Neuropathy Remedies

Splenda Related

Posted by Art (Vancouver Bc., Canada) on 11/14/2012

Splenda as I just discovered can cause neuropathy and blood sugar spikes. This is probably the reason why I have come down with neuropathy over the past ten years. It snuck up on me and as I think back this is when I started using splenda because my doctor told me I was excreting sugar in my urine. He told me I was borderline diabetic. I felt the need to post here about this poison splenda and if you just google the name you will find out. I never thought to check it out and only found out about it from watching DR. OZ.

Take care, art


Supplements

Posted by Al (Alvena, Sk., Canada) on 10/20/2013

I read over the entire postings on neuropathy to see if I was missing anything. I noticed that someone posted about MSM and Lecithin being used together and I had noticed that after eating a chocolate bar that my feet would often improve for a while. I have been taking glucosamine with condroitin sulfate and MSM for quite a while for cartilage repair-tears and arthritis-so I added Lecithin to my supplements as well and it seems to be helping. It is amazing how being deficient in one or several nutrients can delay/prevent healing or even cause health problems. Don't discount anything without trying it first. You may get a very pleasant surprise. I have been lucky enough to have had several pleasant surprises with nutritional supplements and am looking forward to more. I have found out that some may not work by themselves and have as a result discovered the value of experimentation. I recommend that everybody experiment to find what works for them. Start with a little and increase if it helps.


Ted's Remedies

1 User Review
4 star (1) 
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Posted by April (Dobbins) on 06/27/2018
4 out of 5 stars

I just had my right knee replaced and my doctor suggested that Ted's cream might help to reduce my pain during the healing process. There were some specific areas that seemed to be numb and tingly. So, that's where I tried it first and to my surprise, the cream made a huge difference!! So much so that I decided to try it also on my feet. I have neuropathy in both of my feet. We haven't quite figured out why but I deal with numbness and tingling in the balls of my feet and around the toes. Little itty-bitty pieces of sand on a floor feel like boulders if I stepped on it. I would rub in the cream on the balls of my fee and on my toes and it reduces that tingling and the "pins and needles" feeling by nearly 80 percent. I do take Gabapentin, which helps in general to reduce those feelings. but I sure am glad that I tried Ted's remedy on my feet. Thank you for doing the research that you did to come up with this cream I Love it for nerve related pain!

EC: Hi, thank you for the feedback!

Can you send us the url on Earth Clinic where you found Ted's cream or list the ingredients so people don't have to fish around for it on Ted's site (https://ted.earthclinic.com)? Thank you!

Replied by Pam E.
(Southern California)
09/18/2020
39 posts

Since her knee had just been replaced via surgery, I doubt the Ted on earthcliinic is the source of the pain cream recommended to April. I still tried to look it up, though, but only found Ted's Pain Cream (which is now changed to Ted's Pain Gel). What it is & how it came to be is shared here: https://tedsbrainscience.com/pages/the-whole-story

Whisperingsage
(Northern Ca)
09/21/2020
47 posts

It has lidocaine in it, which is an anesthetic.


Turmeric

2 User Reviews
5 star (2) 
  100%


Posted by Preston (MA) on 07/27/2021
5 out of 5 stars

Regarding Severe Neuropathy in Feet

I would try turmeric at 500 mg 3 times a day...I use it and have minimal neuropathy pain..It also helps the liver much...


Turmeric
Posted by T Byrd (Milan, Tennessee) on 10/04/2010

I am a caregiver for my 93 year old mother who has neuropathy. I started giving her turmeric for hip pain (cured it 2 diferent times). I ran out and it was 12 days before I could get anymore. I hadn't noticed before I ran out, but, after it got out of her system, she started complaining about her legs numerous times during the day. It dawned on me that she had not been complaining so much of late. Once I got her back on the turmeric, she stopped having the complaints. She hurts in the morning when she first gets up, then virtually none afterward. I give her 2-500 mg a day. I take 3 a day as it greatly helps my arthritis.

