I have been following this subject for nearly a year, when my Trigeminal Neuralgia (TN) began. I was only on Gabapentin for 2 weeks before I really got help with homeopathy. It was temporary, but it started me on my course of natural methods for fighting/living with this condition. I am virtually pain free now (though I am still nervous about it coming back). I attribute my help to 3-4 things that I do daily. I take 3 T of coconut oil a day plus 2 t. Fish oil - but I think the important thing is to get enough 'good' fats in our diet. (I ate low-fat for years... Thinking I was helping my body, but I now know we need good fat). I take 600-1000 mg of magnesium a day. I have discovered Magnesium with SRT, which is timed release and doesn't cause the problems with loose bowels. And I take sublingual B12, 10, 000 mcg daily. But what has really helped me the most is Cell Salts. They are homeopathic in nature, and it simply works. (For me, at least). I take Cell Salts, 12X strength and I take this mixture once a day for 10 days. The basic rule is to take them until your symptoms stop, and then don't take them again until they start again. My formula is: 2 Kali Phos, 2 Mag Phos, 2 Calc Phos and 2 Fer Phos - I take all 8 tablets first thing in the morning - you should not eat or drink anything within 30 minutes before and 30 minutes after any homeopathic remedy. I also visited a laser center in South Carolina. I think it helped, but I am sure my regime has helped me more. It's worth a try... I constantly research this, as I don't want to take the hopeless medical route and I have met people who have had the surgery and it didn't help.... I hope this helps someone.
Can you tell me specifically what kind of facial stimulation you did... E.G., Scenar. Also, can you be more specific on B12?
Colliodal Silver, DMSO
Myself, aged 76 suffering from TN read an item about treating with colloidal silver and DMSO. Is it possible to get detailed procedure about this from illustrator. God bless.
Where exactly do you apply this poultice??
Alkaline Diet, Peppermint Oil
There is an interesting scientific paper in "Medical Hypothesis" 2002 Nov, 59 (5): Issue: "Are latent immediate-early genes of herpes-simplex virus-1 essential in causing trigeminal neuralgia. " Source: Biology Department, Medical University Syracuse NY. "Abstract: The etiology and pathogenesis of major trigeminal neuralgia remain largely unknown, but are believed to result from an irritative lesion near the semilunar ganglion. We suggest that its primary cause is a single, active DNA sequence in the persistent but non-integrated genome of latent herpes simplex virus type 1 commonly observed in a few infected A-delta nerve fibers in the cheek. Facial pain occurs as a result of herpes virus reactivation and when supplies of neurotrophins controlling normal transport functions of axolemmal ion chanels become depleted."
The paper gives a theory as to causation althought not a remedy. My suggestion is as follows which will kill viruses of all kinds.
A person who is seeing cases of mono, ear infections, sinus infections, cluster headaches, migraines and Bells Palsy might see this type of TN infection also. I gave my own personal experience in the Earth Clinic Bells Palsy thread. I futher hypothesize that hormonal issues may be a triger to the viral activation which might explain why females are more often effectd than males.
A possible attack on the TN virus is to use a topical application of fifty drops of colloidal silver and add ten drops of DMSO to make it penetrate through the skin into the nerve. Apply as a poltice with a white paper towel and let it sit for fifteen minutes. Press against the paper towel to be sure the liquid absorbs into the skin. Be sure to use a white paper towel and do not have any other substances on your fingers. (The DMSO is a carrier, solvent and penetrant. ) Do this procedure at least six times over a two day period. In theory, the silver will kill the virus. Same procedure for Bells Palsey. Shingles too. God bless.
Oldriska: You seem to be doing some good therapy. Try taking the MSM 2 or 3 times thru the day and not before retiring. Take the Amino Acid GABA (1 grm) before retiring. Try Mineral hot baths (which is good for about everything). I use Agriculture grade micronized minerals from local farmers supply co.
Hi everyone, I suffer from atypical trigeminal neuralgia, for which I take Lyrica, antidepressants, sublingual B12 and magnesium.
