Neuropathy Remedies

Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 10/07/2012

I have now been using ALA for just five weeks and am off all pain medications now. I stopped taking Lyrica for numbness and pain blocking yesterday. I am anticipating a full recovery very soon.

I do have a question about the acetyl-l-carnitine. I am wondering if it would be better to take it a few hours prior to the ALA or a few hours after as my research tells me that it helps to absorb the ALA and other nutrients. There was also mention that it heals the "hairs" in your digestive tract. Perhaps it should be taken before bed with minimal liquid and allowed to stay in your digestive tract for a prolonged period for best results. Can anyone expound on this topic?

Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 10/08/2012

I had to go back on Lyrica after two days without it due to the increased volume of my tinnitus and a very chilled feeling in feet and legs up to my mid thigh area. Has anyone else experienced this as the pain of neuropathy dissipates and/or found something that helps for it? The Lyrica affects my vision and I am unable to take gabapentin due to how it increases my blood sugar. Any substitute would be appreciated or even knowledge that more time on ALA & ALC would improve it.


Alpha Lipoic Acid
Posted by Connie (Slc, Utah, Usa) on 10/09/2012

Hi Al; I found that the only substance that helps my neuropathy is B12... Alot of it, every day. ( I'm now taking 10 mgs. of sublingual methylcobalamin daily.)

Also, I'm very sensitive to acidic supplements, including ALA and ALCAR, Unfortunately.

When nerves are healing, there can be increased pain for a time, so it can be difficult to determine whether healing or regression is occurring.

Since tinnitus and pain/coldness is returning, my guess is that this is a regression.

I believe that my case could be caused by some genetic defect, some problem with B12 transport throughout my body. I'm having to rely on passive diffusion to distribute it. I've found this condtion to be rather common, not so rare.

Some months ago, I posted about zinc also being helpful for neuropathy. I have also found that when I've tried higher amounts of it, it actually can interfere with B12. ( zinc can displace cobalt, and vice versa). Too much zinc can displace copper and cause neuropathy, copper deficiency type.)

I understand how painful and frustrating this can be, I hope you can find what works best for you.


Alpha Lipoic Acid
Posted by Connie (Slc, Ut) on 10/23/2012

Hi Al; This is great news! From what little I understand about inorganic chemistry, I understand that too much of one trace metal can collect and displace others. ( trouble-neuropathy )

I've read that a side effect of cisplatin is oxidative stress with glutathione depletion.

So, I can understand how the ALA can help on these levels, as it both chelates metals, and helps to increase glutathione, a most powerful antioxidant.

I'm glad you are healing!


Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 10/25/2012

Connie, it is actually working so good that I am actively looking for a job. I currently have two offers, both to start in November and at the rate of improvement I am seeing that should work out about right. I might even go back driving long haul and get to see a little more of the US. I have only seen a little bit of it in about 900,000 miles of driving down there. I kind of miss it as my last load that I hauled came out of Texas and that was over three years ago.


Alpha Lipoic Acid
Posted by Mick (Europe) on 10/30/2012

Hi Al, Great to hear of your improvements. I am wondering if you are still needing to take the Lyrica. Also wondering if you found any interference/interaction with the medication when you first started supplementing. Can you state which brand of Ala/AlC you use or even where you get them. Once again great to hear of your news. Mick


Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 11/02/2012

Mick, I have been using the NOW brand of ALA at 250 mg 2x per day and started off with ALCAR 500 mg x2 twice a day & benfotiamine 80 mg once a day as I had to order them and that is what they got in for me. I have since found acetyl-l-carnitine labeled as L-Carnitine in two different brands on the shelf. I buy my supplements at local health food stores/organic markets. One caution about ALA is that you should read the label and only get what says to take with food or after meals. If it says to take without food it usually has an additive to increase absorption that can cause side effects. Look to see what they are and research them. I also take zinc and B12, along with curcumin for the pancreas, milk thistle for the liver, D3(5000iu/day) for general health, grape seed extract for pain relief, grapefruit seed extract for a topical fungus infection, glucosamine and condroitin sulfate with MSM for arthritis(almost gone) and a steadily reducing amount of gliclazide MR to stimulate my pancreas to produce insulin(pancreas was damaged by chemo and gabapentin but is healing well now).

It is now two months since I started on ALA & ALCAR which was 31 months after I started chemotherapy with oxaliplatin and 30 months from when the numbness, pain and tingling started and I am going back to work full time next week which is a lot less than the five years I was anticipating with the former rate of improvement. I am not completely healed but the pain and numbness is at a tolerable level and such that I do not feel that it will be a safety issue. I now walk almost completely normally and can feel with my feet again and no longer look like a drunk when I walk. Al


Alpha Lipoic Acid
Posted by Art (Vancouver Bc, Canada) on 11/02/2012

Dear Al from Sask, I want to thank you for your posts. I have neuropathy to where my toes, fingers and the bottom of my feet are very sensitive. I also have a burning sensation at the top of my knee caps that travels up about six inches. That burning pain drove me to the doctor where he wanted to give me a script for gabapentin but I refused. I found out about B12 under the tounge and the burning in my knees calmed down. I was up to 12 x 2500mg sublingual a day for relief. I then discovered Spirulina at 18 teaspoon a day and that seemed to help me reduce the B12 to a couple a day. Then I started to get dizzy spells so I stoped the spirulina and then I was increasing the B12 again. I then discovered your posts about ALA. I got some and what a difference, My feet are no longer sensitive and it doesn't hurt to clip my toe nails any longer.

I have been on the ALA for about 1 month now and I find I am sleeping better. Now I have to cut back on the ALA at 100mg a capsule taken with food. It did cause me gastric pain at 5 caps a day and my prostate felt like it was being sandwiched between my rectum and my bladder. I got relief right away when I cut back. Now I am taking 2 caps a day at 100mg each. I am down to one to 3 B12 at 2500mg sublingual every night and my burning sensation is gone. I know its not cured but at least I can sleep now and that alone is a miracle.

I can't thank earth clinic enough for this.


Alpha Lipoic Acid
Posted by Aim1 (West Chester, Pa) on 11/03/2012

Can you double check the amount of b12 you are taking? You have it as mg, but I think (hope) you mean mcg. Big difference.


Alpha Lipoic Acid
Posted by Art (Vancouver Bc, Canada) on 11/05/2012

I am making a correction to my post about the strength of B12 I am taking. It is 2500mcg subligual each caplet but I sure do wish I could find some in the mg dosage. I would also like to state that certain foods can cause a reaction to my neuropathy to where I am taking the B12 like candy, but for the most part ALA has really helped. art.


Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 11/11/2012

Art from Vancouver, could you tell us what foods are aggravating your neuropathy? It could help us to avoid them too and maybe even get a better understanding of what is causing the problem. Thanks, Al


Alpha Lipoic Acid
Posted by Art (Vancouver Bc., Vancouver) on 11/14/2012

Yes Al, I can tell you one of the foods that I was consuming that is causing the neuropathy was the artificial sweetener splenda. I just googled that today and WOW that stuff is poison and I didn't know. Any peanuts would also cause the knee pain and it seemed like greek yougert, ice cream peanut buttercup flavor and other protien based foods were doing it as well. By bedtime my legs were well heated up. I have cut back on all of this. The splenda is in the garbage as of today and I have switched to stevia in my coffee. I also discovered that the B12 should be taken on an empty stomach which I wasn't doing. I can now take the time released B12 without getting very itchy red spots on my legs. I chew one 1000mcg late at night washing it down with water. Just took one now and had two 2500mcg sublingual early today. The night time is when this really becomes a problem while trying to sleep. I don't want to jinx it but last night was the first night in a long time I got a good sleep, touch wood.

