Grover's Disease Remedies

| Modified on Oct 28, 2022
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Cilantro for Grover's Disease

Grover's disease, also known as transient acantholytic dermatosis or Grover's Rash, is a skin disease characterized by red, itchy spots appearing on the back and upper chest. They can last for months and never appear again, or go off and on for years.

Grover's Disease is more common in older men with a history of high sun exposure, but it is believed to be caused by blockages in the sweat glands in the upper layers of skin. The cause of Grover's disease is still clinically unclear, but having dry skin increases the risk, and is commonly seen in hospital patients who are lying on their backs for extended periods of time. Symptoms of Grover's disease include small, but very itchy, red bumps.

Natural Remedies for Grover's Disease

Natural remedies for Grover's Disease are often effective and include dietary changes like eliminating sulfides, wheat, and gluten, and taking Vitamin B supplements.

Cilantro

37 Earth Clinic readers report success using cilantro, or Chinese parsley, for Grover's Disease. Here's one post:

Posted by Kristen (Aliso Viejo, CA) on 09/12/2021
5 out of 5 stars

This worked for me!! I had a mild case of Grover's and after eating 3 cups of fresh organic cilantro per day for 3 weeks, it was completely resolved. I blend with banana, yogurt and almond milk and can make a four-day supply at one time...

Read more testimonials here.

Vitamin A

Another successful treatment for Grover's is vitamin A supplementation. Here's what one Earth Clinic reader had to say rabout Vitamin A:

Posted by Elena (California) on 04/30/2022
5 out of 5 stars

"I started taking 50,000 IU daily for Grover's since this past Monday. As of today, my skin is almost cleared up!! Thank you to the contributors who shared that information! Just as a reminder take Vit D, 2000 IU more or less, because Vitamin A depletes Vit D. I'm going to continue for another week, and then reassess whether I should continue on a decreased dosage of Vitamin A..."

Below you will find a number of user-submitted interesting home remedies for Grover's disease. Know of a remedy not yet listed here? Please feel free to share your story with us.

Related Links:

Cilantro for Grover's Disease




Anti-Fungal Remedies

1 User Review
5 star (1) 
  100%


Posted by Jeannette (Colorado Springs) on 03/17/2022
5 out of 5 stars

My Grover's disease turned out to be a fungus. I used "Fungal Forte" (from Original Medicine or Garden of Life...both same ingredients). 1 tablet 3 X's a day for first week; then 2 tablets a day for next week. I combined this with 2 activated charcoal (to eliminate die-off which is critical, otherwise it reactivates the rash). I like Bulletproof brand. I also used herbal organic talc baby powder to keep the rash clean and dry.

Nothing my dermatologist or PCP recommended worked. Helpful to reduce or eliminate stress, overheating that produces sweat. If you want to get rid of this insidious systemic condition faster, combine with anti-inflammatory foods (avoid bread/sugar). Stick as much as possible to protein, veggies, and low sugar fruit (Granny Smith apples, blueberries). Be careful of some fruits that often have mold (strawberries). In one week there was a miraculous difference and after two weeks I'm cured!

Replied by Mike J.
(Charleston, SC)
04/24/2022

Thank you for your insight. Did you happen to perform a mold toxicity test? I can't recall if it's blood or urine but mine came back quite high. Did you try the Cilantro smoothies and have any success?

Replied by JP
(Out west)
10/07/2022

Orally administered activated charcoal does not get absorbed through the gastrointestinal lumen and only acts within the gastrointestinal (GI) tract in its unchanged form. Therefore, it could not possibly have worked at the epidermal cellular level to combat Grover's Disease. Additionally, MDAC may have, and likely would have, retarded the effectiveness of the 'Fungal Forte' active ingredients. Fungal Forte being a formulated supplement featuring lacto-fermented herbs, enzymes and more (what is does 'more' mean) to control fungal fluctuation for optimal digestive health. The advertisement for Fungal Forte says to remove sugar from your diet, and yet they include dextrose (a sugar) in Fungal Forte.


Chlorella, Supplements, Water, Turmeric +

1 User Review
5 star (1) 
  100%


Posted by Tarra (NY) on 02/04/2022
5 out of 5 stars

After reading some of the posts here and suffering with this atrocious disease for 2 years, to which my dermatologist simply said "there's no cure, " I tried out the cilantro smoothies and noticed a slight improvement, however I also have added or removed a few other things from my diet and after 2 years, this terrible rash is finally going away, nearly completely. I'm listing a few things here as I'm not sure which one was key for the cure, or maybe it was multiple:

  • I started taking Fish Oil (Omega-3s) and Vitamin D-3 daily
  • A scoop of Chlorella daily in my morning smoothie (I did not stick with the cilantro)
  • Quit alcohol- my acupuncturist suggested that the cilantro and chlorella sounded like liver cures, so I decided to give my liver an extra break
  • Stay hydrated- 1.5-2L of water/day
  • Women- use a chafe balm under your bra or sports bra! This helped tremendously to reduce additional agitation/friction
  • A sprinkle of turmeric daily in my smoothie

I wish I clearly knew what to recommend here, but overall these were all healthy changes for me, so I figured it couldn't hurt to share.

Replied by Jeannette
(Colorado)
02/24/2022

Wondering about references to fungus in relation to Grover's disease which would benefit from anti-fungal herbs? Also Apple Cider Vinegar which helps reduce candida and yeast.


