Natural Trigeminal Neuralgia Treatment

Hi, my mother has Trigeminal Neuralgia. This is what has helped her: B12 (METHYLCOBALAMIN) form. This form is absorbed better. Do not use the cyanocobalamin form, as it is not absorbed well. She uses cherry flavored sublingual- 5MG. No stimulates: No caffeine, no sugar, no alcohol, and no foods that are stimulates such as mushrooms.

We have also noticed that here in TX where we live, when the seasons change from hot to cold-- it flares up. Every October is when it changes from hot to cold, and she has problems with it then and then again when it starts to get warm. We are wondering if the barometric pressure has something to do with hers acting up. She has had it for a long time now. She first noticed it after her teeth were pulled and she got dentures.

She recently added fish oil to take also to see how that works with the B12. If we see more improvement with that added to the B12, I will post again. I hope this might help others. It hasn't cured it, but it has helped.

Hi P, My mother uses Source Naturals MethylCobalamin Vitamin B-12 Cherry flavored Sublingual 5MG -- 120 tablets in the bottle. Hope this helps.

My mother has trigeminal neuralgia also. The things that have helped her most are: B-12 (METHYLCOBALAMIN) form, it is absorbed better. Do not use the cyclcobalamin form, as it is not absorbed well. 5000 mg tablet is what she uses. Also recently, trying fish oil with the B-12. No Caffeine, No sugar, No alcohol. No foods that have a stimulating effect, such as mushrooms.

We have noticed over several years now, that her pain flares up when the seasons change from hot to the cold. We wonder if barometric pressure may also affect it. Every October here in Texas where we live, when the weather begins to change from hot to cold, she starts having the pain and then it flares up again when season goes from cold to hot.

Dear Alan,

I hope you can keep your pain under control. We tried many meds but nothing kept him pain free, we struggled for years to find something to give him relief as he couldn't even stand a breeze to hit his face and many a time he told me he didn't want to live, sometimes something would work for a couple of weeks but nothing lasted very long. The op was the best and he was very sick after but he improved every day.

Good luck and hope you have found the right thing for you

Hey there SuseeQ...I have recently experienced complete and (so far) lasting relief from trigeminal neuralgia!

After trying many of the suggestions of the EC community...36 hours into that seemingly endless pain...I read a post on another site where a guy tried this...for the Madness of the pain...and it stopped BOTH in 30 minutes...never to return! Now folks, I have avoided doctors and pharmaceuticals for 40+ years and come to EC first to manage my health.

BUT, I took un-prescribed medication for an off-label use, on un-substantiated advise because DEATH seemed like a reasonable alternative. Forgive me..it WORKED!! I took Alprazolam (Xanax) .25mg (pediatric dose). This is a common anxiety medication. It can lead to abuse as we build tolerance quickly and can become dependent.

I am compelled to share my indiscretion because it was a miraculous end to an excruciating event. It seems, reducing inflammation that causes the trigeminal nerve to fire up...by constriction or abrasion...ends the event but not the initial cause of that inflammation. For me, the unknown cause was resolved and has not returned. It's been 4 months...in addition, I have changed my television seating and duration to avoid neck aches that seemed to precede the TG. I have read of other factors that inflame the Trigeminal nerve that may not benefit from the Alprazolam...but it is a very small dose...of a widely used medication...that costs $2......

Dear Liz,

I am not sure what the surgery was called, but it separated the nerves with a sponge between, well that's how it was explained to us. He also had acupuncture, it helped for a short time. Good luck. I hope everything works out for you. Let us know how it goes.

Hi Suseeq - Thank you so much for replying! So glad to hear your husband is doing well. You're right that a little tingling and loss of hearing is a small price to pay. What type of surgery did he have? Gamma Knife? I am going to be seeing a new neurologist next week and want to discuss all possible options.

Did your husband try any alternative methods like B12 injections? I am considering that before going the more invasive approach.

Thanks for any insight you can offer.

Liz

Dear liz, my husband had the op about about 8 years ago and it has been a godsend. Yes, he lost the hearing in one ear and sometimes gets tingles down his face but overall a small price to pay as he was in so much pain that he couldn't even stand to wash his hair. Yes, it has been worth it.

Hi Connie - Thank you for the update. I am new to Earth Clinic and am glad I found this site. It's encouraging to see that some natural remedies have helped people find relief from TN pain.

I was diagnosed with TN in 2000. I was prescribed Tegretrol and have been taking it since then. I read somewhere on Google years ago about B12 injections but didn't have enough information it. So I chose not to try it. I did try the sub-lingual B12 which didn't seem to help, but I probably didn't take enough.

I have so many questions that I hope someone will be able to address.

• How long did you take it before you started relief from pain?
• Do you recommend a certain brand?
• How many mcg should I start out with?
• Does anyone know of a Naturopathic doctor in the Phoenix, Glendale Arizona area?
• Has anyone heard of tried Rosemary Tea and Ashwagandha Oil to help relieve TN pain?

I have suffered with this horrible disease for 15 years, but I continue to have hope and pray that the Lord will lead me to my pathway of healing. I pray for everyone who has been diagnosed TN that you would discover your pathway of healing too.

Hi Suseeq - Not sure if you still come to this site but I am curious to know how your husband is doing since the surgery. I've read that most people have the surgery (MVP..I think that's what it's called.) and it only made it worse and in addition resulted in loss of hearing, eyesight or numbness. If your husband didn't have this procedure done, would you mind telling me what it was? Thank you

Last year, my horse was diagnosed with trigeminal neuralgia which is very rare in horses. I tried many types of medications and functional devices. Spirulina was a miracle "cure." I began to see the results within 48 hours of giving it to him. I slowly ramped up the dose over several weeks. My horse is doing great, happy, rideable again. I was very close to having to let him go due to the extreme pain and distress he was experiencing.

A few months ago, I was diagnosed with geniculate neuralgia which is similar to TGN except that a different nerve being impacted. Having seen the amazing results achieved by giving my horse spirulina, I tried it.

It substantially reduced (by ~ 80%) the intense pain and other symptoms. I am taking 10,000mg per day, 5000am and 5000pm though splitting the dose into 3 would probably be better. I take the same spirulina as my horse which is made by Springtimeinc. They test their products and stand behind them if any issues arise.

Try it!! You have nothing to lose and everything to gain!!

Hi - My Wife suffers from Trigiminal neuralgia since August 2008. Could u let me the above mentioned supplements where can I order them.and are they helpful in Trigeminal Neuralgia. Plz do mention if it has any side effects. Thanking u in adavnce, Krishan

I have had trigeminal neuralgia on and off for many years. About 10 years ago, someone told me about vitamin B1. Now, when I begin to feel an episode coming on, I take B1 and it clears up right away.

When you eat Interferon for treating Trigeminal Neuralgia, where do you get it? Can it be bought over the counter? What is it?

Thank You! Heidi

August 2,2015 I fell from the top of a step ladder and smashed the corner of my eye and cheek bone on the corner of a dresser. Cut to the bone. The nerve pain is so strange. When I press on my brow my teeth hurt. The pins and needles, burning and stabbing pain is very distracting. I though I had fractured my face but CT scan said no. Now that I know it's trigeminal nerve damage I at least don't think my teeth are fractured. What do you think of Biogetica's Freedom Kit with OM13 TNeuralgease Formula? I found it here whilst educating myself on this pain. I'm sure my concussion is some of it. But the nerve pain is something else. Really feel for all of you here that are experiencing this. ugh...

Diagnosed with trigeminal neuralgia 9 years ago. After 3 years of pain I opted for the Gamma Knife radiation. I was pain free for 6 years. Pain is coming back again so I am requesting to have procedure done again.

I experienced nerve pain in my face that was excruciatingly painful and since my mom has had trigeminal neuralgia I knew I had all of the symptoms. I decided not to take medication and to explore natural options and lots of prayer. One day I started to get a cold sore on my lip as I have gotten them all of my life so I took a very high dose of the amino acid l-lysine. My pain completely went away after a few days. My doctor said that it's possible that the herpes simplex virus could have attacked my nerves. Now I take 1 500mg capsule of l-lysine every day and praise the Lord I am still pain free after several months. I hope and pray that this will help others because I know how terrible it is. You can get L-lysine from any vitamin store. They cost around $5.00 for 250 capsules (don't get the pills cause they're hard to swallow). May God bless you!