My knees seem to be cooling as I type this at 12:24 am.

Take care. art.


Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 11/15/2012

Art from Vancouver, is it just non meat protein or is it all protein that bothers you? I changed my diet many years ago after reading the book "Eat Right For Your Type" as I have B Negative blood and that fixed a lot of problems. Some foods that I didn't care for were listed as ones that I should not eat as well as the opposite. Maybe you should check it out.


Alpha Lipoic Acid
Posted by Art (Vancouver Bc, Canada) on 11/16/2012

I had some blueberry cheese cake and now that I did I can recall any cheese cake will cause an episode with my knees being agrivated. Only off the splenda for two days and sleeping better. art


Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 04/09/2013

To Art from Vancouver, BC. I realized today that peanuts were causing pain in my feet, thanks to what I recalled from your posting. Also remember seeing another post about peanuts having l-arginine in them. I looked up l-arginine on Wikipedia and found out that it is related to aspartic acid (Aspartame). There is a list of other foods there that contain it. I have B neg blood and most of what is listed are foods that I should not eat according to the book EAT RIGHT FOR YOUR TYPE by Peter J. D'Adamo. I would recommend that anyone with neuropahy look l-arginine up on Wikipedia.


Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 04/21/2013

After realizing that peanuts (l-arginine) were bothering me I got some l-lysine and a week ago I started taking 1000mg twice a day and have seen another significant improvement in the pain level in my feet. I am getting close to curing this problem. It seems that the platinum in the chemo destroyed the nerve sheath but left the nerves intact and "shorted out". The alpha lipoic acid apparently stops the further decay of the nerve sheath by eliminating heavy metals from the body and the rest of the nutrients I have used are actually rebuilding the nerve sheaths. It has been a long, painful experience that I dread anyone else suffering through. I encourage you to try everything that might help. Some things will make it better and some will make it worse. Not everything works the same for everyone so be aware that experimentation is necessary and can be frustrating. Don't give up. It is over three years now since my problems started and I am still improving. Al


Alpha Lipoic Acid
Posted by Al (Alvena, Saskatchewan, Canada) on 02/02/2014

Good news, I am now off of all pain killers that I was using for neuropathy. I am still taking some vitamins and minerals to support the nerves but only as part of a healthy diet and not to fix a problem. I still have a bit of tingling in my feet and lower legs but I attribute that to sensitivity of newly healed nerves. I am able to walk normally and the strength is returning in my toes now which indicates that the motor nerves are all working and have been for a while. The cold sensitivity has subsided and I am looking forward to a relatively normal life. I have found that birch and/or wintergreen oils also help to reduce tingling due to neuropathy, apparently by reducing inflammation. I use a few drops topically on my arms daily. It has taken a long time to heal due to the severity of my neuropathy and the time between chemotherapy and starting ALA but it has healed the nerves. Considering I was told by a neurologist that it wouldn't improve any more after a year from the end of chemotherapy I am quite pleased.


Alpha Lipoic Acid
Posted by Art (Vancouver Bc Canada) on 02/06/2014

Al, it is good to hear about your recovery using the ALA.

Will you keep on using it now that you consider yourself cured?

I have made great strides using the R+ALA so that I can take it with out food for those troubled times in the evening.

I have recently switched to R+NAC+SR 500mg with food at lunch and supper, reason being to help with the Liver. Have not seen that much difference and will eventually switch back to the R+ALA when depleted.

One night recently my feet felt like they were beaten with a hose at bedtime and the R+ALA gave me great relief at around 12:30am. So it really does work and I am glad for that, but when I switch back to it I can see using it to the end of days.

Thanks again Al for your input.

ART.


Grapeseed Extract
Posted by Al (Alvena, Sk., Canada) on 09/12/2012
4 out of 5 stars

The first natural product/supplement that I tried for peripheral neuropathy (caused by oxaliplatin in chemotherapy) was grapeseed oil and then grapeseed extract in a caplet form with excellent results that allowed me to reduce the amount of hydro morph contin that I was taking by about 40%.

I have told others about it and most that tried the liquid form had stomach upset from it.

I use 50-100 mg three times per day.

Grapeseed Extract
Posted by Amanda (Europe, Europer) on 09/13/2012

Hi, Can you confirm whether you take grape seed oil, grape seed extract and whether you take it in capsule or liquid form. Thanks


Alpha Lipoic Acid
Posted by Al (Alvena, Saskatchewan, Canada) on 09/03/2012
4 out of 5 stars

I developed peripheral neuropathy from an overdose of Oxalyplatin in chemotherapy for stage 3 colon cancer in February of 2010. It affected my upper palate, hands and legs up to my mid thigh. I have been on Gabapentin, 3600 mg/day, for an extended period of time and then found out it was increasing my blood sugar by 15.0 with a single 300 mg dose so was switched to Lyrica instead. I have also been on narcotic pain killers along with the others and at times nothing would touch the pain or numbness and when nerve testing was done the doctors could not believe that I could still walk as there was zero sensory and zero motor nerve conduction. I had to look where I was putting my feet as I could not feel where I was putting them. I have been very slowly and steadily healing in spite of being put into a diabetic condition by the Gabapentin.

I read about alpha Lipoic acid in an article about fat loss/muscle building with a relationship to insulin sensitivity and it listed five ingredients of which ALA was one. When I looked at ALA in the search engine and read that it would cure neuropathy and that it is used to reduce the side effects of Oxaliplatin in chemotherapy I picked some up and started using it on 1 September 2012. I immediately noticed an improvement in my feet( the only currently affected area). It was so dramatic of a change that I discontinued all other medications to see what it did by itself. I have spent a couple of sleepless nights due to pain and have started using my other medications again today. Other than Lyrica and Hydromorph contin I take grape seed extract, fenugreek, St. John's Wort, milk thistle, glucosamine and condroitin sulfate with MSM, vitamin D, B12, curcumin, Motrin, and Apo-Temazepam for a sleeping pill. After less than 4 hours since resuming my other medications with ALA my feet are about 75% better than they were three days ago.

Is there anything else that I should be taking to speed the healing/reduce the pain and numbness? Please reply directly to gustafsonal(at)hotmail.com. Thank you. Al

Alpha Lipoic Acid
Posted by Bill (San Fernando, Philippines) on 09/03/2012

Hi Al... I think it would benefit your condition if you also took the whole spectrum of B vitamins (either as B50 or B100 complex or as De-bittered Brewer's Yeast forms) which contain Choline, B3, B6, Folate and many other nutrients which would benefit the CNS system. Higher dose B12 is also beneficial to many body processes including the nervous system. For more on the benefits of B12 read David Brownstein's book -- Vitamin B12 for Health. Adding the Gotu Kola herb and higher dose Vitamin C to your regimen would also help to accelerate nerve repair. Adding higher dose niacin(not niacinamide) would also greatly benefit you blood transport system and make it more efficient. Niacin actually changes and thins out the blood safely and the flushing effect of niacin is evdence that the capillaries and peripheral blood vessels are opening up for better delivery of the nutrients you are taking to the body peripherals -- ie to the hands and feet regions. Take 500 mgs niacin twice a day after meals dissolved in half a glass of water for best absorption into the body.


