Grover's Disease Remedies

| Modified: Aug 13, 2020
Add New Post Cilantro, Natural Remedies for Grover's Disease

Grover's disease, also known as transient acantholytic dermatosis or Grover's Rash, is a skin disease characterized by red, itchy spots appearing on the back and upper chest. They can last for months and never appear again, or go off and on for years. Natural remedies for Grover's Disease are very effective and include dietary changes like eliminating sulfides, wheat and gluten, and taking Vitamin B supplements. Our readers also report that perhaps the most effective remedy for Grover's Disease is cilantro, also known as Chinese Parsley.

Grover's Disease is more common in older men with a history of high sun exposure, but it is believed to be caused by blockages in the sweat glands in the upper layers of skin. The cause of Grover's disease is still clinically unclear, but having dry skin increases the risk, and is commonly seen in hospital patients who are lying on their backs for extended periods of time. Symptoms of Grover's disease include small, but very itchy, red bumps.

Natural Remedies for Grover's Disease

Below you will find a number of user-submitted interesting home remedies for Grover's disease. Know of a remedy not yet listed here? Please feel free to share your story with us.



Coconut Oil

Posted by Jackson (Tennessee) on 01/07/2014
4 out of 5 stars

I have Grover Skin rash and just went to the doctor yesterday, she saw that I was really flared up on my chest and stomach area. I have really struggled with this disease. I have the prescription creams and they only seem to keep it at bay. However she recommended to me to try the Virgin Coconut oil, after every shower. I am on day three of this and I know its a little early but it seems to be really helping with the itching, Also the redness is starting to go away.

Replied by Dave
Fountain Inn, Sc
01/08/2014

Hello Jackson,

I've had success with rashes using enzymes and sometimes herbs such as marshmallow root and papaya leaf. The enzyme best suited for therapeutic use are ones such as amylase, protease, lipase, pectinase, cellulose.

That combination helps with pH levels for me. Often I have acidic body issues and if baking soda in water isn't enough I've found the pH balancing can be done with an enzyme/ herb combo. And it doesn't seem to take much of such a formula. You can find pH enzyme formulas at health food stores. I found supplementing with enzymes helps with my"dry eye" problem but seems to help rashes and itching which is the Grover's itching you are having.

My point is this: On itching issues, could there be a base deficiency of enzymes? Not that this would be the cause in all cases. I doubt if itching caused by "ringworm" could be helped by enzymes. But I've just seen the enzyme connect play out enough so that I'm becoming really intrigued at the interplay of enzyme activity overall to proper body functioning.

Another, for instance; when I take my enzyme pill I notice I have less sinus congestion. Could the chronic congestion be related to a metabolic / digestive problem that enzymes help overcome? I use a pH balance product from Enzymedica but am sure other companies make a "pH balance" formula also.

Replied by Lisa
Atlanta, Georgia
02/03/2014
4 out of 5 stars

I too have been diagnosed with Grover's Disease. The prescription medicines don't do a thing. I have been using Virgin Unrefined Coconut Oil as a moisturizer for about a week. I have also been ingesting about a teaspoon daily along with taking Borage Oil. Although the rash is still there and going strong, the itching is definitely better and my skin is getting softer and softer.

Eating it is not the most pleasant thing, but it does go own quickly. If you want you can freeze small pieces and just take like a pill.

I found another plus to the coconut oil...it increases my energy and somehow acts as a diet aid. I have lost 3 pounds in one week!

Good luck to all! Lisa

Replied by Key West Lu
Key West
04/17/2014

I have also been diagnosed with Grovers (over 15 years and counting). I am in the middle of a horrendous flare up and have been told to go on drugs that are really scary. This morning I was so inflamed that I got ice packs and put them on the worst areas. OMG! This was awesome. The blisters have almost disappeared and I am no longer itching uncontrollably. And the best part is that other parts of my body where I didn't put the ice packs have calmed down. I am not cured but I am not so out of control that I'm miserable. (I've had several emotional breakdowns this week due to the uncontrollable itching) I have been doing some crazy stuff to try to stay off the drugs. I have bathed using a solution of olive oil and sea salt (stings like crazy), then put on hydrogen peroxide (I was told today that this was bad b/c HP breaks down skin but it seems to be working for me), and then used triamcinolone cream and topped with coconut oil. But the life saving thing was the ice packs on the areas that were so out of control. I live in south Florida so I am also laying out in the sun for 15 minutes on each side every day.

Replied by Linda
Cocoa, Florida
11/14/2014

Hi I was diagnosed today and am overwhelmed! I had this since July and finally at Shands in Gainesville I got diagnosed I have used the coconut oil with no relief. I see you are laying in the sun a few minutes a day and it doesn't bother you.

Replied by Larry
Baton Rouge
01/10/2015

I have had the condition for 15 years. I use prescription steroid creams when flare ups get bad. Went to the BVI's last year and stayed on a catamaran for a week. Rash disappeared for a few weeks when I got back home. I asked the doctor if it was the salt water that made it better. He said it was the UV light from being in the sun so much. Does anyone know about UV light treatments? Tanning bed? Light I can buy and use at home?

Replied by Martha
Akron, Ohio
08/07/2015

I was diagnosed with Grover's Disease over three years ago. Flare ups have been decreasing. The interesting thing is, my doctor told me to avoid the sun and wear cotton clothing to avoid overheating and not letting my skin breathe. So....what made you decide that sun would be good? Just curious?

Replied by Stacey
Dallas
09/25/2015
4 out of 5 stars

Have had Grover's Disease off and on for close to 10 years. Steroid creams keep it at bay, but never cure. UVB light treatments at my doctor do the trick every time, usually takes abut 6 weeks, 2x per week. Laying out with exposed areas in the sun for 15-20 minutes a few times per week always helps too.

