Grover's Disease: Natural Remedies for Relief

After reading some of the posts here and suffering with this atrocious disease for 2 years, to which my dermatologist simply said "there's no cure, " I tried out the cilantro smoothies and noticed a slight improvement, however I also have added or removed a few other things from my diet and after 2 years, this terrible rash is finally going away, nearly completely. I'm listing a few things here as I'm not sure which one was key for the cure, or maybe it was multiple:

• I started taking Fish Oil (Omega-3s) and Vitamin D-3 daily
• A scoop of Chlorella daily in my morning smoothie (I did not stick with the cilantro)
• Quit alcohol- my acupuncturist suggested that the cilantro and chlorella sounded like liver cures, so I decided to give my liver an extra break
• Stay hydrated- 1.5-2L of water/day
• Women- use a chafe balm under your bra or sports bra! This helped tremendously to reduce additional agitation/friction
• A sprinkle of turmeric daily in my smoothie

I wish I clearly knew what to recommend here, but overall these were all healthy changes for me, so I figured it couldn't hurt to share.

Hi Audrey,

Did the cream the dermatologist gave you have steroids in it? If this is the case, you may be having a reaction to the cortico steroids. Please do not use prednisone or anything with cortico steroids in it. Do a search for ITSAN or Topical Steroid Withdrawal Syndrome. The itsan dot org website has info on this. Cortico steroids ruined my health, and life.

Audrey,

Your doctor can freeze the spots off by using CO2 in the doctor's office. It works.

Audrey, try soothing the itch with coconut oil.

OMG this is exactly what happened to me. About a month after the first Pfizer vaccine I got a rash under my breast line. Then it went away after I went to the dermatologist he gave me a cream and it went away. Then a month later I got rashes all over and the itching was unbearable, They took a skin sample and it turned out to be Grovers disease. I never had anything like this in my life. My doctor told me it was from the vaccine. I am like debilitated from the itching and nothing is helping. I am going to go on the antibiotic and if that doesn't work then prednisone. They say that this disease goes away after 12 months but I have it 9 months now and its getting worse. This is a nightmare.

I'm addressing several questions from the posts I've read tonight. I've had Grover's Disease over 30 years. It was dormant for a couple of decades but resurfaced with a terrible outbreak in the last two years. I know now (and have confirmed in articles on the net) that Xrays trigger Grover's--and I've had many xrays because of severe scoliosis and now a shoulder injury--as did the UVA therapy my dermatologist gave me. I had six treatments and between those and a lot of recent xrays, I now have Grover's all over my breasts, midrift, arms and legs. Previously, they were limited to my chest.

I've been horrified to watch it spread before my eyes. I quit the UVA therapy as soon as I realized what was happening; however! I have since read that UVA therapy initially makes the Grover's worse--then makes it better. I've asked my dermatologist to research that.

To those who are going in the sun: STOP sweating! It's dumb!

As for Cilantro, I bought the oil on Amazon because a support group I belong to is experimenting with it and looking for feedback. I've been taking 5 drops a day in water for about 2 months. I can't see any change, other than the spreading of the disease. My derm prescribes both Clobetasol and Eucrisa, which I alternate daily. He just added hydroxyzine. I also use a moisturizing cream that contains both menthol and camphor. So, I'm kind of taking a shotgun approach to this but it's out of desperation.

What's new about the appearance of the Grover's is that I'm developing purpura--the purple hematomas (for lack of a better description) all over my chest, breasts, arms and I suppose my legs will be next. I've seen nothing in print that links Grover's to stress--but I'm here to tell you I believe stress is a major trigger for me. I'm under tremendous stress, facing open spine surgery soon, and my derm told me he now agrees with me. We believe stress and the frequent x-rays have a lot to do with my progressing flares.

The only drug I had a GREAT response to but don't take more of because of its negative effects is PREDNISONE. I took it for 15 days and had a dramatic clearing of the Grover's--but I've had a terrible progression of the disease since then (this past summer).

I wish that more clinicians and researchers would take up the cause and find more effective treatments for us sufferers of Grover's. Until then, keep sharing.

Hi everyone,

Here is an update on my husband's health after receiving a misdiagnosis for Grovers Disease.

As it turns out, the diagnosis is Bullous Pemphigoid, which was triggered by the Pfizer Covid Vaccine, which put his immune system into an over reactive state. This has been 100% confirmed by a rare disease doctor at UCSF. I appreciate all the support from everyone who contributed help. We are now onto a new chapter. But in the meanwhile, antibiotics and the many supplements have been helping tremendously. My husband's reports are showing only 25% is left in his body, of this awful bacteria that got into his system per Pfizer vaccine. It has been a tough 9 months, getting NO help from CDC, and having to figure this out ourselves. Thankfully, we have come across some very well advised practitioners, and my husband is now on his way to healing. Thank you all SO much,

Thank you so much for recommending "Butt Paste" diaper rash cream. I've had Grovers Disease for almost a year and have been using 4-5 medications the dermatologist prescribed to no avail. I decided to look for a natural solution and discovered this site. I read through the recommendations/comments and decided to try Butt Paste and I am so glad I did.