Alpha Lipoic Acid
Posted by Timh (Louisville, Ky, Usa) on 09/04/2012 2077 posts

Al, Zinc is very important for healing to occur throughout the body and also boost immunity. Another very important nutrient is the Omega 3 Fatty Acids like Fish and Krill Oil. Flax Seed Oil is converted into the EFA's that the body needs in order to reduce inflammation and promote healing. A native crop in Canada, you should find Flax Oil readily and at a good price in your grocer.

Hope this helps.


Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 09/11/2012

I was trying to find the Gotu Kola herb at the same time as I found the ALA but it seems to be unavailable here (in Saskatoon, Saskatchewan). I had to order acetyl-l-Carnitine and benfotiamine as no one had them in stock but could not order the Gotu Kola. Al


Alpha Lipoic Acid
Posted by Al (Alvena, Sk.,canada) on 09/11/2012

I know about flax seed oil. It requires the protein that is in cottage cheese to be mixed with it before consuming to get the maximum benefits. I was at stage 3 with colon cancer when I had the tumour removed and shortly after went on the "Budwig Diet" which is based on flax seed oil(3 tbsp) and cottage cheese(1/2 cup) once daily. I blended them together and added liquid honey and cocoa powder to taste with some extra liquid to make a smoothy for breakfast. This diet is purported to directly attack cancer. Five weeks later all the oversize lymph nodes were back to normal size(that is when I started chemotherapy). I think this indicated that the cancer was gone and thus the overdose of oxaliplatin which damages nerves and the islands in the pancreas especially with a lack of cancer to attack. I have been cancer free for over two years now and only have to overcome the resulting neuropathy to get back to a productive life. Al


Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 09/14/2012

I got my dad, 75 years old, started on ALA on Sunday, 9 September 2012 and he is already seeing enough improvement that he went to town yesterday and bought enough for four months. He has had increasing levels of pain in his feet for years (cause not known) and has been using full leg air pressure massage for four hours a day for years to remain walking. He is talking about being able to discontinue that therapy and it has only been five days to get to that point. Al


Alpha Lipoic Acid
Posted by Timh (Louisville, Ky, Usa) on 09/15/2012 2077 posts

Al, good to hear of you and your dad's success with ALA; and it's good for immune system, blood sugar, and liver health. Please specify how many mg dose? how many times daily? as it can help set a standard for other interested users.


Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 09/16/2012

First, Bill, my blood pressure is normal as for an 18 year old @ 160 pounds and I am 6 feet tall, 330 lbs and 53 years old. I do not feel it would be right for me to take anything that would lower my blood pressure. What would you say to that re: niacin?

Tim, we are both taking 250 mg of ALA twice daily. I also started taking 500 mg of ALCAR twice daily yesterday and it seems to be helping.

Something quite interesting, when my dad stocked up on Wednesday the supplier told him that ALA would stop Alzhymer's disease immediately. Had we known about that sooner one of my aunts would still be with us. Have also heard that coconut oil helps Alzhymer's disease. Does anyone know if coconut oil contains ALA. If so it would probably be an excellent topical for neuropathy. Al


Alpha Lipoic Acid
Posted by Bill (San Fernando, Philippines) on 09/16/2012

Hi Al... I am 196 pounds and also 6 feet in height. My blood pressure is currently 110 (systolic) and 70 (diastolic). Since I started taking higher orthomolecular dosages of niacin, my blood pressure hasn't changed at all (I measure it myself every week). This is in line with what Abram Hoffer has said in his articles -- he maintains that particularly niacin (not niacinamide) balances high cholesterol and high blood pressure safely and I guess my experience with niacin is a confirmation of that. For blood pressure/cholesterol problems niacin is the one to supplement.

I take orthomolecular doses of niacin because it is anti-aging and helps so many other processes in the body (together with the rest of the B vits). Abram Hoffer was also sure that you would live longer if you took proper orthomolecular dosages of niacin every day. For most of his life, Hoffer also admits that he took between 0. 5 and 6 grams of niacin/niacinamide himself daily and he lived to the ripe age of 92. He has also documented that taking 0. 5 to 3 grams of niacin/niacinamide is the proper orthomolecular dose for a healthy person, depending on how good your diet is.

The current RDA recommendations for vitamin B3 is about 16 mgs a day.


Alpha Lipoic Acid
Posted by Timh (Louisville, Ky, Usa) on 09/17/2012 2077 posts

Al, thanks for your informative responses. As for ALA, I don't think it's endogenous in foods as it is a coenzyme that the body creates from nutrients like B vitamins and sulfur amino acids like Cysteine, as well as some minerals. Another coenzyme you might want to consider supplementing is CoQ10 or Ubiquinol as it works in the body differently than ALA, especially for heart health.


Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 09/18/2012

Bill, not only is my blood pressure good, but my good cholesterol is high and my bad cholesterol is low. I believe it is a result of trimming fat from food since I was young. I do not butter bread and I trim the fat from bacon as well as cooking with water, skinning poultry before cooking and eating lots of vegetables.

Timh, I have tried CoQ10 and felt no change in my health. I have no idea if it did me any good or not but I am in a very tight financial situation so even getting ALA & ALCAR & Benfotiamine means putting off paying utility bills. My monthly budget for everything comes out of an income of less than Canadian $900. That has to cover maintaining a home(paid for) and maintaining, licencing and fueling a vehicle as I live 45 miles from the nearest city. I am hoping that the improvements I have seen so far continue at the same rate and allow me to get back to work and my normal income quite soon.

I am seeing a small improvement with the benfotiamine and a significant improvement with ALCAR but the ALA is just phenomenal. Al


Alpha Lipoic Acid
Posted by Art (Vancouver Bc, Canada) on 02/08/2013
5 out of 5 stars

Update on taking ALA for Neuropathy.

I am taking one 100mg. At breakfast and one at supper, and one or two B12 2500mcg before bedtime. The burning in my knees has almost gone and things are settled to near normal. I am not cured but as long as I don't forget to take my ALA twice a day I am fine. If I do forget I am in for a night of torment with burning skin on my upper knees. I have been getting chills these last couple of months after taking Chanca Piedra for stomach issues, but will forge on since summer is near.

Art


Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 01/22/2015

I just received an email from a lady in the UK asking for an update and telling me that the last one was in 2013. I have been busy working long hours, sometimes over 340 hours in a month. The neuropathy is still improving, but extremely slowly. All I use for pain relief now is geranium oil, topically on my hands and forearms. It a natural anti inflammatory and has no known side effects. I still feel I am missing a nutrient or two to finish curing my neuropathy. I try everything that might help and am in the process of checking out one more nutrient with my doctor and hope to try it within a few days. If it helps I will give a further update and let you know what it is and how to use it. The posting I found it in quoted a medical journal entry from the 1840's. New is not always new and maybe old is better. Al


Alpha Lipoic Acid
Posted by Timh (KY) on 03/05/2015 2077 posts

AL: Glad to see you are using your brain to help work out these pressing issues. I am in a constant state of tweaking any treatment or therapy to maximize benefit and minimize harm.