Replied by Zuzana
Cape Canaveral
10/07/2015

For those who wonder; some people may have good results with UV light treatments, but others may have breakouts because of it. Each individual reacts differently. I was diagnosed with GD in 2011 (six months after a surgery). The rash comes and goes away, but I believe that my worst outbreaks are caused by exposure to the sun (I have a terribly dry skin due to hypothyroidism so it doesn't help). My skin completely cleared while on vacation in Europe, but after coming back home and a few walks on the beach, I started to break out again.

Some people have had success with Terrasil.I tried it myself, but it didn't seem to do anything for me. Gluten free diet has not helped me either. Good luck!

Replied by Ron
California
12/25/2015

I have found many commonalities with others on this site. My first outbreak of Grover's was in the tropics. Very hot and humid. I have suffered on and off for twenty years but have had considerable success with several approaches.

First, I try to avoid wearing layers of clothing, such as sweaters and undershirts. This almost always causes an outbreak. Second, the triamcinolone cream works but I believe it also causes the skin to thin out with repeated use. This is similar to cortisone treatments. The most effective medication was tetracyline for two weeks to get the rash under control. After that, the cream, frequent cool showers and bathing soon after a workout are essential. Avoid hot showers and jacuzzis. Be careful of antibiotics. I rarely use it now, perhaps once a year for two days or so. Risk factors are always present for antibiotics.

Diet is likely a contributor as others have suggested. I will look into this more myself. My wife had a light case of psoriasis which has not returned since she switched to a largely vegetable-based diet and reduced her intake of foods that cause inflammation.

Replied by Buzz
Arlington Tx
04/16/2016

So far the best thing I have found to work with Grovers is to put terrasil on it, then rub in corn starch.

Replied by Margie
Frederick, Md.
10/19/2016

I have been battling Grover's disease for 16 years. At first the only help I got was from injections of kenelog and prednisone once a day for about 16 months. It settled down after that and I could control the flair-ups with a prescription cortizone cream. My husband passed away and my whole life has changed. Went from lovely country home in Tennessee to condo in Maryland to be near son whom I seldom see. Last week I had a flair up of Grover's like in the beginning and once the prednisone was finished it started all over again. I am desperately in need of help. The itch is like being in a red ant hill and it is even in my scalp. I am 67 and while my life is not at all like I would like it, the Grover's is about to drive me over the edge.

Replied by Magnolia16
Virginia
10/22/2016

Margie, I don't know what Grover's disease is, but it sounds most aggravating - nothing like an intense itch to drive you insane! It also sounds like you've been under a lot of stress and trying to cope in a new situation. I wish I could give some good advice, but all I have to offer is friendship and empathy!

Replied by Mmsg
Somewhere, Europe
10/22/2016

Margie, I find that Coconut Oil reduces itching of any cause.

Replied by Mt
Ottawa
10/24/2016

Read the Book, Your Own Perfect Medicine: The Incredible Proven Natural Miracle Cure that Medical Science Has Never Revealed by Martha Christy.

Replied by Gardeningjunkie
Mo
11/14/2016

Margie- Don't ever assume you only have one form of dermatitis. July 2015 at age 67 I was finally given a name for my eczema rashes and also a reason for my internal taser like stinging under my skin that was driving me out of my mind especially at night, it was Allergic Contact Dermatitis or ACD that was keeping me awake at night. I had to turn my world inside out so as not to be in contact with my Patch Test positives. I detoxed my world from my allergens and got a Kenalog shot and many painful sites cleared up and stopped itching, including my scalp. Yet my wrap around torso rash and itching did not improve. I saw a new dermatologist who took one look and told me I had Grover's. My point is this- perhaps your scalp is not related to the Grover's. Have you had allergic Patch Testing by an allergist? With the information from my testing I replaced my shampoo and conditioners with a product free of the perfumes and preservatives which I am allergic to (VMV Clark wash for hair and body which I order online from VMV). Medicare paid for the testing, it is uncomfortable, but winter is a good time to do it since you can't sweat or get the sites wet for 5 days. You must be off antihistamines. A series of panels is stuck on your upper back, I had 78 sites and reacted to only 5, but that has turned my world upside down, but it has also saved my life. I am sure you know more about Grover's then I do and have probably tried everything I have since you have had it for so long, so can't offer much helpful advice other then pointing out that you shouldn't assume your scalp itch is tied into the Grover's. Yet I had the Patch Testing 3 months before my Grover's rashes started appearing (I had been in the hospital for 5 days) so not sure how they handle a patch test if you have a rash on your back, maybe they could do the panels on your thigh?

Replied by Yvonne
Maryland
01/06/2017

Ice packs are great for itching. I started with Grover's last spring but wasn't diagnosed until September. Heat irriates it so I wouldn't dare lay in the sun. Sweating makes it worse as well. And scratching it makes it worse but sometimes I just have to do it. I really believe all my sunning at the beach years ago may have helped bring this on. I have tried lots of things and only go back to the steroid creams for about a week when it gets really bad. I've tried natural vinegar, honey, extra virgin olive oil.

Replied by Maggie
Plattsburgh, Ny
01/28/2017

My doctor recommended UVB lights as well. She said if I can't make it to her office (I have to take a ferry) I could go to a UVB tanning bed for no more than a minute or two once or twice a week and a regular tanning bed for no more than a minute. I haven't tried it yet.

Replied by Maggie
Plattsburgh, Ny
01/28/2017

My advice is do not use peroxide. I did and became inflamed with a different rash and another visit to the dermatologist. It is very harsh on the skin and I've read not even to put it on small wounds or cuts.

Replied by Charlotte
Texas
01/29/2017

I am so interested in this concept myself...I have had Grover's disease for 13 months and am always wanting to use natural products instead of all the medicines the doctors prescribe. Please let me hear from you so I can start on these as soon as possible.