If you can find a practitioner in your area who offers cold laser therapy treatments it may be very helpful for trigeminal neuralgia.

Steve

I had microvascular decompression surgery performed, and it made TN WORSE. Now my hearing is gone, and zingers are worse.

Dear Sandy, I would like as well join in congratulating you on your effort and success in helping your daughter. I have previously read that other people contracted this disease through dental root canals and one man could not take it any longer...

So it makes me very happy. Namaste, Om

Sandy, so very happy for your wonderful discovery to help your daughter. Thank you for finding a solution and sharing on Earthclinic.

Wishing you and your family all the best!

My daughter has Trigeminal Neuralgia. It's a debilitating facial pain, a condition known as "suicide disease" because it is believed to be the worst pain known to mankind. Almost two years ago when she told me of the excruciating pain she felt in her jaw I began an internet search to find out what this horrible pain was. It didn't take me long to realize that she had TN ( Trigeminal Neuralgia).

She made an appointment with a facial pain medical group, and she was indeed diagnosed with TN. "There is no cure" the doctor told her, so she was prescribed pain medication, and told to return in four weeks. I began my search to cure her TN pain. After 3,24/7, days of searching I stumbled across a cure. It's caused by being B12 deficient, but you can NOT cure it with the B12 injections that the doctors give, they use the cheaper pharmaceutical B12 Cyanocobalamin. You MUST USE the natural B12 Methylocobalamin injection. You begin with a daily injection of the B12 Methylcobalamin, 1cc for 10 days, after that you continue 1cc weekly, supposedly after a time you can cut the dose down even more but after almost two years my daughter is still having to have weekly shots to keep the pain away.

The B12 Methlcobalamin is much more expensive and a lot harder to find on the internet, but it's out there. After a year of using the B12 Methylcobalamin my daughter decided to try the cheaper pharmaceutical B12, within a week and a half her pain returned. It has to be the injection form and it must be the Methylcobalamin, this has been a God send for my daughter, the best of luck to you with your journey! There is a book out there, written by Dr, Oz's father in law, on facial pain that goes into more detail on this subject, but we have found that the B12 injections were all that was needed to keep the pain away.

Hi Jes,

I'm so sorry I never saw your message before. I am the original poster of this thread and I can say that 1 year later, I am still living free of trigeminal neuralgia and all MS symptoms. If I lower my dose or forget to take my vitamin D for a few weeks I can feel minor symptoms returning (like pins and needles etc) but all I do is simply up my dose a little again and all is well. I can't imagine what my life would have been if I hadn't found this. Research vitamin D! It's a cheap cure and it that is why it is not promoted by Big Pharma. They'd rather you take their meds for the rest of your life. This cure will work for anyone with neuro symptoms, MS or trigeminal neuralgia due to demylination. If anyone has any questions feel free to email me - bee_mcc (at) hotmail (dot) com.

-Bee

What doses did you use and what type of stimulation? Thanks :)

This is me! I also get it when I'm indecisive. I haven't learned to stand up for myself yet, though.

Mary!!! Go see an osteopath immediately! I had this for only 30 hours, and with one treatment it was resolved. (I had almost passed out from the pain.) Neck muscles spasm and pull the vertebra out of place. Massage also helps. Don't suffer anymore, and please look up someone that can do Osteopathic or Cranialsacral work. Biodynamic approach is even gentler than normal osteopathic work. If you have questions, look back here and I will try to check back.

Hi Mary, try antiviral remedies for your neuralgia. Our Dave has used colloidal silver against this condition, I think. Some other possible remedies are lemon balm, lysine, vitamin C, garlic, ginger, turmeric, etc. Good luck and please let us know what works!

I have been suffering from Trigeminal Neuralgia for 15 years. Doctors passed it off as stress. Early on an MRI and Spinal tap revealed nothing and I was told the pain was psychological. The pain is getting worse and lasting longer although suicide is not an option the pain can certainly cause one to wish they were dead anything to ease the pain. I received an official diagnosis June 19th 2015 and immediately referred to a drug by the name of Tegretol xr 100. I am thankful that I read the side effects prior to taking the drug. I have now considered surgery but realize surgery last aprox. 2 years and the pain could resurface even stronger. My pain is jolting lighting bolts striking the left side of my face lasting for seconds back no back no relief. This is my 12th day still going. I am now looking for healthy ways to handle this disease I will fight and I will win open to suggestions and research please help.

I suffered from Trigeminal Neuralgia on and off for about 15 years. I spent thousands of dollars going to Holistic Healers and trying natural remedies. The cause of the condition is Herpes. FINALLY, I found Hannah Kroeger's remedy for Herpes -- Interferon.

When you feel a bout of Trigeminal Neuralgia coming on -- do these 3 things:

1) Eat Interferon 3 meals a day until it goes away. The recipe for Interferon is: 1 cup cottage cheese mixed thoroughly with either 2 tbsp of walnut or almond oil.

2) At bedtime, take a double dose of an over the counter non-chewable antacid (Cimetidine). I use Tagamet.

3) Do not talk about the condition to anyone. Keep it to yourself.

Using these 3 steps, I have not suffered from Trigeminal Neuralgia in three years. Whenever I feel a tinge....a warning that it might be coming on, I follow these steps, and it backs off. Sometimes I need to do this for a few days. Luckily, I enjoy cottage cheese!

What is the name of the clinic and the laser she had done? What's the name of it? Thanks, Kathy

Hi My husband suffers from Trigiminal neuralgia. Could u let me the above mentioned supplements where can I order them.and are they helpful in Trigeminal Neuralgia. Plz do mention if it has any side effects. Thanking u in adavnce, Swati

I have TN. I live in South Africa and will have have to look for a facility that uses Laser Treatment for Trigeminal Neuralgia. Please give me more info. What kind of laser treatment and what kind of clinic?

here is a link to the second part of my comments

https://www.earthclinic.com/remedies/zapper.html#herpeszoster_147972

This post is really about the difficulty I had in diagnosing the root cause of the migraines.

For a long time, I was mystified why I was getting a migraine headache. I have really been bearing down hard in understanding the cause for the past 4 years. I tried many migraine remedies. There have been many myths about migraines especially blood flow which compounded the problems. Researches have found migraines emanate from the brain stem somewhere. Not inside the brain.

The tried the standard remedies b2, B6, b5, magnesium, bromelain, butterbur, q10, ginger root, feverfew to no avail. I found magnesium and b2 worked to some degree but not enough so I even experimented with the coenzyme B vitamins and methylation cycle problems which were dead ends also. I still had not much control over my migraines.

It wasn't until I went to a chiropractor that I started to peel away at the cause. I found the chiropractor treatments worked some but I still had problems. Doing the treatments helped me understand that tightened muscles aggravated the condition which made sense why magnesium helps many people.

I also noticed the pain receding over the right eye to the side of my head with chiropractor treatment. I thought it may be an indication that I may have trigeminal neuralgia although I didn't have the shocks.

Over time the pain would recede to the C2 area of the spinal column. That was the proof I needed to diagnose occipital neuralgia. From there I was able to dig deeper. There had been some opinions that occipital neuralgia could be caused by herpes virus so I started focusing on the neuralgia aspect.

A few years back I pondered the possibility that it could be herpes caused so took some lysine for a couple days but that didn't put a
dent in the pain so assumed it was not the cause. I investigated herpes further and came back to lysine which I gave up on earlier. Also I added vitamin C. I found that the lysine helped a lot more. Without the chiropractor treatments and magnesium at same time also, it would have been hard to untangle everything.

I finally realized my migraines were caused by occipital neuralgia which in turn is caused by herpes zoster. also it was the root cause of the chronic meningitis I have had on ocassions.

I have had low level chronic shingles my entire life but they don't break out in skin eruptions like most people but just a little tingling on my the skin.

I ignored it most of my life since I was overloaded with a zillion other worse things. I did take a homeopathic formula for shingle 15 years ago that helped a lot with tingling but never touched the migraine.

I have had ME/CFIDS essentially my entire life. I am 60 years old. The virus is very aggressive in me. The heart of ME/CFIDS is that it is at it's root an encephalopathy disease so had difficulty untangling it from that.

