★★★★★
So I read more and found that a virus also could contribute to TN. I have an old Bob Beck Zapper from the 90's. It works by placing the contact probes over the Ulna and Radial arteries. I would use the zapper 30 min each nite before bed. W/i 2 days the involuntary shocks stopped. Now all I had were the shocks that I triggered off by touching various spots on my face (R side only) I noticed that the intensity of the shocks decreased from 12/10 to 5/10. I quickly learned where not to touch on my face.
After about a month of nightly zapping, I am now to the point where my shocks are gone, even when toughing my face. It looks like the virus was the main cause of my TN. I continue to zap each nite for 30 min. This is a blood purifier and takes care of all pathogens and viruses in the blood.
White Radish, Ginger
★★★★★
Ingredients:
2 cups of water
1 average size of White Radish (White Carrot)
Slices of fresh Ginger (optional)
Steps :
1. Wash the white radish, cut into smaller pieces
2. Add 2 cups of water to ceramic pot, close the lid, put to boil
3. Switch off when liquid content reduced from 2 cupful to 1 cup.
4. Drink the liquid between dinner time 7pm to 8pm only
Note : For those elderly who experience discomfort due to radish being a cooling vegie, ginger slices can then be added in step 2.
My mother has seen major improvement after only few attempt, she can now comfortably chew on almond nuts too which she never did for a long time. We like to give thanks and hope by the sharing of this wonderful recipe, many others could benefit from this horrible experiences.
I'm back, still dealing w/ sporadic aching / stabbing, get's easier as time goes on ( 4th. year now ), compared to pain after a Grand Mal Seizure, this is a " walk in the park ", mind over matter ( simply pay it no mind and it won't matter ). Turns out increasing B12 daily dosage from 400mg to 1000mg was the culprit, I had surmised such after surfing various sites pertaining to B12 and in some cases side effects.
After seeing Dermatologist, her referral was that of a " Pain Specialist " ( more appt.'s $$ ) I've been dealing w/ idiopathic left temporal lobe Epilepsy way too long to know what comes after referral and original consultation from one " Specialist " to another, what else but more " follow up's & test's " .
I walked that road over 15 years ago after deciding to try elective brain surgery @ Yale Univ. New Haven, been having countless seizures, both complex partial along w/ grand mal ( " slammers " ) & amnesia, whatever is " done is done " logic alone leads one to believe there's no fixin' this but the Nice Cold Gel Pak sure does suffice at times, especially now as I type.
Only managed to make Phase 3 @ Yale ( 5 interior electrodes ) shortly after Triple ByPass making me no longer an eligible candidate for partial lobotomy, might very well have been to my benefit, can't cry over spilt milk.
Reason for writing today is : DO NOT use excess B12 ( in my case anyway 400 to 1000 ) today after cutting 1000 pill into half, the chronic stabbing burn above eye along w/ forehead and side just above ear is every bit apprx. 90% LESS, leaving a slight easily tolerable one on top towards the rear of skull.
If this helps one persons attempt in pain reduction my time won't be wasted, nor will theirs.
Good Luck ........ careful w/ excess B12, see Primary first or have a blood test to know it's dissolution factor / half life.
20 Minute Walks
★★★★☆
Acupuncture, Multiple Remedies
★★★★☆
I have been having acupuncture in my face neck and head and it has made such a difference. My pain was unbelievable, I wanted to cut off my head. I am also taking Vitamin B5 B1 200mg 4 tablets 2 x daily of each. Also Nervagesic (natural) by Mediherb 4 x 2 daily. The B5 is called Pantothenic Acid these all help to calm your nerve's and ease stress while building back nerve covering.
My natural health care professionals told me to de-stress as much as I can, rest and keep taking vitamins including Magnesium in good quantities.
Use heat packs, that is very soothing, stay out of the heat and direct sunlight on your face. If you are suffering with the pain in your teeth, avoid chewing on that side. Eat soft food or soup that needs little or no chewing. Also use a toothpaste for sensitive teeth and brush your teeth up to 5 times a day. This helped ease my pain.
