Peripheral Neuropathy Remedies

Magnesium

Posted by Karen (Tampa, Fl) on 07/23/2013

Bill from Philippines. Looking for a suggestion on which magnesium to take for peripheral neuropathy. I have been taking magnesium malate (280 mgs 3/day) and magnesium chloride (520 mgs 3/day) together with no results with my horrendous calf cramping 2 years worth and counting... I just started taking magnesium citrate 200mg 2/day and think it is giving me diarrhea. I still take the mag malate.

I don't take any calcium. Should I?? and and if so what kind... I'm so confused about forms of different vitamins to take. There are so many... Thank you. I've also been through acupuncture (twice) and physical therapy and got nowhere... Except lost a lot of money. I get cramps 24/7 all over my calves and feet and now my leg biceps.

Replied by Yogi
Ohio
10/11/2013

My doctor suggest 400 mg of Magnesium Oxide and Calcium to prevent leg cramps -diarrhea can be a result of the magnesium.

Replied by Prioris
Fl
10/14/2013

Magnesium glycinate will not cause diarrhea. Also it is easier for the body to absorb.

Replied by Lily
Kelowna,bc
10/31/2013

Buy magnesium oil in the gel type and rub it on your feet and legs. Magnesium is absorbed well transdermally and no loose bowels . Wonderful stuff. You can also buy it as a spray but I find that I like the gel better.

Replied by Rick
Usa
06/24/2015

I have always used generic Vicks Vapo Rub for muscle cramps. It has never failed to work for me and it is an inexpensive remedy which works immediately.

Replied by Jan
Australia
07/21/2017

Do not take magnesium oxide; absorption is terrible and magnesium citrate in large doses causes diarrohea/leaching your body minderals. Take Magnesium orotate and calcium orotate. Also foods high in magnesium and calcium - leafy greens also organic cocao. Your diet should be as organic as possible with lots of vegs and fruits though it will still take some time for your body to correct itself. Good luck

Replied by Gord235
Vancouver, British Columbia
10/04/2017

I have had lots of success taking a calcium-magnesium supplement for leg cramps. It never failed to work for me.


Posted by Michelle (Austin, Tx) on 04/08/2011
5 out of 5 stars

I have had peripheral neuropathy for years. I have discovered several things along my journey. The absolute best supplement (but not a cure) for me has been transdermal magnesium oil or gel. One of the symptoms of magnesium deficiency is numbness/tingling. The reason to use the magnesium transdermally is that you can get more absorbed directly into your system without the possible side effect of diarrhea which can occur with oral dosages. I have tried many brands, but Ancient Minerals is hands-down, the best. It is made from condensed sea water. Since it can sting a little if you have sensitive skin, I just rub it on my feet twice a day and then put on socks. You should not use the magnesium if you have kidney problems or low blood pressure. If you do end up trying this, you may want to give it several weeks to a month before determining if it is helping you. Supposedly once magnesium is depleted, it is notoriously difficult to replete.

I have also discovered, that the main reason that I am so magnesium deficient is because my body is too acidic. Most people (myself included) consume a Western diet that consists of a of processed foods, meat, dairy, etc. , all of which are acidic. In the body's attempt to neutralize the acidity of the blood, it takes copius amounts of calcium, magnesium and potassium from different places in the body (bones, etc) and uses them to buffer the blood (make it more alkaline). If your problems persist, you may want to try an alkaline diet. You can also drink water with 1/2 tsp of baking soda dissolved in it (on an empty stomach, at least 30 minutes prior to eating), as this greatly helps to alkalinize your body. Hope some of these suggestions help. I know how miserable it can be to experience these symptoms!

Replied by Monique
Ellington, Ct
10/26/2011

Hi, I suffer from extreme neropathy pain in both feet. I'm constanly trying new "cures' but haven't tried the transdermal magnesium therapy. Thanks for the tip, it will be the next thing I try ASAP. I always wish some brillant doctor or person could create some type of "cooling gel" that could be injected into my feet and have the substance cover my nerve endings so that the pain message wouldn't go to my brain. Isn't there any way someone can do research andcome up with a cure. I'd be willing to invest my time with anyone respectable to research cures. I even went and had surgery and had a Spinal Cord Stimulator trial implanted in my spine at the Lehey Clinic but it didn't work for me. Supposedly, it can help a lot of people but it didn't reach my feet (the toughest location to get at) and added a tingling in my back and legs I couldn't stand. Other patients with success swear by the SCS so it may be something others out there can look into, there is also a nerve root stimulator I'm investigating. Best wishes to anyone with this disease. I know first hand how difficult it is to live in constant pain 24/7.

Monique


Medication Side Effects

Posted by Diane (Framingham,ma.) on 07/27/2013

I have hepatitis c and peripheral neuropathy... My neuropathy is very painful with many different types of pain. I have tried everything- believe me... My doctor said I should try fentanyl patches.. They don't bother the liver and will remove much pain.. Does anybody have any experience in this? I just don't want my liver enzymes to go up through the roof. thank you for reading.

EC: Extensive list of side effects found here: http://www.drugs.com/sfx/fentanyl-transdermal-side-effects.html


Medications

Posted by Karen (Tampa, FL) on 08/25/2013

Does anyone have any first hand experience with Keppra, a medication used for epilepsy? I have hepatitis c and horrible peripheral neuropathy with HORRENDOUS pain. I have tried tumeric 3 heaping teaspoons a day and nothing... My dr and my pharmacist both said this will not bother my liver... I have tried 101 things for my neuropathy and it's still there. I can hardly walk and the shooting, stabbing, electrical shocks are 24/7 and I do mean all night long... I also have neuropathy in my arsm and torso with someimes stabbing pains in my chest or sides... I didn't ever think life could be this bad... The last 3 weeks I have gotten about 3 hours sleep each night...