Replied by Charlotte
Texas
02/04/2017

Please let me know if anything helps you...I feel the same way and would love to get this under control. Have just finished a round of steroid treatment which helped at the time but now the itching is back. Best of luck to you!

Replied by Lorraine
Star, Idaho
02/18/2017

Hi Margie,

Sorry to hear about your Grover flare ups. I too have had Grover's for several years, but evidently, it is far less invasive on my skin than what many others on EC are experiencing. I have done a lot of research into the medical journals and have been frustrated that there is so little research or interest in this disease. I would like to share with you the one thing that I have found helps the "itching" (in quotes, because mine is more like a "stabbing pain." I use Oregano oil on my flare ups. It is totally natural, of course, with no side effects, and it works wonders -- almost instantly. You can purchase a dropper bottle of this oil at Vitacost online. If you do try the oil, I would be appreciative if you would let me know whether it works for you.

Best of luck, Lorraine

Replied by Captain Ron
Calgary Alberta
02/20/2017

The idea is to not sweat.

In the sum the U/V will burn you but the IR will make you sweat. There are special effective parts of UV spectrum that need to be nurtured. Avoid factors that can cause and aggravate the condition, such as high environmental temperatures, significant sweating, and conversely dry skin.

Mayo Says: Phototherapy involves exposing the skin to controlled amounts of natural sunlight or can include the use of artificial ultraviolet A (UVA) or ultraviolet B (UVB) light. Because exposure to light can sometimes intensify Grover's disease, light therapy should be directed by a dermatologist who has experience treating patients with Grover's disease.

Replied by Jeanna
Ooltewah, Tn
03/11/2017

Do you use the oregano straight or do you dilute it with coconut oil. I bought some of the essential oil oregano and plan to start using it but I was told not to put it on without diluting it?????? My husband has just been diagnosed and he is miserable and broke out all over

Replied by Vonnie
Wyoming
04/02/2017

You are supposed to dilute Oregano Essential. It works wonders, but it is very harsh if used without dilution.

Replied by Leigh
Tucson, Az
06/23/2017

Hello, I use the Oregano straight, without diluting. You should find that just a drop massaged into the eruption will relieve the pain. It's also important to maintain very moist skin. Best to make your own moisturizer using ONLY oils such as avocado, coconut, black seed oil, lecithin, etc. One thing that is missing on the EC website is a differentiation of various types of acantholytic dermatosis (Grover's). Most people have the "transient" variety, which does tend to run it's course and eventually resolve. Mine is "focal" which is chronic. Also, most people are attempting to treat this as a "rash". In fact, it is a cellular defect or faulty programming of the skin cells. As my doc explained: "The cells forget how to bind together, creating a fissure in the skin." Sounds horrible, but you can see why this cannot be treated as a rash. The best we can do at this time is to try to soothe the skin and keep it supple. Hope the drops help! Lorraine

Replied by Kathy
London, Ky
09/13/2017

How was the outcome longterm?

Replied by Hawks
Tampa, Fl
01/25/2018

I was told that the sun and heat was a major cause of the flair up. Is the sun helping you?

Replied by Marie
Ny
04/30/2018

I am a female who suffered with this itchy rash for 2 years before being diagnosed with Grover's Disease (aka Dermatitis of Imminoseques) and in rare instances could lead to a bullous skin condition for which I was tested. The blood test to ruled out the gene (16034- Bullous Pemphigoid (BP 180) Antiobody, which brought tremendous relief.

This natural way that is being discussed on this site seems the better approach than all the drugs prescribed which haven't worked well at the risk of side effects and possible damage to the liver. Among them, as prescribed by Dermatologists, (which have failed) are: A script (nightly) called Hydroxyzine HCL 25 mg provides temporary relief, downside is some brief dizziness upon waking. In conjunction, taken several 10 day predinzone (10 mg at 40 mg per day sliding down to 10mg). I've used several steroid topical prescription creams and over the counter anti itch creams with aloe. I uses Cerave products and soaps. Use hypoallergenic detergents, wear natural cotton clothing, no metals on jeans, take vitamins to ensure basic health, etc. Recently, I've been offered a long course of powerful drugs called metrotrexate (weekly) or mycophenolate (daily) which are used in cancer patients and organ recipient patients which is beyond the pale had I had the gene and whihc I would have refused even if I had the gene.

Prefer taking the Natural Way:

To keep my skin in PH balance. I found a body wash sold in CVS which is 100% soap & alkali-free and PH - 5.5. I use coconut cream to moisturize, strong zinc skin cream and intend to detox with Cilantro (after reading the success) from other sufferers of Grover's Disease for which I am grateful. Thank you.


Diaper Rash Cream

Posted by John (Panama City, Fl) on 05/04/2017
5 out of 5 stars

I was just diagnosed with Grover's disease after a biopsy of some bumps, turns out I've had mild cases for over 10 years. The intense itching only appeared this year. Over the counter creams seamed to work before, this year they didn't work. I tried Witch Hazel, Epson salt in 'hot' baths, mixtures of natural oils and Melaleuca oils, and others. Years ago my brother had a massive case of jock itch (he's a painter, in the sun and sweats a lot), he works for a local Pharmacy owner. After discussing his issue with him, the Pharmacist suggested "Butt Paste" developed mainly for diaper rash. It gave me immediate relief, three days with a few applications each day. I also found Max Freeze at Walmart has an immediate cooling effect and seems to overpower the itching.