Several months ago I also reported not reading some very critical info on Statin drugs that was not included in the fact sheet from pharmacy. Two items in particular is Statins can and do produce nerve damage resulting in neuropathy, and can and do (in a certain percentage of people) produce pulmonary fibrosis. Well, here I am already w/ both these conditions so I could only surmise a worsening; which was evident particularly in the neuropathy as I had the choice of continuing the medication (and even at 50 or more % lower prescribed dose) and going down from a cane to a walker to a wheelchair or discontinue.

There is lots of Cancer info here on E.C. for the cancer so I hope you can get exact on that and get well again. There are some good Youtube vids on self-applied Ozone for rectal administration.

As for the Neuropathy, there is some promising research lately on a natural nutrient, a nucleotide Inosine for rebuilding nerves which is helping in cases like Parkinson's.


Acetyl-L Carnitine, Alpha-Lipoic Acid
Posted by Joseph (Stockton, CA) on 08/11/2021 71 posts

Hi Laura, just read your posting of several years ago. 1st. Gabapentine did they sell it back then? To me I would never take due to how dangerous the side effects are. Did you suffer Side Effects at all? How long did you take? Did it really help your pain? Is there an R-Lipoic Acid? Thank you, I too love this site, however, I have lots of priorities so I can't view for hours, but would love to because I pass on info to others that need it.

If I can be of assistance with anything pls contact me. Joseph


Acetyl-L Carnitine, Alpha-Lipoic Acid
Posted by Alana (Aurora, Co) on 11/19/2012

Hi Laura - thanks for the great info. I'm so glad your neuropathy has resolved and congrats on finding the cause! I had a sudden onset of neuropathy in my legs in 2005, which has since spread to my hands. Doctors believe the cause is either autoimmune or a spinal cord cyst. I'm interested to try your approach, but also fearful of giving up beloved gluten, dairy, etcetera and having it not work. So, my question is, how long were you doing the gf thing before you noticed a difference? Even though I've tested negative for gluten sensitivity, I've gone off of it for periods up to 2 weeks without any difference. Thanks in advance for any info!


Acetyl-L Carnitine, Alpha-Lipoic Acid
Posted by Cheryl G (Groves, Texas, United States) on 03/09/2013

Tikeen from Halfax: My husband has neuropathy pretty severe, I'm interested to hear how the treatment goes with ur husband. Wishing ya'll best of luck!! Pls let me know how it goes! XOXOXO


Acetyl-L Carnitine, Alpha-Lipoic Acid
Posted by Steve (Las Vegas, Nv Nevada) on 03/09/2013

My brother has had some success relieving neuropathy in his fingers and toes using a low level laser therapy pen. There is lots of research on low level laser therapy for neuropathy you can read as well: http://www.healinglightseminars.com/laser-research-library/neuropathy-2/

Steve


Acetyl-L Carnitine, Alpha-Lipoic Acid
Posted by Rosea (Michigan ) on 01/25/2017

Liz,

How long did it take for the alpha lipoic acid to work? Also how much did you take a day?


Acetyl-L Carnitine, Alpha-Lipoic Acid
Posted by Stella (New York) on 06/15/2020

Were you ever on the D pill before you started the B-12? and fish oil??


Alpha Lipoic Acid
Posted by David (Westford, Ma) on 04/29/2012
5 out of 5 stars

I was diagnosed with peripheral neuropathy in November, 2011. The excrutiating burning on the bottoms of my feet had gotten progressively worse and I really thought my days were numbered. The last thing I would ever want to do would be to go on disability but it seemed like that was where I was headed. I have done everything to help myself. Mind/body 8 week course to learn to live with chronic pain, accupuncture, diet, meditation, yoga and more. Three days after I started ALA I thought my pain had started to reduce.

Now 6 weeks later except for minor discomfort now and then I don't think about my feet 24/7 anymore. I actually drove myself to the Museum of Fine Arts and walked around last week for a couple of hours forgetting that a few weeks prior I never could have done that. I feel blessed to have found ALA if this is why I have gotten better. I have also stopped all statins as I tried just about every one of them. I also discontinued amlodipine as the swelling it causes of my feet I was sure was aggravating my pain. I now take 900mg. Per day and wonder if that is too much? I have read many research articles on ALA and they seem to agree that IV ALA does help neuropathy. There don't seem to be any conclusive studies on oral ALA. I am looking to try and find whether ALA can actually cure Neuropathy or if you need to keep taking it?

Alpha Lipoic Acid
Posted by Sandy (Detroit, Mi) on 04/30/2012

David,

Have you looked into taking b-12 also? Many are b-12 deficient and the symptoms are linked to this. B-12 is best taken in methyl form (sublingual for over the counter) and/or shot or nasal prescription. Many reasons why this deficiency is very common.


Vitamin B-1 (Benfotiamine)
Posted by Caprice (Ca) on 12/30/2013

My neurologist has recently informed me that supplemental B6 can build up in your system to toxic levels and cause nerve damage. I stopped all supplements immediately. I am now getting some relief from 1tbs unfiltered, unheated, organic ACV mixed with unfiltered, unheated, organic honey in a glass of hot water, 3x per day. Do your research before you make changes or try something new :)


B12
Posted by Connie (Slc, Ut) on 08/24/2011
5 out of 5 stars

Hi John P. ; I do hope you're having some improvement by now with the B12. Have your symptoms changed at all? Oftentimes as nerves heal, numbness, tingling, and pain can alternately diminish and return temporarily. Temperature sensitivity can also shift. Although I've tried numerous subtances for neuropathy, the B12 has worked best far and away. But this only means that it worked for my case. (though there are many case studies to support B12's efficacy with neuropathy). Still, the folks here are offering good suggestions as these supplements also have an excellent track record for treating nerve injury. I also welcome suggestions because someone may just pop us the right answer!

I see you are trying transdermal applications. It still surprises me how powerful they are. In fact, I cringe when I recall that I've coated my hands with paints that were loaded with heavy metals. Then I would use nasty solvents to remove them. Now I use gloves. But I do use the solvent, DMSO with some transdermal applications. I've added 4 (20mg) B12 lozenges, crushed with a mortar and pestle, to a 1 oz. Dark glass dropper bottle, mostly filled with DMSO. I shake it vigorously for a few minutes until dissolved. This is an approximate recipe developed by Dr. Gregg. I've used this off and on for several years with good effects. I buy the DMSO and supplies from a chemical shop. The mixture is a bit sticky, and the flavorings make for an unusual scent, but it did help me. I would often use it on my left hand which had become frighteningly stiff and numb. I'm now trying it on the small numb spot on my heel to see if it speeds recovery. Castor oil is also a great medium to use either alone or with added essential oils, some good warming ones could be : Oil of Oregano, Cinnamon Oil, Black Pepper Oil, and Ginger Oil. Cayenne is very warm, but I have only seen it as a powder or extract. There are some ready-made salves, but some are with cooling mints. I do have one that is warm, it is called Badger sore muscle rub. It is mild. Good Wishes.

B12
Posted by John (Plymouth, Ma) on 08/25/2011

Hi Connie, You sure are certainly informed with regard to P.N. And many other things. I cannot thank you enough for your time and support. You are heaven sent. You will indeed get your hit record.