I first bought a red tube of Butt Paste that is max strength extra protection (40% zinc and free from dyes, parabens, preservatives, talc). As soon as I put it on, it felt like a fire went out. Within 2-3 hours, at least 50% was gone, bumps and all. I used it 2x a day; within 3 days, 90% of the grovers was gone.

I read another recommendation that said he used diaper rash cream before doing activities like working out, running, walking, etc. So I did the same using a lighter version of Butt Paste (16% zinc).

It's been two weeks and 98-99% of the Grovers is gone. The one with 40% zinc is the true healer.

Do not try to rub the Butt Paste off - it will cause a grover's flair up (that happened to me). To get the Butt Paste off, my doctor recommended mineral oil. I bought Johnson & Johnson Baby Oil, which is mineral oil. I put some on a piece of cotton and gently dab it over the diaper rash cream and it disappears. I then take a shower.

I also started taking a zinc supplement a few days ago, thinking it might help to keep the Grovers away. I bought Thorne, Zinc Picolinate 30mg. I take one a day.

I hope this information helps.

I'm following up on my posts from April 2021 to report I am still miraculously free of Grovers since the end of April 2021. I want to share my recovery after suffering terribly with it since onset in September 2020. I believe stress brought on my Grovers. I had tried Chinese medicine, a slew of steroid creams from dermatologists and nothing worked. Then I found this site and tried the cilantro smoothie route and zinc oxide to put on the skin to stop itching. I began to improve immediately. Then I added oral turmeric to my treatment. Although not a natural treatment, my dermatologist suggested trying an injection of Biological Dupixent, which was initially used to treat psoriasis. After one injection I had slight improvement which did not last. I took a second one six weeks later and all my Grovers went away. I did not take any further injections and stopped cilantro and didn't need zinc oxide bc I had no more rashes. I am still clear six months later. I use olive oil soap and Dove. I hope all this helps those suffering from Grovers currently.

Cilantro removes the heavy metals in the body/va$$ines. Know this truth and get back to health. Add vitamin C, D3 and milk thistle to support your liver and immune system

Eat some cilantro everyday. Many reports of this helping Grovers. Some people do not like it or for some reason cannot eat it, but if possible, try it - look for cases on this site for positive reports of it. Good luck!

I too got Grovers disease after Pfizer Vaccine. 3-4weeks after 2nd shot. About 4months now I have endured this debilitating disease. I had a biopsy from my dermatologist which of course confirmed Grovers. Will not have the booster they want me to have. Had 19 treatments of light therapy with no improvement. Lack of sleep is a big thing for me and life has taken a big dip in the quality that I was used to. Taking Zinc Oxide, Tea Tree oil, many creams and Blexten Antihistamine. Slight improvement but still covered in rashes. Don't know where to go from here, but I was inspired to be able to share with others.

I got Grovers Disease from the Shingles Vaccine.

The folks at EC found years ago that cilantro is the remedy for grovers. Take some every day. We couldn't work out if it was detoxing heavy metals that cause the skin condition, as cilantro is an excellent chelator, or the large amounts of vitamin A that are within. But it works. Take cilantro internally daily, take a clean bunch, cover with boiling water, cover to keep the therapeutic steam and oils. Steep twenty minutes. If you don't like the taste take capsules 🌱

Patty;

Your comment was one of the most recent I could locate on this thread. I was diagnosed about a month or so ago; have been in flare up about 4 months now. I tried the predisone route; no change. I am trying to clean up my diet and use natural products. Nothing is working. I am worse. I am in pain. The burning and itching is taking over my life. Do you have any suggestions? What has worked for you?

Update: I still have Grover's ( 7 months). But I am still working on healing my body to get rid of it. Also, I was able to find a place to report my symptoms to the CDC I believe. The website is thru the Vaccine Adverse Event Reporting System. The link is https://vaers.hhs.gov/reportevent.html. There is also information about filing a claim after you submit. I also read an article recently that stated that dermatologist know that the shingles vaccine can cause Grover's disease but they don't tell you that so if you are at that age to get the Shingles vaccine ask questions before you get it. The link to that article is

https://connect.mayoclinic.org/discussion/grovers-disease-tied-to-shinglix-vaccine/

Hi Elizabeth,

Thank you for posting, and sharing your story, regarding your personal experience with Grover's Disease diagnosis, as well as the possibility that Covid-19 Pfizer Vaccine, may have caused your Full Body Rash.

Here is an update as of 6/15/21:

My husband has now seen a second dermatologist, and a very good one. She was quite taken aback by the FULL BODY RASH on my husband's body, that she immediately left the patient's room, to bring in a parade of other doctors for a second opinion. The other doctors confirmed it was "not" Grovers Disease, per their personal observation, and they were very matter of fact. She, and the other doctors suggested a second biopsy to confirm the diagnosis, since the first biopsy was sent to a local lab in our town. She preferred a biopsy test from UCSF Lab (California), one of the best in our state/country. The results came back, and it is "not" GD. However, it was very similar to the first biopsy, which is good, that both biopsy tests, were aligned. Just to be clear, the first dermatologist who diagnosed GD, was by observation only. But now, we have both both biopsy tests results, which have been confirmed otherwise.

