I suffered for 10+ years with Grover's disease and treated it (pretty well) with Kyolic Garlic pills (2 in the am, 2 in the pm - the Candida type). Finally my dermatologist mentioned she thought I might have a "yeast problem". I also had sebhorreic keratosis outbreaks and dandruff. I sent in a stool sample (you can get these kits from a Naturopathic Doctor or a Nutritional Therapy Practitioner) and indeed had a slight overgrowth (in my gut) of yeast. I took 2 weeks of grape seed extract pills (specific to the type of yeast I had) and haven't had an outbreak of Grover's or sebhorreic dermatitis since! And, I went off the Kyolic garlic pills. Seems hard to believe it's a coincidence, as I've been in saunas and have been sweaty many times since then. Highly recommend trying this! Good luck to you all!
Have had Grover's Disease off and on for close to 10 years. Steroid creams keep it at bay, but never cure. UVB light treatments at my doctor do the trick every time, usually takes abut 6 weeks, 2x per week. Laying out with exposed areas in the sun for 15-20 minutes a few times per week always helps too.
Sorry to hear about your Grover flare ups. I too have had Grover's for several years, but evidently, it is far less invasive on my skin than what many others on EC are experiencing. I have done a lot of research into the medical journals and have been frustrated that there is so little research or interest in this disease. I would like to share with you the one thing that I have found helps the "itching" (in quotes, because mine is more like a "stabbing pain." I use Oregano oil on my flare ups. It is totally natural, of course, with no side effects, and it works wonders -- almost instantly. You can purchase a dropper bottle of this oil at Vitacost online. If you do try the oil, I would be appreciative if you would let me know whether it works for you.
Best of luck, Lorraine
Just checked mayo clinic because they know... Duh, nothing. So it's up to us to educate them! Scotch and bourbon are the problem. Due to the damage they do to the liver. My experience is cirrhosis, fatty build up in the liver, degrading it's ability to remove sulfides. So they get passed to the intestines, which convert them to sulfuric acid. Which gets absorbed in the blood, and the body expels them in the sweat glands. So Bobs theory is Grover's is not a pathogen, no fungus, no virus. It's a chemical reaction. It's exactly like the eufedex I use on sun damaged skin. So get a blood test, check GGT level. You asked if I was clear, answer yes, and no. Spent several months with my father who passed, and I was careless and drank more. And Grover's returned. And GGT levels rose. I backed off the alcohol, Grover's is now under control. Damned, the things we do to ourselves!
I have had Grover's since I was a teenager, but never knew what it was. I am 56 now. My Dermatologist confirmed it a couple of years ago. She suggested using the cream AmLactin which helped, but it was always there. I noticed when I started having fruit smoothies 5 days a week, my skin improved. A couple of months ago I decided to go on a no wheat diet in hopes of helping with inflammation problems. I have fibromyalgia and osteoarthritis and have a lot of pain and stiffness. Well, my pain and stiffness is 60 percent better and the grovers disease seems to be gone for the first time in my life! Oh, and I lost about 7 pounds and feel better than I have in a long time. If I cheat and eat wheat, I am in pain for a couple of days. It is definitely worth a try!
I have Grover's Disease, confirmed by a dermatologist and a pathology. My first major outbreak was in 2004, with subsequent major outbreaks in 2006 and 2007. I have discovered that the outbreaks are caused by ingestion of sulfites which I am apparently sensitive to. As you may know, sulfites are plentiful in all manner of food and drink, especially psckaged french fries and hash browns, out of season fruits and vegatables and unfortunately, wine and brandy. (and probably beer) I believe that many years of enjoying alcoholic beverages may have damaged my liver's ability to process sulfites. However, I have found that taking molybdenum has negated my problem with sulfites and I am no longer troubled by Grover's. I take one capsule per day (1, 000 mcg). I have no trouble with wine and occasionally even have a few french fries. I don't know if sulfites cause Grover's outbreaks in anybody else but you might want to consider it.
You may have missed this post from 3 weeks ago by EC community member Elena using high dose Vitamin A which may be of interest to you.
Posted by Elena (California) on 04/30/2022
I started taking 50, 000 IU daily for Grover's since this past Monday. As of today, my skin is almost cleared up!! Thank you to the contributors who shared that information! Just as a reminder take Vit D, 2000 IU more or less, because Vitamin A depletes Vit D.
I'm going to continue for another week, and then reassess whether I should continue on a decreased dosage of Vitamin A.
Best to All
Grover's Disease Remedies
Beyond Cilantro - Other Remedies Not Previously Mentioned for Grover's
I'm a 75 year old female diagnosed with Grovers by a dermatologist (primary care physician misdiagnosed Prickly heat) who prescribed topical steroids (which I won't use because of my hypersensitivity to all meds. I have a 3 year history of heart disease and docs made me their guinea pig for meds with horrendous side effects ranging from chronic diarrhea to anaphylactic shock).