Hope this has helped. I am still suffering but nowhere near as much as I was. Each day the pain seems to lessen. There is hope just hang in there and never stop asking question of people that know what they are talking about. Especially those who have had the same condition.
DMSO
I can't speak for anyone else, but if I had Trigeminal Neuralgia, I would try melatonin lotion as one of my first options because it is a simple noninvasive approach. Here is a link about it and how my friends make it :
https://www.earthclinic.com/supplements/topical-melatonin-pain-relief-success-stories.html
The following study suggests this potential use of melatonin :
Here is a relevant study quote:
In this situation, melatonin can decrease the frequency and intensity of pain syndromes through inherent analgesic mechanisms and circadian rhythm normalization. Melatonin receptors were found in the ganglia and nuclei of the trigeminal nerve, suggesting that melatonin decreases trigeminal vascular nociception.
Art
Peppermint + Cistus Essential Oils
★★★★☆
20 Minute Walks
I'd suggest " lining it " w/ a plastic produce bag to extend the life and stop any leaking, fill it halfway ( approximately ) then refrigerate.
The Cold Temp will lessen any Blood Vessel inflammation causing contact on Nerve that generates Pain.
I came across this article studying the effects of vitamin B12 and it's effect on Myelin Sheath surrounding damaged nerve and nerve fibers. You name it I've tried it, Lyrica ( nasty side effects ) stopped, Dilantin ( taking it for 41 years Partial Complex Epilepsy therapy ) short half life's recurring sporadic nerve pain, Capzasin, Tricalm , Lidoderm / Lidocaine topical Patches ( poor adhesion ) Calamine, Eucerin skin calming cream, I'm certain I missed others.
Turns out the Vitamin B12 had an obvious effect and that I will know for certain by tomorrow and even more so in 72 hours .
INFLAMMATION causes COMPRESSION / cool compress works for me .
Upper Branch V5 Trigeminal Nerve / Fibers
Cold Laser
I began many of the strategies suggested by many of you on this site: Biogetica, increased magnesium, diet, Vit B, bolstered my immune system, prayer, meditation. I think these strategies were all helpful as I believe in a holistic approach and I am grateful, for that reason for this website.
Now it is I have some important input to add. There has been mention of cold laser therapy, and especially for those of you suffering from a form of TN referred to as Post Herpetic Neuralgia there may be good news. I have researched Cold laser therapy which is also referred to as, Low level laser and found that although there is some dispute as to the efficacy of cold laser there is growing agreement as to its benefit in pain reduction with specifically nerve pain. The Trigeminal Nerve is the chief sensory nerve of the face which is why it causes so much havoc many of you report but the good news is that it is relatively superficial- which is to say easy to get at. It does not hurt, it has a slight warming sensation. The probe does not touch your face but rather is held 1/4 to 1/2 inch off the skin. It cannot harm you. With a class 4 laser you wear protective eyewear.
So, here is what I did. Using a protocol I heard about as a baseline that treats an hour a day, 5 days a week for three weeks (total 15 hours), I found a nearby Chiropractor who was willing to treat me with a Class 4 Cold laser following the nerve pathways of V1 and V2 . ( I printed out a schematic of the Trigeminal and took it in.) His laser machine runs 8 minute programs for neuropathy and we did two 8 minute treatments at one session and later added a third 8 minute session for a total of 24 minutes for a session. I went twice a week for 2 months and then tapered off. It has been 6 months now and I have had a total of 8 hours of treatment and I am pain free. If I do have a few 'hits' I go get a treatment. Yes, I still take 600mg of gabapentin but have been able to dose down and hope to reduce more after the cold weather has subsided. I experience weeks as opposed to days without as much as a twinge. I just went to the dentist for the first time in two years for a cleaning without a problem. I can brush, floss, eat, talk and move my upper lip and have not had a major 1-3 hour pain episode for 6 months since beginning the laser treatments. I probably began to feel the more lasting results at the 5-6 hour mark. If I had lived closer I might have gone more often.
