Hi, my experience with Lichen Planus, firstly an oral specialist prescribed cortisone, not to take it but to rinse out the mouth 3 times a day to reduce the inflamation and help repair the damage. However I am quite drug sensitive and couldnt do any more than three days. I was informed that Lichen Planus is an auto immune system disorder, and there is no cure.
However I have been dealing with a naturopath in Qld, Mermaid beach, this wonderful lady does hair analysis, and has helped me enormously, she found I had a multitude of problems that stressed the immune system.
But Lichan Planus lives off sugars and yeast, so the first thing is to give up both these things in the diet, and I did if for nearly a year, I make my own sourdough, that was easy. What was really hard was sugar, the sugar in tea and coffee was a breeze, but the alcohol was not, not that I am a drinker but I do enjoy an occassional beer or wine or whisky, they were to me like treats, not daily and never a hangover even but just something nice at the end of the week.
And no chocolate, or desserts, no vegemite etc
But the Lichan Planus was gone for some months, but sneaking a bit of sweet stuff from time to time, and now stressful times with business being busy and Christmas coming I have tender gums again, so back to hard core diet, it's shit full, but if anyone out there has any better input that would be helpful, that would good great.
Mansfield. Vic. Australia
I've had oral lichen planus for 8-10 years and latley light outbreaks on wrist/ankle. With me, my oral lichen planus will often clear up completely, and always get milder, if I stick to a lower carb diet. While I'm not overweight I confess to preferring to eat lots of carbs typically from sweets. When I ease off, my condition always improves - often to miraculous degree. Today on internet I searched 'lichen planus diet' and found a similar post from a dentist stating a patient of his experiences same. I'm convinced there is a link between proper body funtioning (caused by better diet) and ease of auto immune probs like lichen planus. Likewise my other auto immune issue of painful joints also worsens with poor diet, and goes away when less carbs consumed. Other posts on earth clinic have suggested links to vitamins, acidity, etc for treatment/cure. I think perhaps when your body functions properly when you eat right, burning fat as it should, that your body heals itself of some odd ills. And conversely, when you eat poorly, your body's systems are adversely affected, sometimes presenting in various ways such as lichen planus for some of us.
I'd love to know if others experience same. I hope this helps some others. I will try to stick to better diet. It's tough though. To remove my lichen planus completely I have to drastically reduce carbs, then I can have sugary desserts, pasta, etc. 2-3 times a week without recurrence of lichen planus. What's tough for me is falling off wagon and getting into bad cycle of too much sugar too often - if I don't break pattern my lichen planus remains and can worsen. But the good news for all is it CAN be done. I recall many times where I broken pattern, fixed my lichen planus, and ate well for MONTHS at a time without issue. The real trick is this: when you see even the smallest hint of lichen planus returning, you've been eating too many carbs and need to ease off.
I battled for years - and still - with glucose intolerance and candidiasis after nearly dying of peritonitis (inflicted by a surgeon carelessly performing a laperoscopy. Went into hospital with vague stomach pain, came out with a punctured bowel).
Banish all sugar and yeast and living as close to nature as possible worked a miracle! Zero confidence left in the medical profession and pharmaceutical remedies. My best friend now suffers with lichen planus and has been prescribed all kinds of steroids and ointments that don't work and are too painful to apply anyway. So she turned to me, her 'witch doctor' friend and is now on the mend.
The immediate remedy for lichen planus in the mouth is sage, either chewing the fresh leaves or if this is too painful, brewing tea from it. (Fresh) Bayleaf may be added to soothe the throat. Rosemary is less potent than sage but also works and has the added advantage of being a breath freshener. Lichen planus on the skin is best treated, depending on the severity of the skin lesions, with 99% aloe vera gel (skin mildly afflicted) or honey poultices (put cold-pressed organic honey on a gauze and attach to the skin with hypo-allergenic plaster). Honey naturally is antifungal and antibacterial. These are symptomatic treatments, however.
Systemic treatment means banning all fungi (mushrooms, cheese, beer and wine - good quality brandy will be 'manageable' - bread, peanuts, unwashed vegetables etc. ) as well as processed sugar (i. e. Refined, including all sugar derivatives) though honey and fructose may be tolerated. Plus complementing one's diet with beneficial bacteria to restore balance to the gut flora, e.g. Acidophilus (present in bio yoghurt) and bifidus. Once the immune system is functioning adequately again, foodstuffs such as bread may slowly be added to the diet again so that the body's response may be monitored.
Please someone try this and let me know whether this is beneficial to you, too?
