I was diagnosed with IPF 2 1/2 years ago. My very experienced pulmonologist said I would be lucky to make it 5 years. I am a chiropractor and the pulmonologist said it probably started from 40 yrs exposure to xray developing chemical. I'm not convinced of that, but I know I have IPF. I am in a unique position as that I utilize a Class IV laser in my office. I began using it on myself as soon as I was diagnosed. I returned to the pulmonologist a month ago after my third CT scan. There has been no additional fibrous tissue in the lungs in the 2 12 years since starting laser therapy, and my pulmonary function tests have actually improved each time, having had 3 total. My doctor said he has never seen this before in his entire career, where the IPF became static and function improved. I refused prednisone, Esbriet, etc. though I do use an inhaler on occasion.
The laser reduces inflammation with a photochemical process. When treating musculoskeletal problems it heals tissue faster and with less scar tissue. It could be that it is keeping more scarring from taking place, but it is not actually removing it. I still have a cough, but much less frequent and severe. I'm still working and playing hard though looking at retirement fairly soon. I'm 64. The dose with the laser I use is 10 watts, 4 minutes on the front of the chest and 4 on the back for a total of 4800 joules. I started with twice a week for the first month and then went to one treatment per week. I know this is working for me and I feel like I got my future back. If I don't get worse than I am, I can live very healthy for a very long time. My goal is 20 more years. If this post helps anyone else with this horrible disease I will be thrilled. It's wonderful to have hope. Dr Hall
(Maple Ridge, Bc)
In response to:
Posted by Sweetdevilwitch (Bandar Seri Begawan, Brunei Darussalam) on 05/17/2011: "Good day to you. How are you? I have my yearly x-ray last march, and the result were alarming I got a small pulmonary calcification but on my x-ray last year I dont have any problem. What should I do to get rid this calcification?:
I read in a book (Maria La Justicia Bergasa, she is from Spain) that some people got cured from pulmonary calcification using magnesium chloride.
I didn't mention it in the new COPD post on EC, but while melatonin is useful for COPD, it is also useful for Idiopathic Pulmonary Fibrosis (IPF)! Here is a link to the new COPD article :
Here are links to studies of melatonin and IPF :
Melatonin is not a one trick pony and has shown efficacy in multiple health issues, yet doctors seem to mainly prescribe it as a sleep aid! If melatonin could become a patented prescription drug, it would be a blockbuster drug for what ever drug company held such a patent!
There have been quite a few posts on EC about people looking for help for IPF, but I have not seen any posts discussing melatonin and IPF.
Here are some fairly recent studies suggesting that melatonin may offer some help in this area. Melatonin has a very good safety profile and is naturally produced by the human body suggesting a lower potential for adverse reactions. Melatonin is also readily available here in the states and is fairly inexpensive.
Given the severe nature of IPF, it may be beneficial to look at as many options as possible and determine their relevance for your particular situation!
Please look into melatonin and NAC for IPF. Check out these research studies for melatonin:
And for NAC:
Hello. I am wondering if anyone might know of anything to help my grandfather whom is 77 years old and suffers from Pulmonary Arterial Hypertension as well as from Idiopathic Pulmonary Fibrosis. For the IPF, we have been doing the Hydrogen Peroxide inhalation method, along with colloidal silver, several different supplements, (such as seaweed, vitamin C, collagen, etc. to name a few) along with his prescription medications that are prescribed to him by his lung doctor, and of course he is also following these treatments with a healthy organic food diet along with exercise. Seems to be working well for him as far as treating the IPF.
My reason for this post is to ask if anyone is aware of anything we could be doing to treat the PAH....As it seems to be the more threatening or problematic of the two diseases. His heart doctor has suggested he use Sildenafil, however it's been about a year now that we've been waiting on the doctors and insurance to get everything approved for him so that he can finally get this medication, and still don't have the authorization yet. PLEASE HELP!! My grandfather is a wonderful man and we need help to fight this. We are about four years post diagnosis and times ticking. I have faith that someone somewhere might know something, anything, that can help with fighting and treating this PAH.
Thank you. God bless.
My response to all the people whose loved ones are having lung issues.
Listed below are some remedies,
- Exposure to sunlight.
- Body Massage.
- Castor oil packs.
- Serrepeptase-an enzyme.
- Turmeric taken with oil and pepper.
