Hi, I highly recommend the ketogenic diet my son is 6 yrs old and has had all the seizures you can name and the meds are garbage. This diet can help to stop them with out meds please try this diet it really works you have to be very strict but its worth it.
Another thing that has a major effect on seizures is sleep. Lack of sleep and stress can cause epilepsy. I have a really mild case of it and that's the only time I ever get epilepsy is when I am stressed or haven't been sleeping much or going to bed late.
I had to write to you because I have been in a seizure situation for many years and I am finally starting to see the light at the end of the tunnel so I thought I would pass it on.
First, a quick story about me. When I was around 18 in 1989 I started having petit mal seizures and no one knew why or what brought them on. Looking back, I remember I was getting to the end of my high school years, and one day in celebration, me and a bunch of friends went swimming. And, in the pool, I was so excited to be in the pool...swimming so fast, I did a flip turn no knowing there was a seating area in the pool and bumped my head. I walked off, trying not to make a big scene...just let the pain go away on its own. A couple of days later at a graduation party, I remember having a few wine coolers...more than normal (that is not a lot..but it was to me!) and I had a seizure. I heard about it the next day. (Looking back and reading more about seizure causes, it could have been an acid buildup in the brain...an area of tissue that was disrupted and then the acids put in my body made it to the brain..and seizures were formed). Well, at the time I thought it was a one shot deal and didn't tell mom and dad. Well, time went on..a year or two and I was going through college and living abroad in France and I noticed they were coming back...more often now. So, I went to a doctor in France while I was on my study abroad and to make a long story short, I was told I had epilepsy. I was put on pills and I thought that was it. I got back to the U.S and I was still having them. At first, I wasn't the best about taking the meds religiously...but as time went on, I WAS taking them...all of them, like clock work. And, still having seizures. I tried MANY different drugs with no positive outcome. SO, in 1995, after getting different doctors opinions (looking back, from doctors that were almost identical) I had brain surgery to help get "rid" of these seizures. Well, what the surgery got rid of was my great memory and my ability to read. Following surgery I didn't know anyone's name...I didn't remember the states...or even something basic like the word "flower." Well, it finally came back (before surgery I was a foreign language teacher...French and Spanish...that was gone following surgery. But, the French came back...not perfect...after about 8 months) So, with a 6 month speech therapy class, my reading came back...not perfect...and my memory is not as sharp as it once was. Am I angry? You're damn right I have been angry, depressed, confused,...you name it! Why me? I was a great student in high school...number 9 in the class, went to a great college...felt like such a strong and independent woman! And now I am reliant on everyone else, can't drive, feel weak, memory is not the sharpest,..and the meds I was one got me even more depressed...and I was STILL HAVING SEIZURES!!! Well, I decided a year and a half ago, I wanted to see a change! I took myself off those pills that were killing me. You know, going in to see if my LIVER was still Ok. every few months just didn't seem right to me! You know, in my opinion, the BEST doctor in the world is IN ALL OF US...In OUR body! Let me figure out this doctor and see what needs to be done. The first couple of months off those pills, I think I was SO happy, feeling strong and IN CONTROL and I didn't have ONE seizure! So, again, to make a long story short - what controls our seizures? Well, that would be our emotions! As time went on, as I started getting USED to not having them, I let small things bother me. And, well, to make a long story short, I started having them again. SO, I read more, and came across a nice book.
Nice, encouraging, natural approach to seizure control. What a nice, refreshing outlook.