I have gone to another chiropractor before this and he wasn't really able to help me but he wasn't as equipped as the other chiropractor who used a proadjuster. I have come to realize why my trapezium muscles tighten hence I can easily relax them myself on my own.

The point to this story is that I had to peel away at the problem to understand what the underlying cause of my migraine and eventually neuralgia was. The other point is that a chronic migraine could be caused by an underlying infection.

By the way, I have been using a Terminator 2 Zapper.

Have you considered that your neuralgia could be caused by an infection like herpes zoster that infects the nerves ?

I have occipital neuralgia and that is what is causing my neuralgia. This isn't something a doctor can actually prove either. I don't experience shingles outbreak on my skin either. Just tingling. I have a highly active immune system.

I'm so sorry to hear yours has returned. I'm two years pain free now. The laser cost about 7,000 dollars. I'm ambiguous now about knowing if that was what really 'cured' me...I've been in touch with some who hasn't had such good results. I still attribute my 'success' to the multiple things I was doing. I believe I would still consider the laser if mine returns, which I hope and pray it doesn't. I am consistent about doing the magnesium and B12...and hope that will keep my nerves healthy enough to never get TN again. You can email me if you want more info or google TN laser S. Carolina and you will find it. I do wish you speedy help...the sooner the better.

Hello, after suffering for about 7 years amd trying all western medical medicine had to offer including 5 different surgeries, I had micro vascular decompression done which worked for about 4 years. Now it's started to occur in the same way on the other side. I can not imagine doing this again. Can you ball park the cost for the laser? Thanks so much

Is this treatment offered in Canada ?

i have been following the many remedies people have listed and tried for Trigeminal Neuralgia since May 2013, when I myself developed symptoms on the right side over my eye (V1) which then progressed to cheek and upper lip area (V2) after a dental implant. It was confusing because the implant was on the left side however, stress such as an invasive procedure like a dental implant especially when associated with other life stresses can cause a herpes/shingles outbreak. Like many of you I too was debilitated with extreme pain episodes lasting 1-3 hours with intermittent shock-like hits of pain in between. I could not eat, brush my teeth, talk, move my upper lip without distress and sometimes simply moving from one room to another could trigger pain. My sisters left their homes in a neighboring state and took turns caring for me.

I began many of the strategies suggested by many of you on this site: Biogetica, increased magnesium, diet, Vit B, bolstered my immune system, prayer, meditation. I think these strategies were all helpful as I believe in a holistic approach and I am grateful, for that reason for this website.

Now it is I have some important input to add. There has been mention of cold laser therapy, and especially for those of you suffering from a form of TN referred to as Post Herpetic Neuralgia there may be good news. I have researched Cold laser therapy which is also referred to as, Low level laser and found that although there is some dispute as to the efficacy of cold laser there is growing agreement as to its benefit in pain reduction with specifically nerve pain. The Trigeminal Nerve is the chief sensory nerve of the face which is why it causes so much havoc many of you report but the good news is that it is relatively superficial- which is to say easy to get at. It does not hurt, it has a slight warming sensation. The probe does not touch your face but rather is held 1/4 to 1/2 inch off the skin. It cannot harm you. With a class 4 laser you wear protective eyewear.

So, here is what I did. Using a protocol I heard about as a baseline that treats an hour a day, 5 days a week for three weeks (total 15 hours), I found a nearby Chiropractor who was willing to treat me with a Class 4 Cold laser following the nerve pathways of V1 and V2 . ( I printed out a schematic of the Trigeminal and took it in.) His laser machine runs 8 minute programs for neuropathy and we did two 8 minute treatments at one session and later added a third 8 minute session for a total of 24 minutes for a session. I went twice a week for 2 months and then tapered off. It has been 6 months now and I have had a total of 8 hours of treatment and I am pain free. If I do have a few 'hits' I go get a treatment. Yes, I still take 600mg of gabapentin but have been able to dose down and hope to reduce more after the cold weather has subsided. I experience weeks as opposed to days without as much as a twinge. I just went to the dentist for the first time in two years for a cleaning without a problem. I can brush, floss, eat, talk and move my upper lip and have not had a major 1-3 hour pain episode for 6 months since beginning the laser treatments. I probably began to feel the more lasting results at the 5-6 hour mark. If I had lived closer I might have gone more often.

According to the current FDA standards, an FDA cleared cold laser addresses 4 main issues: Chronic or Acute Pain control, Inflammation reduction, Increased blood flow and Accelerates healing.

So, if it is you want to give Cold laser a try here are my recommendations based on personal experience:

Locate a Chiropractor, Physical medicine clinic, Dentist etc. who offers Class 4 Cold laser treatments. Some may already have a protocol for TN. Many of you are aware of the M Beach clinic as well- (although I bit pricey)

Plan on having several treatments as I found it is not a magic-wand-one time only fix but rather has an accumulative effect and so several treatments are necessary.

Negotiate a price since you will need several treatments.

Stay hydrated.

Maintain all the things you have been doing. Supplements, homeopathics, hot packs, patches-- whatever you do that provides comfort.

Keep a journal to chart your progress.

Lastly, a resource for those who want to learn more about lasers is: COLDLASERS.ORG The site will educate you about lasers for pain management and how they affect the healing process. Especially for those of you who have had a viral assault or inflammatory process. I wish all of you who are experiencing this painful condition progress and blessings on your healing journey.

To your healing, Lindajb

Some alternatives that may help with the Trigeminal Neuralgia are EFT, energy healing, and cold laser therapy.

I have been diagnosed with TN for almost a year now. I am on tegretal and baclaven. The pain has become so bad that it is now interferring with eating. I an not cutting up my foods in very tiny pieces so I can more or less swallow without chewing. I am trying to stick to the soft foods as well, but sometimes even swallowing sets it off. Brushing my teeth often sends me through the roof. I cannot even kiss my husband anymore with triggering the pain. I have used the hot compresses with some relief. I read your comments on the vitamins and minerals. I think I will share them with my primary care physician. I am not on any type of pain meds (narcotics) as of yet.

I am only two weeks into this and am still at TN1 stage ... last night I lost my ability to speak (two minutes or so) pain was excruciating and scary. Will read up on alternative treatments ... I was disappointed to find out that my ever-reliable Endoderm patches ... made it worse ... maybe wrong placement ... thank you for your information ...

I was diagnosed with Trigeminal Neuralgia in the year of 1998. Did not have any symptoms of this very painful #10 pain until after dentist sessions with trying to change my bite, which by the way, I was losing teeth, had root canals, etc. that these symptoms became very, very evident. After many visits to the medical profession, and research on my part, I decided I needed to see an Neurologist in Staunton, Va. who was associated with the University of Va, Charlottesville, VA, Neurological Dept., and learned that a blood vessel was leaning on a nerve. After x-rays showed this condition, I was recommended to be a candidate for sterostatic radio therapy that I decided to do.

Dec. 9,2000, was when I was admitted to the University of VA hospital for an overnight stay. There was no invasion of the skull. I was fitted with a helmet that was carefully centered and then wheeled into another room with an attendant behind a glass window. I then was placed in the next room and this beam was centered on the necessary position, asked the kind of music I liked with ear phones, for about an hour. Just this one treatment and released. After stopping Tegretol, Gabapentin, etc, I was slowly eliminating these medications.

I was pain free until the year of 2008. At that time minor disturbances with sinusitis aggravating the nerve on the side of my face occasionally but nothing like the #10 pain preceding the treatment. I am grateful and thankful that I am not going thru what I had been. I was 76 years old at that time. Every two years I had a contrast brain scan. Now I have been reading that B 12 is beneficial to patients, but since I am from the old school of common sense, I thought it is much better for the body to absorb the natural vitamins from our food intake. I am now eating fresh liver from a local butcher at least once a week, fresh caught fish at least once a week, fresh green vegetables to keep the bowels open and lots and lots of prayer, a necessary ingredient for daily life.

I have been suffering with upper branch trigeminal nerve pain since a shingles outbreak Aug. 2013 . I had Acupuncture 2 times ( yesterday and today ) along with a small Lidoderm Lidocaine patch above my eye where the breakout first occurred . The Acupuncture gave me relief .

