Acetyl-L-Carnitine
Posted by Mike (New York City, New York) on 02/09/2009
★★★★☆
I have been taking Acetyl-L-Carnetine for a couple years to combat my peripheral neuropathy. It has been recommended by a neurologist in New York. My feet are progressively doing worse but I don't know how much worse they would be without it. I also take Alpha Lypoic Acid. I take about 3000mg of Acetyl-L-Carnetine a day. I am looking for whatever works. I have the neuropathy through anti-hiv meds and possible from the virus itself.
Replied by Robert
(Manhattan, New York)
02/10/2009
Replied by Brad
(Owensboro, Ky)
01/14/2012
★★★★☆
Replied by
Timh (Louisville, Usa)
01/16/2012
2048 posts
Replied by Gord235
(Vancouver, British Columbia)
10/04/2017
Replied by Gord235
(Vancouver, British Columbia)
10/10/2017
★★★★★
Replied by Rosy Giana
(A)
10/29/2017
Replied by Soazburrolady
(Az)
10/30/2017
Replied by Gord235
(Vancouver, British Columbia)
11/07/2017
Replied by
Art (California)
11/08/2017
2294 posts
Lily
(Kelowna)
03/24/2021
Clatterbuck
(Beltsville, Md)
07/10/2021
Novella
(Lyons, Colorado)
07/21/2023
Replied by Gord235
(Vancouver, British Columbia)
12/14/2017
Replied by Gord235
(Vancouver, British Columbia)
01/01/2018
★★★★★
Replied by Gord235
(Vancouver, British Columbia)
04/10/2018
Replied by Gord235
(Vancouver, British Columbia)
04/23/2018
Alpha-Lipoic Acid
Posted by Kildonon (Ohio) on 06/08/2023
It turns out I am allergic to ALA, I have tried several brands and it appears to be the actual Alpha Lipoic Acid and not an additional ingredient (such as an anti caking agent). I had swelling in arms and legs and breathing trouble similar to when I have an asthma attack. If you decide to try it, please be careful.
Replied by
Art (California)
06/08/2023
2294 posts
Alpha-Lipoic Acid
Posted by Stephanie (Ma) on 07/27/2013
★★★★★
In Germany the treatment for peripheral neuropathy is IV alpha lipoic Acid. It's even covered by insurance. Has anybody used this therapy with success? And if so what doesage in mg did you use. Thank you VM.
Replied by Gord235
(Vancouver, British Columbia)
10/04/2017
Replied by Gord235
(Vancouver, British Columbia)
12/14/2017
Alpha-Lipoic Acid
Posted by Danielle Renee (Ocean Shores, Wa Usa) on 02/27/2013
★★★★★
Have you tried Alpha Lipoic acid? It really works for me and not too expensive. I think the directions say two a day. I take three a day and NO PAIN!
Replied by Robert Henry
(Ten Mile, Tn)
04/25/2016
Replied by Mary
(Europe)
02/27/2013
Alpha-Lipoic Acid
Posted by Courtney (Granite Bay, Ca) on 01/14/2012
★★★★★
Neuropathy - have you tried Alpha Lipoic Acid supplements? It completely cured the neuropathy in my feet. I remain amazed at how well it worked.
Alpha-Lipoic Acid
Posted by R. (Dallas, Texas, Usa) on 05/16/2010
★★★★★
Peripheral Neuropathy: Better But Not Cured: If there is a cure? Just wanted to update with the latest from previous post. 3 months ago Rob and some others suggested Alpha Lipoic Acid. I have taken this for the last 3 months, and it has gotten much better! I started out with 1 100mg tablet, three times a day, and have had to add a 100mg tablet twice in 3 months, because the discomfort returns. But as soon as I up my dose, it goes away. I am currently taking 500mg a day. I guess I keep upping my dosage until I reach the maximum, then what? lol..
B-12 Injections
Posted by epeach (United States) on 05/07/2020
★★★★★
Use of B12 for Peripheral Neuropathy (not from Diabetes)
I fell over 2 1/2 years ago and broke my back herniated some discs, and twisted my leg in the fall. I reached out to Earth Clinic immediately for help and too many to name came to my aid with wonderful advice.
Thank you! Neuropathy pain began to develop my back, bottom, hip, leg, and foot. It was soon diagnosed as RSD commonly called Suicide Disease. I have researched for almost 3 years for a way to alleviate this unbearable pain and other symptoms associated with it. I couldn't complete any tasks and am using a cane.
Over 6 weeks ago, I found a blog about transdermal neuralgia and it sounded similar to my condition but located in the face.
A lady said that she began B12 injections 2 times a week and went into remission after 8 months. I called my doctor right away and he approved the treatment but told me not to try anything new while I am getting the injections. At first, I thought we chose the wrong treatment because I was exhausted and couldn't stay awake. After about 1 month that went away, and now my energy is out of the world and I have stamina. I have accomplished so many tasks in the last few weeks.
But the best part is my mood. I am laughing all of the time. My husband is so happy. He has his wife back.
I did not realize that I was depressed, but I guess I was. Even the cashier at the local grocery store noticed the changes. I am still in excruciating pain with storms and barometric pressure changes. But the overall pain has reduced. Hopefully, with continued use that will improve as well as the other symptoms have.
Thank you for letting me share. I pray someone reads this and will receive benefit as well. God bless.
B-6
Posted by Preston (MA) on 07/29/2021
Peripheral Neuropathy
I've been told by a neurologist that B-6 is good for your nerves and by another Dr. that is very bad for your nerves. Anybody have a final answer-please?