Replied by K
(San Antonio, Texas)
02/10/2012

I belive my neuropathy is caused by a course of Leqavuin 2 years ago. It started with a numb big toe and spread out. I've taken b-12 patches, Alpha Lipoic, Lecithin, MSM, acupuncture, Bach remedies, NAC, but what feels like a cure:

This week

5 pieces of Turmeric juiced into my morning carrot juice, along with 2 packets of Liposomal glutathione.

I actually credit the Turmeric more than the gluathione, but the two in combination are alleviating all my numbness and prickling for the last 7 days.

Replied by Janet
(Fernvale, Queensland, Australia)
04/28/2012
5 out of 5 stars

I also swear by Turmeric but my understanding is it needs to be heated and taken in conjunction with black pepper for activation. If I have fresh Turmeric I simmer it for approx 10 minutes but if it is powdered making a tea with boiling water is another way to go, I add ginger, black pepper and agave to sweeten and it is a very pleasant drink. I have this drink daily and the pain relief properties are amazing.

Replied by Al
(Alvena, Sk., Canada)
11/12/2012

I have been using curcumin which is an extract of turmeric. I used one that states that it is a standardized extract. The active ingredient in turmeric that helps is much more concentrated in the curcumin and can directly reduce pain as well as helping pancreatic health.


Replied by Leslie
(New Jersey)
01/25/2014
5 out of 5 stars

The peer reviewed studies found on pubmed.org clearly indicate benfotiamine's superiority over regular thiamine (B-1) for treatment of neuropathy. They also indicate a dose of 300 mg twice per day (total of 600mg) was more effective than half of that dose.

Replied by Prioris
(Fl, Usa)
01/26/2014

Is benfotiamine more for diabetic neuropathy or for neuropathy in general.

I have two people that I recommended taking the sublingual B12 dorm methylcobalamin 5000 mcg once every day. One is a diabetic but was the result of some nurse sticking a needle in the arm damaging the nerves. The other is non diabetic.

This B12 form alone seems to get a lot of positive feedback on the internet. I wonder if adding B1 benfotiamine would make any difference.

I am expecting that they will know if B12 is starting to work in around 2 weeks.

Vitamin B-1 (Benfotiamine)

1 User Review
5 star (1) 
  100%


Posted by Diane (Sherborn, MA) on 01/21/2014

Can anyone tell me what is the differnce between B-1 and Benfotiamine and which is better for neuropathy...I am confused with all the various opinions out there...Thank you very much...

Replied by Mike62
(Denver)
01/22/2014

Diane: Saying that an isolate made in a lab is better than God's Goodies is misleading. Everything they say is misleading. Put 5g nutritional yeast in a green smoothie made from organic baby leaves, chili, and parsley and take every 4 hours. For food eat raw organic produce, the super foods, and some raw grass fed animal products. If you have not been taking d3 then you are very low. Many people get very sick this time of year because of this. Take 5000iu per hour. If you get an adverse reaction stop. Take 5000iu vitamin a from fish liver oil the first day, 10,000 the second, 15,000 the third, 20,000 the fourth, and 25,000 the fifth. After that take 5000iu d3 per day and 25,000iu a per day. Get some k2 from skate liver oil. Hawaiian spirulina has both k1 and k2. K2, a, d, and iodine need to be in the right ratio. Organic produce and grass fed animal products has iodine.

2q&learn
(Southern Ca, Usa)
09/18/2020
39 posts

Mike62: From what kind of plant are the 'organic baby leaves' you refer to for the green smoothy: "a green smoothie made from organic baby leaves" ...? TY!

Replied by Joannem
(Vancouver)
07/17/2016

Benfotiamine is an more easily digested form of Vitamin B1. https://en.wikipedia.org/wiki/Benfotiamine

Replied by Orh
(Ten Mile , Tn)
09/19/2020

2q&learn, ORH here, MIKE 62 was a gamesman, who was on this site years ago. His claim to fame was blowing smoke and he got you from the archives. He smoked lots of folks before D got his number. Beware of double talk. When I get too far out of line, D just flushes my post or I contact her and tell her to do it for me. I know when I'm flirting with the boundaries.