Regarding the magic bullet for P.N. I'm going to give benefotiamine a try, if all else fails. I have researched it throughly. It's a man made form of Vitamin B-1 (Thiamine).

Again, NO ONE was put on Earth to suffer. We all are here to thrive.

Bless you.


B12
Posted by Kelly (Cambridge, Ma) on 08/26/2011

John - Have you tried Alpha Lipoic Acid capsules? It's worked wonders for me and scores of others.


B12
Posted by Connie (Slc, Ut) on 08/20/2011

Hi John P. ; A few days ago, I asked myself ; What has B12 not done for you? My hair is still 40% gray, and I haven't yet written that " hit song". Each day is a bit better, but it's so slow for me. When the neuropathy was at its worst, I began with a litany of supplements to cure it , but I was using so many at the same time , I couldn't discern what was working. I became confused. My studio became an apothecary. When I look back, I realize that there were so many obvious clues for me, but I was distracted with pain and fear, and I had spent my life on denial of my instincts. I've got a way to go with that. What I'm learning from you is that you are going about your healing process logically and methodically. I appreciate this. Although B12 is not the only one thing , Its pretty dang'd powerful. There have been and there are currently tests being done for people with MS and early ALS to at least improve their status. The amounts being used are 50 mgs. Daily by injection. This means that there could be a wide variance in an individual's needs. I've tried a wide variety of amounts, and I'm still somewhere between 2500 - 5000 mcgs. Daily now.

I've " haunted" some forums, and it appears that other people are trying a wide variety of amounts, but, most seem to be settling in the 1000 - 5000 mcg. Range. Some are lower, and some are extrordinarily higher. I have been influenced by this information, so I need to be mindful of it when making suggestions. Another thing I am noticing about B12 is that it is raising my body temperature and I am feeling warmer. ( I've read this and now I'm seeing it. I'm at 98. 2 degrees now). I believe it will help with cold legs eventually. I also believe that massaging legs and feet with oils can be wonderful. (my skin is dry, so I use castor oil). I've used various salves for pain with good effects. Since you have coldness, I would recommend that warming spices be added to your salve, such as Ginger, and Cayenne. Ginger has been recommended to raise body temperature and improve circulation. ( internally and transdermally) Best to You.

B12
Posted by John P. (Plymouth, Ma) on 08/23/2011

Hi Connie, Thanks for the great suggestions.... I currently rub my legs with magnesium oil fro "Ancient Minerals", however I don't know if it has been working as I have been doing it for only 2 weeks... No results... Yet... Rubbing castor oil may be a good idea as it is highly recommended for hep-c in a pack against ones liver for an hour or so per day via Edgar Casey and many other current people... So transdermally it may help significantly... I will try it on just a small part of one leg and see if I get any kind of reaction with my hep-c.... I am so cautious with adding things as I have had bad reactions to many things... I feel this is because of my liver..

Thank you again so very much, John P.


B12
Posted by Janet (Kendal, U.k) on 08/24/2011

MSM:-(Methylsulphonylmethane. ) It's available in tablet or crystal form, the crystals are said to be quicker absorbed. Health food shops sell it or available online. It, s sold usually to supportjoint comfort and mobility. We googled what are the health benefits of MSM for diabetes, and came up with a great page explaining all about it. Usage , dosage, etc....


B12
Posted by Anna (Toogoolawah , Qld Australia) on 08/24/2011

You should use only Magnesium Chloride for oral use, and it should be Food Grade. You can buy it from Food Ingredient companies in NZ and Australia by the kilo. Costs about $33. Checkout Paddy Melon & The Melbourne Food ingredient Depot. They supply all the Vitimins and minerals to the food manufactors in Australia, and they will post it to you. I buy all my stuff there or in a produce store where I is much cheaper than Natural food stores. Magnesium Chloride is a wonderful mineral for lots of ailments taken orally and as a bath/foot soak.

Good luck


B12
Posted by John (Plymouth, Ma) on 08/25/2011

Thank you for the information...

God bless....


B12
Posted by John (Plymouth, Ma) on 08/25/2011

Hello Anna, At what strength did you use magnesium chloride? How often per day?.. Pill or powder?

Thx much...


B12
Posted by Cindy (Phoenix, Arizona (az)) on 10/08/2012

Regarding the Magnesium Oil mentioned in this post--it is magnesium chloride, and it is an oil. You spray it on your body. I use it daily for a condition related to my autonomic nervous system. I also have Magnesium chloride "pushes" (like an IV, but the without the hydrating fluid added). This is by far the most effective form of taking magnesium. I noticed results after the 2nd push (one a week). Your ND can do these for you. I do know my ND also uses these mag pushes successfully for RLS (Restless Leg Syndrome).


Alpha Lipoic Acid
Posted by Robert Henry (Ten Mile, Tn Usa) on 08/19/2011
5 out of 5 stars

My neuropathy is due to diabities and I take Alpha Liopoic Acid intravenously and by pill. A lady who has hep c was the person who got me on this regime. It helps.


B12
Posted by Connie (Slc, Ut) on 08/19/2011

Hi John P. ; I truly hoped that you had knocked that neuropathy out of the park right away, but it usually does take time to heal nerve inflammation. It took about 8 mnths. For me , 3 1/2 yrs. Ago. Then, when I stopped taking it daily, and regressed, it took several months to again heal the nerves. Even after restarting B12, I still regressed during the first month. Now in my 6th month, I have a small, shallow numb area on the heal of my left foot, and it is recovering feeling. The area around it is sensitive and tingly. This means that time is necessary. Also, it means that we're going to have to get more technical with your process.

Firstly, I've read that oftentimes with liver trouble, potassium could go low. That can cause some cramping and pain. If you are not taking any potassium sparing meds. , such as some certain diuretics or anti-hypertensives, then consider increasing potassium foods. ( careful with the sweet ones, they can cause pain). Consider getting a copy of blood test and observe electrolytes. ( I find I feel best when K is about 4.5 mEq/L). Fresh vegetable juices are great, carrot, celery, and added greens. Smoothies are also a great option, as are homemade broths with the retained liquid from the veg.

As I see that you have expressed a sensitivity to acids, I agree that reducing them is a good way to alleviate pain. The nerves are exposed, and even beneficial acids can cause pain now. Although citric acid is natural and good, it is added to so many foods as a preservative, that it is easy to get too much. Even ascorbic acid can cause pain. I don't recommend total avoidance, but some reduction. I recommend a food type B-complex. (new chapter). It's expensive, but less is needed. I've found that it doesn't cause pain when taken with meals at 1/2 to 1 tablet. B1 and B6 are good for nerves at lower dosages, ( personal opinion ). Also, the fat soluble vitamins, A and D, can be difficult to metabolize when there is liver trouble, so I recommend getting them from food rather than supplements. Good Wishes.

B12
Posted by John (Plymouth, Ma) on 08/19/2011

Hi Connie,

ThanKs for the reply... I'm wondering what amount of B-12 are you currently taking? I have gotten up to 10, 000mcgs... I went very slow for obvious reasons... I have only been on this for less than a month... If it took you 6 months, I guess it will not be overnight with me either... I tried taking lecithin and it thinned my blood out (assumption) and I have gotten very cold as of today... I got a commendation to rub coconut oil on my body... Don't know if you've heard of this... I may try it on a small part of my leg for starters and see what happens...

