Grover's Disease Remedies

Vitamin D3
Posted by Jack (Nebr) on 12/16/2017
5 out of 5 stars

Liquid vitamin D-3 400 IU, RUB on skin for relief! I do this twice daily, it really keeps the itching and the red bumps down. Best thing I have found to date. I use a lot more than the 4 drop dosage topically.

Vitamin D3
Posted by Sherry (Scottsdale) on 01/25/2018

I was just diagnosed with Grover's disease today, after months of treatment for eczema and follicular is. Nothing worked. I will try the Vit D3. Thanks for the info!


Seawater
Posted by Penny (Fl) on 09/04/2017

How did the paste work for you? I live in South Florida and had already thought a saltwater swimming pool would be a nice addition to the house. Its better for anyone's skin, than chlorine treated pool water. Thanks.


Multiple Remedies
Posted by Jillian (Eramus) on 06/14/2017

My DH is 74 years old and on a corticosteroid inhaler for emphysema. This stuff has thinned his skin & he has crusty patches that he picks at. One ear practically has a hole in it and it's in his sideburns/beard. Would neem oil help? We've tried acv, vco, oregano oil, colloidal silver, d3 and so much else. I know that his skin sheds toxins b/c he'll get red spots on his back when he has a lung infection--we always know before the dr does. We work on his nutrition but it's hard since he hardly has energy to eat at all and can't chew the raw stuff. We do fix him bone broth and plenty of veg's, low sugar. He can't stop the inhaler or he won't breathe at all. If neem will help, just mix w/ olive oil or something and apply? Thanks.


Diaper Rash Cream
Posted by Anthony (Tulsa, Ok) on 06/03/2018
5 out of 5 stars

Thank you very much for the butt paste suggestion! I have had the red bumps of Grover's for at least a year. Told by dermatologist really nothing I could do about it, but it may go away on its own. Steroid cream, no effect. Just bought a $60 tube of Terrasil as I thought it was worth a shot. Pool season is here I did not want to show off this rash or always wear a shirt. Plus, just the exposure to chlorine and saltwater both seem to amplify the condition like sweating does. Was actually told by dermatologist just to avoid any activity that would cause sweating. I read this post, went to Walmart and bought the $8 tube of butt paste. I am so happy to report one application wiped it out by almost 90%! Two days later, two applications per day and it is almost completely gone! No redness, can feel a few spots that are raised, but no discoloration or itching! I would not believe it if it had not happened to me. Returning the Terrasil for a refund. Think I will also start taking some oregano oil as a precaution. I cannot thank you enough!


Diaper Rash Cream
Posted by Veronica (Michigan) on 04/01/2021

coolness does seem to help the itching.


Vitamin A
Posted by Lynn (New Zealand) on 08/09/2017

Hi Pet,

I am interested in trying your Vitamin A dose to heal Grovers. I have had Chronic Grovers for nearly 2 years and would do just about anything to fix it. However, I have read that high doses of preformed (supplemental) Vit A can be toxic and quite dangerous. I would be interested to know how you are doing now and if the process continues to heal and are you now on the daily maintenance dose you stated? Thanks and all the best.


Vitamin A
Posted by Mary Ellen (Oracle, Az) on 04/22/2018

Is it still working? Please update.


Emu Oil
Posted by Elizabeth (Kentucky) on 02/07/2017

I was diagnosed with Grover's last year and have a had a flare up since December that won't go away with the topical steroid that I've been using. I use emu oil for other skin issues so I've decided to give that a try. Will see if it works after a week. Wish I knew why I have this!


Diaper Rash Cream
Posted by Donald (Springfield, Ill) on 09/10/2016
5 out of 5 stars

Grover's Disease. I had this for years and steroid creams prescribed by my Dr. did not work. I started coating my chest and back with diaper rash creme before any activity that would result in intense sweating and it has cured it. I still have scars from previous outbreaks but at least they no longer itch of bleed.

Diaper Rash Cream
Posted by Emma (Va) on 04/11/2017

Please let me know what specific diaper rash cream!!! Desperate here!


Diaper Rash Cream
Posted by Natalie (South West Florida) on 05/15/2018
5 out of 5 stars

Try Triple Paste medicated ointment for diaper rash. It works great


Salt Baths
Posted by Jack (North Platte Ne ) on 06/25/2016
5 out of 5 stars

For grovers disease:

Take salt baths, I use salt, baking soda, and borax. For small flare ups, I make a sea salt solution until it won't dissolve any more salt and apply directly to the outbreaks. This has rescued me.

Salt Baths
Posted by Linda Foster (Long Beach) on 10/06/2016

I was just recently diagnosed with grovers disease and will be going back to the doctor. I have been searching the websites to find out of it can be transferred to someone else as I care for two grandchildren. If you can help me with this one question I would be thankful.


Salt Baths
Posted by Robert (Palmdale, Ca) on 12/17/2016

How much salt etc ..do you put into the bath?


Salt Baths
Posted by Jim C. (Santa Rosa, Ca, Usa) on 03/10/2018

I am an ancient avid male swimmer just contacted Grovers. Does anyone know if swimming in a chlorine water pool is definitely counter productive? Staying in shape is also important and yes Grovers is a big pain/itch in the back.

How about this new Salt-only pool purification, anyone had help swimming in that sort of pool water?


Vitamin A
Posted by Michele (Texas) on 06/19/2016

Can you PLEASE share the name of the dermatologist friend you mentioned in Manhattan? Thank you.