Cilantro, Vitamin A+

2 User Reviews
5 star (2) 
  100%


Posted by Betsy (Georgia) on 08/29/2022
5 out of 5 stars

After reading all of these great posts on the Grover's Disease page, I tried the Cilantro smoothie once a day with usually a half of the bunch. Added turmeric and black pepper, (they have to work together) berries, a good collagen powder marine or bovine, along with a scoop of organic greek yogurt, ice, water and a scoop of organic non GMO plant based protein powder. I doubled my zinc to 30mg, 500 mg of curcumin (with black pepper), and 25,000-30,000 IU of Vit A plus what is in the cilantro, and 5000 of Vit C. Wore lose closing and limited bras. tried not to sweat during the day on my abdomen and lower back where my GD is located. I also added a uric acid cream twice daily. The one I used was Eucerin rough and bumpy cream. I saw and felt improvement after 2 days and great improvement after 5. Totally gone in 7 days. I am continuing the cilantro but will probably cut back to every other day in a couple of weeks. Staying with the uric acid cream daily and the supplements for a month at least. Then I will reduce the vitamin A, take a two week break from the zinc because it interferes with copper and reduce the dose, and reduce my Vit C. Amazing how food can heal! I cannot wait to return to the dermatologist to let her know so others can possible be helped. For history I have had this for about 6-7 years. Never knew what it was and treated it with a steroid cream that usually worked. It was self- limiting. This year at 62, it came on with a vengeance. My abdomen and lower back from bra line down was covered. It had never been that bad but I was spending way more time in the sun. I went to the derm, asked for a biopsy and it confirmed GD. Of course a strong steroid cream which I hated using because of the skin thinning effect ordered for 2 weeks on then off two weeks and back on for a total of 8 weeks. I tried that with absolutely no resolve and was not waiting 8 weeks to fix this. So I started researching and found this site amongst others. Thanks to all of you who posted. I take other supplements which may have had a small effect but these were the ones that I feel made a difference because I added them. I did try the butt paste etc but had no effect. May just have been me and very messy. Uric acid, I think was a big component because of the breakdown of the skin along with the other support of collagen, zinc, Vit A and C. Hope this helps someone else. Good Luck!


Cilantro, Vitamin A+
Posted by Celeste (AL) on 06/06/2022
5 out of 5 stars

I am 60 year old woman who developed Grovers in March 2022. It started small, but it spread pretty fast and itched like mad. It was eventually all over my back, chest and belly. Went to walk in clinic twice, once with a fever. They didn't know what it was but prescribed prednisone, antibiotic, and antifungal the first time. It cleared up but came back 2 weeks later.

The second time they prescribed prednisone and corticosteroid creme and said go to a dermatologist. I did. He said it was Grovers. Did biopsy to confirm. While I waited on the biopsy result I used the corticosteroid creme on my back only for 5 days, once per day. It cleared it right up. I also found this site while I waited. I used cilantro smoothie daily for a couple of weeks which really helped with the itch.

But it is Vitamin A, 48000 IU per day that the dermatologist told me to take that is really clearing it up for good. The dose has to be taken down gradually to about 5000 IU per day after 3 months since Vitamin A is a fat soluble vitamin that the body stores. It is toxic if the mega doses were to be continued.

The dermatologist gave me a refill on the corticosteroid creme, but said not to use it on the breasts and belly because it thins the skin and can create problems because of it. This skin is already thin. Like others who have shared their despair about Grovers, I wonder if my Pfizer vaccinations and 2 boosters may have contributed to this problem showing up. Who knows.

I also was a rabid sunbather for several decades. It could just be my time given the damage I did. I hope this helps someone.

Oh, I am also taking 12 organic chlorella tablets and 2 activated charcoal tablets per day for detoxification. I'm keeping up with the cilantro smoothies a few times a week (1/2 bunch cilantro, 1/2 inch peeled ginger root, handful of spinach, frozen mango chunks, 1/4 avocado, 1 cup water).

God Bless You all.

Replied by Kerri
(Fl)
06/07/2022

Same problem for my mother, 85 years old. She took the 2 shots and booster and has had the same miserable problem, twice!

Replied by mary
(florida)
09/16/2022

Hi, can you tell me how long it took for Vitamin A to work? I started 2 days ago..nothing so far but I'm hopeful :) have tried everything else.


Cilantro, Zinc Oxide, Turmeric

2 User Reviews
5 star (2) 
  100%


Posted by Roberta L. (Ny) on 04/25/2021
5 out of 5 stars

My Grovers Disease is now gone! After reading this website, I've had a cilantro smoothie daily and used zinc oxide 20% to quell the itch. Great improvement in a week. Then my dermatologist gave me injection of Dupixent, bc I also have some eczema. Mild improvement and reversion after injection. Kept up the cilantro and added turmeric 3600 mg a day. Turmeric is good for treating inflammation in the body, my skin felt hot all the time w Grovers.

Within three days, my GD disappeared completely. It's been almost two weeks. Keeping my fingers crossed. Recommend trying turmeric to treat inflammation.

Replied by Caroline
(NC)
05/11/2021

I'm curious if anyone has tried cilantro extract? I started on smoothies last year and got lazy with them but then my flare up subsided. Now it's back full on and need to start a new plan. I'm wondering if extract might be effective and definitely getting some zinc!

Replied by Tina P
(Pennsylvania)
05/29/2021

My husband has been diagnosed with Grovers last year. Dr is trying everything. What soap do you use in the shower?

Replied by Roberta
(NYC)
10/30/2021
5 out of 5 stars

I'm following up on my posts from April 2021 to report I am still miraculously free of Grovers since the end of April 2021. I want to share my recovery after suffering terribly with it since onset in September 2020. I believe stress brought on my Grovers. I had tried Chinese medicine, a slew of steroid creams from dermatologists and nothing worked. Then I found this site and tried the cilantro smoothie route and zinc oxide to put on the skin to stop itching. I began to improve immediately. Then I added oral turmeric to my treatment. Although not a natural treatment, my dermatologist suggested trying an injection of Biological Dupixent, which was initially used to treat psoriasis. After one injection I had slight improvement which did not last. I took a second one six weeks later and all my Grovers went away. I did not take any further injections and stopped cilantro and didn't need zinc oxide bc I had no more rashes. I am still clear six months later. I use olive oil soap and Dove. I hope all this helps those suffering from Grovers currently.