I am extremely grateful for your advice and your quick response...

God bless, John


B12
Posted by John (Plymouth, Ma) on 08/18/2011
3 out of 5 stars

Looking for Connie from Utah...

Hello Connie,

You gave me a remedy for my Periphal Neuropathy... I am now up to 10,000 mcgs of B-12 and still have pins and needles and severe cramps in the middle of the night in my calves... My legs are cold from the knees down and we're in a heat wave in August.... It seemed to subside initially, but the full neuropathy is still there... I have been doing it for about 3 weeks.. Is this something that may take months to resolve? Any feedback will be greatly appreciated... If you recall I believe that hep-c has caused this neuropathy...

Thank you...

B12
Posted by Kate (Avon, Ct, Usa) on 10/21/2011

Hi John,

I can feel your pain.. Literally. I've been suffering from horrific pain in my feet for almost 3 years now. As of the past few weeks, it's began to spread up my legs and I am experiencing stabbing sensations and cramping as well(grrrrr). I have a long history with Lyme Disease and co-infections so since I test negative for literally everything else the docs can come up with, it seems Lyme is the origin.

I have been on Neurontin for as long as Iv'e had this problem and about 6-7 months ago began a strict regimin of ALA, Benfothiamine (600 a day), Acetyl-Carnatine and more. I seemed to hold for a while but now things are exploding and I have no idea why. I have been taking 25mg B12 injection 3x's a week for about 4 weeks now. To no avail (sigh). About 2 weeks ago I decdied to give up carbohydrates in another desperate attempt to stop this incredible pain.

I hope and pray you find relief asap as so many posting here have. I have learned a lot simply by stumbling on this thread so I thank you for that.

A great sight with a TON of info on supplements, etc for neuropathy is "Neuro-talk. " Find the peripheral neuropathy section.. there is a tremendous amount of information to be had and much like here, a tremendous amount of support.

Be well, Kate


B12
Posted by Monique (Elllington, Ct) on 10/26/2011

Kate, you are not alone. I've had terrible Neoropathy in both feet for 4 1/2 years. Its a terrible way to live. I'm trying to research cures and came across this site. I even had a Spinal Cord Stimulator trial implanted but it didn't work for me. Supposedly though, it helps lots of people. I haven't read many people on this site who have tried it. Also, I guess there is a nerve root stimulator too which is similar and works for 2 out of three people. I went to the Lahey Clininc in Burlington, MA for my SCS. It's something you cna look into. I'm at a point I don't know what else to try, has anyone had luck with acupuncture? I tried it years ago with no sucess but I'm going to try again. I have a 7 and 8 year old to raise and can't go on feeling like I do. I have a high tolerance for pain but it's even more than I can take now. Good luck yo you. Let me know if you find anything out.

Monique


Acetyl-L Carnitine, Alpha-Lipoic Acid
Posted by Faith (Wantage, Nj, Usa) on 07/11/2011

Like you, I have developed neuropathy from chemo. I am ready to start the supplements that have worked for you and apparently many others. Would you mind telling me what brands you have used. Also do you use any benfotiamine?(B-1)

Thanks so much for the hope! Faith


Acetyl-L Carnitine, Alpha-Lipoic Acid
Posted by Connie (Slc, Utah, Usa) on 04/14/2012

Hi Mark; This doesn't look easy, but I'll put forth some guesses. Zinc may be needed. It is often times low in people who have become ill with cancer and a large variety of infections. Zinc is active throughout the body, including the nerves. The symptoms of zinc deficiency usually include problems with taste and smell, gastrological disturbance, gonadal disturbance, and growth problems, but there can be many more symptoms. Some types that are easier to find are; zinc gluconate and opti-zinc; I have found these to be effective. Also, a food derived zinc may be gentler on the stomach if sub-divided. There's a zinc-l-carnosine type that may also be easier on the stomach. If taken for long term, a small amount of copper may be needed. ( There are cases of neuropathy that were caused by zinc toxicity that then caused a copper deficiency. These cases were the result of extreme amounts of zinc used, however... in the form of denture adhesives.)

Also, some supplements can worsen neuropathy if taken in too high doses for an individual. B1, B6, ALA, Acetyl-L-Carnitine, etc, may cause irritation.

I found B12 to be most effective for my neuropathy, but it took many months to heal... About a year. But I've also found Zinc to be enormously beneficial for nerve healing. It may take a month or so to see results.


Acetyl-L Carnitine, Alpha-Lipoic Acid
Posted by Dana (Ashland, Or) on 05/30/2012

Connie from Slc, Utah, thank you for your comments. I have PN, and have adjusted my diet (gluten free, balanced blood sugar) and have added in many supplements recommended on this site. Do you have dosage recommendations on the ones you state can irritate at high dosage?

I have a problem with ALA. Perhaps because it is a chelator, I feel incredibly toxic any time I take it, even very low dose. I am not otherwise sensitive to sulphur as in onions or garlic. How important is ALA to any protocol of supplements? Do you or anyone here have an opinon on that?


Acetyl-L Carnitine, Alpha-Lipoic Acid
Posted by Barbara (Miami) on 07/24/2016

I was wondering if you could please tell me how much B12 you were taking and what brand? Thanks so much!


Alpha Lipoic Acid
Posted by Liz (Boston, Ma) on 06/25/2011
5 out of 5 stars

Months ago, I added Alpha Lipoic Acid (100mg 3x per day) to my daily supplements for its antioxidant properties. After about a month, I noticed that the intense foot burning and pain I'd been experiencing for years was GONE! Yay!!

Just an FYI - the dosage I take is a low one (300mg/day). Those suffering with different types of neuropathy could go as high as 800mg/day.

Alpha Lipoic Acid
Posted by Monique (Elllington, Ct) on 10/26/2011

I have extemely severe neuropathy in both feet which is getting worse. I'm scared. I've tried the alpha lipoic acid and acettyl-l-carntine and everthing else too. Nothing, not even pain meds like oxycodone touch the pain. I have a 7 and 8 year old to raise and the pain has become unbearable. Any suggestions from anyone would be greatly appreciated.


Alpha Lipoic Acid
Posted by Debbie (Melbourne, Australia ) on 10/26/2011

Monique you can try "earthing" for your pain. The most simplest way to do earthing is for you to sit with your feet barefoot on the earth (or grass). You can do some research but I have read it helped someone with neuropathy of the feet.

If it helps you can also back earthing sheets for your bed and even the computer. The best shoes to wear are leather soled shoes because they still earth you to the ground.

Lots of info available on earthing.. May be worth a try... Just sit or outside barefoot and see if it helps. Would love to know how it goes.


Alpha Lipoic Acid
Posted by Ale (Cardiff, Uk) on 10/27/2011

Hello Monique,

A friend of mine had a crippling neuropathy in both feet and couldn't even walk. She went to get osteopathic adjustments just once or twice and now the pain is almost completely gone. You might want to find a good osteopath in your area and give it a try. Good luck!


