Grover's Disease Remedies

Vitamin D3
Posted by Timothy (London, UK) on 03/28/2014
4 out of 5 stars

I first noticed evidence of Grover's disease in 2011 with spreading lesions on my torso both back and front. Visits to dermatologists in London and New York including biopsies confirmed that the lesions were caused by Grover's Disease which I was told was incurable. However, I noticed that the symptoms were far less noticeable in the summer months and guessed that sunshine and therefore Vitamin D may be effective. In 2012, I started to take 4 x Vitamin D3 (Potency 10ug = 10 micrograms equivalent to 400 IU = 400 International Units) per day.

I immediately noticed an improvement to such an extent that after some months the symptoms and the scars had completely healed. I then experimented by coming off Vitamin D3 in the summer of 2012 but after some weeks the symptoms returned. I then stayed on Vitamin D3 for six or seven months over the winter of 2012/2013 and once again the symptoms disappeared following which I stopped taking Vitamin D3 for approximately eight months with no further symptoms. However, as I write this in February 2014 the symptoms have once again returned and I have therefore re-started the Vitamin D3 which once again has suppressed the symptoms.

The conclusion to my experience is that if not a cure, Vitamin D3 in the dose that I have used is a highly effective way of treating this unpleasant and irritating disease. I hope this works for you.

Oil Pulling, Coconut Oil
Posted by Rusty (Jacksonville, Fl) on 12/19/2016

The type of water we use to bathe ourselves probably has an effect on grover's disease. I've had grover's for a few years, and it's almost gone because I realized that the more you irritate it with over the counter lotions and perscription creams - the worse it gets, or it just doesn't go away. I don't have a water softner in my house and I shower with "hard" water. I started showering the area that showed a rash WITHOUT using body washes or soaps, and the rash went away. Yes, the grover's disease rash still shows up once in a while. If it flares up, I use a irish spring soap bar (Publix grocery store makes a "spring fresh" brand), and the soap bar really helps my skin. Then I go back to washing my skin in the shower without soap. My skin looks clear from doing this.


Coconut Oil
Posted by Jackson (Tennessee) on 01/07/2014
4 out of 5 stars

I have Grover Skin rash and just went to the doctor yesterday, she saw that I was really flared up on my chest and stomach area. I have really struggled with this disease. I have the prescription creams and they only seem to keep it at bay. However she recommended to me to try the Virgin Coconut oil, after every shower. I am on day three of this and I know its a little early but it seems to be really helping with the itching, Also the redness is starting to go away.

Coconut Oil
Posted by Patty (New Mexico) on 01/13/2021

Also drop the sea salt and hydrogen peroxide which is very drying - who in gods name have you been talking to?

Your mantra is moisturize, moisturize, moisturize - no heat or heat lamps, or hot tubs, or heat pads, or sun - no sun - no sun - no sun - sweating and all these things cause the frigging rash!!!.


Coconut Oil
Posted by Ron (California) on 12/25/2015

I have found many commonalities with others on this site. My first outbreak of Grover's was in the tropics. Very hot and humid. I have suffered on and off for twenty years but have had considerable success with several approaches.

First, I try to avoid wearing layers of clothing, such as sweaters and undershirts. This almost always causes an outbreak. Second, the triamcinolone cream works but I believe it also causes the skin to thin out with repeated use. This is similar to cortisone treatments. The most effective medication was tetracyline for two weeks to get the rash under control. After that, the cream, frequent cool showers and bathing soon after a workout are essential. Avoid hot showers and jacuzzis. Be careful of antibiotics. I rarely use it now, perhaps once a year for two days or so. Risk factors are always present for antibiotics.

Diet is likely a contributor as others have suggested. I will look into this more myself. My wife had a light case of psoriasis which has not returned since she switched to a largely vegetable-based diet and reduced her intake of foods that cause inflammation.


Coconut Oil
Posted by Magnolia16 (Virginia) on 10/22/2016

Margie, I don't know what Grover's disease is, but it sounds most aggravating - nothing like an intense itch to drive you insane! It also sounds like you've been under a lot of stress and trying to cope in a new situation. I wish I could give some good advice, but all I have to offer is friendship and empathy!


Coconut Oil
Posted by Gardeningjunkie (Mo) on 11/14/2016

Margie- Don't ever assume you only have one form of dermatitis. July 2015 at age 67 I was finally given a name for my eczema rashes and also a reason for my internal taser like stinging under my skin that was driving me out of my mind especially at night, it was Allergic Contact Dermatitis or ACD that was keeping me awake at night. I had to turn my world inside out so as not to be in contact with my Patch Test positives. I detoxed my world from my allergens and got a Kenalog shot and many painful sites cleared up and stopped itching, including my scalp. Yet my wrap around torso rash and itching did not improve. I saw a new dermatologist who took one look and told me I had Grover's. My point is this- perhaps your scalp is not related to the Grover's. Have you had allergic Patch Testing by an allergist? With the information from my testing I replaced my shampoo and conditioners with a product free of the perfumes and preservatives which I am allergic to (VMV Clark wash for hair and body which I order online from VMV). Medicare paid for the testing, it is uncomfortable, but winter is a good time to do it since you can't sweat or get the sites wet for 5 days. You must be off antihistamines. A series of panels is stuck on your upper back, I had 78 sites and reacted to only 5, but that has turned my world upside down, but it has also saved my life. I am sure you know more about Grover's then I do and have probably tried everything I have since you have had it for so long, so can't offer much helpful advice other then pointing out that you shouldn't assume your scalp itch is tied into the Grover's. Yet I had the Patch Testing 3 months before my Grover's rashes started appearing (I had been in the hospital for 5 days) so not sure how they handle a patch test if you have a rash on your back, maybe they could do the panels on your thigh?