Vitamin A
Posted by Mike (California, Md) on 07/19/2016

In Natalie's (from Lakeland, FL) post she said she took "50,000 IU of Vitamin A for one week and 100,000 IU of Vitamin A for one week"... Did she mean 50,000 IU per day for one week and 100,000 IU for one week?


Vitamin A
Posted by Brad (St Augustine, Fl) on 01/07/2017

Natalie, thanks for the input. I lived in CA for over 40 years. I moved to Florida 2015. That is when I broke out with GD. I ride bike, and sweat a lot on my chest. I also run into 'no-see-ums' and get several bites each time. Never have I got so many insect bites in my life since living in FL . So it sounds like, heat, sweat and insect bites are the combination of my reaction of GD.


Vitamin A
Posted by Ellen C (Long Island, Ny) on 02/14/2018

Thank you to you Grover's Disease sufferers for this blog. I have been looking for something to treat this annoying and life-interrupting disease. This winter's eruption is my worst ever. Belly and back covered and sooooo itchy. Went back to the Derm MD and got nowhere. Still prescribing steroidal cream which never helps and tells me to moisturize. Ugh! I am at my whits ends with a solution. Like you all, I have tried everything. Only relief I got was from jojoba oil mixed with peppermint essential oil for the itch. The pimply bumps remained. I am going to try the Vitamin A regimen. I, too, am afraid of the high dose toxicity. I am consulting knowledgeable vitamin people about this but want to make sure. I am also going to give a good zinc oxide cream a try. I do get relief in the summer months so while I have been thinking it might be the help of the salt water, it also might be the zinc oxide in my sunscreen. Can't hurt. Tried everything else. Any updates on the Vit A toxicity would be greatly appreciated.


Vitamin A
Posted by Ellen (Long Island Ny) on 02/24/2018

Hi All

so to add to my concern about my vit a concerns about toxicity, My symptoms which were the worst I have ever had since diagnosis in 2010 have subsided. I took 50,000 in of vit A for exactly 10 days. I then remembered I also took an 8 day course of oil of oregano orally at the same time because my itching/ scratching got so bad I was afraid of infection. Now that my symptoms have subsided.......knock wood.....not sure what helped. Confused. Will wait to see if it comes back and will try one remedy at a time.


Vitamin A
Posted by Christine (Ny) on 03/25/2018

He may be referring to Dr. Danzig. I hear his name mentioned constantly in correlation with Grover's and he is located in Manhattan.


Zinc Oxide
Posted by Janet (Idaho) on 01/25/2017

Thank you! I will try it today! I'm 54 (female) and been dealing with it for a year and just had the biopsy last week. Any updates of your experience are appreciated!


Zinc Oxide
Posted by Christine (Chandler, Az) on 03/29/2017

Thank you so much for your post. I am a 45 year old female recently diagnosed and my rash was as severe as yours. Crazy nightmare.


Zinc Oxide
Posted by Christine (Chandler, Az) on 03/29/2017

Thank you so much for your post. I am a 45 year old female recently diagnosed and my rash was as severe as yours. Crazy nightmare.


Vitamin D3
Posted by Art (California ) on 04/12/2016 1247 posts

Jerry from Dania Beach, Fl.,

Did you really mean "4,000 mg" or did you mean 4,000 iu?

The 4,000 mg dose is likely to cause health problems with continued use.

Art


Vitamin D3
Posted by Jenny (Nsw Australia) on 08/21/2017

Unfortunately I got no relief from this


Vitamin D3
Posted by Dan Z. (New Jersey) on 08/12/2020
1 out of 5 stars

I'm glad for your relief with 4000 iu's of D3, but I've taken 10,000 iu's of D3 oil gels & 4,000 iu's of powdered capsule for at least a year, and my neck, front & back, my entire back, my sides, around to my stomach have been itching me 24/7 for over a month. I even tried liquid D3 that someone suggested to apply topically, with no relief at all. HELP!


Ice
Posted by Kjb (Florida Keys) on 06/04/2016
5 out of 5 stars

I would dampen a wash cloth, put it in a plastic zip lock bag then the freezer. It was the only way to fall asleep.


Dietary Changes
Posted by Marsha (Muskegon) on 01/15/2016

Biopsies to definable Grover's but gluten free does not work for me if I get stressed really cold or hot it gets worse steroid cream no good, yeast rx no good cream no good what to do?


Dietary Changes
Posted by Sysya (Highland, Ca) on 09/22/2017

The Only thing that worked for me has been accutane (you need a prescription)


Grover's Disease Remedies
Posted by Vezza (Ohio) on 04/29/2015

Hi, Have posted a couple of things and thought I should introduce myself.

I received my diagnosis of Grovers from biopsy, on 4/28/15, yesterday.

What, rare skin disease! I still processing. But, it is my humble opinion that this can be cured and is only a symptom. The cause will show the cure.

I am already eating an amazingly clean diet and have elinimated food like products from my diet. I was doing this to just get healthy after a 10 year stint of first getting my disability and hip replacement then taking care of my Mom. If I only knew know what I knew then. But that is another story.

I started my quest because Mom wasn't getting better, and didn't the answers came to late for me to fix her mental collapse. But I have learned a ton and will be sharing.

Today I'm talking to a Chiroproator/Acupuncturists/Naturalpath and we are going to work out what's going on as soon as we fix the cervical spine. Not sure it isn't the problem completely. You clog of the flow of the bodily systems and stuff is going to go sideways. My neck has been bad for decades due to an injury and it's time to fix it and I believe my neck and this rare disease are connected along with my other issues. I had a cascade effect with my health lately all traced back to moving a piano a few feet. It's on rollers! Stupid, I know, but I learned from this idiocy, big time.