According to the current FDA standards, an FDA cleared cold laser addresses 4 main issues: Chronic or Acute Pain control, Inflammation reduction, Increased blood flow and Accelerates healing.
So, if it is you want to give Cold laser a try here are my recommendations based on personal experience:
Locate a Chiropractor, Physical medicine clinic, Dentist etc. who offers Class 4 Cold laser treatments. Some may already have a protocol for TN. Many of you are aware of the M Beach clinic as well- (although I bit pricey)
Plan on having several treatments as I found it is not a magic-wand-one time only fix but rather has an accumulative effect and so several treatments are necessary.
Negotiate a price since you will need several treatments.
Stay hydrated.
Maintain all the things you have been doing. Supplements, homeopathics, hot packs, patches-- whatever you do that provides comfort.
Keep a journal to chart your progress.
Lastly, a resource for those who want to learn more about lasers is: COLDLASERS.ORG The site will educate you about lasers for pain management and how they affect the healing process. Especially for those of you who have had a viral assault or inflammatory process. I wish all of you who are experiencing this painful condition progress and blessings on your healing journey.
To your healing, Lindajb
To answer your question, I understand not wanting to use DMSO close to eyes; but to get best effect I need a carrier. So I often use DMSO in cream form. I just use about a teaspoon amount mixed with colloidal silver. That way there will be no dripping of DMSO into eyes. I'd not use above eyebrows and keep an inch away from eyes.
Alkaline Diet, Peppermint Oil
The paper gives a theory as to causation althought not a remedy. My suggestion is as follows which will kill viruses of all kinds.
A person who is seeing cases of mono, ear infections, sinus infections, cluster headaches, migraines and Bells Palsy might see this type of TN infection also. I gave my own personal experience in the Earth Clinic Bells Palsy thread. I futher hypothesize that hormonal issues may be a triger to the viral activation which might explain why females are more often effectd than males.
A possible attack on the TN virus is to use a topical application of fifty drops of colloidal silver and add ten drops of DMSO to make it penetrate through the skin into the nerve. Apply as a poltice with a white paper towel and let it sit for fifteen minutes. Press against the paper towel to be sure the liquid absorbs into the skin. Be sure to use a white paper towel and do not have any other substances on your fingers. (The DMSO is a carrier, solvent and penetrant. ) Do this procedure at least six times over a two day period. In theory, the silver will kill the virus. Same procedure for Bells Palsey. Shingles too. God bless.
★★★★★
★★★★★
In cooperation with 2 friends of my parents, a doctor and a physical therapist, we did a lot of research and ended up with a combined treatment of stimulating and strengthening my facial and neck tissue and high doses of B12 vitamins and omega3.
In addition I started on an extensive, but non straining exercise program to regain my overall health wich had suffered from years of severe pain that often prevented me from doing anything for days or sometimes weeks on end. I also dropped the regular medication since the side effects were so severe they were a problem in itself. Although my recovery was not speedy, I started to notice improvement after about 3 weeks. The pain was still a prominent factor in my life, but was less and less out of control. After about 2 months, I had a virtualy painless period that lasted for about 2 weeks and a half. This may not seem like much, but to me that was the first real painless period in 2 years. The pain came back, but from then on periods were shorter and the pain didn't peak as often. After about 6 months, I had gotten to a point where I could start picking up my life again. severe pain periods only occured about once a month or less and only lasted 2 to 3 days. Verry mild background pain was still present though. I continued the treatment and am now virtualy pain free, not needing the facial stimulation treatment and on far a lower dose of B12 and omega3. If I do feel pain comming up again, it is never as severe and it is enough to up my daily dose of B12 for about 2 weeks to be completely free of symptoms.
★★★★★
Colocynth : Colocynth works efficiently in cases of trigeminal neuralgia where facial pains are violent, shooting, and stitching in character. Numbness may follow neuralgic pains and get better by pressure. There are tearing pains in the cheeks, stitches in upper jaw which reoccur frequently. Facial neuralgia and toothache remain confined to one side.