Coconut Oil

3 User Reviews
4 star (3) 
  100%


Posted by Jackson (Tennessee) on 01/07/2014
4 out of 5 stars

I have Grover Skin rash and just went to the doctor yesterday, she saw that I was really flared up on my chest and stomach area. I have really struggled with this disease. I have the prescription creams and they only seem to keep it at bay. However she recommended to me to try the Virgin Coconut oil, after every shower. I am on day three of this and I know its a little early but it seems to be really helping with the itching, Also the redness is starting to go away.

Replied by Dave
(Fountain Inn, Sc)
01/08/2014

Hello Jackson,

I've had success with rashes using enzymes and sometimes herbs such as marshmallow root and papaya leaf. The enzyme best suited for therapeutic use are ones such as amylase, protease, lipase, pectinase, cellulose.

That combination helps with pH levels for me. Often I have acidic body issues and if baking soda in water isn't enough I've found the pH balancing can be done with an enzyme/ herb combo. And it doesn't seem to take much of such a formula. You can find pH enzyme formulas at health food stores. I found supplementing with enzymes helps with my"dry eye" problem but seems to help rashes and itching which is the Grover's itching you are having.

My point is this: On itching issues, could there be a base deficiency of enzymes? Not that this would be the cause in all cases. I doubt if itching caused by "ringworm" could be helped by enzymes. But I've just seen the enzyme connect play out enough so that I'm becoming really intrigued at the interplay of enzyme activity overall to proper body functioning.

Another, for instance; when I take my enzyme pill I notice I have less sinus congestion. Could the chronic congestion be related to a metabolic / digestive problem that enzymes help overcome? I use a pH balance product from Enzymedica but am sure other companies make a "pH balance" formula also.

Replied by Lisa
(Atlanta, Georgia)
02/03/2014
4 out of 5 stars

I too have been diagnosed with Grover's Disease. The prescription medicines don't do a thing. I have been using Virgin Unrefined Coconut Oil as a moisturizer for about a week. I have also been ingesting about a teaspoon daily along with taking Borage Oil. Although the rash is still there and going strong, the itching is definitely better and my skin is getting softer and softer.

Eating it is not the most pleasant thing, but it does go own quickly. If you want you can freeze small pieces and just take like a pill.

I found another plus to the coconut oil...it increases my energy and somehow acts as a diet aid. I have lost 3 pounds in one week!

Good luck to all! Lisa

Replied by Key West Lu
(Key West)
04/17/2014

I have also been diagnosed with Grovers (over 15 years and counting). I am in the middle of a horrendous flare up and have been told to go on drugs that are really scary. This morning I was so inflamed that I got ice packs and put them on the worst areas. OMG! This was awesome. The blisters have almost disappeared and I am no longer itching uncontrollably. And the best part is that other parts of my body where I didn't put the ice packs have calmed down. I am not cured but I am not so out of control that I'm miserable. (I've had several emotional breakdowns this week due to the uncontrollable itching) I have been doing some crazy stuff to try to stay off the drugs. I have bathed using a solution of olive oil and sea salt (stings like crazy), then put on hydrogen peroxide (I was told today that this was bad b/c HP breaks down skin but it seems to be working for me), and then used triamcinolone cream and topped with coconut oil. But the life saving thing was the ice packs on the areas that were so out of control. I live in south Florida so I am also laying out in the sun for 15 minutes on each side every day.

Patty
(Santa Fe)
01/13/2021

You are doing too much!!! Apparently do not have a really good dermatologist either -

Laying in sun is the worst thing you can do!

Heat, sweating, hot tubs, all cause grovers or cause eruptions so stop now!!! Coconut oil is great - have heard that a 20 minute past of turmeric and olive oil - then wash off with cold water is good - I also use a teaspoon of apple cider vinegar to i cup cool to cold water several times a day gently slosh on broken out areas..

Find a good dermatologist - do not use prescription drugs unless you absolutely must and then get a prescription from a good - that is g o o d dermatologist and use as directed - if any side effects occur - immediately stop using..

Patty
(New Mexico)
01/13/2021

Also drop the sea salt and hydrogen peroxide which is very drying - who in gods name have you been talking to?

Your mantra is moisturize, moisturize, moisturize - no heat or heat lamps, or hot tubs, or heat pads, or sun - no sun - no sun - no sun - sweating and all these things cause the frigging rash!!!.

Lauren
(Colorado)
08/25/2021

Patty;

Your comment was one of the most recent I could locate on this thread. I was diagnosed about a month or so ago; have been in flare up about 4 months now. I tried the predisone route; no change. I am trying to clean up my diet and use natural products. Nothing is working. I am worse. I am in pain. The burning and itching is taking over my life. Do you have any suggestions? What has worked for you?

Teena
(Victoria)
08/27/2021
235 posts

The folks at EC found years ago that cilantro is the remedy for grovers. Take some every day. We couldn't work out if it was detoxing heavy metals that cause the skin condition, as cilantro is an excellent chelator, or the large amounts of vitamin A that are within. But it works. Take cilantro internally daily, take a clean bunch, cover with boiling water, cover to keep the therapeutic steam and oils. Steep twenty minutes. If you don't like the taste take capsules 🌱

Replied by Linda
(Cocoa, Florida)
11/14/2014

Hi I was diagnosed today and am overwhelmed! I had this since July and finally at Shands in Gainesville I got diagnosed I have used the coconut oil with no relief. I see you are laying in the sun a few minutes a day and it doesn't bother you.

Replied by Larry
(Baton Rouge)
01/10/2015

I have had the condition for 15 years. I use prescription steroid creams when flare ups get bad. Went to the BVI's last year and stayed on a catamaran for a week. Rash disappeared for a few weeks when I got back home. I asked the doctor if it was the salt water that made it better. He said it was the UV light from being in the sun so much. Does anyone know about UV light treatments? Tanning bed? Light I can buy and use at home?