Replied by Tinydancer
Ohio, Usa
08/28/2013

Karen, I had the horrible pain that you speak of and mine was from B12 deficiency. The pills and shots did not work for me..... But the b12 patches worked. I had to make adjustments until I found the amount that worked. One was not near enough but now I have lowered my dose and have rid myself of the pain. When I feel the numbness come back I increase my patches. Good Luck!

Replied by Karen
Tampa, FL
08/28/2013

What do you mean by "One was not near enough." Did you use several patches or did you use the patches for an extended period of time?... And what sttrength patches did you use? Thank you for the response.

Replied by Tinydancer
Ohio, Usa
08/28/2013

Karen from Tampa: The amount of B12 patches that I use are 5000 mcg. I had to start off using several a day at first. At one time I was using 3 or more a day.... Just depends on the day. I guess my stores of B12 built up and I was able to reduce the amount after a while. The pain in my hands would wake me up out of my sleep in the wee hours of the morning. I had almost no energy, and I thought it was from sleep deprivation, but now I know that it was the low B12 in my body.

You are welcome and I hope that this helps you.

Replied by Karen
Tampa, Fl
08/29/2013

Are the B-12 patches something a Dr prescribes or something you can get over the internet? Thank you again for the quick response.

Replied by Tinydancer
Ohio, Usa
08/29/2013

Karen, Google "Vitamin B12 Patches" and there will be a lot of internet sites that sell them. I get the ones that are offered by a Dr. I am praying that this helps you because I know how painful and hopeless you can feel with that pain and nothing seems to work. I will buy the patches before I buy food.... that is how much they have helped me. Namaste

Replied by Timh
Ky, Usa
08/30/2013
2111 posts

Investigating the benefits of the amino acid Serine, says that myelin is comprised of much Serine. Serine is a non-essential amino synthesized from the essential amino Glycine in the human body. Supplementing Serine would likely provide some relief w/ neuropathy considering it's derivative Phosphatidylserine, is also one of the most beneficial nutropic (brain & nervous system) substances.

Replied by Karen
Tampa,fl.
08/30/2013

Tinydancer, Is it at all possible to give me the brand name of the patches you use? I have spent a lot of money making mistakes with supplements that either didn't work or were overhyped to sell and they failed... I don't know how to do this but I'll even give you my e mail address. I know people have posted brand names sometimes. I think they would be OK with it. But do keep in contact.. I would eat rocks to get rid of my cramps.. I do not have a life for the last 2 years.. It's 24/7 pain.. Thank you for reading.

Replied by Karen
Tampa,fl.
08/30/2013

Helllo again Tinydancer from Ohio, I checked out the B-12 on line and found one from a Dr. D----. Is that your brand? Also did you find your B-12 deficiency by experimenting or did a dr tell you that you were deficient? My Dr says I have too much B-6 and B12... But I've also been told their tests don't accurately tell the story. Thx again.

Replied by Tinydancer
Ohio, Usa
08/30/2013

Karen from Tampa: By the time that I went to the doctor I had already been to a hand therapist and had taken B12 in pill form and did not have any results. I even got B12 shots that cost me 38.00 a piece and it did not help me. I had purchased the book "Could it be B12" and I had all the key things in my life that could cause a body to be low in B12. I had my doctor check my B12 and the results came back that my B12 was high and not deficient, but I had already supplemented with the pills. From what I have read is that the blood can show that the B12 range is normal while there is deficiency in the cells. I happen to see a webinar for B12 patches and I ordered some that day. I was desperate...... The pain was so intense and I could feel the tingling starting in my feet. I found that this worked for me and I hope it helps you. I know that everyone will not get the same results, don't give up and also pay attention to the magnesium in your diet. Do you eat enough foods that have magnesium or should you supplement?

And yes, I get my patches from Dr D....

Namaste

Cheryl
Qld
07/10/2018

I told my GP, as my b12 was good, that it does not always get into cells and he agreed and said MSM can help unlock the cell doors to let nutrients in and toxins out.

Replied by Karen
Tampa, Fl
08/31/2013

I will order B-12 patches today from Dr. D.... I eat 99% organic and have tried many different types of magnesium. Mag malate, chloride, citrate, glycinate and still have horrendous cramps..... Thanks for telling me about your test results with B-12. My dr said the same hing. I was "high and do not have a problem with low B-12"... From what I know it's water suoluable and can't hurt you regardless. I will let you know how I make out... I wake up every morning screaming in pain with multiple cramps all over my calves from a dead sleep ay 5:00AM...... My neuropathy is creepin up my thighs and I occasionally have cramps in my leg biceps... I have poly neuropathy... Which means I have it in my arms as well... I had cramps in my forearsm the other morning, but they're not nearly as painfull as calf cramps which are crippling... Thank you so much for your time and information. You are a saint...

Replied by Tinydancer
Ohio, Usa
08/31/2013

Karen from Tampa: I feel so bad that you are going through that endless pain. When it would wake me up in the early morning hours I would just sit and rock and cry..... Nobody knows how bad it hurts unless they have experienced it. I thought that I was going to have to go through life like that. When I would leave the house, people would ask what was wrong with me because I had so many patches on me. I had them everywhere..... I laugh now to think about how I must have looked to people. But when I woke up naturally one morning and realized that I had slept through the night without pain, I knew I was on the right track. Keep adding patches until you start feeling some relief. I pray that help is on your way. Did you know that a lot of MS patients have been misdiagnosed and actually are vitamin B12 deficient? That's what I've read at least. Lack of vitamin B12 can have you curled up in the fetal position..... But until I asked no doctor had ever checked my B12 levels. I am asking God to surround you in his light and asking that your healing will be swift.

Namaste

Replied by Karen
Tampa,fl.
09/01/2013

Tinydancer, Should I start by taking one 5000 mcg B-12 patch and after 5 days if nothing happens add one which would mean I am now wearing 2 patches... Then continue to add patches until how many patches, or until I get relief. How would you know if it were not working? What was the final count of your patch wear. Just trying to get an idea of what to do. Thank you so much for the blessing. I am in deep doo and have this neuropathy all over my body pain 24/7 everywhere... I dread going to bed at night... I cannot move a millimeter because I get cramps.. I have to sleep directly on my back with my hands beside me..