Hypericum : Hypericum is a highly beneficial medicine in cases where the trigeminal neuralgia starts after a nerve injury. Pains in the face are sharp, shooting, tearing or violent. There is marked tingling, burning, numbness in the affected area of the face. Facial neuralgia and toothache are present. Tension and tearing in the cheek may also be present.
Spigelia: Spigelia markedly affects the nervous system, particularly the Trigeminal nerve. It positively influences the heart, eyes and the head. Stabbing pains which make the patient shudder. Pains come suddenly and go suddenly.Violent tearing, burning, jerking pains in individuals who are very sensitive to touch.
Magnesium Phos: Used to control pain. Supra or infra-orbital facial neuralgia, especially right-sided neuralgic pains. Pain occurs in unbearable paroxysms, lightening-like pains, driving the patient to frenzy. Pains are cramping, shooting, spasmodic, sharp, cutting, stabbing; they come and go suddenly.
Platinum Metallicum: A useful remedy where there is a constrictive pain, numbness, profuse lachrymation.The pains are cramping, causing numbness and tingling; pain at the root of the nose or in the other part of the body as if squeezed in a vise. Neuralgias from hollow teeth
Antioxidants, NMDA Antagonist, Diet
The antidote I did take to counteract the effect of the these b vitamins etc was taking the supplement SAMe. SAMe is the best supplement to use as a methyl donor and also quickest to rehab with.
I need to address the methylation cycle in order to get the building blocks to a complete cure.
B12
★★★★☆
We have also noticed that here in TX where we live, when the seasons change from hot to cold-- it flares up. Every October is when it changes from hot to cold, and she has problems with it then and then again when it starts to get warm. We are wondering if the barometric pressure has something to do with hers acting up. She has had it for a long time now. She first noticed it after her teeth were pulled and she got dentures.
She recently added fish oil to take also to see how that works with the B12. If we see more improvement with that added to the B12, I will post again. I hope this might help others. It hasn't cured it, but it has helped.
Zapper
For a long time, I was mystified why I was getting a migraine headache. I have really been bearing down hard in understanding the cause for the past 4 years. I tried many migraine remedies. There have been many myths about migraines especially blood flow which compounded the problems. Researches have found migraines emanate from the brain stem somewhere. Not inside the brain.
The tried the standard remedies b2, B6, b5, magnesium, bromelain, butterbur, q10, ginger root, feverfew to no avail. I found magnesium and b2 worked to some degree but not enough so I even experimented with the coenzyme B vitamins and methylation cycle problems which were dead ends also. I still had not much control over my migraines.
It wasn't until I went to a chiropractor that I started to peel away at the cause. I found the chiropractor treatments worked some but I still had problems. Doing the treatments helped me understand that tightened muscles aggravated the condition which made sense why magnesium helps many people.
I also noticed the pain receding over the right eye to the side of my head with chiropractor treatment. I thought it may be an indication that I may have trigeminal neuralgia although I didn't have the shocks.
Over time the pain would recede to the C2 area of the spinal column. That was the proof I needed to diagnose occipital neuralgia. From there I was able to dig deeper. There had been some opinions that occipital neuralgia could be caused by herpes virus so I started focusing on the neuralgia aspect.
A few years back I pondered the possibility that it could be herpes caused so took some lysine for a couple days but that didn't put a
dent in the pain so assumed it was not the cause. I investigated herpes further and came back to lysine which I gave up on earlier. Also I added vitamin C. I found that the lysine helped a lot more. Without the chiropractor treatments and magnesium at same time also, it would have been hard to untangle everything.
I finally realized my migraines were caused by occipital neuralgia which in turn is caused by herpes zoster. also it was the root cause of the chronic meningitis I have had on ocassions.
I have had low level chronic shingles my entire life but they don't break out in skin eruptions like most people but just a little tingling on my the skin.
I ignored it most of my life since I was overloaded with a zillion other worse things. I did take a homeopathic formula for shingle 15 years ago that helped a lot with tingling but never touched the migraine.
