What is the cause of your neuropathy? Neuropathy is ususally a symptom of a greater problem. My daughter 6 years ago at the age of 18, experienced a sudden onset of periphrial neuropathy in both feet which quickly over the course of 2 months extended up her legs to her knees. She was in a wheelchair. After 6 months, her hands lost all movement. Within days of onset, her muscles wasted to nothing. (Yes, we were terrified! ) We did everything we could using western medicine, including every test 26 specialists at both OHSU and the Mayo clinic could throw at her. After all was said and done, they had no answers. No diagnosis.
I was a desperate mother who searched the internet for any clue to her mysterious and highly rare illness. I spent 1000s of hours researching every medical website I could find. I typed in her symptoms - and got nothing.
Then I decided to go through her pile of medical records and research every test, every word I didn't know to find exactly what they tested her for. Long story short here..... She had gluten ataxia! We eliminated all gluten from her diet. Within a week her energy levels started returning. We took her to a couple of Naturopath docs, who recommended she also go off of dairy, eggs and soy.
This story has a fantastic ending! She walked without leg braces at graduation, went on to graduate from college, where she continued to heal! She is healthy today! No nerve damage. No remaining paralysis. Full use of hands and feet. She is comletely healthy! She just stays away from toxic gluten and the other allergens.
Gluten Ataxia is becoming a very common ailment. You can have it without digestion issues. It can be "silent" If you have "brain fog", you could have it. It is an extreme reaction to gluten proteins.
check this website for more information http://glutendoctors.blogspot.com
They have up to date information.
Gluten-Free Diet for Neuropathy
Research ideopathic gluten sensitivity. I have had relief from kicking gluten from my diet!! I tried all the other stuff & got some relief BUT this was relief and it happened within days of being diligent about NO GLUTEN.
This is a followup to my previous post, and I am happy to report that a gluten-free diet has allowed my nerve damage to heal!
Long story short, it turns out that I am gluten intolerant. The main symptom was peripheral neuropathy, no IBS or anything like that.
In the last 6 months, my nerve damage has healed, and I have stopped taking the supplements. I also note that some of the supplements contain gluten so I had to adjust that.
I now take no supplements, I am simply very strict gluten free. Even inhaling flour while baking or crumbs in the toaster will cause a reaction with the same foot pain and extreme fatigue of before. I do, however, recover within 24 hrs of any accidental exposure.
To anybody who is or believes they are gluten sensitive, and concerned about being tempted by gluten foods, I promise, if you go gluten-free and start feeling better, you will NOT be tempted by that stuff. You will look at donuts and cakes and see nothing but a pile of poison......
Again, I believe that acetyl-L-carnitine and R-lipoic acid helped with my nerve damage, but be careful about making sure you find gluten-free products.
My ex had severe neuropathy and many more problems. He decided to go on his diet as he found out that he was a celiac at age 55 but didn't bother to follow the diet. :) He finally tried his gluten free diet at 61 and after just two days he felt much better. Now three years later he is 99% better. Doesn't have acid reflux, brain fog, out of breath, tired, pain in feet and legs.
About a month ago I came down with the flu so I didn't take most of my supplements until I got better including grapeseed extract (not grapefruit seed) While I was off of the supplements I noticed that my legs were very painful because I take Alpha Lipoic Acid for my neuropathy. Anyways, I started taking the Grapeseed extract again only 2 - 100 mg capsules in the morning and right away the pain went away. IF anyone has neuropathy pain you might want to try the grapeseed extract for the pain. Please let me know if it helps.
Grape Seed Extract
The first natural product/supplement that I tried for peripheral neuropathy (caused by oxaliplatin in chemotherapy) was grapeseed oil and then grapeseed extract in a caplet form with excellent results that allowed me to reduce the amount of hydro morph contin that I was taking by about 40%.
I have told others about it and most that tried the liquid form had stomach upset from it.