At the end of our appt., w/the doctor, I asked if she has seen any other patients with a full body rash like this, after taking the Covid-19 Vaccine? She replied, she has seen several patients, since the Covid-19 Vaccine, but only with smaller arm rashes, and nothing like this.

My husband's biopsy report is as follows: Spongiotic dermatitis, and is not fungal. Spongiotic dermatitis, includes Allergic Contact Dermatitis, Drug Eruption, Arthropod, Bite Reaction, and Autoimmune Vesiculobullous Disease (such as Bullous Pemphigoid).

The only two possibilities on this list, is "Allergic Contact Dermatitis" and "Drug Eruption". We don't believe the others relate, due to the description of the rash. Although we haven't a clue what my husband may have come in contact with topically, that could have caused his full body rash per Contact dermatitis. As, he is pretty much, a "creature of habit". Just to be safe, we have changed laundry soap, body soap, shampoos, and even bought new quality sheets. And also washed all of his clothing. His body products are the same that he has always used, and has never had a reaction to any. Which he keeps very simple.

As far as the "Drug Eruption" diagnosis - it does seem to point to the Pfizer Vaccination. As my husband does not take any prescriptions, and only an occasional Aleve, with no side effect ever! Also, after doing my own research, it appears vaccines, and drugs can cause a "Severe Rash". I suggest checking the list of ingredients of Pfizer Vaccine, as we did, which is provided by CDC online.

Also, I want to add one other body contact w/heat, that I neglected to mention in a previous thread, which is an "Electric Blanket". The blanket is turned on, only to pre-heat the bed, prior to bedtime (approx., 20 min before), and is turned off, before actually getting into bed. However, the blanket is still electrically plugged in while sleeping.

Elizabeth, I see you used a heating pad, which triggered my memory of the electric blanket.

The two prescriptions given, to help with his body rash are both Topical Ointments; Clobetasol Propionate, and Triamcinolone.

Of course, my husband is using these meds, out of "pure desperation". As I mentioned before, he never takes prescriptions, so this was a difficult decision for him. The Clobetasol, was to be applied for 2-3 days only. (As it only comes in a small tube, and can not be prescribed again for 30 days, in order for insurance to cover). The 1st medication seemed to be clearing the rash, but when he ran out of it, and then begin using Triamcinolone (per doctors instruction), new bumps appeared, and the rash started spreading. One week later, after seeing this, she gave him a cortisone shot, and instructed continue use of the 2nd medication, until the next follow up appt., which is next week.

Elizabeth, I too wish there was a way to create a safe place for others who may be experiencing the same rash/side effect, and may suspect Covid-19 Vaccination. Earth Clinic is an excellent site for starters, and hopefully others will find this site helpful to share their own story.

Please, anyone experiencing a similar situation, or side effects of a Full Body Rash, after receiving the Covid-19 Pfizer Vaccination, we hope you'll share your story here.

Thank you,

Rita

FYI: Here's a website per our doctor- Assistance, for anyone having side effects from Vaccine, contact, VSafe.

Also, after reporting our health situation/side effects to the CDC, here is their response to my letter, and link for assistance, https://vaers.hhs.gov/ Please see other links below.

Dear Ms F-----,

Thank you for contacting CDC. We are sorry about the symptoms you experienced after the Pfizer-BioNTech COVID-19 vaccine.

Hypersensitivity reactions such as rash have been reported following administration of Pfizer-BioNTech COVID-19 vaccine outside of clinical trials (see https://www.fda.gov/media/144413/download). Commonly reported side effects after COVID vaccine include tiredness, headache, muscle pain, chills, fever, nausea, and injection site pain, redness, and swelling (see https://www.cdc.gov/coronavirus/2019-ncov/vaccines/expect/after.html).

We recommend that you follow-up with your healthcare provider. As policy, CDC does not offer clinical guidance for a specific patient, and recommends questions and decisions regarding the clinical care and management of a patient be discussed with the patient's healthcare provider. Such patient management requires familiarity with a patient's medical history, the ability to physically examine the patient, as well as clinical laboratory testing to obtain a fuller picture of the patient's clinical situation. These factors are beyond CDC's ability to provide, and for those reasons, we recommend you discuss your concerns with your son's healthcare provider.

If you have not already done so, we encourage you to report your symptoms after vaccination to the Vaccine Adverse Event Reporting System (VAERS) or ask your healthcare provider to report it. Reports to VAERS are important to help CDC and the Food and Drug Administration (FDA) detect new or unusual adverse events or patterns that could indicate a problem with vaccines. Instructions for reporting are available at https://vaers.hhs.gov/

Sincerely,

CDC Immunization Safety Office staff

Atlanta, GA

This is going to be a long posting, but I want you to know my story too as it might help someone. What happened to Rita below also has happened to me. I am only 39 years old and a female (not the typical lucky person to get GD). I have been a vegetarian most of my life mostly plantbased. I watch what I eat, take great care of my skin. The only link has really been getting the Pfizer vaccine. This has been devastating to me and my family as it has affected what I can do. I can't get hot as this seems to cause it to flare. So no exercising, gardening, etc. And I live on 18 acres.