Replied by Martha
(Akron, Ohio)
08/07/2015

I was diagnosed with Grover's Disease over three years ago. Flare ups have been decreasing. The interesting thing is, my doctor told me to avoid the sun and wear cotton clothing to avoid overheating and not letting my skin breathe. So....what made you decide that sun would be good? Just curious?

Replied by Stacey
(Dallas)
09/25/2015
4 out of 5 stars

Have had Grover's Disease off and on for close to 10 years. Steroid creams keep it at bay, but never cure. UVB light treatments at my doctor do the trick every time, usually takes abut 6 weeks, 2x per week. Laying out with exposed areas in the sun for 15-20 minutes a few times per week always helps too.

Replied by Zuzana
(Cape Canaveral)
10/07/2015

For those who wonder; some people may have good results with UV light treatments, but others may have breakouts because of it. Each individual reacts differently. I was diagnosed with GD in 2011 (six months after a surgery). The rash comes and goes away, but I believe that my worst outbreaks are caused by exposure to the sun (I have a terribly dry skin due to hypothyroidism so it doesn't help). My skin completely cleared while on vacation in Europe, but after coming back home and a few walks on the beach, I started to break out again.

Some people have had success with Terrasil.I tried it myself, but it didn't seem to do anything for me. Gluten free diet has not helped me either. Good luck!

Replied by Ron
(California)
12/25/2015

I have found many commonalities with others on this site. My first outbreak of Grover's was in the tropics. Very hot and humid. I have suffered on and off for twenty years but have had considerable success with several approaches.

First, I try to avoid wearing layers of clothing, such as sweaters and undershirts. This almost always causes an outbreak. Second, the triamcinolone cream works but I believe it also causes the skin to thin out with repeated use. This is similar to cortisone treatments. The most effective medication was tetracyline for two weeks to get the rash under control. After that, the cream, frequent cool showers and bathing soon after a workout are essential. Avoid hot showers and jacuzzis. Be careful of antibiotics. I rarely use it now, perhaps once a year for two days or so. Risk factors are always present for antibiotics.

Diet is likely a contributor as others have suggested. I will look into this more myself. My wife had a light case of psoriasis which has not returned since she switched to a largely vegetable-based diet and reduced her intake of foods that cause inflammation.

Replied by Buzz
(Arlington Tx)
04/16/2016

So far the best thing I have found to work with Grovers is to put terrasil on it, then rub in corn starch.

Replied by Margie
(Frederick, Md.)
10/19/2016

I have been battling Grover's disease for 16 years. At first the only help I got was from injections of kenelog and prednisone once a day for about 16 months. It settled down after that and I could control the flair-ups with a prescription cortizone cream. My husband passed away and my whole life has changed. Went from lovely country home in Tennessee to condo in Maryland to be near son whom I seldom see. Last week I had a flair up of Grover's like in the beginning and once the prednisone was finished it started all over again. I am desperately in need of help. The itch is like being in a red ant hill and it is even in my scalp. I am 67 and while my life is not at all like I would like it, the Grover's is about to drive me over the edge.

Replied by Magnolia16
(Virginia)
10/22/2016

Margie, I don't know what Grover's disease is, but it sounds most aggravating - nothing like an intense itch to drive you insane! It also sounds like you've been under a lot of stress and trying to cope in a new situation. I wish I could give some good advice, but all I have to offer is friendship and empathy!

Replied by Mmsg
(Somewhere, Europe)
10/22/2016

Margie, I find that Coconut Oil reduces itching of any cause.

Replied by Mt
(Ottawa)
10/24/2016

Read the Book, Your Own Perfect Medicine: The Incredible Proven Natural Miracle Cure that Medical Science Has Never Revealed by Martha Christy.

Replied by Gardeningjunkie
(Mo)
11/14/2016

Margie- Don't ever assume you only have one form of dermatitis. July 2015 at age 67 I was finally given a name for my eczema rashes and also a reason for my internal taser like stinging under my skin that was driving me out of my mind especially at night, it was Allergic Contact Dermatitis or ACD that was keeping me awake at night. I had to turn my world inside out so as not to be in contact with my Patch Test positives. I detoxed my world from my allergens and got a Kenalog shot and many painful sites cleared up and stopped itching, including my scalp. Yet my wrap around torso rash and itching did not improve. I saw a new dermatologist who took one look and told me I had Grover's. My point is this- perhaps your scalp is not related to the Grover's. Have you had allergic Patch Testing by an allergist? With the information from my testing I replaced my shampoo and conditioners with a product free of the perfumes and preservatives which I am allergic to (VMV Clark wash for hair and body which I order online from VMV). Medicare paid for the testing, it is uncomfortable, but winter is a good time to do it since you can't sweat or get the sites wet for 5 days. You must be off antihistamines. A series of panels is stuck on your upper back, I had 78 sites and reacted to only 5, but that has turned my world upside down, but it has also saved my life. I am sure you know more about Grover's then I do and have probably tried everything I have since you have had it for so long, so can't offer much helpful advice other then pointing out that you shouldn't assume your scalp itch is tied into the Grover's. Yet I had the Patch Testing 3 months before my Grover's rashes started appearing (I had been in the hospital for 5 days) so not sure how they handle a patch test if you have a rash on your back, maybe they could do the panels on your thigh?

Replied by Yvonne
(Maryland)
01/06/2017

Ice packs are great for itching. I started with Grover's last spring but wasn't diagnosed until September. Heat irriates it so I wouldn't dare lay in the sun. Sweating makes it worse as well. And scratching it makes it worse but sometimes I just have to do it. I really believe all my sunning at the beach years ago may have helped bring this on. I have tried lots of things and only go back to the steroid creams for about a week when it gets really bad. I've tried natural vinegar, honey, extra virgin olive oil.

