Grover's Disease Remedies

Multiple Remedies
Posted by Carolyn (New York , Ny) on 03/03/2017
4 out of 5 stars

I've had Grover's for 11 months. After much trial and error, this has worked for me:

For the rash, application of triamcinolone 0.1% cream twice daily on affected spots. Liberal use of moisturizing cream (any kind) many times a day on all parts of the body and especially on the itchy spots. Only lukewarm showers. No soap (it dries the skin).

For the itching, 1000 mg quercetin daily (available online or in health food stores), and avoiding foods and drinks that either contain histamine or produce histamine in the body. This had been particularly helpful. I usually take it just before dinner, because it's harder to limit the histamine foods for a larger meal. I also take a half pill of Benadryl before bed, and a blend of bifidus probiotics, to help my system produce DAO, which is implicated in histamine intolerance.The Grover's is now under control and I no longer think about the itch.


Vitamin A
Posted by Marcella (Newport Beach, Ca) on 01/25/2018
5 out of 5 stars

I was recently having a flareup of Grovers over the past 3 - 4 months on both shoulders and upper arms. The itching was maddening and while I had had a couple of other outbreaks of grovers in the past on chest and back, I had not experienced the itching before. And the symetrical upper arms and shoulders was new as well. So I came back to this forum to read about folks experiences and was reminded about the coconut oil which I had some success with in the past and started applying to the areas twice daily. I dont find that coconut oil abates grovers for me but that it calms it down and helps with itching immensely. Then after seeing the prior posts about Vitamin A I thought I would do that as well. I already take 75,000 iu of Vitamin A daily - I have had surgery that makes me malabsorb Vit-A so I take this high dose to begin with but went ahead and upped to one more pill and have been taking 100,000 iu daily almost two weeks now and the grovers and itchiness is about 95% gone. This was a life saver for me after months of suffering.


Vitamin A
Posted by Mama To Many (Tn) on 02/15/2018

Dear Ellen,

You have expressed concern about vitamin A toxicity when using large amounts of vitamin A to try to resolve Grover's Disease.

What about trying carrot juice? Carrot juice has large amounts of vitamin A. And vitamins derived from foods tend to be more readily used by the body. Carrot juice is also helpful to those with many chronic health problems. For therapeutic purposes, sometimes several cups a day are consumed, but since it can have a laxative effect in large amounts, you might want to start with less and work up to more.

Burdock root is a blood purifier and useful to treat chronic diseases as well. I took it for months, 2 capsules with breakfast and 2 with lunch to treat neuropahty with success.

~Mama to Many~


Dietary Changes
Posted by Debi (Ceres. California) on 01/07/2016

Hi Gina, I was diagnosed with Grovers Disease in December after a shave biopsy. I've been using a steroid cream which seems to work temporally. I never thought about changing my diet but after reading your comment I will definitely watch my wheat and gluten intake to see if it makes a difference. This condition is very annoying as I've had it since April of 2015.


Grover's Disease Remedies
Posted by Deborah (Nsw) on 04/04/2018

As a qualified nutritionist, Yes I believe curcumin to be a very effective anti inflammatory and could help in Grovers disease. But there needs to be a 'multi pronged' approach to healing it, by both addressing one's inner health condition and in turn the skin's condition. Steroids are not the way to recover. A simple incredible possible remedy is eating fresh coriander leaves (and the roots). Half to One bunch a day for 3 days to see results. Eat it as a salad with olive oil and apple cider vinegar, pepper and a little sea salt. The folate acid and bioflavonoids plus many minerals in it help 'chelate' metals and toxins in one's system and aid the liver in excreting it. Also every day, 1-2 probiotic tablets and yogurt if possible, 1x D3,1000mg Vitamin C and zinc.1 Nettle tea very good for the blood PH & 1 Chamomile tea per day.Cooked Oats or soaked muesli with grated apple and cinnamon soothes and nourishes one's system (unless celiac) On the itch and lesions, gently apply coconut oil (with clean hands! ), or 1 drop oregano oil in a little coconut oil. Or put an oat based lotion or better still a pultase, on all of the affected area. - make by putting raw oats in a clean stocking or muslin and tying off. Dampen in warm water and apply the oat milk. Very soothing. Also many sufferers say they've had great relief from diaper cream if you're in a rush! . A Paleo diet is the most effective as it reduces acidity and blood sugar, otherwise avoid all processed carbs, fried and sweet food at least for a little while to help it clear up. Oh and yes 1st thing in the morning after cleaning teeth, have half a lemon in a mug or cup of hot water. Or instead 2 tsp apple cider vinegar in hot water. Rinse out mouth with water after ( for teeth) Ok.... in good faith and fingers crossed this will work!! Xxx


Garlic, Grape Seed Extract
Posted by Sabtram (Saratoga, Ca) on 01/05/2015
5 out of 5 stars

I suffered for 10+ years with Grover's disease and treated it (pretty well) with Kyolic Garlic pills (2 in the am, 2 in the pm - the Candida type). Finally my dermatologist mentioned she thought I might have a "yeast problem". I also had sebhorreic keratosis outbreaks and dandruff. I sent in a stool sample (you can get these kits from a Naturopathic Doctor or a Nutritional Therapy Practitioner) and indeed had a slight overgrowth (in my gut) of yeast. I took 2 weeks of grape seed extract pills (specific to the type of yeast I had) and haven't had an outbreak of Grover's or sebhorreic dermatitis since! And, I went off the Kyolic garlic pills. Seems hard to believe it's a coincidence, as I've been in saunas and have been sweaty many times since then. Highly recommend trying this! Good luck to you all!

