I too got Grovers disease after Pfizer Vaccine. 3-4weeks after 2nd shot. About 4months now I have endured this debilitating disease. I had a biopsy from my dermatologist which of course confirmed Grovers. Will not have the booster they want me to have. Had 19 treatments of light therapy with no improvement. Lack of sleep is a big thing for me and life has taken a big dip in the quality that I was used to. Taking Zinc Oxide, Tea Tree oil, many creams and Blexten Antihistamine. Slight improvement but still covered in rashes. Don't know where to go from here, but I was inspired to be able to share with others.
Cilantro removes the heavy metals in the body/va$$ines. Know this truth and get back to health. Add vitamin C, D3 and milk thistle to support your liver and immune system
Grover's Disease Triggered by Vaccine
This is going to be a long posting, but I want you to know my story too as it might help someone. What happened to Rita below also has happened to me. I am only 39 years old and a female (not the typical lucky person to get GD). I have been a vegetarian most of my life mostly plantbased. I watch what I eat, take great care of my skin. The only link has really been getting the Pfizer vaccine. This has been devastating to me and my family as it has affected what I can do. I can't get hot as this seems to cause it to flare. So no exercising, gardening, etc. And I live on 18 acres.
My story is very similar to yours and I am shocked to see that someone else also believes it was the Pfizer covid vaccine. I got the first dose of Pfizer in January, my 2nd dose on February 2 ( right after I only experienced tiredness, muscle aches, and a slight temperature, but not like some people got after) not until February 7th after using a heating pad on my back. I noticed a rash just below my bra line. Then a few days later it developed on my low back. I wasn't able to get into my dermatologist until March and since I was so young and not a typical patient of Grovers dieases and my GD didn't itch she never even mentioned GD. She diagnosed me with folliculitis right off just by looking at it.
She prescribed doxycycline. And also bleach baths. I hate taking antibiotics. I like to do things naturally. So I tried everything I could natural ( but nothing from this sight since at the time I didn't know I had Grovers) nothing seemed to work. Somedays it would seem it was getting better other days it was worse it was such a frustrating and depressing time. I end up taking an antifungal for 3 days after I was at my wits end to see if it would work before I took an antibiotic. My dermatologist still thinking my Grovers was folliculitis.
In short, the the antifungal only made it somewhat better, but not gone. I ended up taking the antibiotics, but that still wasn't helpful even though my dermatologist said it would clear it right up. It didn't. After being on the antibiotics for a while consulting with my gastro specialist ( to see if there was a link to my rash because of a gut problem which turned out it wasn't) but she suggested I stay on the antibiotics for a while longer to clear up any infection and to take a good probiotic supplement to keep my gut bacteria somewhat healthy while on the probiotic. I ended up going back to the dermatologist and she did a biopsy of my skin condition and it came back Grovers dieases. I was devastated. I thought How in the world did this happen to me especially knowing that there is no cure! And after all this time of trying to treat something else. My dermatologist prescribed a steroid cream which I didn't want to use as long term use on the skin can cause thinning. I continued my research. And found this sight. I have tried a number of things on this sight butt past ( didn't work), still trying supplements suggested here. I have had Grovers for a little over 6 months now. And it does seem to be getting better, but not completely gone. I do occasionally get a red dots here and there with no reason why. I have been using homemade aloe vera (which has seemed to be helping the most) on my skin several times a day and taking supplements because my vitamin D3, zinc, and vitamin A where on the low side as well as my WBC was also low ( probably because of my 27 days on an antibiotic). So I have been adding immune supporting herbals like garlic, probiotics, fermented foods, and oregano on a daily basis. I also started green smoothies again. And on I'm on a strict whole food plantbased diet. I don't eat anything that's not natural. I also purchased some moisture wicking clothes ( not that I sweat, but this has been advised to help). I can't say my Grovers is gone again, but it is better. I feel trapped by the fear it is going to come back even worse though. I check my skin every morning hoping its disappeared completely. I hate that it has held me back from life and I have done so much research and this is the first time anyone else has thought like myself it was due to the Pfizer vaccine!