Replied by Karen
Tampa
09/01/2013

Karen from Tampa to Tinydancer... You have worn 3 or 4 patches at a time.. Do you wear them for a week or just one day... I ordered some and the directions says to put one on for just 24 hours then take it off and put anohter one on in 5 days.. Is that how you do it? I thought you wore it for a week, then took it off and put on another one. Thank you for reading and your feedback. I can't thank you enough..

Replied by Tinydancer
Ohio, Usa
09/01/2013

Karen from Tampa: When I started with the vitamin B12 patches, I started with one and the next day I would put on two fresh ones and the next day 3 fresh ones and so on. I would not wait 5 days, you want to find relief as fast as you can. I have had as many as (5) 5000mcg patches on at once. I wore 5 patches (fresh ones) every day for weeks and then I was able to reduce the amount of patches. Now I wear two patches for 24 hours and I don't apply any more for about 4-5 days. There are times when I will get a tingling feeling in my hands and I go back to 2 patches daily. The tingling always comes first with me and if I ignore it the pain comes next.

On a personal note: I have been telling my brother and sister-inlaw about B12 supplementing for a long time and it fell on deaf ears. My sister-inlaw is now in the hospital for respirator problems and the doctor was discussing her lab results with her. Her doctor told her that her B12 was so low that she is surprised that she was still able to stand. B12 makes a difference in our lives. You're in my prayers Karen.

Namaste

Replied by Karen
Tampa,fl.
09/02/2013

Hello again Tinydancer, Can you give me a guestimate of how many patches you went through in a week? So I can order a similar amount... I only ordered a small amount but it would appear I am going to need much more... They come from Canada and I don't know how long it takes to get here. I'm also guessing that no one gave you this protocol... You just experimented and found what worked for you... Did you have any side effects when you were up to 5 patches a day??? I'm a bit concerned as I have hepatitis-c... On another note I absolutely had to put on a fentenyl patch last night (# 50) I was in such pain I couldn't sleep. Today I have laryngitis from yelling so much when the stabbings and shocks hit all night long-every 5 mnutes... Thank you and much blessings sent to you. I need to get out of the hell that I'm in...

Replied by Karen
Tampa,fl.
09/03/2013

Hello again Tinydancer, Are you using the B-12 patches with the 10 vitamins or the plain B-12 patches? Don't want to make a mistake. Thank you much.

Replied by Tinydancer
Ohio, Usa
09/03/2013

Karen,

Sorry for the delay in responding..... Been away for a minute. I use the B12 patches only. You don't want to overdo it on the other B's. I wanted to ask you what medications do you take?

I will look in my "Can It Be B12" book and see if it addresses anything about your issues. Only do this if you feel comfortable enough to share that information with me. I wish there was a way that we could send each other our email addresses without them being visible to the world and we would not have to wait until it appears on EC. But right now this is the best that we have.

I used about 5 patches a day for probably the first 2 1/2 weeks, after I knew 5 patches was the magic number for me. I felt so sure that it would work because of the webinar that I saw and I was not going to be defeated again like with the pills and shots. After that I was able to taper down to 3 patches/day for another 2-3 weeks and I just kept eliminating until I found the amount that worked for me. I was following my own guidelines and flying by the seat of my pants but it finally worked. Your condition sounds so much more serious than mine. I feel like I would have ended up like you if I had not found out about the patches when I did. My sister-inlaw and I met for lunch one day and I was shocked at how she was walking..... Kind of stumbling and unsteady. Now she knows why..... She said that she thought that it just was old age creeping up on her. She is getting daily B12 shots in the hospital and she is walking better already. I'm surprised that she was not in severe pain but she said that she wasn't. I think that it affects everyone differently. Gotta run but when I get back I'm going to look up Hep C in my B12 book and see what it says. Take care.

Namaste

Replied by Karen
Tampa, Fl
09/04/2013

Hello again Tiny dancer, The only drug I'm taking is fentenyl opatches (50) and I just started taking then 4 days ago... I was up until 5:00A.M. and getting shocks and stabbings everywhere.. I had the patches from the drug store and had to put one on.. It is helping with the shooting pains, but I wonder how bad it's eff3ecting my liver and liver enzymes? My Dr. said I would be OK, but of course I don't trust dr's. Too many bad experiences which could fill up a book between me and my family... 4 Death close experiences for me... I have a friend who owns a health club and writes for fitness magazines... Maybe I could give you his e mail address and he could forward it to me then it's kind of muffled.. Do you think this would work on your end?... If so I'll contact him...

Replied by Karen
Tampa,fl.
09/04/2013

Hello Tinydancer, I already ordered the B-12 patches with the "essential 10 vitamins. I ordered the 5 pack then they give you 2 free packs with it... I also ordered "Could it be B-12?" from my library...

I would like to correspond with you directly also... Maybe I could find a person that would let me use their e mail address and they would forwad it to me.. Get a middle man??? Don't know what else to do.. Any suggestions? Thank you for your much needed help and your time.

Replied by Tinydancer
Ohio, Usa
09/04/2013

Karen,

Don't bother your friend. That would probably open him up for a lot of spam mail. Earth Clinic is fine for corresponding. I get the same amount of patches that you ordered. It doesn't take long.... They ship them right away. I'm happy that you ordered the book from your library..... A lot of information in that book. I am praying that you find relief with this. Almost everyone that I have recommended these to and they actually used them, found some relief. I can't tell you how much money I spent on B12 supplements and shots trying to find something that worked. I chewed pills, I put them under my tongue, I had expensive drops that I put down my throat and I got numerous shots..... To no avail. It is always darkest before the dawn.... hang in there.

Replied by Karen
Tampa, Fl
09/04/2013

Thanks again for your time and information. I have spent about $15,000.00 on supplements over the last 2 years with no resolution for my Peripheral Neuropathy... Do or DID you have neuropathy?... It sounds like you had it in your hands maybe it was reynauds syndrome?

