report back! ~Mama to Many~

Men- I finally found a way to shave when you have TN. You can go over the shock area very lightly and slowly, both in a moving motion or you can press slowly the electric razor into your check area and the remove it and slowly do the same motion to another area. It takes some time, but it can be done w/o a shock.

Hi again TN sufferers,

Would like to mention another condition to watch for,

DUST MITES. Make sure your living areas are as clean and free of dust as possible. Dust mite excrement is HIGHLY allergenic. Dust mites are especially prevalent around pillows, bedclothes, couches etc. because dust mites (microscopic insects) eat human skin that is constantly flaking off our bodies. Since pillows, matresses, couches etc. expel air from inside when lain or sat on, dust mites and excrement (gross huh?) are blown right into your nose and mouth to breathe. Since your nose, mouth and ears are the gateway to your brain and nerves, dust mite excrement can cause Urticaria (hives) and other disorders that can cause you serious problems that many people don't realize (i.e. mysterious pain that appears suddenly and then goes away to appear again later such as hives and TN). I carry Prednisone in case of hive attack which can blow up my face and scalp like a balloon. So don't dismiss this as cause of a cluster headache.

One more thing also, when you feel your TN coming on, if you are able, remember what you did, breathed and ate for the last hour before the seizure started and write it down including using and breathing chemicals, being in dusty areas and vacuuming, especially, and what you ate or drank during that hour, or some action that you have performed before that may cause the attack. You may discover something very interesting.

PS ALWAYS wear a dust mask or wet bandana over your nose and mouth when vacuuming as the machine expels exhaust air into the area and still may contain microscopic matter.

So Dear Fellow TN sufferers,

I am going now to insert my antibiotic ear drops (not cream, won't go down where it needs to go that the doctor may not be able to see), flush my nose and use nasal spray and take a Paracetamol. I let TN slip up on me again but doing this I haven't had an attack lately....

This post is really about the difficulty I had in diagnosing the root cause of the migraines.

For a long time, I was mystified why I was getting a migraine headache. I have really been bearing down hard in understanding the cause for the past 4 years. I tried many migraine remedies. There have been many myths about migraines especially blood flow which compounded the problems. Researches have found migraines emanate from the brain stem somewhere. Not inside the brain.

The tried the standard remedies b2, B6, b5, magnesium, bromelain, butterbur, q10, ginger root, feverfew to no avail. I found magnesium and b2 worked to some degree but not enough so I even experimented with the coenzyme B vitamins and methylation cycle problems which were dead ends also. I still had not much control over my migraines.

It wasn't until I went to a chiropractor that I started to peel away at the cause. I found the chiropractor treatments worked some but I still had problems. Doing the treatments helped me understand that tightened muscles aggravated the condition which made sense why magnesium helps many people.

I also noticed the pain receding over the right eye to the side of my head with chiropractor treatment. I thought it may be an indication that I may have trigeminal neuralgia although I didn't have the shocks.

Over time the pain would recede to the C2 area of the spinal column. That was the proof I needed to diagnose occipital neuralgia. From there I was able to dig deeper. There had been some opinions that occipital neuralgia could be caused by herpes virus so I started focusing on the neuralgia aspect.

A few years back I pondered the possibility that it could be herpes caused so took some lysine for a couple days but that didn't put a
dent in the pain so assumed it was not the cause. I investigated herpes further and came back to lysine which I gave up on earlier. Also I added vitamin C. I found that the lysine helped a lot more. Without the chiropractor treatments and magnesium at same time also, it would have been hard to untangle everything.

I finally realized my migraines were caused by occipital neuralgia which in turn is caused by herpes zoster. also it was the root cause of the chronic meningitis I have had on ocassions.

I have had low level chronic shingles my entire life but they don't break out in skin eruptions like most people but just a little tingling on my the skin.

I ignored it most of my life since I was overloaded with a zillion other worse things. I did take a homeopathic formula for shingle 15 years ago that helped a lot with tingling but never touched the migraine.

I have had ME/CFIDS essentially my entire life. I am 60 years old. The virus is very aggressive in me. The heart of ME/CFIDS is that it is at it's root an encephalopathy disease so had difficulty untangling it from that.

I have gone to another chiropractor before this and he wasn't really able to help me but he wasn't as equipped as the other chiropractor who used a proadjuster. I have come to realize why my trapezium muscles tighten hence I can easily relax them myself on my own.

The point to this story is that I had to peel away at the problem to understand what the underlying cause of my migraine and eventually neuralgia was. The other point is that a chronic migraine could be caused by an underlying infection.

By the way, I have been using a Terminator 2 Zapper.

i have been following the many remedies people have listed and tried for Trigeminal Neuralgia since May 2013, when I myself developed symptoms on the right side over my eye (V1) which then progressed to cheek and upper lip area (V2) after a dental implant. It was confusing because the implant was on the left side however, stress such as an invasive procedure like a dental implant especially when associated with other life stresses can cause a herpes/shingles outbreak. Like many of you I too was debilitated with extreme pain episodes lasting 1-3 hours with intermittent shock-like hits of pain in between. I could not eat, brush my teeth, talk, move my upper lip without distress and sometimes simply moving from one room to another could trigger pain. My sisters left their homes in a neighboring state and took turns caring for me.