I have told my dermatologist who waved that idea off real quick as well as the idea that the heating pad I used helped spring on my Grovers even though there is a heat connection. I have since seen another dermatologist who was a little better at hearing me about wanting to be more natural at helping my Grovers and suggested Calendula oil. Its acts as a antinflamatory and has been known to heal and prevent radiation burns for those going thru cancer treatments. I have just started using it and will tell you all if it helps.
But for now I am still testing it. My doctor does believe me that it was the Pfizer vaccine. She is on a nationwide board that hears about reactions to covid vaccine, but hasn't heard of anyone reporting Pfizer as a cause of Grovers. I have tried to report my symptoms to CDC with no luck! I am so frustrated. And there is nothing on the internet about the link. Like I said this is the first post I happened to find someone else that has experienced the same thing.
I feel so helpless at times but have felt better knowing I am not alone in this, with this sight and hearing people's stories has help along with prayer. I hope for our sake with the link of Pfizer vaccine that we have this one occurrence of Grovers disease outbreak and our body will somehow heal/recover and we wont have any reoccurring episodes. I can only hope! I hate that we are the unlucky ones to get Grovers from Pfizer. I wish somehow we could ban together to tell more people about this because I am sure there are more people like us out there, but just don't know what ot is dont have the means to go to a dermatologist, be diagnosed correctly and have someone take them seriously that their Grovers was sparked by the Pfizer vaccine. Please anyone that has received the Pfizer vaccine for covid and has experienced what we have posted your story here for others and hat has helped for you. I know everyone's journey with GD is different and what helps but sometimes what helps one person could help another. And with not much help in the medical world, we have to help out each other.
Thanks for hearing my story. Please post here if you find out any new information as I will too.
I came down with Grover's disease years ago and was told there is no cure. I tried cortisone creams which did not work. It was unbearable. I was reading a forum about it one day & found that 2 women went on a gluten free diet and it went away for them so I went gluten free and it went away. I have had 2 flare ups over the years & both were after eating licorice which often has gluten in it. The Grovers began to fade as soon as I stopped eating the licorice. So it may be gluten for some people and it's worth a try.
I have also just gotten a new flare up of "Grovers" and is getting worse with my workouts. The doctor prescribed a steroid cream to be used for 2 weeks. Was not seeing much difference. Did some investigating on this website and others and decided to try a different approach. Applied Triple Antibiotic on the spots and covered with Zinc Oxide..in 24 hours already see an improvement. Itching has decreased, spots not red and not as raised. Will also supplement with Vitamin A as I have read this is critical as well.
Will keep all posted over the next week or so of this :).
I was diagnosed with Grover's after a 3 month on and off rash all over my body would never go away and I finally got a biopsy. It was insane, water only made it worse, every article of clothing exacerbated it, I had very little itching just burning. Diaper rash cream and zinc powder kept it dry but didn't stop new outbreaks. I tried vitamin d, steroid creams eating clean, nothing worked. I felt depressed and hopeless. Well after researching the very few Grover's sites, I saw that vitamin A helped a lot of folks, so I tried high doses. I'm in it a week and I'm amazed at how all my body is practically clear except my back. My last resort was accutane but I'm going to try sticking with the a before I start the script which is just a much stronger version of A. I hope this helps someone suffering from this awful condition.
Hi, Lynn from new Zealand here. Diagnosed with Grovers disease 20 months ago. Have had every steroid cream, OTC creams, lotions and potions, Acetretin and Tetracycline drugs that exist! Or so it seems. Nothing really ever "fixed" the problem. Intense itching and spots, sleepless nights and miserable.
HOWEVER, I recently went on an extended holiday in Bali and swam 2-3 times a day in seawater. Over a short period the rash and itch improved and almost disappeared. Then I went on to Malysia where the seawater was too polluted for swimming. Swam in hotel pools, rash returned . It got me thinking about seawater so I researched this well. Found a site and read the story of Richard L who has cured his Grovers with seaweed powder. I made a paste and applied it afer showering, leave on for 15 minutes and then shower off. Do this for quite some time and he claims his grovers is gone. I'm trying this now.
Also am going to hot pools nearby that are seawater heated by heat exchange, so natural. Skin feels much better afetr each swim and rash and itch DEFINITELY improving. I'll do this for the rest of my life if it gets rid of the Grovers and makes life bearable. Any others found seawater can help?
