I am a 36-year-old woman and was diagnosed with Grover's Disease after seeing 5 different doctors and having two biopsies. It began at the end of December and it's now the end of May and I'm just now healing completely.
When I saw the dermatologist who finally diagnosed me, I was at the end of my rope. The rash was all over my back, neck, and chest, and speckled on my hips, legs, arms--well, it was pretty much everywhere. It was burning and itching and I just wanted to peel my skin off. When the biopsy came back, I was so happy to have an answer but disheartened to know that there is no real cure. The doctor told me to take 10,000 iu of vitamin A and a vitamin E capsule every day, to keep the rash well hydrated with cetaphil cream, and to see him in 6 weeks.
Initially, this regimen did help a bit, as the itching went away almost instantaneously. However, after the bumps remained so I began to research other treatments and found the boards here at Earth Clinic to be the most helpful. I began taking many supplements in addition to the A and E, including garlic pills, copper, zinc, D, and a probiotic. I also began drinking bentonite clay and eating a lot of cilantro to do a heavy metal cleanse. During the time, I've been off of gluten and alcohol as well. At night, I would break open 3-4 vitamin A capsules and mix them with vitamin E oil I got at the pharmacy, and cover my rash in it. In areas that were prone to sweat, like my chest and neck, I would put a medicated powder that contained zinc.
The rash was improving, but very slowly. I had to stop taking the zinc tablets because I kept throwing them up when they interacted with the copper. My face began to break out terribly, and I realized that I was probably just putting too many supplements in my body, so I decided to strip it down to the bare minimum: A, E, and garlic, along with the clay and cilantro.
The rash was still there, but slowly improving. I discovered by accident that the zinc was the thing that was helping. On Mother's Day, I wanted to wear a dress but my back was covered in red spots, so I decided to try covering it up with a thick makeup I have: Dr. Jart Dis-A-Pore. It covered beautifully and I had the confidence to go out in public without worrying that people were staring at my back and shoulders, even though the texture was still very bumpy. I left it on for a couple of days and when I finally washed it off, I realized that many of the bumps had healed completely. I looked at the ingredients of the makeup, and Zinc Oxide was one them, which got me to thinking...
I went to Costco and bought two double packs of Honest Company's Mineral Sunscreen, which is 19% zinc oxide and have been covering my body in it since Saturday. Today is Tuesday, and I am happy to say that the bumps on my back are pretty much non-existent now and all the others are healing up very quickly. I also added the zinc supplements back into my diet, but am sure to take them on a full stomach with no copper. I have still been taking the clay and cilantro as well, but I really feel like the zinc was the thing that made the biggest difference. The results were dramatic, and practically came overnight.
Again, yes, I have tried many different supplements and therapies, but I honest to God feel zinc is the thing making the most difference. This whole experience has been such a nightmare, I wanted to share my findings here in case I could help one other person avoid the suffering I went through. I'm looking forward to seeing my dermatologist soon and reporting my findings and I can only hope that he takes me seriously enough to help his other patients.
I am a 46.5 year old female who lives in AZ. I have had Grover's since October 2016. Severe case, started on both arms, went to chest, back, thighs, legs.. I had it neck to ankle for 10 out of 12 months. For the 2 months I had it only on my chest and hips.
I cured myself, after a very long 14 months with a severe case. I started taking high quality Vit D for hair loss, 4500 IU per day, some days I take an extra 1500 IU just because. It was a tip I received from my cousin, her daughter has severe alopecia the doctor used it to get it under control. I don't have alopecia, but wanted to give it a try.
After 2 weeks almost half of my rash was gone, after 30 days the rash was gone. It has been 80ish days, no rash at all. First time in 16 months. No doctor, no article I have read said to try Vit D; they all said B6/B12. I never though I would be thankful for hair loss, but now I am!!
FYI My blood work in 2016 showed my Vit D was in the normal range, low end, but normal. If you are in the normal range, take it any way and get your Vit K checked to ensure that level is good bc if your Vit K is not working correctly your body will not absorb the Vit D.
Low Vit D drives auto immune issues. When I looked at the list of what Vit D deficiency can do to a woman's body, sure men too, I about fell over. I wondered WHY this is not a standard practice for someone who develops Grover's. I tried soo much crap, it really infuriates me that it was this simple. My rash was horrid.
I do not know how to get this information out there, I am going to post it where ever I can.