Kuala Lumpur, Malaysia
I have suffered with Lichen planus since I was 10 years old. I once had a severe outbreak that lasted almost 4 years. This included oral lesions and lesions on my legs, feet, ankles, arms, back, neck, scalp, and vaginal lesions. After unsuccessful topical cortisone treatment, the doctor placed me on prednisone. Because prednisone depletes Vitamin D stores, I was told to take a very large amount of Vitamin D supplements. I started the prednisone, but did not start the Vitamin D supplements for a couple weeks. I noticed a drastic improvement in my lichen planus. They began to shrink in size, and the itch began to fade. However, once I started my vitamin D supplement, I flared back up. Thats when I put 2 and 2 together. I told my doctor, and he dismissed it. I would not take his word for fact though since I was also told that lichen planus is not genetic...my father and his sister both suffer with lichen planus. I followed my gut and cut vitamin D completely out of my diet for a while. milk, eggs, fortified cereals, fish, less sunlight, etc. My lichen planus went away. My father did the diet with me, and his went away as well. Once they went away, I took, I ate normal again, and whenever I notice old scars turning pink and starting to itch, I watch my Vitamin D for a couple of weeks. I recently had another outbreak, and I think it is due to the fact that I have had 2 back to back pregnancies and have been on prenatal vitamins for 2 years, which have a significant amount of vitamin D. I think its finally caught up with me, so I started the diet that I did ten years ago once again, I have already noticed I am getting better. My father is currently getting another outbreak because he was supplementing his diet with Fish Oil, which has large amounts of vitamin D. Since he has cut it out of his diet again, he is also improving.
Los Angeles, Ca
Las Vegas, Nv
I had Lichen Planus on my hands and forearms. But I used essential oils. It was a mixer of lavender, tea tree and coconut oils. Then I mixed all in organic plain cream. This I used sometimes twice a day after my bath. Also I took a bath every day with 1/4 cup baking soda poured in the tub. But you have to rinse private areas good after bath. Some people say you get a itch if you don't. It has taken it away totally. Good luck!
I've had lichen simplex chronicus since September 2015, and I've been using organic olive oil with the following essential oils: tea tree oil, lavender oil, peppermint oil, and eucalyptus oil. This combination has been amazing for the itching, hydration, and has soothed my senses and skin. When I was first diagnosed, the dermatologist gave me a steroid cream that I used for 1 night, because it dried my skin severely. He also gave me itch relief pills for night-time, which are amazing too. I later started using a cream and soap containing emu oil, and since I've been using that with my essential oils combination, I've been functioning with extreme improvement! I pray this helps someone.
I have been reading your posts concerning your battle with Lichen Planus. At one point, I believe in November of 2008, you said you were taking 1000 mg of vitamin C and Apple Cider Vinegar. Then you said that you found the cause, which was some sort of mite. Am I to assume, then, that the Vitamin C and Vinegar helped for a while but didn't cure it? And did your treatment for mites then cure it for you?
I have Lichen Planus both in my mouth and on my skin and am using a dexamethason solution which I rinse my mouth with twice a day for the oral Lichen Planus. This seems to help the condition, but if I quit using the solution, it comes back with a vengeance. The doctor wants to put me on some sort of steroid treatment for the skin LP but I am very leery of this because of the possible side effects, which include weight gain and osteoporosis.
A friend sent me an email which talked about the benefits of using a 35% food grade peroxide for Lupis, which is also an autoimmune condition, so I am thinking of trying that. It is inexpensive and looks to be a beneficial way to treat Lichen Planus as well as other conditions. We have our own well water and my husband raised the question of whether or not there may be bacteria in our water that could be either causing or worsening my Lichen Planus. So I am now drinking only bottled water, which to my concern, I am reading now on the internet, may be too acidic for me. Woe is me! Maybe I am reading too much on the internet! Any feedback would be appreciated. Thanks, Marilyn
I'm 2 days into trying "Betadine/Providone" as a mouthwash for the "Oral Lichen Planus", aka Gum Disease of the cheeks and tongue. This is similar to the cure for white tongue in another topic, which uses Iodized Salt. The Salt may work eventually as well. I'm very encouraged by the preliminary results though. Iodine kills candida and many bacterias as well. The protocol here is 40 seconds, 3x per day for 10 days. It's used for drug resistant thrush in Aids patients... and may aid in Gum disease.
The FDA approved perscription drug for Gum disease is Chlorhexadine, which as I said, kills ringworm as well, and is antifungal. If this iodine solution doesn't work perhaps I'll try that, but I have good preliminary indications that this will work.