I'll keep you posted and let you know how my journey for a cure goes and where it takes me.

Grover's Disease Remedies
Posted by Rob (Virginia Beach, Va) on 01/23/2018 1 posts

Hi, I'm a 47 year old male who was recently diagnosed with Grover's disease. I have had flare ups off and on for over 3 years, but this latest one is by far the worst. Prior to being diagnosed with Grover's, I was prescribed prednisone by my GP. It seemed to help but did not completely disappear. My dermatologist diagnosed Grover's by biopsy, and prescribed hydrocortisone for the itch.

I recently stumbled across an article about an ingredient in Turmeric called Curcumin that seems to help in the treatment of Multiple Myeloma. While researching Curcumin I've found that it has powerful anti-inflammatory properties similar to prednisone, along with powerful antioxidants. I'm wondering if anyone has any experience with using Curcumin in the treatment Grover's disease.

Thanks!


Grover's Disease Remedies
Posted by Sherry (Scottsdale) on 01/26/2018

i was just prescribed clebatasol 30 mg for Grover's Disease. Has anyone had any success with this?


Grover's Disease Remedies
Posted by Billie (OK) on 11/09/2020

Recently diagnosed with Grover's and using a prescription ointment which has brought a great deal of relief. My question is regarding exercise since I'm to avoid sweating and overheating. I do some yoga and would like to swim, but I can't seem to find solid advice as to whether this would increase my risk of another outbreak. The pool is chlorinated. Any suggestions?


Grover's Disease Remedies
Posted by Charity (Faithville, Us) on 06/09/2020

Under Myeloma and Ted Q&A in this site are some things you might try. I tried to cut it and paste it but my skill level is not too techy. He mentions selenium and lysine and many other pointers. Comfrey nickname is knit bone and does some amazing things.


OTC Claritin
Posted by Ekb (Iowa City, Ia) on 02/02/2015

I hope this helps: Claritin OTC works for the itching of Grover's but not the rash. A huge improvement tho'. Someone on one of the community index sites suggested it and since I already have seasonal allergies but not as much in winter, I resumed the Claritin, 2 times a day: morning/evening. After day one the itching backed off by 80%. After 2 weeks, I'm itch-free. I'll probably be taking Claritin for the rest of my life.

With regards to the rash itself, I'm suspicious it's histamine-related since it behaves similar to my eyelid swelling & itching: flares in extremes of hot & cold weather. The Elidel Rx that works for my eyelids doesn't work for the Grover's, nor does Retin-A that I have on hand. I'll be discussing this topic with my dermatologist next visit. The Triamcynolone only keeps the Grover's at bay, at best, as was already discussed.


Garlic, Grape Seed Extract
Posted by Robert (Chicago, IL) on 04/06/2015

Sabtram, you said "Grape Seed Extract". Did you possibly mean Grapefruit Seed Extract by chance? I have had some success with the latter. Currently breaking out again on since I quit taking it because I thought it was gone. Then poof another flare up. Taking it again now for just maybe five (5) days. I take 3 pills a day (125mg) until it subsides..hopefully. If it does the Grapefruit Seed Extract will be my management method of choice. I say management method because it never goes away entirely but on somedays I can't seem to find it anywhere on me. But somehow at least 1 to 3 little tiny blisters show up. During a flare up I'm guessing there would be several hundred on my front and too hard to count the back side. So Grapefruit Seed Extract works for me. Just would love to double check if that is what you meant. Itching to know here in Chicago. Thanks!


Garlic, Grape Seed Extract
Posted by Pam (Denver ) on 08/28/2015

Did you mean grapefruit seed extract? I have heard of this for clearing yeast. Not grape seed extract. Thanks for clarifying.


Garlic, Grape Seed Extract
Posted by Kathy (Ga) on 04/13/2016

I've had this over a year and I do believe it's grape seed oil extract. It's very good for skin. I'm at the point I believe red wine is my trigger. Will stop a while and see. Just had a bad flare.


Garlic, Grape Seed Extract
Posted by Andi (Fl) on 05/13/2016

I have been diagnosed with GD from a biopsy. I have tried cortisone cream, coconut oil, baby powder, cetaphil lotion. Nothing works. I work out daily, so sweating is not going to stop. Interestingly enough, after reading all of your posts, I, too, drink red wine. Hmmmmmm. Going to try and stop for a week and see if anything gets better. I'm a healthy female in my 40's. Not itchy, just ugly and annoying! Help!


Garlic, Grape Seed Extract
Posted by Gardeningjunkie (Ozark's In Mo) on 06/15/2016

Andi- The following px worked for me (note I am allergic to hydrocortisone among other allergies, I have allergic contact dermatitis, so unless you have been patch tested beware of what you put on your skin). I had 7 month rash that was on torso and abdomen biopsied for Grover's and came back negative, yet doctor told me I still had it because biopsy is only positive in the active stages and my pustules were scabbed over. She said I fit the classic profile and only sees 1 new case a year. Previously had been given topical steroids to put on it by other dermatologists which did nothing but make it worse. This doc prescribed a topical antibiotic- Clindamycin 1% clear lotion and in 3 days dramatic improvement in appearance and significant reduction in itching and pain (could not even lean back in a chair or while driving it hurt so much). In 2 weeks rash almost completely gone but told to use lotion 1 full month, then stopped treatment after the 1 month and rash started to reappear after 2 days (also worked in garden in heat). Now told I may need to stay on this antibiotic indefinitely, told it is ok because not much is absorbed internally.