My story is very similar to yours and I am shocked to see that someone else also believes it was the Pfizer covid vaccine. I got the first dose of Pfizer in January, my 2nd dose on February 2 ( right after I only experienced tiredness, muscle aches, and a slight temperature, but not like some people got after) not until February 7th after using a heating pad on my back. I noticed a rash just below my bra line. Then a few days later it developed on my low back. I wasn't able to get into my dermatologist until March and since I was so young and not a typical patient of Grovers dieases and my GD didn't itch she never even mentioned GD. She diagnosed me with folliculitis right off just by looking at it.

She prescribed doxycycline. And also bleach baths. I hate taking antibiotics. I like to do things naturally. So I tried everything I could natural ( but nothing from this sight since at the time I didn't know I had Grovers) nothing seemed to work. Somedays it would seem it was getting better other days it was worse it was such a frustrating and depressing time. I end up taking an antifungal for 3 days after I was at my wits end to see if it would work before I took an antibiotic. My dermatologist still thinking my Grovers was folliculitis.

In short, the the antifungal only made it somewhat better, but not gone. I ended up taking the antibiotics, but that still wasn't helpful even though my dermatologist said it would clear it right up. It didn't. After being on the antibiotics for a while consulting with my gastro specialist ( to see if there was a link to my rash because of a gut problem which turned out it wasn't) but she suggested I stay on the antibiotics for a while longer to clear up any infection and to take a good probiotic supplement to keep my gut bacteria somewhat healthy while on the probiotic. I ended up going back to the dermatologist and she did a biopsy of my skin condition and it came back Grovers dieases. I was devastated. I thought How in the world did this happen to me especially knowing that there is no cure! And after all this time of trying to treat something else. My dermatologist prescribed a steroid cream which I didn't want to use as long term use on the skin can cause thinning. I continued my research. And found this sight. I have tried a number of things on this sight butt past ( didn't work), still trying supplements suggested here. I have had Grovers for a little over 6 months now. And it does seem to be getting better, but not completely gone. I do occasionally get a red dots here and there with no reason why. I have been using homemade aloe vera (which has seemed to be helping the most) on my skin several times a day and taking supplements because my vitamin D3, zinc, and vitamin A where on the low side as well as my WBC was also low ( probably because of my 27 days on an antibiotic). So I have been adding immune supporting herbals like garlic, probiotics, fermented foods, and oregano on a daily basis. I also started green smoothies again. And on I'm on a strict whole food plantbased diet. I don't eat anything that's not natural. I also purchased some moisture wicking clothes ( not that I sweat, but this has been advised to help). I can't say my Grovers is gone again, but it is better. I feel trapped by the fear it is going to come back even worse though. I check my skin every morning hoping its disappeared completely. I hate that it has held me back from life and I have done so much research and this is the first time anyone else has thought like myself it was due to the Pfizer vaccine!

I have told my dermatologist who waved that idea off real quick as well as the idea that the heating pad I used helped spring on my Grovers even though there is a heat connection. I have since seen another dermatologist who was a little better at hearing me about wanting to be more natural at helping my Grovers and suggested Calendula oil. Its acts as a antinflamatory and has been known to heal and prevent radiation burns for those going thru cancer treatments. I have just started using it and will tell you all if it helps.

But for now I am still testing it. My doctor does believe me that it was the Pfizer vaccine. She is on a nationwide board that hears about reactions to covid vaccine, but hasn't heard of anyone reporting Pfizer as a cause of Grovers. I have tried to report my symptoms to CDC with no luck! I am so frustrated. And there is nothing on the internet about the link. Like I said this is the first post I happened to find someone else that has experienced the same thing.

I feel so helpless at times but have felt better knowing I am not alone in this, with this sight and hearing people's stories has help along with prayer. I hope for our sake with the link of Pfizer vaccine that we have this one occurrence of Grovers disease outbreak and our body will somehow heal/recover and we wont have any reoccurring episodes. I can only hope! I hate that we are the unlucky ones to get Grovers from Pfizer. I wish somehow we could ban together to tell more people about this because I am sure there are more people like us out there, but just don't know what ot is dont have the means to go to a dermatologist, be diagnosed correctly and have someone take them seriously that their Grovers was sparked by the Pfizer vaccine. Please anyone that has received the Pfizer vaccine for covid and has experienced what we have posted your story here for others and hat has helped for you. I know everyone's journey with GD is different and what helps but sometimes what helps one person could help another. And with not much help in the medical world, we have to help out each other.

Thanks for hearing my story. Please post here if you find out any new information as I will too.

Hi Jeannette,

Thank you so much for kind your healing information, and recommendations. We are grateful for all of your help, and will be buying Nigella Oil today!

The thing that is so mind boggling about my husband's skin body rash is the fact that he his so “incredibly” healthy.

All blood work is, and always has been EXCELLENT. Same with thyroid, cholesterol, and prostate.

He takes zero (0) prescriptions, and never has, except on a “rare” occasion, and for only short term use.

He has always been an athlete, and presently a golfer. He gets plenty of sunshine (Vit D) by “WALKING” a 18 hole golf course 3 x week, yep, no golf cart. We live on 3 acres, so again, always outdoors, and moving his body.

He is well hydrated

A very positive person

A very Calm-minded person

He is very HAPPY

He eats a WFPB diet (I am a whole food plant based certified health coach). No processed foods, very low, sugar, salt, and oil intake. Minimal wine on occasion, but presently none.