Coconut Oil
Posted by Yvonne (Maryland) on 01/06/2017

Ice packs are great for itching. I started with Grover's last spring but wasn't diagnosed until September. Heat irriates it so I wouldn't dare lay in the sun. Sweating makes it worse as well. And scratching it makes it worse but sometimes I just have to do it. I really believe all my sunning at the beach years ago may have helped bring this on. I have tried lots of things and only go back to the steroid creams for about a week when it gets really bad. I've tried natural vinegar, honey, extra virgin olive oil.


Coconut Oil
Posted by Maggie (Plattsburgh, Ny) on 01/28/2017

My doctor recommended UVB lights as well. She said if I can't make it to her office (I have to take a ferry) I could go to a UVB tanning bed for no more than a minute or two once or twice a week and a regular tanning bed for no more than a minute. I haven't tried it yet.


Coconut Oil
Posted by Vonnie (Wyoming) on 04/02/2017

You are supposed to dilute Oregano Essential. It works wonders, but it is very harsh if used without dilution.


Coconut Oil
Posted by Leigh (Tucson, Az) on 06/23/2017

Hello, I use the Oregano straight, without diluting. You should find that just a drop massaged into the eruption will relieve the pain. It's also important to maintain very moist skin. Best to make your own moisturizer using ONLY oils such as avocado, coconut, black seed oil, lecithin, etc. One thing that is missing on the EC website is a differentiation of various types of acantholytic dermatosis (Grover's). Most people have the "transient" variety, which does tend to run it's course and eventually resolve. Mine is "focal" which is chronic. Also, most people are attempting to treat this as a "rash". In fact, it is a cellular defect or faulty programming of the skin cells. As my doc explained: "The cells forget how to bind together, creating a fissure in the skin." Sounds horrible, but you can see why this cannot be treated as a rash. The best we can do at this time is to try to soothe the skin and keep it supple. Hope the drops help! Lorraine


Grover's Disease Remedies
Posted by Mama To Many (Middle, Tennessee, Usa) on 06/05/2013

Hi Lynn Ann, That sounds miserable! I have not experienced this, but have a few thoughts about what I would try if I were in your shoes. I noticed on earth clinic's Grover's Disease page that some have found relief with iodoral. Since iodine deficiency can cause all sorts of problems, it would be something to look into. Since it seems menopause related, possibly, Evening Primrose Oil, internally, might be helpful. 1300mg gel caps daily. They help many with menopause symptoms. Apple Cider Vinegar and Blackstrap molasses help so many people with so many things, adding those to you diet wouldn't hurt and might help. 1-2 T. Of each daily. Lots of water and less sugar are also helpful to many ailments.

To help your immediate problem with itching, you could try oatmeal baths or epsom salt baths. You could also put Apple Cider Vinegar (with the mother) in a spray bottle and spray it on. It might sting. Try a small spot first. Or dilute 1:1 with water.

I recently made a lotion that is for anti-itch. It works really well for some tick bites that are not being helped by anything else. Here is the recipe:

Natural Anti-Itch Cream:
1 teaspoon fine sea salt
1 teaspoon baking soda
2 teaspoons bentonite clay
1 tablespoon (approx. ) witch hazel

How to Make:

Mix sea salt, baking soda, and bentonite clay in a small bowl or jar (nothing metal with the bentonite clay). Slowly add witch hazel. Stirring constantly, until it reaches a creamy consistency. Add essential oils if using.

I added a few drops each of: peppermint, lavender, frankincense, tea tree and patchouli essential oils.

Hope you find some relief soon! Let us know what works for you!


Grover's Disease Remedies
Posted by Trudyg (Waynesboro, Va, Usa) on 06/06/2013

16 eggs? Per day? Wow. Maybe you can answer my question about eggs: If I eat a raw egg, laid by my hen, it's very fresh and I'm not concerned about bacteria--I know it was clean before I cracked it because I'm the one doing the cleaning. But, how long can I hold an egg before being concerned about contamination? I know that hens can lay eggs over a week and then sit on them to hatch, so they don't automatically go bad without refrigeration. So, at what point do I say it's better not to eat it raw?


Grover's Disease Remedies
Posted by Sandy (Lyons,georgia) on 12/13/2013

My suggestion is to take D-Lenolate (olive leaf extract) and bathe the areas with Olive Leaf soap.


Zinc Oxide
Posted by B (Massachusetts) on 03/11/2014

Hi, when and how often do you apply the nappy rash powder? Are you still taking that tablets and having rash free skin?


Zinc Oxide
Posted by John (Virginia) on 12/26/2016

Lawyers are filing class action lawsuits against sellers of talcum powder such as Johnson & Johnson. You may wish to research the reason for this, before going overboard with talcum powder use.