Would appreciate if you could give me the daily dosage of b13 and omega 3.
Thank you

What types of doctors are you going to ~ I am trying to find a holistic doctor to treat and heal this.

Dear Bee,

I read your post last night and have been researching since. I've also been praying about this, and believe I am supposed to try it. I DO have a diagnosis of both MS and Trigeminal Neuralgia, and the TN pain has been unbearable for the past four months.

In addition, I know my Vitamin D levels have been low in past years, and at one time I was on 10,000iu a day and still didn't max out my Vitamin D blood test numbers.

I don't see a neurologist anymore, as my Primary Care Doctor is fantastic, and much more naturopathic than any neurologist I've ever seen. My Doc supported me in taking 10,000iu of Vitamin D, and it's when I ran low and didn't refill that the TN really set in.

After reading your post last night, I put all of the pieces together. I'm writing to ask if you would be willing to share with me how much you took on a daily basis. If I weren't desperate from the pain, I wouldn't bother you. However, I deeply appreciate your consideration.

I'm looking forward to being able to praise God for a miracle, too. I praise Him for so many other things on a daily basis, even through the pain. I so hope that I might know what it is to be pain and pain medicine free, though.

I'm already on a gluten-free; sugar-free; and 90% dairy free diet. I can cut the other 10% out with no problem.

Many thanks for your consideration.

I have been suffering Trigeminal Neuralgia for the last month, but thinking about it I feel it has been coming on for the last 3-4 months very slowly, with pressure in my ears, eyes and sinus.

I have been having acupuncture in my face neck and head and it has made such a difference. My pain was unbelievable, I wanted to cut off my head. I am also taking Vitamin B5 B1 200mg 4 tablets 2 x daily of each. Also Nervagesic (natural) by Mediherb 4 x 2 daily. The B5 is called Pantothenic Acid these all help to calm your nerve's and ease stress while building back nerve covering.

My natural health care professionals told me to de-stress as much as I can, rest and keep taking vitamins including Magnesium in good quantities.

Use heat packs, that is very soothing, stay out of the heat and direct sunlight on your face. If you are suffering with the pain in your teeth, avoid chewing on that side. Eat soft food or soup that needs little or no chewing. Also use a toothpaste for sensitive teeth and brush your teeth up to 5 times a day. This helped ease my pain.

Hope this has helped. I am still suffering but nowhere near as much as I was. Each day the pain seems to lessen. There is hope just hang in there and never stop asking question of people that know what they are talking about. Especially those who have had the same condition.

Dear Elena,

Thank you for your question.

You mention that you have heard that CS will stain the side of face that the CS is applied to.

Well, I've used CS many times (100 ?) in topical applications and have no stains of grey or silver. Here's a test: Try a bit of the DMSO/CS on a white cloth and apply to some part of body that isn't normally seen...inner thigh for instance. No stain. But satisfy yourself first that such assertions are more misinformation by ill informed folks who just don't know what they are talking about.

Of course, I am talking about CS and not a Silver compound. But even silver creams are applied topically...so .... unless one is making Silver Nitrate I just don't see how Colloidal Silver...99.9 percent water with only a few atoms of silver per million molecules of water... can stain. But try a little using the test I outline. Goodness....even iodine stains when applied topically but disappears after an hour or so. But I've never seen any stain whatsoever with CS. Good luck attacking the Tri Gem. My theory is that it's a virus so the topical App of CS/DMSO could at least halt the progression. I liken it to shingles.

Hi Dave, I've read that one of the possible side effects of CS is that it would stain this side of your face, like a silver/gray colour. Any information about this? Thanks million

I think the electro-acupuncture would be helpful. Also have him check out the supplement GABA which is known to calm down nerve pain and muscle pain. Cold laser therapy, EFT (emotional freedom technique) and energy healing are also worth exploring as they have a good track record for relieving pain as well.

Hello Tamika, I am so sorry about your brother. Definitely try the cell salts too...I have had quite a bit of feedback on them, a great help if not a cure. I am still pain free. Let me know about the electro acupuncture....Donna

Hi my brother is suffering really bad from Trigeminal Neualgia he is in so much pain - has anyone ever tried Electroacupuncture? I saw this online and will take him for a treatment. I will also start the B12, Magnesium and Fish Oil that's recommeneded here- please offer anymore advice if you can - he will be here tomorrow and I want to make sure I'm fully prepared to help him. Thanks!

Hi Veerle;

What are the neck and facial exercises that you did to relieve the facial pain?

Best regards, Andrew

I was never diagnosed with MS but had many symptoms. It started with limbs falling asleep for no reason, pins and needles etc. Sometimes I would wake up in the middle of the night and my lips would be numb. Or my arm would be completely numb even though I was not applying any pressure to it. Then came other weird symptoms like memory loss, confusion, tremors, loss of balance, head vibrations. You get the drift.

I visited a couple neurologists early on who could find nothing on an MRI so I was sent away and told to "monitor things". But things got worse. When I developed full-blown trigeminal neuralgia I knew something was seriously wrong and the neurologists weren't going to cure me. Trigeminal neuralgia is an extremely painful condition and happens in a small percentage of MS patients. This is due to demylination of the sheath that protects the nerves causing severe nerve pain in the face and head. I was also having severe nerve pain all over my body. I knew if I didn't do something right away I would be on my way to an MS diagnosis. That's when I heard about Dr. Cicero Coimbra, a neurologist in Brazil who was treating his patients with high doses of vitamin D. His patients were becoming totally asymptomatic in a few months! Dr. Cicero has a long waiting list and I could not wait any longer because the pain was killing me and my symptoms were getting worse. So I got a hold of one of his patients from Australia and this woman explained the protocol to me.

WARNING:

Certain precautions need to be taken when taking high doses of vitamin D so do not undertake this without doing more research. I avoided all dairy products in order to prevent hypercalcemia and drank 2.5 litres of water every day. One must also avoid calcium supplements. Well, after 3 months of mega doses of vitamin D (I will not say the dose but it was between 10,000 and 40,000 iu per day) I was pain free! I am now on a maintenance dose of the vitamin D but I have no more trigeminal neuralgia and all of my other symptoms have disappeared! I praise God for allowing me to find this information. I now live a normal, pain-free life. Vitamin D not only halts progression of MS but it reverses damage done. A true miracle.

Hi there,

My mother (69) has trigeminal neuralgia and has found some relief with Craniosacral therapy.

Thanks,

Angela

Hi, I was wondering what the laser treatment was? In or outpatient? I got TN at 22 & tried everything I could find including surgery, which spaced out the pain from every 2-3 seconds to every 20-30 seconds. So not great results but better than nothing. I'd like to know if your mom is still pain free or if it's a maintenance type of treatment? Thanks so much in advance!

How long has your mother been pain free?

Hello Brooksie,

On Trigeminal issue; if the cause is a virus, I have used DMSO with colloidal silver (50, 50) mix and applied with a white cloth to affected area. DMSO would carry the silver to nerves to kill the specialized virus (think shingles...a specialty virus or polio...a specialty virus). DMSO alone will not kill that virus.

I was recently diagnosed with Trigeminal Neuralgia. However, I have only had numbness and a little shock wave here and there for the past 3 months. I am told that it could progress and would like to stop it in its path. Could you please give me more information on the doctor you recommend. And, are you still pain free?

Dear Francine,

I am sorry you have had this pain for all these years and with little ones to raise...

If I could add a couple of things to Nanowriter's great advice...

Mullein Root is suggested by a couple of herbalists for TGN. It isn't easy to find, but I found some here to use for another purpose and I think it is a good brand:

https://www.beneficialbotanicals.com/tincture-information/mullein-root.html

I would also consider adding extra virgin coconut oil to your diet, up to 3 Tablespoons a day.

Please keep us posted on what you try and how it goes. I hope you will be feeling better very soon.

~Mama to Many~

Francine, you may have a viral infection in the nerves. Dave Thomas uses colloidal silver topically and internally for viruses. You can look on here for his protocols against Bell's palsy, which seems similar to TN.

I like to use vitamin C--make up a paste with it and some vitamin E and place it over the painful area. Other good antivirals are lemon balm, olive leaf extract and lysine (1000 mg 3x per day).