Multiple Remedies
Posted by Brenda (Florida) on 02/09/2015
4 out of 5 stars

I was diagnosed with Grover's Disease in 2011 and suffered 12 weeks. Five of those weeks I could not sleep at all. It covered my back, front, down my legs to my knees and around my shoulders. There was nothing the doctor could do for me. By the grace of God, I went from sores to a clean back in one night. I thought that was that. But, ten weeks ago I started to break out again. For three weeks there was no sleep. Between the two experiences I went off all wheat which changed my life for the better. I do not plan to go back on wheat, but I did get Grover's again. I do think there is a link to wheat. I was found to have very low vitamin D in 2011, so I think that might be another link. I was also a little low in B12 and I was taking a supplement off and on. I am currently in the 11th week and last week I discovered lavender essential oil. I applied it to the skin and saw improvement. But the best effect was I was able to sleep most of the night. I found out later there have been double blind studies that it helps sleep. We heal when we sleep and I think, now I am about finished with this Grover's. I plan to stay off wheat and take a Vitamin D3 supplement along with my organic whole food supplement for the other vitamins.

Also, some of the best advise I received was to take 3 tablespoons of cold first pressed olive oil in the morning and again at night. It does wonders. I also used the organic coconut oil on the rash and it helped a little. It is my choice of lotion. If I break out again, I will try the ice packs. I get a mega dose of Grover's when I get it. I also think a quick lukewarm shower twice a day helps at the worst of it and then down to one quick shower for moisture. This year I bought a humidifier to keep the humidity at 55 in the house when the heater is running. FYI my blood tests look great for the usual things. I am usually very healthy. I am not overweight. The Grover's did make it to the skin that as not seen the sun. I currently eat all whole foods. There are great recipes out there. I have eaten this way for about a year and a half. My theory is that I got into something I shouldn't have eaten at Thanksgiving (that is when rash started again) or my D and B dropped down again. Hope this helps someone.


Coconut Oil
Posted by Marie (Ny) on 04/30/2018

I am a female who suffered with this itchy rash for 2 years before being diagnosed with Grover's Disease (aka Dermatitis of Imminoseques) and in rare instances could lead to a bullous skin condition for which I was tested. The blood test to ruled out the gene (16034- Bullous Pemphigoid (BP 180) Antiobody, which brought tremendous relief.

This natural way that is being discussed on this site seems the better approach than all the drugs prescribed which haven't worked well at the risk of side effects and possible damage to the liver. Among them, as prescribed by Dermatologists, (which have failed) are: A script (nightly) called Hydroxyzine HCL 25 mg provides temporary relief, downside is some brief dizziness upon waking. In conjunction, taken several 10 day predinzone (10 mg at 40 mg per day sliding down to 10mg). I've used several steroid topical prescription creams and over the counter anti itch creams with aloe. I uses Cerave products and soaps. Use hypoallergenic detergents, wear natural cotton clothing, no metals on jeans, take vitamins to ensure basic health, etc. Recently, I've been offered a long course of powerful drugs called metrotrexate (weekly) or mycophenolate (daily) which are used in cancer patients and organ recipient patients which is beyond the pale had I had the gene and whihc I would have refused even if I had the gene.

Prefer taking the Natural Way:

To keep my skin in PH balance. I found a body wash sold in CVS which is 100% soap & alkali-free and PH - 5.5. I use coconut cream to moisturize, strong zinc skin cream and intend to detox with Cilantro (after reading the success) from other sufferers of Grover's Disease for which I am grateful. Thank you.


Eliminating Sulfites
Posted by Tom (Apex, Nc) on 03/18/2013

Hey man, still clear?? I have been suspecting bourbon and am eaten up with the rash now. Nothing has helped from the derm or the web. GO STATE!! Tom


Eliminating Sulfites
Posted by Rsw (Oh) on 03/31/2018

Hi Chante,

Please look under the “Grover's Disease” section here on Earth Clinic (just click on the title of your message) and you will see people who say that eating cilantro cures Grover's Disease. If you can get some cilantro, try eating a handful for a week, and see if it doesn't help you. Best wishes!


Gluten-Free Diet
Posted by Sue (St. Louis, Mo) on 12/16/2012
5 out of 5 stars

I have had Grover's since I was a teenager, but never knew what it was. I am 56 now. My Dermatologist confirmed it a couple of years ago. She suggested using the cream AmLactin which helped, but it was always there. I noticed when I started having fruit smoothies 5 days a week, my skin improved. A couple of months ago I decided to go on a no wheat diet in hopes of helping with inflammation problems. I have fibromyalgia and osteoarthritis and have a lot of pain and stiffness. Well, my pain and stiffness is 60 percent better and the grovers disease seems to be gone for the first time in my life! Oh, and I lost about 7 pounds and feel better than I have in a long time. If I cheat and eat wheat, I am in pain for a couple of days. It is definitely worth a try!

Zinc Oxide
Posted by Peterjk (Hcmc, Vietnam) on 09/30/2012
5 out of 5 stars

Hi, I was diagnosed with Grovers Disease by a dermalogogist in Vienam (USA doctor) he did not explain the implications of the anti-biotics he subscribed to me, the RARE side effects being light sensitivity. This being me I did exhibit! He sunscribed several differant tablets & creams. None of them worked, I bought babies nappy rash talcum powder (Contains ZnO-Zinc Oxide) also read about GARLIC tablets, so bought them.