Arnhem, The Netherlands
To Abeera, from Pakistan who wrote:
Hi, I am suffering from LP. It's all over my body, scalp and now oral, can u please suggest me how to use sulphur for oral lichen planus? I am so desperate by this LP. Please do inform me if there is any other remedy available easily in village side
I have Lichen Planus but not severe, I have an LP sore on my leg which has been there for about 5 years.
I have just started 1 week ago drinking Kefir made with cow's milk and also I have been rubbing a small amount into the sore. The change in a week is amazing. The underlying bumps have gone down and the redness is getting less. I am hoping this is a good cure. I have heard that kefir has cured eczema and crohn's disease, that is what gave me the idea to try kefir. Give it a go.
Best wishes, Neil
I have had skin Lichen Planus for about 1-1yrs. I tried all the Dr's suggestion. But it always returned just as bad. Finally and herbalist for a health food store in Atlanta Georgia call (i think) the Garden of Eden, told me to take 2000-3000mg of L-Lysine & 50mg P5P (B6) 3x per day. And from the first 1000 mg that evening my itching & breakouts decrease about 99%!! I like the L-Lysine by Solaray that also contains vitamin C, Zinc and Vitamin B6. Hope this helps.
I have had lichen planus for about 7 months now. I had a biopsy confirming the diagnosis. It has been very uncomfortable, and has caused my skin to become raw in some areas. I have tried numerous steroid creams as well as prednisone treatments without much relief. Finally, I tried going to the tanning bed a couple of times, and it is finally cleaing up miraculously fast. I know light therapy is one of the treatments used, but my dermatologist hasn't even talked about it yet. My skin condition was to the point of being debilitating.
Best of Wishes, Joe
Saw you had posts for lichen plantus. I had this rash until I started taking monolaurin pills. Two pills twice a day. Rash was gone after two weeks. Now just small scars im treating with store bought lightening creams. Thought you would like to post for your readers.
Severe lichen plains healing:
I have had lichen planus for over 14 years now. The dermatologists say I have the worst case they have ever seen. One even wanted a picture for his medical journal! I have lost all 20 nails, have hair loss, and my esophagus and vagina have constricted and I have to do monthly dilations. I have many other conditions so will list them with the solutions that I have found.
First of all, over the years I have found that any treatment given for herpes works for my lichen flare ups. (Yes, I have been tested for herpes and it is negative). My obgyn had stopped my period to avoid eroding of the membranes, baths with lavender and lemon balm help. I have even applied lemon balm directly to the area when not raw. For severe flare ups, she prescribes me herpes medicine (valtrex).
For brushing teeth, I use Tom's natural toothpaste with propolis and myrrh, and a natural mouthwash. Gums never hurt and blisters have gone away. Dentist can't even tell that I have it in my mouth. I drink whole leaf aloe juice everyday, 4 oz. in with my green tea 2x a day. I watch my argenine to l lysine intake. A diet high in l lysine and low in argenine has worked wonders. A list can be found online. I take omega 369. I take isotonix brand vitamins and the ingredients in the opc 3 help the most.
Hope this helps someone with relief thru my years of finding alternatives to taking steroids. This week, I am going to start researching the immune boosting benefits that mushrooms have, thanks to the advice of the local health food stores. Best wishes on your path to healing.
I've had an active breakout of lichen Plantus for two going on three years now. It took almost 4 months to get a correct diagnosis when I finally did doctors put me on oral steroids, steroid creams, and steroid injections. These things worked only for a short time and had awful side effects. I quickly realized I'd have to cure this on my own. Here are some things that have helped me: 1) A homeopathic, first aid ointment is extremely effective, helps with active LP and dark spots the also. The downfall of this product is its very pricey. 2) Tea Tree oil helps and is affordable the downfall with this is it smells. 3) Lavender Essential Oil is VERY effective if you can find it. 4) Epsom Salt Baths 5) Tea Baths 6) Cold Aloe Vera Gel helps a lot with itching and dryness 7) Lastly I've found that when I went to hawaii swimming At the beach, which I know can be embarrassing helps a lot. I hope this helps people suffering from this disease.
Since 5 month I have skin lichen plan, I tried, cortisone, prednisone, protopic, elidel, Tazorac, Topicort and Apo Hydroxyzine for itching, since I bought a neckless made of hazelnut dried wood, it slowly started to fade away. I am doing Soriatane 30mg a day since 1 month, it works. Success is skin well hydrated, soriatane and hazelnut wood.