====ORH====

Replied by Tessa
(Okanagan)
09/19/2020

Hi 2q&learn from Southern Ca:

Mike62 hasn't been on this site for awhile, but when he refers to organic baby leaves, I believe it is the organic baby spring mix you can find in the plastic containers at most grocery stores.

If you do an Internet search for baby spring mix, you will come up with various store products - some organic, some not.

Take care!


Replied by Caprice
(Ca)
12/30/2013

My neurologist has recently informed me that supplemental B6 can build up in your system to toxic levels and cause nerve damage. I stopped all supplements immediately. I am now getting some relief from 1tbs unfiltered, unheated, organic ACV mixed with unfiltered, unheated, organic honey in a glass of hot water, 3x per day. Do your research before you make changes or try something new :)

Vitamin B-1 (Benfotiamine)
Posted by Eugene (Portland, Oregon) on 04/15/2011

Hi Folks:

Benfotiamine appears to work to reverse Neuropathy, such as those who can no longer feel their feet, etc. Please read all about it here:

http://benfotiamine.org/

Although you can purchase it at the above website, I got mine from beyondacenturyonline.com because it is cheaper (bulk powder).

Take Care, Eugene

Replied by R.
(Dallas, Texas)
08/19/2011

Eugene, Its been 4 months since you started, how is this Benfotiamine working for you? I am interested in trying this out! I have tried everything else and nothing seems to work for very long periods of time! Thanks in advance!


Vitamin B-1 (Benfotiamine)
Posted by Richy (Sunland, Ca) on 10/15/2009
5 out of 5 stars

I have found that B1 and B12 works well on neuropathy. There are certain types of B1 that are fat soluable (benfotiamine) so it doesn't just go out of the body, but the body can actually hold onto the B1 and use it to repair the nerves. There is also B12 that can be found that is methylcobalamine or methyl B12.. The body has to convert the B12 to methyl B12 before it can use it, thus getting it already converted means the body can use it. You can find these online, not usually in health food stores.

Replied by Kelli
(Sioux Falls, Sd)
04/18/2010

Definitely try B12 for neuropathy. It must be methylcobalmin and must be sublingual (under your tongue lozenges). It is unfortunate that you can't list brands because there are several brands out there but only two that I have found that are really good. I suspect it is the quality of the methylcobalmin. You must be consistent with taking it everyday but eventually the neuropathy will get better. It takes some time so be patient but it definitely works. B12 is water soluable so you don't have to worry about getting too much, your kidneys will simply remove the excess.

Replied by Lilly
(Washington, D.c.)
05/12/2010

If Kelli could please email me the brands of b12 which you have found most effective, I would appreciate it. Email is [email protected]. Thanks

Replied by Cindy
(Buckhannon, West Virginia)
05/18/2010

I just wanted to comment on the B12. This is my first time on this site. My friend told me about it. I thought I would check it out. I have neuropathy. No doctor will diagnose why though. I do however have a TPO count of over 1000. TPO is the level of thyroid antibodies (which will eventually lead to Hashimotto's disease). Anyway, since my TSH level isn't high yet (which would mean hypothyroidism), they won't diagnose me with it. So, I did some research on my own. I am 29 now but the neuropathy started when I was 20. I didn't go to the doctor about it until I was 27. They put me on B12 shots. I did that weekly x 4 wks. My count went down! Eventually the number came up. Anyway, when my endocrinologist mentioned Hashimotto's, I did some research and found that Hashimotto's causes everything that wrong w/ me--neuropathy, B12 deficiency, Vitamin D deficiency. For some reason, Hashimotto's affects the lining of your stomach and you're just not able to absorb the B12. So, in my case, I can't take supplements--they won't work. I have to just keep taking the B12 shot until some brilliant doctor finds a cure for Hashimotto's disease (which I don't have, even though they didn't check my T4 count to make sure it was jiving w/ my TSH). I have found doing my own research is much cheaper & more beneficial.

Replied by T
(Maryland, Usa)
05/18/2010

Your antibodies are a big red flag for Hashimoto's. How are you so sure you don't have Hashimoto's? What kind of ignorant doctor is trying to diagnose Hashi's by TSH levels?? Your TPO is way higher than mine was. Did you have anti-TG Ab testing as well?