I was diagnosed with Grover's Disease 2 years ago and have tried practically everything to get rid of the itching chest rash. Recently I started using sea buckthorn berry oil rubbed twice per day directly on the rash and it seems to be clearing up and reducing the itchiness (it's been 4 days) I will update if it clears it up totally.
Hi, I was diagnosed with Grovers Disease by a dermalogogist in Vienam (USA doctor) he did not explain the implications of the anti-biotics he subscribed to me, the RARE side effects being light sensitivity. This being me I did exhibit! He sunscribed several differant tablets & creams. None of them worked, I bought babies nappy rash talcum powder (Contains ZnO-Zinc Oxide) also read about GARLIC tablets, so bought them.
Within several weeks applying baby nappy rash powder and taking a 1000mg tablet of odourless garlic the rash had gone. I thought this strange so stopped taking tabs and using powder for a few days. GROVERS reappeared! Restarted using the powder and taking the tabs and GROVERS went away again!
I do not know if this will work for all suffers but it did work for me, don't know why it works, Zinc Oxide is good for all basic skin problems but how it works on GROVERS I have no idea!
Both treatments do not cause any harmful effects, the woese that cam happen is you develope an allergy to GARLIC!
It has been 4 months sonce the last signs of this terrible disease and I am glad this treatment worked for me!
I was stunned when I read about your Grovers, I too have been diagnosed and had it about 12 months ago, it went away and has now come back after seeing a dermatologist I am on prednisolone and doxycycline ect alone with mometasone cream, using cetaphil bacterial soap, and nothing is working really I am still spotted up, but I found putting the daktozin fungal cream for nappy rash, was better than the mometasone cream, now having said that I have been researching and it seems that zinc which is in the daktozin seems to be the way to go someone said on this site they put zinc oxide on and the spots went right down so I am going to try that, and I am also going to take some zinc supplement. I was stunned when I read about the vaccinations because that's when I got them after having my vaccs, well good luck let's hope we can beat it
Grover's Disease Triggered by Vaccine
Eat some cilantro everyday. Many reports of this helping Grovers. Some people do not like it or for some reason cannot eat it, but if possible, try it - look for cases on this site for positive reports of it. Good luck!
Grover's Disease Triggered by Vaccine
I have been dx with Grover's. I was told it is a rare genetic disease. Dermatologist has try multi treatments, antibiotics, vistaril, anti - histamines, triamcinolone, and Saran lotions. All these have worked for while, then stops working. We are picking up a Rx from our compound Pharmacy tomorrow for Naltrexone 3mg. Hopefully it will help. God bless you in this journey. Did not receive the vaccine. Did have covid.
Grover's Disease Triggered by Vaccine
My Husband was given a "Pfizer Vaccine" on Feb. 20,2021. Fourteen days later, he went into a spa, and pool, at a Country Club, and shortly after, begin itching like crazy. His Dermatologist diagnosed him w/Grover's disease. He checked with his Dermatologist if he should get the second Pfizer Vaccine, and his doctor said, yes. So he did. Perhaps, the Pfizer Vaccine has altered my husband's immune system, and with the mixed chemicals of a public spa/pool, explains why the severe rash breakout.
He hasn't changed anything else in his lifestyle, has had excellent skin, no skin conditions, and his recent blood lab work came back excellent. He's never been on any long term prescriptions, and is very healthy. His diet is mostly Whole Food Plant Based, he golfs 3 days/wk., takes vitamins, drinks green kale smoothies daily, eats mostly organic food, low stress, retired, and is a very calm minded person. btw- he has used our spa at our home for past 20 years, and never a problem.
The dermatologist prescribed Fluocinonide, then replaced it w/Triamcinolon, both made everything worse, so he has stopped using it. He's now taking over-the-counter, Bendaryl @ night, and Claritin 24 hour, during the day. And he is now drinking cilantro smoothies, using Boudreaux's Butt Paste, Tumeric 3,000 mg./daily, and lightly spraying apple cider vinegar on some areas of the rash. The ACV does seem to be helpful.