Replace Metal Fillings
Posted by Buddy (Kingman, Arizona, Usa) on 07/14/2011
5 out of 5 stars

I had Grovers for about 15 years. About two months ago, I had all my metal fillings replaced and my Grovers has cleared-up.

Thanks and good luck..

Molybdenum
Posted by George (Wall, Nj) on 02/09/2012

Quick relief for grovers itch-Vicks vapo rub-lasts for awhile.


Vitamin B Complex
Posted by Lisa (Lawton, OK) on 12/01/2007
5 out of 5 stars

I was diagnosed with eczema many years ago. The Dr. prescribed some medication, but I didn't want to take it because I was pregnant at the time. Tried Vitamin B-Complex after reading about the benefits. I took 1 in the morning and 1 at night and the eczema started to clear up after about 3 weeks. I then started taking just 1 pill a day and if I get lazy and don't take it for several days, I start feeling the "itch" starting. This might help Jordan with the "itchy bumps". I hope so. I'm somewhat of a petite person; I don't know if body weight would affect the amount of B-complex needed to see possible improvement.

Vitamin B Complex
Posted by Lanae (Mystic Connecticut) on 06/18/2015
5 out of 5 stars

I second that Kerry of Melborne...I too have them on my upper legs, little on lower, but they are not itchy all ALL! I had a bipsy of one of the bumps an d was told it was GROVERS?! So strange to have present itself so differently than from all the others on this blog??!


Cilantro, Vitamin A+
Posted by Kerri (Fl) on 06/07/2022

Same problem for my mother, 85 years old. She took the 2 shots and booster and has had the same miserable problem, twice!


Cilantro, Vitamin A+
Posted by mary (florida) on 09/16/2022

Hi, can you tell me how long it took for Vitamin A to work? I started 2 days ago..nothing so far but I'm hopeful :) have tried everything else.


Vitamin A
Posted by Penny (Michigan) on 06/04/2022

Hi Elena - Please confirm you are taking 50,000 IU Vit D? I'm not following your next comment = take Vit D 2000 IU or less because vitamin A depletes Vit D. Please clarify. I've had Grover's for YEARS. It started on my back and is now on my legs. Thanks


Anti-Fungal Remedies
Posted by Mike J. (Charleston, SC) on 04/24/2022

Thank you for your insight. Did you happen to perform a mold toxicity test? I can't recall if it's blood or urine but mine came back quite high. Did you try the Cilantro smoothies and have any success?


Grover's Disease Triggered by Vaccine
Posted by Lisa (Illinois ) on 03/16/2022
5 out of 5 stars

I developed Grover's Disease late June 2021, within 1-2 weeks after receiving the Johnson and Johnson vaccine. Still experiencing symptoms after close to 10 months.

Grover's Disease Triggered by Vaccine
Posted by M (NY) on 05/23/2022
5 out of 5 stars

The same thing happened to me! I've had Grover's since I was 23. I'm now 66. I keep it at bay by not eating Wheat, Eggs, and red meat. When I had the J&J shot, 7 days later my skin erupted with lumps and Grover's in a big way. 7 months later, I'm still fighting it. It wasn't like a regular break out as this time it went all over my body. I talked to 4 doctors, and am on a million supplements, which are helping. One doctor talked to me about going on Accutane. I found a Vitamin A supplement that is made by doctors that tries to mimic Accutane (which is a vitamin A based creation. Starting that tomorrow. Grover's is hell.


Grover's Disease Triggered by Vaccine
Posted by Angie (Winnipeg, MB) on 06/11/2022
5 out of 5 stars

I have had GD since receiving the Pfizer vaccine in Dec 2022. I'm definitely going to try the cilantro remedy as the itchiness is really hard to handle. Hoping it helps!


Gluten-Free Diet
Posted by Julie (OR) on 02/16/2022
1 out of 5 stars

I have been gluten free for 4 years but I still got Grover's. I do not eat licorice because of wheat in it. I wish that being gluten free would have prevented this or cleared it but no luck on that.


Grover's Disease Triggered by Vaccine
Posted by Audrey (NY) on 01/03/2022
5 out of 5 stars

OMG this is exactly what happened to me. About a month after the first Pfizer vaccine I got a rash under my breast line. Then it went away after I went to the dermatologist he gave me a cream and it went away. Then a month later I got rashes all over and the itching was unbearable, They took a skin sample and it turned out to be Grovers disease. I never had anything like this in my life. My doctor told me it was from the vaccine. I am like debilitated from the itching and nothing is helping. I am going to go on the antibiotic and if that doesn't work then prednisone. They say that this disease goes away after 12 months but I have it 9 months now and its getting worse. This is a nightmare.

Grover's Disease Triggered by Vaccine
Posted by Julie (OR) on 02/16/2022

I was just diagnosed with Grover's per biopsies. Husband probably has it as well but not to the degree. Dermatologist gave us prednisone, triaminiclone, clobestal all no help. I wish they would figure out the cause and a treatment that works for this. I took some cilantro tonight because I just read it might help. We had a booster recently but the problem started the end of October. All I can say is good luck.


Grover's Disease Triggered by Vaccine
Posted by Nancy (Va, USA) on 06/06/2022

I was reading your comment and I thought What was a nappy rash? Took me a second and realized you were on the other side of the ocean....We are all in this together..