I highly recommend Dr. Datis Kharrazian's thyroid book for those with Hashi's (or suspected Hashi's). That is the one that finally put many pieces of the puzzle into something that makes real sense.

Re: B12 - I take a sublingual B12.

Replied by Cindy
(Buckhannon, Wv)
08/17/2010

To FU on my 5/18/10 post... Well, my mystery hasn't gotten any clearer. I am now getting neuropathy in my hands. I switched doctors and this one isn't much better. In the beginning he was going to run all these tests b/c my previous doctors had "completely missed the boat. " So, for my first test he scheduled a thyroid ultrasound. After that he said he would address any possible circulation problems. The US showed that I have mutliple nodules on both sides of my thyroid. I thought this doctor was really going to be the answer. Boy was I WRONG! I went back for my FU appt last wk. No more tests. All my levels are "stone cold where they're supposed to be. " So, his answer was to increase my Gabapentin. So, now I'm more tired that before (on top of feeling awful normally). I just don't know what else to do. There has to be a reason I feel like this (neuropathy in feet & hands, tired, fatigued, generalized aches & pains throughout my body, and per my previous post TPO >1000, B12 deficiency, Vit D deficiency) and no one seems to care... They just want to give me a pill. The closest holistic doctor is 2 hrs away & costs $190 for the first visit & FU visits cost $60-$190 every visit after that depending on your diagnosises. I live practically in the center of WV. Does anyone have any suggestions? I just don't want it to be something that could have been prevented from getting worse.

Replied by T.
(Maryland, Usa)
08/18/2010

It strongly sounds to me like you have Hashimoto's. Please check out Dr. Datis Kharrazian's thyroid book; it's excellent. Right up front I'll tell you that you'd need to go completely gluten-free. There are tons of resources online to aid you in doing that (seems tough at first but it's certainly manageable - I did it in April because of Hashi's and it has definitely helped me). Check out celiac sites for lots of help and advice on going gluten-free, and do read the book if you can as it's really loaded with detailed information and practical advice. Best of luck, and update us again soon!

Replied by T.
(Maryland, Usa)
08/18/2010

I should have expanded the thread before I replied... I see I already replied to you back in May ;) Well I just gave you the same advice as I did then, only I'll add that I am even more of the belief that it is Hashimoto's as you've got the nodules now as well. The longer you let this attack your system, the worse off you are going to get. You already have obvious autoimmunity going on and this predisposes you to other autoimmune problems such as rheumatoid arthritis and lupus. Please check out the book; I believe your answers are there but it's down to you to learn and make the changes you need to make.

Replied by Cindy
(Buckhannon, West Virginia)
08/20/2010

Thank you T from Maryland. I just looked up that book. It seems I have already bought it (I probably bought it after you replied in 5/10) but haven't read it yet (my memory isn't that great anymore either). I'll make time this weekend. Thank you for the advise on going gluten free. I'll try anything at this point. Thank you again.

Replied by Jc
(New City, New York)
07/07/2011

You might want to try food grade Hydrogen Peroxide 7%. works excellent with epsom salt. you need 2 cups of 7% peroxide to 1 cup of epsom salt. soak in a hot tub of water 113degree. you can soak for a min. of 25 min will work longer 1 hour if have time. when filling tub they sell flat thermometers in hardware store best also to buy a small round fan and I hung it on th bathroom entrance door blowing towards the tub. it maks it extremely comfortable to relax longer. you best get a ground falt electrical breaker home depot. it adapts between outlet and fan cord for safety, the unit is yellow my lasy go to model buy a swim cap made out of soft material this will prevent your hair from bleaching. good luck, it works excellent.

Replied by Monique
(Elllington, Ct)
10/26/2011

Hi there, I have terrible neuropthy in both feet and the pain has become unbearable. I've tried lots of "cures" and keep searching and researching, It is by no means a cure, but I have been going to the YMCA on Mondays for 1/2 foot massages. It doesn't take away the pain, but there is something about a gentle foot massage that feels good to me. My children, 7 and 8 also massage Mom's feet every night before bedtime. My feet are incredibly sensitive to touch, but just knowing someonone is caring about them helps a tiny bit. I tried to get my insurance to cover the foot massage at the YMCA but of course they wouldn't. Any other suggestions anyone has, would be greatly appreciated. Also, I live in Ellington, CT does anyone know of a support group in my area? I was thinking of starting one myself but don't know the first things and really wonder if I should undetake it with how I feel. I don't want to get together and just complain of our pain but would like it to be a positive forum to exchange helpful hints to one another.