I gave up all alcohol (2 vodka's and 2 red wine's daily) in February, desperate to try anything, but it made no difference in my rash; still will not drink again because at 66 need to give my body every chance I can to stay healthy.

Has anyone used antibiotic lotions for this rash?


Vitamin D3
Posted by Barry (South Africa) on 01/16/2015

Thanks for that , will definitely give that a try. I have just been diagnosed with Grovers. It's so scary! I am so healthy and used to love being out in the sun and gyming, but now so afraid to sweat and get hot. Does sun affect Grovers at all /or worsen it? The Vit D3 - are these pills you take?

Many thanks :)


Vitamin D3
Posted by Donald (Usa) on 05/22/2016
5 out of 5 stars

Have experienced a continual outbreaks of this disease for three years. Doctors first treated the condition with hydrocortisone cream 2.5% it cleared in some areas but not for long. Extreme itch and out break developed and I began using betamethasone dipropionate cream 0.05% (augmented). I began using vit.D3 one pill @ 2000 IUs daily and have cleared completely, cheers too Timothy from across the pond. Eternally grateful Don.


Vitamin D3
Posted by Janet (Idaho) on 01/25/2017

Are you saying you take 400 a day or 4×400 meaning 1600 a day?


Food Allergy Elimination
Posted by Marianne (Florida) on 12/11/2014

Hi, I was diagnosed with Grovers, (three positive biopsies), about 18 years ago. They did 3 tests because the Dermatologists couldnt believe I had it, it covered my entire body. I have had extended periods of remission, generally with annual flare ups in small patches (on my arms mostly). Recently my legs have started itching so bad at night, keeping me awake. There is very little bumps but the itching feels the same intensity as grovers. I do currently have a patch of Grovers bumps on my forearm. Ten years ago I was tested and diagnose with gluten allergy, and I strictly follow a gluten free diet. I have wondered if I have other food allergies. Could you tell me where you did the test? website?

Thanks


Food Allergy Elimination
Posted by Patrick ( Ny, Ny) on 04/26/2015

Hi...thank you for your input. I would like to inquire as to where you purchased the test kit. Thanks very much. Patrick


Food Allergy Elimination
Posted by Heather (Ocean Shores, Nsw Australia) on 11/22/2015

What exactly is the test for all foods. My husband has grove's disease and the naturopath put him on the blood type geno diet.


Food Allergy Elimination
Posted by Fred (In) on 12/03/2015

Looking for help & treatment for Grover's. Any one know where I could get this food allergy test? Ordered online?


Food Allergy Elimination
Posted by Kristen (Massachusetts) on 12/04/2015

Hello and thank you for this post! I recently was diagnosed with Grovers Disease and am a 42 year old woman. Weird thing is I had used the steam room at my gym a few days prior--which is listed on some sites as a potential cause. Still , it seems diet may be a more likely culprit. Can you tell me the at home kit you used? The brand? Thank you for sharing your experience!


Food Allergy Elimination
Posted by Becky (Michigan) on 02/13/2016

I've been diagnosed with this scratching disease and am going crazy scratching myself raw. What's this test you do at home?


Food Allergy Elimination
Posted by Michele (Texas) on 07/09/2016

Debrah, Can you please give more info on the home allergy test you used? Where did you purchase it? Who was it made by? Thank you!


Food Allergy Elimination
Posted by Amy (Mpls, Mn) on 04/17/2017

Please let me know where you obtained the allergy at-home testing kit. I would love to achieve the same results you are experiencing.


Food Allergy Elimination
Posted by Shari (Ca) on 04/18/2017

Deborah - Please add my name to the growing list of Grovers Disease sufferers who would like to know more about this home food allergy test. I'm desperate!

EC: Do any of our EC frequent contributors know of a home food allergy test?


Food Allergy Elimination
Posted by Marise M. (Sydney) on 12/11/2017

Thank you, thank you! I will try your suggestions.


Food Allergy Elimination
Posted by Gia (Fairfield) on 01/15/2018

Hi Deborah,

I also have been diagnosed with Grover's (on sight, no biopsy, though). Dermatologist said there's no cure and no clear cause, and she gave me some steroid cream that doesn't work. I went to see a naturopath and she put me for now on an autoimmune protocol diet while she awaits the food allergy test results. Did you find it difficult to give up the foods you are allergic to? Any tips would be appreciated! I am hoping for a good result....

Thanks for your post! It gives me hope!

Best,
Gia


Food Allergy Elimination
Posted by Brenda (Fayetteville, Ga) on 07/26/2020

How do I get one of these food allergy tests?


Grover's Disease Remedies
Posted by Barb (Maryland) on 10/07/2014

Your advice was helpful and made sense.


Grover's Disease Remedies
Posted by Rita (California) on 06/05/2021

Thank you very much Chris, every little bit of information helps since we are in the very beginning stage of learning about Grover's Disease. I appreciate your help.

Rita


Grover's Disease Remedies
Posted by Gary (Kentucky) on 12/13/2017

Chris, so No Caffeine? first time I have heard that. I drink 2 to 3 cups a day.. add in cream and sugar... I had seen on TV reports where 3 cups a day was good for you.. Seems to be so many posts and so many things to try it's mind blowing.