Replied by Anthony
Tulsa, Ok
06/03/2018
5 out of 5 stars

Thank you very much for the butt paste suggestion! I have had the red bumps of Grover's for at least a year. Told by dermatologist really nothing I could do about it, but it may go away on its own. Steroid cream, no effect. Just bought a $60 tube of Terrasil as I thought it was worth a shot. Pool season is here I did not want to show off this rash or always wear a shirt. Plus, just the exposure to chlorine and saltwater both seem to amplify the condition like sweating does. Was actually told by dermatologist just to avoid any activity that would cause sweating. I read this post, went to Walmart and bought the $8 tube of butt paste. I am so happy to report one application wiped it out by almost 90%! Two days later, two applications per day and it is almost completely gone! No redness, can feel a few spots that are raised, but no discoloration or itching! I would not believe it if it had not happened to me. Returning the Terrasil for a refund. Think I will also start taking some oregano oil as a precaution. I cannot thank you enough!


Posted by Donald (Springfield, Ill) on 09/10/2016
5 out of 5 stars

Grover's Disease. I had this for years and steroid creams prescribed by my Dr. did not work. I started coating my chest and back with diaper rash creme before any activity that would result in intense sweating and it has cured it. I still have scars from previous outbreaks but at least they no longer itch of bleed.

Replied by Alfred
New York
01/07/2017
5 out of 5 stars

I have had tremendous success with diaper rash cream and a juice cleanse.

Replied by Emma
Va
04/11/2017

Please let me know what specific diaper rash cream!!! Desperate here!

Replied by Natalie
South West Florida
05/15/2018
5 out of 5 stars

Try Triple Paste medicated ointment for diaper rash. It works great


Dietary Changes

Posted by Pekka L. (Helsinki, Finland) on 08/04/2018
5 out of 5 stars

I am a 70-year-old man.

I am interested in sport: tennis, golf, biking, alpine skiing, cross-country skiing.

Two years ago I got Grover's disease.

The whole body was a lot of itchy Grover's disease. I used a lot of hydrocortis and other oils. These were not helpful.

I stopped eating whole wheat. All the rash Grover's disease lost within two weeks. I tried twice to eat wheat, Grover's disease immediately came back. Now it's good to be, not Graves's disease.

I am happy when I found Grover's disease causes.

Now I live a happy athlete's life, not Grover's disease, not wheat.


Posted by Grain-free (Toronto, On) on 01/30/2018
5 out of 5 stars

I honestly didn't think it was possible, but Grover's, which I have had for years (especially on my abdomen), has completely cleared up over the past 10 days. NO MORE DEBILITATING ITCH, no more raided bumps, no more discomfort, no more embarrassment. I eliminated grains from my diet (began a Paleo way of eating, but still eating some dairy) and almost immediately my condition improved. I also began using a diaper rash cream for the itch and thought it may have contributed to my improved condition, but while it dealt with the itch the Grover's was still there. The last few days, I stopped using the cream and the Grover's hasn't reappeared. I highly recommend trying to give up grains. No grains = no Grover's (for me). Just had to share.


Posted by Karen D (Memphis, Tn) on 01/18/2018
5 out of 5 stars

Re a gluten-free diet for Grover's Disease--

As I have come to learn it isn't the wheat as much as it is the YEAST in the breads, cakes, pasta etc. to include alcoholic beverages and fermented foods such as pickles, sauerkraut, Kombucha, even vinegar-based salad dressings which I love.

I eliminated gluten from my diet 2 years ago which I thought was the answer. Yet I still had mild flare-ups especially in the winter and have now had to eliminate the fermented foods, vinegar, and red wine. This is working for me and the symptoms are reduced and I believe this will do it.

Coconut oil applied topically does remove the itching completely. I am hopeful that monitoring my diet will keep this under control. If it continues the next thing will be to have all of my mercury-laden amalgam fillings removed from my teeth.


Posted by Gina (Brighton, England) on 04/29/2015
5 out of 5 stars

Hi, I've had grovers on and off for four years! Nothing from doc has worked for me. So decided to look at my diet and found out that wheat and glutton can cause skin problems.. I have not had wheat or glutton for 3 weeks and it has completely disappeared.. I also used Camoline lotion. Which is fab for the itching! I'm over the moon as I had it on my chest.. So I recommend to u all to just try a wheat and glutton free diet..i saw a difference in a week.There are so many alternative food to choose from now.. Good luck fellow grovers Gina

Replied by Debi
Ceres. California
01/07/2016

Hi Gina, I was diagnosed with Grovers Disease in December after a shave biopsy. I've been using a steroid cream which seems to work temporally. I never thought about changing my diet but after reading your comment I will definitely watch my wheat and gluten intake to see if it makes a difference. This condition is very annoying as I've had it since April of 2015.

Replied by Marsha
Muskegon
01/15/2016

Biopsies to definable Grover's but gluten free does not work for me if I get stressed really cold or hot it gets worse steroid cream no good, yeast rx no good cream no good what to do?

Donna C
Upstate Ny
03/01/2016

So I have been dx with Grovers since Nov 2015. Completely all over my body, scalp included. I have been to a Naturopathic doctor who has placed me on a strict anti-inflammatory diet (no gluten, dairy, soy, sugar, ....). Not working. Drugs from the doctor, not working. I called today because of a flare-up going on. Told me to use Coconut Oil, already doing it. Also trying pure oils, like lavender, sweet almond, to keep my skin moist. The pain of the itching ...I first put on Peppermint Oil, then medicated Gold Bond lotion with Menthol. It stops the itch for a bit. I am also tanning which was recommended by the doctor (do you believe it! ), it helped at first, but ...well you know. I wish there was more medical research being put into this rare skin disease.

Replied by Sysya
Highland, Ca
09/22/2017

The Only thing that worked for me has been accutane (you need a prescription)


Eliminating Sulfites

Posted by Bob (Chapel Hill, Nc) on 01/24/2013
5 out of 5 stars

You might add a category for Sulfites, which may be a cause. I have had Grovers for 20 years or more. And drank wine and scotch for longer. Two years ago, I stopped drinking all alcohol beverages. I have been free from the itching and pain ever since then.