His Dad will be 100 years old in a few months, he is also in excellent health, and has a very sharp mind still. His mom passed at 95 yrs., but extremely healthy til the end - Longevity and good health runs deep in his bloodline.

This awful, body rash just showed up on our doorstep one day, practically overnight. And it appeared AFTER he was given the Pfizer Vaccination. Even though it was a delayed reaction, there are reports of delayed reaction, after receiving the Pitzer Vaccine. And we are both trying really hard to not go there, and that it was possibly the Pfizer Vaccine that ignited this body rash. Especially not ever having, skin rash issues, never!

His stress level is low, and we are happily married (32 years). Both of us are so blessed, and grateful for all that we have, our life, and especially our family.

Again, I appreciate your recommendations, Nigella Oil/book, CBD oil, and I'll keep you posted. Thank you, thank you, thank you!!!

Hi Charity,

I'm so sorry to hear you have RA, it is a challenge to have this dis-ease.

I'm happy to share, though it was a quite a quest of a journey, because in back 2008, there was not much info. Or healing support like there is today.

Here are two very good people I would highly recommend that you contact.

1. Clint Paddison, at www.paddisonprogram.com

2. Erika Bustos, @ Instagram, you can reach at healing_arthrutis_holistically or Erikabustos.com

Here is my list for healing from RA:

#1 most important: Eating a Whole Food Plant Based Diet, no processed foods, no dairy, no animal meat, no gluten, no soy except for organic sprouted tofu, very little salt, sugar, and oil (instead cook with vegetable or chicken broth)

#2 See, and follow these doctors: T. Colin Campbell, Dr. John McDougall, Dr. Neil Benard (pcm.org), Dr. Michael Gregor, Dr. Joel Fuhrman, Dr. Caldwell Esselstyn, Dr. Michael Klapper.

These guys are honest, true, and have dedicated their whole adult life helping people to heal from dis-ease in their life. They are the BEST.

Mind & Body work, is very important. Addressing unresolved life issues is key (self work). And body work to keep your body balanced.

Coach/Therapist for support is very helpful and to keep you on track. Erika Bustos or Clint Paddison

Exercise & Strength Training, even if you start slowly it's ok. Your body must move for oxygen and inner fluid movement. Strength Training is for building muscle, so joints have muscle support, which shall ease joint pain. Again start slowly, and build up.

I hike 3 days a week, in the am - and accomplish getting fresh air, sunshine and exercise. And 2 days a week, I do strength training, and yoga. Just move you body!

Practice Meditation, Pray, Yoga, or Qigong, or Tai Chi

Parasite cleanses /Dr.Richard Shultz (super important)

Infrared saunas

Ayurvedic Practioner/ medicine

Accupuncture

Functional Medicine Doctor,

or Integrated Medicine Doctor

Practice breathing, calmness, and positivity.

This is most of it, but it was done over many years of learning and going through my own journey to discover all of this, and who I was.

I truly hope this is helpful, please reach out anytime. btw- I am a Whole Food Plant Based certified health coach.

Love & light to you!

Warmly,

Rita

Hello,

Sometimes medications weaken the immune system and the chlorine may have filled your husband's bucket. Here are my suggestions:

Use Nigella Sativa oil organic 1/2 tsp to 1 tsp 3x per day, especially right before a meal. It has the properties of immune modulation, but it will also calm an agitated immune system. Nigella Sativa appeared in the bible and is said cure everything, but death itself.

2. If you are in a state that will allow you to buy CBD oil with a 1:1 ratio, you can use a drop twice a day(one before bed). This will also calm an agitated immune system. The steps mentioned above are just to calm the body, but your husband might need to look under draining pathways that might be clogged (kidneys, liver, colon), then use some binders as I bet his body is a toxic bucket filled with all sorts of toxins. The medications he received may have filled his body to his limits. You can read about Nigella Sativa online and a new book that came out last year talks about using this oil (Why Not Desserts? Available in Amazon, the oil is also available in Amazon. Have him avoid for now dairy, eggs, gluten they are hard to digest. The Nigella Sativa is sold at many health food stores and believe me when I say this will take care of his problems within few days. There is a reason that is reference in the bible!

Good luck, Health Coach

Charity,

I have RA really bad and want to know what you did to heal.

Thank you very much Chris, every little bit of information helps since we are in the very beginning stage of learning about Grover's Disease. I appreciate your help.

Rita

Hi Bill,

Also, the antihistamines (Zyrtec and Benadryl), were recommended by his doctor to get rid of the tremendous "itch", and burning sensation of the skin, while awaiting results of a biopsy to come back. Any suggestions for the itching? As of yesterday, he's now applying Boudreaux's Butt Paste (diaper rash ointment), topically, which was recommended on EC- trying this for calming the rash/itching, and "open" to trying something better. Thank you very much, Rita

Great information here Bill, thank you so much. We are learning a lot, sadly with trial and error. Yes, have stopped both prescriptions, which he tried each just twice. And have him discontinue the Claritin (he's only been taking for few days), whew, thank goodness! Hopefully not too much damage has been done, w/the few doses. I imagine he should discontinue Benadryl (over-the-counter) as well?? We are so grateful for the info., and links you posted above (borax and iodine). We'll be looking into this immediately! THANK YOU SO, SO, MUCH!! 🙏 🙏🙏

My mother in law died (heart issues from methotrexate)after suffering from RA for decades. I suspect it was the zinc in her denture adhesive throwing off her minerals producing histamine. Most of what we learn is from suffering through things . Expecting miracles in faithville, Us...love, Charity

Bill's comment below had iodine in it, I use it daily. Iodine, chloride and fluoride are halides (same shape of molecules) and all go into the iodine ports in the body and only iodine belongs there .Halide - Wikipedia The others cause autoimmune diseases, especially thyroid issues. selenium balances iodine and low selenium causes cancer to grow. You mentioned he was in the spa ....Just an add on.