How does someone so healthy, suddenly get GD??!! Go figure..... We are open to all suggestions and thank you to everyone for contributing what has and has not worked for your GD. We shall keep you posted.
I'm following up on my posts from April 2021 to report I am still miraculously free of Grovers since the end of April 2021. I want to share my recovery after suffering terribly with it since onset in September 2020. I believe stress brought on my Grovers. I had tried Chinese medicine, a slew of steroid creams from dermatologists and nothing worked. Then I found this site and tried the cilantro smoothie route and zinc oxide to put on the skin to stop itching. I began to improve immediately. Then I added oral turmeric to my treatment. Although not a natural treatment, my dermatologist suggested trying an injection of Biological Dupixent, which was initially used to treat psoriasis. After one injection I had slight improvement which did not last. I took a second one six weeks later and all my Grovers went away. I did not take any further injections and stopped cilantro and didn't need zinc oxide bc I had no more rashes. I am still clear six months later. I use olive oil soap and Dove. I hope all this helps those suffering from Grovers currently.
Homeopathy - Natrum Muriaticum 30c
I suffered through a major first Grovers flare up right before Covid-19 lockdown and when I was finally able to see a doctor in person and had a biopsy taken I was diagnosed with Grover Disease. I am 38 and female.
I know we are all so different so one cure may work for one but not the other but I have found Homeopathy for me has been my saviour. I have a bottle of Homeopathy Natrum Muriaticum 30c tablets with me at all times. I take the Chronic dose three times daily but if I have a flare up (from getting hot and thus sweating) I take the Acute dose (see bottle for full instructions)
I have found that Grovers flare-ups happen when I get hot and sweat forms on my skin and then dries, I feel a strange stingy feeling on my skin when sweat is drying and a flare-up is happening. I can still exercise and get hot etc but I always make sure I shower as soon as possible before the sweat dries on my skin. if I can't get to a shower and the sweat dries on my skin I will have a flare-up.
Ice is also a good way to catch a flare-up and stop it from going from a mild flare-up to a major one. if you catch a flare-up at the early stages it will be gone within hours or max a few days.
I purchased a Diaper Rash Cream with zinc oxide yesterday and rubbed it on my affected areas. When I woke up this morning, the rash is almost gone. I would recommend this.
I tried the diaper rash cream last night, and the rash is almost gone!!! Thank you so much for sharing this information Sherry.
Grover's Disease Triggers
Not sure if any are reading these posts now its' Dec 2017. I was diagnosed with Grovers in the late 1990's. I'm a single male in my now late 40's. Seems hard to pin point what the cause is. I didnt have the issue until after going on a cruise to the Bahamas in the 90's not sure if that had anything to do with it., the Sun, intense heat, being fair skinned getting burnt etc.. but regardless went to my family doc, went through the ringer of things including at one point they thought it was Aids... that freaked me out and I'm like How is that possible...? but all test came back negative. and was eventually told I had Grovers. I went to a dermo for years.. never got any long term cure.
for me.. mine seems to pop up the worse in Nov to Dec in the cold months so through winter I have a major issue with it. it seems to always be there, but in the cold months it's much worse and I break out on my upper and lower back and same for chest stomach area. Try being single with this going on and trying to date.. ugh... Rare that I go without a shirt, in the spring an summer my symptoms are not as bad..so I am trying to figure it out.. cold months, heat in the house drying out skin? I was told by the dermo to use lotion after getting out of the shower. pat dry and lotion up.. I have done that for years.
Skip to now.. I can't afford to see a dermo, haven't been since 2008. I don't have health insurance, cant afford it and my job doesn't offer any. So I go to the health dept. they can only do so much but for the past 4 or 5 years. I have been prescribed and using a topical cream (Trimcinolone Acetonide cream 0.1%) and also they will do about a 3 month prescription of Doxycycline Mono 100mg twice daily. neither have made the Grovers go away but make life somewhat tolerable.
Unfortunately the Antibiotic (Doxy) if taken for long periods have caused yeast infections which in turn make you have to take something for that and yes men can get yeast infections just like women its just not as common and its not pleasant either. So I don't take the Doxy as prescribed but the health dept cant do anymore then they have other than refer me to a Dermatologist which would be an out of pocket expense.. having to pay for prescriptions out of pocket is bad enough with no insurance. I'm just tired of the condition.