After reading this and seeing that there was someone who could come and HELP me with controlling my seizures...and someone who has been through it HERSELF helped me. She had encephalitis herself MANY years ago...had ALL the seizures OFTEN and was told by doctors - sorry, there is nothing we can do. Well, to get to the point, she taught HERSELF how to control them and it has now been...what are we up to..30 years!!! Seizure free! So, I had her come on over to my home for 4 days to train me how to control them. Do I have it PERFECT yet? No. But, do I know that at one point, I will have this DOWN! YES! You know what makes it hard? We ALL have emotions. We are human! That is normal and NATURAL. However, if you have epilepsy, you have to learn to take it all in stride. Don't let emotions get the best of you. Well, that isn't as easy as it may seem. BUT, it is possible. What makes it easier is the warnings our brain/body DO give us. Ig is kind of saying, "Watch out...a seizure may be coming." I NEVER though I had warnings...that must be what those other lucky people have. But, not me. Over time, I did realize, WOW...that IS a warning. There is a long list...I will let you read about the different warning signals. But, once you do get to know yourself and SEE or FEEL the warning, just BREATHE. Take DEEP, RELAXING breaths. That is it. When you feel it coming, BREATHE. Change the direction of the negative activity of the brain. Now, I told you, I don't have it perfect yet. Here is a recent example. I am a massage therapist (damn good!) and I was VERY busy yesterday. One client after another. Well, I needed to go and have lunch. The healthy, friendly, open arms, cute Thai restaurant I go to often was closed. I was sad, surprised and just decided to go to the other Thai place. I had been there once and didn't like it as much. But, had to eat and run. SO, go over, Maureen! I went in and waited for about 10 minutes to be seated so that didn't start off well. There was barely anyone there! Why so long? Then to get the menu and for them to help me...and when they DID come to me, they were annoyed I was there. So, to say the least, a lot of negative engery took over in my brain. And, a few minutes later, seizure. Petit mal. When I came to, I was frustrated and angry. But looking back, I SHOULD HAVE KNOWN. Come on! Obviously I was annoyed! Why didn't I just BREATHE and let positive take over. With breathing, my brain could have looked at this differently. It could have turned this around saying, "Maureen, maybe these waitresses are having a bad day. Maybe something bad happened to them today. They are human. Smile at them and let them enjoy the rest of their day." But, I didn't. Do you see how something so simple could have turned it around? But, I am human and negative took over. Soon, I WILL grasp this 100% ..but not yet. =)
So, stay positive and the seizure will be a thing of the past! A NEW, WONDERFUL, DIFFERENT life could come! You COULD control those seizures and help OTHERS do the same. Getting this word out is needed. Not EVERYONE NEEDS drugs to control their seizures. BUT!! don't just STOP taking the meds. This needs to be well thought out. Read the books I have sent you. Keep a journal.
If you want to go one step further, have Dr. Donna Andrews come to your home to work with you. Here is the info.
If you have any other questions, let me know! Good luck everyone!
Oops, one last thing. After reading Ted's last post on Ph water balance in the brain to control seizures, I have been doing that myself the past few months which has been helping me and I will put that together in another story. Drinking water with a higher ph can help MANY ailments. More in a couple days. Right now, go get those books!
Corpus Christi, Texas
One of my friend got cured of seizures by taking oral Magnesium chloride and Epsom salt for foot bath.
Additional research(:-) a deficiency of Magnesium, can be implicated as a cause of almost all ailments, esp'lly Seizure disorders, & adding B-6 helps it absorb, but is better to take a B-Complex, as they all work together, so about 500mg Mg 100mg B-6 B's> assist metabolize Carbohydrates, Brain fuel.
Calcium D also assist as does a Multi-Vitamin; as Anti-convulsants deplete D, Folic acid, & others.
I have Epilepsy it has just turned from absence type to the scary biting tongue, falling down nocturnal type. I'm interested in magnesium as a possible cure since mine started as a teenager and I also have had headaches often.
My QUESTION: I took about a teaspoon of epsom salts dissolved in some fruit juice once per day- two days in a row in the evening. My problem is now I am experiencing racing thoughts at night, tingling hands, some numbness in the face (especially when I try to sleep) and really bad insomnia. I can only sleep a couple of hours and I wake up again. Plz help it feels like I am buzzing with electricity. I am exhausted. What's wrong with me?? :( Btw, I was fighting off the dreaded feeling of an oncoming attack for several days prior to taking the epsom salts (i have one every 2 weeks) and after taking magnesium the dread feeling is mostly gone so I feel like magnesium may be helping except for this new problem.
Richardson, Tx, Usa
Prague, Czech Republic
Somewhere, In The Usa
Hello, my name is Katie. I had mild epilepsy since 11/12/2004 when I had my first grandmal it was induced by stress from seeing my mother stay in hospital 1 month (shes ok now) I took phenytoin 500mg for 11 months, the side affects were HORRIBLE! I was fine for years I knew to avoid foul stong odors such as from nail polish and hair coloring that made me feel I may have a seizure if I was around that odor long. I had a few close calls I drank herbal tea called chamomile to relieve the "yucky" feeling I may have a seizure. I let the tea bag sit in the coffee cup of water I put in microwave 2 mins sit in the water 15mins to make it stronger, if it was an emergency I would get the chamomile tea stems and chew on it like gum, I had 1-3 mild nocturnal seizures each year I knew it was about to happen when I felt the extreme "deja vu" feeling. I started to take a herbal vitamin called valerian root since I had trouble sleeping.. This worked very well 2-3 each night and I had no more nocturnal seizures
I started getting older so, like many other young adults drinking became common for me. My finst few yrs I was fine having 6-8 beers. Then around oct 2011 I started to binge drink 10-12 beers at a time 2-3 times a week until I had a simple partial seizure feb 15 2012 from the bad hangover that triggered it. I did not see a doctor right away I just stopped drinking and smoking tobacco. I still did not feel well I had "close calls" daily and had 2 more simple partial seizures. I finally saw a doctor march 16 2012, I explained to the doctor I never want to take dilantin again. It was so horrible, so the doctor gave me something thats helped ALOT, .50 mg alprazolam (generic xanax) I feel relaxed now, I havent had anymore seizures or closecalls. I break the pill 1/2 so I take only .25mg of xanax at time. I still drink chamomile tea. I also like to drink either cinnamon tea or take 2 cinnamon capsules in the morning that HELPS ALOT the cinnamon, I also take 1 Vitamin E tablet, and 1 omega3 daily.