I use 50-100 mg three times per day.
(Alvena, Sk., Canada)
A few years ago I read on a discussion forum type thing like this one but have not been able to find the right references. Anyhow, I read where people with peripheral neuropathy (Soles) rubbed in grapeseed OIL before bed and in the morning it was gone. Well, I tried it. In the Morning feet were the same. Next night again. Nothing Next night nothing. Bugger! I thought about it, found it was omega 6. Not the healthiest drink and thought why not. My feet are killing me, even walking on raised ripples in wet sand.
Got a bottle of organic, cold pressed grapeseed oil and drank a big swig straight from the bottle. 3 X a day. The third day no change. 4th morning got out of bed and could not believe it. My sole pain was ABSOLUTELY GONE!! I had 550 ml left from a 1 liter bottle so it worked out that I took 50ml each swig. My soles felt tender with not a tinge of pain and felt like the baby's bottom.
I never took any more from that moment on and it was gone for over a year or more. I could walk on any surface with ease. It came back eventually so slowly that after a couple of years I am about to repeat it.
I'm hoping either Ted or Bill can chime in on this one. It's a rather startling revelation to me and I'm betting to those suffering the same conditions...I spoke to my liver Dr. yesterday in a hospital in Boston and she said that in the over 2,000 patients she has treated, she has never heard of hepatitis c causing neuropathy with one of her patients. I've been led to believe that hep-c caused my neuropathy, as I don't have diabetes and have been tested 3 times...and never had chemo.
(San Fernando, Philippines)
(San Fernando, Philippines)
(San Fernando, Phillipines)
(New York, US)
(San Fernando, Philippines)
Try iodine for the neuropathy. It completely restored nerve function in my foot in two months. I used ALA for a year with improvement but no complete resolution. 20 drops of the 5% solution in coffee or milk.
(In The Valley, Ca)
Hi Mark, I hope you are feeling much better now after several years.
I know I'm a bit late in the game and I don't know if I am quoting something that I shouldn't be from the web but it comes from world-renowned Dr. Russell Blaylock who is a retired neurosurgeon. He found some success in treating P.N. with L-Theanine in higher doses. I quote him: "I tried L-theanine, a natural substance isolated from green tea, on a person suffering with unrelieved, intense postherpetic pain (which sometimes follows a shingles infection). By the next day, my patient dramatically improved and by the second day showed 90 percent improvement."
"L-theanine is a mild stimulant for glutamate receptors and keeps glutamate from full activation, which acts to tame excitotoxicity. L-theanine has a good safety profile, even in very high doses.
Suggested dose: 200 mg three times a day, 30 minutes before meals. It can also be increased to 400 mg three times a day if needed.
L-theanine is also helpful with sleep and reduces anxiety/depression. Combined with other anti-inflammatory flavonoid supplements such as curcumin, quercetin, resveratrol, luteolin, hesperidin and ellagic acid, the results can be even better."
I have neuropathy in my toes and the balls of my feet and diagnosis said it was creeping back up my lower legs and had some loss of feeling in my geet and the bottoms of my feet. I had gotten pretty much rid of this before using vitamins. But this time it wasn't really working. I was trying to get back on a vegan diet which should have helped, but I was still failing and eating meat. I was looking for help until I could let the diet help. For over 2 years I haven't taken the statins that may have caused or contributed to it. Also, I am overweight.
In any case, my toes and feet were swelling and turning angry red, and often felt like they were on fire. My naturopath was out of town, but she emailed me and said since there was swelling she would send me to the ER or 24 hour clinic, as it might be heart related. Not wanting to expose myself to the purveyors of statins, stents, and quadruple bypass surgury, I researched further, looking for relief. An ad on earthclinic mentioned laser therapy for peripheral neuropathy symptom relief, so I clicked on it. Found a practitioner near home, and made an appointment.