My diet is the same all year long so I can't see why in the cold months if flares up in the worse way. I don't smoke, I don't drink... if I do its just very rare on a special occasion... like New Years or something.. but I dont drink Wine at all... I have made notes on all the posts and may try some of the things you all have tried to see if I can get some more permanent relief.. just to have the rash to be gone and less itching / irritation (i do my best not to scratch) would be a life changer... last person I dated said it looked like I had Chicken Pox... Major Ego Boost.... lol.. Not...
The one thing that helps is knowing I'm not alone and there are more people out there than I thought that was dealing with this. Most seem to not know about nor never heard of Grovers but I suppose if you don't have it you would. Best of luck to you all in your quest for a cure or relief. I have wondered if you can be treated for Chicken Pox would the same medicine used for that work for Grovers??
Two cents : histamine creates itching and Dr. Batmanghelidj in his water cures books wrote that histamine is a SIGNAL that the water/ mineral system in the body is out of balance. Sometimes the digestive tract is short of enzymes or acids and cannot break down ingested items we intake. The skin absorbs whatever it comes into contact with .
There have been many comments regarding dietary changes (both pro & Con), coconut oil and other topical aides. I would just like to share a few suggestions that have had a very positive long term impact on people suffering chronic extreme skin conditions including Grover's.
1. While the dietary changes may not create an instant 'cure' for your skin condition, eliminating known inflammatory foods and foods with a high sensitivity reaction (i.e. wheat, artificial sweeteners, dyes and chemical ingredients) will improve your over-all health and reduce your whole body inflammation making you less susceptible to flare ups of any dormant condition.
2. Coconut oil can be very soothing...it usually has an impact on skin repair due to it's anti-bacterial properties. I am a huge fan of both the topical and oral benefits of coconut oil but do be careful about extensive long term topical use as some people actually end up with extremely dry skin after repeated daily use...the rash will be gone but the skin will be dry.
3. Probiotics- If there is any bacterial imbalance or lack of beneficial bacteria your immune system will be less than optimal...again, setting you up for a flare up of anything dormant in your system. If you have taken anti-biotics, had a stomach virus or a colonoscopy in the past year then you will benefit from use of a good probiotic.
4. Neem Oil. This stuff stinks to high heaven (unless you are a garlic lover) BUT the healing properties are fantastic...it can be used directly on a severe skin outbreak of any kind (acne, psoriasis, dermatitis of any kind including Grovers) or a few drops can be added to a carrier oil, shampoo or other body care product.
5. Support your skin from the inside out...if you are older and have 'fragile' skin, or are of any age with moderate to severe dry skin you can support the health of your skin with any of the following supplements (or foods)- Skin Ceramides, Hyaluronic Acid, Bone Broth or high Quality bone broth protein (for the collagen) and Astaxanthin.
Stop using body care products that contain chemical ingredients...keep it simple so that you don't end up making your skin worse!
Almost everyone that I have ever worked with to heal a skin issue has had success after working with a combination of these lifestyle changes, body care and supplementation.
I was just diagnosed with Grover's disease after a biopsy of some bumps, turns out I've had mild cases for over 10 years. The intense itching only appeared this year. Over the counter creams seamed to work before, this year they didn't work. I tried Witch Hazel, Epson salt in 'hot' baths, mixtures of natural oils and Melaleuca oils, and others. Years ago my brother had a massive case of jock itch (he's a painter, in the sun and sweats a lot), he works for a local Pharmacy owner. After discussing his issue with him, the Pharmacist suggested "Butt Paste" developed mainly for diaper rash. It gave me immediate relief, three days with a few applications each day. I also found Max Freeze at Walmart has an immediate cooling effect and seems to overpower the itching.
Thank you so much for recommending "Butt Paste" diaper rash cream. I've had Grovers Disease for almost a year and have been using 4-5 medications the dermatologist prescribed to no avail. I decided to look for a natural solution and discovered this site. I read through the recommendations/comments and decided to try Butt Paste and I am so glad I did.