Replied by Andrea
(Springfield Missouri)
12/13/2022
Replied by Florencia
(CA)
12/30/2023
Benfotiamine, ALA and RLA
Posted by Rick (Chicago) on 06/12/2016
★★★★★
Benfotiamine helped, but did not cure my Peripheral Neuropathy, which was due to knee replacement surgery where the nerves are traumatized. PN was bad after surgery and slowly improved (I took a large vitamin stack). After ~12 months learned about benfotiamine and tried it. A little better. Then I called the company and the founder (a scientist) answered and explained how sometimes large doses were necessary at least to start with, and that toxicity was almost impossible. 1800mg a day helped - to an extent, then leveled off. I now take Drs. Best Benfotiamine 300 1x and alpha lipoic acid 300 + benfotiamine 150 8x. My neurologist approves of these supplements.
BTW, I once used r-lipoic acid to cure my loss of taste (taste only, not smell) from taking an anti-fungal rx (never again). EENT specialist gave me prednisone which helped nothing but gave me road rage and fluid retention. Google led me to ALA and RLA studies. Cured in days. EENT doctor refused to even look at the published research articles. It was a pleasure to tell him "Your services are no longer required."
Borax
Posted by Paula (Bucyrus, Mo) on 03/04/2012
I was diagnosed with degenerative arthritis & Dr. tells me I also have peripheral neuropathy which has gotten progressively worse over last 2 yrs. Started as just a numb/tingling like feeling and increased to burning to finally shooting pains particularly in my left foot across top of foot. One can actually see the veins in my feet puff up... Only way I can describe. Doc has me on gabapentin 300 mg 3 times daily. He said I was "pretty much maxed out on this med" but has advised no changes.
I have 20 mule team Borax setting in my laundry room & have been reading for hours the pros and cons of this. Does anyone have any idea if this would help my feet. I want to take back control of my health as I don't feel the Dr. Is doing anything other than giving me a drug that treats the symptoms but does not heal. Thank you.
Replied by Rosemary
(White Rock, Bc, Canada)
03/08/2012
★★★★★
Replied by Paula
(Bucyrus, Mo)
03/12/2012
Clatterbuck
(Beltsville, Md)
07/10/2021
Replied by Paula
(Bucyrus, Mo)
03/19/2012
Replied by Teri
(Fredericksburg, Virginia)
01/18/2013
Replied by Karen
(Good Ole Usa)
07/05/2013
Replied by Lily
(Kelowna, Bc)
06/07/2017
Replied by Mary
(Usa)
06/08/2017
Cayenne
Posted by Selena (Chula, Ga) on 02/16/2010
★★★★★
I have raynaud's syndrome where circulation is lost in my fingers and toes sometimes for a few minutes and sometimes for longer. the other day I had an episode with my pointer finger where it was white and cold from half my finger to the tip and I decided to try cayenne pepper. i mixed the cayenne pepper from my spice rack with some vco (any oil would probably have worked). my circulation started back quickly. This is the first time I have tried this. maybe it would help you as well....Be sure not to get it in your eyes and wash your hands good afterwards...because it will burn any cuts or sensitive areas you might have. I have also read that taking any type of blood pressure pills and/or mineral deficiencies cause neurapathies...
Coconut Oil
Posted by Roxicross (Uk) on 06/11/2015
★★★★☆
I have been using coconut oil on nerve pain due to diabetes, I also suffer from peripheral neruopathy in lower leg. Applying pure coconut oil has really made my skin smooth, it used to be blotchy, red and scaly. My doctor gave me couple of creams but that did not help at all, so I tried coconut oil and it has worked, it also helps me with burning in the sole of my foot, it does not go away but it certainly helps with burning. I prefer the oil instead of popping pills which do more harm than good.
Coconut Oil and Chinese Herbs
Posted by Faith (Oregon) on 04/03/2014
★★★★★
Fluttering heart can be caused from hormonal imbalance , endocrinology issues, parasites , allergic reactions to food, ( I would stop wheat for sure ) pollen, plants, pets, hidden mold etc. oh yeah, tea bag, coffee bags or filters might have chemicals. This sent a friend to the ER; took? months to figure it out, vitamin deficiencies, viral bacterial infection. and just stress, caffeine or course hidden dental infections. I had PVC; the cardiologist gave me something Metrophale something I was so sick - migraine sick vomiting.? Ditched the cardiologist and found a great Chinese Medicine doctor First week of taking Chinese herbs I felt so much better , and then I also started taking organic virgin coconut oil harvested from FRESH coconuts. This is key so there are no mycotoxins. I now feel dramatically better.
Dietary Changes
Posted by Maggie (Morris, IL) on 06/06/2024
Hi, my new doctor said that if I cut out sugar (and perhaps grains?) I would not have neuropathy in six months. Guaranteed. I wondered if anyone could confirm that?
Replied by
Art (California)
06/07/2024
2294 posts
Dietary Changes
Posted by Lynn Greene (Penticton, BC, CAN) on 12/20/2022
★★★★★
What happens when I eat no wheat or wheat related grains, no sugar and no milk.
Changed my diet because of pain in feet, with a constant battle against Shingles. Taking antivirals too much. No sugar, no wheat products (and of course no gluten) and no milk. Buttermilk and cream, butter, homemade ghee are fine. Results: In one month my husband and I lost our huge bellies. Still some pain in feet, but way less. Increase in energy, less body pain, Shingles seem to be gone. We still have buttermilk and 0 sugar ice cream, buckwheat and other non-wheat related foods.
The Wheatbelly cookbook is very helpful. I can't wait to see what happens next in our changes. My husband's allergies and Parkinson are improving, too.
Milk is high in lactose (just plain sugar). No itchy skin, either.
Replied by Margaret
(IL)
06/03/2024