OTC
Posted by Cindy B (Sarasota, Florida) on 07/02/2014
5 out of 5 stars

Last summer I was diagnosed with Grover's disease .. Fought it all summer.. it came back this summer ..a friend of mine told me her secret to treating it. Monistat 7 cream ..applied 2-3 times a day. I did this and within 3 days it's almost gone!

OTC
Posted by Kathy (Mashpee Ma) on 07/31/2014

I have been diagnoist with Grovers also ealier this year. I have been on steroids with no effect at all. I read this post about using Monistat 7 and decided to try it. I use it 2x/day then put baby powder on the lesions. I also take 2400mg fish oil / day. This has definately helped me. This itching goes away within 3days but I stopped using it for 4 days while recovering from unrelated surgery and it came back in full force.

I have also noticed that staying out of the heat will help. I tried taking an oatmeal bath as recomended by an RN and my legs broke out something awful. It may have been the temp of the hot bath however.


OTC
Posted by Sandy (Stevenson, Wa) on 03/04/2016

Did you put Monistat 7 on open sores and rash?


Hibiclens
Posted by Donangelo (Bend, Or) on 06/30/2014
4 out of 5 stars

I contracted Grover's Disease 10 years ago when I lay in bed for 3 months following a head-on collision that broke my bones in 27 places. Several months ago I discovered that coating the area with Hibiclens, a strong and inexpensive antibiotic available without a prescription, for a couple minutes when I take my morning shower, almost completely eliminates the pustules, at least by 80%. Aloe vera or coconut oil also help a little. I am currently applying the Hibiclens only every other day, and I have not experimented to see if I stay cleared up if I stop the Hibiclens.


Vitamin D3
Posted by Derek (South Australia) on 09/25/2015

Hi Timothy,

Can I just check your dosage of Vit D3? Is it a total of 400IU, or is it 4 x 400IU? I'm expecting it to be be the latter, but just thought I should check.

cheers


Vitamin D3
Posted by Marge (Apple Valley, Mn) on 06/26/2016

I was diagnosed with Grover's by biopsy in Dec 2015. Symptoms began in 2013. I had itchy red spots on lower legs. In mid 2015 I started to feel itchy but I could ignore it. In the fall I figured it was allergies. It progressed in the winter which was when I had the biopsy. I was also very stressed. I took benadryl every day from Late Dec thru April. I decided that was not good for me.

I continue putting emollient creams on my skin, I eat healthy, I don't drink alcohol, I take vitamins, during the past week I increased vit d from 1000 iu to 3000. My scalp, arms, legs, back, face, stomach, are all affected. It seems worse before seeing the red dots. The itchiness is always with me. I've tried cortisone creams, neosporine, vicks, etc. I get most relief when putting on rich Eucerine cream then by adding Alocane. Still itchy but tolerable!! I also stay in AC. Heat and sweating make it worse! It's hard to work out during summer months. I am able to walk indoors with AC most of the time. Any other tips? I wish it would go away.


Oil Pulling, Coconut Oil
Posted by Judy (Schertz, Texas) on 03/20/2014

Grover's Skin Disorder and Polycythemia Vera:

Hello out there. Could use some help here in regards to the Grovers issues, read the oil pulling, which I hope will help and going to take Coconut oil capsules as well with using the oils recommended. The Poly Vera have had for 7 years and treated with med and blood withdraws. Yuk but it works. Anybody out there that has this? Thanks.

Oil Pulling, Coconut Oil
Posted by Martin (New York City) on 12/21/2016

I also have PV for 22 years and was just diagnosed with Grovers. Have you had any success in treating Grovers?


Oil Pulling, Coconut Oil
Posted by Rusty (Jacksonville, Fl) on 12/22/2016

Judy and Martin, I don't have PV, I just have grover's disease.


Coconut Oil
Posted by Lisa (Atlanta, Georgia) on 02/03/2014
4 out of 5 stars

I too have been diagnosed with Grover's Disease. The prescription medicines don't do a thing. I have been using Virgin Unrefined Coconut Oil as a moisturizer for about a week. I have also been ingesting about a teaspoon daily along with taking Borage Oil. Although the rash is still there and going strong, the itching is definitely better and my skin is getting softer and softer.

Eating it is not the most pleasant thing, but it does go own quickly. If you want you can freeze small pieces and just take like a pill.

I found another plus to the coconut oil...it increases my energy and somehow acts as a diet aid. I have lost 3 pounds in one week!

Good luck to all! Lisa


Coconut Oil
Posted by Key West Lu (Key West) on 04/17/2014

I have also been diagnosed with Grovers (over 15 years and counting). I am in the middle of a horrendous flare up and have been told to go on drugs that are really scary. This morning I was so inflamed that I got ice packs and put them on the worst areas. OMG! This was awesome. The blisters have almost disappeared and I am no longer itching uncontrollably. And the best part is that other parts of my body where I didn't put the ice packs have calmed down. I am not cured but I am not so out of control that I'm miserable. (I've had several emotional breakdowns this week due to the uncontrollable itching) I have been doing some crazy stuff to try to stay off the drugs. I have bathed using a solution of olive oil and sea salt (stings like crazy), then put on hydrogen peroxide (I was told today that this was bad b/c HP breaks down skin but it seems to be working for me), and then used triamcinolone cream and topped with coconut oil. But the life saving thing was the ice packs on the areas that were so out of control. I live in south Florida so I am also laying out in the sun for 15 minutes on each side every day.