I've recently added MSM to my daily regime because I read many positive reviews on this supplement. I have since noticed that my pain has gone up in intensity, and I started getting pain also in my knees and arms and I pant like an old dog when I do any simple physical activity (I am 33 y.o. female and used to be in good shape til ATN hit me last year). I take the powder form, 1 teaspoon in a glass of water before bedtime. Maybe it's too much? How long does it usually take before one notices any positive change?
Many thanks for your replies, Oldriska
Hi Bonnie and Carol: in regards to Phosphatititdyl Serine of 100 mg a day, it is researched on the web as helping with memory and cognition and is important in the cell structure esp. Of the brain. It improves the cell membranes so it might help with Trigeminal Neuralgia.
Unfortunately, with TN, it is difficult to tell what really helps unless it is used for a long period of time. This is because TN has periods of remission and unless something has been helping for almost a 7-8 months or a year, it is really hard to determine whether it is the treatment or just a natural remission of the disease. I have had remissions but usually only for a month or two.
So Carol, I am asking you again, if the Phosphatitdyl Serine is still helping you with the Trigeminal Neuralgia, before, I again, try another supplement for pain. It is so expensive, and I have pill bottles that I can't use as it is.
I have also found that joint supplements, such as Hyaronic Acid, seem to make the TN worse; why I don't know. Maybe in its attempt to make things more lubricated and flexible, my arteries and nerves are slipping around against the Trigeminal Nerve more. I am wondering is anyone has experienced this before?
Hi again; this is P from Bothell. I have found that taking Glutamine helped me heal faster from the gluten allergy and the malabsorption problem and also prayer (bigtime) and now I seem to be able to go with just one B12 injection about every 6 days or once a week for maintenanance (of no symptoms. ) this is considered (I believe) a therapeutic injection, on my insurance but would like insurance companies to know that this is for pain control. Still have out of pocket expenses (such as co-insurance, about $10. 50 an injection) but it is worth it if it controls the pain. B12 (hydrocobalamine) is FDA approved and B1 complex given together in one injection is what I have been recieving. All B12 has to convert to methocobalamine to be absorbed by the body. Stay away from cyanacobalamine-it is not the same thing... And has cyanide in it. Few traditional doctors know this it seems.
Hope this news helps someone. I did try the biogetical herbs but after 6 months they didn't help anymore. The B12 seems to be working...... So far... so good.
My advice to T. Smalls is get the B12 and B1 injections (in one injectable)for Trigeminal Neuralgia or go to a certified homeopathic doctor who can prescribe an individual treatment plan for you, if the Biogetical herbs stop working.
I just wanted to update my previous post on 7/3/2011 that I am still pain free from using the Omura protocol (an all-natural treatment) prescribed by Dr. Allen Sprinkle in Arlington, Texas. I used the Omura protocol for about 6 months continuously and now just take a fish oil capsule maybe 10 times a year if I'm under a lot of stress. (see previous post for Dr. Sprinkle's contact information) In my previous post I described how my pain started after a dental surgery to my jawbone. I can still be reached at batz(at)windstream.net and I can also be reached at zoetrail(at)gmail.com. I have received several inquiries from this post on earth clinic and sincerely hope that anyone who suffers from this pain will find help here. I am so grateful that Shelley Wilson of a TNA support group in Dallas Texas told me of her successful treatment by Dr. Sprinkle and led me to him. Dr. Sprinkle was able to determine (where other western medical doctors couldn't) that my trigeminal nerves were infected with the chickenpox virus and prescribed a specific fish oil, cilantro tincture, and an acupuncture roller. If you have ever had the chickenpox as a child it will lie dormant on the nerve root and may come back in adulthood as shingles when triggered by stress, etc.
In my case the surgery to my jawbone activated this virus and it travelled internally (I didn't have any external shingle sores) deep into my jawbone and ear. The pain was beyond anything I had ever experienced. Again, I am more than willing to answer any questions and I hope for anyone suffering with this disease that you find relief here. God Bless :)
Alkaline Diet, Peppermint Oil
If you were able to rub oil on your face I assume your pain was minimal. I could not touch my face much less talk, brush my teeth or eat when inflicted.
To Diana, from Las Vegas, Nedada" could you please disclose the website and the laser treatment for trigeminal neuralgia?" Thanks.. Maria from Sydney.