I began many of the strategies suggested by many of you on this site: Biogetica, increased magnesium, diet, Vit B, bolstered my immune system, prayer, meditation. I think these strategies were all helpful as I believe in a holistic approach and I am grateful, for that reason for this website.

Now it is I have some important input to add. There has been mention of cold laser therapy, and especially for those of you suffering from a form of TN referred to as Post Herpetic Neuralgia there may be good news. I have researched Cold laser therapy which is also referred to as, Low level laser and found that although there is some dispute as to the efficacy of cold laser there is growing agreement as to its benefit in pain reduction with specifically nerve pain. The Trigeminal Nerve is the chief sensory nerve of the face which is why it causes so much havoc many of you report but the good news is that it is relatively superficial- which is to say easy to get at. It does not hurt, it has a slight warming sensation. The probe does not touch your face but rather is held 1/4 to 1/2 inch off the skin. It cannot harm you. With a class 4 laser you wear protective eyewear.

So, here is what I did. Using a protocol I heard about as a baseline that treats an hour a day, 5 days a week for three weeks (total 15 hours), I found a nearby Chiropractor who was willing to treat me with a Class 4 Cold laser following the nerve pathways of V1 and V2 . ( I printed out a schematic of the Trigeminal and took it in.) His laser machine runs 8 minute programs for neuropathy and we did two 8 minute treatments at one session and later added a third 8 minute session for a total of 24 minutes for a session. I went twice a week for 2 months and then tapered off. It has been 6 months now and I have had a total of 8 hours of treatment and I am pain free. If I do have a few 'hits' I go get a treatment. Yes, I still take 600mg of gabapentin but have been able to dose down and hope to reduce more after the cold weather has subsided. I experience weeks as opposed to days without as much as a twinge. I just went to the dentist for the first time in two years for a cleaning without a problem. I can brush, floss, eat, talk and move my upper lip and have not had a major 1-3 hour pain episode for 6 months since beginning the laser treatments. I probably began to feel the more lasting results at the 5-6 hour mark. If I had lived closer I might have gone more often.

According to the current FDA standards, an FDA cleared cold laser addresses 4 main issues: Chronic or Acute Pain control, Inflammation reduction, Increased blood flow and Accelerates healing.

So, if it is you want to give Cold laser a try here are my recommendations based on personal experience:

Locate a Chiropractor, Physical medicine clinic, Dentist etc. who offers Class 4 Cold laser treatments. Some may already have a protocol for TN. Many of you are aware of the M Beach clinic as well- (although I bit pricey)

Plan on having several treatments as I found it is not a magic-wand-one time only fix but rather has an accumulative effect and so several treatments are necessary.

Negotiate a price since you will need several treatments.

Stay hydrated.

Maintain all the things you have been doing. Supplements, homeopathics, hot packs, patches-- whatever you do that provides comfort.

Keep a journal to chart your progress.

Lastly, a resource for those who want to learn more about lasers is: COLDLASERS.ORG The site will educate you about lasers for pain management and how they affect the healing process. Especially for those of you who have had a viral assault or inflammatory process. I wish all of you who are experiencing this painful condition progress and blessings on your healing journey.

To your healing, Lindajb

I'm seeing a Neuromuscular Dentist for TN. Mine started after dental work too.

When your bite changes it can compress the trigeminal nerve. Neuromuscular dentists balance your bite and relieve that pressure.

Some alternatives that may help with the Trigeminal Neuralgia are EFT, energy healing, and cold laser therapy.

Hi Sharon - have you considered Trigger Point Therapy? I am quoting from the self-help book by Clair Davies where he discusses trigger points on the Sternocleiodomastoid muscle (connects breastbone to bony knob behind ears) and referred pain: "...occasional spillover of pain in the side of the face, which mimics trigeminal neuralgia, a disorder characterized by brief attacks of pain caused by irritation of the trigeminal nerve."

There is an interesting scientific paper in "Medical Hypothesis" 2002 Nov, 59 (5): Issue: "Are latent immediate-early genes of herpes-simplex virus-1 essential in causing trigeminal neuralgia. " Source: Biology Department, Medical University Syracuse NY. "Abstract: The etiology and pathogenesis of major trigeminal neuralgia remain largely unknown, but are believed to result from an irritative lesion near the semilunar ganglion. We suggest that its primary cause is a single, active DNA sequence in the persistent but non-integrated genome of latent herpes simplex virus type 1 commonly observed in a few infected A-delta nerve fibers in the cheek. Facial pain occurs as a result of herpes virus reactivation and when supplies of neurotrophins controlling normal transport functions of axolemmal ion chanels become depleted."

The paper gives a theory as to causation althought not a remedy. My suggestion is as follows which will kill viruses of all kinds.