Replied by Tom
Apex, Nc
03/18/2013

Hey man, still clear?? I have been suspecting bourbon and am eaten up with the rash now. Nothing has helped from the derm or the web. GO STATE!! Tom

Replied by Bob
Chapel Hill
08/16/2013

Just checked mayo clinic because they know... Duh, nothing. So it's up to us to educate them! Scotch and bourbon are the problem. Due to the damage they do to the liver. My experience is cirrhosis, fatty build up in the liver, degrading it's ability to remove sulfides. So they get passed to the intestines, which convert them to sulfuric acid. Which gets absorbed in the blood, and the body expels them in the sweat glands. So Bobs theory is Grover's is not a pathogen, no fungus, no virus. It's a chemical reaction. It's exactly like the eufedex I use on sun damaged skin. So get a blood test, check GGT level. You asked if I was clear, answer yes, and no. Spent several months with my father who passed, and I was careless and drank more. And Grover's returned. And GGT levels rose. I backed off the alcohol, Grover's is now under control. Damned, the things we do to ourselves!

Replied by Vezza Rose
Ohio
04/28/2015

This makes me think it's the herbicides and pesticides that have become so prevalent. Just like, it's not the glutton, it's the glyphosate, they do not make booze the traditional way any longer and grains are sprayed with glyphosate to kill it so they can harvest without waiting on Mother Nature. But good to know, I had recently started drinking a bit and had a flare. Thank you, I will keep this in mind.

Replied by Tim
Ellitcott City, Md
05/25/2015
5 out of 5 stars

Bob - thank you, thank you, thank you!!! After 20 years of Grover's every winter it's finally gone! As soon as I read you post about wine and scotch the light bulb went off - RED WINE! After years of trying colon cleanses, vitamins, probiotics and elimination diets I realized never cut out the wine - duh. I made the mistake of lumping all alcohol into one category - "I never had a problem with the tons of beer I drank in college". So for me, it is not the sulfites, I verified this by drinking white wine for weeks now. Lesson learned for the rest of you - WRITE DOWN EVERYTHING YOU EAT OR DRINK! I thought I could just muse it over in my head and get it all. I also wouldn't rule out locations you spend a lot of time in (maybe its mold in walls or something).

Thanks again Bob.

Don
West Hollywood, Ca
03/15/2016

I have had GD (apparently!) for many years and many misdiagnoses! I have always been in the sun and believed this was probably the cause. After trying several meds & lotions, nothing seems to help. The big difference I'm reading here is that mine doesn't really itch. Wine (especially red) is something I started drinking within the last 10 years & now I'm wondering if that could be the culprit! Thinking I might try the coconut oil as well...

Replied by Dean
Ohio
07/16/2015

I finally found out this week after itching for 2 years that I have Grover's disease...I like drinking beer so do you think that may cause this?

Replied by Ann D.
Delray Beach, Fl
12/02/2016

It's almost 6 yrs now...and counting! First attack occurred during visit to Key West. (but I live in FL, so that should not have been the factor) My dermo thought it was "shingles" (OMG!! ). I used that cream twice and the dermo realized he was on wrong track. New diagnosis was Grover's. He said nothing cures it. I tried going lactose-free, changed laundry detergent, went glucose-free for about 2 wks, but nothing changed. Only blessing is....the itch is not the big problem as initially. Since I drink red wine daily, I'm beginning to wonder if that is the culprit???

Replied by Carol
Canton, Connecticut
05/12/2017

Not sure the alcohol is completely the cause of Grover's disease. I have never had a drink, not even in college, and have suffered with the disease for the past fifteen years. I have spent way too much time in the sun, however. Oddly, sun exposure helps with outbreaks. This is a very frustrating disease and seems to react differently in every individual. I also tested negatively for any gluten intolerance.

Replied by Chante
South Afrika
03/30/2018

Hi guys, I was diagnosed with GH a month ago, sweating makes it worse, Dr says its in my blood from family, my uncles also have it, I saw eating less bread and focussing on water and fresh vegs actually helps me cope, but I'm a female in menopause, imagine heat with GH, it itches like crazy in my face, the ointment I have helps but very expensive, I was with 100 % glycerine soap only...it much better, u can try Preparation H, it does help a little bit, coconut oil makes me its more, make-up makes it worse for me...not an easy way of life, wanting to scratch your face off...

Replied by Chante
South Afrika
03/30/2018

I think it's the yeast in the beer...bread aggravates it also, no wheat or yeast, it makes it worse

Replied by Rsw
Oh
03/31/2018

Hi Chante,

Please look under the “Grover's Disease” section here on Earth Clinic (just click on the title of your message) and you will see people who say that eating cilantro cures Grover's Disease. If you can get some cilantro, try eating a handful for a week, and see if it doesn't help you. Best wishes!


Emu Oil

Posted by Charlotte (Texas) on 01/29/2017
4 out of 5 stars

I have Grover's and was diagnosed in June 2016 after many months of misery. Have been on and off steroid creams, kenalog injection, prednisone(which I just finished a month of yesterday) Am currently taking a small dose of Methotrexate once weekly which I have been on since Dec. 31. I ordered some Emu oil which has helped somewhat. Ice packs help alot when the itching becomes unbearable. My scalp, back and chest are the main problem areas for me. I also use coconut oil but the emu oil seems to help more. Spent LOTS of time in the sun growing up which I am sure is the problem.

Replied by Elizabeth
Kentucky
02/07/2017

I was diagnosed with Grover's last year and have a had a flare up since December that won't go away with the topical steroid that I've been using. I use emu oil for other skin issues so I've decided to give that a try. Will see if it works after a week. Wish I knew why I have this!


