I'm addressing several questions from the posts I've read tonight. I've had Grover's Disease over 30 years. It was dormant for a couple of decades but resurfaced with a terrible outbreak in the last two years. I know now (and have confirmed in articles on the net) that Xrays trigger Grover's--and I've had many xrays because of severe scoliosis and now a shoulder injury--as did the UVA therapy my dermatologist gave me. I had six treatments and between those and a lot of recent xrays, I now have Grover's all over my breasts, midrift, arms and legs. Previously, they were limited to my chest.
I've been horrified to watch it spread before my eyes. I quit the UVA therapy as soon as I realized what was happening; however! I have since read that UVA therapy initially makes the Grover's worse--then makes it better. I've asked my dermatologist to research that.
To those who are going in the sun: STOP sweating! It's dumb!
As for Cilantro, I bought the oil on Amazon because a support group I belong to is experimenting with it and looking for feedback. I've been taking 5 drops a day in water for about 2 months. I can't see any change, other than the spreading of the disease. My derm prescribes both Clobetasol and Eucrisa, which I alternate daily. He just added hydroxyzine. I also use a moisturizing cream that contains both menthol and camphor. So, I'm kind of taking a shotgun approach to this but it's out of desperation.
What's new about the appearance of the Grover's is that I'm developing purpura--the purple hematomas (for lack of a better description) all over my chest, breasts, arms and I suppose my legs will be next. I've seen nothing in print that links Grover's to stress--but I'm here to tell you I believe stress is a major trigger for me. I'm under tremendous stress, facing open spine surgery soon, and my derm told me he now agrees with me. We believe stress and the frequent x-rays have a lot to do with my progressing flares.
The only drug I had a GREAT response to but don't take more of because of its negative effects is PREDNISONE. I took it for 15 days and had a dramatic clearing of the Grover's--but I've had a terrible progression of the disease since then (this past summer).
I wish that more clinicians and researchers would take up the cause and find more effective treatments for us sufferers of Grover's. Until then, keep sharing.
My dermatologist says that stress plays a large part in Grover, and I believe this, as symptoms appeared at the time my Mother was diagnosed with breast and lung cancer. Being an only child, it was a stressor to the max, and after her passing (3 years later), the settling of her estate, which is still ongoing still is an awful burden.
Have been prescribed Triamcinolone Acetonide 1%, CeraVe cream, Doxepin, Zyrtec, and already take D3, chelated Zinc, Super Beets, Balance of Nature, and am a vegetarian (for over 40 years). Tried the cilantro drink for a week (awful, soapy). If anyone is trying the aforementioned treatments, they may be healthy, but not effective for my case. Already have a long list of meds, as was in a near-fatal car crash right before 9/11 & have had migraines since the age of 3.
My Grover is all over my trunk, legs, arms, neck & reaching to my face. only my hand and the soles of feet are clear. TY for listening, if you did. Hugs
I contracted Grover's Disease 10 years ago when I lay in bed for 3 months following a head-on collision that broke my bones in 27 places. Several months ago I discovered that coating the area with Hibiclens, a strong and inexpensive antibiotic available without a prescription, for a couple minutes when I take my morning shower, almost completely eliminates the pustules, at least by 80%. Aloe vera or coconut oil also help a little. I am currently applying the Hibiclens only every other day, and I have not experimented to see if I stay cleared up if I stop the Hibiclens.
I suffered through a major first Grovers flare up right before Covid-19 lockdown and when I was finally able to see a doctor in person and had a biopsy taken I was diagnosed with Grover Disease. I am 38 and female.