A person who is seeing cases of mono, ear infections, sinus infections, cluster headaches, migraines and Bells Palsy might see this type of TN infection also. I gave my own personal experience in the Earth Clinic Bells Palsy thread. I futher hypothesize that hormonal issues may be a triger to the viral activation which might explain why females are more often effectd than males.

A possible attack on the TN virus is to use a topical application of fifty drops of colloidal silver and add ten drops of DMSO to make it penetrate through the skin into the nerve. Apply as a poltice with a white paper towel and let it sit for fifteen minutes. Press against the paper towel to be sure the liquid absorbs into the skin. Be sure to use a white paper towel and do not have any other substances on your fingers. (The DMSO is a carrier, solvent and penetrant. ) Do this procedure at least six times over a two day period. In theory, the silver will kill the virus. Same procedure for Bells Palsey. Shingles too. God bless.

Thanks for this post. how long does it take to cure the virus and how would you know? I just started using DMSO by itself, and it gets rid of the pain immediately. On another page here it says DMSO cures herpes, and since this may be a form of it, then I would would think DMSO would be enough. I need to read up on the silver because I am not sure of using silver in my body.

I have had this pain for 2 years and had teeth pulled. A month ago I quit chewing foods like crackers, meat, etc. as it would start the pain. I would wake up pain free until I had something I really had to chew.So I went to soft foods and it helped a lot.

The DMSO is a God send. Some people are afraid of DMSO, but I began using it back in 1981 and have used it often over the years for other problems and it has always cured them. My blood tests to this day are normal.

Recently I added the B-12 and B-1 mentioned here, and I will continue with it especially since I am almost a vegetarian now, only eating fish and need those vitamins.

As for using peppermint oil, yes, it works, but touching your face with it causes pain, and so when the affects wear off you are in worse pain. Same with Tabasco Sauce or Cayenne. I believe, in spite of what my doctor said, that you should not agitate it by touching or chewing hard foods. This is only my own opinion. The DMSO being in a roll bottle doesn't hurt for some reason. Also I go to the Farm Supply to buy it because theirs is stronger, and they will tell you that it is animal grade and not for humans, but hey, they use it on Thoroughbreds and they don't want their animals harmed. Again, this is my own opinion, but I could never get DMSO from other sources to work for me on anything. And like I said, I have been using it for 40 years.

Hello Tom,

In answer to question on how often to use...depends on how long condition has gone on and how severe the outbreak.

Normally, I'd try to use one poultice every other day for a week...then if some success, once a week for a month. If benefiting, I'd do it once a week thereafter for six months. I contend the condition is an infection and infections can go into hiding (virus especially so...read about them online), living in limbo inside our cells. So the continuous use of the CS/DMSO cream poultice must be regular and immediate at any sign of a new outbreak.

I have posted on earth clinic before. You can read my post from 2011. You can reach the Doctor who helped me at [email protected]. He specializes in chronic facial pain. My TN type pain also started from dental surgery - surgery to my jaw to get to an infected nerve after a root canal didn't work. I am so grateful that a lady from a trigeminal neuralgia support group told me about her success with Dr. Sprinkle using the all natural Omura protocol. I started in 2009 after being almost completely debilitated from the pain. Took about 6 months for me to regain most of my health. You can contact me at [email protected] if you'd like more information. My heartfelt prayers to you. I had no idea this type of pain was possible and I was an endurance athlete before and used to pushing my body through pain. It turned my life upside down. Let me know if you would like more information. I remain pain-free since the end of 2009.

DMSO is a carrier in thru the skin to the body, so if there is a healer, like colloidal silver it will push it in or an anti inflammatory etc. My mother is on death's door having had over a year of unrelenting agony, she is praying to die and there isn't a thing that is helping her, but I've tried heaps. Things to try: GABA, epilim, tegretol. Keeping the tongue completely still with lips closed and breath through the nose, drop and relax your shoulders, heat packs may or may not help, valerian or a natural relaxative, neck support. And drink only electrolyte drinks. Just a few things to try.

Hello:

I was trying the oral B12 B complex (the active forms) but after awhile, the shocks started coming back quite alot. I am back on injections for now, which seem to help completely. But I have also found that going to a upper cervical chiropractor may help many people with TN. It helped me immediately.

The upper cervical chiropractors are highly skilled in the spine and neck regions. A slight adjustment (hardly noticeable) puts your neck straight and then the spine follows. This allows the nerves to work properly and must have moved my nerves off the wrong portion on the skull where the Trigeminal Nerve lies. All I know is that it stopped the shocks. I have to be careful what I do to my neck now, and I follow the doctor's advice. I will still take the B vitamins, but because of a malapsorption problem, my body just doesn't assimilate it as well as it could. It maybe a year before my body heals from the gluten I have been giving it. I am very gluten intolerant and that can cause your body to have problems storing and activating nutrients.

Look up NUCCA, which stands for National Upper Cervical Chiropractors Assocation and see if you can find a referral list for one in your home area. Then don't wait, but go. It is the best decision I ever made. There is no painful period afterwards, either, as you hear there is from osteopathics. Just relief... Some people may take more than one adjustment for total relief... but I think it works great for this affliction.