Within several weeks applying baby nappy rash powder and taking a 1000mg tablet of odourless garlic the rash had gone. I thought this strange so stopped taking tabs and using powder for a few days. GROVERS reappeared! Restarted using the powder and taking the tabs and GROVERS went away again!

I do not know if this will work for all suffers but it did work for me, don't know why it works, Zinc Oxide is good for all basic skin problems but how it works on GROVERS I have no idea!

Both treatments do not cause any harmful effects, the woese that cam happen is you develope an allergy to GARLIC!

It has been 4 months sonce the last signs of this terrible disease and I am glad this treatment worked for me!

Molybdenum
Posted by Jerry (Huntington Beach, Ca) on 07/17/2010
5 out of 5 stars

I have Grover's Disease, confirmed by a dermatologist and a pathology. My first major outbreak was in 2004, with subsequent major outbreaks in 2006 and 2007. I have discovered that the outbreaks are caused by ingestion of sulfites which I am apparently sensitive to. As you may know, sulfites are plentiful in all manner of food and drink, especially psckaged french fries and hash browns, out of season fruits and vegatables and unfortunately, wine and brandy. (and probably beer) I believe that many years of enjoying alcoholic beverages may have damaged my liver's ability to process sulfites. However, I have found that taking molybdenum has negated my problem with sulfites and I am no longer troubled by Grover's. I take one capsule per day (1, 000 mcg). I have no trouble with wine and occasionally even have a few french fries. I don't know if sulfites cause Grover's outbreaks in anybody else but you might want to consider it.

Grover's Disease Triggered by Vaccine
Posted by Sp (Wb, NJ) on 01/16/2022 31 posts

Hi Audrey,

Did the cream the dermatologist gave you have steroids in it? If this is the case, you may be having a reaction to the cortico steroids. Please do not use prednisone or anything with cortico steroids in it. Do a search for ITSAN or Topical Steroid Withdrawal Syndrome. The itsan dot org website has info on this. Cortico steroids ruined my health, and life.


Grover's Disease Triggered by Vaccine
Posted by Rita (california) on 06/04/2021

Charity, I'm so sorry to hear your mother in law died of heart issues from methotrexate drugs, ugh, so awful and sad. I was diagnosed w/RA, and did know this is offered so freely by most doctors, as oppose to nutrition first. I did numerous things to self heal. And even though it took much dedicated work, research, and commitment, it was ALL worth it. Yes, agree we do have to do an awful lot of suffering to learn, and how not to trust some doctors advice, and the prescriptions of course. All my best to you.


Grover's Disease Triggered by Vaccine
Posted by Rita (California ) on 06/10/2021

Hi Jeannette,

Thank you so much for kind your healing information, and recommendations. We are grateful for all of your help, and will be buying Nigella Oil today!

The thing that is so mind boggling about my husband's skin body rash is the fact that he his so “incredibly” healthy.

All blood work is, and always has been EXCELLENT. Same with thyroid, cholesterol, and prostate.

He takes zero (0) prescriptions, and never has, except on a “rare” occasion, and for only short term use.

He has always been an athlete, and presently a golfer. He gets plenty of sunshine (Vit D) by “WALKING” a 18 hole golf course 3 x week, yep, no golf cart. We live on 3 acres, so again, always outdoors, and moving his body.

He is well hydrated

A very positive person

A very Calm-minded person

He is very HAPPY

He eats a WFPB diet (I am a whole food plant based certified health coach). No processed foods, very low, sugar, salt, and oil intake. Minimal wine on occasion, but presently none.

His Dad will be 100 years old in a few months, he is also in excellent health, and has a very sharp mind still. His mom passed at 95 yrs., but extremely healthy til the end - Longevity and good health runs deep in his bloodline.

This awful, body rash just showed up on our doorstep one day, practically overnight. And it appeared AFTER he was given the Pfizer Vaccination. Even though it was a delayed reaction, there are reports of delayed reaction, after receiving the Pitzer Vaccine. And we are both trying really hard to not go there, and that it was possibly the Pfizer Vaccine that ignited this body rash. Especially not ever having, skin rash issues, never!

His stress level is low, and we are happily married (32 years). Both of us are so blessed, and grateful for all that we have, our life, and especially our family.

Again, I appreciate your recommendations, Nigella Oil/book, CBD oil, and I'll keep you posted. Thank you, thank you, thank you!!!


Grover's Disease Triggered by Vaccine
Posted by Rita (California) on 06/15/2021

Hi Elizabeth,

Thank you for posting, and sharing your story, regarding your personal experience with Grover's Disease diagnosis, as well as the possibility that Covid-19 Pfizer Vaccine, may have caused your Full Body Rash.

Here is an update as of 6/15/21:

My husband has now seen a second dermatologist, and a very good one. She was quite taken aback by the FULL BODY RASH on my husband's body, that she immediately left the patient's room, to bring in a parade of other doctors for a second opinion. The other doctors confirmed it was "not" Grovers Disease, per their personal observation, and they were very matter of fact. She, and the other doctors suggested a second biopsy to confirm the diagnosis, since the first biopsy was sent to a local lab in our town. She preferred a biopsy test from UCSF Lab (California), one of the best in our state/country. The results came back, and it is "not" GD. However, it was very similar to the first biopsy, which is good, that both biopsy tests, were aligned. Just to be clear, the first dermatologist who diagnosed GD, was by observation only. But now, we have both both biopsy tests results, which have been confirmed otherwise.

