Grover's Disease Remedies

| Modified: Nov 21, 2018
Cilantro, Natural Remedies for Grover's Disease

Grover's disease, also known as transient acantholytic dermatosis or Grover's Rash, is a skin disease characterized by red, itchy spots appearing on the back and upper chest. They can last for months and never appear again, or go off and on for years. Natural remedies for Grover's Disease are very effective and include dietary changes like eliminating sulfides, wheat and gluten, and taking Vitamin B supplements. Our readers also report that perhaps the most effective remedy for Grover's Disease is cilantro, also known as Chinese Parsley.

Grover's Disease is more common in older men with a history of high sun exposure, but it is believed to be caused by blockages in the sweat glands in the upper layers of skin. The cause of Grover's disease is still clinically unclear, but having dry skin increases the risk, and is commonly seen in hospital patients who are lying on their backs for extended periods of time. Symptoms of Grover's disease include small, but very itchy, red bumps.

Natural Remedies for Grover's Disease

Below you will find a number of user-submitted interesting home remedies for Grover's disease. Know of a remedy not yet listed here? Please feel free to share your story with us.



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Posted by Louis (Loa Altos, Ca., Usa) on 10/03/2018
1 out of 5 stars

I ingested four bunches of cilantro in eight days mixed with some fruits in the blender and I didn't have any relief to my terrible itch... What's wrong???

Louis

Replied by Teena
Melbourne, Australia
10/05/2018
159 posts

Louis, unless you've had significant negative effects, I would keep up with the cilantro, you may just have a lot of heavy metals it is getting rid of first. It might help to to add vitamin A and D. Cod liver oil is a good source.


Posted by Maggie (Islamorada, Fl) on 08/08/2018
5 out of 5 stars

Anyone that is suffering from Grover's rash PLEASE try the cilantro cure. Like many of you I was misdiagnosed for months, finally after 3 dermatologists and a third biopsy it was confirmed, Grover's disease. This non-stop itching was making me crazy. My rash was on my stomach, back, neck, and partially on my arms & legs. I felt defeated having tried numerous creams, both steroid and non-steroid and 3 rounds of prednisone, nothing was working. As soon as I was off the prednisone it was back. The next recommendation from my dermatologist was Accutane, which I absolutely did not want to be on, and then I found this website and the cilantro cure. I figured I have nothing to lose. I made up my own smoothie with 1/2 bunch of cilantro, after 3 days, no change, but I didn't give up. I stayed on it and after 7 days started seeing an improvement with both the itch and bumps. Stayed on it for one month, 1 smoothie a day and my skin returned to normal. I am truly in shock that my skin is 100% back to normal after having suffered from this for 6 months, with no itch and no bumps. I am a female in my mid 50's, & was also diagnosed with low vit D, despite my sun exposure and was taking Vit. D during this time.

My smoothie, listed below was delicious:

1/2 bunch cilantro
10 leaves mint
2 handfuls of spinach
1-inch fresh ginger peeled
Equal amounts of mango juice & water to "fill line" on my smoothie cup (approx 1 cup total)
1/4 avocado
3 ice cubes

I am not a nutritionist, or doctor, just a woman that wants to share her experience and hopefully help someone else that wants relief.


Posted by Corinna (Oakland, Ca) on 08/01/2018
5 out of 5 stars

After years of misdiagnosis, a doctor finally told me the itchy rash on my chest was Grover's. She prescribed yet another cream that did nothing. I decided to seek alternative treatments and thankfully came across this site and the recommendations of cilantro. After 2 days of consuming about a half bunch of cilantro each day in a smoothie, the rash stopped itching -- a miracle in itself! Now, after 7 days of consuming 1/2 bunch of cilantro each day, the rash and lesions are almost entirely gone!


Posted by Greg (Omaha, Ne) on 07/30/2018
4 out of 5 stars

I do feel that cilantro does help resolve many issues of Grover's. I have had Grover's for over 2 years and felt my best just a few weeks ago after taking Cilantro in my morning smoothie and Chlorella pills just previous to consumption. I did this for 2 weeks and felt great and spots/itching were almost non-existent. Then vacation happened!!! We went to South Carolina for two weeks and slowly, the "hot spots" and red bumps returned. I am now back home and trying to get back in the morning schedule of cilantro smoothies (with banana, blueberries, cup of milk, protein powder and honey). Will cross my fingers that the cilantro does the trick again!

Replied by Linda
St Petersburg, Florida
11/20/2018

How is your Grover's Disease doing now that you're home again?


Posted by Ben (Fl) on 05/31/2018
5 out of 5 stars

I have Grover's Disease for a year year. Three doctors (DERMATOLOGISTS) who prescribed multiple medicines, steroid creams and 30 light box treatments non of which worked. My basin in the bathroom looks like a pharmacy.

After rereading your blog on Cilantro I felt I had nothing to loose but to try it. I tried it in a salad but it was so bitter that I had to throw the whole salad out. I then took a BLENDER with a BUNCH of Cilantro along with ORANGE JUICE, TWO STRAWBERRY'S AND A half of A BANANA with 3 ICE CUBES it tasted like a smoothie.