Hi Pat ; Thank You! I'm not a professional practitioner, I'm someone who has had many conditions over the years, and has tried a great many substances to alleviate them, like folks here. I came looking here in my searches through the internet a couple of years ago, and found what I consider to be one of the great inventions of this century, really. Deirdre has designed this forum so that people can report their findings, positive, negative, inconclusive, etc. , so that we may better understand their effects. We are specimens in the best of ways, who share this information with each other. This is a very intense theater of the real, and it takes a lot of bravery for us to reveal our conditions to each other, but it can be most healing. ( I admit to feeling a lot of embarrassment after I post). I see these qualities in your posts, and I look forward to reading your results with whatever you find in your ventures.

Even though our posts are anecdotal, we can learn so very much from this. So again, Thank You Deirdre for creating this marvelous forum!

I have tried and had success with the Laser Med Center. It has reduced my pain by about 80-90%. I have had no "episodes", but I have had cycles where I still feel "twinges". They come and go, but they are nothing like the pain I used to have.

Dear Aileen, So glad you are open to "natural"...and if you look under Ailments (Earth Clinic) ... under "T" and scroll to Trigeminal Neuralgia ... the first post if a post by me from a few years ago. Please read the thread and you'll find my proposal for what is causing TN and what I'd try to rid myself of it if I had TN. I believe TN is caused by a virus...like Bells Palsy. Or like Shingles.

Please take a look at what I suggest. I did cure myself of shingles by using this method.

The idea is that something prompted the infection... maybe dental work or a serious sinus infection. And you'd have a clue as to this possible source if you can go back in time before the onset of your symptoms and if you recall a few months/six months or so prior to symptoms, if you had some dental work or a serious infection. That's a clue that indeed the problem might be a virus.

My mom has TN. She started out with diabetic neuralgia, got shingles and the neuralgia moved into the trigeminal nerves. She doesn't have excruciating pain any longer, but has almost constant burning in her head and that side of her face. She had to stop the seizure meds as she is 83 and could not handle them. She is still taking Gavapentin, but it doesn't help. Obviously with her being diabetic, a high fat diet is not such a good idea. She already takes fish oil daily. How much B12 should she take. Is there anything else that anyone has found helpful???

Have you tried a neuromuscular Dentist?. I'm seeing one who has had success getting rid of TN. If you balance the bite to the upper cervical you can fix it.

Sonia:

It looks like no one has replied to you, and since you're in dire straits I'll try to give you some information which unfortunately is not from first-hand experience until hopefully someone else replies.

First , to your question, here's a good medical description of true TN:

Physical damage to the nerve caused by dental or surgical procedures, injury to the face or infections.

Here's the trigeminal (aka semilunar) ganglia, splitting to each side:

http://img.medscape.com/pi/emed/ckb/neurosurgery/247017-1505614-248933-1879073.jpg

More images of same:

http://www.bing.com/images/search?q=TRIGEMINAL NERVE&go=&form=QBLH&scope=images&filt=all

I assume you are in too much pain to try things like oil-pulling, or even swishing some colloidal silver around orally?

It is very likely that you have nerve trauma, not an infection, and that the pain should decrease slowly as the nerves heal and rejoin. To that end, and I realize you may not be able to eat much if at all, you want to speed up the nerves healing with a few nutrients:

Can you afford, or do you even have access to, a naturo who can give you Vitamin B12 injections by needle? This is used by people with nerve problems, like MS patients and people with TN. If not available or too expensive, can you get a bottle of B12 sublingual 1000 ug or even 5000 ug tablets?

Do you have a basic lecithin supplement handy, in any form like granules, capsules, or bulk container? It has a small percent of sphingolipids in it, which are important in forming the nerve myelin (outer insulation sheath).

The above 2 will require NO chewing action, very important.

Hopefully it needs only time and nutrition to heal, since any oral surgeon doing additional work cannot guarantee that you won't be worse off than when you went in.

It would be good if someone with first-hand knowledge could reply to you while you're healing.

I was diagnosed with trigeminal neuralgia / atypical facial pain in 2009 after dental surgery to my jawbone. Sonia your description sounds very much like mine. I am so sorry. People who haven't experienced this pain, have no idea how horrible it is. It turned my life 180 degrees upside down. Thank goodness for the internet and the facial pain association and god's grace (I think it was formerly known as the trigeminal neuralgia association). Through their support groups I got in contact with a person near Dallas, Texas - who also had trigeminal type pain after dental surgery. I believe her name was Shelley Wilson and she had a benign tumor removed from her jawbone which led to her pain starting. She was on increasingly high doses of neurontin and painkillers for 5 years. I was so fortunate to have found her within 6 months of my pain starting. She led me to Dr. Allen Sprinkle - a dentist in Arlington Texas who specializes in chronic facial pain. He diagnosed the virus that had infected my trigeminal nerves and put me on the all natural Omura protocol (no more anti-seizure meds and painkillers)... It took about 6 months to regain my strength and health but now 2 years later I am pain free. Here is his contact information: Allen Sprinkle DDS 1106 W. Randoll Mill Road Suite 100 Arlington, TX 76012 (817) 461-9998. If you want more information from me you can contact me at batz(at)windstream.net

He also has a website if you google Dr. Allen Sprinkle in Arlington, TX. He's a very kind man and if you e-mail or call for him he's usually very quick in responding.