Replied by Maggie
(Plattsburgh, Ny)
01/28/2017

My doctor recommended UVB lights as well. She said if I can't make it to her office (I have to take a ferry) I could go to a UVB tanning bed for no more than a minute or two once or twice a week and a regular tanning bed for no more than a minute. I haven't tried it yet.

Replied by Maggie
(Plattsburgh, Ny)
01/28/2017

My advice is do not use peroxide. I did and became inflamed with a different rash and another visit to the dermatologist. It is very harsh on the skin and I've read not even to put it on small wounds or cuts.

Replied by Charlotte
(Texas)
01/29/2017

I am so interested in this concept myself...I have had Grover's disease for 13 months and am always wanting to use natural products instead of all the medicines the doctors prescribe. Please let me hear from you so I can start on these as soon as possible.

Replied by Charlotte
(Texas)
02/04/2017

Please let me know if anything helps you...I feel the same way and would love to get this under control. Have just finished a round of steroid treatment which helped at the time but now the itching is back. Best of luck to you!

Replied by Lorraine
(Star, Idaho)
02/18/2017

Hi Margie,

Sorry to hear about your Grover flare ups. I too have had Grover's for several years, but evidently, it is far less invasive on my skin than what many others on EC are experiencing. I have done a lot of research into the medical journals and have been frustrated that there is so little research or interest in this disease. I would like to share with you the one thing that I have found helps the "itching" (in quotes, because mine is more like a "stabbing pain." I use Oregano oil on my flare ups. It is totally natural, of course, with no side effects, and it works wonders -- almost instantly. You can purchase a dropper bottle of this oil at Vitacost online. If you do try the oil, I would be appreciative if you would let me know whether it works for you.

Best of luck, Lorraine

Replied by Captain Ron
(Calgary Alberta)
02/20/2017

The idea is to not sweat.

In the sum the U/V will burn you but the IR will make you sweat. There are special effective parts of UV spectrum that need to be nurtured. Avoid factors that can cause and aggravate the condition, such as high environmental temperatures, significant sweating, and conversely dry skin.

Mayo Says: Phototherapy involves exposing the skin to controlled amounts of natural sunlight or can include the use of artificial ultraviolet A (UVA) or ultraviolet B (UVB) light. Because exposure to light can sometimes intensify Grover's disease, light therapy should be directed by a dermatologist who has experience treating patients with Grover's disease.

Replied by Jeanna
(Ooltewah, Tn)
03/11/2017

Do you use the oregano straight or do you dilute it with coconut oil. I bought some of the essential oil oregano and plan to start using it but I was told not to put it on without diluting it?????? My husband has just been diagnosed and he is miserable and broke out all over

Replied by Vonnie
(Wyoming)
04/02/2017

You are supposed to dilute Oregano Essential. It works wonders, but it is very harsh if used without dilution.

Replied by Leigh
(Tucson, Az)
06/23/2017

Hello, I use the Oregano straight, without diluting. You should find that just a drop massaged into the eruption will relieve the pain. It's also important to maintain very moist skin. Best to make your own moisturizer using ONLY oils such as avocado, coconut, black seed oil, lecithin, etc. One thing that is missing on the EC website is a differentiation of various types of acantholytic dermatosis (Grover's). Most people have the "transient" variety, which does tend to run it's course and eventually resolve. Mine is "focal" which is chronic. Also, most people are attempting to treat this as a "rash". In fact, it is a cellular defect or faulty programming of the skin cells. As my doc explained: "The cells forget how to bind together, creating a fissure in the skin." Sounds horrible, but you can see why this cannot be treated as a rash. The best we can do at this time is to try to soothe the skin and keep it supple. Hope the drops help! Lorraine

Replied by Kathy
(London, Ky)
09/13/2017

How was the outcome longterm?

Replied by Hawks
(Tampa, Fl)
01/25/2018

I was told that the sun and heat was a major cause of the flair up. Is the sun helping you?

Replied by Marie
(Ny)
04/30/2018

I am a female who suffered with this itchy rash for 2 years before being diagnosed with Grover's Disease (aka Dermatitis of Imminoseques) and in rare instances could lead to a bullous skin condition for which I was tested. The blood test to ruled out the gene (16034- Bullous Pemphigoid (BP 180) Antiobody, which brought tremendous relief.

This natural way that is being discussed on this site seems the better approach than all the drugs prescribed which haven't worked well at the risk of side effects and possible damage to the liver. Among them, as prescribed by Dermatologists, (which have failed) are: A script (nightly) called Hydroxyzine HCL 25 mg provides temporary relief, downside is some brief dizziness upon waking. In conjunction, taken several 10 day predinzone (10 mg at 40 mg per day sliding down to 10mg). I've used several steroid topical prescription creams and over the counter anti itch creams with aloe. I uses Cerave products and soaps. Use hypoallergenic detergents, wear natural cotton clothing, no metals on jeans, take vitamins to ensure basic health, etc. Recently, I've been offered a long course of powerful drugs called metrotrexate (weekly) or mycophenolate (daily) which are used in cancer patients and organ recipient patients which is beyond the pale had I had the gene and whihc I would have refused even if I had the gene.

Prefer taking the Natural Way:

To keep my skin in PH balance. I found a body wash sold in CVS which is 100% soap & alkali-free and PH - 5.5. I use coconut cream to moisturize, strong zinc skin cream and intend to detox with Cilantro (after reading the success) from other sufferers of Grover's Disease for which I am grateful. Thank you.

Vickie
(OR)
02/16/2021

How do you use the cilantro?


Curcumin

1 User Review
5 star (1) 
  100%


Posted by Rob (Virginia Beach, Va) on 01/23/2018 1 posts

Hi, I'm a 47 year old male who was recently diagnosed with Grover's disease. I have had flare ups off and on for over 3 years, but this latest one is by far the worst. Prior to being diagnosed with Grover's, I was prescribed prednisone by my GP. It seemed to help but did not completely disappear. My dermatologist diagnosed Grover's by biopsy, and prescribed hydrocortisone for the itch.