I know we are all so different so one cure may work for one but not the other but I have found Homeopathy for me has been my saviour. I have a bottle of Homeopathy Natrum Muriaticum 30c tablets with me at all times. I take the Chronic dose three times daily but if I have a flare up (from getting hot and thus sweating) I take the Acute dose (see bottle for full instructions)
I have found that Grovers flare-ups happen when I get hot and sweat forms on my skin and then dries, I feel a strange stingy feeling on my skin when sweat is drying and a flare-up is happening. I can still exercise and get hot etc but I always make sure I shower as soon as possible before the sweat dries on my skin. if I can't get to a shower and the sweat dries on my skin I will have a flare-up.
Ice is also a good way to catch a flare-up and stop it from going from a mild flare-up to a major one. if you catch a flare-up at the early stages it will be gone within hours or max a few days.
Cold Showers or Ice Packs or Ice Rollers for skin work really well for Grover's Disease.
If you sweat and don't have a shower straightaway you will feel a slight crawling stingy feeling on the skin, this is a warning sign that your skin is going to break out.
I've found that you can exercise and get hot and sweat as much as you want but you must not let the sweat dry on your skin, wash it off as soon as you can.
I have found that an ice pack applied to the area where the itching is occurring during a Grover's disease outbreak is extremely effective to bring almost immediate relief.
Hi I'm a 55 year old female, diagnosed with Grover's rash 10 years ago. I have times when it flares up very badly but mostly it's just lurking around mainly on my chest and stomach. I juice every day and recently added large amounts of coriander to my green juices. The rash has just about disappeared. If anyone else would like to try it, it's worth a shot.
Grover's Disease: I am a 78 yr old female diagnosed by biopsy....... been told that my case is severe includes back, legs and both arms. Itching is outrageous...any ideas are greatly appreciated.....even tried kelp paste and very hot showers/..nothing has been effective....derms have sent me to specialist..// at jmh..have been told there is no cure......it will go away......hope to hear from someone.....
I was diagnosed with Grover's Disease at 50. Was going through menopause at the time so it took a very long time to get it diagnosed. I was miserable. Mine falls on my lower back and torso.
Interestingly, it went away after 2 months or so and following a very strict Keto diet thought this was why it went away. I do not eat any sugar, gluten, wheat, or processed foods. I am now 56 and after going through an oral chelation therapy with my husband, ended up with this horrible GD rash. I had almost forgotten about it. I feel this is a herx reaction, but regardless, I have it and it has been very uncomfortable.
I am on my 2nd day of cilantro, which I blend with avocado, egg white protein, and ginger in the morning. I have ordered chlorella and will add that when I receive it. Will update on any improvement. I have coming today some collodial silver cream, so I will update on that too. Wishing everyone the best with their GD. What a pain in the butt.....
Grovers disease - I use Magnesium sulphate and this helps.
Hi all, at first sorry for my poor english (I'm italian). It is a long time I suffer for grover disease (years), up to a month ago. that time a gave a try to medicinal mushrooms, rieshi and shiitake. Make sure pills are composed of extract PLUS powder of the mushroom, both of them. Take 4 grams per day each mushroom, 2 grams breakfast and other 2 at dinner. Results may arrive in 2 weeks, amazing!
I have Grover's Disease, confirmed by a dermatologist and a pathology. My first major outbreak was in 2004, with subsequent major outbreaks in 2006 and 2007. I have discovered that the outbreaks are caused by ingestion of sulfites which I am apparently sensitive to. As you may know, sulfites are plentiful in all manner of food and drink, especially psckaged french fries and hash browns, out of season fruits and vegatables and unfortunately, wine and brandy. (and probably beer) I believe that many years of enjoying alcoholic beverages may have damaged my liver's ability to process sulfites. However, I have found that taking molybdenum has negated my problem with sulfites and I am no longer troubled by Grover's. I take one capsule per day (1, 000 mcg). I have no trouble with wine and occasionally even have a few french fries. I don't know if sulfites cause Grover's outbreaks in anybody else but you might want to consider it.