My mom has TN. She started out with diabetic neuralgia, got shingles and the neuralgia moved into the trigeminal nerves. She doesn't have excruciating pain any longer, but has almost constant burning in her head and that side of her face. She had to stop the seizure meds as she is 83 and could not handle them. She is still taking Gavapentin, but it doesn't help. Obviously with her being diabetic, a high fat diet is not such a good idea. She already takes fish oil daily. How much B12 should she take. Is there anything else that anyone has found helpful???
Alkaline Diet, Peppermint Oil
Peppermint oil gives you instant relief but you will have to address the cause of trigeminal neuralgia for complete relief. Here the problem lies in the nerves. One will have to decrease their sensitivity and also help them in strengthening and calming. One can try Biogetica essentials kit with HMYLN myelin sheath sarcode formula to relax the nerves and to improve their motility.
Dear T. Smalls, I have been on the Biogetica.com herbs for about 2 weeks. Pain has gotten worse with pain meds --up to over 1200 mg of Trileptal and sometimes still get really bad pain attacks. Small shocks during the day. How long do I have to wait until the Biogetica.com homeopathic pellets work? How long did it take for yours to work? do the herbs they have help it?
Hi. Yes I have just started Biogetica.com again, with the homeopathy for Trigeminal Neuralgia (OM 13 and Trigeminal Neuralgia CM the Ayruvedic herb combination) The herbs are something new for me. Maybe they make the homeopathic pellets work faster. I am also on 900 mg of Trileptal right now for pain until the Homeopathy kicks in. My question is how long did it take for the pellets to start working for you? This is the first time the trileptal at this dose really doesn't relieve the shocks so I need someone to tell me how long I need to wait. Thank you.
Also I found that B12 injections, took me about 2 months before they started to work to reduce pain. It allowed me to reduce Trileptal to 225 mg instead of 900 mg. (but couldn't get off the pain meds without more symptoms but only tried B12 for 2 1/2 months) I found the injections hard to continue- (cost and inconvenience) so I am transitioning from that to homeopathy now-unless I can't wait and the pain gets too bad.
How long were you on the homeopathic remedy before you noticed the pain was gone? did you ever go back on the Trileptal?
Hello, I owe it to God and everyone who suffers from TN to share my story. I started suffering from TN in a very mild was about two years ago. I would notice a small zap periodically when I brushed my teeth. Three dentist all said there was nothing wrong with my teeth and because it would go away quickly, I didn't look further into the pain. However, 1 year later as I was going through a nasty seperation and divorce, the electric shocking pain became a whole lot worst radiating from my L jaw to my ear. It went from jabs to 3-4 minutes of high voltage shock. I would shake for 30-40 minutes after an episode. I finally went to the ER and was given gatapatin, and perks to no relief. I then saw a Neurologist who put me on a high dose of Tegratol, to little relief, and many side effect (mood swings, depression, loss of memory) I then had surgery to sever the nerve ending which was bumping an artery. The pain went away.... For 2 months and came back 100 times worst. I woke up screaming in the middle of the night as my face was being electricuted from within. I was then places on a high dose of Trileptal, to little relief. Then I became pregnant and my Neurologist basically said I can't do anything for you stop the Trileptal due to the pregnancy...
This is when I found Biogetica through an angel on an Online TN support group site. I immediately ordered the TN relief kit and have now been pain free for 2 months straight and counting. I am so thankful for Biogetica. These homeopathic herbs work wonders. I would suggest you look into it and give it a try.
I have tried and had success with the Laser Med Center. It has reduced my pain by about 80-90%. I have had no "episodes", but I have had cycles where I still feel "twinges". They come and go, but they are nothing like the pain I used to have.
Has anyone tried the DMSO nasal spray for Trigeminal Neuralgia. I assume this is diluted... If so by how much and by what? distilled water? EC, if you know what the original author meant, pls let us know. Thanks so much.
Sheila: Hi. I figured that I had a malabsorption problem because it usually accompanies a gluten allergy. My Vitamin D levels were only on the small side of average (after a blood test at the doctor) and that is after taking 5000 mg a day of Vitamin D. I also tested for thyroid antigens of TPO and TGO and they were really off the normal amount. I am not sure if you have Classic Trigeminal Neuralgia or not, but vitamin B12 injections take some time to work; about 8-12 injections over a period of a few weeks-and then they do work for the above disorder. Taking oral vitamin B didn't work for me, as it might for others who do not have my disorder. (classic TN)It is important to be diagnosed with the correct disorder so you know what will be effective or not.