Thank you very much Charity for your reply to our post, we appreciate all the information and wonderful recommendations. I thought it was important to share our post ~ just as a precaution to others that might be considering the covid vaccine. I am also curious, if others who have Grover's Dis-ease might not in fact be eating the healthiest diet, drinking plenty of good water, getting real vitamin D (sun), exercise, have a calm positive mind, and outlook on life. These are all components for a healthy lifestyle (mind & body). Thankfully, I know, because I self healed from Rheumatoid Arthritis 13 yrs ago. We'll be researching all that you suggested, and again, we are so grateful to you, and all the others for sharing.

Our skin is our largest organ, coconut oil is anti fungal anti viral and anti bacterial anti microbial, molybdenum keeps the liver from causing pain when detoxing. The liver is the largest detox organ and ginger is very wonderful. Castor oil is the palm of Christ and you can put it in and on the body, really messy works amazingly. Comfrey heals rapidly bones and skin and muscle. Zinc is for viruses and copper is for parasites. One lowers the other.

One mineral imbalance or hydration issues will produce histamine. Histamine will cause all kinds of immune and skin issues. Borax removes calcium out of soft tissue and displaces certain toxic minerals like they use in vaccines.

The effects of some boron compounds against heavy metal toxicity in human blood - PubMed (nih.gov)

Use some chanca piedra with that. Dr Berg Gives Best Tip on Autoimmune Disorders & Conditions | Autoimmune Diseases - YouTube

Sunbathe for vitamin D and hormone reset.

and I go to the healers on youtube, just type healing prayers if you are interested. the real ones have testimonies below them about the miracles, as with anything you have to keep applying the cure. Blessings, Charity

Hi Rita,

If it were me, I would stop all the meds that your husband's doc has advised. Both Fluocinonide and Triamcinolon contain fluorine which is a poison that can also cause severe skin problems and thyroid problems(low energy, heart problems, immune problems, digestion problems, intestinal problems etc). Both these drugs are corticosteroids that will also tend to excessively acidify the body. To normalize the bodily damage caused by these two meds, you should take Borax and lugol's iodine or potassium iodide (as SSKI drops) to help heal the thyroid quickly and you should also supplement Borax to help remove the fluorine from your husband's as well. See these EC links for how to use these two remedies:

https://www.earthclinic.com/remedies/lugols-iodine-treatment-bill-thompson.html

https://www.earthclinic.com/remedies/borax.html

Claritin is an anti-allergy medicine that contains chlorine(also a poison). So, little wonder to me that your husband's skin condition became worse when he took all those medicines -- since both chlorine and fluorine(and bromine) are well known poisons that can also cause different forms of dermatitis(because the liver has so much trouble getting rid of these halogens - so they are excreted through the skin, thus causing all the awful skin problems).

Cilantro should be able to remove heavy metals that are possibly used in the vaccine as adjuncts or additives but cilantro will not act to remove the chlorine or fluorine from the body.

Tumeric is also definitely worth using for many things such as improving/protecting the heart and arteries, as an anti-inflammatory, anti-aging, anti-viral, etc. But turmeric does not have the ability to remove chlorine or fluorine from the body.

The best remedy for removing chlorine from the body is Sodium Thiosulfate (https://www.earthclinic.com/remedies/sodium_thiosulfate.html). And the best remedy for removing fluorine from the body is to supplement Borax and lugol's iodine (or SSKI). See links above.

I would also advise your husband to regularly alkalize his blood using Ted's alkalizing remedies on a daily basis for at least a month or so to get the blood back to correct pH balance. Use the simple sodium bicarbonate + water remedy which helps to alkalize the blood. Shown here on EC

https://www.earthclinic.com/cures/ph.html

...And next time your doctor eagerly prescribes drug meds for you or your husband -- you should always do your own research and go to drugs.com and look up their side-effects. Then use Wikipedia to see if the drug contains any dangerous or poisonous atoms like bromine, chlorine or fluorine(or heavy metal) in its molecule. Then just type " warning" in Google search to get some honest opinions and feedback (not biased FDA opinions or research) from other users on whether that drug is both safe and useful or not.

BEWARE:

My Husband was given a "Pfizer Vaccine" on Feb. 20,2021. Fourteen days later, he went into a spa, and pool, at a Country Club, and shortly after, begin itching like crazy. His Dermatologist diagnosed him w/Grover's disease. He checked with his Dermatologist if he should get the second Pfizer Vaccine, and his doctor said, yes. So he did. Perhaps, the Pfizer Vaccine has altered my husband's immune system, and with the mixed chemicals of a public spa/pool, explains why the severe rash breakout.