Thanks, Monique

Replied by Juliamary
(Johannesburg, South Africa)
12/09/2011

People who have burning feet - do you realise that it can be caused by too much caffeine? Caffeine prevents the absorption of vitamin B, so that even if you are eating well and having vitamin B supplements, that vitamin B is not being absorbed. The reason why some sufferers are not getting any better when they take various remedies may be because they are drinking eight cups of strong tea or coffee a day! Give it up and see the difference it makes.

Replied by Gatordennis
(Bradenton, Fl)
03/24/2012

I just finished reading the thread on "Remedies for Severe Neuropathy" where I noted the many cure/relief suggestions. My pain started in 1 foot 13 years ago before taking statins, moved to both feet, to both lower legs, to both hands, both forearms, both ears, across my face through my cheeks over the last 13 years. It is like my feet are freezing to death while they are setting in a campfire.

I asked doctors if it could come from fire ant bites, walking barefoot on new Berber (contains (formaldehyde), insecticides/herbicides, & every thing else I could think about that may had changed just before the pain started (none of them were accepted as a reason). I often do not feel other pain from cuts, insect bites & etc.

I have been through 3 neurologists & 2 nerve tests - no help. The prescribed meds (each one taken 6 weeks) either kept me awake for days, slept for days while getting no relief from the agonizing pain. I do not use caffeine, have been on meat/cheese/leafy vegetable diet for 2 years (no gluten). I have tried MANY salves, even mixed in cayenne pepper (some for race horses & other old time remedies). I take 5000 mg of daily D3 for 2 years now (started with 50, 000 mg of D-2). I take multi-vitamin, fish oil, sublingualB-12, tried the Co-Q 10 for years, etc etc.

Nothing has worked or given relief. My 120 mg of daily Oxycodone (for neuropathy & 3 year back pain) only make life bearable. I relate with all of you for your suffering. I will give Alpha Lipoic Acid & Lecithin a try. I am at my wits ends & getting desperate for anything to cover over the PAIN.

Replied by Steve
(Las Vegas, Nevada)
03/24/2012

You may want to consider googling energy healers. There are many that may be able to reduce your pain significantly.

Replied by Timh
(Louisville, Ky, Usa)
03/25/2012
2083 posts

Gatordennis, experiment w/ different medicinal oils like Flax, Borage, Black Currant, Evening Primrose because they influence the body in different ways. Also try an homeopathic nerve tonic. The natural alternative to gabapentin is the amino acid GABA (Gamma Amino Butyric Acid) is very benificial for nerves. Since many cases of PN are caused by some type of toxicity, I would definitely try some detox methods like Oil Pulling, Detox Foot Pads for starters.

Replied by Hertsman
(Feltham, Middlesex)
07/24/2012

So many different suggestions on this thread, difficult to know what to try. So many folk talking about feet but can't find any mention of lower back pain neuropathy? The pain is awful, horrible sore pain that won't go away. I've read that r-lipoic acid is better than the standard lipoic acid. Can anyone give advice for nerve pain in lower back. Any help greatly appreciated. Thanks

Replied by Steve
(Las Vegas, Nevada)
07/24/2012

EFT works very well many types of back pain. Here are the points you tap as you focus on the pain:http://www.freewebs.com/stevelevine/efttappingpoints.htm

Replied by Bill
(San Fernando, Philippines)
07/25/2012

Hi Hertsman... You could do no better than to research everything written on ALA by Dr Burt Berkson. He has been researching ALA since the late 1970s and is now a world authority on the use of Alpha Lipoic Acid.