In any event I have the B-12 coming and the book you recommended is coming from the library and am hoping for a cure... This is something that my very poor (2) neurologists have told me CANNOT happen. Even if it were true they shouldn't tell someone that. Of course they want to keep me on drugs as there is no profit in recommending supplements. I have seen many people over the last 2 years who have overcome neuropathy with various supplements. I do believe it's a lack vitamin or minerals... I had stage 4 chirrosis in July of 2011 and the same time my neuropath surfaced... I believe my because of the chirosis my liver was not producing some vitamin or mineral or fatty acid and the neuropathy came on...

And by the way there are many supplements that are very questionable with regard ot their effectiveness. There are as many cooks in the alternative world as there are in the medical profession, which in my mind if packed with liars and frauds...

They told me that IF I didn't take interferron and have a biopsy I would die... I didn't take interferron (thank God and lloyd wright) but I had a biopsy and my liver enzymes went for being in the 30's to being in the mid 300's... I could go on and one... But again thatnk you for your time.. And by the way I just started taking fentenyl 4 days ago... It's the only drug I am on.. I haven't been on any drugs for many mnay years... The last time was for food poisoning...

Replied by Tinydancer
Ohio, Usa
09/04/2013

Karen,

My condition is neuropathy.... It is not gone, only contained as long as I keep my body supplied with the B12. I feel like I will always have it unless I learn something new about it. As long as I am on the medications that I am on then it will always cause my B12 to be low. I do not have Raynaud's disease. The treatment is entirely different and my condition does not have any thing to do with the temperature and the color of my extremities have remained the same. I know that my lower half was starting to show signs of neuropathy when I got involved with the B12 patches... So I was able to avert that dagger. And I feel like if this was not neuropathy then the B12 would not be working for me.

I do believe there is a lot of information about interferon in "Can it Be B12". I have been running back and forth to the hospital (sister-in law) and have not had a chance to look up information in my book. I believe that man has limited knowledge about what is going on with our body's. Most of what they say is guessing. I think sometimes that if man has not seen or witness something for themselves then they don't think that it is possible. When my doctor could not tell me what was going on with my pain then she just dropped the ball. I had no other choice but to find my own answers. The Creator will be the only one that would be able to say whether or not you can be cured..... Put your faith in him. That is what I did.

Namaste

Replied by Dave
Fountain Inn, Sc
09/05/2013

To Tiny Dancer:

On neuropathy, google "Calcium AEP diabetes" and "acetyl l carnitine diabetic neuropathy" and you should find what these substances do to help the condition. Especially Cal AEP works wonders for the pain you're experiencing. You may not have diabetic neuropathy but it helps on the cellular level restore electrical interaction and helps maintain cellular health. Also google an article "calcium aep nutrition review" and you'll be amazed at the many other things Cal aep can do.

Replied by Tinydancer
Ohio, Usa
09/05/2013

Thank you Tom..... Any advice is welcomed and appreciated. Namaste

Replied by Janice
Sydney, AU
01/16/2015

I have had monthly B12 injections for over 30 years, with pernicious anaemia.

When I was unable to get the injections I required, I relied on Dr D's patches, sublingual tablets and sprays for 8 months. Ended up with severe irreversible peripheral neuropathy. The patches and sprays helped, but now I take daily Methylcobalamin injections. If you suspect B12 is a cause of your problem, I strongly recommend you check out b12.org or pernicious anaemia society.

My progress is slow, but definitely some improvement after 18 months.

Replied by Deborah
Rochester Ny
02/03/2017

Connect with each other on FB and instant message each other things like email addresses phone # etc. I have been reading this thread and have some homeopathy and and finding the info helpful. Mine is in my feet only and its just numbness and warmth. I find mine flairs up 30 minutes after I eat carbs that may have GMO or Glyphosate. its is always 30 min after. Chocolate which can be full of carbs does not make it flair up so I find it is more grains that do. I have used B12 sublingual but maybe it is not enough. My neuropathy has gotten better not so uncomfortable but not all gone yet. Thanks for the info.

Sending healing and Blessings, Deborah

Replied by Juanita
Michigan
04/17/2017

I have epilepsy and take Keppra, Lamictal, and Klonapin to control the three types of seizures. I also have restless leg syndrome and polysensorymotor neuropathy. The only thing that helps me is Neurontin, an anti-seizure medication. I just make sure I leave a three hour gap prior to taking my next combination dosage of Kkeppra, Lamictal, and Klonapin. When the pain is mild I take 400 mg at bedtime and when it is severe I take 1,200 mg. Check with your neurologist. My primary care came up with taking Neurotin while my neurologist wanted me to take Mirapex. Mirapex would last four then symptoms were back. Then suddenly augmentation occurs in which Mirapex no longer works then have to go to Requip and then Mirapex then Requip again and it is a never ending cycle. Neurontin has been a life saver for me for fibromyalgia, restless leg syndrome, and neuropathy. It doesn't help me with epilepsy but it helps me with everything else. Depending on the brand or generic version it can make you tired so I get the brand only so I know what to expect. Now I have a good night sleep. No pain, burning, tremors, etc.


Meso Platinum

Posted by Betsy (San Diego, CA) on 02/25/2015

Opinion from Bill or Ted requested...

A health care person told me that Meso platinum would heal the myelin sheath for my peripheral neuropathy. He said it cured a quadriplegic by taking 1/2 bottle per day and it took over a year. I just was taking one teaspoon/day..I tried it and it seemed like it was making neuropathy worse...Have you ever heard of Meso platinum healing the myelin sheath? Thank you. Was hesitant to put this possible cure on the site for obvious reasons. It might be taken off the market tomorrow.


MSM

Posted by Nina (Massachusetts) on 08/13/2013

Will MSM help with peripheral neuropathy pain. I have it in my feet, calves, thighs and arms and hands and even get electrical shots in my torso in the middle of the night and on my fingers. I even got one in my eye. It seems to be getting worse.. Thank you for reading...