He hasn't changed anything else in his lifestyle, has had excellent skin, no skin conditions, and his recent blood lab work came back excellent. He's never been on any long term prescriptions, and is very healthy. His diet is mostly Whole Food Plant Based, he golfs 3 days/wk., takes vitamins, drinks green kale smoothies daily, eats mostly organic food, low stress, retired, and is a very calm minded person. btw- he has used our spa at our home for past 20 years, and never a problem.

The dermatologist prescribed Fluocinonide, then replaced it w/Triamcinolon, both made everything worse, so he has stopped using it. He's now taking over-the-counter, Bendaryl @ night, and Claritin 24 hour, during the day. And he is now drinking cilantro smoothies, using Boudreaux's Butt Paste, Tumeric 3,000 mg./daily, and lightly spraying apple cider vinegar on some areas of the rash. The ACV does seem to be helpful.

How does someone so healthy, suddenly get GD??!! Go figure..... We are open to all suggestions and thank you to everyone for contributing what has and has not worked for your GD. We shall keep you posted.

My Grovers Disease is now gone! After reading this website, I've had a cilantro smoothie daily and used zinc oxide 20% to quell the itch. Great improvement in a week. Then my dermatologist gave me injection of Dupixent, bc I also have some eczema. Mild improvement and reversion after injection. Kept up the cilantro and added turmeric 3600 mg a day. Turmeric is good for treating inflammation in the body, my skin felt hot all the time w Grovers.

Within three days, my GD disappeared completely. It's been almost two weeks. Keeping my fingers crossed. Recommend trying turmeric to treat inflammation.

I came down with Grover's disease years ago and was told there is no cure. I tried cortisone creams which did not work. It was unbearable. I was reading a forum about it one day & found that 2 women went on a gluten free diet and it went away for them so I went gluten free and it went away. I have had 2 flare ups over the years & both were after eating licorice which often has gluten in it. The Grovers began to fade as soon as I stopped eating the licorice. So it may be gluten for some people and it's worth a try.

Terri & Veronica, I have read all these "miracle stories" of zinc oxide cream. Thought I had the miracle too when I woke up and it was gone. Problem is, it was NOT gone. It was just merely hidden by the zinc oxide but when you washed it off, there is was again.

I will continue to try but no miracle yet for me.

Robert in Chicago.

coolness does seem to help the itching.

I have had Grovers for 8 years. It comes and goes. Mine is on my right leg, on the back and inner thigh. I just want to peel my skin off when it is flaring up.

Robo,

1st of all thx for sharing. Like you I'm in my 60's. I was diagnosed with Grover's 10 years ago. It is all over my back and on about 1/3 of my stomach. So back and front of core truck is 95% of where it appears. The other 5 to 10% of I I have isolated spots. Primarily on the high part of my thighs and a few around my belt line. But never ever on or near my privates nor ever on my face or neck. It's appeared but isolated on the collar bone part closest to my neck. But again never on face or privates by me or anyone I've heard comment. So think you're good there. You said forearms however...I have never had it there. So that was the only unique location comment of yours. I have heard everyone fails with what doctor prescriptions of any kind myself included.

I started the cilantro about 10 days ago. I love the taste and the other benefits (see my very recent post in the cilantro section of this forum.) So far no change. I will continue the cilantro routine forever regardless. Two days ago, I started the zinc oxide cream (16% active ingredient--Zinc oxide). It diaper cream. Covers it up nicely but almost is irritating the papules. So the 48 hour result for me is "not" working. I've heard others have miracles. So that's why I tried it. As I said in my other post, I do plan to comment back on here and let you know how it goes. I would hope you'd do the same. They say we have an "orphan" disease. So don't be a stranger. You and everyone's posts are helpful.

Kind regards, Robert from Chicago.

I was diagnosed with Grovers last September. I'm 67 and have never had any skin issues, I'm in great shape but I was very stressed for months when this Disease hit me.

I've tried all the cortisone creams and they have been useless. I tried Chinese medicine, brewing a prescription of dried herbs and roots from an herbalist who cured my fibroids 20 years ago, but gave up after two months of that. My dermatologist tried antibiotics and Zyrtec, but didn't help. It's progressed from my back to stomach to one leg and two shoulders and forearms. It is really uncomfortable, unsightly, and ruins my quality of life.

My doctor injected me with Dupixent last week and it worked for a day. I'll try another injection in a week. It costs $3300, but my health insurance covers it. Has anyone had Grovers go to their face? Or privates? I'm dreading that. I tried the zinc oxide and that seems to have stopped the itch as of today. Thank you, bloggers who suggested that. And, I made my first cilantro smoothie, which tastes great. I am praying this goes away and never comes back. Has that happened to anyone? Why can't they find a cause and a cure for this awful disease?

Also drop the sea salt and hydrogen peroxide which is very drying - who in gods name have you been talking to?

Your mantra is moisturize, moisturize, moisturize - no heat or heat lamps, or hot tubs, or heat pads, or sun - no sun - no sun - no sun - sweating and all these things cause the frigging rash!!!.

