Hello, I have Primary Progressive MS, and unlike most people I know what started it. I used to drink Aspartame sweetened diet soda. In 2004 I started to have significant neurological symptoms, numbness, severe word sluring, loss of muscle control and hot flashes in my left arm. I saw at least a dozen doctors and spent 4 days in the hospital, no one could figure it out. Then in May I went to a Chiropractor and he convinced me to give up Diet Coke, which I was drinking about a 6 pack a day. Immedieatly the symptoms started disappearing and within 2 weeks they were completly gone, except my right thumb and 2 adjacent fingers had some numbness, they felt like anything I touched was through cloth. A follwup MRI showed that I had lots of damage to my brain, and much of my cerebellum was gone (the nerves that control the fingers are in there). I continued to push for a real cause and in December I was diagnosed with MS by a doctor of neurology who was also a professor of Neurology at the University of Miami.
She said I had R&R MS, and I disagreed because I said that I never had a relapse or remission. In any case I did not take anything and seemed to be fine except for the numbness in my fingers. Then 5 years later I started to experience weakness in my right leg, which I attributed to Planta Fascitus which I had in my right foot. I went to a podiatrist and he fixed the foot, and I then went to a physical theripist to strengthen it, she said that the problem was neurological. I than went back to a neurogist and he proclaimed I had MS. Over the next 3 years I steadily declined, never having a relapse or a remission. I saw 3 more neurologists and they all said I had MS.
I tried the Wahles Diet, lots of supplements, the Swank Diet, and acupuncture, all to no avail. Then last week I got a prescription for Low Dose Naltrexon (LDN). I initially got my Doctor to write it for 4.5 mg, but the pharmacist at Skip's Pharmacy in Boca Raton told me to start with 1.5 mg, then after 30days up it to 3 then after 30 more days go to 4.5mg.
Although it has only been a few days already I do not get fatigued by midmorning and my right leg does not cramp up or shake a lot in the morning, like it was. My disease progresses slowly, but I am hopeful that it will now stablize.
I have now retired to Costa Rica, where I got a Doctor to write the prescription for LDN. Since I go back to Florida to visit frequently I hope to be able to keep up the LDN.
I need of brochure and or other educational material on myelopathy and M.S. for a person in a remote village in India who does not have internet access. I will appreciate if you could put his name on your mailing list and send any info to him at:
EC: Dear Mathura Bhatta: You will likely get the best information on these subjects by searching on sites like wikipedia.com and medscape.com and then printing out this material for your friend!
I have had MS for 10 years now. I take the beta seron shot every other day. Well I had a attack a few years back and the steroids did not help. Scared ....I decided to try from the vitamin store a jar honey that contains bee venom. It worked wonders for me i was completely healed within a week. I currently use 2 brands whichever is available at the time of my attack. 1. Actiflex Plus by Comvita....this one is harder to find www.comvita.com 2. Nectar Ease Distributed by henneybee thareapy 1-866-289-9233. I really believe they worked for me!
(Avon Lake, Oh)
Hi all! I was diagnosed with MS 14 months ago, I had a rubbish year, needed steroid every 3-4 month, havent been able to work as I constatly have problem with fatigue, pins and needles and pretty bad numbness in my feet, bladder dysfunction, constipation, weakness and balance trouble, difficulty with walking, blurry sight with one eye and lots of other symptoms.
Steroid works but every time I get some, by the time I start to get back to normal, the problems slowly come back and I'm going down within two month again. It's very depressing. Now, I'm trying to be positive but right now I can't even walk again for ten minutes without sitting down for a rest. When I was diagnosed I was also told that I have EBV and they couldn't really tell 100% that my symptoms are caused by ms or EBV but most likely ms I guess.
I have been reading about Hydrogen Peroxide therapy for about two weeks and it gave me so much hope that I decided to try it. I am on 14 drops today now, climbing up to 25 and then do the whole protocol as it's in the books... I was wondering if anyone with the same problems has tried HP therapy? Please would you share your experiences with me, and maybe give me a little hope that I will get better one day. I am only 30 but I feel like my life stopped a year ago:-( I know I can't expect anything in a couple of weeks but I believe in this now so much that I tell myself every single day that this stuff will help me and I'm willing to do, even be patient for six months for results as long as I can walk, and after if I get better I am going to drink or inhale hp for the rest of my life.
Please give some good news here dear everyone or Ted! This site is great by the way!
I wish you all good health, and I'm looking forward to some answers. Also here's my email if anyone would share their experience with hp therapy in private orsika(at)hotmail.co.uk
(Calgary, Alberta, Canada)
(Exeter, Devon, England)
(Syracuse, New York)
(Denver, Co, Usa)
(Fountain Inn, Sc)
I am trying HP added to distilled water to treat my wife who is disabled and unable walk. I am trying 35% hp in distilled water/6 drops per 6oz once per day. I would appreciate any recommendations. She seems to be more mentally alert and aware. Have been using for about a month and just recently increased from 3 to 6 drops.
(Barrie, Ontario, Canada)
MS (Multiple Sclerosis) Remedies Needed
Inclined Bed Therapy (IBT)
I would like to suggest people with MS look into Inclined Bed Therapy, which by definition, is the process of sleeping on a bed that is inclined by 4 to 6" at the head of the bed so that the entire body is sleeping on an angle(not just the head, or top half of the body, like with a pillow). The easiest way to do this is to put risers(square, plastic or wood blocks) under the two posts at the head of the bed.