Coconut Oil
Posted by Lauren (Colorado) on 08/25/2021

Patty;

Your comment was one of the most recent I could locate on this thread. I was diagnosed about a month or so ago; have been in flare up about 4 months now. I tried the predisone route; no change. I am trying to clean up my diet and use natural products. Nothing is working. I am worse. I am in pain. The burning and itching is taking over my life. Do you have any suggestions? What has worked for you?


Coconut Oil
Posted by Linda (Cocoa, Florida) on 11/14/2014

Hi I was diagnosed today and am overwhelmed! I had this since July and finally at Shands in Gainesville I got diagnosed I have used the coconut oil with no relief. I see you are laying in the sun a few minutes a day and it doesn't bother you.


Coconut Oil
Posted by Larry (Baton Rouge) on 01/10/2015

I have had the condition for 15 years. I use prescription steroid creams when flare ups get bad. Went to the BVI's last year and stayed on a catamaran for a week. Rash disappeared for a few weeks when I got back home. I asked the doctor if it was the salt water that made it better. He said it was the UV light from being in the sun so much. Does anyone know about UV light treatments? Tanning bed? Light I can buy and use at home?


Coconut Oil
Posted by Martha (Akron, Ohio) on 08/07/2015

I was diagnosed with Grover's Disease over three years ago. Flare ups have been decreasing. The interesting thing is, my doctor told me to avoid the sun and wear cotton clothing to avoid overheating and not letting my skin breathe. So....what made you decide that sun would be good? Just curious?


Coconut Oil
Posted by Zuzana (Cape Canaveral) on 10/07/2015

For those who wonder; some people may have good results with UV light treatments, but others may have breakouts because of it. Each individual reacts differently. I was diagnosed with GD in 2011 (six months after a surgery). The rash comes and goes away, but I believe that my worst outbreaks are caused by exposure to the sun (I have a terribly dry skin due to hypothyroidism so it doesn't help). My skin completely cleared while on vacation in Europe, but after coming back home and a few walks on the beach, I started to break out again.

Some people have had success with Terrasil.I tried it myself, but it didn't seem to do anything for me. Gluten free diet has not helped me either. Good luck!


Coconut Oil
Posted by Buzz (Arlington Tx) on 04/16/2016

So far the best thing I have found to work with Grovers is to put terrasil on it, then rub in corn starch.


Coconut Oil
Posted by Margie (Frederick, Md.) on 10/19/2016

I have been battling Grover's disease for 16 years. At first the only help I got was from injections of kenelog and prednisone once a day for about 16 months. It settled down after that and I could control the flair-ups with a prescription cortizone cream. My husband passed away and my whole life has changed. Went from lovely country home in Tennessee to condo in Maryland to be near son whom I seldom see. Last week I had a flair up of Grover's like in the beginning and once the prednisone was finished it started all over again. I am desperately in need of help. The itch is like being in a red ant hill and it is even in my scalp. I am 67 and while my life is not at all like I would like it, the Grover's is about to drive me over the edge.


Coconut Oil
Posted by Mmsg (Somewhere, Europe) on 10/22/2016

Margie, I find that Coconut Oil reduces itching of any cause.


Coconut Oil
Posted by Mt (Ottawa) on 10/24/2016

Read the Book, Your Own Perfect Medicine: The Incredible Proven Natural Miracle Cure that Medical Science Has Never Revealed by Martha Christy.


Coconut Oil
Posted by Maggie (Plattsburgh, Ny) on 01/28/2017

My advice is do not use peroxide. I did and became inflamed with a different rash and another visit to the dermatologist. It is very harsh on the skin and I've read not even to put it on small wounds or cuts.


Coconut Oil
Posted by Charlotte (Texas) on 01/29/2017

I am so interested in this concept myself...I have had Grover's disease for 13 months and am always wanting to use natural products instead of all the medicines the doctors prescribe. Please let me hear from you so I can start on these as soon as possible.


Coconut Oil
Posted by Charlotte (Texas) on 02/04/2017

Please let me know if anything helps you...I feel the same way and would love to get this under control. Have just finished a round of steroid treatment which helped at the time but now the itching is back. Best of luck to you!


Coconut Oil
Posted by Captain Ron (Calgary Alberta) on 02/20/2017

The idea is to not sweat.

In the sum the U/V will burn you but the IR will make you sweat. There are special effective parts of UV spectrum that need to be nurtured. Avoid factors that can cause and aggravate the condition, such as high environmental temperatures, significant sweating, and conversely dry skin.

Mayo Says: Phototherapy involves exposing the skin to controlled amounts of natural sunlight or can include the use of artificial ultraviolet A (UVA) or ultraviolet B (UVB) light. Because exposure to light can sometimes intensify Grover's disease, light therapy should be directed by a dermatologist who has experience treating patients with Grover's disease.


Coconut Oil
Posted by Jeanna (Ooltewah, Tn) on 03/11/2017

Do you use the oregano straight or do you dilute it with coconut oil. I bought some of the essential oil oregano and plan to start using it but I was told not to put it on without diluting it?????? My husband has just been diagnosed and he is miserable and broke out all over


Coconut Oil
Posted by Kathy (London, Ky) on 09/13/2017

How was the outcome longterm?


Coconut Oil
Posted by Hawks (Tampa, Fl) on 01/25/2018

I was told that the sun and heat was a major cause of the flair up. Is the sun helping you?


Coconut Oil
Posted by Vickie (OR) on 02/16/2021

How do you use the cilantro?