Grover's Disease Triggers
Posted by SoCalGirl (California) on 05/28/2022

Hi, I was recently diagnosed with GD. My body runs hot. I did acupuncture for infertility and took my temp daily. My acu dr noticed my core temp was always higher than normal. I started taking herbs to cool the blood. It worked back then for getting pregnant. I am back to acupuncture now and once again am starting the herbs to help cool my blood. I also started birth control again to help level out my hormone fluctuations as many of my outbreaks were right before my period started. My body temp changed then too. Now I am seeing a major difference in the severity of the outbreaks becoming less and less. I would suggest seeing an acupuncturist and discussing this possibility. My derm said it was a great idea as Western medicine really didn't have a cure for GD yet since it is based on body temp.


Grover's Disease Triggered by Vaccine
Posted by Rita (California) on 06/04/2021

Hi Bill,

Also, the antihistamines (Zyrtec and Benadryl), were recommended by his doctor to get rid of the tremendous "itch", and burning sensation of the skin, while awaiting results of a biopsy to come back. Any suggestions for the itching? As of yesterday, he's now applying Boudreaux's Butt Paste (diaper rash ointment), topically, which was recommended on EC- trying this for calming the rash/itching, and "open" to trying something better. Thank you very much, Rita


Grover's Disease Triggered by Vaccine
Posted by Cynthia (VA) on 06/09/2021

Charity,

I have RA really bad and want to know what you did to heal.


Cilantro, Zinc Oxide, Turmeric
Posted by Caroline (NC) on 05/11/2021

I'm curious if anyone has tried cilantro extract? I started on smoothies last year and got lazy with them but then my flare up subsided. Now it's back full on and need to start a new plan. I'm wondering if extract might be effective and definitely getting some zinc!


Zinc Oxide
Posted by Robo (New York) on 03/31/2021
4 out of 5 stars

I was diagnosed with Grovers last September. I'm 67 and have never had any skin issues, I'm in great shape but I was very stressed for months when this Disease hit me.

I've tried all the cortisone creams and they have been useless. I tried Chinese medicine, brewing a prescription of dried herbs and roots from an herbalist who cured my fibroids 20 years ago, but gave up after two months of that. My dermatologist tried antibiotics and Zyrtec, but didn't help. It's progressed from my back to stomach to one leg and two shoulders and forearms. It is really uncomfortable, unsightly, and ruins my quality of life.

My doctor injected me with Dupixent last week and it worked for a day. I'll try another injection in a week. It costs $3300, but my health insurance covers it. Has anyone had Grovers go to their face? Or privates? I'm dreading that. I tried the zinc oxide and that seems to have stopped the itch as of today. Thank you, bloggers who suggested that. And, I made my first cilantro smoothie, which tastes great. I am praying this goes away and never comes back. Has that happened to anyone? Why can't they find a cause and a cure for this awful disease?

Zinc Oxide
Posted by Veronica (MI) on 04/01/2021

I have had Grovers for 8 years. It comes and goes. Mine is on my right leg, on the back and inner thigh. I just want to peel my skin off when it is flaring up.


Vitamin A
Posted by Loraine (Queens) on 04/26/2018

Hi Judith: Can you please tell me the name of the vitamin A that you used. My daughter suffers from this horrible issue and nothing seems to be working. I read your post and suddenly feels hopeful again. Thank you so much.


Vitamin A
Posted by Loraine (Queens) on 04/29/2018

Thank you Judy...have a blessed Sunday!!


Vitamin A
Posted by Linda (St Petersburg, Fl) on 05/12/2018

I've started Vitamin A today. How are you doing with it?


Vitamin D
Posted by Colleen (Boston, Ma) on 04/11/2018

I was just diagnosed with Grover's Disease after a skin biopsy at a new Derm's office. I have been struggling with this for the past 3 years on and off but it is consistently on my trunk each month. I'll have a couple days of very few red bumps, then back to them completely overwhelming my stomach and back. Thank you so much for your post. I hope this works for me as it did for you. It's so embarrassing living with this, although it could be worse...and I take nothing for granted. I haven't been able to pinpoint what triggers it, however I am an avid recreational athlete and work out daily so I'm assuming the sweating is the culprit. However I will not forgo taking care of my body for this disease. Let's hope all the ideas I'm receiving from this website are the end all!


Curcumin
Posted by Rob (Virginia Beach, Va) on 01/23/2018 1 posts

Hi, I'm a 47 year old male who was recently diagnosed with Grover's disease. I have had flare ups off and on for over 3 years, but this latest one is by far the worst. Prior to being diagnosed with Grover's, I was prescribed prednisone by my GP. It seemed to help but did not completely disappear. My dermatologist diagnosed Grover's by biopsy, and prescribed hydrocortisone for the itch.

I recently stumbled across an article about an ingredient in Turmeric called Curcumin that seems to help in the treatment of Multiple Myeloma. While researching Curcumin I've found that it has powerful anti-inflammatory properties similar to prednisone, along with powerful antioxidants. I'm wondering if anyone has any experience with using Curcumin in the treatment Grover's disease.

Thanks!

Vitamin D3
Posted by Jack (Nebr) on 12/16/2017
5 out of 5 stars

Liquid vitamin D-3 400 IU, RUB on skin for relief! I do this twice daily, it really keeps the itching and the red bumps down. Best thing I have found to date. I use a lot more than the 4 drop dosage topically.