I recently stumbled across an article about an ingredient in Turmeric called Curcumin that seems to help in the treatment of Multiple Myeloma. While researching Curcumin I've found that it has powerful anti-inflammatory properties similar to prednisone, along with powerful antioxidants. I'm wondering if anyone has any experience with using Curcumin in the treatment Grover's disease.

Thanks!

Replied by Deborah
(Nsw)
04/04/2018
5 out of 5 stars

As a qualified nutritionist, Yes I believe curcumin to be a very effective anti inflammatory and could help in Grovers disease. But there needs to be a 'multi pronged' approach to healing it, by both addressing one's inner health condition and in turn the skin's condition. Steroids are not the way to recover. A simple incredible possible remedy is eating fresh coriander leaves (and the roots). Half to One bunch a day for 3 days to see results. Eat it as a salad with olive oil and apple cider vinegar, pepper and a little sea salt. The folate acid and bioflavonoids plus many minerals in it help 'chelate' metals and toxins in one's system and aid the liver in excreting it. Also every day, 1-2 probiotic tablets and yogurt if possible, 1x D3,1000mg Vitamin C and zinc.1 Nettle tea very good for the blood PH & 1 Chamomile tea per day.Cooked Oats or soaked muesli with grated apple and cinnamon soothes and nourishes one's system (unless celiac) On the itch and lesions, gently apply coconut oil (with clean hands! ), or 1 drop oregano oil in a little coconut oil. Or put an oat based lotion or better still a pultase, on all of the affected area. - make by putting raw oats in a clean stocking or muslin and tying off. Dampen in warm water and apply the oat milk. Very soothing. Also many sufferers say they've had great relief from diaper cream if you're in a rush! . A Paleo diet is the most effective as it reduces acidity and blood sugar, otherwise avoid all processed carbs, fried and sweet food at least for a little while to help it clear up. Oh and yes 1st thing in the morning after cleaning teeth, have half a lemon in a mug or cup of hot water. Or instead 2 tsp apple cider vinegar in hot water. Rinse out mouth with water after ( for teeth) Ok.... in good faith and fingers crossed this will work!! Xxx

Replied by Sue
(St Albans, Uk)
06/09/2020

Hi Rob, my hubby has been suffering with Grover's for several years now. Last year his arms were so bad and inflamed (that could have been a different skin complaint) that we asked the GP if he could have full blood tests to determine the CAUSE. Following the blood tests, he was diagnosed with Multiple Myeloma!! Probably had it for years. Since March this year he has been taking Curcumin C3 with Bioperine 8g daily for the MM but sadly it has not helped his Grover's. I'm sorry to disappoint although it may help you, it's a great supplement.

We are now going to try Magnesium, (mentioned by Anna); Reishi + Shiitake mushroom extract (mentioned by Francesco); and Molybdenum (mentioned by Jerry). All worth a try IMHO.


Diaper Rash Cream

6 User Reviews
5 star (6) 
  100%


Posted by John (Panama City, Fl) on 05/04/2017
5 out of 5 stars

I was just diagnosed with Grover's disease after a biopsy of some bumps, turns out I've had mild cases for over 10 years. The intense itching only appeared this year. Over the counter creams seamed to work before, this year they didn't work. I tried Witch Hazel, Epson salt in 'hot' baths, mixtures of natural oils and Melaleuca oils, and others. Years ago my brother had a massive case of jock itch (he's a painter, in the sun and sweats a lot), he works for a local Pharmacy owner. After discussing his issue with him, the Pharmacist suggested "Butt Paste" developed mainly for diaper rash. It gave me immediate relief, three days with a few applications each day. I also found Max Freeze at Walmart has an immediate cooling effect and seems to overpower the itching.

Replied by Anthony
(Tulsa, Ok)
06/03/2018
5 out of 5 stars

Thank you very much for the butt paste suggestion! I have had the red bumps of Grover's for at least a year. Told by dermatologist really nothing I could do about it, but it may go away on its own. Steroid cream, no effect. Just bought a $60 tube of Terrasil as I thought it was worth a shot. Pool season is here I did not want to show off this rash or always wear a shirt. Plus, just the exposure to chlorine and saltwater both seem to amplify the condition like sweating does. Was actually told by dermatologist just to avoid any activity that would cause sweating. I read this post, went to Walmart and bought the $8 tube of butt paste. I am so happy to report one application wiped it out by almost 90%! Two days later, two applications per day and it is almost completely gone! No redness, can feel a few spots that are raised, but no discoloration or itching! I would not believe it if it had not happened to me. Returning the Terrasil for a refund. Think I will also start taking some oregano oil as a precaution. I cannot thank you enough!

Replied by Veronica
(Michigan)
04/01/2021

coolness does seem to help the itching.

Fran
(Miami Beach, FL)
11/06/2021
5 out of 5 stars

Thank you so much for recommending "Butt Paste" diaper rash cream. I've had Grovers Disease for almost a year and have been using 4-5 medications the dermatologist prescribed to no avail. I decided to look for a natural solution and discovered this site. I read through the recommendations/comments and decided to try Butt Paste and I am so glad I did.

I first bought a red tube of Butt Paste that is max strength extra protection (40% zinc and free from dyes, parabens, preservatives, talc). As soon as I put it on, it felt like a fire went out. Within 2-3 hours, at least 50% was gone, bumps and all. I used it 2x a day; within 3 days, 90% of the grovers was gone.

I read another recommendation that said he used diaper rash cream before doing activities like working out, running, walking, etc. So I did the same using a lighter version of Butt Paste (16% zinc).

It's been two weeks and 98-99% of the Grovers is gone. The one with 40% zinc is the true healer.