Have suffered from Grovers for 1 month now...was keeping me awake with needle-like prickles from 8 pm to 3 am. The night prickles stopped 2 weeks ago when I went on a strict candida-free diet (absolutely no bread and no sugar). Rash is milder now but still evident mostly on chest and belly and some on back. Just started the cilantro smoothie routine, but also made a cilantro pesto (1/4 bunch cilantro and olive oil) poultice for my chest and belly area.
Research on other sites indicates a connection between Grovers and:
1. using electric blanket or heating pad which I have been doing for 3 months (stopped immediately upon reading about the connection) as my feet get ICE cold on Colorado nights (which could be adrenal fatigue?); and
2. Grovers can be activated by strong meds for other conditions (certainly a consideration in my case) and
3. excessive sweat (which I notice between and under my breasts at night) which indicates an imbalance in one's internal thermometer.
I think the presence of heavy metals are also worth examining. Looks like cilantro may play a big role in a cure. Thanks to all of you for your willingness to share what's working! Anxious to try your recipes!
Grover's Disease Triggered by Vaccine
I came lately across an interesting combination to rise up the own Cannaboids and to bind down the silent inflammations and inflammations in general. I copy in the orginal combination: Since I have all products at home, but never used them together, it does not have the same effect. Instead Astaxanthin, I take my fish oil, PEA I take twice a day and Curcuma every 3-4 days, since I have a very strong one. This combination should help for Rheuma and Athritis, but I guess, it does not matter where you have pain or other problems, the own Cannaboids have to be supported.
DoloGon mit PEA (Palmitoylethanolamid), BCM-95 Forte® Vollspektrum-Curcumin und Astaxanthin, www.drhittich.com.
Grover's Disease Triggers
I'm addressing several questions from the posts I've read tonight. I've had Grover's Disease over 30 years. It was dormant for a couple of decades but resurfaced with a terrible outbreak in the last two years. I know now (and have confirmed in articles on the net) that Xrays trigger Grover's--and I've had many xrays because of severe scoliosis and now a shoulder injury--as did the UVA therapy my dermatologist gave me. I had six treatments and between those and a lot of recent xrays, I now have Grover's all over my breasts, midrift, arms and legs. Previously, they were limited to my chest.
I've been horrified to watch it spread before my eyes. I quit the UVA therapy as soon as I realized what was happening; however! I have since read that UVA therapy initially makes the Grover's worse--then makes it better. I've asked my dermatologist to research that.
To those who are going in the sun: STOP sweating! It's dumb!
As for Cilantro, I bought the oil on Amazon because a support group I belong to is experimenting with it and looking for feedback. I've been taking 5 drops a day in water for about 2 months. I can't see any change, other than the spreading of the disease. My derm prescribes both Clobetasol and Eucrisa, which I alternate daily. He just added hydroxyzine. I also use a moisturizing cream that contains both menthol and camphor. So, I'm kind of taking a shotgun approach to this but it's out of desperation.
What's new about the appearance of the Grover's is that I'm developing purpura--the purple hematomas (for lack of a better description) all over my chest, breasts, arms and I suppose my legs will be next. I've seen nothing in print that links Grover's to stress--but I'm here to tell you I believe stress is a major trigger for me. I'm under tremendous stress, facing open spine surgery soon, and my derm told me he now agrees with me. We believe stress and the frequent x-rays have a lot to do with my progressing flares.
The only drug I had a GREAT response to but don't take more of because of its negative effects is PREDNISONE. I took it for 15 days and had a dramatic clearing of the Grover's--but I've had a terrible progression of the disease since then (this past summer).
I wish that more clinicians and researchers would take up the cause and find more effective treatments for us sufferers of Grover's. Until then, keep sharing.
Update: I still have Grover's ( 7 months). But I am still working on healing my body to get rid of it. Also, I was able to find a place to report my symptoms to the CDC I believe. The website is thru the Vaccine Adverse Event Reporting System. The link is https://vaers.hhs.gov/reportevent.html. There is also information about filing a claim after you submit. I also read an article recently that stated that dermatologist know that the shingles vaccine can cause Grover's disease but they don't tell you that so if you are at that age to get the Shingles vaccine ask questions before you get it. The link to that article is
Grover's Disease Triggered by Vaccine
Our skin is our largest organ, coconut oil is anti fungal anti viral and anti bacterial anti microbial, molybdenum keeps the liver from causing pain when detoxing. The liver is the largest detox organ and ginger is very wonderful. Castor oil is the palm of Christ and you can put it in and on the body, really messy works amazingly. Comfrey heals rapidly bones and skin and muscle. Zinc is for viruses and copper is for parasites. One lowers the other.