Vitamin D3
Posted by Sherry (Scottsdale) on 01/25/2018

I was just diagnosed with Grover's disease today, after months of treatment for eczema and follicular is. Nothing worked. I will try the Vit D3. Thanks for the info!


Seawater
Posted by Penny (Fl) on 09/04/2017

How did the paste work for you? I live in South Florida and had already thought a saltwater swimming pool would be a nice addition to the house. Its better for anyone's skin, than chlorine treated pool water. Thanks.


Multiple Remedies
Posted by Jillian (Eramus) on 06/14/2017

My DH is 74 years old and on a corticosteroid inhaler for emphysema. This stuff has thinned his skin & he has crusty patches that he picks at. One ear practically has a hole in it and it's in his sideburns/beard. Would neem oil help? We've tried acv, vco, oregano oil, colloidal silver, d3 and so much else. I know that his skin sheds toxins b/c he'll get red spots on his back when he has a lung infection--we always know before the dr does. We work on his nutrition but it's hard since he hardly has energy to eat at all and can't chew the raw stuff. We do fix him bone broth and plenty of veg's, low sugar. He can't stop the inhaler or he won't breathe at all. If neem will help, just mix w/ olive oil or something and apply? Thanks.


Diaper Rash Cream
Posted by Anthony (Tulsa, Ok) on 06/03/2018
5 out of 5 stars

Thank you very much for the butt paste suggestion! I have had the red bumps of Grover's for at least a year. Told by dermatologist really nothing I could do about it, but it may go away on its own. Steroid cream, no effect. Just bought a $60 tube of Terrasil as I thought it was worth a shot. Pool season is here I did not want to show off this rash or always wear a shirt. Plus, just the exposure to chlorine and saltwater both seem to amplify the condition like sweating does. Was actually told by dermatologist just to avoid any activity that would cause sweating. I read this post, went to Walmart and bought the $8 tube of butt paste. I am so happy to report one application wiped it out by almost 90%! Two days later, two applications per day and it is almost completely gone! No redness, can feel a few spots that are raised, but no discoloration or itching! I would not believe it if it had not happened to me. Returning the Terrasil for a refund. Think I will also start taking some oregano oil as a precaution. I cannot thank you enough!


Diaper Rash Cream
Posted by Veronica (Michigan) on 04/01/2021

coolness does seem to help the itching.


Vitamin A
Posted by Lynn (New Zealand) on 08/09/2017

Hi Pet,

I am interested in trying your Vitamin A dose to heal Grovers. I have had Chronic Grovers for nearly 2 years and would do just about anything to fix it. However, I have read that high doses of preformed (supplemental) Vit A can be toxic and quite dangerous. I would be interested to know how you are doing now and if the process continues to heal and are you now on the daily maintenance dose you stated? Thanks and all the best.


Vitamin A
Posted by Mary Ellen (Oracle, Az) on 04/22/2018

Is it still working? Please update.


Emu Oil
Posted by Elizabeth (Kentucky) on 02/07/2017

I was diagnosed with Grover's last year and have a had a flare up since December that won't go away with the topical steroid that I've been using. I use emu oil for other skin issues so I've decided to give that a try. Will see if it works after a week. Wish I knew why I have this!


Diaper Rash Cream
Posted by Donald (Springfield, Ill) on 09/10/2016
5 out of 5 stars

Grover's Disease. I had this for years and steroid creams prescribed by my Dr. did not work. I started coating my chest and back with diaper rash creme before any activity that would result in intense sweating and it has cured it. I still have scars from previous outbreaks but at least they no longer itch of bleed.

Diaper Rash Cream
Posted by Emma (Va) on 04/11/2017

Please let me know what specific diaper rash cream!!! Desperate here!


Diaper Rash Cream
Posted by Natalie (South West Florida) on 05/15/2018
5 out of 5 stars

Try Triple Paste medicated ointment for diaper rash. It works great


Salt Baths
Posted by Jack (North Platte Ne ) on 06/25/2016
5 out of 5 stars

For grovers disease:

Take salt baths, I use salt, baking soda, and borax. For small flare ups, I make a sea salt solution until it won't dissolve any more salt and apply directly to the outbreaks. This has rescued me.

Salt Baths
Posted by Linda Foster (Long Beach) on 10/06/2016

I was just recently diagnosed with grovers disease and will be going back to the doctor. I have been searching the websites to find out of it can be transferred to someone else as I care for two grandchildren. If you can help me with this one question I would be thankful.


Salt Baths
Posted by Robert (Palmdale, Ca) on 12/17/2016

How much salt etc ..do you put into the bath?


Salt Baths
Posted by Jim C. (Santa Rosa, Ca, Usa) on 03/10/2018

I am an ancient avid male swimmer just contacted Grovers. Does anyone know if swimming in a chlorine water pool is definitely counter productive? Staying in shape is also important and yes Grovers is a big pain/itch in the back.

How about this new Salt-only pool purification, anyone had help swimming in that sort of pool water?


Vitamin A
Posted by Michele (Texas) on 06/19/2016

Can you PLEASE share the name of the dermatologist friend you mentioned in Manhattan? Thank you.


Vitamin A
Posted by Mike (California, Md) on 07/19/2016

In Natalie's (from Lakeland, FL) post she said she took "50,000 IU of Vitamin A for one week and 100,000 IU of Vitamin A for one week"... Did she mean 50,000 IU per day for one week and 100,000 IU for one week?


