I was diagnosed with grover's disease in January of this year. The symptoms began with very itchy feet at night and the progressed to outbreaks on back, chest, stomach, arms and legs. At one point, my arms became totally inflamed and looked like lizard skin. This is a horrible condition and my heart goes out to all of you that are enduring this. I have been to four doctors, two of which are dermatologists. The family physicians had never heard of it, so no help there. The dermatologists had absolutely no real advice to give, other than topical steroids, which don't really help unless you could bathe in the stuff.
The posts and words of advice on this forum have been the only relief and help I have had, so thank you everyone. I want to post what has helped me. To me this seems very inflammatory. I have found that ibuprofen helps alot. If you space it out as needed and throughout the day, it can bring relief. Also another thing that I haven't seen posted too much is baking soda baths. About 1/2 to 1 cup in the tub and soak 30 minutes helps with the itching and it is not toxic.
At night I take an antihistamine like Benadryl which helps with the itching and for sleeping. For diet, I have added vitamin D and Omega 3 supplements daily, along vitamin C. I drink the juice of a lemon (diluted in water) and also cilantro a few times a week. One dermatologist told me not to exercise (?) but that sounded so depressing. I try to walk every day for a few miles. No one knows if this is an immune disorder, but I believe that staying as heathy as possible has to help. I pray for you all, that you all will back to health and well again very soon.
I've had Grover's for 11 months. After much trial and error, this has worked for me:
For the rash, application of triamcinolone 0.1% cream twice daily on affected spots. Liberal use of moisturizing cream (any kind) many times a day on all parts of the body and especially on the itchy spots. Only lukewarm showers. No soap (it dries the skin).
For the itching, 1000 mg quercetin daily (available online or in health food stores), and avoiding foods and drinks that either contain histamine or produce histamine in the body. This had been particularly helpful. I usually take it just before dinner, because it's harder to limit the histamine foods for a larger meal. I also take a half pill of Benadryl before bed, and a blend of bifidus probiotics, to help my system produce DAO, which is implicated in histamine intolerance.The Grover's is now under control and I no longer think about the itch.
I was diagnosed with Grover's Disease in 2011 and suffered 12 weeks. Five of those weeks I could not sleep at all. It covered my back, front, down my legs to my knees and around my shoulders. There was nothing the doctor could do for me. By the grace of God, I went from sores to a clean back in one night. I thought that was that. But, ten weeks ago I started to break out again. For three weeks there was no sleep. Between the two experiences I went off all wheat which changed my life for the better. I do not plan to go back on wheat, but I did get Grover's again. I do think there is a link to wheat. I was found to have very low vitamin D in 2011, so I think that might be another link. I was also a little low in B12 and I was taking a supplement off and on. I am currently in the 11th week and last week I discovered lavender essential oil. I applied it to the skin and saw improvement. But the best effect was I was able to sleep most of the night. I found out later there have been double blind studies that it helps sleep. We heal when we sleep and I think, now I am about finished with this Grover's. I plan to stay off wheat and take a Vitamin D3 supplement along with my organic whole food supplement for the other vitamins.
Also, some of the best advise I received was to take 3 tablespoons of cold first pressed olive oil in the morning and again at night. It does wonders. I also used the organic coconut oil on the rash and it helped a little. It is my choice of lotion. If I break out again, I will try the ice packs. I get a mega dose of Grover's when I get it. I also think a quick lukewarm shower twice a day helps at the worst of it and then down to one quick shower for moisture. This year I bought a humidifier to keep the humidity at 55 in the house when the heater is running. FYI my blood tests look great for the usual things. I am usually very healthy. I am not overweight. The Grover's did make it to the skin that as not seen the sun. I currently eat all whole foods. There are great recipes out there. I have eaten this way for about a year and a half. My theory is that I got into something I shouldn't have eaten at Thanksgiving (that is when rash started again) or my D and B dropped down again. Hope this helps someone.