It is DELICIOUS. ITCHING IS 80% GONE. THANK G-D. PLEASE TRY IT, IT WORKS.

Replied by James
Co
06/11/2018

I have been clear of Grovers since end of April 2018. I eat cilantro three times a week. After 40 years skin has never been this clear. Its gone. It works for me. Juicing and eating whole at the moment. I am trying to see which is most effective? I don't mind eating it but juicing is more convenient.

Sonja
New Zealand
06/13/2018

How much Cilantro do you have at a time and how long did it take before you felt it working, please.

Jim
Mission Viejo Ca.
06/26/2018

What quantity do you consume and for how long before seeing improvement?


Posted by James (Co) on 04/28/2018
5 out of 5 stars

40 years with severe Grovers. It never goes away. I have over 1,000 red dots on my trunk at all times. I do everything to keep cool and wear mostly cotton clothing at all times. I was prescribed time release Doxycycline and prescription strength cortisone cream. I went to war on this. It won. Note my skin has never been clear ...ever. If anyone sees my skin they immediately and ask if I have a rash? It pretty much stayed on high alert for 40 years. I can not wear fleece and forget wool. My dermatologist says its the worst case he has ever seen. Note it has never gone away. I live in a very dry cold climate. Cortisone creams started to fail this year.

After two months since the doctor prescribed failed treatment, I saw this post on cilantro. I love cilantro. I put an entire bunch into my eggs. I once had two brunches juiced with other vegetables at a juice bar. Been doing this for 14 days. I eat at least one bunch a day.

It has cleared up about 75%. I do not itch. The red spots are going away. It is working! My wife felt my skin and could not believe what cilantro is doing to this disease. She is an RN. My father a Pathologist MD and confirmed my biopsy as Grovers twice. Even if it stays at 75% cure I will be happy. I have never been able to calm it down like this before? I think the red dots are scaring at this point and will heal. If I see it go back to a full blown Grovers outbreak while eating cilantro I will post it. But for me this has been the best thing for treatment. It is not a gasp of hope...it is working.

If you have Grovers pay attention to this post. Cilantro costs $.79 cents. Try it... can't hurt and for sure no hidden snake oil cure being sold here.

Replied by Teena
Melbourne, Australia
05/01/2018
159 posts

Hello James, great news that you have discovered the healing power of cilantro. Thoughts, I know cilantro is relatively high in vitamin A, I wonder if this is a big factor in the healing, or is it helping because cilantro is a highly recommended (by Ted) for chelating heavy metals from the body (detoxer). Curious...

Replied by James
Co
05/03/2018

Hi Teena,

I am not sure what cilantro has in it but I can say I eat a bunch about every other day now. My bumps are gone I just have red spots from past out break but they are fading. What I notice most is I do not have any itching. I would get hot spots of itching. No more? It's been over 3 weeks. Weather is about the same and I wear same clothes. I am using Amlactin on my body with ingesting cilantro. Spread the word. Maybe heavy metals? But skin biopsy would show heavy metals. As per my dermatologist assistant? Can anyone confirm heavy metals show up in biopsies?

Replied by Kelli
Durand Wi
05/17/2018

I am definitely going to try this. I am female and 53 have had Grover's Disease for about 5 years. I had gone to my primary care doctor and was diagnosed and treated for mites. This was horrifying and embarrassing. This was recurring so I finally decided to see a dermatologist and a biopsy was done to confirm Grover's. Rare they say. I have used creams they have prescribed which have helped in the past. It started on my chest, back and arms and now my legs which seems harder to go away. After reading this article last night I went to the store purchased two bundles of cilantro and ate half a bundle on my salad. I also purchased a plant to plant my own for the summer. I am super excited to try this... thank you!!!!!!!!!

Replied by Sonja
New Zealand
06/13/2018

Hi James, this is probably a silly question but cilantro is the leaf of the coriander plant? I've just started and hopefully it will work for me as well. I've been using oats in stocking in the shower and to dab on to try to stop my itching and reduce the inflammation. It works for awhile but like everything it needs to be applied regularly. But it is natural and cheap and it works just as well as some of the chemicals solutions.

Replied by Jim
Mission Viejo, Ca.
07/08/2018

Consumed half a bunch of Cilantro every day for 13 days and no improvement. What am I doing wrong??? Need help please.

Replied by Mike
Md
07/13/2018

I have had grovers for 8 or so years I have tried everything. I'm headed to store to buy some cilantro. I will keep you posted as to what happens.

Replied by Chelc
Usa
09/17/2018

@Mike: What were your results??


Posted by Rich (Barrington, Il) on 03/14/2018
5 out of 5 stars

Hey Sarah and Robert (posts below):

You have found the cure for Grover's Disease. Your insight into using Cilantro is absolutely the cure for Grovers. I have suffered from Grovers for a number of years, especially when I have returned north from Florida to the cold country of Illinois. I took half a bunch of Cilantro and made an 4 egg omelette rather than eat rabbit food directly. In two days my Grovers has cleared up except for the scaring I have had over the years. I took a second bunch the second day and the third just for insurance.