At the end of our appt., w/the doctor, I asked if she has seen any other patients with a full body rash like this, after taking the Covid-19 Vaccine? She replied, she has seen several patients, since the Covid-19 Vaccine, but only with smaller arm rashes, and nothing like this.

My husband's biopsy report is as follows: Spongiotic dermatitis, and is not fungal. Spongiotic dermatitis, includes Allergic Contact Dermatitis, Drug Eruption, Arthropod, Bite Reaction, and Autoimmune Vesiculobullous Disease (such as Bullous Pemphigoid).

The only two possibilities on this list, is "Allergic Contact Dermatitis" and "Drug Eruption". We don't believe the others relate, due to the description of the rash. Although we haven't a clue what my husband may have come in contact with topically, that could have caused his full body rash per Contact dermatitis. As, he is pretty much, a "creature of habit". Just to be safe, we have changed laundry soap, body soap, shampoos, and even bought new quality sheets. And also washed all of his clothing. His body products are the same that he has always used, and has never had a reaction to any. Which he keeps very simple.

As far as the "Drug Eruption" diagnosis - it does seem to point to the Pfizer Vaccination. As my husband does not take any prescriptions, and only an occasional Aleve, with no side effect ever! Also, after doing my own research, it appears vaccines, and drugs can cause a "Severe Rash". I suggest checking the list of ingredients of Pfizer Vaccine, as we did, which is provided by CDC online.

Also, I want to add one other body contact w/heat, that I neglected to mention in a previous thread, which is an "Electric Blanket". The blanket is turned on, only to pre-heat the bed, prior to bedtime (approx., 20 min before), and is turned off, before actually getting into bed. However, the blanket is still electrically plugged in while sleeping.

Elizabeth, I see you used a heating pad, which triggered my memory of the electric blanket.

The two prescriptions given, to help with his body rash are both Topical Ointments; Clobetasol Propionate, and Triamcinolone.

Of course, my husband is using these meds, out of "pure desperation". As I mentioned before, he never takes prescriptions, so this was a difficult decision for him. The Clobetasol, was to be applied for 2-3 days only. (As it only comes in a small tube, and can not be prescribed again for 30 days, in order for insurance to cover). The 1st medication seemed to be clearing the rash, but when he ran out of it, and then begin using Triamcinolone (per doctors instruction), new bumps appeared, and the rash started spreading. One week later, after seeing this, she gave him a cortisone shot, and instructed continue use of the 2nd medication, until the next follow up appt., which is next week.

Elizabeth, I too wish there was a way to create a safe place for others who may be experiencing the same rash/side effect, and may suspect Covid-19 Vaccination. Earth Clinic is an excellent site for starters, and hopefully others will find this site helpful to share their own story.

Please, anyone experiencing a similar situation, or side effects of a Full Body Rash, after receiving the Covid-19 Pfizer Vaccination, we hope you'll share your story here.

Thank you,

Rita

FYI: Here's a website per our doctor- Assistance, for anyone having side effects from Vaccine, contact, VSafe.

Also, after reporting our health situation/side effects to the CDC, here is their response to my letter, and link for assistance, https://vaers.hhs.gov/ Please see other links below.

Dear Ms F-----,

Thank you for contacting CDC. We are sorry about the symptoms you experienced after the Pfizer-BioNTech COVID-19 vaccine.

Hypersensitivity reactions such as rash have been reported following administration of Pfizer-BioNTech COVID-19 vaccine outside of clinical trials (see https://www.fda.gov/media/144413/download). Commonly reported side effects after COVID vaccine include tiredness, headache, muscle pain, chills, fever, nausea, and injection site pain, redness, and swelling (see https://www.cdc.gov/coronavirus/2019-ncov/vaccines/expect/after.html).

We recommend that you follow-up with your healthcare provider. As policy, CDC does not offer clinical guidance for a specific patient, and recommends questions and decisions regarding the clinical care and management of a patient be discussed with the patient's healthcare provider. Such patient management requires familiarity with a patient's medical history, the ability to physically examine the patient, as well as clinical laboratory testing to obtain a fuller picture of the patient's clinical situation. These factors are beyond CDC's ability to provide, and for those reasons, we recommend you discuss your concerns with your son's healthcare provider.

If you have not already done so, we encourage you to report your symptoms after vaccination to the Vaccine Adverse Event Reporting System (VAERS) or ask your healthcare provider to report it. Reports to VAERS are important to help CDC and the Food and Drug Administration (FDA) detect new or unusual adverse events or patterns that could indicate a problem with vaccines. Instructions for reporting are available at https://vaers.hhs.gov/

Sincerely,

CDC Immunization Safety Office staff

Atlanta, GA


Cilantro, Zinc Oxide, Turmeric
Posted by Roberta L. (Ny) on 04/25/2021
5 out of 5 stars

My Grovers Disease is now gone! After reading this website, I've had a cilantro smoothie daily and used zinc oxide 20% to quell the itch. Great improvement in a week. Then my dermatologist gave me injection of Dupixent, bc I also have some eczema. Mild improvement and reversion after injection. Kept up the cilantro and added turmeric 3600 mg a day. Turmeric is good for treating inflammation in the body, my skin felt hot all the time w Grovers.