I have had ME/CFIDS essentially my entire life. I am 60 years old. The virus is very aggressive in me. The heart of ME/CFIDS is that it is at it's root an encephalopathy disease so had difficulty untangling it from that.
I have gone to another chiropractor before this and he wasn't really able to help me but he wasn't as equipped as the other chiropractor who used a proadjuster. I have come to realize why my trapezium muscles tighten hence I can easily relax them myself on my own.
The point to this story is that I had to peel away at the problem to understand what the underlying cause of my migraine and eventually neuralgia was. The other point is that a chronic migraine could be caused by an underlying infection.
By the way, I have been using a Terminator 2 Zapper.
Acupuncture, Multiple Remedies
General Feedback
Trigeminal Neuralgia issue...
In studying TN, the problem you are having and ask about are very likely an extension of the TN.
Anita, if you read any of my recent posts I talk a lot about my theory that virus is behind a lot of mystery diseases.
I use colloidal silver mixed fifty/fifty with DMSO (google "youtube Dr. Jacob DMSO 60 minutes). If I had TN (like Bells Palsy) I take a white cloth and apply the mix to the affected area. I might use a greater amount of the water based CS, because the DMSO can sting. The idea of such a series of applications is that CS (and DMSO...an anti inflammatory too) can kill virus. Thus, IF the TN is viral based, then perhaps it could be arrested by apps of poultices with such a mix.
That's my theory on TN. That is what I'd do if I had TN.
Alkaline Diet, Peppermint Oil
Re TN and using DMSO and colloidal silver...
You ask how long should the treatments be used? Well, I mention a number that I'd use to see if the formula would bring relief. You are certainly perceptive in your understanding of DMSO. DMSO has been a "friend" for twenty years. It is anti inflammatory so by itself (as you mention) it could give some relief and also DMSO is an anti viral or so I've read. But I use it with CS, knowing that CS definitely kills viral infections. So IF TN is viral based, then (like Bells Palsy) in theory the TN could be helped with a DMSO/CS poultice.
I'd apply three times a week for a few months...or until the symptoms are gone. AND, I would drink the CS (without the DMSO) .... two tablespoons three times a day for a few months to make sure the virus is killed in the system. Take the CS orally on empty stomach.
Homeopathy
★★★★★
DMSO
You may want to look into high dose thiamine in the TTFD form. See Elliot Overton's article
B12
Even though our posts are anecdotal, we can learn so very much from this. So again, Thank You Deirdre for creating this marvelous forum!
B12
General Feedback
★★★★★
He also has a website if you google Dr. Allen Sprinkle in Arlington, TX. He's a very kind man and if you e-mail or call for him he's usually very quick in responding.
Don't be discouraged that he's not in your area. He may be able to refer you to someone closer as there are other practitioners of the Omura Protocol around the country. I pray for you that you are well on your way to healing and like I said I am glad to answer any e-mails or questions you may have.
General Feedback
In my case the surgery to my jawbone activated this virus and it travelled internally (I didn't have any external shingle sores) deep into my jawbone and ear. The pain was beyond anything I had ever experienced. Again, I am more than willing to answer any questions and I hope for anyone suffering with this disease that you find relief here. God Bless :)
Vitamin B Depleted by Flax Seed Connection
★★★★★
Peppermint Gum
★★★★★
I got Migraine, Trigenimus caused by Shingles. I found a solutation with liquid Vitamin C, B1 and B6, B12 and "Folsäure". All in are in ampulles. I take the C, B1 and B6 in a little bit of water everyday, sometimes once more before bed, depends on the pain. the company is: I order it by Amazon. Also Gaba and Saffron helps. neural therapy helps also. I do it mostly my selve, you want find Dr.'s in Switzerland who are in praxis, or right away available, just a little bit of procain or lidocain, 1-2 mm in to the hole by the ear, which you feel. You get right away relieve. Also from Regenaplex Nr. 130 is especially for Trig. I just take the bottle and let it drop from last tooth to the front, it is my right side. First time it heat me it was Sunday evening, looking up in the Internet I found Propolis, done the job to go to sleep.
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