One mineral imbalance or hydration issues will produce histamine. Histamine will cause all kinds of immune and skin issues. Borax removes calcium out of soft tissue and displaces certain toxic minerals like they use in vaccines.
Use some chanca piedra with that. Dr Berg Gives Best Tip on Autoimmune Disorders & Conditions | Autoimmune Diseases - YouTube
Sunbathe for vitamin D and hormone reset.
and I go to the healers on youtube, just type healing prayers if you are interested. the real ones have testimonies below them about the miracles, as with anything you have to keep applying the cure. Blessings, Charity
Grover's Disease Triggered by Vaccine
I'm so sorry to hear you have RA, it is a challenge to have this dis-ease.
I'm happy to share, though it was a quite a quest of a journey, because in back 2008, there was not much info. Or healing support like there is today.
Here are two very good people I would highly recommend that you contact.
1. Clint Paddison, at www.paddisonprogram.com
2. Erika Bustos, @ Instagram, you can reach at healing_arthrutis_holistically or Erikabustos.com
Here is my list for healing from RA:
#1 most important: Eating a Whole Food Plant Based Diet, no processed foods, no dairy, no animal meat, no gluten, no soy except for organic sprouted tofu, very little salt, sugar, and oil (instead cook with vegetable or chicken broth)
#2 See, and follow these doctors: T. Colin Campbell, Dr. John McDougall, Dr. Neil Benard (pcm.org), Dr. Michael Gregor, Dr. Joel Fuhrman, Dr. Caldwell Esselstyn, Dr. Michael Klapper.
These guys are honest, true, and have dedicated their whole adult life helping people to heal from dis-ease in their life. They are the BEST.
Mind & Body work, is very important. Addressing unresolved life issues is key (self work). And body work to keep your body balanced.
Coach/Therapist for support is very helpful and to keep you on track. Erika Bustos or Clint Paddison
Exercise & Strength Training, even if you start slowly it's ok. Your body must move for oxygen and inner fluid movement. Strength Training is for building muscle, so joints have muscle support, which shall ease joint pain. Again start slowly, and build up.
I hike 3 days a week, in the am - and accomplish getting fresh air, sunshine and exercise. And 2 days a week, I do strength training, and yoga. Just move you body!
Practice Meditation, Pray, Yoga, or Qigong, or Tai Chi
Parasite cleanses /Dr.Richard Shultz (super important)
Ayurvedic Practioner/ medicine
Functional Medicine Doctor,
or Integrated Medicine Doctor
Practice breathing, calmness, and positivity.
This is most of it, but it was done over many years of learning and going through my own journey to discover all of this, and who I was.
I truly hope this is helpful, please reach out anytime. btw- I am a Whole Food Plant Based certified health coach.
Love & light to you!
Cilantro, Zinc Oxide, Turmeric
My Grovers Disease is now gone! After reading this website, I've had a cilantro smoothie daily and used zinc oxide 20% to quell the itch. Great improvement in a week. Then my dermatologist gave me injection of Dupixent, bc I also have some eczema. Mild improvement and reversion after injection. Kept up the cilantro and added turmeric 3600 mg a day. Turmeric is good for treating inflammation in the body, my skin felt hot all the time w Grovers.
Within three days, my GD disappeared completely. It's been almost two weeks. Keeping my fingers crossed. Recommend trying turmeric to treat inflammation.
Zinc Oxide for Grover's Rash
I'm a 69 year old female and tried zinc oxide! It's awesome!! I put in on last night and the red areas were gone this morning. This is the first thing that worked for me.
I've had grover's for several years. Compared to the cases described here, mine was milder than most. My lesions were mostly on the front of my torso, and though they would itch sometimes, not to the point of keeping me awake, and never all at one time. Hydrocortisone cream subdued them for a few days, but never eliminated them.
I have been taking 2000 IUs of Vitamin D3 for over a month now, and the lesions are 99% gone. I am continuing to take D3, but now I am focused on fading the little scars left behind from the lesions. For this I am using Jason's vitamin E 25000 IUs once or twice daily. I'll report back if see any definitive improvement.
Thanks again to Timothy from London (2014), for posting his success with vitamin D3!
I have found a near miracle to get relief from the intense itch of Grover's Disease. It is Peppermint essential oil. I mix it with Nivea lotion or Coconut Oil. You can adjust the portion to your own liking. I put about 1 1/2 tablespoonfuls to about 4-5 drops of oil in my hand, mix it up and apply. I get about 10-12 hours of relief from the itch plus it helps with keeping the skin moist and healing. I'm grateful!!!!!