- Aloe Vera.Pineapple.Cod Liver Oil, Fenugreek, Tulsi, Figs, Liccorice, Onions.Garlic,
- Ginger.Black Pepper.Ginseng.Ajwain seeds.Star Anise.
- Quercetin-is a flavanoid found in fruits and vegetables.Quercetin supplements can be purchased online.
- Nigella Sativa(Kalonji or Black seeds).
- Honey.Vitamin C.Vitamin A.Zinc.
- 6-8 glasses of spring water.
- NAC- this is a supplement. it helps to produce Glutathione, a master antioxidant in the body..It can be purchased online from Amazon or IHerb.
My wife was recently diagnosed with IPF. We are currently doing a series of Hydrogen peroxide IVs and Taking Serrapeptase,MSC and COQ10. She is also on nightly Oxygen. I am concerned that the oxygen may become habitual and may even be a detriment. We are hoping for a cure or at least a stop in progression. What do you recomend? Thanks Jack.
IPF: After a triple coronary bypass about 2011 about 3 months later I noticed a continuing discomfort around my upper left side of my chest. A referral by my cardiologist to a pulmonary specialist discovered my IPF. He prescribed an albuterol compound for my nebulizer and to sleep all night with oxygen. By my second lung function text it showed a rapid deterioration in my ability to process ambient air. The Dr. arranged for me to receive a new medication called Esbriet (54 mg daily)with little results.
I located a holistic doctor who is a board certified doctor of internal medicine with 29 years of experience caring for mostly refinery workers which fit my life profile perfectly. She put me on 1800 mg of Nac daily and later Nac liquid for my nebulizer. My last lung function test after about 3 months on this protocol showed about 7% improvement across the board, which pleased her greatly. She recommended that I consider 35% food grade hydrogen peroxide intravenously 2 times a week for the next 10 weeks. I have located someone who will do this and I will begin this treatment as soon as I save up the money. I'l let ya'll know what happens. I'll see what my JESUS wants, (amen)
Please check this link about NAC for lung diseases including IPF. http://www.lef.org/Magazine/2010/5/N-Acetyl-Cysteine/Page-02
NSIP Pulmonary Fibrosis:
Just diagnosed at mild to moderate stage, but had been taking NAC with Selenium twice a day and also herbal Clear Lungs, very helpful with breathing. I need it in the emergency dose of every 4 hours. The product does not claim to be a cure, but does claim to help breathing and it does and acts quickly as it claims. No side effects. My MD recommended Selenium via Brazil Nuts. My specialist prescribed more NAC, but also Prednisone, Azathioprine,whose side effects sound so horrific it seems I would be sicker than I am now.
The Albuterol spray was given at the testing site, to which I immediately felt ill and had a severe headache. I have severe congestion of the tonsils. Is this usual, the doc thought it was unrelated. I have to avoid wind, fans, forced hot air etc because it sets me off, also I have allergies.Particularly to dust and dairy.
I certainly intend to try your suggestions. Would love any input and advice. Blessings to all.
EC: NSIP = Non-Specific Interstitial Pneumonia
NAC = N-Acetyl-Cysteine
I have pulmonary fibrosis and have been treated (without result) by the standard medical method and I am now trying systemic enzymes (dispensed by capsule containing various enzymes combined in a very specific amounts for each of the dozen or so enzymes). This treatment has only been going for 2 weeks and although there are some positive signs it is still too early to make a definitive assessment. For instance, my voice has almost returned to normal and I can now sing once more.
(Cessnock, NSW, Australia)
Anyone want to get rid of IPF (Idiopathic Fibrosis of lungs), please try homeopathic medicine....Nitrium Phos 200. Take this medicine everyday and be happy and trust in God. Please try to be happy all the time. Worries only add to the disease.
I also have IPF, for 4 years now. They put me on OFEV. I took it for a couple of years but I just got tired of all the side effects. As to the cost, $9000.00 a month but I paid nothing. Have your Doctor contact the company that makes it and they will give you a grant for the cost.. Good Luck.
OFEV Side Effects
My husband was just diagnosed with Pulmonary Fibrosis, although I hear he is at beginning stage. Just out of the hospital a few days ago and we are doing our first follow up with our Pulmonary doctor tomorrow. He has talked about Ofav, however, here in the states it's outrageously expensive, $2000-$5000 for 60 tablets. How in the world can you afford it? I see you are out of the country. What is your cost where you are. Hope you will respond.