Dr Berkson also makes mention of the type of ALA that he prefers to use -- and that is the RS form of ALA and not the R form. His reasons for this are simply that to manufacture the R-ALA form entails many more chemical processes and steps than it takes to make the RS-ALA form and therefore the R-ALA form will contain, for instance, more trace hexane as chemical residues which are not good for the liver. The manufactured R-ALA form is also much less stable than the RS-form. The R-ALA form is also about 10 times more expensive than the RS-form.

Dr Berkson also advises that the best and purest forms of RS-ALA are made in Europe and not in America or China -- so a good European brand of RS-ALA is what you should use.

Dr Berkson is well-known for using ALA as an anti-oxidant adjunct in his therapies to help cure cirrhosis, hepatitis and cancers. His record as an honest researcher and doctor speaks for itself.

Replied by Maya
(Silver Spring, Maryland, Usa)
08/10/2012

After having suffered several acute lower back pain episodes and many visits to the doctor that helped little except the little releif from the strong pain killers prescribed. One night, during a really bad excruciating episode and out of desperation I took a good amount of castor oil and rubbed it on my back. Covered the area with a clean towel and lay on my stomach. The whole area felt immediately very warm and I experienced almost instant relief. It was a miracle! I was almost pain free in the morning. Even went on a 2 hour car trip to the country side and by night I was curling up by the fireplace as if nothing ever hurt. Prior to this, each episode would last for about a week. A week postrated in bed and suffering such horrific pain. Since then, whenever I get the feeling a pain attack is coming, I rub the blessed oil. I always, always carry some with me at all times. Hope this helps you. It doesn't hurt to give it a try. I suggest you read the Edgar Cayce cures using this miracle oil. Blessings!

Replied by Al
(Alvena, Sk., Canada)
09/16/2012

Gatordennis, I have used grapeseed extract, curcumin (an extract of turmeric), gabapentin/Lyrica, alpha lipoic acid, acetyl-l-carnitine, hydromorphcontin and morphine. Nothing has worked as good as ALA and ALCAR although grapeseed extract reduced the need for narcotics ALA and ALCAR ELIMINATED THE NEED FOR NARCOTICS. I still use Lyrica but hope to be off of it soon and just started using benfotiamine. Just a note to those with gluten intolerance, my wife was diagnosed with celiac disease and I had just heard about an old variety of wheat that could be tolerated by celiac's. I bought some whole grain flour made from "RED FIFE" wheat and six months later she had no further indication of celiac disease. Seems the old varieties of wheat have different composition of glutens/proteins that make a difference. My supplier tells me that "MARQUIS" wheat is quite similar and is showing the same results. Al

Replied by Rae H
(Charleston, Wv)
11/19/2015

I have suffered with neuropathy for about three years and it has become progressively worse within a short time. I do a lot of independent research mostly because it seems the professional community is not aggressive or energetic enough to pursue explanation or core reasons for having this incredible pain and debilitating medical condition. I do see a neurologist and he prescribes the usual lyrica, metanx (prescription type multi-vitamin), pain meds, encourages alpha-lipoic acid, panthenogenic acid (correct spelling?). Not much relief and has recently become much harder to manage the pain. He has prescribed lido-Caine patches and those are very helpful. Non-addictive and no side effects. Just a route to try. Folks that have this condition I find to be desperate for any kind of relief. I know I am.

Replied by Dave
(Fountain Inn, Sc)
11/19/2015

Hello Rae H:

On the issue of neuropathy .... I've used AEP (a phosphate). Google "Calcium AEP Nutrition Review" for so many of the benefits of AEP I sometimes use AEP at 4 to 6 a day to help flare ups. Dr. Robert Adkins used AEP in IVs with his MS patients (see Vita Nutrients, the book, written by Dr. Adkins).

Replied by Pam
(Nm)
01/24/2017

Digestive enzymes will help absorb. I started them because of the lack of acid in my stomach. You might try them. All the best to you.

Replied by Maricela L.
(Usa)
03/01/2018

It would be such a blessing if you would share the name brands of the B12 supplement you have found to be effective.