Within three days, my GD disappeared completely. It's been almost two weeks. Keeping my fingers crossed. Recommend trying turmeric to treat inflammation.

Cilantro, Zinc Oxide, Turmeric
Posted by Roberta (NYC) on 10/30/2021
5 out of 5 stars

I'm following up on my posts from April 2021 to report I am still miraculously free of Grovers since the end of April 2021. I want to share my recovery after suffering terribly with it since onset in September 2020. I believe stress brought on my Grovers. I had tried Chinese medicine, a slew of steroid creams from dermatologists and nothing worked. Then I found this site and tried the cilantro smoothie route and zinc oxide to put on the skin to stop itching. I began to improve immediately. Then I added oral turmeric to my treatment. Although not a natural treatment, my dermatologist suggested trying an injection of Biological Dupixent, which was initially used to treat psoriasis. After one injection I had slight improvement which did not last. I took a second one six weeks later and all my Grovers went away. I did not take any further injections and stopped cilantro and didn't need zinc oxide bc I had no more rashes. I am still clear six months later. I use olive oil soap and Dove. I hope all this helps those suffering from Grovers currently.


Ice
Posted by Karly (New Zealand) on 07/13/2020
4 out of 5 stars

Cold Showers or Ice Packs or Ice Rollers for skin work really well for Grover's Disease.

If you sweat and don't have a shower straightaway you will feel a slight crawling stingy feeling on the skin, this is a warning sign that your skin is going to break out.

I've found that you can exercise and get hot and sweat as much as you want but you must not let the sweat dry on your skin, wash it off as soon as you can.


OTC
Posted by Bob C (Savannah, Ga) on 03/27/2018
4 out of 5 stars

Grover's Disease OTC Itching control that works for me:

I just found this site a few hours ago and wanted to pass on what is working for me. I haven't read all the posts but I am thankful that this site exists and you all post to try and help each other.

Although I have had intense itching for over 4 months, I only received the results of a biopsy confirming Grovers about a month ago. My dermatologist recommended Gold Bond Relief Lotion with 3% Salicylic Acid. It is an over the counter lotion that works for her other Grovers' patients and it is available at Walmart and Target for under $10. Supposedly other drug stores carry it at a higher price but I have not been able to find it.

The salicylic acid lotion works almost immediately for about 6 hours most of the time. A second application over the first application works, but not nearly as effective as immediately following a shower or bath. (I have read reports that bathing submerged for at least 5 min is best, but a shower works for me.)

A few days ago I tried A&D ointment and that worked great in suppressing the itching the one time that I tried it. Going bare chested without a shirt is also very effective in extending the time duration after applying the Salicylic Acid.

The dermatologist prescribed the antihistamine Hydroxyzine HCL 25mg. Although the direction is for 1 pill, I take 1/2 a pill before bed and I usually sleep through the night without waking up itching. I also have a prescription for 6% Salicylic Acid cream but the cream and lotion have been discontinued (not FDA approved). I tried the 6% gel, but it makes me light headed and since the 3% works I am happy to stay with it.

Good luck .... I hope this helps someone.


Dietary Changes
Posted by Grain-free (Toronto, On) on 01/30/2018
5 out of 5 stars

I honestly didn't think it was possible, but Grover's, which I have had for years (especially on my abdomen), has completely cleared up over the past 10 days. NO MORE DEBILITATING ITCH, no more raided bumps, no more discomfort, no more embarrassment. I eliminated grains from my diet (began a Paleo way of eating, but still eating some dairy) and almost immediately my condition improved. I also began using a diaper rash cream for the itch and thought it may have contributed to my improved condition, but while it dealt with the itch the Grover's was still there. The last few days, I stopped using the cream and the Grover's hasn't reappeared. I highly recommend trying to give up grains. No grains = no Grover's (for me). Just had to share.


Vitamin D
Posted by Karly (New Zealand) on 07/13/2020
4 out of 5 stars

I agree with Christine that vitamin D is important in helping with the disease and flare-ups.


Grover's Disease Triggers
Posted by Wayne (Switzerland) on 01/24/2018

Hey Gary,

I have had GD since I turned 42... so for 27 years. I tried a lot of creams recommended by the skin specialists, but they were largely ineffective. Last winter I tried UV treatment at the local hospital. After a few weeks it really helped and right through summer I sat in the sun with just shorts on. The rash almost disappeared and at the end of summer 2017, I could not see it. Then in December I caught the flu and immediately the rash reappeared on my stomach and chest and a bit on my lower back. I always use a cream after showering after my workouts (5 days a week) and the rash has become less visible again. I am thinking of buying a UV lamp to use at home rather than go to the hospital and stand in the UV rays for 5 minutes, 3 times a week. The UV must be UVB Narrow Band TL01. I think it might be better than creams. I also agree with the people on this site, it could be food related - so it is better to find the cause rather than treat the symptoms. It is worth a try.


Magnesium
Posted by Anna (Uk) on 11/20/2017
5 out of 5 stars

Grovers disease - I use Magnesium sulphate and this helps.


Water
Posted by Hedy (Delray Beach) on 10/08/2016
5 out of 5 stars

Grover's Disease - Hydration!

Drink much more water and keep hydrated the itchy areas until the inner hydration kicks in. I was diagnosed, tried everything and end up with this simple recipe. Now if a papule pops up, "Geez not enough water?" And grab a glass or two or three. Basically until it is gone.