Replied by Steve
Las Vegas
08/14/2013

MSM should be somewhat helpful. I believe there are also some good nerve rejuvenation tonics out there like Dr Schulze's. You should be able to find some good nerve rejuvenation tonics on google as well.

Replied by Steve
Las Vegas
08/14/2013

Check out the benefits of magnesium oil for neuropathy. You rub it into the areas of pain and it helps to relieve the pain.

Replied by Nina
Massachusetts
08/14/2013

Steve from Las Vegas. I am using magnesium oil and R-lipoic acid, and acetyl L carnitine, fish oil, sunflower lecithin and many other supplements but I am not improving. I will try the nerve regeneration suggestion... Every doctor I speak to tell me there's no cure... Then I see many people curing themselves with supplements...

Replied by Rsw
Uniontown, Oh
08/14/2013

Nina, recent studies have shown Lion's Mane mushroom as being beneficial in restoring nerves and Myelin sheath. It is helpful with MS symptoms so I am wondering if it would help with repairing the nerves in neuropathy? It may be an avenue to investigate. I imagine you would want a full spectrum product, and I have recently learned that kits can be purchased to grow your own mushrooms. Full spectrum, multi-mushroom products can also be found online. Best wishes.

Replied by Nina
Massachusetts
08/16/2013

RSW from Uniontown, OH. Thank you much for the response. Would you elaborate with regard to what you mean by, "Full spectrum product" for Lion's Mane?

Replied by Rsw
Uniontown, Oh
08/16/2013

Nina, full spectrum means all the parts of the mushroom, not just some of the mushroom. Full-Spectrum (Primordia, Mycelia, Fruiting Bodies & Extracellular Compounds). I imagine that way, you will benefit from everything that the mushroom has to offer and not miss out on any of the individual component attributes. Generally, the seller will say if the product is full spectrum. Best wishes!


Multiple Remedies

Posted by Bandi (Oakland, Ca) on 12/20/2017
4 out of 5 stars

I had neuropathy in my feet for at least 15 years. From what I read, I am controlling it better than most. While I have the usual symptoms (tingling, pins, sensitivity, numbness, burning, some cramps etc etc) I can walk, jog and sleep well at night. All that I list below I used for at least 6 months and are effective for me.

Cure? No :-(

But I am working on it :-)

Gabapentin 300 mg 1x/day. If I forget to take it before going to bed, while usually not excessive, the symptoms keep waking me up.

While during the day I often don't notice the symptoms, around 5 pm they start getting bothersome. At that time I rub some Chinese liniment called Zheng Gu Shui (avalable on ebay) on the ball and sole of my feet. It increases blood flow and the result its less sensitivity. It contains camphora among other ingredients, so wash your hands afterwords or your eyes may water :-)

Before going to bed, I use another Chinese liniment, called Shaolin I-Ching Ling. I used to get bruised while practicing Tae Kwon Do karate and had some remnant in a bottle. Sure enough, it calmed my nerves. Available on the Internet, just search on I-Ching Ling. I now make my own. Takes about 3 months but it is worth it. When my shoulder, knee, finger etc ache or I pulled a tendon or my muscles ache, a small application usually helps within minutes.

Somewhat less effective, but still useful for neuropathy pains is a gel called Diclac. I bought them in Hungary but seen it on Internet. That one was made in Germany.

All of the above are effective shortly after application.

Since I am using several remedies simultaneously, I can not prove the effectiveness of the following 2 remedies. But they seem to slow the progress of neuropathy.

Twice a day I take 150 mg Benfotiamine. Read https://www.ncbi.nlm.nih.gov/pubmed/10219465. Appearently it has been used in Europe for a long time.

Twice a day I take 1300 mg Borage (for LA, GLA OA) + 300 mg timed release Alha Lipoic Acid + 500 mg Vitamin C

Read https://www.diabetesdaily.com/forum/neuropathy/29911-harvard-article-neuropathy-gla/ and do search on GLA

I know it may be boring BUT it is worth reading:

http://care.diabetesjournals.org/content/28/1/89.full

https://www.clinicaltrials.gov/ct2/show/NCT00641953?term=neuropathy&rank=105

Ok the above is what I practice right now in December of 2017

So what else is there?

TENS unit helps. I used to attach it to my feet while working at the computer. Check the Internet. Not too expensive. I had it handy since I originally used it for my lower back pain.Successfully I might add.

I have a toilet brush :-) With it I keep hitting the sole of my feet for a couple of minutes at night to increase blood flow. Yes it helps.

Capsaicin in any form (liquid or cream) works but the skin gets sensitized after a while so I dropped it.

Physical theraphy felt good but helped none. Acupuncture did not do much good either. But the Chinese massage I received after the treatment was worth going for :-)

Future?
I am looking into MSM, stem cells but do not hold out much hope for either right now. And please, believe in valid research not wishful thinking cloaked in scientific sounding mambo-jumbo!

Well, have a Merry Christmas and no pain!


Posted by R. (Dallas, Texas, Usa) on 02/16/2010
1 out of 5 stars

Does anyone have any suggestions to ease the discomfort or to cure Peripheral Neuropathy? I have been using ACV(twice a day), Baking Soda(once a day), Vitamins B6, E, Selenium, NAC(N-Acetyl-L-Cysteine) and these are not helping yet. I am taking some prescription meds that are suppose to help, Gabapentin, and Amitriptyline and these are not helping either. Any suggestions would be greatly appreciated! Thanks in advance!

Replied by Rob
Manhattan, New York
02/16/2010

This from Dr. Weil...Your first step should be a general medical checkup to determine if an underlying disease or injury is the cause of your symptoms, and if so, to determine its nature. Your doctor should do complete blood work and may refer you to a neurologist who will probably do an EMG (electromyelogram) to assess muscles and nerve conduction. If you have no underlying disease, you can try one or all of the following strategies:

Take one B-100 B-complex vitamin daily. The B vitamins are necessary for normal nerve function, and supplementing is a good preventive measure. Do not take more than 200 mg of B-6, as higher daily doses can actually cause symptoms of neuropathy.