Don't be discouraged that he's not in your area. He may be able to refer you to someone closer as there are other practitioners of the Omura Protocol around the country. I pray for you that you are well on your way to healing and like I said I am glad to answer any e-mails or questions you may have.

I just wanted to update my previous post on 7/3/2011 that I am still pain free from using the Omura protocol (an all-natural treatment) prescribed by Dr. Allen Sprinkle in Arlington, Texas. I used the Omura protocol for about 6 months continuously and now just take a fish oil capsule maybe 10 times a year if I'm under a lot of stress. (see previous post for Dr. Sprinkle's contact information) In my previous post I described how my pain started after a dental surgery to my jawbone. I can still be reached at batz(at)windstream.net and I can also be reached at zoetrail(at)gmail.com. I have received several inquiries from this post on earth clinic and sincerely hope that anyone who suffers from this pain will find help here. I am so grateful that Shelley Wilson of a TNA support group in Dallas Texas told me of her successful treatment by Dr. Sprinkle and led me to him. Dr. Sprinkle was able to determine (where other western medical doctors couldn't) that my trigeminal nerves were infected with the chickenpox virus and prescribed a specific fish oil, cilantro tincture, and an acupuncture roller. If you have ever had the chickenpox as a child it will lie dormant on the nerve root and may come back in adulthood as shingles when triggered by stress, etc.

In my case the surgery to my jawbone activated this virus and it travelled internally (I didn't have any external shingle sores) deep into my jawbone and ear. The pain was beyond anything I had ever experienced. Again, I am more than willing to answer any questions and I hope for anyone suffering with this disease that you find relief here. God Bless :)

LLLT laazer therapy can be replicated in the home with a ten dollar red laser pointer. 5 minutes twice/day on facial nerve ganglia and cervical spine. This works 90% time- no more stabbing pains; also have a chiro check vetebrae for misalignments; add fish oil and black cumin sedd oil. All work.

Hi I also suffered trigeminal pain really terrible .. I noticed it was linked to a pattern of being weak in relationships (not standing up for myself) ... everytime it happened I had a flare up. I had to become more empowered and everytime I started saying No to others .. the pain faded away. Very rarely now do I feel a twinge and I always know that I must be giving my power away normally because I don't like to upset others. I can't afford that luxury now!

For the Trigeminal Neuralgia heading, I wanted to mention that I've had ATN (constant pain in T2 and T3) for nearly three years due to an incompetent dentist. Prior to diagnosis, I was trying all kinds of things to stop the pain. I discovered just about any kind of peppermint gum (preferably the kind with a hard shell initially) will stop or greatly reduce the pain within a minute or two. As long as I can taste the peppermint flavor as I'm chewing, the pain is reduced. As the flavor goes away, the pain comes back. Now that I've been diagnosed and am on medications, I still chew gum in the afternoons when the pills decide they're not going to work anymore! This is very helpful when I'm driving somewhere and would prefer not to cry. Oh, peppermint flavored mouthwash does the trick, too. Do some major swishing for at least two minutes, and afterwards, your mouth will feel a lot better.

After trying several regular treatements for trigeminal neuralgia in all 3 branches on boh sides of my face, like antidepressants and anti convulsion medications, I ended up with no less pain and a truely scary list of side effects. Not wanting to undergo surgery due to the amount of my face involved and my still young age, I was about 18 when it started, I decided to start looking for alternatives without having to resort to iffy branches of alternative medicine.

In cooperation with 2 friends of my parents, a doctor and a physical therapist, we did a lot of research and ended up with a combined treatment of stimulating and strengthening my facial and neck tissue and high doses of B12 vitamins and omega3.

In addition I started on an extensive, but non straining exercise program to regain my overall health wich had suffered from years of severe pain that often prevented me from doing anything for days or sometimes weeks on end. I also dropped the regular medication since the side effects were so severe they were a problem in itself. Although my recovery was not speedy, I started to notice improvement after about 3 weeks. The pain was still a prominent factor in my life, but was less and less out of control. After about 2 months, I had a virtualy painless period that lasted for about 2 weeks and a half. This may not seem like much, but to me that was the first real painless period in 2 years. The pain came back, but from then on periods were shorter and the pain didn't peak as often. After about 6 months, I had gotten to a point where I could start picking up my life again. severe pain periods only occured about once a month or less and only lasted 2 to 3 days. Verry mild background pain was still present though. I continued the treatment and am now virtualy pain free, not needing the facial stimulation treatment and on far a lower dose of B12 and omega3. If I do feel pain comming up again, it is never as severe and it is enough to up my daily dose of B12 for about 2 weeks to be completely free of symptoms.

b12 is important so is Krill but what I found that got rid of TN "face pain" after 40 years was Cervical Chiropractor. thank God I tried the Chiropractor!!