At first, give it a few days and the 15 to 30 minutes. I think we become more susceptible to contaminants, processed food, pills, and they all increase our water (and fruits and veggie) demand.


Diaper Rash Cream
Posted by Alfred (New York) on 01/07/2017
5 out of 5 stars

I have had tremendous success with diaper rash cream and a juice cleanse.


Vitamin A
Posted by Teena (Melbourne, Australia) on 02/26/2018 236 posts

That is great Ellen that your determination to cure your Grover's Disease led you to sharing your success at using vitamin A and oregano oil to alleviate healing symptoms. I'm sure you will help many.

To continued good health.


Vitamin D3
Posted by Charity (Faithville, Us) on 08/13/2020

If you get low on water, it can take 6 months to rehydrate a body . The rehydration process includes the correct balance of all minerals.... so if something here is out of balance the body will produce histamine to let you know about the problem and that might cause itching. If your liver ( try milk thistle) is having problems that will cause lots of itching. If your stomach is out of whack it will not absorb your minerals. Could be those invisible bugs biting you....mint might get rid of them, I have mint in pots by both doors, repels flies, mice, mosquitos, ect. Oye. I have been going down these rabbit trails for years.

Blessings, Charity


Ice
Posted by Linwood (Fort Bragg) on 07/06/2015
5 out of 5 stars

I have found that an ice pack applied to the area where the itching is occurring during a Grover's disease outbreak is extremely effective to bring almost immediate relief.

Dietary Changes
Posted by Donna C (Upstate Ny) on 03/01/2016

So I have been dx with Grovers since Nov 2015. Completely all over my body, scalp included. I have been to a Naturopathic doctor who has placed me on a strict anti-inflammatory diet (no gluten, dairy, soy, sugar, ....). Not working. Drugs from the doctor, not working. I called today because of a flare-up going on. Told me to use Coconut Oil, already doing it. Also trying pure oils, like lavender, sweet almond, to keep my skin moist. The pain of the itching ...I first put on Peppermint Oil, then medicated Gold Bond lotion with Menthol. It stops the itch for a bit. I am also tanning which was recommended by the doctor (do you believe it! ), it helped at first, but ...well you know. I wish there was more medical research being put into this rare skin disease.


Grover's Disease Remedies
Posted by Sue (St Albans, Uk) on 06/04/2020

Deborah, this is the just about best remedy I have seen anywhere for Grover's Disease. I do hope other members try this; it certainly is the best, simplest, cure for most sufferers of this awful condition. My husband suffered with Grover's for several years and now, finally, his rash has gone (although he has other itchy rashes too). He used a very similar protocol, the key being Cilantro (or Coriander as we call it in UK). It's a miracle herb. When he was taking zinc, Lipo Vit C, D3, K2 (always add K2 if taking D3) and probiotics, they didn't help until he started Cilantro 23 days ago.


Coconut Oil
Posted by Dave (Fountain Inn, Sc) on 01/08/2014

Hello Jackson,

I've had success with rashes using enzymes and sometimes herbs such as marshmallow root and papaya leaf. The enzyme best suited for therapeutic use are ones such as amylase, protease, lipase, pectinase, cellulose.

That combination helps with pH levels for me. Often I have acidic body issues and if baking soda in water isn't enough I've found the pH balancing can be done with an enzyme/ herb combo. And it doesn't seem to take much of such a formula. You can find pH enzyme formulas at health food stores. I found supplementing with enzymes helps with my"dry eye" problem but seems to help rashes and itching which is the Grover's itching you are having.

My point is this: On itching issues, could there be a base deficiency of enzymes? Not that this would be the cause in all cases. I doubt if itching caused by "ringworm" could be helped by enzymes. But I've just seen the enzyme connect play out enough so that I'm becoming really intrigued at the interplay of enzyme activity overall to proper body functioning.

Another, for instance; when I take my enzyme pill I notice I have less sinus congestion. Could the chronic congestion be related to a metabolic / digestive problem that enzymes help overcome? I use a pH balance product from Enzymedica but am sure other companies make a "pH balance" formula also.


Coconut Oil
Posted by Patty (Santa Fe) on 01/13/2021

You are doing too much!!! Apparently do not have a really good dermatologist either -

Laying in sun is the worst thing you can do!

Heat, sweating, hot tubs, all cause grovers or cause eruptions so stop now!!! Coconut oil is great - have heard that a 20 minute past of turmeric and olive oil - then wash off with cold water is good - I also use a teaspoon of apple cider vinegar to i cup cool to cold water several times a day gently slosh on broken out areas..

Find a good dermatologist - do not use prescription drugs unless you absolutely must and then get a prescription from a good - that is g o o d dermatologist and use as directed - if any side effects occur - immediately stop using..


Coconut Oil
Posted by Teena (Victoria) on 08/27/2021 236 posts

The folks at EC found years ago that cilantro is the remedy for grovers. Take some every day. We couldn't work out if it was detoxing heavy metals that cause the skin condition, as cilantro is an excellent chelator, or the large amounts of vitamin A that are within. But it works. Take cilantro internally daily, take a clean bunch, cover with boiling water, cover to keep the therapeutic steam and oils. Steep twenty minutes. If you don't like the taste take capsules 🌱


Kelp Paste, Hot Showers
Posted by Mmsg (Somewhere, Europe) on 12/30/2013

Avvidor, in my experience, the real Coconut Oil drastically reduces itching from any cause.