Take 100 mg of alpha-lipoic acid daily. This antioxidant protects microcirculation to the nerves. You can gradually increase the dose to 300 mg twice a day over the next month.

Replied by R.
Dallas, Texas, Usa
02/17/2010

Thanks to Rob, Selena, and Saba for your responses!

Yes I have an underlying disease that causes this, as well as the meds I take for this disease can also cause neuropathy. And yes I have had all the relevant tests. Will go by some B-100 B complex, and some Alpha-lipoic acid. I have taken the Cayenne in capsule form for other problems as well, and it worked for that. So will mix it with oil as well. The neuropathy is mostly from my knees down to my toes. This Neuropathy is very frustrating mentally more that anything else, and after 19 years with this disease, this has been my biggest challenge yet. Will let you know how these new ideas work. And thank you all again!

Replied by T
Brooklyn, Ny
05/19/2010

Hi there. I was reading your post and I wondered to myself: have you ever been tested for heavy metals? I have read plus spoken w/ several holistic practitioners that say heavy metal toxicity may, or even perhaps, be linked to many neuro-degenerative diseases. I raise the issue because about two years ago, I mysteriously "came down" with a neurological disorder that not only affected the quality of my life (I was fairly healthy and happy-go-lucky) but also my ability to walk w/ both a straight or defined gait. That is, my vestibular system suddenly became out of whack and I felt (and still feel) like I am walking on foam all day long. Initially, I was told it was labyrinthitis, then just simply vertigo, then Meniere's, then it was incurable, then specialists didn't know....and so, you get the picture. :0(

After much research (of my own - traditional docs became useless) - I learned I am indeed suffering from heavy metal poisoning (I have six old amalgams one fairly recent - yr old - root canal that may have stirred up some dormant issues or introduced more metals into my system to which my immune system could no longer handle things efficiently).....and so as my body hit a "tipping point" - I was left w/ a laundry list of symptoms that had me suffering from incredible fatigue and pain. One of these symptoms - like u - was nerve pain in my hands, legs and feet. I thought I was developing peripheral neuropathy (but since I didn't want to go to the doctor anymore) I researched some remedies and found improving my diet helped a great deal, alongside doing TRANSDERMAL MAGNESIUM THERAPY.

When I learned that magnesium (a salt) is such an important macro-mineral in the body - and is especially important for the nervous system (both for conduction and relaxation)....I tried the remedy and have never had any more nerve pain symptoms (in my extremities) to date. I still have the gait issue but that I am working on as I still have the metals in my mouth (saving for the dental procedure to remove them by a holistic dentist). [As a sidenote: heavy metals are known for depleting the body of vital minerals.] When dealing w/ prolonged heavy metal exposure (or overall toxicity) our biochemical/electrolyte make-up becomes seriously compromised. Magnesium is one of those minerals that needs to be replenished in the body almost everyday. The remedy I use is in the form of a foot bath. Magnesium oil or magnesium bath flakes are the ideal choice. Allow your feet to soak in warm water (w/ the oil or flakes) for 20-30 mins. The Mgn works almost immediately as it is quickly absorbed through the pores on your soles of your feet. Its a pretty simple treatment but IT WORKS. I did this for a duration of 5-7 days straight....took a break for a wk or two (symptoms were gone at this point)....but if I felt like I was experiencing any other heavy metal related symptom (ie. joint/muscle pain, chest pain, teeth grinding)....I did it again....and the symptoms subsided. In essence, its a staple treatment I use (in conjunction w/ cleaning up my diet) to both manage and sustain my day-to-day functioning.

God Bless You!

Replied by Lynn
Southwest, Michigan
05/10/2013

I have went through 2-6 weeks of chemo and then had a bone marrow transplant. The neuropathy in my feet and legs is horrible and has spread to the rest of my body. The doctors have tried almost all meds known to them, with no relief. At first they thought it may improve, then later they tell me the chemo damages the protective shaft around the nerves and their is not anything they can do, just keep me medicated. The transplant was 7 years ago and it just keeps getting worse. After reading the input about Acetyl-L- Carnetine and Alpha Lypoic Acid, I am going to give them a try. Any suggestions on starting with just one or doing both right from the start. Any info would be greatly appreciated.

Replied by Timh
Louisville, Ky, USA
05/11/2013
2111 posts

Lynn: Given the severity of your condition I would go ahead and take both the Carnitine and ALA but at separate times and as recommended on labels. If in a few weeks you don't experience any positive changes up the dose.

Also, I read an article that proved Growth Hormone can actually re-grow nerve endings. Nothing significant like to heal a spinal cord injury, but enough to relieve neuropathy. To boost Growth Hormone and prevent the "over-firing" of nerves, take 1 grm Gamma Amino Butyric Acid (GABA) before retiring.

Also, Lipid Replacement Therapy is currently showing very good results in chronic illnesses and general damaging conditions where the body isn't capable of proper regeneration.

Omega 3 Fatty Acids which are found in Fish Oil, Flax Oil, Chia Seeds/Oil, and Walnuts/Oil are critical for healing to occur anywhere in the human body. Omega 3's stimulate many different "healing pathways" in the body. Vit-E (full spectrum) is recommended to help protect the delicate Omega 3's.

Zinc, a mineral commonly deficient in the western diet, is also critical for healing to occur in the body. Burn victims, for example, have many times greater survival rates if given therapeutic doses of Zinc. Pumpkin Seeds and cooked or raw liver is the only significant dietary source of Zinc.

Replied by Art
Vancouver Bc, Canada.
06/07/2013

Dear Lynn. I have had good results with R-ALA 200mg with each meal 3x times daily and Vitamin B12 sublingual 1, 000mcg once daily. At the start I was taking anywhere up to 3, 000 to 6, 000mcg daily until I found my balance. You cannot overdose with the B12 as your body will just pee out what you don't need, but it did make me dissy upon laying down. You For now I have it under control. I do know the GabaPentin will make you very drowsy but I was unable to sleep because of the pain and it didn't help, and had to use ice packs for the burning. I tried the Gabba before with the same results.