Vitamin A
Posted by Brad (St Augustine, Fl) on 01/07/2017

Natalie, thanks for the input. I lived in CA for over 40 years. I moved to Florida 2015. That is when I broke out with GD. I ride bike, and sweat a lot on my chest. I also run into 'no-see-ums' and get several bites each time. Never have I got so many insect bites in my life since living in FL . So it sounds like, heat, sweat and insect bites are the combination of my reaction of GD.


Vitamin A
Posted by Ellen C (Long Island, Ny) on 02/14/2018

Thank you to you Grover's Disease sufferers for this blog. I have been looking for something to treat this annoying and life-interrupting disease. This winter's eruption is my worst ever. Belly and back covered and sooooo itchy. Went back to the Derm MD and got nowhere. Still prescribing steroidal cream which never helps and tells me to moisturize. Ugh! I am at my whits ends with a solution. Like you all, I have tried everything. Only relief I got was from jojoba oil mixed with peppermint essential oil for the itch. The pimply bumps remained. I am going to try the Vitamin A regimen. I, too, am afraid of the high dose toxicity. I am consulting knowledgeable vitamin people about this but want to make sure. I am also going to give a good zinc oxide cream a try. I do get relief in the summer months so while I have been thinking it might be the help of the salt water, it also might be the zinc oxide in my sunscreen. Can't hurt. Tried everything else. Any updates on the Vit A toxicity would be greatly appreciated.


Vitamin A
Posted by Ellen (Long Island Ny) on 02/24/2018

Hi All

so to add to my concern about my vit a concerns about toxicity, My symptoms which were the worst I have ever had since diagnosis in 2010 have subsided. I took 50,000 in of vit A for exactly 10 days. I then remembered I also took an 8 day course of oil of oregano orally at the same time because my itching/ scratching got so bad I was afraid of infection. Now that my symptoms have subsided.......knock wood.....not sure what helped. Confused. Will wait to see if it comes back and will try one remedy at a time.


Vitamin A
Posted by Christine (Ny) on 03/25/2018

He may be referring to Dr. Danzig. I hear his name mentioned constantly in correlation with Grover's and he is located in Manhattan.


Zinc Oxide
Posted by Janet (Idaho) on 01/25/2017

Thank you! I will try it today! I'm 54 (female) and been dealing with it for a year and just had the biopsy last week. Any updates of your experience are appreciated!


Zinc Oxide
Posted by Christine (Chandler, Az) on 03/29/2017

Thank you so much for your post. I am a 45 year old female recently diagnosed and my rash was as severe as yours. Crazy nightmare.


Zinc Oxide
Posted by Christine (Chandler, Az) on 03/29/2017

Thank you so much for your post. I am a 45 year old female recently diagnosed and my rash was as severe as yours. Crazy nightmare.


Vitamin D3
Posted by Art (California ) on 04/12/2016 1379 posts

Jerry from Dania Beach, Fl.,

Did you really mean "4,000 mg" or did you mean 4,000 iu?

The 4,000 mg dose is likely to cause health problems with continued use.

Art


Vitamin D3
Posted by Jenny (Nsw Australia) on 08/21/2017

Unfortunately I got no relief from this


Vitamin D3
Posted by Dan Z. (New Jersey) on 08/12/2020
1 out of 5 stars

I'm glad for your relief with 4000 iu's of D3, but I've taken 10,000 iu's of D3 oil gels & 4,000 iu's of powdered capsule for at least a year, and my neck, front & back, my entire back, my sides, around to my stomach have been itching me 24/7 for over a month. I even tried liquid D3 that someone suggested to apply topically, with no relief at all. HELP!


Dietary Changes
Posted by Marsha (Muskegon) on 01/15/2016

Biopsies to definable Grover's but gluten free does not work for me if I get stressed really cold or hot it gets worse steroid cream no good, yeast rx no good cream no good what to do?


Dietary Changes
Posted by Sysya (Highland, Ca) on 09/22/2017

The Only thing that worked for me has been accutane (you need a prescription)


OTC Claritin
Posted by Ekb (Iowa City, Ia) on 02/02/2015

I hope this helps: Claritin OTC works for the itching of Grover's but not the rash. A huge improvement tho'. Someone on one of the community index sites suggested it and since I already have seasonal allergies but not as much in winter, I resumed the Claritin, 2 times a day: morning/evening. After day one the itching backed off by 80%. After 2 weeks, I'm itch-free. I'll probably be taking Claritin for the rest of my life.

With regards to the rash itself, I'm suspicious it's histamine-related since it behaves similar to my eyelid swelling & itching: flares in extremes of hot & cold weather. The Elidel Rx that works for my eyelids doesn't work for the Grover's, nor does Retin-A that I have on hand. I'll be discussing this topic with my dermatologist next visit. The Triamcynolone only keeps the Grover's at bay, at best, as was already discussed.