I would just start taking different antivirals orally as well as experiment with some topically and see what makes the pain go away.

Hi, I am suffering from TN for 10 years...I am glad to find this site...just started tonight...not able to sleep (too much pain). It started after the removal of a meningioma tumor in september 2004....the three branches are painful. Please help me here someone...the only thing I know is the meds given by too many doctors over the years make me so sick that I cannot even get out of my house....My younger children (12 and 9) never saw me healthy....i was pregnant with my little one when they remove the tumor...My oldest daughter(18yrs) barely remember...I am so sad and depressed to have loose all these years to be just a spectator of their lives and the life of my husband. May someone can tell or suggest me where I should start with....i am sorry to complain but I am at the end of my rope...

Have to be careful with Schuessler Salts, only 3 can be combined at a time, but can be taken 3 to 6 times a day.

Hello Jana,

Thank you for your addition to the thread...

You add a knowledge of genome and DNA that I am not able to bring...

In your practice do you use Colloidal Silver or just the zapper...or both?

Provided that its primary cause is a single, active DNA sequence in the persistent but non-integrated genome of latent herpes simplex virus type 1 commonly observed in a few infected A-delta nerve fibers in the cheek, the above protocol using COLLOIDAL SILVER (topically and orally) would work. Since we are dealing with virus, I also strongly advise to use orgone zapper (known from Dr. Hulda Clark's studies). I have been using zapper on myself and many of my patients for over 15 years with gigantic amazing results.

Dear Aileen, So glad you are open to "natural"...and if you look under Ailments (Earth Clinic) ... under "T" and scroll to Trigeminal Neuralgia ... the first post if a post by me from a few years ago. Please read the thread and you'll find my proposal for what is causing TN and what I'd try to rid myself of it if I had TN. I believe TN is caused by a virus...like Bells Palsy. Or like Shingles.

Please take a look at what I suggest. I did cure myself of shingles by using this method.

The idea is that something prompted the infection... maybe dental work or a serious sinus infection. And you'd have a clue as to this possible source if you can go back in time before the onset of your symptoms and if you recall a few months/six months or so prior to symptoms, if you had some dental work or a serious infection. That's a clue that indeed the problem might be a virus.

Dear Aileen I understand what you are going through, my husband suffered with this for years. He thought it was a tooth problem at first but the dentist diagnosed it, it was so good to at last have a name to this awful condition . It was so bad he asked me to help him end his life . he couldn't even wash his hair because water touching his face would set off an attack but what helped was acupuncture plus like you said seizure medication. He finally had the operation and has been pretty good since. so maybe that's the way for you to go to, there is light at the end of tunnel.So good luck I wish you the best

Hello, Aileen, Re your Trigeminal Neuralgia. If you go to a thread under Earth Clinic: Ailments and then "Trigeminal Neuralgia" the very first post is my theory and possible help to solving the TN nightmare. Please take a look at it. It is a viral theory of what is going on ... same as shingles and Bells Palsy.

As I read your comment, I think of myself. I came down with Trigeminal Neuralgia 1yr and 4 months ago. I can understand why it has also the reputation of being called the suicide disease. After 4 Drs. and 2 teeth being pulled, I was told about 2 Drs at a university down here in Florida that have been studying this condition for 30 yrs or so. Unfortunately they lean more toward the pharmaceutical industries. So I am now on oxycarbapentine and carbamazepine. 2 seizure medicines.

It has made a differance in my life. I can now live normal. I too was unable to eat, talk, laugh stand up quickly, sit down quickly, exercise. I was on baby food and had lost 15 pounds. (Not good for me). Plus these damn drugs have given me an ulcer. My life had come to a complete stop the nite it hit me. I had to quit my job as a restaurant Mgr.

I love all natural and holistic remedies and cures. I would like to start them but don't know what to do first. Am scared to get of the drugs because the pain was so excruciating. ( And I must say I have a wonderful husband that did all he could do for me at the time even tho he was without understanding the problem That was a huge help. ). Looking for the natural way. Please help.

I have posted on earth clinic before. You can read my post from 2011. You can reach the Doctor who helped me at [email protected]. He specializes in chronic facial pain. My TN type pain also started from dental surgery - surgery to my jaw to get to an infected nerve after a root canal didn't work. I am so grateful that a lady from a trigeminal neuralgia support group told me about her success with Dr. Sprinkle using the all natural Omura protocol. I started in 2009 after being almost completely debilitated from the pain. Took about 6 months for me to regain most of my health. You can contact me at [email protected] if you'd like more information. My heartfelt prayers to you. I had no idea this type of pain was possible and I was an endurance athlete before and used to pushing my body through pain. It turned my life upside down. Let me know if you would like more information. I remain pain-free since the end of 2009.

To Anita from Fayetteville;

Trigeminal Neuralgia issue...

In studying TN, the problem you are having and ask about are very likely an extension of the TN.

Anita, if you read any of my recent posts I talk a lot about my theory that virus is behind a lot of mystery diseases.

I use colloidal silver mixed fifty/fifty with DMSO (google "youtube Dr. Jacob DMSO 60 minutes). If I had TN (like Bells Palsy) I take a white cloth and apply the mix to the affected area. I might use a greater amount of the water based CS, because the DMSO can sting. The idea of such a series of applications is that CS (and DMSO...an anti inflammatory too) can kill virus. Thus, IF the TN is viral based, then perhaps it could be arrested by apps of poultices with such a mix.

That's my theory on TN. That is what I'd do if I had TN.

Trigeminal Pain: I get the icy cheeks, pain in head... But does anyone get the very sore head - scalp where I can't even find a good spot to sleep because of the soreness on my scalp? Is this TN also?

Hello Marie, I am so sorry to hear you have been diagnosed with TN. This site has helped me a lot and I am in touch with some who have tried my 'formula', which I have basically developed from reading different forums and trial and error. I have been pain free for 16 months since going to the laser center in South Carolina, and though I definitely feel it has played a role in my cure, I am not advertising for it. Some have not been helped. But what I strongly recommend is some serious B12 therapy now, shots if you vacant get them and sublingual B12 5000-10000 mcg of methylcobalamin. You really can't overdose on it. Also coconut oil, fish oil, omega oils....you need good fats. Also a lot of magnesium...I take 1000 mg daily of magnesium with SRT. And it totally believe in cell salts, also known as homeopathic cell salts....KaliPhos, FerPhos, MagPhos and CalcPhos. A health food store or naturopath can help you find them. A mixture of four of each in a bottle of water and sipped throughout the day. If you would like to write me my email address is [email protected]

Re: Trigeminal Neuralgia Treatment.? Help me please. What are these cell salts you are referring too? Recently diagnosed and suffering. Willing to try anything :(

Re: Pain Free From Trigeminal Neuralgia. Sonia, your symptoms are very similar to mine. I've been suffering for a year and half - I'm curious if you have found a cure, or anything to help ease your symptoms??

Thank you for anything you can share!

Hello Jessica;

Re TN and using DMSO and colloidal silver...

You ask how long should the treatments be used? Well, I mention a number that I'd use to see if the formula would bring relief. You are certainly perceptive in your understanding of DMSO. DMSO has been a "friend" for twenty years. It is anti inflammatory so by itself (as you mention) it could give some relief and also DMSO is an anti viral or so I've read. But I use it with CS, knowing that CS definitely kills viral infections. So IF TN is viral based, then (like Bells Palsy) in theory the TN could be helped with a DMSO/CS poultice.

I'd apply three times a week for a few months...or until the symptoms are gone. AND, I would drink the CS (without the DMSO) .... two tablespoons three times a day for a few months to make sure the virus is killed in the system. Take the CS orally on empty stomach.

Thanks for this post. how long does it take to cure the virus and how would you know? I just started using DMSO by itself, and it gets rid of the pain immediately. On another page here it says DMSO cures herpes, and since this may be a form of it, then I would would think DMSO would be enough. I need to read up on the silver because I am not sure of using silver in my body.

I have had this pain for 2 years and had teeth pulled. A month ago I quit chewing foods like crackers, meat, etc. as it would start the pain. I would wake up pain free until I had something I really had to chew.So I went to soft foods and it helped a lot.