Do not try to rub the Butt Paste off - it will cause a grover's flair up (that happened to me). To get the Butt Paste off, my doctor recommended mineral oil. I bought Johnson & Johnson Baby Oil, which is mineral oil. I put some on a piece of cotton and gently dab it over the diaper rash cream and it disappears. I then take a shower.

I also started taking a zinc supplement a few days ago, thinking it might help to keep the Grovers away. I bought Thorne, Zinc Picolinate 30mg. I take one a day.

I hope this information helps.


Diaper Rash Cream
Posted by Donald (Springfield, Ill) on 09/10/2016
5 out of 5 stars

Grover's Disease. I had this for years and steroid creams prescribed by my Dr. did not work. I started coating my chest and back with diaper rash creme before any activity that would result in intense sweating and it has cured it. I still have scars from previous outbreaks but at least they no longer itch of bleed.

Replied by Alfred
(New York)
01/07/2017
5 out of 5 stars

I have had tremendous success with diaper rash cream and a juice cleanse.

Replied by Emma
(Va)
04/11/2017

Please let me know what specific diaper rash cream!!! Desperate here!

Replied by Natalie
(South West Florida)
05/15/2018
5 out of 5 stars

Try Triple Paste medicated ointment for diaper rash. It works great


Dietary Changes

4 User Reviews
5 star (4) 
  100%


Posted by Pekka L. (Helsinki, Finland) on 08/04/2018 2 posts
5 out of 5 stars

I am a 70-year-old man.

I am interested in sport: tennis, golf, biking, alpine skiing, cross-country skiing.

Two years ago I got Grover's disease.

The whole body was a lot of itchy Grover's disease. I used a lot of hydrocortis and other oils. These were not helpful.

I stopped eating whole wheat. All the rash Grover's disease lost within two weeks. I tried twice to eat wheat, Grover's disease immediately came back. Now it's good to be, not Graves's disease.

I am happy when I found Grover's disease causes.

Now I live a happy athlete's life, not Grover's disease, not wheat.


Dietary Changes
Posted by Grain-free (Toronto, On) on 01/30/2018
5 out of 5 stars

I honestly didn't think it was possible, but Grover's, which I have had for years (especially on my abdomen), has completely cleared up over the past 10 days. NO MORE DEBILITATING ITCH, no more raided bumps, no more discomfort, no more embarrassment. I eliminated grains from my diet (began a Paleo way of eating, but still eating some dairy) and almost immediately my condition improved. I also began using a diaper rash cream for the itch and thought it may have contributed to my improved condition, but while it dealt with the itch the Grover's was still there. The last few days, I stopped using the cream and the Grover's hasn't reappeared. I highly recommend trying to give up grains. No grains = no Grover's (for me). Just had to share.


Dietary Changes
Posted by Karen D (Memphis, Tn) on 01/18/2018
5 out of 5 stars

Re a gluten-free diet for Grover's Disease--

As I have come to learn it isn't the wheat as much as it is the YEAST in the breads, cakes, pasta etc. to include alcoholic beverages and fermented foods such as pickles, sauerkraut, Kombucha, even vinegar-based salad dressings which I love.

I eliminated gluten from my diet 2 years ago which I thought was the answer. Yet I still had mild flare-ups especially in the winter and have now had to eliminate the fermented foods, vinegar, and red wine. This is working for me and the symptoms are reduced and I believe this will do it.

Coconut oil applied topically does remove the itching completely. I am hopeful that monitoring my diet will keep this under control. If it continues the next thing will be to have all of my mercury-laden amalgam fillings removed from my teeth.


Dietary Changes
Posted by Gina (Brighton, England) on 04/29/2015
5 out of 5 stars

Hi, I've had grovers on and off for four years! Nothing from doc has worked for me. So decided to look at my diet and found out that wheat and glutton can cause skin problems.. I have not had wheat or glutton for 3 weeks and it has completely disappeared.. I also used Camoline lotion. Which is fab for the itching! I'm over the moon as I had it on my chest.. So I recommend to u all to just try a wheat and glutton free diet..i saw a difference in a week.There are so many alternative food to choose from now.. Good luck fellow grovers Gina

Replied by Debi
(Ceres. California)
01/07/2016

Hi Gina, I was diagnosed with Grovers Disease in December after a shave biopsy. I've been using a steroid cream which seems to work temporally. I never thought about changing my diet but after reading your comment I will definitely watch my wheat and gluten intake to see if it makes a difference. This condition is very annoying as I've had it since April of 2015.

Replied by Marsha
(Muskegon)
01/15/2016

Biopsies to definable Grover's but gluten free does not work for me if I get stressed really cold or hot it gets worse steroid cream no good, yeast rx no good cream no good what to do?

Donna C
(Upstate Ny)
03/01/2016

So I have been dx with Grovers since Nov 2015. Completely all over my body, scalp included. I have been to a Naturopathic doctor who has placed me on a strict anti-inflammatory diet (no gluten, dairy, soy, sugar, ....). Not working. Drugs from the doctor, not working. I called today because of a flare-up going on. Told me to use Coconut Oil, already doing it. Also trying pure oils, like lavender, sweet almond, to keep my skin moist. The pain of the itching ...I first put on Peppermint Oil, then medicated Gold Bond lotion with Menthol. It stops the itch for a bit. I am also tanning which was recommended by the doctor (do you believe it! ), it helped at first, but ...well you know. I wish there was more medical research being put into this rare skin disease.

Replied by Sysya
(Highland, Ca)
09/22/2017

The Only thing that worked for me has been accutane (you need a prescription)


Eliminating Sulfites

2 User Reviews
5 star (2) 
  100%


Posted by Bob (Chapel Hill, Nc) on 01/24/2013
5 out of 5 stars

You might add a category for Sulfites, which may be a cause. I have had Grovers for 20 years or more. And drank wine and scotch for longer. Two years ago, I stopped drinking all alcohol beverages. I have been free from the itching and pain ever since then.