We have to get this info out to the pubic and remove all the hacks with their BS products off the market that don't work. Maybe a website as a foundation for Grovers and charge a small fee to cover the cost of the site. I know I will tell my Dermatologist to spread the word. I can't thank you two enough for your posts.

Rich

Replied by Jim C
Santa Rosa, Ca
03/16/2018

Cilantro seems to reduce symptoms 95%. Anyone know how long to stick with this promising solution? A week, a month?

Replied by Sara
Lake Villa, Il
03/26/2018

Thank you so much for your post. I was finally diagnosed last year with Grover's after going crazy for 3 previous years with symptoms. I'm a 41yr old female and didn't really fit the profile I guess, but nonetheless, doctors and dermatologists were zero help. Third derm finally biopsied and diagnosed. I am in the middle of a terrible flair up and am stopping on my way home from work today to buy cilantro. Nothing seems to work for me. I did find Oregano oil (mixed with coconut oil) decreased symptoms a bit (and made me smell like a pizza), but like most other things, it only relieved and was temporary. I'll let you know how the cilantro works in a few days! Mine cleared up for the first time during the summer months, so I'm counting the days for summer. Thanks again.

Sarah
New England
04/19/2018

Hi Sarah from Lake Villa,

Would love to hear how you made out with the cilantro, please let me know! So hoping it helped you girl!! (Sarah from New England)

Replied by Josephine
Newburgh
04/10/2018

Going to try cilantro today. Deem only diagnosed but nothing helped! Thank you!

Replied by Okiedoak
Beechgrove , Tn.
04/12/2018

I have had grovers rash for about 3 years, only flares up in my hot tub, but love it so much got to get rid of this so I can enjoy my hot tub, gonna try Cilantro starting today, I can see most are saying eat about half a bundle, let's try and see, may God bless all who referred this to me, Accutane spray also works but way to expensive for me and only a quick fix it will return, need it gone, and no hot tub worry for wonderful relaxation, also found last few days vitamin A drys it up, Accutane contains vitamin A so put 2 and 2 togather and gave that a whirl also.

Replied by Nicky
Bournemouth
04/14/2018

hi Sara .I was diagnosed at 43 and nothing has helped me except throwing calamine lotion on to stop the itching when its bad! Have you had any relief from Cilantro? Desperate to find something!

Replied by Sarah
New England
04/19/2018

Hi Nicky, so sorry to hear about your itching. Yes, the cilantro works! At least for me....and I'm fortunate as I don't mind the taste. If its too strong just mix it up with a salad and dressing, just be sure to eat a half a bunch or so. Mine cleared up in a few days but I still eat cilantro quite regularly. Its been 4 months for me now and I'm still amazed its gone after sooo many years. All the best to you!! Sarah

Replied by Jessica
Mississippi
04/20/2018

I am a 46 year old female. Was diagnosed in 2010 and 1st flare up lasted 2 years. Nothing seemed to help. I have had a few annoying flare ups since then that only lasted a couple months. My new flare up is unbearable. Is on my neck back legs and arms. Went to a doctor who gave me RX for prednisone tetracycline some anti itch antihistamine and klonopin! I'm scared to take all these drugs at once but I'm desperate. Has anyone tried these drugs. The side effects look scary. Should I even try them if so many of you say they don't work? I like Cilantro but can't imagine eating it all the time. I'm going to buy some anyway but would love insight into whether these drugs are even worth a try. Help!

Replied by Lynn
Australia
04/21/2018

I have been taking prednisone (dose varies depending how severe the itch gets, I can get down to about 7.5mg a day, but that's the lowest) on and of for nearly a year, more on than off. Nothing else has worked for me, have just started eating coriander, hopefully this may help. Have also started taking more vit d and zinc and vitamin c for cell renewal.

Replied by Teena
Melbourne, Australia
04/22/2018
159 posts

Jessica, you will see people have been helped by vitamin D3 (natural) and vitamin A.

https://www.earthclinic.com/cures/grovers_disease3.html#vitd

Cilantro has a good amount of vitamin A, I wonder if that's why it works. Personally I'd treat the cause rather than the symptoms. You could add the cilantro to your salad, smoothie, or if you really dislike the taste, there are cilantro capsules or an extract you can chase with lots of water. Best.


Posted by Sarah (New Englnad) on 02/24/2018
5 out of 5 stars

Hey everyone, please please read this..... I suffered with Grovers for over 25 years and was diagnosed many years ago. I tried everything! At least I thought I did, including eliminating just about everything imaginable from my diet for long periods of time including gluten, all processed foods, and alcohol. I tried vitamin D, coconut oil, steroids, every lotion ever made...some helped a bit but nothing cured my Grovers. My Dermatologist who I see every 4 months was zero help all these years, simply prescribing a steroid that didn't work. The only silver lining was with the strict diet I became very lean. I had a horrible flair up this January (always worse in the winter, right) and when just about all hope was lost I found this thread on cilantro for grovers.