My best advice to you is see if your doctor is willing to give you the B12 (methocarbo--with the B1 complex- 1cc of each) it least twice a week, and don't go off the antiseizure meds until you see a real reduction in symptoms. B12 injections are now covered by my insurance company (Regence of Washington) Some neurologists are also prescribing oral B12 but the oral kind is not potent enough for me. (ho hum.... ) MS patients also are being prescribed B12 injections. It helps the pain and disorder of the nerves.
Another way to help the pain is to try homeopathic remedies. We get a lot of our prescription drugs from India in the US. (such as glenmark mfg. ) I have used their kit for Trigeminal Neuralgia. It can take 1-2 months to work though, but gradually you will see a reduction in symptoms and can get off your anti-seizure meds completely in about 2 months or so.
Hope this helps. I know my neurologist advises surgery for everyone but I will wait as long as I can.
Better But With Side Effects
Just wanted to warn people: after my 4th adjustment from the cervical chiropractor, I had about 14 shocks in a 3 hr period following. I think I irritated my nerves more and sometimes things have to get worse before they get better--but I don't want to continue. For some people, this manipulation may work, but be aware that it can be painful at first, for Trigeminal Neuralgia.
Sheila, you can get a hair mineral analysis done. That should tell you whether you are lacking in minerals.
Do you drink much diet soda or sugar free foods? Artificial sweetners? Chewing gum. Processed foods? Energy drinks?
Ringing in ears is a major symptom of aspartame poisoning. There are other major problems associated with aspartame consumption. I am just throwing it out there for your consideration and to rule that out if you do not consume those.
Can someone tell me how you figure out if you have a malabsorption problem. My condition sounds somewhat different than some of the posts I have read here. I am in pain everyday. I'm not sure how you really confirm the diagnoisis? I am going downhill fast. I am trying to get into mayo, they gave me an appointment 2 months from now. I am barely functioning. I also had numerous dental procedures. I have horrible ringing in my ears.
Of course the neurologist I have seen has put me on multiple anti-seizure meds, none of them work well, but when I stop, I have one major attack after the other. I am so worried about losing my job after 23 years. This is terrifying! I went from being perfectly healthy to having so many ailments, I have no idea which ones are related. I would honestly welcome surgery at this point. How do you figure out how much of the B12 you should take? Is there anyone that has actually tried the laser med center?
Vitamin B Depleted by Flax Seed Connection
I'm a 34 yo guy from Israel, suffering 'just' a year and 8 months... after a tooth filling at the lower left molar tooth.
I suffer from constant pain all day and night... It's not a life worth living. I was a healthy guy.
And although I went to tens of doctors (took neurological medicine etc. ) - still don't have a solid diagnose. I feel that saying "atypical facial pain" - is like saying - "we don't really know - we don't really care". I still feel there's something dental that's wrong in my mouth.
Also - my jaw bone at this side of the face changed during this year. It got more "pointy". Or "boney". and by touch it feels like a very small bone grew in the angle of the mandible
Anyone had that? (a slight change in thier bones?)
Don't know what it means - and what to do with the pains...:(
Upper Cervical Chiropractics
I was trying the oral B12 B complex (the active forms) but after awhile, the shocks started coming back quite alot. I am back on injections for now, which seem to help completely. But I have also found that going to a upper cervical chiropractor may help many people with TN. It helped me immediately.
The upper cervical chiropractors are highly skilled in the spine and neck regions. A slight adjustment (hardly noticeable) puts your neck straight and then the spine follows. This allows the nerves to work properly and must have moved my nerves off the wrong portion on the skull where the Trigeminal Nerve lies. All I know is that it stopped the shocks. I have to be careful what I do to my neck now, and I follow the doctor's advice. I will still take the B vitamins, but because of a malapsorption problem, my body just doesn't assimilate it as well as it could. It maybe a year before my body heals from the gluten I have been giving it. I am very gluten intolerant and that can cause your body to have problems storing and activating nutrients.