Replied by Tom
(Apex, Nc)
03/18/2013

Hey man, still clear?? I have been suspecting bourbon and am eaten up with the rash now. Nothing has helped from the derm or the web. GO STATE!! Tom

Replied by Bob
(Chapel Hill)
08/16/2013

Just checked mayo clinic because they know... Duh, nothing. So it's up to us to educate them! Scotch and bourbon are the problem. Due to the damage they do to the liver. My experience is cirrhosis, fatty build up in the liver, degrading it's ability to remove sulfides. So they get passed to the intestines, which convert them to sulfuric acid. Which gets absorbed in the blood, and the body expels them in the sweat glands. So Bobs theory is Grover's is not a pathogen, no fungus, no virus. It's a chemical reaction. It's exactly like the eufedex I use on sun damaged skin. So get a blood test, check GGT level. You asked if I was clear, answer yes, and no. Spent several months with my father who passed, and I was careless and drank more. And Grover's returned. And GGT levels rose. I backed off the alcohol, Grover's is now under control. Damned, the things we do to ourselves!

Replied by Vezza Rose
(Ohio)
04/28/2015

This makes me think it's the herbicides and pesticides that have become so prevalent. Just like, it's not the glutton, it's the glyphosate, they do not make booze the traditional way any longer and grains are sprayed with glyphosate to kill it so they can harvest without waiting on Mother Nature. But good to know, I had recently started drinking a bit and had a flare. Thank you, I will keep this in mind.

Replied by Tim
(Ellitcott City, Md)
05/25/2015
5 out of 5 stars

Bob - thank you, thank you, thank you!!! After 20 years of Grover's every winter it's finally gone! As soon as I read you post about wine and scotch the light bulb went off - RED WINE! After years of trying colon cleanses, vitamins, probiotics and elimination diets I realized never cut out the wine - duh. I made the mistake of lumping all alcohol into one category - "I never had a problem with the tons of beer I drank in college". So for me, it is not the sulfites, I verified this by drinking white wine for weeks now. Lesson learned for the rest of you - WRITE DOWN EVERYTHING YOU EAT OR DRINK! I thought I could just muse it over in my head and get it all. I also wouldn't rule out locations you spend a lot of time in (maybe its mold in walls or something).

Thanks again Bob.

Don
(West Hollywood, Ca)
03/15/2016

I have had GD (apparently!) for many years and many misdiagnoses! I have always been in the sun and believed this was probably the cause. After trying several meds & lotions, nothing seems to help. The big difference I'm reading here is that mine doesn't really itch. Wine (especially red) is something I started drinking within the last 10 years & now I'm wondering if that could be the culprit! Thinking I might try the coconut oil as well...

Replied by Dean
(Ohio)
07/16/2015

I finally found out this week after itching for 2 years that I have Grover's disease...I like drinking beer so do you think that may cause this?

Replied by Ann D.
(Delray Beach, Fl)
12/02/2016

It's almost 6 yrs now...and counting! First attack occurred during visit to Key West. (but I live in FL, so that should not have been the factor) My dermo thought it was "shingles" (OMG!! ). I used that cream twice and the dermo realized he was on wrong track. New diagnosis was Grover's. He said nothing cures it. I tried going lactose-free, changed laundry detergent, went glucose-free for about 2 wks, but nothing changed. Only blessing is....the itch is not the big problem as initially. Since I drink red wine daily, I'm beginning to wonder if that is the culprit???

Replied by Carol
(Canton, Connecticut)
05/12/2017

Not sure the alcohol is completely the cause of Grover's disease. I have never had a drink, not even in college, and have suffered with the disease for the past fifteen years. I have spent way too much time in the sun, however. Oddly, sun exposure helps with outbreaks. This is a very frustrating disease and seems to react differently in every individual. I also tested negatively for any gluten intolerance.

Replied by Chante
(South Afrika)
03/30/2018

Hi guys, I was diagnosed with GH a month ago, sweating makes it worse, Dr says its in my blood from family, my uncles also have it, I saw eating less bread and focussing on water and fresh vegs actually helps me cope, but I'm a female in menopause, imagine heat with GH, it itches like crazy in my face, the ointment I have helps but very expensive, I was with 100 % glycerine soap only...it much better, u can try Preparation H, it does help a little bit, coconut oil makes me its more, make-up makes it worse for me...not an easy way of life, wanting to scratch your face off...

Replied by Chante
(South Afrika)
03/30/2018

I think it's the yeast in the beer...bread aggravates it also, no wheat or yeast, it makes it worse

Replied by Rsw
(Oh)
03/31/2018

Hi Chante,

Please look under the “Grover's Disease” section here on Earth Clinic (just click on the title of your message) and you will see people who say that eating cilantro cures Grover's Disease. If you can get some cilantro, try eating a handful for a week, and see if it doesn't help you. Best wishes!


Emu Oil

1 User Review
4 star (1) 
  100%


Posted by Charlotte (Texas) on 01/29/2017
4 out of 5 stars

I have Grover's and was diagnosed in June 2016 after many months of misery. Have been on and off steroid creams, kenalog injection, prednisone(which I just finished a month of yesterday) Am currently taking a small dose of Methotrexate once weekly which I have been on since Dec. 31. I ordered some Emu oil which has helped somewhat. Ice packs help alot when the itching becomes unbearable. My scalp, back and chest are the main problem areas for me. I also use coconut oil but the emu oil seems to help more. Spent LOTS of time in the sun growing up which I am sure is the problem.

Replied by Elizabeth
(Kentucky)
02/07/2017

I was diagnosed with Grover's last year and have a had a flare up since December that won't go away with the topical steroid that I've been using. I use emu oil for other skin issues so I've decided to give that a try. Will see if it works after a week. Wish I knew why I have this!



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