So off to the store I went and bought one bunch of fresh cilantro. I passed by it a thousand times at the grocery store and this magical leafy green never made it into my carriage. It comes tied and is about a quarter size round at the stems. I ate half a bunch a day and within 2 days I was 50% clear and in 4 days the Grovers was basically gone.

The only thing remaining were the scars from some of the real bad spots that I had for years that have now healed. I didn't dare post anything because I thought this was just to good to be true. So now its been 4 weeks and my skin feels amazing (and so do my nails which is another bonus! ) All this time I thought I had to eliminate something from my diet, but what I needed was to detox with the right food. From what I have read cilantro is a natural form of chelation, another word I learned from countless hours of searching for a cure. Maybe I had heavy metals that were at the root of this evil for years. So thanks for listening and mostly thank you to Robert from Phoenix who took the time to comment and write about cilantro.

One other note is the day I started on the cilantro I also bought a sheer Zinc (25%) sunscreen. I was amazed at how well it stopped the itch and this may have helped speed the cure as well, but no doubt the cilantro was the key! I wish all of you suffering the best of luck in finding something that cures you!

Replied by Dinah
Bribie Island, Qld
04/24/2018
1 posts

I'm a 68 year old female. Just been diagnosed with Grover's disease. Had the rash for 6 weeks...but very little itching luckily. Spent today reading all your individual experiences and remedies. My Dr did a punch biopsy to diagnose. He says he doesn't know anything about the disease other than it's normally older men who get it....:( and is contacting my dermatologist of 20 + years to try and shed some light on the issue. However from all your reports it seems natural remedies are the only way to go. I'm into the cilantro and will see if that helps. The cortisone ointment hasn't had any effect.

The only thing that has changed in my daily life is I have been on a course of strong antibiotics... so am now taking a probiotic. Like the idea of working on a 'cure' from the inside...thanks for all the suggestions. Fingers crossed it doesn't flare up.

Replied by Dan
Cheriton, Va
04/27/2018

Hi. I've had grovers for about a year, then I found this website. I started cilantro 1/2 bunches 2 days ago. Some relief I think on two half bunches. Can you eat more than 1/2 a bunch? If so, does it help?

Replied by Debi Brett
Los Angeles
05/09/2018

I am so happy I read this and going straight out to buy cilantro. I workout a lot so I sweat everyday, something I don't want to give up,

I also eat a lot of fish and was wondering if I have high mercury in my blood. Can anyone tell me if you have to keep eating the cilantro for the rest of your life or once the Grover's has gone it's gone for good. Either way I'm happy to try anything.


Posted by Robert (Phoenix, Arizona) on 11/27/2016
5 out of 5 stars

Eating about half a "bunch" of cilantro for three days straight cured my Grover's disease--completely.

Before I knew about cilantro, I controlled the itching by cloning a product from France (Aloplastine) by making a paste of Glycerol 20%; Talc Purified 25%; Zinc Oxide 25%.

Replied by Michael
Fort Worth, Tx
06/07/2017

Robert, how long had you been suffering with Grover's? Did you have a re-occurrence of Grover's after the "cilantro" treatment? Did you eat the cilantro half a bunch once daily for 3 days?

Replied by Laurie
Indiana
09/04/2017

Hi, I am a women age 51 recently diagnosed w/grover's. I was reading it may be due to high amounts of Mercury in the body. My Mercury levels are quite high. I had a test several years ago. Cilantro eliminates Mercury but how much? I am thinking about chelation to rid my body of Mercury. Has anyone had any luck?

Replied by Tammy
Valparaiso, In
02/05/2018

Michael, Did you try the cilantro? Was it successful?

Replied by Robyn
Australia
02/14/2018

I've had 'Grovers Disease' for almost 2 years now and coupled with 'Bad Burning Legs & Feet' it's so bad around 3am in the morning I resort to Cold Cloths from a little Esky Box containing 'Cold Bricks'. The two problems together are literally driving me crazy. I can get to sleep with one antihistamine tablet and one Lysalon Tablet, but they only last a few hours. I will now try a few of the suggestions on this ' Site '.

Replied by Lynn
Australia
03/01/2018

Hi Robyn, I have had Grovers for nearly 12 months, it has been unbearable for the last 2 months. I am on cortisone tablets at the moment, it's the only thing that has helped, plus a sleeping tablet at night. I was the same as you not sleeping and waking around 2 or 3 in the morning and applying freezer packs and cold face washers. I am going to try the cilantro as soon as I can find some. Have a review with dermatologist next week, plus I've been having the light therapy. Hopefully something will come out of all this.

Replied by Cindy L
Marietta, Ga
03/23/2018

I was diagnosed with Grover's disease a week ago. I have spots on my stomach and lower back. Today, I went in for follow up because I have a burning sensation going down my leg. There are no spots on my legs. Doc said it's unrelated to the Grover's or the steroid cream I'm using on my stomach. Said it could be the onset of shingles. Anyone have burning in an area where you don't have an outbreak? Thanks.