Look up NUCCA, which stands for National Upper Cervical Chiropractors Assocation and see if you can find a referral list for one in your home area. Then don't wait, but go. It is the best decision I ever made. There is no painful period afterwards, either, as you hear there is from osteopathics. Just relief... Some people may take more than one adjustment for total relief... but I think it works great for this affliction.
I think I have a malabsorption problem too. Have you read about Mastic Gum? It come from Chios, Greece. It has been known to cure a lot of digestive problems, which can be the source of many ailments. I took it a few weeks ago and now I am so "regular. " IBS symptoms gone!
Do you continue still with the iodine? What led you to discover this? (in other words, is it doctor prescribed?) Are you able to skip a day or more not doing the iodine and does the pain still stay away? How long have you been supplementing with the iodine? I have heard of this treatment for other ailments but never for TN, but obviously naturopathic treatments are just starting to become more public with the internet.
I am not sure if there are any side effects to iodine overdose or not. I will definitely ask my doctor about this. I am glad that you found something to help you.
Methyl-B12 orally or injections have been known to help with Trigeminal Neuralgia for a long time. Naturopathic doctors and some traditional MDs know about this treatment which does not have any side effects of overdose. The good thing about B vitamins is that your body excretes any excess it doesn't use.
Thanks for your tip about the iodine.
Hello: I have Trigeminal Neuralgia and this particular nerve that goes through my left cheek, is somehow affected by the Sinus just above it. I have found that Lugol's Liquid Iodine (5%) starting with one drop per day, and adding an additional drop each week, took care of all the pain by the fourth week. Not to mention many other benefits.
Bonnie in Canada
Hi Pat - You were looking for other ways to take B12 instead of sublingual or injections. There is a B12 spray from mercola.com.
Also, if you do an Internet search for DMSO B12, some people have mixed the two and applied to the skin. You will need to read up on DMSO before trying this. Earth Clinic has the following page:
Good luck Pat! Bess
Happy thanksgiving, Connie. Happy Thanksgiving Deidre who has given us this opportunity to frankly advise and report to each other about what can help this most horribly painful condition.
I am back on a Homeopathic remedy which does seem to help in about 3-5 days. I am also on 2 injections per week, until I get tests to see why I can't hold or absorb the B vitamins like most people.
I need to find a way to take sublinigual Methyl B12 and the B complex vitamins orally, instead of the expensive injections. I am very terribly afraid of needles and don't seem to be able to do it myself. Even giving it to myself, it would cost about $100 a month from a safe and reputable place I trust. It only costs about $20 for 2 months for the oral Methyl B12.
The doctor can't figure out why this form of B12 )dibenzocide)hurts my nerves more and wonders if it is something else in the product. But 2 different products with the same version of Active B12 hurt my nerves, so I am staying off it.
To report: my nerves are better, much better today. Only feel a little symptoms, nothing worse. When I stop feeling any symptoms, I will get off the homeoathic remedy (which has almost saved my life this past year-but doesn't really heal the problem-just masks the symptoms)
SO I need to find a sublingual B-complex that doesn't have PABA in it. I am allergice to PABA and find alot of people are as well. IT can almost put me in anaphylactic shock, so I have to not buy the same B complex you use. My doctor says to try to get a sublingual form of B complex-yeah, good luck without the PABA.
Any way, also, my doctor says it should be safe to augment my injections with 4000-5000 mcg of the Methyl B orally a day, and a B complex, when I don't get the injections that day. It can't hurt you since your body gets rid of any extra B12 it doesn't need.
I would advise people to try the Methyl B12 who have any nerve, brain, problem to help them, cause it is pretty safe.
It lease I haven't had a full=blown attack since I used the homeopathic remedies. My last full-blown attack was when I was diagnosed with TN almost 2 years ago, (in Feb)A day I will never forget.
Hope this info helps others. If anyone wants to buy homeopathic remedies that help with the pain safely, until you can figure out what med plan works for you best, then others can log into: biogetica.com. Try the $55 kit-it should last about 2-3 months--it is safe and it really takes the pain away.
Have a wonderful holiday,