I was diagnosed with grover's disease in January of this year. The symptoms began with very itchy feet at night and the progressed to outbreaks on back, chest, stomach, arms and legs. At one point, my arms became totally inflamed and looked like lizard skin. This is a horrible condition and my heart goes out to all of you that are enduring this. I have been to four doctors, two of which are dermatologists. The family physicians had never heard of it, so no help there. The dermatologists had absolutely no real advice to give, other than topical steroids, which don't really help unless you could bathe in the stuff.
The posts and words of advice on this forum have been the only relief and help I have had, so thank you everyone. I want to post what has helped me. To me this seems very inflammatory. I have found that ibuprofen helps alot. If you space it out as needed and throughout the day, it can bring relief. Also another thing that I haven't seen posted too much is baking soda baths. About 1/2 to 1 cup in the tub and soak 30 minutes helps with the itching and it is not toxic.
At night I take an antihistamine like Benadryl which helps with the itching and for sleeping. For diet, I have added vitamin D and Omega 3 supplements daily, along vitamin C. I drink the juice of a lemon (diluted in water) and also cilantro a few times a week. One dermatologist told me not to exercise (?) but that sounded so depressing. I try to walk every day for a few miles. No one knows if this is an immune disorder, but I believe that staying as heathy as possible has to help. I pray for you all, that you all will back to health and well again very soon.
As a qualified nutritionist, Yes I believe curcumin to be a very effective anti inflammatory and could help in Grovers disease. But there needs to be a 'multi pronged' approach to healing it, by both addressing one's inner health condition and in turn the skin's condition. Steroids are not the way to recover. A simple incredible possible remedy is eating fresh coriander leaves (and the roots). Half to One bunch a day for 3 days to see results. Eat it as a salad with olive oil and apple cider vinegar, pepper and a little sea salt. The folate acid and bioflavonoids plus many minerals in it help 'chelate' metals and toxins in one's system and aid the liver in excreting it. Also every day, 1-2 probiotic tablets and yogurt if possible, 1x D3,1000mg Vitamin C and zinc.1 Nettle tea very good for the blood PH & 1 Chamomile tea per day.Cooked Oats or soaked muesli with grated apple and cinnamon soothes and nourishes one's system (unless celiac) On the itch and lesions, gently apply coconut oil (with clean hands! ), or 1 drop oregano oil in a little coconut oil. Or put an oat based lotion or better still a pultase, on all of the affected area. - make by putting raw oats in a clean stocking or muslin and tying off. Dampen in warm water and apply the oat milk. Very soothing. Also many sufferers say they've had great relief from diaper cream if you're in a rush! . A Paleo diet is the most effective as it reduces acidity and blood sugar, otherwise avoid all processed carbs, fried and sweet food at least for a little while to help it clear up. Oh and yes 1st thing in the morning after cleaning teeth, have half a lemon in a mug or cup of hot water. Or instead 2 tsp apple cider vinegar in hot water. Rinse out mouth with water after ( for teeth) Ok.... in good faith and fingers crossed this will work!! Xxx
Grover's Disease Triggers
Gary, I read your post and could not have described life better than you just did. I am an orthopedic surgeon and have wonderful access to any and all aspects of our medical care system and that has not helped me at all. The dermatologists, God bless them, have not been helpful. This problem leaves now single guy like me feeling hopeless when it comes to dating. I continue to read and try to learn about it and try new remedies. That is where I'm at.
Hi all, at first sorry for my poor english (I'm italian). It is a long time I suffer for grover disease (years), up to a month ago. that time a gave a try to medicinal mushrooms, rieshi and shiitake. Make sure pills are composed of extract PLUS powder of the mushroom, both of them. Take 4 grams per day each mushroom, 2 grams breakfast and other 2 at dinner. Results may arrive in 2 weeks, amazing!
For sure....! We were frequently advised by parents when growing up on our small island in the pre-historic era to take our skin problems into the surrounding sea water for an inexpensive treatment. Seemed to work a treat. We are prone to being somewhat cynical of things touted as being simple or free but it is frequently in the mind I reckon. My ears and sinus condition also improved if I tried a bit of diving, as long as I pretended to be a dog when exiting the water by shaking my head about a bit to drain the ears, much to the amusement of my friends and on-lookers. This was the brief period in my life when I cared what people thought of me! Only when I got a perforated ear drum was I cautioned not to go swimming for a whole year. If you try out the usual hot pools though, you ought not to duck under unless they are certified as being safe to do so. The offending amoeba is also present in parts of the States as well as New Zealand (in case any Americans are reading this! ). Our grandparents knew a thing or two or three!
You have expressed concern about vitamin A toxicity when using large amounts of vitamin A to try to resolve Grover's Disease.