Comment by Dave on 12/26/2014 - I totally agree with you that TN probably has a viral connection similar to Shingles. I wish some research would be done into this. My mother has had TN for 15 yrs and when I had Shingles a year ago, the commonalities were so obvious. It is an area that needs investigation.

What has helped my mother is Complex Vit. B injections weekly. If she misses a week, TN is back with a vengeance. Vit. B is water soluble and it not stored in the body. The other very helpful thing is natural GABA - NOT Gabapentin which is a pharmaceutical version that can be addictive and has other downsides. Be sure to get an unadulterated form of this naturally occurring Amino Acid, which works in the brain to calm down 'spikes' be they physical (as in pain) or mental (as in stress)

PS to Ear Infection as Possible Cause:

This is one of the best homeopathic home remedies ever:

If you have or suspect an ear infection and can't get antibiotic drops for any reason, take a small cup of fresh warm urine, turn the affected ear sideways or lie down with the affected ear up, fill the ear with urine and pop a cotton ball gently into the ear. Try to keep the ear upright for at least an hour and keep the cotton in overnight if possible, changing the urine daily until infection is cured.

Relief will be felt soon and this really works almost or as well as antibiotics...

And, the remedy is free and you don't have to worry about running out!

Also great for use on blisters and sunburn (application method known)

medical ingredient (contains Uric Acid)

P.S. this remedy also may facilitate the healing of pimples, pustules, and between the toes fungus or any external fungus. For pimples and pustules gently wash the area with water and a little body wash or gentle hand soap, rinse and pat and air dry well. Soak a cloth with urine and press it down on the affected area making sure the affected area is wet. Leave on at least an hour. Apply as often as possible until area is clear. Do not use cologne or perfume on area, and if on face turn your back to the shower when you shampoo and let the used shampoo run down your back when you rinse then scrub back with a back brush. Many pimple problems are caused by hair and scalp oil remaining on the face after shampoo. (I wish I had known that when I was 15 or 16)...

For between the toe fungus soak toes in urine for 1 hour a couple times a day if possible until fungus goes away...

Hello again fellow TN sufferers,

Here is another TN "Trigger" in case you have it. If you get chronic blocked up nasal passages and sinus blockage, especially at night while lying down or sleeping you must put a stop to this before it happens. I have found that nasal and sinus blockage evidently puts pressure on a nerve that causes TN. Also I have found (and I am not advertising) a nasal spray that works very well called Nasonex that is a prescription spray especially formulated for nasal and sinus problems. I use it in the morning and at bedtime, and another non-prescription spray during the day (Fred's nasal spray works very well, is not very expensive, lasts for months, and may work without the Nasonex). Whether it helps or not, try not to sleep on the affected side of the face as it will put pressure on the facial nerves...

Hi there, thank you for your comment, my father is visiting the acupuncurist since November 2015 till now and it help him not much. Please what is exactly the Five point acupuncture you mentioned in your comment?

Thank you very much for your answer in advance.

Michaela, Czech Rep.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2797593/

Above is a link to pubmed article that lists all the acupuncture points used over 14 almost daily sessions of acupuncture (versus the 2 or 3x/week that is mentioned in the article.) This protocol, along with daily megadoses of sublingual b12 (10K mcg/day methylcobalamine), high quality Omega 3 supplements, high quality curcumin (purchased in the acupuncturists office), and a daily cup of whole fat cottage cheese (sulfur?) with a teaspoon of organic almond oil, and a lot of clean, filtered water (mostly drank water only) cured my trigeminal neuralgia in 2.5 weeks! The pain has not returned at all. I have been pain free now for 4.5 months. I found the Vitamin B12 (methylcobalamine, not the other kind), cottage cheese, Omega3 suggestions on this forum!

I also made sure to not eat any foods that are considered "inflammatory".

Of course, talk with your doctor about this protocol. I would also highly suggest the book by Dr. Terry Wahls, a medical doctor who "cured" her multiple sclerosis with diet. I noticed that I did eat a lot of the things on her list.

Good Luck!

Just some more detail: I take 1500 mg of taurine in the morning then wait 20 minutes and take 1 magtein capsule. I do the same before going to bed.

I take them 20 minutes apart in case they may compete with each other. I am not entirely sure but I want to be safe and make sure the taurine gets absorbed.

I do not take PharmaGABA or L-Theanine because I think it seems to neutralize the protective effect of the taurine.

I found this quote some where which may validate my logic - "They found that the GABA antagonist abolished the protective effects of taurine, confirming that the taurine protection was due to its activation of GABA receptors."

I have found lithium orotate is a powerful brain nutrient. It did what taurine and magtein did but with many other benefits like neurotransmitter balancing. I took 120 mg which is equivalent to 4.6mg of elemental lithium. You experiment with dosage. There is a website called Lithium doctor which has most details on taking lithium. It also allowed me to take methylb12 and methylfolate without anxiety and jitters.