The DMSO is a God send. Some people are afraid of DMSO, but I began using it back in 1981 and have used it often over the years for other problems and it has always cured them. My blood tests to this day are normal.

Recently I added the B-12 and B-1 mentioned here, and I will continue with it especially since I am almost a vegetarian now, only eating fish and need those vitamins.

As for using peppermint oil, yes, it works, but touching your face with it causes pain, and so when the affects wear off you are in worse pain. Same with Tabasco Sauce or Cayenne. I believe, in spite of what my doctor said, that you should not agitate it by touching or chewing hard foods. This is only my own opinion. The DMSO being in a roll bottle doesn't hurt for some reason. Also I go to the Farm Supply to buy it because theirs is stronger, and they will tell you that it is animal grade and not for humans, but hey, they use it on Thoroughbreds and they don't want their animals harmed. Again, this is my own opinion, but I could never get DMSO from other sources to work for me on anything. And like I said, I have been using it for 40 years.

Like to know if anyone has gone to the LaserMed Center in Myrtle Beach, South Carolina and has had a remission of pain for a year or more, since then? Please let me know. It is a 3 week treatment for the average cases. I am planning to go soon, so I would really like to know if the $ costly fee for the treatment is worth it. It is not covered by insurance, and of course, the roundtrip plane fare costs, unless you live in the state.

Wendy, hello.

Trigeminal Neuralgia some sources say is caused by a virus. If me, I'd apply Colloidal Silver mixed with DMSO, 50/50 and apply topically with a white cloth on affected area. I'd repeat four times a week for a month. The DMSO is a penetrant and carrier and will deliver the CS inside the nerves to kill the virus. Also DMSO is anti inflammatory.

Google "DMSO Dr. Jacobs 60 Minutes" and you'll find a great 3 part series that played on 60 Minutes about DMSO. Also on Earth Clinic under Remedies, there are two articles on CS. Helpful.

Hi, my husband had a operation to stop the whole pain shock waves he got, He lost his job etc due to this. It was too good to be true, and the pain is back after about 3 years. We are just starting on tissue salts and hope it will work. Any other suggestions? Thanks, Wendy

I have been suffering from TN post dental implant since May. It worsened in November when the weather turned colder. As most sufferers will tell you, cold is an enemy of this superficial facial nerve. Although it appears I am one of the few who experiences it in the Ophthalmic branch of the Trigeminal, I still have a portion of my upper lip and cheek involved and have had difficulty eating/ chewing/ brushing teeth/ flossing at times. I have not found the Biogetica products specially formulated for Tn to work for me and resorted to Gabapentin. I was good for about 6 weeks and began to get back into life and have had a week of setbacks recently. Has anyone had any experience with the Laser Med Clinic in Myrtle Beach ?

To Christine,

Re TN...

You ask how to use the Colloidal Silver with DMSO. Easy to do....Apply about two tablespoons of each (maybe more of CS because the DMSO will sting a bit if not sufficiently diluted) and soak a white (WHITE) cloth and apply on affected area for at least ten minutes. The idea is if the TN is being caused by a virus the CS (and the DMSO is anti viral too, as well as a carrier) will kill the virus....

Repeat three times weekly.

I only have direct experience with Bells Palsey which is believed to be a virus running along the side of face; same theory. I killed the BP in fifteen minutes...unlocked a frozen right side of face that quickly. (The RIGHT side of my face was frozen...very embarrassing for a conservative....HA.)

Unless the virus has damaged nerves, results should be rapid. So assuming nerve damage, I'd also take Cal AEP (not just calcium... the key is the AEP) which works to rebuild nerves on cellular level...Google "Nutrition Review, Calcium AEP"... EVERYONE should be on Cal AEP...a miracle nutrient!!!!!!!!!!!!!!!

Can u advise how to apply and what dosage and duration for TM Neuralgia.

I am a patient advocate with the Trigeminal Neuralgia Association. I would like to bring attention to a recently discovered diet for stopping TN pain. Patients in 10 countries became pain free by dramatically reducing the saturated fat in their diet. Dr. Narayan Verma at the 2012 Annual Meeting of the American Academy of Neurology, presented the results of a 14-year study establishing the efficacy of this therapy. Dr. Verma is a professor of neurology at a medical college, in private practice, listed in Who's Who, and authored 70 peer-reviewed papers. Failed percutaneous procedures, radiation, or the MVD surgery do not necessarily reduce the diet's effectiveness. It takes less than a month to know if the diet is effective. For a 10-page report with diet instructions, the amount of saturated fat in 140 foods, and recipes, email a Post Office mailing address to ([email protected]). The report is free to any country. The American Heart Association recommends this diet.

I am interested in learning more about your expedience with Biogetica for TN. Did any of the products cause side effects? Etc. Thank you

Hello Ashwini,

Re how to do the topical application of CS and DMSO for Trigeminal Neuralgia ...

My post on this first cited an authority connecting a virus with TN and then I laid out how to prepare Colloidal Silver with DMSO. I get a white paper towel and soak it till very wet and nearly dripping. Then I apply to the surface of the skin where the TN pain is located.

Please re-read my post (to which you posted on the thread). The article I wrote was precise as to proportions and how often to use.

If you have other questions please write back.

Please elaborate on the procedure. I'd like to try the treatment on using the colloidal silver poultice. How do I exactly prepare it and where do I apply? Thanks, Ashwini

Dear Donna:

you had gone to the LaserMed Center and went about 7 months with no symptoms. then you started feeling some minor symptoms. YOu went back on the cell salts (good choice) but I wanted to tell you that when I called LaserMed they told me once in a great rare time, a patient will have to have the treatment twice. So don't lose your hope about it curing you for life.

Keep in touch and let us know how you are doing.

Pat

I've been dealing with TN for over a year now. During a recent episode, I downloaded a free binaural beats app to my phone that included a pain killer/healing track. It has been incredibly helpful in easing the pain enough that I can function. I don't know whether it really works or if it is a placebo effect, but as long as it lessens the pain I'm willing to keep using it.

DMSO comes full strength. It is a chemical. Bing or yahoo it.

I have tried Colloidal Silver, not much help. My family Dr put me on Time Release Tegretol 400mg. No Help.

He referred me to a Neurologist at MSU. That doctor gave me same drug, just lower dose, (200mg) but x3 morning night. BAD Deal!!! Horrible!

So, MSU doctor switched me to Belcofen (bell+clow+fen) 10 mg 3 times a day - Praise God! Whew! It isn't totaly perfect as I once in awhile have a rough time getting pills down in morning.

I am thinking I may have to increase 5mg, but won't unless under Dr order.

I want to find something nature gives us to fix it. Tired of just more drugs.

The one person said Gabapentin. I take 1200mg twice daily, but that is for the Diabetic Neuropathy.

If anyone has had diabetic Neuropathy, they know it is horrible painful! Again, Nervous system.

Diabetes is taking its toll on me, my last A1C was 4.9, just to let some know, I do take it seriously.

My highest A1C was 6.8 because of an infection.

The best way I can describe TN to people is, take two wires from a AC outlet and stick it to your face!

Someone wrote this part wrong! It should NOT be two (2) Tablespoons.

100 drops of Colloidal Silver a minumum of 10 PPM, and 10 drops DMSO.

Put on a toilet tissue, (on tissue folded into a square [folded and the folded again])

DMSO by itself will penetrate any human skin, even including the tongue. Be very careful with the DMSO as it will penetrate many manmade materials as well.

DMSO is used to carry any type of medicines into the skin and can penetrate quite deeply.

Take care, Colloidal Silver 10 PPM will do things to your face, make the skin tawt. Not pliable. I have used C Silver for over a week without any success.

Some recipes call for 6 applications a day for 3 days. Some say 3 times a day for a week. I think it is basically a trial and error deal. What works for one person may not another.

From reading many people's input on TN, it appears that most of you do not know where TN comes from or its origin.

It originates from the 5th Nerve out of the Cranium. That 5th nerve then seperates into 5 Nerves.

Two of them control the right and the left Jaw areas. The other 3 control the rest of our frontal facial area(s).

I have the Right TN (or right Jaw). That Nerve come from behind the ear. It passes through two Salivia and taste glands.

This is the reason why when we put anything in our mouth, the nerve is instantly affected.