Eliminating Sulfites
Posted by Bob (Chapel Hill, Nc) on 01/24/2013
5 out of 5 stars

You might add a category for Sulfites, which may be a cause. I have had Grovers for 20 years or more. And drank wine and scotch for longer. Two years ago, I stopped drinking all alcohol beverages. I have been free from the itching and pain ever since then.

Eliminating Sulfites
Posted by Tim (Ellitcott City, Md) on 05/25/2015
5 out of 5 stars

Bob - thank you, thank you, thank you!!! After 20 years of Grover's every winter it's finally gone! As soon as I read you post about wine and scotch the light bulb went off - RED WINE! After years of trying colon cleanses, vitamins, probiotics and elimination diets I realized never cut out the wine - duh. I made the mistake of lumping all alcohol into one category - "I never had a problem with the tons of beer I drank in college". So for me, it is not the sulfites, I verified this by drinking white wine for weeks now. Lesson learned for the rest of you - WRITE DOWN EVERYTHING YOU EAT OR DRINK! I thought I could just muse it over in my head and get it all. I also wouldn't rule out locations you spend a lot of time in (maybe its mold in walls or something).

Thanks again Bob.


Eliminating Sulfites
Posted by Dean (Ohio) on 07/16/2015

I finally found out this week after itching for 2 years that I have Grover's disease...I like drinking beer so do you think that may cause this?


Grover's Disease Triggered by Vaccine
Posted by mmsg (somewhere, europe) on 01/03/2022

Audrey, try soothing the itch with coconut oil.


Grover's Disease Triggered by Vaccine
Posted by JC (canada) on 01/16/2022

Audrey,

Your doctor can freeze the spots off by using CO2 in the doctor's office. It works.


Grover's Disease Triggered by Vaccine
Posted by Patricia (FL) on 09/23/2021
5 out of 5 stars

I got Grovers Disease from the Shingles Vaccine.


Grover's Disease Triggered by Vaccine
Posted by Rita (California) on 06/04/2021

Great information here Bill, thank you so much. We are learning a lot, sadly with trial and error. Yes, have stopped both prescriptions, which he tried each just twice. And have him discontinue the Claritin (he's only been taking for few days), whew, thank goodness! Hopefully not too much damage has been done, w/the few doses. I imagine he should discontinue Benadryl (over-the-counter) as well?? We are so grateful for the info., and links you posted above (borax and iodine). We'll be looking into this immediately! THANK YOU SO, SO, MUCH!! 🙏 🙏🙏


Grover's Disease Triggered by Vaccine
Posted by Rita (California) on 06/04/2021

Thank you very much Charity for your reply to our post, we appreciate all the information and wonderful recommendations. I thought it was important to share our post ~ just as a precaution to others that might be considering the covid vaccine. I am also curious, if others who have Grover's Dis-ease might not in fact be eating the healthiest diet, drinking plenty of good water, getting real vitamin D (sun), exercise, have a calm positive mind, and outlook on life. These are all components for a healthy lifestyle (mind & body). Thankfully, I know, because I self healed from Rheumatoid Arthritis 13 yrs ago. We'll be researching all that you suggested, and again, we are so grateful to you, and all the others for sharing.


Grover's Disease Triggered by Vaccine
Posted by Charity (faithville, Us) on 06/04/2021

My mother in law died (heart issues from methotrexate)after suffering from RA for decades. I suspect it was the zinc in her denture adhesive throwing off her minerals producing histamine. Most of what we learn is from suffering through things . Expecting miracles in faithville, Us...love, Charity

Bill's comment below had iodine in it, I use it daily. Iodine, chloride and fluoride are halides (same shape of molecules) and all go into the iodine ports in the body and only iodine belongs there .Halide - Wikipedia The others cause autoimmune diseases, especially thyroid issues. selenium balances iodine and low selenium causes cancer to grow. You mentioned he was in the spa ....Just an add on.


Grover's Disease Triggered by Vaccine
Posted by Jeannette (Ohio) on 06/09/2021

Hello,

Sometimes medications weaken the immune system and the chlorine may have filled your husband's bucket. Here are my suggestions:

Use Nigella Sativa oil organic 1/2 tsp to 1 tsp 3x per day, especially right before a meal. It has the properties of immune modulation, but it will also calm an agitated immune system. Nigella Sativa appeared in the bible and is said cure everything, but death itself.

2. If you are in a state that will allow you to buy CBD oil with a 1:1 ratio, you can use a drop twice a day(one before bed). This will also calm an agitated immune system. The steps mentioned above are just to calm the body, but your husband might need to look under draining pathways that might be clogged (kidneys, liver, colon), then use some binders as I bet his body is a toxic bucket filled with all sorts of toxins. The medications he received may have filled his body to his limits. You can read about Nigella Sativa online and a new book that came out last year talks about using this oil (Why Not Desserts? Available in Amazon, the oil is also available in Amazon. Have him avoid for now dairy, eggs, gluten they are hard to digest. The Nigella Sativa is sold at many health food stores and believe me when I say this will take care of his problems within few days. There is a reason that is reference in the bible!