Water Cure

Posted by Diane (Framingham, Ma) on 01/31/2013

I have a question for anybody. I have peripheral neuropathy. After trying many, many remedies, I have recently connected with a person that says water salt and sugar cures just about anything. He says he was schooled by Dr. Batmangheli (SP?), who discovered the water cure. This person I spoke to has a site called "Goof proof health.com. " It's something that I am doubful about... But... Thanks

Replied by Oldriska
(Prague, Czech Republic)
02/01/2013

Hi Diane, I'd be a bit suspicious about treating neuropathy with water with salt and sugar. I have neuralgia in my face and have tried many treatments and read a lot on the subject of neuralgias/neuropathies. Sugar is not recommended for nerve pain and salt can increase blood pressure which conseqently can increase pressure on the nerves. I think if it was this easy to treat the condition there wouldn't be all the people suffering with chronic nerve pain. Still, if you give it a go and have good results with it I'd be only happy to hear your feedback and change my opinion! Take care, Oldriska

Replied by Diane
(Framingham, Ma)
02/01/2013

Hi Oldriske, The person I told you about tells me he has cured MS, Diabetes, cancer, neuropathy and other big issues with this therapy. Part of his logic is when you go to a hospital they give you saline solution which has water, salt and sugar. He has a point, but... Thanks much for the reply.

Replied by Lauri B
(Boise, Idaho)
02/02/2013

What is the cause of your neuropathy? Neuropathy is ususally a symptom of a greater problem. My daughter 6 years ago at the age of 18, experienced a sudden onset of periphrial neuropathy in both feet which quickly over the course of 2 months extended up her legs to her knees. She was in a wheelchair. After 6 months, her hands lost all movement. Within days of onset, her muscles wasted to nothing. (Yes, we were terrified! ) We did everything we could using western medicine, including every test 26 specialists at both OHSU and the Mayo clinic could throw at her. After all was said and done, they had no answers. No diagnosis.

I was a desperate mother who searched the internet for any clue to her mysterious and highly rare illness. I spent 1000s of hours researching every medical website I could find. I typed in her symptoms - and got nothing.

Then I decided to go through her pile of medical records and research every test, every word I didn't know to find exactly what they tested her for. Long story short here..... She had gluten ataxia! We eliminated all gluten from her diet. Within a week her energy levels started returning. We took her to a couple of Naturopath docs, who recommended she also go off of dairy, eggs and soy.

This story has a fantastic ending! She walked without leg braces at graduation, went on to graduate from college, where she continued to heal! She is healthy today! No nerve damage. No remaining paralysis. Full use of hands and feet. She is comletely healthy! She just stays away from toxic gluten and the other allergens.

Gluten Ataxia is becoming a very common ailment. You can have it without digestion issues. It can be "silent" If you have "brain fog", you could have it. It is an extreme reaction to gluten proteins.

check this website for more information http://glutendoctors.blogspot.com

They have up to date information.

Replied by Diane
(Framingham, Ma)
02/03/2013

To Laurie B from Boise, Idaho. Would you please forward me the diet that you used for your daughter. I will indeed try it. Confused about 100% gluten free diet.

Do you know what caused your daughters neuropathy? I had stage 4 liver chirrosis, brought on by hepatitis c. I got rid of the chirrosis, but still have hep-c. Congratulations to your daughter.

She is lucky to have a mother who would not take no for an answer. God Bless.

Replied by Char
(Texas)
01/29/2018

Please share what she could eat. I'm currently having numbness in feet and lower legs. Thank you!


Wet Soap Applied to Feet

1 User Review
4 star (1) 
  100%


Posted by Julie D. (United States) on 08/09/2019
4 out of 5 stars

Bar of Soap (place in water, and when wet, rub on feet) I walk a lot and I had the worst tingling, prickly feeling and pain in my feet lately, and a stubbed toe! I think I overused them in the heat too. I could hardly walk, it felt like I was walking on sharp glass! I remembered a bar of soap has something in it, that helps restless leg syndrome, so I decided to try rubbing a wet bar of soap on my feet all over (dunk the soap in water and keep it wet so it rubs on easily). I took a couple ibuprofin too, after rubbing the soap on my feet! My feet felt soooo much better! I couldn't believe it! It's worth a try! I used Coconut Dial soap. You may have to reapply it after awhile too.



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