Replied by Ildiko
Sd
03/28/2018

Yes, I had that! On both of my thighs and using the steroid cream was helpful /or was it/ but after 2 weeks it cleared up and did not come back since.


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Posted by Jackson (Tennessee) on 01/07/2014
4 out of 5 stars

I have Grover Skin rash and just went to the doctor yesterday, she saw that I was really flared up on my chest and stomach area. I have really struggled with this disease. I have the prescription creams and they only seem to keep it at bay. However she recommended to me to try the Virgin Coconut oil, after every shower. I am on day three of this and I know its a little early but it seems to be really helping with the itching, Also the redness is starting to go away.

Replied by Dave
Fountain Inn, Sc
01/08/2014

Hello Jackson,

I've had success with rashes using enzymes and sometimes herbs such as marshmallow root and papaya leaf. The enzyme best suited for therapeutic use are ones such as amylase, protease, lipase, pectinase, cellulose.

That combination helps with pH levels for me. Often I have acidic body issues and if baking soda in water isn't enough I've found the pH balancing can be done with an enzyme/ herb combo. And it doesn't seem to take much of such a formula. You can find pH enzyme formulas at health food stores. I found supplementing with enzymes helps with my"dry eye" problem but seems to help rashes and itching which is the Grover's itching you are having.

My point is this: On itching issues, could there be a base deficiency of enzymes? Not that this would be the cause in all cases. I doubt if itching caused by "ringworm" could be helped by enzymes. But I've just seen the enzyme connect play out enough so that I'm becoming really intrigued at the interplay of enzyme activity overall to proper body functioning.

Another, for instance; when I take my enzyme pill I notice I have less sinus congestion. Could the chronic congestion be related to a metabolic / digestive problem that enzymes help overcome? I use a pH balance product from Enzymedica but am sure other companies make a "pH balance" formula also.

Replied by Lisa
Atlanta, Georgia
02/03/2014
4 out of 5 stars

I too have been diagnosed with Grover's Disease. The prescription medicines don't do a thing. I have been using Virgin Unrefined Coconut Oil as a moisturizer for about a week. I have also been ingesting about a teaspoon daily along with taking Borage Oil. Although the rash is still there and going strong, the itching is definitely better and my skin is getting softer and softer.

Eating it is not the most pleasant thing, but it does go own quickly. If you want you can freeze small pieces and just take like a pill.

I found another plus to the coconut oil...it increases my energy and somehow acts as a diet aid. I have lost 3 pounds in one week!

Good luck to all! Lisa

Replied by Key West Lu
Key West
04/17/2014

I have also been diagnosed with Grovers (over 15 years and counting). I am in the middle of a horrendous flare up and have been told to go on drugs that are really scary. This morning I was so inflamed that I got ice packs and put them on the worst areas. OMG! This was awesome. The blisters have almost disappeared and I am no longer itching uncontrollably. And the best part is that other parts of my body where I didn't put the ice packs have calmed down. I am not cured but I am not so out of control that I'm miserable. (I've had several emotional breakdowns this week due to the uncontrollable itching) I have been doing some crazy stuff to try to stay off the drugs. I have bathed using a solution of olive oil and sea salt (stings like crazy), then put on hydrogen peroxide (I was told today that this was bad b/c HP breaks down skin but it seems to be working for me), and then used triamcinolone cream and topped with coconut oil. But the life saving thing was the ice packs on the areas that were so out of control. I live in south Florida so I am also laying out in the sun for 15 minutes on each side every day.

Replied by Linda
Cocoa, Florida
11/14/2014

Hi I was diagnosed today and am overwhelmed! I had this since July and finally at Shands in Gainesville I got diagnosed I have used the coconut oil with no relief. I see you are laying in the sun a few minutes a day and it doesn't bother you.

Replied by Larry
Baton Rouge
01/10/2015

I have had the condition for 15 years. I use prescription steroid creams when flare ups get bad. Went to the BVI's last year and stayed on a catamaran for a week. Rash disappeared for a few weeks when I got back home. I asked the doctor if it was the salt water that made it better. He said it was the UV light from being in the sun so much. Does anyone know about UV light treatments? Tanning bed? Light I can buy and use at home?

Replied by Martha
Akron, Ohio
08/07/2015

I was diagnosed with Grover's Disease over three years ago. Flare ups have been decreasing. The interesting thing is, my doctor told me to avoid the sun and wear cotton clothing to avoid overheating and not letting my skin breathe. So....what made you decide that sun would be good? Just curious?

Replied by Stacey
Dallas
09/25/2015
4 out of 5 stars

Have had Grover's Disease off and on for close to 10 years. Steroid creams keep it at bay, but never cure. UVB light treatments at my doctor do the trick every time, usually takes abut 6 weeks, 2x per week. Laying out with exposed areas in the sun for 15-20 minutes a few times per week always helps too.