Vitamin B-1 (Benfotiamine)
Posted by Eugene (Portland, Oregon) on 04/15/2011

Hi Folks:

Benfotiamine appears to work to reverse Neuropathy, such as those who can no longer feel their feet, etc. Please read all about it here:

http://benfotiamine.org/

Although you can purchase it at the above website, I got mine from beyondacenturyonline.com because it is cheaper (bulk powder).

Take Care, Eugene

Vitamin B-1 (Benfotiamine)
Posted by R. (Dallas, Texas) on 08/19/2011

Eugene, Its been 4 months since you started, how is this Benfotiamine working for you? I am interested in trying this out! I have tried everything else and nothing seems to work for very long periods of time! Thanks in advance!


Epsom Salts
Posted by Alice (Oro Valley, Arizona) on 11/03/2010
4 out of 5 stars

I've been successfully taking the vitamin formula to correct peripheral neuropathy in my feet. However as the numbness clears up I found the tingling itch on the ball of my foot driving me up the wall. Finally I tried soaking my feet in warm water with about a quarter cup of epsom salt, and it is bringing relief.


Turmeric
Posted by K (San Antonio, Texas) on 02/10/2012

I belive my neuropathy is caused by a course of Leqavuin 2 years ago. It started with a numb big toe and spread out. I've taken b-12 patches, Alpha Lipoic, Lecithin, MSM, acupuncture, Bach remedies, NAC, but what feels like a cure:

This week

5 pieces of Turmeric juiced into my morning carrot juice, along with 2 packets of Liposomal glutathione.

I actually credit the Turmeric more than the gluathione, but the two in combination are alleviating all my numbness and prickling for the last 7 days.


Turmeric
Posted by Janet (Fernvale, Queensland, Australia) on 04/28/2012
5 out of 5 stars

I also swear by Turmeric but my understanding is it needs to be heated and taken in conjunction with black pepper for activation. If I have fresh Turmeric I simmer it for approx 10 minutes but if it is powdered making a tea with boiling water is another way to go, I add ginger, black pepper and agave to sweeten and it is a very pleasant drink. I have this drink daily and the pain relief properties are amazing.


Turmeric
Posted by Al (Alvena, Sk., Canada) on 11/12/2012

I have been using curcumin which is an extract of turmeric. I used one that states that it is a standardized extract. The active ingredient in turmeric that helps is much more concentrated in the curcumin and can directly reduce pain as well as helping pancreatic health.


Vitamin B-1 (Benfotiamine)
Posted by Richy (Sunland, Ca) on 10/15/2009
5 out of 5 stars

I have found that B1 and B12 works well on neuropathy. There are certain types of B1 that are fat soluable (benfotiamine) so it doesn't just go out of the body, but the body can actually hold onto the B1 and use it to repair the nerves. There is also B12 that can be found that is methylcobalamine or methyl B12.. The body has to convert the B12 to methyl B12 before it can use it, thus getting it already converted means the body can use it. You can find these online, not usually in health food stores.

Vitamin B-1 (Benfotiamine)
Posted by Kelli (Sioux Falls, Sd) on 04/18/2010

Definitely try B12 for neuropathy. It must be methylcobalmin and must be sublingual (under your tongue lozenges). It is unfortunate that you can't list brands because there are several brands out there but only two that I have found that are really good. I suspect it is the quality of the methylcobalmin. You must be consistent with taking it everyday but eventually the neuropathy will get better. It takes some time so be patient but it definitely works. B12 is water soluable so you don't have to worry about getting too much, your kidneys will simply remove the excess.


Vitamin B-1 (Benfotiamine)
Posted by T (Maryland, Usa) on 05/18/2010

Your antibodies are a big red flag for Hashimoto's. How are you so sure you don't have Hashimoto's? What kind of ignorant doctor is trying to diagnose Hashi's by TSH levels?? Your TPO is way higher than mine was. Did you have anti-TG Ab testing as well?

I highly recommend Dr. Datis Kharrazian's thyroid book for those with Hashi's (or suspected Hashi's). That is the one that finally put many pieces of the puzzle into something that makes real sense.

Re: B12 - I take a sublingual B12.


Vitamin B-1 (Benfotiamine)
Posted by Cindy (Buckhannon, Wv) on 08/17/2010

To FU on my 5/18/10 post... Well, my mystery hasn't gotten any clearer. I am now getting neuropathy in my hands. I switched doctors and this one isn't much better. In the beginning he was going to run all these tests b/c my previous doctors had "completely missed the boat. " So, for my first test he scheduled a thyroid ultrasound. After that he said he would address any possible circulation problems. The US showed that I have mutliple nodules on both sides of my thyroid. I thought this doctor was really going to be the answer. Boy was I WRONG! I went back for my FU appt last wk. No more tests. All my levels are "stone cold where they're supposed to be. " So, his answer was to increase my Gabapentin. So, now I'm more tired that before (on top of feeling awful normally). I just don't know what else to do. There has to be a reason I feel like this (neuropathy in feet & hands, tired, fatigued, generalized aches & pains throughout my body, and per my previous post TPO >1000, B12 deficiency, Vit D deficiency) and no one seems to care... They just want to give me a pill. The closest holistic doctor is 2 hrs away & costs $190 for the first visit & FU visits cost $60-$190 every visit after that depending on your diagnosises. I live practically in the center of WV. Does anyone have any suggestions? I just don't want it to be something that could have been prevented from getting worse.


Vitamin B-1 (Benfotiamine)
Posted by T. (Maryland, Usa) on 08/18/2010

It strongly sounds to me like you have Hashimoto's. Please check out Dr. Datis Kharrazian's thyroid book; it's excellent. Right up front I'll tell you that you'd need to go completely gluten-free. There are tons of resources online to aid you in doing that (seems tough at first but it's certainly manageable - I did it in April because of Hashi's and it has definitely helped me). Check out celiac sites for lots of help and advice on going gluten-free, and do read the book if you can as it's really loaded with detailed information and practical advice. Best of luck, and update us again soon!


Vitamin B-1 (Benfotiamine)
Posted by T. (Maryland, Usa) on 08/18/2010

I should have expanded the thread before I replied... I see I already replied to you back in May ;) Well I just gave you the same advice as I did then, only I'll add that I am even more of the belief that it is Hashimoto's as you've got the nodules now as well. The longer you let this attack your system, the worse off you are going to get. You already have obvious autoimmunity going on and this predisposes you to other autoimmune problems such as rheumatoid arthritis and lupus. Please check out the book; I believe your answers are there but it's down to you to learn and make the changes you need to make.


Vitamin B-1 (Benfotiamine)
Posted by Cindy (Buckhannon, West Virginia) on 08/20/2010

Thank you T from Maryland. I just looked up that book. It seems I have already bought it (I probably bought it after you replied in 5/10) but haven't read it yet (my memory isn't that great anymore either). I'll make time this weekend. Thank you for the advise on going gluten free. I'll try anything at this point. Thank you again.


Vitamin B-1 (Benfotiamine)
Posted by Jc (New City, New York) on 07/07/2011

You might want to try food grade Hydrogen Peroxide 7%. works excellent with epsom salt. you need 2 cups of 7% peroxide to 1 cup of epsom salt. soak in a hot tub of water 113degree. you can soak for a min. of 25 min will work longer 1 hour if have time. when filling tub they sell flat thermometers in hardware store best also to buy a small round fan and I hung it on th bathroom entrance door blowing towards the tub. it maks it extremely comfortable to relax longer. you best get a ground falt electrical breaker home depot. it adapts between outlet and fan cord for safety, the unit is yellow my lasy go to model buy a swim cap made out of soft material this will prevent your hair from bleaching. good luck, it works excellent.