If it were me, I would stop all the meds that your husband's doc has advised. Both Fluocinonide and Triamcinolon contain fluorine which is a poison that can also cause severe skin problems and thyroid problems(low energy, heart problems, immune problems, digestion problems, intestinal problems etc). Both these drugs are corticosteroids that will also tend to excessively acidify the body. To normalize the bodily damage caused by these two meds, you should take Borax and lugol's iodine or potassium iodide (as SSKI drops) to help heal the thyroid quickly and you should also supplement Borax to help remove the fluorine from your husband's as well. See these EC links for how to use these two remedies:
Claritin is an anti-allergy medicine that contains chlorine(also a poison). So, little wonder to me that your husband's skin condition became worse when he took all those medicines -- since both chlorine and fluorine(and bromine) are well known poisons that can also cause different forms of dermatitis(because the liver has so much trouble getting rid of these halogens - so they are excreted through the skin, thus causing all the awful skin problems).
Cilantro should be able to remove heavy metals that are possibly used in the vaccine as adjuncts or additives but cilantro will not act to remove the chlorine or fluorine from the body.
Tumeric is also definitely worth using for many things such as improving/protecting the heart and arteries, as an anti-inflammatory, anti-aging, anti-viral, etc. But turmeric does not have the ability to remove chlorine or fluorine from the body.
The best remedy for removing chlorine from the body is Sodium Thiosulfate (https://www.earthclinic.com/remedies/sodium_thiosulfate.html). And the best remedy for removing fluorine from the body is to supplement Borax and lugol's iodine (or SSKI). See links above.
I would also advise your husband to regularly alkalize his blood using Ted's alkalizing remedies on a daily basis for at least a month or so to get the blood back to correct pH balance. Use the simple sodium bicarbonate + water remedy which helps to alkalize the blood. Shown here on EC
...And next time your doctor eagerly prescribes drug meds for you or your husband -- you should always do your own research and go to drugs.com and look up their side-effects. Then use Wikipedia to see if the drug contains any dangerous or poisonous atoms like bromine, chlorine or fluorine(or heavy metal) in its molecule. Then just type " warning" in Google search to get some honest opinions and feedback (not biased FDA opinions or research) from other users on whether that drug is both safe and useful or not.
I am a 70-year-old man.
I am interested in sport: tennis, golf, biking, alpine skiing, cross-country skiing.
Two years ago I got Grover's disease.
The whole body was a lot of itchy Grover's disease. I used a lot of hydrocortis and other oils. These were not helpful.
I stopped eating whole wheat. All the rash Grover's disease lost within two weeks. I tried twice to eat wheat, Grover's disease immediately came back. Now it's good to be, not Graves's disease.
I am happy when I found Grover's disease causes.
Now I live a happy athlete's life, not Grover's disease, not wheat.
Grover's Disease Triggered by Vaccine
Here is an update on my husband's health after receiving a misdiagnosis for Grovers Disease.
As it turns out, the diagnosis is Bullous Pemphigoid, which was triggered by the Pfizer Covid Vaccine, which put his immune system into an over reactive state. This has been 100% confirmed by a rare disease doctor at UCSF. I appreciate all the support from everyone who contributed help. We are now onto a new chapter. But in the meanwhile, antibiotics and the many supplements have been helping tremendously. My husband's reports are showing only 25% is left in his body, of this awful bacteria that got into his system per Pfizer vaccine. It has been a tough 9 months, getting NO help from CDC, and having to figure this out ourselves. Thankfully, we have come across some very well advised practitioners, and my husband is now on his way to healing. Thank you all SO much,
I have suffered from Grover's Disease on and off for years. I have recently found a remedy that stops it in it's tracks. ZINC OXIDE. I used the cream for diaper rash, and it immediately stopped the itch and was drastically improved by the next morning and gone within a couple of days. I cannot understand how the medical field does not know this. Please try it and I pray for you that it works as well!
I suffered for over a year with my first breakout of Grover's Disease, I had a biopsy in my home town at a well-respected clinic, and the verdict was...allergies to bug bites. Seriously, I live in Florida. It just seemed like a throw-away, catch-all diagnosis. Luckily, I am friends with a renowned dermatologist in Manhattan, and he did four biopsies (too much room for error on just the previous one) and diagnosed Grover's. The itching was truly maddening, and I was embarrassed by all of the red bumps on my chest. He told me to take 50,000 IU of vitamin A for one week, and then 100,000 IU for another week. That did it, it was gone! I got sunburned at the beach the other day and it came back. I started my vitamin A this morning. I couldn't believe how easy it was before, and I am sure that this will do the trick again!