Kelp Paste, Hot Showers
Posted by Avvidor (Pembroke Pines Fl.33027) on 12/29/2013
1 out of 5 stars

Grover's Disease: I am a 78 yr old female diagnosed by biopsy....... been told that my case is severe includes back, legs and both arms. Itching is outrageous...any ideas are greatly appreciated.....even tried kelp paste and very hot showers/..nothing has been effective....derms have sent me to specialist..// at jmh..have been told there is no cure......it will go away......hope to hear from someone.....

Kelp Paste, Hot Showers
Posted by Mama To Many (Tennessee, Usa) on 12/30/2013

Dear Avvidor,

What have you tried other than kelp paste and hot showers? I noticed several things on the Earth Clinic page that have helped...Iododral and B-complex. I am wondering if you have tried these.

Carrot juice also comes to mind as something I would try. The high vitamin A is good for skin and it is a good detox for the body. But it can be an investment if you don't have a juicer or one you could borrow. Drinking a quart a day of carrot is doable, though you might start with less to make sure it doesn't bother you. (Like a cup a day and work up to a quart a day.) I have had a quart a day for a couple of weeks with no adverse affects.

Do keep us posted...I hope you are feeling better soon.

~Mama to Many~


Kelp Paste, Hot Showers
Posted by Mike 62 (Denver, Colorado) on 12/30/2013

Avvidore: Watch raw food videos. The80/10/10ers have recovered from everything. You can also take the best all in one formula according to Mike Adams from natural news, a 30 herb blend, mostly wild harvested from deep in the amazon jungle. A Finnish company checked the electromagnetism with a tesla scope and the energies were so high they had to recalibrate their instrument. The preperation is called sparygic. The caps are called liquizons. The owner's girl friend happens to be Olivia Newton John. She takes 3 tsp. Daily.


Grover's Disease Remedies
Posted by Lynn Ann (New York Ny) on 06/05/2013

My Grover's disease is so bad it is unbearable. I am a 55 year old woman and this started a couple of years ago - about at the onset of menopause. The disease was diagnosed by biopsy. I am considering undergoing light therapy treatment. Is there any wholistic treatment for this? I have used steroid creams & Atarax but it just will not go away. I really need help. I am itching like crazy and the rash is all over my chest, stomach and my upper & lower back. I can hardly bear it.

Grover's Disease Remedies
Posted by Waltz (India) on 02/15/2016

Hi,

Itching is helped with large doses of Vitamin C. I have taken up to 20 grams of Vitamin C to cure it and it works really well. Since Vitamin C is also one of the best anti-allergics, so I think it treats the itching by removing allergies.


Grover's Disease Remedies
Posted by Mama To Many (Middle, Tennessee, Usa) on 06/06/2013

Hi again... after I posted, I thought of a few more things that might be worth a try...

Turmeric - this is great for inflammation. It is also anti-tumor. 1 t. 2-3 x a day. You could take 4 00 capsules to make 1 t. Or you could mix the powder with milk. (Some people like it that way... I don't! I mixed it with honey to get my 4 year old to take it.

Vitamin C - another thing that helps many diseases. Doctoryourself. com has lots of stories and talks about how to dose it.

Coconut Oil- read about how many things this helps here on earthclinic. You could do oil pulling or just take it internally. (1-3 T. A day... Start with 1 or 2 t. a day and work your way up.)

Let us know what helps you! ~ Mama to Many


Grover's Disease Remedies
Posted by Trudyg (Waynesboro, Va, Usa) on 06/06/2013

So what's the easiest way--just toss them back? I only have a couple of hens, so don't get 6 eggs/day. May need more chickens. Will this help my insomnia? I'm the terrible insomniac on this forum for whom nothing works. Thanks so much for your input.


Grover's Disease Remedies
Posted by Sandy (Lyons,georgia) on 12/13/2013

My suggestion is to take D-Lenolate (olive leaf extract) and bathe the areas with Olive Leaf soap.


Grover's Disease Remedies
Posted by Tinabobeena (New York, Ny) on 02/12/2014

I don't think there is a cure per se - though I am not a doctor. I was told it just has to run its course (this of course after I got it checked out and the doctor told me it was Grover's Disease). Best remedy for the itching: Sarna lotion. It helped tremendously!! Be prepared - Grover's Disease can last for months, but does eventually go away on its own.


Grover's Disease Remedies
Posted by Shae (Los Angeles, California) on 04/29/2014

I've had Grover's Disease for many years, and was FINALLY diagnosed a couple of years ago. I had a second biopsy just to make sure and confirm. The ONLY thing that has worked (medication-wise) has been Accutane. I'm not thrilled about having to take it again, (this will be the second time), but, I'm miserable. I'm interested in finding a doctor that specializes in Grover's. Anyone know of one in the US??? Thanks.


Grover's Disease Remedies
Posted by Michelle (Los Angeles, US) on 07/16/2014

I have to disagree.... In SOME cases grover's can go away on its own. I have suffered for 25 years. Almost always in some sort of break out somewhere on my body. The only relief for me has been acutane. Don't love going on it but it stopped it completely while taking it. After two months off it erupted in full force. I would like to try a natural remedy and I have in the past, but nothing really worked. I'm still searching.


Grover's Disease Remedies
Posted by Melanie (Minnesota, Usa) on 03/12/2015

I have had success with hydrogen peroxide. At the sign of an outbreak I use towelettes soaked in hp. I have spray bottles too. It will usually knock it down after a week or so. That way I can avoid a course of antibiotics. I also take lukewarm showers twice a day.