I first bought a red tube of Butt Paste that is max strength extra protection (40% zinc and free from dyes, parabens, preservatives, talc). As soon as I put it on, it felt like a fire went out. Within 2-3 hours, at least 50% was gone, bumps and all. I used it 2x a day; within 3 days, 90% of the grovers was gone.
I read another recommendation that said he used diaper rash cream before doing activities like working out, running, walking, etc. So I did the same using a lighter version of Butt Paste (16% zinc).
It's been two weeks and 98-99% of the Grovers is gone. The one with 40% zinc is the true healer.
Do not try to rub the Butt Paste off - it will cause a grover's flair up (that happened to me). To get the Butt Paste off, my doctor recommended mineral oil. I bought Johnson & Johnson Baby Oil, which is mineral oil. I put some on a piece of cotton and gently dab it over the diaper rash cream and it disappears. I then take a shower.
I also started taking a zinc supplement a few days ago, thinking it might help to keep the Grovers away. I bought Thorne, Zinc Picolinate 30mg. I take one a day.
I hope this information helps.
Have had Grover's Disease off and on for close to 10 years. Steroid creams keep it at bay, but never cure. UVB light treatments at my doctor do the trick every time, usually takes abut 6 weeks, 2x per week. Laying out with exposed areas in the sun for 15-20 minutes a few times per week always helps too.
Sorry to hear about your Grover flare ups. I too have had Grover's for several years, but evidently, it is far less invasive on my skin than what many others on EC are experiencing. I have done a lot of research into the medical journals and have been frustrated that there is so little research or interest in this disease. I would like to share with you the one thing that I have found helps the "itching" (in quotes, because mine is more like a "stabbing pain." I use Oregano oil on my flare ups. It is totally natural, of course, with no side effects, and it works wonders -- almost instantly. You can purchase a dropper bottle of this oil at Vitacost online. If you do try the oil, I would be appreciative if you would let me know whether it works for you.
Best of luck, Lorraine
Just checked mayo clinic because they know... Duh, nothing. So it's up to us to educate them! Scotch and bourbon are the problem. Due to the damage they do to the liver. My experience is cirrhosis, fatty build up in the liver, degrading it's ability to remove sulfides. So they get passed to the intestines, which convert them to sulfuric acid. Which gets absorbed in the blood, and the body expels them in the sweat glands. So Bobs theory is Grover's is not a pathogen, no fungus, no virus. It's a chemical reaction. It's exactly like the eufedex I use on sun damaged skin. So get a blood test, check GGT level. You asked if I was clear, answer yes, and no. Spent several months with my father who passed, and I was careless and drank more. And Grover's returned. And GGT levels rose. I backed off the alcohol, Grover's is now under control. Damned, the things we do to ourselves!
I have had Grover's since I was a teenager, but never knew what it was. I am 56 now. My Dermatologist confirmed it a couple of years ago. She suggested using the cream AmLactin which helped, but it was always there. I noticed when I started having fruit smoothies 5 days a week, my skin improved. A couple of months ago I decided to go on a no wheat diet in hopes of helping with inflammation problems. I have fibromyalgia and osteoarthritis and have a lot of pain and stiffness. Well, my pain and stiffness is 60 percent better and the grovers disease seems to be gone for the first time in my life! Oh, and I lost about 7 pounds and feel better than I have in a long time. If I cheat and eat wheat, I am in pain for a couple of days. It is definitely worth a try!
Grover's Disease Triggers: Stress
You may have missed this post from 3 weeks ago by EC community member Elena using high dose Vitamin A which may be of interest to you.
Posted by Elena (California) on 04/30/2022
I started taking 50, 000 IU daily for Grover's since this past Monday. As of today, my skin is almost cleared up!! Thank you to the contributors who shared that information! Just as a reminder take Vit D, 2000 IU more or less, because Vitamin A depletes Vit D.
I'm going to continue for another week, and then reassess whether I should continue on a decreased dosage of Vitamin A.
Best to All
I started taking 50,000 IU daily for Grover's since this past Monday. As of today, my skin is almost cleared up!! Thank you to the contributors who shared that information! Just as a reminder take Vit D, 2000 IU more or less, because Vitamin A depletes Vit D.
I'm going to continue for another week, and then reassess whether I should continue on a decreased dosage of Vitamin A.
Best to All