What I have found that does help (drug free) is to mash your toungue to the roof of your mouth, you can then at least swallow. Getting Pills down, this can help emensely!

I have used the internet to my advantage, and I use anything that will give me information! From any website, which includes Amazon.com.

Amazon as most know has Feedback, some of us just say a few words and thats all while others are very elaborate and that is where I found out about Colloidal Silver in much more detail.

Colloidal Silver, there is many different strengths, the Colloidal Silver that is below 10 ppm is not designed for internal use and most is 2 to 5 is for exterenal use only and is a rust color.

For Internal Use; 10 ppm and above is for internal use, it is clear like water.

For TN you need to use at least 10 to 11 ppm.

Colloidal Sliver also will heal other things, such as Heart Burn. for Heart Burn: 3 teaspoons a day for a week. I learned that on Amazon feedback. The fellow taking it was taking for another reason, he had been ailing with it so badly that his diet was affected and taking drugs didn't even help and had aflicted him most of his life. He all of a sudden noticed that Jalopenia didn't bother anymore, he could eat hot sauce and not be bothered by it. Yea, it cured his Heart Burn.

I talked to the local Natural Foods place in town, he told me, it doesn't matter then name brand, what you need to a minimum of 10ppm or higher. Roger's Foods, he sells natural remedies, Herbs, oils, organic stuff and at a price I cannot buy cheaper elsewhere, even including mail order catalogs. $22.50 for 8 ounces of NOW Silver Col.

What kit are you referring to from Glenmark

Just checking in again. I am now 7 months pain free. I had my first VERY MINOR TWITCHES in 6 1/2 months, took cell salts, and no more twitches. I still do sublingual B12 and magnesium. To Pain in Seattle, I sincerely hope the salts are still helping you. I do think they are miraculous. Are you still having the horrible pains since you started the salts? Are you still considering LaserMed? If you want to email me directly, I would be glad to give you my email address. It is donna.j(at)seznam(dot)cz. I would be glad to hear from you (or anyone else still suffering).

Is the dosage of B12 1000mcg, and B1 100mg as specified in the bottles OTC? And how long is the treatment - 8 weeks, 12 weeks, etc. ? Thank you for your feedback, Susan!

Donnac: Sick people are scared. When I was sick I was afraid to buy a $40 can of spirulina even though I had $2000 in the bank. At some point you have to find the courage to experiment and the initiative to take some positive action. The fear of learning anything new can be paralyzing. The first thing you want to do is take 4 cups a day of homemade water kefir. The cost is 10 cents per cup. The next thing you want to do is take some of God's Goodies that are affordable like wyoming clay 5 g 10 cents, organic cayenne 90000hu 1 g per gallon of water 2 cents, dead sea salt for magnesium 4 g 8 cents, water soluable humic acid 1 g 4 cents, and raw kelp from canada 10 g 20 cents. Then increase glutathione with raw whey because glutathione makes redox signaling molecules. Then take absorbable colostrum for the special substances and growth factors. Then you need a good strategy. The best strategy is to get most of your nutrients from raw organic grass fed wildharvested soaked sprouted and ferments foods that have been properly prepared by reputable companies highly recommended by naturopath doctors who understand the way food affects cellular biology and the mechanisms of aging. 2 years ago I was a feeble old man. Today I feel and think better than in my entire life because I take 600 g of raw organic whole dried cane juice and raw honey, 1/2 pound of raw organic berries, 20 g expellar pressed coconut oil, 30 g raw cheese, 12 g raw organic sesame oil, 60 g soaked black chia seeds, 15 g hawaiin spirulina, 7 1/2 g chlorella, 10 g nondefatted dessicated liver, 1 oz. Organic tomato paste, 40 g nondenatured microfiltered whey protein isolate, 30 g raw cocoa powder, 10 g absorbable colostrum, 3 g freeze dried 4:1 goji concentrate, 1 g hawaiin cordyceps, 3 g raw fermented skate liver oil, 30 g raw thai fish sauce that has been fermented for 2 years, 8 drops nascent iodine stablized with alcohol, and 2 1/2 gallons of water. Together these contain over 150 of the most bioactive carbs, fatty acids, amino acids, vitamins, minerals, phytochemicals, special substances, and growth factors that enable the body and brain to function at peak performance. Most of these items are shipped to me at wholesale prices. For inspiration watch raw superfood and raw organic 80/10/10 vegan videos on youtube.

Low Fat Diet May Fail Many for Trigeminal Neuralgia:

This is for Pete and others who have tried the Sherwood low fat diet of 10mg or less of fat a day. I tried it and I tried it for 2 months. It did nothing for me and may fail many others.

There is real facts and research about the low carbohydrate diet and how it has helped children with epilepsy. 1/3 of the children put on the diet had their epilepsy completely gone, 1/3 had it reduced significantly and the last 1/3 saw no improvement.

The Mayo Clinic called it the Ketogenic diet. However, since the advent of antiseizure drugs the knowledge about this diet became unknown; it is easier to treat a patient with a drug than to educate and motivate a family to make major dietary changes.

Well my doctor told me to try the Atkins Diet because it is low carbohydrate. Well I am willing to try anything before I have to go for surgery (ugh-drilling a hole in your brain is the top surgical approach recommended now but often fails)

So please anyone know about low carbohydrates and if it has helped you with Trigeminal Neuralgia, please respond. I know I have heard of one person long time ago, that said it helped her, but I can't find her entry.

Please let us know. Actually the diet allows veggies, salads, and some fruit right from the start, and you do not feel hungry. It increases your HDL (good cholesterol)and decrease the triglicerides.

Please share any information.

Did the homeopathy remedy help anybody here in this? I am on Tegratol 600 to 800 and now 1200 mg and it is increasing.. Any help is appreciated.

Reply to Pain in Seattle.... I'm sorry I have not followed this thread for awhile. I was very happy to hear that the cell salts have really helped you. I just wrote to another person today who has written about TN. I have been absolutely pain free for 6 months now. I am back in Europe, something I thought would be impossible a year ago. I rarely take the cell salts (as you wrote, you only take them when you have symptoms), but I never fail taking the magnesium, sublingual B12 and oil - coconut or olive oil, 2-3 T. Daily. I am still convinced the laser treatment took it completely away. I tried upper cervical twice, but fear it triggered it again. I kind of believe it really would help to continue it, but am nervous to try it now... Let sleeping dogs lie! Anyway, I am again living completely normally, and even without fear. The big thing about the lasermed center is the price. I don't know why insurance won't at least help on it. But I also know from experience that these natural measures made it so I could live with it. Of course, I am thankful to have no symptoms now. I'll try to keep following along... and I'd love to hear how you are doing.

Hi Joy, I can imagine the pain you must be going through. You should alkalize your body, it may give you some relief. You can try with ACV and sodium bi carbonate and also after 30 to 45 minutes of meals 1/4 tea spoon of sodium bi carbonate in a cup of water. You can also apply magnesium oil on the painful area. All this should give you some relief in the pain along with what ever medication you are taking. I am in Mumbai, if you have someone here, I can give some Magnesium Oil which you can try. I can be contacted on 09322887066. Good Luck. Baldev

I am in acute pain from trigeminal neuralgia-treatment. No benefits from allopathic since 10 days.

Laser therapy is a good treatment option for Trigeminal Neuralgia. There is lots of international research that points to the fact that it is an effective therapy for TN. Here is a research link. It's written in medical research terminology but the gist of it is that Laser Therapy works.

http://www.ncbi.nlm.nih.gov/pubmed/11197651

$5600 is an awful lot of money for the treatment plus all the expenses. For that much money you can buy your own therapy laser and have unlimited treatments. In fact you can get one for a lot less than that. Many options out there.

Peace, Steve

Hi Daniela: you mentioned that your mother got treatment at the LaserMed Center in Myrtle Beach, S Carolina. How is she doing now? I am researching this to see if it is a viable option.

It is not covered by most insurances because it is considered experimental. It is about $5600 for the treatment and then add round trip plane fare and motel for 3 weeks and all the other things you need, it is quite a package for most people to pay and the time away from home as well is costly.

SO please keep us informed on how your mother is progressing. Yes, I did call them, and I got one reference to call me back. I am not sure why there can't be more people willing to share, if they have successful results, but there doesn't seem to be more.