Grover's Disease Remedies
Posted by Maggie (Plattsburgh, Ny) on 01/31/2016

Turmeric is worth a try but in order for turmeric to do its job it needs to be accompanied with black pepper (piperade).

I have Grovers too and I've been taking turmeric in its raw form as well as organic ground for 3 years (only just had it diagnosed) but it hasn't helped my Grover's. I have only just started with coconut oil with neem oil mixed in with it. I'm trying to see if that will help as I don't want to put that cream on anymore.


Eliminating Sulfites
Posted by Vezza Rose (Ohio) on 04/28/2015

This makes me think it's the herbicides and pesticides that have become so prevalent. Just like, it's not the glutton, it's the glyphosate, they do not make booze the traditional way any longer and grains are sprayed with glyphosate to kill it so they can harvest without waiting on Mother Nature. But good to know, I had recently started drinking a bit and had a flare. Thank you, I will keep this in mind.


Eliminating Sulfites
Posted by Don (West Hollywood, Ca) on 03/15/2016

I have had GD (apparently!) for many years and many misdiagnoses! I have always been in the sun and believed this was probably the cause. After trying several meds & lotions, nothing seems to help. The big difference I'm reading here is that mine doesn't really itch. Wine (especially red) is something I started drinking within the last 10 years & now I'm wondering if that could be the culprit! Thinking I might try the coconut oil as well...


Eliminating Sulfites
Posted by Ann D. (Delray Beach, Fl) on 12/02/2016

It's almost 6 yrs now...and counting! First attack occurred during visit to Key West. (but I live in FL, so that should not have been the factor) My dermo thought it was "shingles" (OMG!! ). I used that cream twice and the dermo realized he was on wrong track. New diagnosis was Grover's. He said nothing cures it. I tried going lactose-free, changed laundry detergent, went glucose-free for about 2 wks, but nothing changed. Only blessing is....the itch is not the big problem as initially. Since I drink red wine daily, I'm beginning to wonder if that is the culprit???


Eliminating Sulfites
Posted by Carol (Canton, Connecticut) on 05/12/2017

Not sure the alcohol is completely the cause of Grover's disease. I have never had a drink, not even in college, and have suffered with the disease for the past fifteen years. I have spent way too much time in the sun, however. Oddly, sun exposure helps with outbreaks. This is a very frustrating disease and seems to react differently in every individual. I also tested negatively for any gluten intolerance.


Eliminating Sulfites
Posted by Chante (South Afrika) on 03/30/2018

Hi guys, I was diagnosed with GH a month ago, sweating makes it worse, Dr says its in my blood from family, my uncles also have it, I saw eating less bread and focussing on water and fresh vegs actually helps me cope, but I'm a female in menopause, imagine heat with GH, it itches like crazy in my face, the ointment I have helps but very expensive, I was with 100 % glycerine soap only...it much better, u can try Preparation H, it does help a little bit, coconut oil makes me its more, make-up makes it worse for me...not an easy way of life, wanting to scratch your face off...


Eliminating Sulfites
Posted by Chante (South Afrika) on 03/30/2018

I think it's the yeast in the beer...bread aggravates it also, no wheat or yeast, it makes it worse


Zinc Oxide
Posted by Renee (Ewing, Nj) on 07/14/2014

I read about how baby powder with zinc oxide and 1000 mg of garlic pills helps with Grover's disease. When do you start to see results? How long does it take for the rash to completely go away? Is there any particulars on how and when to take this remedy? Is there a specific nappy baby powder to be used? Thanks!


Zinc Oxide
Posted by Brenda (Florida) on 02/09/2015

Oh yes, this is the rest of my story. I read that Mayo clinic has linked Grover's to too much mercury in your system. So I ate garlic as my regular snack. I am now going to be tested by Quicksilver Labs with a new test for mercury. This might be why the garlic pills work. After I get the test results, I am going to a specially trained dentist to have my mercury fillings removed. I now understand your dentist has to be specially trained to remove mercury fillings from your mouth. Be sure to check this info out before you have any fillings removed.


Replace Metal Fillings
Posted by Dan (Philadelphia, Pa.) on 03/27/2017

I had bilateral knee surgery last June and after the implants I noticed the rash and last week it was confirmed by biopsy? Do you have any other information about metals introduced into the body causing Grovers?


Replace Metal Fillings
Posted by Jaydee (Philadelphia) on 04/03/2018
1 out of 5 stars

I know you posted a while back. And sadly, I wish what the comment about metal fillings was true. I've held a dental license for over 20 years and there is NO proof that the removal of dental fillings does any help in this area, or really and any area. If it did, I would be the first to shout it from the roof tops. I wish my fiancée's cure to Grover's disease was this simple. That means that I (I.E.- ME AND MY CLOSE COLLEAGUES) could and would, all afflicted tomorrow. However he has NO metal fillings nor metal joints. This is nothing more that hocus pocus and wishful feelings..


Molybdenum
Posted by Seavid (Los Angeles, Ca) on 07/07/2011
4 out of 5 stars

I've had Grovers for over 10 years. After researching and finding mercury might be a cause I tried eating fresh cilantro ever day for several weeks. To my surprise it has helped more than any of the many other things I have tried. The Grovers is not completely gone but it is the best it has ever been since it appeared. Amazing!


Vitamin B Complex
Posted by Kerry (Melbourne, Victoria) on 12/09/2011

Hi l am a 56 year old woman and was diagnosed with Grovers 10 years ago, unlike all of the blogs l have it on my upper legs and they are not itchy. I feel l may have been misdiagnosed.



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