Replied by Zuzana
Cape Canaveral
10/07/2015

For those who wonder; some people may have good results with UV light treatments, but others may have breakouts because of it. Each individual reacts differently. I was diagnosed with GD in 2011 (six months after a surgery). The rash comes and goes away, but I believe that my worst outbreaks are caused by exposure to the sun (I have a terribly dry skin due to hypothyroidism so it doesn't help). My skin completely cleared while on vacation in Europe, but after coming back home and a few walks on the beach, I started to break out again.

Some people have had success with Terrasil.I tried it myself, but it didn't seem to do anything for me. Gluten free diet has not helped me either. Good luck!

Replied by Ron
California
12/25/2015

I have found many commonalities with others on this site. My first outbreak of Grover's was in the tropics. Very hot and humid. I have suffered on and off for twenty years but have had considerable success with several approaches.

First, I try to avoid wearing layers of clothing, such as sweaters and undershirts. This almost always causes an outbreak. Second, the triamcinolone cream works but I believe it also causes the skin to thin out with repeated use. This is similar to cortisone treatments. The most effective medication was tetracyline for two weeks to get the rash under control. After that, the cream, frequent cool showers and bathing soon after a workout are essential. Avoid hot showers and jacuzzis. Be careful of antibiotics. I rarely use it now, perhaps once a year for two days or so. Risk factors are always present for antibiotics.

Diet is likely a contributor as others have suggested. I will look into this more myself. My wife had a light case of psoriasis which has not returned since she switched to a largely vegetable-based diet and reduced her intake of foods that cause inflammation.

Replied by Buzz
Arlington Tx
04/16/2016

So far the best thing I have found to work with Grovers is to put terrasil on it, then rub in corn starch.

Replied by Margie
Frederick, Md.
10/19/2016

I have been battling Grover's disease for 16 years. At first the only help I got was from injections of kenelog and prednisone once a day for about 16 months. It settled down after that and I could control the flair-ups with a prescription cortizone cream. My husband passed away and my whole life has changed. Went from lovely country home in Tennessee to condo in Maryland to be near son whom I seldom see. Last week I had a flair up of Grover's like in the beginning and once the prednisone was finished it started all over again. I am desperately in need of help. The itch is like being in a red ant hill and it is even in my scalp. I am 67 and while my life is not at all like I would like it, the Grover's is about to drive me over the edge.

Replied by Magnolia16
Virginia
10/22/2016

Margie, I don't know what Grover's disease is, but it sounds most aggravating - nothing like an intense itch to drive you insane! It also sounds like you've been under a lot of stress and trying to cope in a new situation. I wish I could give some good advice, but all I have to offer is friendship and empathy!

Replied by Mmsg
Somewhere, Europe
10/22/2016

Margie, I find that Coconut Oil reduces itching of any cause.

Replied by Mt
Ottawa
10/24/2016

Read the Book, Your Own Perfect Medicine: The Incredible Proven Natural Miracle Cure that Medical Science Has Never Revealed by Martha Christy.

Replied by Gardeningjunkie
Mo
11/14/2016

Margie- Don't ever assume you only have one form of dermatitis. July 2015 at age 67 I was finally given a name for my eczema rashes and also a reason for my internal taser like stinging under my skin that was driving me out of my mind especially at night, it was Allergic Contact Dermatitis or ACD that was keeping me awake at night. I had to turn my world inside out so as not to be in contact with my Patch Test positives. I detoxed my world from my allergens and got a Kenalog shot and many painful sites cleared up and stopped itching, including my scalp. Yet my wrap around torso rash and itching did not improve. I saw a new dermatologist who took one look and told me I had Grover's. My point is this- perhaps your scalp is not related to the Grover's. Have you had allergic Patch Testing by an allergist? With the information from my testing I replaced my shampoo and conditioners with a product free of the perfumes and preservatives which I am allergic to (VMV Clark wash for hair and body which I order online from VMV). Medicare paid for the testing, it is uncomfortable, but winter is a good time to do it since you can't sweat or get the sites wet for 5 days. You must be off antihistamines. A series of panels is stuck on your upper back, I had 78 sites and reacted to only 5, but that has turned my world upside down, but it has also saved my life. I am sure you know more about Grover's then I do and have probably tried everything I have since you have had it for so long, so can't offer much helpful advice other then pointing out that you shouldn't assume your scalp itch is tied into the Grover's. Yet I had the Patch Testing 3 months before my Grover's rashes started appearing (I had been in the hospital for 5 days) so not sure how they handle a patch test if you have a rash on your back, maybe they could do the panels on your thigh?

Replied by Yvonne
Maryland
01/06/2017

Ice packs are great for itching. I started with Grover's last spring but wasn't diagnosed until September. Heat irriates it so I wouldn't dare lay in the sun. Sweating makes it worse as well. And scratching it makes it worse but sometimes I just have to do it. I really believe all my sunning at the beach years ago may have helped bring this on. I have tried lots of things and only go back to the steroid creams for about a week when it gets really bad. I've tried natural vinegar, honey, extra virgin olive oil.