Garlic, Grape Seed Extract
Posted by Robert (Chicago, IL) on 04/06/2015

Sabtram, you said "Grape Seed Extract". Did you possibly mean Grapefruit Seed Extract by chance? I have had some success with the latter. Currently breaking out again on since I quit taking it because I thought it was gone. Then poof another flare up. Taking it again now for just maybe five (5) days. I take 3 pills a day (125mg) until it subsides..hopefully. If it does the Grapefruit Seed Extract will be my management method of choice. I say management method because it never goes away entirely but on somedays I can't seem to find it anywhere on me. But somehow at least 1 to 3 little tiny blisters show up. During a flare up I'm guessing there would be several hundred on my front and too hard to count the back side. So Grapefruit Seed Extract works for me. Just would love to double check if that is what you meant. Itching to know here in Chicago. Thanks!


Garlic, Grape Seed Extract
Posted by Pam (Denver ) on 08/28/2015

Did you mean grapefruit seed extract? I have heard of this for clearing yeast. Not grape seed extract. Thanks for clarifying.


Garlic, Grape Seed Extract
Posted by Kathy (Ga) on 04/13/2016

I've had this over a year and I do believe it's grape seed oil extract. It's very good for skin. I'm at the point I believe red wine is my trigger. Will stop a while and see. Just had a bad flare.


Garlic, Grape Seed Extract
Posted by Andi (Fl) on 05/13/2016

I have been diagnosed with GD from a biopsy. I have tried cortisone cream, coconut oil, baby powder, cetaphil lotion. Nothing works. I work out daily, so sweating is not going to stop. Interestingly enough, after reading all of your posts, I, too, drink red wine. Hmmmmmm. Going to try and stop for a week and see if anything gets better. I'm a healthy female in my 40's. Not itchy, just ugly and annoying! Help!


Garlic, Grape Seed Extract
Posted by Gardeningjunkie (Ozark's In Mo) on 06/15/2016

Andi- The following px worked for me (note I am allergic to hydrocortisone among other allergies, I have allergic contact dermatitis, so unless you have been patch tested beware of what you put on your skin). I had 7 month rash that was on torso and abdomen biopsied for Grover's and came back negative, yet doctor told me I still had it because biopsy is only positive in the active stages and my pustules were scabbed over. She said I fit the classic profile and only sees 1 new case a year. Previously had been given topical steroids to put on it by other dermatologists which did nothing but make it worse. This doc prescribed a topical antibiotic- Clindamycin 1% clear lotion and in 3 days dramatic improvement in appearance and significant reduction in itching and pain (could not even lean back in a chair or while driving it hurt so much). In 2 weeks rash almost completely gone but told to use lotion 1 full month, then stopped treatment after the 1 month and rash started to reappear after 2 days (also worked in garden in heat). Now told I may need to stay on this antibiotic indefinitely, told it is ok because not much is absorbed internally.

I gave up all alcohol (2 vodka's and 2 red wine's daily) in February, desperate to try anything, but it made no difference in my rash; still will not drink again because at 66 need to give my body every chance I can to stay healthy.

Has anyone used antibiotic lotions for this rash?


Vitamin D3
Posted by Barry (South Africa) on 01/16/2015

Thanks for that , will definitely give that a try. I have just been diagnosed with Grovers. It's so scary! I am so healthy and used to love being out in the sun and gyming, but now so afraid to sweat and get hot. Does sun affect Grovers at all /or worsen it? The Vit D3 - are these pills you take?

Many thanks :)


Vitamin D3
Posted by Donald (Usa) on 05/22/2016
5 out of 5 stars

Have experienced a continual outbreaks of this disease for three years. Doctors first treated the condition with hydrocortisone cream 2.5% it cleared in some areas but not for long. Extreme itch and out break developed and I began using betamethasone dipropionate cream 0.05% (augmented). I began using vit.D3 one pill @ 2000 IUs daily and have cleared completely, cheers too Timothy from across the pond. Eternally grateful Don.


Vitamin D3
Posted by Janet (Idaho) on 01/25/2017

Are you saying you take 400 a day or 4×400 meaning 1600 a day?


Food Allergy Elimination
Posted by Marianne (Florida) on 12/11/2014

Hi, I was diagnosed with Grovers, (three positive biopsies), about 18 years ago. They did 3 tests because the Dermatologists couldnt believe I had it, it covered my entire body. I have had extended periods of remission, generally with annual flare ups in small patches (on my arms mostly). Recently my legs have started itching so bad at night, keeping me awake. There is very little bumps but the itching feels the same intensity as grovers. I do currently have a patch of Grovers bumps on my forearm. Ten years ago I was tested and diagnose with gluten allergy, and I strictly follow a gluten free diet. I have wondered if I have other food allergies. Could you tell me where you did the test? website?

Thanks


Food Allergy Elimination
Posted by Patrick ( Ny, Ny) on 04/26/2015

Hi...thank you for your input. I would like to inquire as to where you purchased the test kit. Thanks very much. Patrick


Food Allergy Elimination
Posted by Heather (Ocean Shores, Nsw Australia) on 11/22/2015

What exactly is the test for all foods. My husband has grove's disease and the naturopath put him on the blood type geno diet.


Food Allergy Elimination
Posted by Fred (In) on 12/03/2015

Looking for help & treatment for Grover's. Any one know where I could get this food allergy test? Ordered online?


Food Allergy Elimination
Posted by Kristen (Massachusetts) on 12/04/2015

Hello and thank you for this post! I recently was diagnosed with Grovers Disease and am a 42 year old woman. Weird thing is I had used the steam room at my gym a few days prior--which is listed on some sites as a potential cause. Still , it seems diet may be a more likely culprit. Can you tell me the at home kit you used? The brand? Thank you for sharing your experience!