John, you may find that spreading the Lyrica out over the course of the day will give you more consistent relief. I was on 75 mg twice a day, and by spreading the same amount to 50 mg three times a day (same total dosage), I now last better at night.

I am also seeing a physiotherapist who is trained in myofascial release. This has also help greatly.

Has she had Vit D3 levels checked. Lots of people with chronic pain issues are usually low in D3. 10,000 IU/day is a good start. Many hospitals will prescribe 50,000IU of D3 when levels are low. If they are low D3 can helpful on so many levels.

Sandy, so very happy for your wonderful discovery to help your daughter. Thank you for finding a solution and sharing on Earthclinic.

Wishing you and your family all the best!

Dear Sandy, I would like as well join in congratulating you on your effort and success in helping your daughter. I have previously read that other people contracted this disease through dental root canals and one man could not take it any longer...

So it makes me very happy. Namaste, Om

My mother has trigeminal neuralgia also. The things that have helped her most are: B-12 (METHYLCOBALAMIN) form, it is absorbed better. Do not use the cyclcobalamin form, as it is not absorbed well. 5000 mg tablet is what she uses. Also recently, trying fish oil with the B-12. No Caffeine, No sugar, No alcohol. No foods that have a stimulating effect, such as mushrooms.

We have noticed over several years now, that her pain flares up when the seasons change from hot to the cold. We wonder if barometric pressure may also affect it. Every October here in Texas where we live, when the weather begins to change from hot to cold, she starts having the pain and then it flares up again when season goes from cold to hot.

I am following this 2015 recipe for Interferon for Trigeminal Neuralgia. Are the three cottage cheese meals with Almond Oil or Walnut Oil the only meals that I should be eating during the day? Are these three interferon meals the only meals you should be eating during this time? Or can you eat other things?

For instance, if I wanted to have celery and peanut butter as a snack will that mess up the outcome?

Please advise.

Thank you,

Loretta

I am only two weeks into this and am still at TN1 stage ... last night I lost my ability to speak (two minutes or so) pain was excruciating and scary. Will read up on alternative treatments ... I was disappointed to find out that my ever-reliable Endoderm patches ... made it worse ... maybe wrong placement ... thank you for your information ...

I have been diagnosed with TN for almost a year now. I am on tegretal and baclaven. The pain has become so bad that it is now interferring with eating. I an not cutting up my foods in very tiny pieces so I can more or less swallow without chewing. I am trying to stick to the soft foods as well, but sometimes even swallowing sets it off. Brushing my teeth often sends me through the roof. I cannot even kiss my husband anymore with triggering the pain. I have used the hot compresses with some relief. I read your comments on the vitamins and minerals. I think I will share them with my primary care physician. I am not on any type of pain meds (narcotics) as of yet.

Hi Mary, try antiviral remedies for your neuralgia. Our Dave has used colloidal silver against this condition, I think. Some other possible remedies are lemon balm, lysine, vitamin C, garlic, ginger, turmeric, etc. Good luck and please let us know what works!

If you can find a practitioner in your area who offers cold laser therapy treatments it may be very helpful for trigeminal neuralgia.

Steve

Diagnosed with trigeminal neuralgia 9 years ago. After 3 years of pain I opted for the Gamma Knife radiation. I was pain free for 6 years. Pain is coming back again so I am requesting to have procedure done again.

I've had this pain since 2010, but I was just diagnosed last 2014 because of financial problem. Gamma Knife was already introduced here in Philippines. But it was so expensive. It is more painful to know that I can't afford myself to be cured.

August 2,2015 I fell from the top of a step ladder and smashed the corner of my eye and cheek bone on the corner of a dresser. Cut to the bone. The nerve pain is so strange. When I press on my brow my teeth hurt. The pins and needles, burning and stabbing pain is very distracting. I though I had fractured my face but CT scan said no. Now that I know it's trigeminal nerve damage I at least don't think my teeth are fractured. What do you think of Biogetica's Freedom Kit with OM13 TNeuralgease Formula? I found it here whilst educating myself on this pain. I'm sure my concussion is some of it. But the nerve pain is something else. Really feel for all of you here that are experiencing this. ugh...

Sharon...I have been condensing the condition is virus based for years. If me I would try topical applications of Colloidal Silver with DMSO ...50/50. Every other day for two weeks. If I'm proved I'd continue for two months and begin consuming two tablespoons daily. For a year.

If anyone replies to my address please put reference to PHN otherwise I won't open E-Mail. I am the 2nd. person listed above from top .

I am currently dealing w/ Ulcer and did my usual reading, treatment , diet , exercise etc. that may help , as it turns out I've been here before regarding Vitamin B12 .

My PHN developed 6/2013 and still continues, as it continues I'm noting the pain is less frequent and severe , I've tried most any med along with sleeping w/ a cold compress placed on head . I fashioned a water / ice bag to fit the contour of area placed . I lined it w/ a plastic bag to avoid any leakage , apparently minerals found in water supply ate through the first bag causing me to wake from the H2o Dripping , that doesn't occur w/ lining of bag .