Replied by Maggie
Plattsburgh, Ny
01/28/2017

My doctor recommended UVB lights as well. She said if I can't make it to her office (I have to take a ferry) I could go to a UVB tanning bed for no more than a minute or two once or twice a week and a regular tanning bed for no more than a minute. I haven't tried it yet.

Replied by Maggie
Plattsburgh, Ny
01/28/2017

My advice is do not use peroxide. I did and became inflamed with a different rash and another visit to the dermatologist. It is very harsh on the skin and I've read not even to put it on small wounds or cuts.

Replied by Charlotte
Texas
01/29/2017

I am so interested in this concept myself...I have had Grover's disease for 13 months and am always wanting to use natural products instead of all the medicines the doctors prescribe. Please let me hear from you so I can start on these as soon as possible.

Replied by Charlotte
Texas
02/04/2017

Please let me know if anything helps you...I feel the same way and would love to get this under control. Have just finished a round of steroid treatment which helped at the time but now the itching is back. Best of luck to you!

Replied by Lorraine
Star, Idaho
02/18/2017

Hi Margie,

Sorry to hear about your Grover flare ups. I too have had Grover's for several years, but evidently, it is far less invasive on my skin than what many others on EC are experiencing. I have done a lot of research into the medical journals and have been frustrated that there is so little research or interest in this disease. I would like to share with you the one thing that I have found helps the "itching" (in quotes, because mine is more like a "stabbing pain." I use Oregano oil on my flare ups. It is totally natural, of course, with no side effects, and it works wonders -- almost instantly. You can purchase a dropper bottle of this oil at Vitacost online. If you do try the oil, I would be appreciative if you would let me know whether it works for you.

Best of luck, Lorraine

Replied by Captain Ron
Calgary Alberta
02/20/2017

The idea is to not sweat.

In the sum the U/V will burn you but the IR will make you sweat. There are special effective parts of UV spectrum that need to be nurtured. Avoid factors that can cause and aggravate the condition, such as high environmental temperatures, significant sweating, and conversely dry skin.

Mayo Says: Phototherapy involves exposing the skin to controlled amounts of natural sunlight or can include the use of artificial ultraviolet A (UVA) or ultraviolet B (UVB) light. Because exposure to light can sometimes intensify Grover's disease, light therapy should be directed by a dermatologist who has experience treating patients with Grover's disease.

Replied by Jeanna
Ooltewah, Tn
03/11/2017

Do you use the oregano straight or do you dilute it with coconut oil. I bought some of the essential oil oregano and plan to start using it but I was told not to put it on without diluting it?????? My husband has just been diagnosed and he is miserable and broke out all over

Replied by Vonnie
Wyoming
04/02/2017

You are supposed to dilute Oregano Essential. It works wonders, but it is very harsh if used without dilution.

Replied by Leigh
Tucson, Az
06/23/2017

Hello, I use the Oregano straight, without diluting. You should find that just a drop massaged into the eruption will relieve the pain. It's also important to maintain very moist skin. Best to make your own moisturizer using ONLY oils such as avocado, coconut, black seed oil, lecithin, etc. One thing that is missing on the EC website is a differentiation of various types of acantholytic dermatosis (Grover's). Most people have the "transient" variety, which does tend to run it's course and eventually resolve. Mine is "focal" which is chronic. Also, most people are attempting to treat this as a "rash". In fact, it is a cellular defect or faulty programming of the skin cells. As my doc explained: "The cells forget how to bind together, creating a fissure in the skin." Sounds horrible, but you can see why this cannot be treated as a rash. The best we can do at this time is to try to soothe the skin and keep it supple. Hope the drops help! Lorraine

Replied by Kathy
London, Ky
09/13/2017

How was the outcome longterm?

Replied by Hawks
Tampa, Fl
01/25/2018

I was told that the sun and heat was a major cause of the flair up. Is the sun helping you?

Replied by Marie
Ny
04/30/2018

I am a female who suffered with this itchy rash for 2 years before being diagnosed with Grover's Disease (aka Dermatitis of Imminoseques) and in rare instances could lead to a bullous skin condition for which I was tested. The blood test to ruled out the gene (16034- Bullous Pemphigoid (BP 180) Antiobody, which brought tremendous relief.

This natural way that is being discussed on this site seems the better approach than all the drugs prescribed which haven't worked well at the risk of side effects and possible damage to the liver. Among them, as prescribed by Dermatologists, (which have failed) are: A script (nightly) called Hydroxyzine HCL 25 mg provides temporary relief, downside is some brief dizziness upon waking. In conjunction, taken several 10 day predinzone (10 mg at 40 mg per day sliding down to 10mg). I've used several steroid topical prescription creams and over the counter anti itch creams with aloe. I uses Cerave products and soaps. Use hypoallergenic detergents, wear natural cotton clothing, no metals on jeans, take vitamins to ensure basic health, etc. Recently, I've been offered a long course of powerful drugs called metrotrexate (weekly) or mycophenolate (daily) which are used in cancer patients and organ recipient patients which is beyond the pale had I had the gene and whihc I would have refused even if I had the gene.

