Hello, I have Primary Progressive MS, and unlike most people I know what started it. I used to drink Aspartame sweetened diet soda. In 2004 I started to have significant neurological symptoms, numbness, severe word sluring, loss of muscle control and hot flashes in my left arm. I saw at least a dozen doctors and spent 4 days in the hospital, no one could figure it out. Then in May I went to a Chiropractor and he convinced me to give up Diet Coke, which I was drinking about a 6 pack a day. Immedieatly the symptoms started disappearing and within 2 weeks they were completly gone, except my right thumb and 2 adjacent fingers had some numbness, they felt like anything I touched was through cloth. A follwup MRI showed that I had lots of damage to my brain, and much of my cerebellum was gone (the nerves that control the fingers are in there). I continued to push for a real cause and in December I was diagnosed with MS by a doctor of neurology who was also a professor of Neurology at the University of Miami.
She said I had R&R MS, and I disagreed because I said that I never had a relapse or remission. In any case I did not take anything and seemed to be fine except for the numbness in my fingers. Then 5 years later I started to experience weakness in my right leg, which I attributed to Planta Fascitus which I had in my right foot. I went to a podiatrist and he fixed the foot, and I then went to a physical theripist to strengthen it, she said that the problem was neurological. I than went back to a neurogist and he proclaimed I had MS. Over the next 3 years I steadily declined, never having a relapse or a remission. I saw 3 more neurologists and they all said I had MS.
I tried the Wahles Diet, lots of supplements, the Swank Diet, and acupuncture, all to no avail. Then last week I got a prescription for Low Dose Naltrexon (LDN). I initially got my Doctor to write it for 4.5 mg, but the pharmacist at Skip's Pharmacy in Boca Raton told me to start with 1.5 mg, then after 30days up it to 3 then after 30 more days go to 4.5mg.
Although it has only been a few days already I do not get fatigued by midmorning and my right leg does not cramp up or shake a lot in the morning, like it was. My disease progresses slowly, but I am hopeful that it will now stablize.
I have now retired to Costa Rica, where I got a Doctor to write the prescription for LDN. Since I go back to Florida to visit frequently I hope to be able to keep up the LDN.