Some exciting news for anyone unfortunate enough to be suffering from Grover's Disease.
I first noticed evidence of Grover's disease in 2011 with spreading lesions on my torso both back and front. Visits to dermatologists in London and New York including biopsies confirmed that the lesions were caused by Grover's Disease which I was told was incurable. However, I noticed that the symptoms were far less noticeable in the summer months and guessed that lack of Vitamin D may be part of the issue.
In 2012, I started to take 4 x Vitamin D3 (Potency 10ug = 10 micrograms equivalent to 400 IU = 400 International Units) per day. I immediately noticed an improvement to such an extent that after some months the symptoms and the scars had completely healed. I then experimented by coming off Vitamin D3 in the summer of 2012 but after some weeks the symptoms returned, so I took Vitamin D3 for six or seven months over the winter of 2012/2013 and once again the symptoms disappeared following which I stopped taking Vitamin D3 regularly.
As I write this in December 2014 the symptoms are completely under control and whenever the signs reoccur, a short spell on Vitamin D3 supresses them completely. So, my experience suggests that if not a cure, Vitamin D3 in the doses I use is a highly effective way of treating this unpleasant and irritating disease.
I hope it works for you.
I suffered with Grover's Disease for over 1 year. The itch was the worse I have ever experienced and the scratch scars stayed with me through 2 summers.
The lessons were biopsy by a well respected dermatologist and the diagnosis was made . The treatment went from expensive light treatments (did nothing except burn my skin) to every lotion and ointment I could try. Nothing worked. My son, every night would rather up my back with eucerin and zinc oxide, just to scratch all night anyways .
I finally went to a naturalopath that suggested I test for ALL foods. This is not a skin test. It is a test that I bought, did at home and sent out to be tested. After a few weeks the results were back and I met with Marty (naturalopath).
I had allergic responses (extreme) to eggs, yeast and cane sugar. He also had me stop gluten.
In less than 2 weeks there was no rash, no itch...nothing.
Two years later, there is still nothing. I am still careful of my diet but I can have this or that in small amounts now and am OK.
I went back to the dermatologist and told him what I had found that worked and he did not want to hear about it .
I truly think that in the medical profession is no acceptable to have any cure for any issue if it does not involve pharmaceuticals or expensive medical testing .
It makes sense to me as our bodies are made to work and work well unless something we are doing is messing it up. Things such as life style, diet, stress, physical labor, obesity. We need to believe there are answers to medical problems that would be many times best left to common sense. So much more to say but not enough room. Please seek this option out. The test cost $300 out of my pocket. (I had already invested close to $1500 on light therapy) It was well worth it and I feel healthy and my skin has healed.
My very best to you.
PL write and will write back. I would like to help. deborahswasey(at)yahoo(dot)com
Hi I'm a 55 year old female, diagnosed with Grover's rash 10 years ago. I have times when it flares up very badly but mostly it's just lurking around mainly on my chest and stomach. I juice every day and recently added large amounts of coriander to my green juices. The rash has just about disappeared. If anyone else would like to try it, it's worth a shot.
I had suffered from Grover's disease for about a year. My doctor couldn't tell me what it was but a specialist diagnosed it. Somewhere I read that Oregano oil relieved a sufferer, I bought some and found it too strong. However I went out to my herb garden and ate 3 leaves off my Oregano herb. It is very pungent. 3 leaves (and they are very small) twice a day after meals. And now after about 4 weeks I am almost clear from this constant itch which was driving me mad. I want to tell the whole world. For me I have gone 95% totally clear.
High dosages of Vitamin A is what cured my Grover's Disease. I tried everything and my Grover's Disease only got worse...steroid creams, Tetracycline, diaper rash creams, tanning salons, etc. Nothing worked my condition only got worse. My chest and back was covered with the small red bumps and the itching was driving me crazy! Reading everything I could find on the internet on Grover's I decided to stop everything and try a routine of Vitamin A.