Prefer taking the Natural Way:

To keep my skin in PH balance. I found a body wash sold in CVS which is 100% soap & alkali-free and PH - 5.5. I use coconut cream to moisturize, strong zinc skin cream and intend to detox with Cilantro (after reading the success) from other sufferers of Grover's Disease for which I am grateful. Thank you.


Diaper Rash Cream  

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Posted by John (Panama City, Fl) on 05/04/2017
5 out of 5 stars

I was just diagnosed with Grover's disease after a biopsy of some bumps, turns out I've had mild cases for over 10 years. The intense itching only appeared this year. Over the counter creams seamed to work before, this year they didn't work. I tried Witch Hazel, Epson salt in 'hot' baths, mixtures of natural oils and Melaleuca oils, and others. Years ago my brother had a massive case of jock itch (he's a painter, in the sun and sweats a lot), he works for a local Pharmacy owner. After discussing his issue with him, the Pharmacist suggested "Butt Paste" developed mainly for diaper rash. It gave me immediate relief, three days with a few applications each day. I also found Max Freeze at Walmart has an immediate cooling effect and seems to overpower the itching.

Replied by Anthony
Tulsa, Ok
06/03/2018
5 out of 5 stars

Thank you very much for the butt paste suggestion! I have had the red bumps of Grover's for at least a year. Told by dermatologist really nothing I could do about it, but it may go away on its own. Steroid cream, no effect. Just bought a $60 tube of Terrasil as I thought it was worth a shot. Pool season is here I did not want to show off this rash or always wear a shirt. Plus, just the exposure to chlorine and saltwater both seem to amplify the condition like sweating does. Was actually told by dermatologist just to avoid any activity that would cause sweating. I read this post, went to Walmart and bought the $8 tube of butt paste. I am so happy to report one application wiped it out by almost 90%! Two days later, two applications per day and it is almost completely gone! No redness, can feel a few spots that are raised, but no discoloration or itching! I would not believe it if it had not happened to me. Returning the Terrasil for a refund. Think I will also start taking some oregano oil as a precaution. I cannot thank you enough!


Posted by Donald (Springfield, Ill) on 09/10/2016
5 out of 5 stars

Grover's Disease. I had this for years and steroid creams prescribed by my Dr. did not work. I started coating my chest and back with diaper rash creme before any activity that would result in intense sweating and it has cured it. I still have scars from previous outbreaks but at least they no longer itch of bleed.

Replied by Alfred
New York
01/07/2017
5 out of 5 stars

I have had tremendous success with diaper rash cream and a juice cleanse.

Replied by Emma
Va
04/11/2017

Please let me know what specific diaper rash cream!!! Desperate here!

Replied by Natalie
South West Florida
05/15/2018
5 out of 5 stars

Try Triple Paste medicated ointment for diaper rash. It works great


Dietary Changes  

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Posted by Pekka L. (Helsinki, Finland) on 08/04/2018
5 out of 5 stars

I am a 70-year-old man.

I am interested in sport: tennis, golf, biking, alpine skiing, cross-country skiing.

Two years ago I got Grover's disease.

The whole body was a lot of itchy Grover's disease. I used a lot of hydrocortis and other oils. These were not helpful.

I stopped eating whole wheat. All the rash Grover's disease lost within two weeks. I tried twice to eat wheat, Grover's disease immediately came back. Now it's good to be, not Graves's disease.

I am happy when I found Grover's disease causes.

Now I live a happy athlete's life, not Grover's disease, not wheat.


Posted by Grain-free (Toronto, On) on 01/30/2018
5 out of 5 stars

I honestly didn't think it was possible, but Grover's, which I have had for years (especially on my abdomen), has completely cleared up over the past 10 days. NO MORE DEBILITATING ITCH, no more raided bumps, no more discomfort, no more embarrassment. I eliminated grains from my diet (began a Paleo way of eating, but still eating some dairy) and almost immediately my condition improved. I also began using a diaper rash cream for the itch and thought it may have contributed to my improved condition, but while it dealt with the itch the Grover's was still there. The last few days, I stopped using the cream and the Grover's hasn't reappeared. I highly recommend trying to give up grains. No grains = no Grover's (for me). Just had to share.


Posted by Karen D (Memphis, Tn) on 01/18/2018
5 out of 5 stars

Re a gluten-free diet for Grover's Disease--

As I have come to learn it isn't the wheat as much as it is the YEAST in the breads, cakes, pasta etc. to include alcoholic beverages and fermented foods such as pickles, sauerkraut, Kombucha, even vinegar-based salad dressings which I love.

I eliminated gluten from my diet 2 years ago which I thought was the answer. Yet I still had mild flare-ups especially in the winter and have now had to eliminate the fermented foods, vinegar, and red wine. This is working for me and the symptoms are reduced and I believe this will do it.

Coconut oil applied topically does remove the itching completely. I am hopeful that monitoring my diet will keep this under control. If it continues the next thing will be to have all of my mercury-laden amalgam fillings removed from my teeth.



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