Grover's Disease Remedies

Grover's Disease Triggers
Posted by Carole (Delray Beach, FL) on 11/19/2021
5 out of 5 stars

I'm addressing several questions from the posts I've read tonight. I've had Grover's Disease over 30 years. It was dormant for a couple of decades but resurfaced with a terrible outbreak in the last two years. I know now (and have confirmed in articles on the net) that Xrays trigger Grover's--and I've had many xrays because of severe scoliosis and now a shoulder injury--as did the UVA therapy my dermatologist gave me. I had six treatments and between those and a lot of recent xrays, I now have Grover's all over my breasts, midrift, arms and legs. Previously, they were limited to my chest.

I've been horrified to watch it spread before my eyes. I quit the UVA therapy as soon as I realized what was happening; however! I have since read that UVA therapy initially makes the Grover's worse--then makes it better. I've asked my dermatologist to research that.

To those who are going in the sun: STOP sweating! It's dumb!

As for Cilantro, I bought the oil on Amazon because a support group I belong to is experimenting with it and looking for feedback. I've been taking 5 drops a day in water for about 2 months. I can't see any change, other than the spreading of the disease. My derm prescribes both Clobetasol and Eucrisa, which I alternate daily. He just added hydroxyzine. I also use a moisturizing cream that contains both menthol and camphor. So, I'm kind of taking a shotgun approach to this but it's out of desperation.

What's new about the appearance of the Grover's is that I'm developing purpura--the purple hematomas (for lack of a better description) all over my chest, breasts, arms and I suppose my legs will be next. I've seen nothing in print that links Grover's to stress--but I'm here to tell you I believe stress is a major trigger for me. I'm under tremendous stress, facing open spine surgery soon, and my derm told me he now agrees with me. We believe stress and the frequent x-rays have a lot to do with my progressing flares.

The only drug I had a GREAT response to but don't take more of because of its negative effects is PREDNISONE. I took it for 15 days and had a dramatic clearing of the Grover's--but I've had a terrible progression of the disease since then (this past summer).

I wish that more clinicians and researchers would take up the cause and find more effective treatments for us sufferers of Grover's. Until then, keep sharing.