Food Allergy Elimination

Posted by Deborah (Hillsboro, Nh) on 11/18/2014
5 out of 5 stars

Hello,

I suffered with Grover's Disease for over 1 year. The itch was the worse I have ever experienced and the scratch scars stayed with me through 2 summers.

The lessons were biopsy by a well respected dermatologist and the diagnosis was made . The treatment went from expensive light treatments (did nothing except burn my skin) to every lotion and ointment I could try. Nothing worked. My son, every night would rather up my back with eucerin and zinc oxide, just to scratch all night anyways .

I finally went to a naturalopath that suggested I test for ALL foods. This is not a skin test. It is a test that I bought, did at home and sent out to be tested. After a few weeks the results were back and I met with Marty (naturalopath).

I had allergic responses (extreme) to eggs, yeast and cane sugar. He also had me stop gluten.

In less than 2 weeks there was no rash, no itch...nothing.

Two years later, there is still nothing. I am still careful of my diet but I can have this or that in small amounts now and am OK.

I went back to the dermatologist and told him what I had found that worked and he did not want to hear about it .

I truly think that in the medical profession is no acceptable to have any cure for any issue if it does not involve pharmaceuticals or expensive medical testing .

It makes sense to me as our bodies are made to work and work well unless something we are doing is messing it up. Things such as life style, diet, stress, physical labor, obesity. We need to believe there are answers to medical problems that would be many times best left to common sense. So much more to say but not enough room. Please seek this option out. The test cost $300 out of my pocket. (I had already invested close to $1500 on light therapy) It was well worth it and I feel healthy and my skin has healed.

My very best to you.

Deborah

PL write and will write back. I would like to help. deborahswasey(at)yahoo(dot)com

Replied by Marianne
Florida
12/11/2014

Hi, I was diagnosed with Grovers, (three positive biopsies), about 18 years ago. They did 3 tests because the Dermatologists couldnt believe I had it, it covered my entire body. I have had extended periods of remission, generally with annual flare ups in small patches (on my arms mostly). Recently my legs have started itching so bad at night, keeping me awake. There is very little bumps but the itching feels the same intensity as grovers. I do currently have a patch of Grovers bumps on my forearm. Ten years ago I was tested and diagnose with gluten allergy, and I strictly follow a gluten free diet. I have wondered if I have other food allergies. Could you tell me where you did the test? website?

Thanks

Replied by Patrick
Ny, Ny
04/26/2015

Hi...thank you for your input. I would like to inquire as to where you purchased the test kit. Thanks very much. Patrick

Replied by Heather
Ocean Shores, Nsw Australia
11/22/2015

What exactly is the test for all foods. My husband has grove's disease and the naturopath put him on the blood type geno diet.

Replied by Fred
In
12/03/2015

Looking for help & treatment for Grover's. Any one know where I could get this food allergy test? Ordered online?

Replied by Kristen
Massachusetts
12/04/2015

Hello and thank you for this post! I recently was diagnosed with Grovers Disease and am a 42 year old woman. Weird thing is I had used the steam room at my gym a few days prior--which is listed on some sites as a potential cause. Still , it seems diet may be a more likely culprit. Can you tell me the at home kit you used? The brand? Thank you for sharing your experience!

Replied by Becky
Michigan
02/13/2016

I've been diagnosed with this scratching disease and am going crazy scratching myself raw. What's this test you do at home?

Replied by Michele
Texas
07/09/2016

Debrah, Can you please give more info on the home allergy test you used? Where did you purchase it? Who was it made by? Thank you!

Replied by Amy
Mpls, Mn
04/17/2017

Please let me know where you obtained the allergy at-home testing kit. I would love to achieve the same results you are experiencing.

Replied by Shari
Ca
04/18/2017

Deborah - Please add my name to the growing list of Grovers Disease sufferers who would like to know more about this home food allergy test. I'm desperate!

EC: Do any of our EC frequent contributors know of a home food allergy test?

Replied by Marise M.
Sydney
12/11/2017

Thank you, thank you! I will try your suggestions.

Replied by Gia
Fairfield
01/15/2018

Hi Deborah,

I also have been diagnosed with Grover's (on sight, no biopsy, though). Dermatologist said there's no cure and no clear cause, and she gave me some steroid cream that doesn't work. I went to see a naturopath and she put me for now on an autoimmune protocol diet while she awaits the food allergy test results. Did you find it difficult to give up the foods you are allergic to? Any tips would be appreciated! I am hoping for a good result....

Thanks for your post! It gives me hope!

Best,
Gia

Replied by Brenda
Fayetteville, Ga
07/26/2020

How do I get one of these food allergy tests?


Garlic, Grape Seed Extract

Posted by Sabtram (Saratoga, Ca) on 01/05/2015
5 out of 5 stars

I suffered for 10+ years with Grover's disease and treated it (pretty well) with Kyolic Garlic pills (2 in the am, 2 in the pm - the Candida type). Finally my dermatologist mentioned she thought I might have a "yeast problem". I also had sebhorreic keratosis outbreaks and dandruff. I sent in a stool sample (you can get these kits from a Naturopathic Doctor or a Nutritional Therapy Practitioner) and indeed had a slight overgrowth (in my gut) of yeast. I took 2 weeks of grape seed extract pills (specific to the type of yeast I had) and haven't had an outbreak of Grover's or sebhorreic dermatitis since! And, I went off the Kyolic garlic pills. Seems hard to believe it's a coincidence, as I've been in saunas and have been sweaty many times since then. Highly recommend trying this! Good luck to you all!