He said the swelling was probably connected to the neuropathy, and that treatment might help but he couldn't guarantee it and that it was not a cure for neuropathy, but a reliever of symptoms, and that it would probably take some time to see results. He prescribed 6 weeks of treatment at a price I could not afford at this time.
I went back online hoping to maybe find Mexican doctors that could do it for less, just like Mexican dentists have repaired my teeth for way less. Didn't find any, but I did find ads for low level lasers that were way less powerful than the one the doctor had. People buy these to help their horses, dogs, and other animals. They also use these lasers on themselves. I had been told these weaker lasers don't work.
I have read there is zero change using lasers, period.
I bought one for $199. The first time I used it I saw immediate improvement, with swelling going down. 3rd treatment even more improvement.
I got the laser last Saturday. Today, Friday, less than a week later, with 4 total treatments and my feet are nearly normal. The neuropathy numbness is still there in my feet, but it seems to be getting better too.
I'm still getting prickles, but I remember when I got rid of the neuropathy before, that I had to go through some prickles and electric zaps just like I experienced when I was getting the neuropathy.
But the difference is like a miracle.
(Las Vegas, Nv)
Estrogen can morph into neurotransmitters. So on some level you could say it is a neurotransmitter. As hormone levels drop neuropathy can occur. Neuropathy in women can start within a decade of approaching menopause. There are quite a few studies out on estriol and Parkinsons as well.
If you know a senior lady who suddenly developed some neurological condition who is trying to find some answers, a good question to ask is "Did you recently stop taking estrogen?" I know of several women who developed neuropathy after 30 years of estrogen therapy- just stopping. There are some natural safer ways to increase estrogen, I understand.
What helped me was a very small daily dose of natural thyroid (not the synthetic). I tested fine but my body temp was always around 96.8. Subclinical thyroid conditions do exist and if there is neuropahy it is worth researching as well. I did not know it would do this. I was just tired of wearing a winter coat at work and shivering in the desert.
If iron is low neuropathy can occur. My experience is that the homeopathic Carc Carb 6x or blackstrap molasses (huge section in this site) was real helpful. I used to go to a Dr. In Pa who demand that you take blackstrap molasses every day. If you did not he could tell.
Anyway it is worth doing a search on the following: "Estrogen Neuropathy" "Menopause Neuropathy" "Anemia Neuropathy" "Hypothyroidism Neuropathy" "Estriol Parkinsons" Estrogen Neurotransmitter"
Another thing that can help is searching "Dosha Test" If the body type is Vata neuropathy can occur. There are ways to make corrections to diet and sleeping schedule that can bring relief.
Here's a heads up for you the reader...
I heard about "Frequency Specific Micro Current "therapy from my chiropractor... I looked into it and called about 10 therapists around the country... 8 told me that they could cure peripheral neuropathy in ONE treatment... I had 14 treatments lasting 2 hours (28 hours).. IT CHANGED NOTHING!
I also had 14 treatments 2 hours each (28 hours) for hepatitis-c and had my enzymes checked at the end and they went UP! By just a few point however... Maybe it will work for you...however!
BETTER BUT WITH SIDE EFFECTS
I just started tasking MSM for my neuropathy pain at 1 gram at night before bed. (I've seen recommendations of 6-20 grams a day.) Coincidentally I just started having diarrhea and black stools. Hard to believe it's from that low dose. However, I do have hep-c..
Any suggestions would be welcomed.. I certainly will stop MSM for several days and see what the result is.
Thank you. BTW the MSM is the FIRST thing that has helped with my neuropathy pain.
My partner also suffered with PN due to his diabetes, he was already taking ACV and CO, this seemed to help his blood sugars , but not the pain.
However literally after the first dose of MSM he got instant relief, he continues to take it but rather on an if and when need basis. Also we read that LECITHIN can help, which he also takes, daily, due to a relative short shelf life. He is so much better.!!! Oh I hope this helps , any one that suffers this puts up with so much.:(.