About 1 1/2 weeks ago I began taking 48,000 IU of Vitamin A each day. This consisted on two capsules 3 X daily, 8,000 IU each capsule for a total of 48,000 each day. It could be just coincidence, but 10 days later my Grover's Disease is almost 100% gone. I plan on continuing this dosage until I have no signs of the disease then gradually reduce the dosage to a maintenance dosage of 1 Vitamin capsule each day, or 8,000 IU.
I hope this helps as much as I believe it helped me.
Hi, I've had grovers on and off for four years! Nothing from doc has worked for me. So decided to look at my diet and found out that wheat and glutton can cause skin problems.. I have not had wheat or glutton for 3 weeks and it has completely disappeared.. I also used Camoline lotion. Which is fab for the itching! I'm over the moon as I had it on my chest.. So I recommend to u all to just try a wheat and glutton free diet..i saw a difference in a week.There are so many alternative food to choose from now.. Good luck fellow grovers Gina
I am 60 year old woman who developed Grovers in March 2022. It started small, but it spread pretty fast and itched like mad. It was eventually all over my back, chest and belly. Went to walk in clinic twice, once with a fever. They didn't know what it was but prescribed prednisone, antibiotic, and antifungal the first time. It cleared up but came back 2 weeks later.
The second time they prescribed prednisone and corticosteroid creme and said go to a dermatologist. I did. He said it was Grovers. Did biopsy to confirm. While I waited on the biopsy result I used the corticosteroid creme on my back only for 5 days, once per day. It cleared it right up. I also found this site while I waited. I used cilantro smoothie daily for a couple of weeks which really helped with the itch.
But it is Vitamin A, 48000 IU per day that the dermatologist told me to take that is really clearing it up for good. The dose has to be taken down gradually to about 5000 IU per day after 3 months since Vitamin A is a fat soluble vitamin that the body stores. It is toxic if the mega doses were to be continued.
The dermatologist gave me a refill on the corticosteroid creme, but said not to use it on the breasts and belly because it thins the skin and can create problems because of it. This skin is already thin. Like others who have shared their despair about Grovers, I wonder if my Pfizer vaccinations and 2 boosters may have contributed to this problem showing up. Who knows.
I also was a rabid sunbather for several decades. It could just be my time given the damage I did. I hope this helps someone.
Oh, I am also taking 12 organic chlorella tablets and 2 activated charcoal tablets per day for detoxification. I'm keeping up with the cilantro smoothies a few times a week (1/2 bunch cilantro, 1/2 inch peeled ginger root, handful of spinach, frozen mango chunks, 1/4 avocado, 1 cup water).
God Bless You all.
Zinc Oxide 1000% definitely works. I am a 50 year old female and had Grovers rash on chest and stomach for about 6 months. I tried so many things (tea tree, antispectic cream, prescription cream) and nothing made any difference. After reading this page I tried zinc oxide and within 24 hours it is 90% better. Thanks to all who shared this info.
I was diagnosed with Grover's after a 3 month on and off rash all over my body would never go away and I finally got a biopsy. It was insane, water only made it worse, every article of clothing exacerbated it, I had very little itching just burning. Diaper rash cream and zinc powder kept it dry but didn't stop new outbreaks. I tried vitamin d, steroid creams eating clean, nothing worked. I felt depressed and hopeless. Well after researching the very few Grover's sites, I saw that vitamin A helped a lot of folks, so I tried high doses. I'm in it a week and I'm amazed at how all my body is practically clear except my back. My last resort was accutane but I'm going to try sticking with the a before I start the script which is just a much stronger version of A. I hope this helps someone suffering from this awful condition.
I've had a Grover's Disease on and off for 3 years - it was always really mild and went away after a week or two. I've had a horrible outbreak since October 2017 - Its been 5+ months of the most horrible itching from my feet to my neck. I can't sleep and I have bruises all over my body from itching. My dermatologist put me on topical steroids combined with Sarna, both did very little to provide relief. I know from reading lots of posts that many of you have had to endure this disease for years and I am so sorry for you.
This weekend I noticed that I got worse after drinking red wine; I started searching to see if anyone else had the same problem and I found this site. I can't tell you how happy I am that it validated my findings! Wine and anything else with sulfites are now banished from my diet. I also love the advice on eating Cilantro to help/cure the symptoms. Luckily I LOVE Cilantro so I can't wait to go to the store tonight and buy bunches of Cilantro!
I'm very hopeful and I'll report back in a few day on if this remedy works for me or not ......fingers crossed!