Inclined Bed Therapy takes the pressure off the spine, allowing circulation into the brain stem, allowing new stem cells to develop. People with MS that have practiced IBT nightly for several months report MS symptoms going into remission. There are several websites dedicated to Inclined Bed Therapy and several testimonials, even one man that claims he can walk again due to IBT after only 6 months.
Some of the other reported benefits of IBT include sleeping better through the night, reduced back pain, reduced snoring, reduced sleep apnea and reduced acid reflux, reduced need to urinate in the middle of the night(due to gravity separating the heavy particles from the water particles forcing more water elimination through the lungs as oppose to the bladder). For testimonials regarding many other benefits to sleeping this way, refer to IBT listed here on earthclinic and other websites online, or refer to Andrew K. Fletcher, he is the original person trying to help get the word out. He claims that even the Egyptians, who were brilliant, knew to sleep this way!
If you do have MS, and decide to give IBT a try, please talk to your doctor first and report back your experience here to help others.
My wife was diagnosed with MS seven years ago. The Neurologist started treatment with Rebiff and ocasionally she had to go to hospital to receive a cortisone drip. She had constant headaces, fever and spasms after the injection. She was only allowed to use Panado as a pain killer. (Sometimes up to 8 every day) As time progressed and relapses ocurred the spasms headaces and body pains worsened to such an extent that she could barely walk. Speech and bladder controll was also severely affected. She was introduced to LDN little more than a year ago. We started with a daily dose of 2mg after 9 pm, and she is now on 4. 5mg per day. She has no more headaches, never had a spasm again and can walk short distances without any aid. Her speech and bladder controll also improved. Although the MS caused a lot of damage the LDN improved her quality of life to a great extent. Pity we did not know about LDN sooner
Low Dose Naltrexone (LDN)
My husband (aged 46) was diagnosed with MS about four years ago. Instead of starting the toxic and very expensive traditional MS meds, we decided to get Googling and found LDN. He has an MRI once a year and for the past three and a half years his disease has not progressed. Many of his lesions have gone or are inactive. No new symptoms and no increased disability. He has been taking 4.5mg of LDN for the whole three and a half years so it doesnt take a rocket scientist to realise it`s the LDN keeping him healthy. I urge anyone with an autoimmune disease to investigate and try LDN. Cheap, safe and no nasty side effects. He`ll never take anything else! As a bonus, he has not had a single cold or sniffle the whole time!
EC: Read more about LDN: http://en.wikipedia.org/wiki/Low_dose_naltrexone
Low Dose Naltrexone (LDN)
Low Dose Naltrexone is being used by people with MS (and other conditions) to stop the progress of the disease. Regrettably it does not seem to work for absolutely everyone and does not give much if any improvement with existing symptoms. It does however give one a chance to try other possible solutions knowing you will not get worse as time goes on.
Low Dose Naltrexone (LDN)
You have nothing written about LDN. I was on the floor drooling this new years day from a bad ms attack, i could not swallow, speak,stand,walk etc. I started LDN www.ldninfo.org and within a months time it reversed all my symtoms and after 8 months im now on my way to walking normal again. LDN works and has been the most effective drug I have ever taken for my MS, my MRI from 2002 had 11 lesions and my MRI from last month after being on LDN for 8 months had zero (0) lesions on the brain. email me for an article I wrote on LDN. email:[email protected] and paulnicholasonline.com
(Virginia Beach, Va)
(Los Angeles, California)
(O! For This Reason.)
I have a sister that has progressive M.S. and the struggle I have with her is she seems to think only the Doctors know what is best to treat M.S. and like one lady wrote in on back in 2006 as to why the cures or remedys are not being broadcast to the world. The answer is that there is know profit in the cure or remedy because they are natural and not man made and therefore know huge profits can be gained. Imagine how much money they would loose for M.S. research or any other major ailment research if it got out that there are simpler inexpensive cures for for major ailments or diseases. The pharmesudical industry is making billions and would stand to loose the same. So why would they want this information pertaining to a cure or remedy broadcast. THINK ABOUT IT. ALL ABOUT THE ALL MIGHT DOLLAR!
In reply to Birdie from Timbucktoo on the Asperger's page:
Birdie from Calgary, Alberta Canada February 4, 2012 at 3:10 pm
Finally after 55 yrs, I realized I had asperger syndrome after seeing a program on TV about it. I suspected mercury poisoning (identical symptoms) so I had all my "silver" mercury dental fillings removed. MUCH relief was obtained doing this. I could not believe the difference! Then I used Olive Leaf Extract capsules to remove the candida yeast and zeolite powder to detox my system of any remaining heavy metals. WHAT a difference! I punted major fear and depression with this stuff!
When I was in my twenties, I had 17 mercury fillings removed because I had symptoms of multiple sclerosis. Within 3 months all symptoms improved and that was 30 years ago!!
What options are available regarding cure/improving MS? Thank you.
Let me start by saying that I do not have MS. In fact, it has been through my own search for a nutritional prevention for Macular Degeneration that I have become familiar with the work of Dr. Terry Wahls, a member of the faculty of University of Iowa Medical School. It was through her newsletter that I began to learn thorough explainations on how nutrition can protect us from chronic disease. Her newsletter led me to look into Oil-Pulling, which led me to this website. Dr. Wahls is a practicing physician who spent four years in a tilt/recline wheelchair before reversing her own MS through a protocol of nutrition and electrotherapy. She is currently conducting a clinical trial of her method. Like I said, I don't have MS, but I don't want anyone else to have it either.
(San Diego, Ca, Us)
(San Diego, Ca, Us)
(San Diego, Ca, US)
(Louisville, Ky Usa)