Replied by Robert
Chicago, IL
04/06/2015

Sabtram, you said "Grape Seed Extract". Did you possibly mean Grapefruit Seed Extract by chance? I have had some success with the latter. Currently breaking out again on since I quit taking it because I thought it was gone. Then poof another flare up. Taking it again now for just maybe five (5) days. I take 3 pills a day (125mg) until it subsides..hopefully. If it does the Grapefruit Seed Extract will be my management method of choice. I say management method because it never goes away entirely but on somedays I can't seem to find it anywhere on me. But somehow at least 1 to 3 little tiny blisters show up. During a flare up I'm guessing there would be several hundred on my front and too hard to count the back side. So Grapefruit Seed Extract works for me. Just would love to double check if that is what you meant. Itching to know here in Chicago. Thanks!

Replied by Pam
Denver
08/28/2015

Did you mean grapefruit seed extract? I have heard of this for clearing yeast. Not grape seed extract. Thanks for clarifying.

Replied by Kathy
Ga
04/13/2016

I've had this over a year and I do believe it's grape seed oil extract. It's very good for skin. I'm at the point I believe red wine is my trigger. Will stop a while and see. Just had a bad flare.

Replied by Andi
Fl
05/13/2016

I have been diagnosed with GD from a biopsy. I have tried cortisone cream, coconut oil, baby powder, cetaphil lotion. Nothing works. I work out daily, so sweating is not going to stop. Interestingly enough, after reading all of your posts, I, too, drink red wine. Hmmmmmm. Going to try and stop for a week and see if anything gets better. I'm a healthy female in my 40's. Not itchy, just ugly and annoying! Help!

Replied by Gardeningjunkie
Ozark's In Mo
06/15/2016

Andi- The following px worked for me (note I am allergic to hydrocortisone among other allergies, I have allergic contact dermatitis, so unless you have been patch tested beware of what you put on your skin). I had 7 month rash that was on torso and abdomen biopsied for Grover's and came back negative, yet doctor told me I still had it because biopsy is only positive in the active stages and my pustules were scabbed over. She said I fit the classic profile and only sees 1 new case a year. Previously had been given topical steroids to put on it by other dermatologists which did nothing but make it worse. This doc prescribed a topical antibiotic- Clindamycin 1% clear lotion and in 3 days dramatic improvement in appearance and significant reduction in itching and pain (could not even lean back in a chair or while driving it hurt so much). In 2 weeks rash almost completely gone but told to use lotion 1 full month, then stopped treatment after the 1 month and rash started to reappear after 2 days (also worked in garden in heat). Now told I may need to stay on this antibiotic indefinitely, told it is ok because not much is absorbed internally.

I gave up all alcohol (2 vodka's and 2 red wine's daily) in February, desperate to try anything, but it made no difference in my rash; still will not drink again because at 66 need to give my body every chance I can to stay healthy.

Has anyone used antibiotic lotions for this rash?


Gluten Free Diet

Posted by Sue (St. Louis, Mo) on 12/16/2012
5 out of 5 stars

I have had Grover's since I was a teenager, but never knew what it was. I am 56 now. My Dermatologist confirmed it a couple of years ago. She suggested using the cream AmLactin which helped, but it was always there. I noticed when I started having fruit smoothies 5 days a week, my skin improved. A couple of months ago I decided to go on a no wheat diet in hopes of helping with inflammation problems. I have fibromyalgia and osteoarthritis and have a lot of pain and stiffness. Well, my pain and stiffness is 60 percent better and the grovers disease seems to be gone for the first time in my life! Oh, and I lost about 7 pounds and feel better than I have in a long time. If I cheat and eat wheat, I am in pain for a couple of days. It is definitely worth a try!

Replied by Ibhipru
St George, Utah
01/19/2013
4 out of 5 stars

This is in response to the post implicating wheat as the possible culprit to Grover's Disease. I had undiagnosed grover's sysmptoms for years when my wife and decided to go gluten free. The aggrivating itching and red bumps on my stomach, chest and back cleared up to a great degree. I was formally diagnosed with Grover's recently. I also recently fell off the wagon and consumed wheat at the direction of my Dr who was testing me for a skin problem related to Celiac Disease (Dermatitis Perfitaformis). Almost immediately my Grover's errupted. I have also recently veered from my diet and consumed wheat products with a corresponding flare in my Grovers. I really believe Grover's may be affected by wheat or even all gluten flours.


Grover's Disease Remedies

Posted by Vezza (Ohio) on 04/29/2015

Hi, Have posted a couple of things and thought I should introduce myself.

I received my diagnosis of Grovers from biopsy, on 4/28/15, yesterday.

What, rare skin disease! I still processing. But, it is my humble opinion that this can be cured and is only a symptom. The cause will show the cure.

I am already eating an amazingly clean diet and have elinimated food like products from my diet. I was doing this to just get healthy after a 10 year stint of first getting my disability and hip replacement then taking care of my Mom. If I only knew know what I knew then. But that is another story.

I started my quest because Mom wasn't getting better, and didn't the answers came to late for me to fix her mental collapse. But I have learned a ton and will be sharing.

Today I'm talking to a Chiroproator/Acupuncturists/Naturalpath and we are going to work out what's going on as soon as we fix the cervical spine. Not sure it isn't the problem completely. You clog of the flow of the bodily systems and stuff is going to go sideways. My neck has been bad for decades due to an injury and it's time to fix it and I believe my neck and this rare disease are connected along with my other issues. I had a cascade effect with my health lately all traced back to moving a piano a few feet. It's on rollers! Stupid, I know, but I learned from this idiocy, big time.

I'll keep you posted and let you know how my journey for a cure goes and where it takes me.

Replied by Rob
Virginia Beach, Va
01/23/2018
1 posts

Hi, I'm a 47 year old male who was recently diagnosed with Grover's disease. I have had flare ups off and on for over 3 years, but this latest one is by far the worst. Prior to being diagnosed with Grover's, I was prescribed prednisone by my GP. It seemed to help but did not completely disappear. My dermatologist diagnosed Grover's by biopsy, and prescribed hydrocortisone for the itch.