I am wary about just seeing testimonies on their websites; just good advertising that is all. I want to hear more from the people who have nothing to gain but want to share how they actually got rid of the agony of TN just for altruistic reasons. So please keep us informed how your mother is doing.

I wonder why Neurologists haven't heard of this? They have heard of Upper Cervical Chiropractors though and it has helped people with TN and is covered by most insurances. So is this worth a try first? I don't know.

Pain in Seatle, Please look up on the net Sharry Edwards (Bioacoustics) plus Bob Beck Protocol & maybe that is what you need to treat your condition.

Hi. Bless you Donna for sharing with us the information about Cell Salts and how they helped you.

I am only 2 wks into the Upper Cervical chiropractor and about 10 days using the cell salts. For some days I have no shocks, for other days, I have 2-3 tiny shocks a day. Big improvement over the agony of episodes that wanted me to end it all sometimes.

Most of the time I go to the upper cervical chiropractor, I don't even need adjustments--unless I have been exposed to something that causes a subluxation of my "atlas" bone in the neck. I can see how I will be symptom free almost every day, very soon.

I strongly recommend the cell salts and the upper cervical chiropractor. It takes an average of 3 months for most people to respond with a 90% symptom free time, with the upper cervical chiropractor, so needing some help with pain (in my case) is advisory. The cell salts help greatly with this.

I also wanted to add something about the LaserMed center in south Carolina. It works with healing the Trigeminal Nerve and has something to do with the DNA in the nerve. I have closely followed the research of doctors all over the world, coming to Florida to do research on TN and they are also thinking it has something to do with the DNA in the nerve; why do some people have such pain and others do not? They believe they will have a cure in less than 8 years.

BUT until then, Upper Cervical Chiropractor has shown to be an overwhelming success with people who have TN. (90% of the time. ) But you do have to go and get checked every 3 -6 months after you are symptom free to make sure no new subluxations that can fray those nerves, occur.

Dear Donna: I kept searching for the cell salts that you mentioned in your blog.

Since the laser treatment at a regular chiropractor, my condition has worsened about 80% or so; it has been 3 weeks and I seem to have it triggered by long noxious odors like bleach, burned gasoline, insecticides, etc. Well each time it gives me episode of horrible pain that lasts for 15 hours or so. This time I also found the cell salts that I ordered in my cupboard (Last night) and tried it. After 30 minutes, the pain went away. I had to do it again, 2 hours later, but then the pain went away. I slept and until the pain came back, took it again, as the company clearly explains to, and the pain went away. I have not had any pain now for 13 hours and if I get the smaller shocks, (as I have been even with the Tegretol for the past wks) I will take it again, but if not, I will assume that my body is healing and balancing itself. One of your cell salts mentions how it heals and balances inflamed tissue, which I think is what happened at the regular Chiropractor, With this K-Laser treatment.

Let me clarify, this K-Laser is about $4000, and my naturopath mentions that they teach the awareness of it for back aches or muscle pain.

Your mixture was nothing short of miraculous for me and the company obviously is very, very generous with their information. I have learned alot and will always have these cell salts on hand. thank you so much. I am early in the use of them, but I will keep this group informed. I am still going to continue to try the upper cervical chiropractor too.

Hi Donna: please continue to check back and let us know how you are with your trigeminal neuralgia (TN). I am researching the Laser Med treatment center in S. Carolina but also have ordered the Cell Salts too. I have also been going to an upper cervical chiropractor only recently. So far my pain has been increasing, with the chiropractor but it has been only 2 adjustments. Just took the cell salts. Can't believe the pain and I am on 600 mg of Tegretol. Must go to another Neurologist too.

Well anyway, I know that remissions of trigeminal neuralgia can make one think that certain remedies work and others don't so it is hard. I tried some Biogetica.com homeopathic stuff for TN and it worked for 2 years but now does not. So I pray your cell salts help me, itleast so I can try the Upper Cervical Chiropractor long enough to give it a fair try.

Going across the country, blindly, to the LaserMed Center is a hard decision. With the treatment costing $5600 and plane fare and hotel fare and everything else, we are looking at $7000 or more for the 3 weeks treatment. And it could be something that only works for a short time. So I am still deliberating on this. I have had trigeminal neuralgia for 5 1/2 years but the first couple of years things seemed to work so much better than now.

So don't forget, keep us informed about the LaserMed Surgery.

My warning, though, don't go to a chiropractor for their LaserMed treatments. After I tried one, stupidly, it has caused me much more pain and now I am in this situation. The LaserMed center told me these kind of treatments at the chiropractor, using the Laser on only the pain paths, can cause more pain. Well of course, my personal experience tells me that now. I wish someone had warned me. LaserMed in S. Carolina, I believe, works on a different principle.

As an energy healer what I do is focus the energy on the trigeminal nerves. It generally takes at least a few sessions to get the pain level down to a manageable level. There are lots of great healers listed on this site as well. But it hardly ever gets mentioned which is a big shame. So many people can be helped by this therapy alone. If there was a distance healing request page we could help a lot of people. Peace, Steve

Hi Steve, do you have any details on the energy healing?

I know a few people that have had success treating trigeminal neuralgia with energy healing. All of the research I have seen on treating this condition with low level lasers indicates that many laser treatments are necessary to have any effect. The initial studies on this said 12 weeks of 2 treatments/week had the best effect. One 5min treatment will have almost no effect at all.

Daniel: You said you had nothing to lose to try this lasermed treatment in Myrtle Beach. Well I tried a laser med treatment from the Chiropractor, just one, and for only 5 minutes, and have been much worse than before I went.

I am talking to the LaserMed treatment center in Myrtle Beach, and it is about $7000 for flight, treatment and a hotel room for the 3 weeks. A pretty expensive thing, but now I am even more afraid to try Laser treatment, since this one caused me so much more agony.

Do you have any insight to give me. I thought I would be able to wait another year for this expensive treatment, but now I am so much more progressed in pain. It has been about 8 days since I had the 5 minute treatment, only to the pain paths, not on the Trigeminal Nerve itself.

thanks

To In Pain in Seattle, I am sorry, I have been travelling and haven't looked for awhile. I am still completely pain free 4 months after the laser therapy so I now believe it really did help. In answer to the cell salts, go ahead and take the 30C. There is a homeopathic mixture called nerve fix all one word.... It has the ingredients I use plus a few more. I haven't tried it, but since I am pain free now I am not even using the salts. There are some interesting articles on B12 and B1 for TN. I still take my oils, magnesium and B12. I will try to look at this site more often...

Please Wes, tell me how long did the pain free or remission of severe pain last from the laser treatments? Your entry is in Feb 2012. We hear nothing of you since. We need to know. How long have you had TN too?

For Trish: Ratio should be the same for each; one cc of B12 and one cc of B1. B1 is the painful injection. My doctor gives me some lydocaine to help dull the pain. Another course of action would be to get just the B12 injection and take a good B1 complex vitamin. Get the B12s twice a week, and take the B1 vitamin orally everyday.

I have also noticed my shocks get worse from Splenda. So I did some research; yes, Splenda can cause seizures in people who have never had seizures before. Very strange.

So watch your diet; it is important.

Hi JsMom from NC: you said your mom was diabetic and a high fat diet is not an answer. I have heard that low fat diets help some people with Trigeminal Neuralgia too. They must be under 10 mg of fat a day for it to work, and it takes about a month to tell if it will work for you. Many have received relief from this diet. I am guessing that the fat in your diet may make the blood vessels slip more against the trigeminal nerve.

Well anyway, someone did a complete research study on this and contacted people to try this diet. Not everyone benefitted from it but many did. Worth a try. It least it is good for your heart.

I also have Type 1 TN but for the past couple of years, when I have the shock-like pains in my right temple, it almost always seems to be connected with having a lot of pain in my right hip and thigh (I also have fibromyalgia). Sometimes a chiropractic adjustment will completely relieve the pain, but other times it doesn't help at all. Has anyone else experienced this?

oh my god, yea, me too! I'm 18 but I think I have this terrible symptom.. how could teenager get this symptom? First time this disease came is when I have wrong sleeping position. ah :(

In what ratio?