What about trying carrot juice? Carrot juice has large amounts of vitamin A. And vitamins derived from foods tend to be more readily used by the body. Carrot juice is also helpful to those with many chronic health problems. For therapeutic purposes, sometimes several cups a day are consumed, but since it can have a laxative effect in large amounts, you might want to start with less and work up to more.
Burdock root is a blood purifier and useful to treat chronic diseases as well. I took it for months, 2 capsules with breakfast and 2 with lunch to treat neuropahty with success.
~Mama to Many~
I have found that an ice pack applied to the area where the itching is occurring during a Grover's disease outbreak is extremely effective to bring almost immediate relief.
Hi Gina, I was diagnosed with Grovers Disease in December after a shave biopsy. I've been using a steroid cream which seems to work temporally. I never thought about changing my diet but after reading your comment I will definitely watch my wheat and gluten intake to see if it makes a difference. This condition is very annoying as I've had it since April of 2015.
So I have been dx with Grovers since Nov 2015. Completely all over my body, scalp included. I have been to a Naturopathic doctor who has placed me on a strict anti-inflammatory diet (no gluten, dairy, soy, sugar, ....). Not working. Drugs from the doctor, not working. I called today because of a flare-up going on. Told me to use Coconut Oil, already doing it. Also trying pure oils, like lavender, sweet almond, to keep my skin moist. The pain of the itching ...I first put on Peppermint Oil, then medicated Gold Bond lotion with Menthol. It stops the itch for a bit. I am also tanning which was recommended by the doctor (do you believe it! ), it helped at first, but ...well you know. I wish there was more medical research being put into this rare skin disease.
I was diagnosed with Grover's Disease in 2011 and suffered 12 weeks. Five of those weeks I could not sleep at all. It covered my back, front, down my legs to my knees and around my shoulders. There was nothing the doctor could do for me. By the grace of God, I went from sores to a clean back in one night. I thought that was that. But, ten weeks ago I started to break out again. For three weeks there was no sleep. Between the two experiences I went off all wheat which changed my life for the better. I do not plan to go back on wheat, but I did get Grover's again. I do think there is a link to wheat. I was found to have very low vitamin D in 2011, so I think that might be another link. I was also a little low in B12 and I was taking a supplement off and on. I am currently in the 11th week and last week I discovered lavender essential oil. I applied it to the skin and saw improvement. But the best effect was I was able to sleep most of the night. I found out later there have been double blind studies that it helps sleep. We heal when we sleep and I think, now I am about finished with this Grover's. I plan to stay off wheat and take a Vitamin D3 supplement along with my organic whole food supplement for the other vitamins.
Also, some of the best advise I received was to take 3 tablespoons of cold first pressed olive oil in the morning and again at night. It does wonders. I also used the organic coconut oil on the rash and it helped a little. It is my choice of lotion. If I break out again, I will try the ice packs. I get a mega dose of Grover's when I get it. I also think a quick lukewarm shower twice a day helps at the worst of it and then down to one quick shower for moisture. This year I bought a humidifier to keep the humidity at 55 in the house when the heater is running. FYI my blood tests look great for the usual things. I am usually very healthy. I am not overweight. The Grover's did make it to the skin that as not seen the sun. I currently eat all whole foods. There are great recipes out there. I have eaten this way for about a year and a half. My theory is that I got into something I shouldn't have eaten at Thanksgiving (that is when rash started again) or my D and B dropped down again. Hope this helps someone.
You are doing too much!!! Apparently do not have a really good dermatologist either -
Laying in sun is the worst thing you can do!
Heat, sweating, hot tubs, all cause grovers or cause eruptions so stop now!!! Coconut oil is great - have heard that a 20 minute past of turmeric and olive oil - then wash off with cold water is good - I also use a teaspoon of apple cider vinegar to i cup cool to cold water several times a day gently slosh on broken out areas..
Find a good dermatologist - do not use prescription drugs unless you absolutely must and then get a prescription from a good - that is g o o d dermatologist and use as directed - if any side effects occur - immediately stop using..
The folks at EC found years ago that cilantro is the remedy for grovers. Take some every day. We couldn't work out if it was detoxing heavy metals that cause the skin condition, as cilantro is an excellent chelator, or the large amounts of vitamin A that are within. But it works. Take cilantro internally daily, take a clean bunch, cover with boiling water, cover to keep the therapeutic steam and oils. Steep twenty minutes. If you don't like the taste take capsules 🌱
I am a female who suffered with this itchy rash for 2 years before being diagnosed with Grover's Disease (aka Dermatitis of Imminoseques) and in rare instances could lead to a bullous skin condition for which I was tested. The blood test to ruled out the gene (16034- Bullous Pemphigoid (BP 180) Antiobody, which brought tremendous relief.