Art.


Multiple Supplements

Posted by Gord235 (Vancouver, British Columbia) on 09/07/2017
5 out of 5 stars

Hi Everyone. I'm new to this community and also new to posting online so I'll be brief and to the point. First; thank you to all who have contributed to this site. Peripheral Neuropathy can quite daunting.

Next; after considering several options I settled on the following protocol: B12 5,000 mcg/day, Acetyl-L-Carnitine 750mg/day, R+Alpha Lipoic Acid 100 mg/day, Calcium Magnesium D3 333/167 mg/day 2:1 Ratio, Enhanced Absorption. This combination worked fast and very well for me, eliminating 90% of my pain.

Fortunately, I am one with a B12 deficiency brought about by a series of diets including Paleo, Vegan, Starch-based and finally Low Carb, Moderate Protein. I am now back on track thanks to members like Al and Art who have shared their experiences here. I hope this information is helpful to those who are new to the site and trying to find their way. There are several causes for Peripheral Neuropathy and not everyone is B12 deficient but it should be worthwhile to try to determine if you are by trying this simple plan. Hopefully you are one of the lucky ones.

All the best,

Gord

Replied by Gord235
Vancouver, British Columbia
09/26/2017

I would just like to add a note since my previous post. Although I have experienced much improvement following the protocol previously mentioned I am still looking for something better as I still experience some flareups. I've spent a lot of time watching Youtube in search of the 100% cure but it seems to be elusive. I tried baking soda and ACV but it didn't seem to make a difference. Then I heard that cassian cinnamon would do the trick, then it was benfotiamine that was declared to be the holly grail. In conclusion I think that the best we can do is to stick to the most popular cures mentioned on this site. I am currently holding out hope that ALA will deliver on it's promise to promote nerve healing in the long term. Best wishes to everyone.


Painkillers for Peripheral Neuropathy

Posted by Denise (Seattle, Wa) on 06/06/2013

To Art from Vancouver: Art, I also have hep-c and peripheral neuropathy. I see where you take oxycodone or oxycontin?. I am considering taking it as I have tried everything and have much much pain 24/7 and stabbing things all day and night.. It's horrendous.. How much oxycodone or whatever are you taking and how do you deal with constipation? How are your liver enzymes doing taking that? And what are they now if you don't mind sharing. Thank you much...

Replied by Art
Vancouver Bc., Canada
06/07/2013

Dear Denise. I take Oxycodone for a problem related to Rhumatoid Arthritis in the knees. 10mg 3 times at night. My liver enzymes have returned to the normal range below 40 since taking Chanca Piedra 500mg once daily at different times with food. I have been taking BHT for over a year now at 350mg once in the night. My Liver Enzymes were over 300 previous to that. This Peripheral Neuropathy is new to me with a burning sensation above the knees with very sensitive toes making cutting toe nails painful. There is also a pressure sensation in the back of my hands. I use R-ALA at 200mg 3t times a day with food and B12 1, 000mcg near 9pm on an empty stomach. This seems to have it under control but not healed, if I miss a dose I will have the symptoms return, being very unpleasant.

The Oxycodone does not help with Peripheral Neuropathy, at least not my kind but it may help you. The thing is you will have to try it to find out but I would not recomend it. In the event you do, there is a generic supeudol very cheap and fast acting. The patent OxeNeo is 4 times the cost and very slow to act. As for the constipation, I have had it for over 30 years and can go for 4 days without a bowel movement, at which point I need a laxative to help. Eating bran in the morning helps but I am not regular. Good luck with your situation.

Art.

Replied by Trudyg
Waynesboro, Va, Usa
06/07/2013

For arthritis pain, I take serrapeptase several times during the day away from food--it really helps with pain.

Replied by Art
Vancouver Bc., Canada.
06/07/2013

Dear Trudyg. From what I know, the Serrapeptase you are taking is only recommended for 4 weeks use and has drug interactions with blood clotting.

How long have you been taking it?

Art.

Replied by Carly
Seattle, USA
06/08/2013

Dear Art, your information is incorrect. I have been taking Serrapeptase daily for about a year now. Not only is it fine to take long term... It thins the blood. In fact, it is recommended that a person discontinue it a week before elective surgery for that reason.... I researched the daylights out of it before I started taking it. It is totally safe, and has been used in Europe for the past twenty five years. It is amazing stuff. I plan on taking it every day for the rest of my life.

Please do not spread misinformation. Read more, from websites that are credible... Not just blogs some people put their opinion on. Facts and reliable sources are needed when saying things such as you did. Thanks.

Replied by Art.
Vancouver Bc., Canada
06/09/2013

Dear Carley, I thought I posted the link on this, from webmd which I would trust more than some one who has no data to back up what they say. Again read here. http://www.webmd.com/vitamins-supplements/ingredientmono-1115-SERRAPEPTASE.aspx?activeIngredientId=1115&activeIngredientName=SERRAPEPTASE

Also one from lef. com http://www.lef.org/magazine/mag2003/sep2003_report_aas_01.htm

Says it MAY DO THIS AND THAT, and it acts like other nsaids thinning the blood and relieving the pain. Thing is it does not relieve all pain, and only works for short duration.

It may be your miracle drug, but I really hope visitors here do their research.

Art.

Replied by Tamara
Fort Collins, Colorado
06/10/2013

Hi Art, while I agree with you that you should check your sources of information, no where on either of those links that you posted does it say that you shouldn't take Serrapeptase for longer than 4 weeks. All it says it that long term effects are not known. That just means that the only clinical trials done so far have been short term (<4 weeks) and long term efficacy studies have not been conducted. Absence of study does not mean that it doesn't work or shouldn't be taken. It just means that we don't have information currently to assess the risks or side effects, so caution is warranted. However, on the webmd link you posted, there are about 20 anecdotal reviews from people taking it, some for much longer, with mostly good effects. This is Earth Clinic, after all, which is based almost entirely on anecdotes!