Good luck, Health Coach


Grover's Disease Triggered by Vaccine
Posted by Joe A. (Stockton, Ca ) on 10/31/2021

Ken, I just read your latest post, regarding sleep I have a few things: Serpina pills from Amazon or wherever, Serpina is an Ayurvedic herb that was produced in 1934 for lowering blood pressure, later it was and is used for insomnia. AKA: Indian Snakeroot. If you cannot sleep at all take 3 pills in AM and 3 pills in PM they are 4mg pills, no side effects, stop whenever you like. They also calm your mind down. If you like you can take 2 pills 3X daily. It does interact with cold flu medicines and Antipsychotic drugs. The other suggestion is to take Benadryl pills 50mg or 100mg and if you wake up 1,2 AM then take another pill to put you back to bed. Completely good to use providing no longer than 1-2 months. Long-term effects can cause memory loss. Best of luck. Joe


Cilantro, Zinc Oxide, Turmeric
Posted by Tina P (Pennsylvania) on 05/29/2021

My husband has been diagnosed with Grovers last year. Dr is trying everything. What soap do you use in the shower?


Zinc Oxide
Posted by Robert (Illinois) on 03/31/2021

Robo,

1st of all thx for sharing. Like you I'm in my 60's. I was diagnosed with Grover's 10 years ago. It is all over my back and on about 1/3 of my stomach. So back and front of core truck is 95% of where it appears. The other 5 to 10% of I I have isolated spots. Primarily on the high part of my thighs and a few around my belt line. But never ever on or near my privates nor ever on my face or neck. It's appeared but isolated on the collar bone part closest to my neck. But again never on face or privates by me or anyone I've heard comment. So think you're good there. You said forearms however...I have never had it there. So that was the only unique location comment of yours. I have heard everyone fails with what doctor prescriptions of any kind myself included.

I started the cilantro about 10 days ago. I love the taste and the other benefits (see my very recent post in the cilantro section of this forum.) So far no change. I will continue the cilantro routine forever regardless. Two days ago, I started the zinc oxide cream (16% active ingredient--Zinc oxide). It diaper cream. Covers it up nicely but almost is irritating the papules. So the 48 hour result for me is "not" working. I've heard others have miracles. So that's why I tried it. As I said in my other post, I do plan to comment back on here and let you know how it goes. I would hope you'd do the same. They say we have an "orphan" disease. So don't be a stranger. You and everyone's posts are helpful.

Kind regards, Robert from Chicago.


Keto Diet
Posted by Melinda (Bend) on 01/14/2021
4 out of 5 stars

Worked Temporarily

I was diagnosed with Grover's Disease at 50. Was going through menopause at the time so it took a very long time to get it diagnosed. I was miserable. Mine falls on my lower back and torso.

Interestingly, it went away after 2 months or so and following a very strict Keto diet thought this was why it went away. I do not eat any sugar, gluten, wheat, or processed foods. I am now 56 and after going through an oral chelation therapy with my husband, ended up with this horrible GD rash. I had almost forgotten about it. I feel this is a herx reaction, but regardless, I have it and it has been very uncomfortable.

I am on my 2nd day of cilantro, which I blend with avocado, egg white protein, and ginger in the morning. I have ordered chlorella and will add that when I receive it. Will update on any improvement. I have coming today some collodial silver cream, so I will update on that too. Wishing everyone the best with their GD. What a pain in the butt.....


Zinc Oxide
Posted by robert (Illinois) on 04/05/2021
1 out of 5 stars

Terri & Veronica, I have read all these "miracle stories" of zinc oxide cream. Thought I had the miracle too when I woke up and it was gone. Problem is, it was NOT gone. It was just merely hidden by the zinc oxide but when you washed it off, there is was again.

I will continue to try but no miracle yet for me.

Robert in Chicago.


Vitamin A
Posted by Judy (Bronx, Ny) on 04/28/2018

I just bought it from GNC. I started taking 50000 and went up to 50000 3x a day. I would check with your dr first since high doses aren't safe for very long but I'm not planning on staying on this more than a few weeks.


Vitamin D
Posted by Jamie R. (Cali) on 04/24/2018

I must say thank you to all the women who are putting their information and treatment ideas out there. It is nice to see that women, other than myself, are suffering with the same thing I am...especially since it's considered a "man's disease."

I appreciate everything all of you are suggesting.


Zinc Oxide
Posted by Sherry Smith (Charleston, Sc) on 08/15/2018

You are so welcome! I want to shout if from the rooftops!


Dietary Changes
Posted by Karen D (Memphis, Tn) on 01/18/2018
5 out of 5 stars

Re a gluten-free diet for Grover's Disease--

As I have come to learn it isn't the wheat as much as it is the YEAST in the breads, cakes, pasta etc. to include alcoholic beverages and fermented foods such as pickles, sauerkraut, Kombucha, even vinegar-based salad dressings which I love.

I eliminated gluten from my diet 2 years ago which I thought was the answer. Yet I still had mild flare-ups especially in the winter and have now had to eliminate the fermented foods, vinegar, and red wine. This is working for me and the symptoms are reduced and I believe this will do it.

Coconut oil applied topically does remove the itching completely. I am hopeful that monitoring my diet will keep this under control. If it continues the next thing will be to have all of my mercury-laden amalgam fillings removed from my teeth.


Grover's Disease Triggers
Posted by Ben (Florida ) on 06/05/2018

PLEASE see BEN's post. I have tried MANY prescriptions with medical directions, non helped. My Cilantro smoothie WORKS. Please TRY.


Vitamin A
Posted by Sherry (Scottsdale) on 01/25/2018

i was just diagnosed with Grover's today. I will try your Vit A therapy tomorrow. Thanks for the info.



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