This natural way that is being discussed on this site seems the better approach than all the drugs prescribed which haven't worked well at the risk of side effects and possible damage to the liver. Among them, as prescribed by Dermatologists, (which have failed) are: A script (nightly) called Hydroxyzine HCL 25 mg provides temporary relief, downside is some brief dizziness upon waking. In conjunction, taken several 10 day predinzone (10 mg at 40 mg per day sliding down to 10mg). I've used several steroid topical prescription creams and over the counter anti itch creams with aloe. I uses Cerave products and soaps. Use hypoallergenic detergents, wear natural cotton clothing, no metals on jeans, take vitamins to ensure basic health, etc. Recently, I've been offered a long course of powerful drugs called metrotrexate (weekly) or mycophenolate (daily) which are used in cancer patients and organ recipient patients which is beyond the pale had I had the gene and whihc I would have refused even if I had the gene.
Prefer taking the Natural Way:
To keep my skin in PH balance. I found a body wash sold in CVS which is 100% soap & alkali-free and PH - 5.5. I use coconut cream to moisturize, strong zinc skin cream and intend to detox with Cilantro (after reading the success) from other sufferers of Grover's Disease for which I am grateful. Thank you.
Hey man, still clear?? I have been suspecting bourbon and am eaten up with the rash now. Nothing has helped from the derm or the web. GO STATE!! Tom
Please look under the “Grover's Disease” section here on Earth Clinic (just click on the title of your message) and you will see people who say that eating cilantro cures Grover's Disease. If you can get some cilantro, try eating a handful for a week, and see if it doesn't help you. Best wishes!
Cilantro, Vitamin A+
After reading all of these great posts on the Grover's Disease page, I tried the Cilantro smoothie once a day with usually a half of the bunch. Added turmeric and black pepper, (they have to work together) berries, a good collagen powder marine or bovine, along with a scoop of organic greek yogurt, ice, water and a scoop of organic non GMO plant based protein powder. I doubled my zinc to 30mg, 500 mg of curcumin (with black pepper), and 25,000-30,000 IU of Vit A plus what is in the cilantro, and 5000 of Vit C. Wore lose closing and limited bras. tried not to sweat during the day on my abdomen and lower back where my GD is located. I also added a uric acid cream twice daily. The one I used was Eucerin rough and bumpy cream. I saw and felt improvement after 2 days and great improvement after 5. Totally gone in 7 days. I am continuing the cilantro but will probably cut back to every other day in a couple of weeks. Staying with the uric acid cream daily and the supplements for a month at least. Then I will reduce the vitamin A, take a two week break from the zinc because it interferes with copper and reduce the dose, and reduce my Vit C. Amazing how food can heal! I cannot wait to return to the dermatologist to let her know so others can possible be helped. For history I have had this for about 6-7 years. Never knew what it was and treated it with a steroid cream that usually worked. It was self- limiting. This year at 62, it came on with a vengeance. My abdomen and lower back from bra line down was covered. It had never been that bad but I was spending way more time in the sun. I went to the derm, asked for a biopsy and it confirmed GD. Of course a strong steroid cream which I hated using because of the skin thinning effect ordered for 2 weeks on then off two weeks and back on for a total of 8 weeks. I tried that with absolutely no resolve and was not waiting 8 weeks to fix this. So I started researching and found this site amongst others. Thanks to all of you who posted. I take other supplements which may have had a small effect but these were the ones that I feel made a difference because I added them. I did try the butt paste etc but had no effect. May just have been me and very messy. Uric acid, I think was a big component because of the breakdown of the skin along with the other support of collagen, zinc, Vit A and C. Hope this helps someone else. Good Luck!
Grover's Disease Triggers: Stress
My dermatologist says that stress plays a large part in Grover, and I believe this, as symptoms appeared at the time my Mother was diagnosed with breast and lung cancer. Being an only child, it was a stressor to the max, and after her passing (3 years later), the settling of her estate, which is still ongoing still is an awful burden.
Have been prescribed Triamcinolone Acetonide 1%, CeraVe cream, Doxepin, Zyrtec, and already take D3, chelated Zinc, Super Beets, Balance of Nature, and am a vegetarian (for over 40 years). Tried the cilantro drink for a week (awful, soapy). If anyone is trying the aforementioned treatments, they may be healthy, but not effective for my case. Already have a long list of meds, as was in a near-fatal car crash right before 9/11 & have had migraines since the age of 3.