Replied by Gord235
Vancouver, British Columbia
11/01/2017

Art, I checked your link to Web MD and could not see anywhere where long term use of Serrapeptase is cautioned against. I am taking 960,000 SU (8 capsules) per day and it is helping quite a bit with about a 90% reduction in pain.


Physical Therapy

Posted by Paula (Salt Lake City, Ut) on 06/09/2013

Does anyone know if physical therapy will help with my peripheral neuropathy. I have tried everything to no avail. Thank you and God bless this site.

Replied by Mmsg
Somewhere, Europe
06/09/2013

Paula, search google for "Katy Bowman" and ask her. She seems to be an expert in body alignment, which might help.


Physical Therapy Exercise

Posted by Gord235 (Vancouver, British Columbia) on 12/18/2017
5 out of 5 stars

I have been using a simple exercise I learned on Youtube to give myself temporary relief from foot pain caused by Peripheral Neuropathy. Simply pump the front of the foot up and down 30 times and repeat this exercise three times a day or as required. This forces the circulation to increase in your leg and foot and will give quick relief from pain. It also works while pumping the heel up and down although pumping the the toes and front part of the foot is more effective.


Serrapeptase

Posted by Gord235 (Vancouver, British Columbia) on 10/03/2017

Serrapeptase For Peripheral Neuropathy

Serrapeptase is a relatively new treatment utilising an enzyme to remove non-living cells. This has a dramatic effect on reducing pain and inflammation. It has been used successfully in Europe for thirty years but is just becoming known in North America.

I have started with 120,000 SU (2 capsules) - twice a day and plan to gradually increase the dosage after watching several clips on youtube. I would be interested in hearing about any experiences by members who have tried it.

Replied by Gord235
Vancouver, British Columbia
10/16/2017

Update

I am now up to 960,000SU(8 capsules)per day of Serrapeptase after reading that 1,000,000 SU per day is not uncommon. I am also taking ALA 800mg (8 capsules) per day and continue to see improvement with the pain in my foot steadily decreasing in intensity and frequency. Take note that Serrapeptase needs to be taken away from food, either 1/2 hr. before eating or 2hr. after eating. Search Serrapeptase on Youtube for more information. Good luck to all.


Supplements, Saturated Fats

Posted by Betsy (San Diego) on 01/21/2014

HI Bill, I have peripheral neuropathy and have tried everyting to no avail and I do mean everything...I also have hepatitis-c which is under control...It has been suggested to me to take B-1 100 mgs 5 times a day...along with Serrapeptase 1000 mgs 5 times a day... along with MSM 20,000-40,000 unit five times a day and eat saturated fats, which kind of caught me off guard as I have always read that it's not good for you...My cholesterol is 135 which is low and maybe they have a point...It has also been suggested that I eat no high glycemic fruit which I'm already am doing... First time post although I have been on this site before...Respect your opinion and don't want to make any mistakes..Thank you and bless you 1,000 times...

Replied by Bill
San Fernando, Philippines
01/21/2014

Hi Betsy...I would perhaps add Alpha Lipoic Acid(300 mgs twice a day at meals) Selenium(200mcg twice a day at meals) and acetyl Carnitine (500 mgs twice a day at meals) to your protocol. Adding a teaspoon of granulated lecithin(not the oil) twice a day before meals and taking B50 vitamins every day might also help you here.

I would also continue with your serrapeptase and MSM remedies as these will also be beneficial. I now cook all my own food in coconut oil(saturated fat) because I've been very impressed with its anti-pathogenic effects and it has also helped me to lose weight.

Unfortunately, since the neuropathy you have is most likely to be caused by the Hep C, then it might also benefit you to follow Oscar's simple BHT remedy against Hep C. Your low BP problems may also be as a result of your liver problems.

Replied by Damaris
Miami, Fl
07/26/2015

Good afternoon, everyone and first of all Thank God for all those who have shared their experiences. My name is Damaris I was diagnosed with peripheral neuropathy 2 years ago the cause is unknown. For about three months I've been taking a vitamin that contains B1 & B12 AND R-Alpha lipoid acid. But I still feel in both feet numbness, tingling almost daily.

Also I reach that that capsaicin cream is really good to treat pain and discomfort anybody has tried?? Fernando please let me know if you continue taking add Alpha Lipoic Acid(300 mgs twice a day at meals) Selenium(200mcg twice a day at meals) and acetyl Carnitine (500 mgs twice a day at meals) to your protocol. Adding a teaspoon of granulated lecithin(not the oil) twice a day before meals and taking B50 vitamins every day might also help you here. How do you feel now because your comment was in 2014. Again thank everybody for all comments and Blessing.

Replied by Damaris
Miami, Fl
07/27/2015
1 out of 5 stars

Bill, please let me know if you continue taking add Alpha Lipoic Acid(300 mgs twice a day at meals) Selenium(200mcg twice a day at meals) and acetyl Carnitine (500 mgs twice a day at meals) to your protocol. Adding a teaspoon of granulated lecithin(not the oil) twice a day before meals and taking B50 vitamins every day might also help you here. How do you feel now because your comment was in 2014.


Supplements, Transdermal Magnesium, Turmeric

Posted by Lily (Kelowna,bc) on 10/31/2013

I have been taking alpha lipoic acid, acetyl-L-carnitine, sublingual liquid Vit. B12 and omega 3's for about 10 months. I found the combination helped lots but I still had symptoms. My neurologist told me to add MAGNESIUM . After lots of research I bought a transdermal gel magnesium that I apply to my feet and lower legs morning and night.That helped more. Magnesium is best absorbed through the skin. I also take a dose or two of the effervscent magnesium each day. NOW I have added turmeric capsules 3 times daily and wow lots of relief .I have been adding turmeric powder to as many foods as are suitable too. Research says that if you eat something with black pepper when you take the turmeric it boosts the power of the turmeric.