You are doing too much!!! Apparently do not have a really good dermatologist either -

Laying in sun is the worst thing you can do!

Heat, sweating, hot tubs, all cause grovers or cause eruptions so stop now!!! Coconut oil is great - have heard that a 20 minute past of turmeric and olive oil - then wash off with cold water is good - I also use a teaspoon of apple cider vinegar to i cup cool to cold water several times a day gently slosh on broken out areas..

Find a good dermatologist - do not use prescription drugs unless you absolutely must and then get a prescription from a good - that is g o o d dermatologist and use as directed - if any side effects occur - immediately stop using..

Zinc Oxide for Grover's Rash

I'm a 69 year old female and tried zinc oxide! It's awesome!! I put in on last night and the red areas were gone this morning. This is the first thing that worked for me.

I have also just gotten a new flare up of "Grovers" and is getting worse with my workouts. The doctor prescribed a steroid cream to be used for 2 weeks. Was not seeing much difference. Did some investigating on this website and others and decided to try a different approach. Applied Triple Antibiotic on the spots and covered with Zinc Oxide..in 24 hours already see an improvement. Itching has decreased, spots not red and not as raised. Will also supplement with Vitamin A as I have read this is critical as well.

Will keep all posted over the next week or so of this :).

If you get low on water, it can take 6 months to rehydrate a body . The rehydration process includes the correct balance of all minerals.... so if something here is out of balance the body will produce histamine to let you know about the problem and that might cause itching. If your liver ( try milk thistle) is having problems that will cause lots of itching. If your stomach is out of whack it will not absorb your minerals. Could be those invisible bugs biting you....mint might get rid of them, I have mint in pots by both doors, repels flies, mice, mosquitos, ect. Oye. I have been going down these rabbit trails for years.

Blessings, Charity

I'm glad for your relief with 4000 iu's of D3, but I've taken 10,000 iu's of D3 oil gels & 4,000 iu's of powdered capsule for at least a year, and my neck, front & back, my entire back, my sides, around to my stomach have been itching me 24/7 for over a month. I even tried liquid D3 that someone suggested to apply topically, with no relief at all. HELP!

I've had grover's for several years. Compared to the cases described here, mine was milder than most. My lesions were mostly on the front of my torso, and though they would itch sometimes, not to the point of keeping me awake, and never all at one time. Hydrocortisone cream subdued them for a few days, but never eliminated them.

I have been taking 2000 IUs of Vitamin D3 for over a month now, and the lesions are 99% gone. I am continuing to take D3, but now I am focused on fading the little scars left behind from the lesions. For this I am using Jason's vitamin E 25000 IUs once or twice daily. I'll report back if see any definitive improvement.

Thanks again to Timothy from London (2014), for posting his success with vitamin D3!

I suffered through a major first Grovers flare up right before Covid-19 lockdown and when I was finally able to see a doctor in person and had a biopsy taken I was diagnosed with Grover Disease. I am 38 and female.

I know we are all so different so one cure may work for one but not the other but I have found Homeopathy for me has been my saviour. I have a bottle of Homeopathy Natrum Muriaticum 30c tablets with me at all times. I take the Chronic dose three times daily but if I have a flare up (from getting hot and thus sweating) I take the Acute dose (see bottle for full instructions)

I have found that Grovers flare-ups happen when I get hot and sweat forms on my skin and then dries, I feel a strange stingy feeling on my skin when sweat is drying and a flare-up is happening. I can still exercise and get hot etc but I always make sure I shower as soon as possible before the sweat dries on my skin. if I can't get to a shower and the sweat dries on my skin I will have a flare-up.

Ice is also a good way to catch a flare-up and stop it from going from a mild flare-up to a major one. if you catch a flare-up at the early stages it will be gone within hours or max a few days.

I agree with Christine that vitamin D is important in helping with the disease and flare-ups.

Cold Showers or Ice Packs or Ice Rollers for skin work really well for Grover's Disease.

If you sweat and don't have a shower straightaway you will feel a slight crawling stingy feeling on the skin, this is a warning sign that your skin is going to break out.

I've found that you can exercise and get hot and sweat as much as you want but you must not let the sweat dry on your skin, wash it off as soon as you can.

Hi Rob, my hubby has been suffering with Grover's for several years now. Last year his arms were so bad and inflamed (that could have been a different skin complaint) that we asked the GP if he could have full blood tests to determine the CAUSE. Following the blood tests, he was diagnosed with Multiple Myeloma!! Probably had it for years. Since March this year he has been taking Curcumin C3 with Bioperine 8g daily for the MM but sadly it has not helped his Grover's. I'm sorry to disappoint although it may help you, it's a great supplement.

We are now going to try Magnesium, (mentioned by Anna); Reishi + Shiitake mushroom extract (mentioned by Francesco); and Molybdenum (mentioned by Jerry). All worth a try IMHO.

Zinc Oxide 1000% definitely works. I am a 50 year old female and had Grovers rash on chest and stomach for about 6 months. I tried so many things (tea tree, antispectic cream, prescription cream) and nothing made any difference. After reading this page I tried zinc oxide and within 24 hours it is 90% better. Thanks to all who shared this info.

You are so welcome! I want to shout if from the rooftops!