My Grover is all over my trunk, legs, arms, neck & reaching to my face. only my hand and the soles of feet are clear. TY for listening, if you did. Hugs
Orally administered activated charcoal does not get absorbed through the gastrointestinal lumen and only acts within the gastrointestinal (GI) tract in its unchanged form. Therefore, it could not possibly have worked at the epidermal cellular level to combat Grover's Disease. Additionally, MDAC may have, and likely would have, retarded the effectiveness of the 'Fungal Forte' active ingredients. Fungal Forte being a formulated supplement featuring lacto-fermented herbs, enzymes and more (what is does 'more' mean) to control fungal fluctuation for optimal digestive health. The advertisement for Fungal Forte says to remove sugar from your diet, and yet they include dextrose (a sugar) in Fungal Forte.
Chlorella, Supplements, Water, Turmeric +
After reading some of the posts here and suffering with this atrocious disease for 2 years, to which my dermatologist simply said "there's no cure, " I tried out the cilantro smoothies and noticed a slight improvement, however I also have added or removed a few other things from my diet and after 2 years, this terrible rash is finally going away, nearly completely. I'm listing a few things here as I'm not sure which one was key for the cure, or maybe it was multiple:
- I started taking Fish Oil (Omega-3s) and Vitamin D-3 daily
- A scoop of Chlorella daily in my morning smoothie (I did not stick with the cilantro)
- Quit alcohol- my acupuncturist suggested that the cilantro and chlorella sounded like liver cures, so I decided to give my liver an extra break
- Stay hydrated- 1.5-2L of water/day
- Women- use a chafe balm under your bra or sports bra! This helped tremendously to reduce additional agitation/friction
- A sprinkle of turmeric daily in my smoothie
I wish I clearly knew what to recommend here, but overall these were all healthy changes for me, so I figured it couldn't hurt to share.
Wondering about references to fungus in relation to Grover's disease which would benefit from anti-fungal herbs? Also Apple Cider Vinegar which helps reduce candida and yeast.
Grover's Disease Triggered by Vaccine
Did the cream the dermatologist gave you have steroids in it? If this is the case, you may be having a reaction to the cortico steroids. Please do not use prednisone or anything with cortico steroids in it. Do a search for ITSAN or Topical Steroid Withdrawal Syndrome. The itsan dot org website has info on this. Cortico steroids ruined my health, and life.
Grover's Disease Triggered by Vaccine
Thank you so much for kind your healing information, and recommendations. We are grateful for all of your help, and will be buying Nigella Oil today!
The thing that is so mind boggling about my husband's skin body rash is the fact that he his so “incredibly” healthy.
All blood work is, and always has been EXCELLENT. Same with thyroid, cholesterol, and prostate.
He takes zero (0) prescriptions, and never has, except on a “rare” occasion, and for only short term use.
He has always been an athlete, and presently a golfer. He gets plenty of sunshine (Vit D) by “WALKING” a 18 hole golf course 3 x week, yep, no golf cart. We live on 3 acres, so again, always outdoors, and moving his body.
He is well hydrated
A very positive person
A very Calm-minded person
He is very HAPPY
He eats a WFPB diet (I am a whole food plant based certified health coach). No processed foods, very low, sugar, salt, and oil intake. Minimal wine on occasion, but presently none.
His Dad will be 100 years old in a few months, he is also in excellent health, and has a very sharp mind still. His mom passed at 95 yrs., but extremely healthy til the end - Longevity and good health runs deep in his bloodline.
This awful, body rash just showed up on our doorstep one day, practically overnight. And it appeared AFTER he was given the Pfizer Vaccination. Even though it was a delayed reaction, there are reports of delayed reaction, after receiving the Pitzer Vaccine. And we are both trying really hard to not go there, and that it was possibly the Pfizer Vaccine that ignited this body rash. Especially not ever having, skin rash issues, never!
His stress level is low, and we are happily married (32 years). Both of us are so blessed, and grateful for all that we have, our life, and especially our family.
Again, I appreciate your recommendations, Nigella Oil/book, CBD oil, and I'll keep you posted. Thank you, thank you, thank you!!!
Grover's Disease Triggered by Vaccine
Thank you for posting, and sharing your story, regarding your personal experience with Grover's Disease diagnosis, as well as the possibility that Covid-19 Pfizer Vaccine, may have caused your Full Body Rash.
Here is an update as of 6/15/21:
My husband has now seen a second dermatologist, and a very good one. She was quite taken aback by the FULL BODY RASH on my husband's body, that she immediately left the patient's room, to bring in a parade of other doctors for a second opinion. The other doctors confirmed it was "not" Grovers Disease, per their personal observation, and they were very matter of fact. She, and the other doctors suggested a second biopsy to confirm the diagnosis, since the first biopsy was sent to a local lab in our town. She preferred a biopsy test from UCSF Lab (California), one of the best in our state/country. The results came back, and it is "not" GD. However, it was very similar to the first biopsy, which is good, that both biopsy tests, were aligned. Just to be clear, the first dermatologist who diagnosed GD, was by observation only. But now, we have both both biopsy tests results, which have been confirmed otherwise.