I recently stumbled across an article about an ingredient in Turmeric called Curcumin that seems to help in the treatment of Multiple Myeloma. While researching Curcumin I've found that it has powerful anti-inflammatory properties similar to prednisone, along with powerful antioxidants. I'm wondering if anyone has any experience with using Curcumin in the treatment Grover's disease.

Thanks!

Replied by Sherry
Scottsdale
01/26/2018

i was just prescribed clebatasol 30 mg for Grover's Disease. Has anyone had any success with this?

Replied by Deborah
Nsw
04/04/2018

As a qualified nutritionist, Yes I believe curcumin to be a very effective anti inflammatory and could help in Grovers disease. But there needs to be a 'multi pronged' approach to healing it, by both addressing one's inner health condition and in turn the skin's condition. Steroids are not the way to recover. A simple incredible possible remedy is eating fresh coriander leaves (and the roots). Half to One bunch a day for 3 days to see results. Eat it as a salad with olive oil and apple cider vinegar, pepper and a little sea salt. The folate acid and bioflavonoids plus many minerals in it help 'chelate' metals and toxins in one's system and aid the liver in excreting it. Also every day, 1-2 probiotic tablets and yogurt if possible, 1x D3,1000mg Vitamin C and zinc.1 Nettle tea very good for the blood PH & 1 Chamomile tea per day.Cooked Oats or soaked muesli with grated apple and cinnamon soothes and nourishes one's system (unless celiac) On the itch and lesions, gently apply coconut oil (with clean hands! ), or 1 drop oregano oil in a little coconut oil. Or put an oat based lotion or better still a pultase, on all of the affected area. - make by putting raw oats in a clean stocking or muslin and tying off. Dampen in warm water and apply the oat milk. Very soothing. Also many sufferers say they've had great relief from diaper cream if you're in a rush! . A Paleo diet is the most effective as it reduces acidity and blood sugar, otherwise avoid all processed carbs, fried and sweet food at least for a little while to help it clear up. Oh and yes 1st thing in the morning after cleaning teeth, have half a lemon in a mug or cup of hot water. Or instead 2 tsp apple cider vinegar in hot water. Rinse out mouth with water after ( for teeth) Ok.... in good faith and fingers crossed this will work!! Xxx

Replied by Sue
St Albans, Uk
06/04/2020

Deborah, this is the just about best remedy I have seen anywhere for Grover's Disease. I do hope other members try this; it certainly is the best, simplest, cure for most sufferers of this awful condition. My husband suffered with Grover's for several years and now, finally, his rash has gone (although he has other itchy rashes too). He used a very similar protocol, the key being Cilantro (or Coriander as we call it in UK). It's a miracle herb. When he was taking zinc, Lipo Vit C, D3, K2 (always add K2 if taking D3) and probiotics, they didn't help until he started Cilantro 23 days ago.

Replied by Sue
St Albans, Uk
06/09/2020

Hi Rob, my hubby has been suffering with Grover's for several years now. Last year his arms were so bad and inflamed (that could have been a different skin complaint) that we asked the GP if he could have full blood tests to determine the CAUSE. Following the blood tests, he was diagnosed with Multiple Myeloma!! Probably had it for years. Since March this year he has been taking Curcumin C3 with Bioperine 8g daily for the MM but sadly it has not helped his Grover's. I'm sorry to disappoint although it may help you, it's a great supplement.

We are now going to try Magnesium, (mentioned by Anna); Reishi + Shiitake mushroom extract (mentioned by Francesco); and Molybdenum (mentioned by Jerry). All worth a try IMHO.

Replied by Charity
Faithville, Us
06/09/2020

Under Myeloma and Ted Q&A in this site are some things you might try. I tried to cut it and paste it but my skill level is not too techy. He mentions selenium and lysine and many other pointers. Comfrey nickname is knit bone and does some amazing things.


Posted by Chris (Honolulu, US) on 09/27/2014
5 out of 5 stars

I have been a firefighter for 14 years and have had Grover's ever since. I have tried everything for Grover's Disease. To keep it at bay eat healthy natural foods, avoid excessive heat and stress, cut back on alcohol and caffeine. The underlying problem is within the skin, so foods and supplements good for your skin help fight Grover's. Consider a good hair, skin, and nail vitamin. If you have a flair up use a good mild cleansing soap. If the itch is really bad use ice packs, also rubbing alcohol kills the itch and cleans the area. Again, maintaining a healthy lifestyle works best. Sincerely, Chris

Replied by Barb
Maryland
10/07/2014

Your advice was helpful and made sense.

Replied by Gary
Kentucky
12/13/2017

Chris, so No Caffeine? first time I have heard that. I drink 2 to 3 cups a day.. add in cream and sugar... I had seen on TV reports where 3 cups a day was good for you.. Seems to be so many posts and so many things to try it's mind blowing.


Grover's Disease Triggers

Posted by Mmcmkj (Roseville, Ca) on 03/19/2018
5 out of 5 stars

I've had a Grover's Disease on and off for 3 years - it was always really mild and went away after a week or two. I've had a horrible outbreak since October 2017 - Its been 5+ months of the most horrible itching from my feet to my neck. I can't sleep and I have bruises all over my body from itching. My dermatologist put me on topical steroids combined with Sarna, both did very little to provide relief. I know from reading lots of posts that many of you have had to endure this disease for years and I am so sorry for you.

This weekend I noticed that I got worse after drinking red wine; I started searching to see if anyone else had the same problem and I found this site. I can't tell you how happy I am that it validated my findings! Wine and anything else with sulfites are now banished from my diet. I also love the advice on eating Cilantro to help/cure the symptoms. Luckily I LOVE Cilantro so I can't wait to go to the store tonight and buy bunches of Cilantro!

I'm very hopeful and I'll report back in a few day on if this remedy works for me or not ......fingers crossed!



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