After reading about Ulcer Remedies / Help there was a mention of Vitamin B12 , the Methylcobalamin type , there is another B12 , the Cyancobalamin type , that converts into Methylocbalamin , I first took a pill ( Methy type ) last night 1000mg upon waking this morning , the V5 Upper Branch Trigeminal Nerve Pain was less than the most recent past ( THANK GOD! ) here it is 14 hrs. later the Nerve Pain is still " in check " .

I can only surmise the Cold Compress I put on head nightly lessens most any inflammation of any affected blood vessel close to skin.

I read your letter. My thoughts were the same, suicide. It is stated in the bible thy shall not kill thy self. My thoughts were the same, I could not figure out how to keep my soul from burning in hell. Brother/sister, all I can tell you is welcome to hell on earth. Now let's team up and kick the thoughts of suicide, and hells together. I am at 14 months of 24/7hours of pain everything from face, top of head down to c-6 vertabea. This tries to help macaroni salad with spinach & soften the broccoli with steam mix in big bowel eating calms the pains. fruit salads with red grapes watermelon cantaloupe pineapple and salted light.

I lost a loved one who suffered from trigeminal neuralgia disorder for 6 years.

The neurologist prescribed all the medications listed and it did not work. At the beginning stage the pain was bearable but just recently in 2016 the pain was so severe an uncontrollable.

He had not alliterative choice but to seek for a surgery which was his last desire. With fear he did his surgery hoping to come home and go on with his life as a normal guy.

After operation he was in the ICU for 8 days not recovering. in a coma. His hands started turning blue.

He passed on 5/7/2016 not recovering, At times I wonder should he have not gone through surgery.

But he was in so much pain.. He took a gamble in life. I am so devasasted

Mages, I am so sorry for the loss of your loved one. I just want you to know that you have helped me and probably many others by telling your story. I was already against the medicine and also the surgery. I have heard mostly bad about both of them. It also helped me to know that his pain wasn't so bad in the beginning.

I was diagnosed sometime in the past year. I didn't believe it at first b/c my pain wasn't as bad as people described and also b/c it had come on gradually. I also have a horrible balance problem which has never been corelated with TN. Then I began to believe it when my pain worsened quite a bit and was brought on by drinking cold milk too fast. My pain was also much worse last night when trying to sleep. After sleeping a few hours I awoke to throbbing pain all over my head which felt like my brain had swelled. I am still not sure I don't have a tumor even though the neurologist says I don't after an MRI. I didn't have the contrast dye and wonder if they can tell for sure.

Your post lets me know to vigorously search for the right answer and to not spend time on anything else. I am looking into methyl-b12 and trying to learn all about that possibility of healing.

Again, I am so sorry for your loss and I see that it has only been two months. Thank you.

I hope you tried acupuncture. I am sure you have excellent practitioners in the Philippines.

Thankfully, I have a mild case that seems to go away with Advil, an anti-inflammatory but it could get worse so I want to get ready! I am taking vitamin Bs which are good for the nervous system (nerves in the body). And I am also taking B12 under my tongue which I hope will help, too.

Good luck to you.

Robin in Montreal

Hi Jes,

I'm so sorry I never saw your message before. I am the original poster of this thread and I can say that 1 year later, I am still living free of trigeminal neuralgia and all MS symptoms. If I lower my dose or forget to take my vitamin D for a few weeks I can feel minor symptoms returning (like pins and needles etc) but all I do is simply up my dose a little again and all is well. I can't imagine what my life would have been if I hadn't found this. Research vitamin D! It's a cheap cure and it that is why it is not promoted by Big Pharma. They'd rather you take their meds for the rest of your life. This cure will work for anyone with neuro symptoms, MS or trigeminal neuralgia due to demylination. If anyone has any questions feel free to email me - bee_mcc (at) hotmail (dot) com.

-Bee

Trigeminal Pain: I get the icy cheeks, pain in head... But does anyone get the very sore head - scalp where I can't even find a good spot to sleep because of the soreness on my scalp? Is this TN also?

It could be. I have found that sleeping with head elevated keeps flare ups down. The blood vessels in head are blood engorged and increases pressure on nerves, causing them to fire off. Try it

The coconut oil and cell salts are so far reducing flares.

I am a patient advocate with the Trigeminal Neuralgia Association. I would like to bring attention to a recently discovered diet for stopping TN pain. Patients in 10 countries became pain free by dramatically reducing the saturated fat in their diet. Dr. Narayan Verma at the 2012 Annual Meeting of the American Academy of Neurology, presented the results of a 14-year study establishing the efficacy of this therapy. Dr. Verma is a professor of neurology at a medical college, in private practice, listed in Who's Who, and authored 70 peer-reviewed papers. Failed percutaneous procedures, radiation, or the MVD surgery do not necessarily reduce the diet's effectiveness. It takes less than a month to know if the diet is effective. For a 10-page report with diet instructions, the amount of saturated fat in 140 foods, and recipes, email a Post Office mailing address to ([email protected]). The report is free to any country. The American Heart Association recommends this diet.