Vitamin B-1 (Benfotiamine)
Posted by Monique (Elllington, Ct) on 10/26/2011

Hi there, I have terrible neuropthy in both feet and the pain has become unbearable. I've tried lots of "cures" and keep searching and researching, It is by no means a cure, but I have been going to the YMCA on Mondays for 1/2 foot massages. It doesn't take away the pain, but there is something about a gentle foot massage that feels good to me. My children, 7 and 8 also massage Mom's feet every night before bedtime. My feet are incredibly sensitive to touch, but just knowing someonone is caring about them helps a tiny bit. I tried to get my insurance to cover the foot massage at the YMCA but of course they wouldn't. Any other suggestions anyone has, would be greatly appreciated. Also, I live in Ellington, CT does anyone know of a support group in my area? I was thinking of starting one myself but don't know the first things and really wonder if I should undetake it with how I feel. I don't want to get together and just complain of our pain but would like it to be a positive forum to exchange helpful hints to one another.

Thanks, Monique


Vitamin B-1 (Benfotiamine)
Posted by Gatordennis (Bradenton, Fl) on 03/24/2012

I just finished reading the thread on "Remedies for Severe Neuropathy" where I noted the many cure/relief suggestions. My pain started in 1 foot 13 years ago before taking statins, moved to both feet, to both lower legs, to both hands, both forearms, both ears, across my face through my cheeks over the last 13 years. It is like my feet are freezing to death while they are setting in a campfire.

I asked doctors if it could come from fire ant bites, walking barefoot on new Berber (contains (formaldehyde), insecticides/herbicides, & every thing else I could think about that may had changed just before the pain started (none of them were accepted as a reason). I often do not feel other pain from cuts, insect bites & etc.

I have been through 3 neurologists & 2 nerve tests - no help. The prescribed meds (each one taken 6 weeks) either kept me awake for days, slept for days while getting no relief from the agonizing pain. I do not use caffeine, have been on meat/cheese/leafy vegetable diet for 2 years (no gluten). I have tried MANY salves, even mixed in cayenne pepper (some for race horses & other old time remedies). I take 5000 mg of daily D3 for 2 years now (started with 50, 000 mg of D-2). I take multi-vitamin, fish oil, sublingualB-12, tried the Co-Q 10 for years, etc etc.

Nothing has worked or given relief. My 120 mg of daily Oxycodone (for neuropathy & 3 year back pain) only make life bearable. I relate with all of you for your suffering. I will give Alpha Lipoic Acid & Lecithin a try. I am at my wits ends & getting desperate for anything to cover over the PAIN.

Vitamin B-1 (Benfotiamine)
Posted by Steve (Las Vegas, Nevada) on 03/24/2012

You may want to consider googling energy healers. There are many that may be able to reduce your pain significantly.


Vitamin B-1 (Benfotiamine)
Posted by Hertsman (Feltham, Middlesex) on 07/24/2012

So many different suggestions on this thread, difficult to know what to try. So many folk talking about feet but can't find any mention of lower back pain neuropathy? The pain is awful, horrible sore pain that won't go away. I've read that r-lipoic acid is better than the standard lipoic acid. Can anyone give advice for nerve pain in lower back. Any help greatly appreciated. Thanks


Vitamin B-1 (Benfotiamine)
Posted by Steve (Las Vegas, Nevada) on 07/24/2012

EFT works very well many types of back pain. Here are the points you tap as you focus on the pain:http://www.freewebs.com/stevelevine/efttappingpoints.htm


Vitamin B-1 (Benfotiamine)
Posted by Maya (Silver Spring, Maryland, Usa) on 08/10/2012

After having suffered several acute lower back pain episodes and many visits to the doctor that helped little except the little releif from the strong pain killers prescribed. One night, during a really bad excruciating episode and out of desperation I took a good amount of castor oil and rubbed it on my back. Covered the area with a clean towel and lay on my stomach. The whole area felt immediately very warm and I experienced almost instant relief. It was a miracle! I was almost pain free in the morning. Even went on a 2 hour car trip to the country side and by night I was curling up by the fireplace as if nothing ever hurt. Prior to this, each episode would last for about a week. A week postrated in bed and suffering such horrific pain. Since then, whenever I get the feeling a pain attack is coming, I rub the blessed oil. I always, always carry some with me at all times. Hope this helps you. It doesn't hurt to give it a try. I suggest you read the Edgar Cayce cures using this miracle oil. Blessings!


Vitamin B-1 (Benfotiamine)
Posted by Al (Alvena, Sk., Canada) on 09/16/2012

Gatordennis, I have used grapeseed extract, curcumin (an extract of turmeric), gabapentin/Lyrica, alpha lipoic acid, acetyl-l-carnitine, hydromorphcontin and morphine. Nothing has worked as good as ALA and ALCAR although grapeseed extract reduced the need for narcotics ALA and ALCAR ELIMINATED THE NEED FOR NARCOTICS. I still use Lyrica but hope to be off of it soon and just started using benfotiamine. Just a note to those with gluten intolerance, my wife was diagnosed with celiac disease and I had just heard about an old variety of wheat that could be tolerated by celiac's. I bought some whole grain flour made from "RED FIFE" wheat and six months later she had no further indication of celiac disease. Seems the old varieties of wheat have different composition of glutens/proteins that make a difference. My supplier tells me that "MARQUIS" wheat is quite similar and is showing the same results. Al


Vitamin B-1 (Benfotiamine)
Posted by Rae H (Charleston, Wv) on 11/19/2015

I have suffered with neuropathy for about three years and it has become progressively worse within a short time. I do a lot of independent research mostly because it seems the professional community is not aggressive or energetic enough to pursue explanation or core reasons for having this incredible pain and debilitating medical condition. I do see a neurologist and he prescribes the usual lyrica, metanx (prescription type multi-vitamin), pain meds, encourages alpha-lipoic acid, panthenogenic acid (correct spelling?). Not much relief and has recently become much harder to manage the pain. He has prescribed lido-Caine patches and those are very helpful. Non-addictive and no side effects. Just a route to try. Folks that have this condition I find to be desperate for any kind of relief. I know I am.


Vitamin B-1 (Benfotiamine)
Posted by Dave (Fountain Inn, Sc) on 11/19/2015

Hello Rae H:

On the issue of neuropathy .... I've used AEP (a phosphate). Google "Calcium AEP Nutrition Review" for so many of the benefits of AEP I sometimes use AEP at 4 to 6 a day to help flare ups. Dr. Robert Adkins used AEP in IVs with his MS patients (see Vita Nutrients, the book, written by Dr. Adkins).


Vitamin B-1 (Benfotiamine)
Posted by Pam (Nm) on 01/24/2017

Digestive enzymes will help absorb. I started them because of the lack of acid in my stomach. You might try them. All the best to you.


Vitamin B-1 (Benfotiamine)
Posted by Maricela L. (Usa) on 03/01/2018

It would be such a blessing if you would share the name brands of the B12 supplement you have found to be effective.



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