(Los Angeles, Ca)
I was diagnosed with grover's disease in January of this year. The symptoms began with very itchy feet at night and the progressed to outbreaks on back, chest, stomach, arms and legs. At one point, my arms became totally inflamed and looked like lizard skin. This is a horrible condition and my heart goes out to all of you that are enduring this. I have been to four doctors, two of which are dermatologists. The family physicians had never heard of it, so no help there. The dermatologists had absolutely no real advice to give, other than topical steroids, which don't really help unless you could bathe in the stuff.
The posts and words of advice on this forum have been the only relief and help I have had, so thank you everyone. I want to post what has helped me. To me this seems very inflammatory. I have found that ibuprofen helps alot. If you space it out as needed and throughout the day, it can bring relief. Also another thing that I haven't seen posted too much is baking soda baths. About 1/2 to 1 cup in the tub and soak 30 minutes helps with the itching and it is not toxic.
At night I take an antihistamine like Benadryl which helps with the itching and for sleeping. For diet, I have added vitamin D and Omega 3 supplements daily, along vitamin C. I drink the juice of a lemon (diluted in water) and also cilantro a few times a week. One dermatologist told me not to exercise (?) but that sounded so depressing. I try to walk every day for a few miles. No one knows if this is an immune disorder, but I believe that staying as heathy as possible has to help. I pray for you all, that you all will back to health and well again very soon.
There have been many comments regarding dietary changes (both pro & Con), coconut oil and other topical aides. I would just like to share a few suggestions that have had a very positive long term impact on people suffering chronic extreme skin conditions including Grover's.
1. While the dietary changes may not create an instant 'cure' for your skin condition, eliminating known inflammatory foods and foods with a high sensitivity reaction (i.e. wheat, artificial sweeteners, dyes and chemical ingredients) will improve your over-all health and reduce your whole body inflammation making you less susceptible to flare ups of any dormant condition.
2. Coconut oil can be very soothing...it usually has an impact on skin repair due to it's anti-bacterial properties. I am a huge fan of both the topical and oral benefits of coconut oil but do be careful about extensive long term topical use as some people actually end up with extremely dry skin after repeated daily use...the rash will be gone but the skin will be dry.
3. Probiotics- If there is any bacterial imbalance or lack of beneficial bacteria your immune system will be less than optimal...again, setting you up for a flare up of anything dormant in your system. If you have taken anti-biotics, had a stomach virus or a colonoscopy in the past year then you will benefit from use of a good probiotic.
4. Neem Oil. This stuff stinks to high heaven (unless you are a garlic lover) BUT the healing properties are fantastic...it can be used directly on a severe skin outbreak of any kind (acne, psoriasis, dermatitis of any kind including Grovers) or a few drops can be added to a carrier oil, shampoo or other body care product.
5. Support your skin from the inside out...if you are older and have 'fragile' skin, or are of any age with moderate to severe dry skin you can support the health of your skin with any of the following supplements (or foods)- Skin Ceramides, Hyaluronic Acid, Bone Broth or high Quality bone broth protein (for the collagen) and Astaxanthin.
Stop using body care products that contain chemical ingredients...keep it simple so that you don't end up making your skin worse!
Almost everyone that I have ever worked with to heal a skin issue has had success after working with a combination of these lifestyle changes, body care and supplementation.
I've had Grover's for 11 months. After much trial and error, this has worked for me:
For the rash, application of triamcinolone 0.1% cream twice daily on affected spots. Liberal use of moisturizing cream (any kind) many times a day on all parts of the body and especially on the itchy spots. Only lukewarm showers. No soap (it dries the skin).
For the itching, 1000 mg quercetin daily (available online or in health food stores), and avoiding foods and drinks that either contain histamine or produce histamine in the body. This had been particularly helpful. I usually take it just before dinner, because it's harder to limit the histamine foods for a larger meal. I also take a half pill of Benadryl before bed, and a blend of bifidus probiotics, to help my system produce DAO, which is implicated in histamine intolerance.The Grover's is now under control and I no longer think about the itch.