At the end of our appt., w/the doctor, I asked if she has seen any other patients with a full body rash like this, after taking the Covid-19 Vaccine? She replied, she has seen several patients, since the Covid-19 Vaccine, but only with smaller arm rashes, and nothing like this.
My husband's biopsy report is as follows: Spongiotic dermatitis, and is not fungal. Spongiotic dermatitis, includes Allergic Contact Dermatitis, Drug Eruption, Arthropod, Bite Reaction, and Autoimmune Vesiculobullous Disease (such as Bullous Pemphigoid).
The only two possibilities on this list, is "Allergic Contact Dermatitis" and "Drug Eruption". We don't believe the others relate, due to the description of the rash. Although we haven't a clue what my husband may have come in contact with topically, that could have caused his full body rash per Contact dermatitis. As, he is pretty much, a "creature of habit". Just to be safe, we have changed laundry soap, body soap, shampoos, and even bought new quality sheets. And also washed all of his clothing. His body products are the same that he has always used, and has never had a reaction to any. Which he keeps very simple.
As far as the "Drug Eruption" diagnosis - it does seem to point to the Pfizer Vaccination. As my husband does not take any prescriptions, and only an occasional Aleve, with no side effect ever! Also, after doing my own research, it appears vaccines, and drugs can cause a "Severe Rash". I suggest checking the list of ingredients of Pfizer Vaccine, as we did, which is provided by CDC online.
Also, I want to add one other body contact w/heat, that I neglected to mention in a previous thread, which is an "Electric Blanket". The blanket is turned on, only to pre-heat the bed, prior to bedtime (approx., 20 min before), and is turned off, before actually getting into bed. However, the blanket is still electrically plugged in while sleeping.
Elizabeth, I see you used a heating pad, which triggered my memory of the electric blanket.
The two prescriptions given, to help with his body rash are both Topical Ointments; Clobetasol Propionate, and Triamcinolone.
Of course, my husband is using these meds, out of "pure desperation". As I mentioned before, he never takes prescriptions, so this was a difficult decision for him. The Clobetasol, was to be applied for 2-3 days only. (As it only comes in a small tube, and can not be prescribed again for 30 days, in order for insurance to cover). The 1st medication seemed to be clearing the rash, but when he ran out of it, and then begin using Triamcinolone (per doctors instruction), new bumps appeared, and the rash started spreading. One week later, after seeing this, she gave him a cortisone shot, and instructed continue use of the 2nd medication, until the next follow up appt., which is next week.
Elizabeth, I too wish there was a way to create a safe place for others who may be experiencing the same rash/side effect, and may suspect Covid-19 Vaccination. Earth Clinic is an excellent site for starters, and hopefully others will find this site helpful to share their own story.
Please, anyone experiencing a similar situation, or side effects of a Full Body Rash, after receiving the Covid-19 Pfizer Vaccination, we hope you'll share your story here.
FYI: Here's a website per our doctor- Assistance, for anyone having side effects from Vaccine, contact, VSafe.
Also, after reporting our health situation/side effects to the CDC, here is their response to my letter, and link for assistance, https://vaers.hhs.gov/ Please see other links below.
Dear Ms F-----,
Thank you for contacting CDC. We are sorry about the symptoms you experienced after the Pfizer-BioNTech COVID-19 vaccine.
Hypersensitivity reactions such as rash have been reported following administration of Pfizer-BioNTech COVID-19 vaccine outside of clinical trials (see https://www.fda.gov/media/144413/download). Commonly reported side effects after COVID vaccine include tiredness, headache, muscle pain, chills, fever, nausea, and injection site pain, redness, and swelling (see https://www.cdc.gov/coronavirus/2019-ncov/vaccines/expect/after.html).
We recommend that you follow-up with your healthcare provider. As policy, CDC does not offer clinical guidance for a specific patient, and recommends questions and decisions regarding the clinical care and management of a patient be discussed with the patient's healthcare provider. Such patient management requires familiarity with a patient's medical history, the ability to physically examine the patient, as well as clinical laboratory testing to obtain a fuller picture of the patient's clinical situation. These factors are beyond CDC's ability to provide, and for those reasons, we recommend you discuss your concerns with your son's healthcare provider.
If you have not already done so, we encourage you to report your symptoms after vaccination to the Vaccine Adverse Event Reporting System (VAERS) or ask your healthcare provider to report it. Reports to VAERS are important to help CDC and the Food and Drug Administration (FDA) detect new or unusual adverse events or patterns that could indicate a problem with vaccines. Instructions for reporting are available at https://vaers.hhs.gov/
CDC Immunization Safety Office staff