Food Allergy Elimination
Posted by Becky (Michigan) on 02/13/2016

I've been diagnosed with this scratching disease and am going crazy scratching myself raw. What's this test you do at home?


Food Allergy Elimination
Posted by Michele (Texas) on 07/09/2016

Debrah, Can you please give more info on the home allergy test you used? Where did you purchase it? Who was it made by? Thank you!


Food Allergy Elimination
Posted by Amy (Mpls, Mn) on 04/17/2017

Please let me know where you obtained the allergy at-home testing kit. I would love to achieve the same results you are experiencing.


Food Allergy Elimination
Posted by Shari (Ca) on 04/18/2017

Deborah - Please add my name to the growing list of Grovers Disease sufferers who would like to know more about this home food allergy test. I'm desperate!

EC: Do any of our EC frequent contributors know of a home food allergy test?


Food Allergy Elimination
Posted by Marise M. (Sydney) on 12/11/2017

Thank you, thank you! I will try your suggestions.


Food Allergy Elimination
Posted by Gia (Fairfield) on 01/15/2018

Hi Deborah,

I also have been diagnosed with Grover's (on sight, no biopsy, though). Dermatologist said there's no cure and no clear cause, and she gave me some steroid cream that doesn't work. I went to see a naturopath and she put me for now on an autoimmune protocol diet while she awaits the food allergy test results. Did you find it difficult to give up the foods you are allergic to? Any tips would be appreciated! I am hoping for a good result....

Thanks for your post! It gives me hope!

Best,
Gia


Food Allergy Elimination
Posted by Brenda (Fayetteville, Ga) on 07/26/2020

How do I get one of these food allergy tests?


Food Allergy Elimination
Posted by Kriss (TX) on 06/01/2022

Hi! I hope you see this. I'm a 45 year old female..I have been dealing with GD for over a year now…nothing has helped. Is there a website to order this test from? Thank you in advance!


Grover's Disease Remedies
Posted by Barb (Maryland) on 10/07/2014

Your advice was helpful and made sense.


Grover's Disease Remedies
Posted by Rita (California) on 06/05/2021

Thank you very much Chris, every little bit of information helps since we are in the very beginning stage of learning about Grover's Disease. I appreciate your help.

Rita


OTC
Posted by Cindy B (Sarasota, Florida) on 07/02/2014
5 out of 5 stars

Last summer I was diagnosed with Grover's disease .. Fought it all summer.. it came back this summer ..a friend of mine told me her secret to treating it. Monistat 7 cream ..applied 2-3 times a day. I did this and within 3 days it's almost gone!

OTC
Posted by Kathy (Mashpee Ma) on 07/31/2014

I have been diagnoist with Grovers also ealier this year. I have been on steroids with no effect at all. I read this post about using Monistat 7 and decided to try it. I use it 2x/day then put baby powder on the lesions. I also take 2400mg fish oil / day. This has definately helped me. This itching goes away within 3days but I stopped using it for 4 days while recovering from unrelated surgery and it came back in full force.

I have also noticed that staying out of the heat will help. I tried taking an oatmeal bath as recomended by an RN and my legs broke out something awful. It may have been the temp of the hot bath however.


OTC
Posted by Sandy (Stevenson, Wa) on 03/04/2016

Did you put Monistat 7 on open sores and rash?


Hibiclens
Posted by Donangelo (Bend, Or) on 06/30/2014
4 out of 5 stars

I contracted Grover's Disease 10 years ago when I lay in bed for 3 months following a head-on collision that broke my bones in 27 places. Several months ago I discovered that coating the area with Hibiclens, a strong and inexpensive antibiotic available without a prescription, for a couple minutes when I take my morning shower, almost completely eliminates the pustules, at least by 80%. Aloe vera or coconut oil also help a little. I am currently applying the Hibiclens only every other day, and I have not experimented to see if I stay cleared up if I stop the Hibiclens.


Vitamin D3
Posted by Derek (South Australia) on 09/25/2015

Hi Timothy,

Can I just check your dosage of Vit D3? Is it a total of 400IU, or is it 4 x 400IU? I'm expecting it to be be the latter, but just thought I should check.

cheers


Vitamin D3
Posted by Marge (Apple Valley, Mn) on 06/26/2016

I was diagnosed with Grover's by biopsy in Dec 2015. Symptoms began in 2013. I had itchy red spots on lower legs. In mid 2015 I started to feel itchy but I could ignore it. In the fall I figured it was allergies. It progressed in the winter which was when I had the biopsy. I was also very stressed. I took benadryl every day from Late Dec thru April. I decided that was not good for me.

I continue putting emollient creams on my skin, I eat healthy, I don't drink alcohol, I take vitamins, during the past week I increased vit d from 1000 iu to 3000. My scalp, arms, legs, back, face, stomach, are all affected. It seems worse before seeing the red dots. The itchiness is always with me. I've tried cortisone creams, neosporine, vicks, etc. I get most relief when putting on rich Eucerine cream then by adding Alocane. Still itchy but tolerable!! I also stay in AC. Heat and sweating make it worse! It's hard to work out during summer months. I am able to walk indoors with AC most of the time. Any other tips? I wish it would go away.



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