Whats helped me most is exercising or staying busy on feet!! I havent drank or smoked in over 4 months now . And if you're taking a medication make sure you read online of warnings what may contradict that medicine thats very important.. and if you believe in god, keep something holy closeby. I personally carry a ring rosary always in my pocket with me and next to my bed when im asleep..
I hope I can help someone that reads this.. I wanted to post here hoping to help someone.. God bless you
(adult formula) For children below 12, reduce formula by half.
Qian Shi 6g, Bai Guo 6g, Huai Shan 6g, Dang Shen 6g, Huang Qi 6g, Chuan Gong 3g, Gou Qi Zi 6g, Du Zhong 6g, Lian Zi 6g, Yuan Shen 12g, Deng Xin Cao 15g
1.5 litre of water, bring water to boiling point then switch to very low flame and boil for 1. 5 hr. Consume before food or 2 hours after food.
This is an effective epilepsy remedy I find in a Malaysia Herbal Magazine. According to the contributor, this remedy have already cure many patients.
For a start drink 10 doses and then observe if the patient is cure. More doses will be needed if the patient is not cure.
Epilepsy is easier to cure in young children and teenager. The younger you are the higher your chances of getting your epilepsy cure.
I have used natural health remedies for a long time. I have not used a lot that I have seen here on this site and will love to try them.
What someone tries for a natural health remedy that effects only them and their body is their own business.
There are certain conditions, such as seizures, diabetes, or anything that can effect your concious state of mind, that everyone needs to be very careful about.
When a person with seizures goes off meds, they open themselves up to having massive seizures. Brian injuries can not be cured overnight.
My son and I were almost killed by someone who had simply reduced their seizure medication. That choice was not fair to us, or anyone else who may have been hurt.
We had a car accident. It only effected three people in the car, myself, my son and my husband who had the seizure. He has gone often for months and weeks without a seizure with low or no medication. Eventually it is going to happen again.
With his medication at full theraputic levels it never happens.
This highway accident could have resulted in dozens of people hurt or dead. So please I beg you, as I sit here with broken bones and torn muscles, do not stop taking seizure medications and drive or do anything dangerous if you were to have a seizure. It is grossly irresponsible to everyone else in society. That is not a natural way to be.
New York, Ny
EPILEPSY IS SERIOUS STUFF
I TURNED IN MY DRIVERS LICENSE AFTER A FATAL ACCIDENT WAS REPORTED IN THE LOCAL NEWS PAPER AND THEN THE LIGHT BULB ON MY HEAD WENT ON BRIGHT. As an epileptic since I was 8 yrs old and taking the dreaded dialantin sodium & phenobarbital has kept me sane and grand mal seizure free. One doctor took all my prescribed meds for 2 weeks-he wanted to see what would happen-well i had a grand mal seizure while on my stationary bike, fell off, bit my tongue and had a severe headach for days and stayed home from work just to get my body back to where it was prior to obeying this Dr. If I could find something but after 70 years I will stick to my apple cider vinegar in V8 or water while it still not hurting but helping my arthritis and osteoporosis. Annnd shiny hair too.
Please stick to your meds until you are truly sure and that your examiner thinks you can go ahead with alternatives. It physically hurts badly to not use the safety first method. I pray for all us epileptics especially the kids. While I was a kid I had to fight the kids for all their ugly remarks that made me cry in anger and then I began to fight them back because this is not my fault. You are all in my prayers.
I was diagnosed with epilepsy at 22. I was having seizures for about 2 years before getting an MRI and EEG. I was having mild seizures only lasting between 1-2 minutes. I had a poor diet and life style and if I didn't get enough sleep or had low sugar level or consumed alcohol the night before feeling stressed, I would nearly always have a seizure. I was having about one seizure every 2 weeks and was bruised nearly all of the time and my tongue was swollen most of the time. I traveled from the UK to Australia and started to see a naturopath regularly. (natural health doctor) I took all the vitamins that I got prescribed and started living alot more of a healthy, stress-free life. I've lived in Australia for two years and I've never had a seizure while living here.
I was in a house fire when I was 19, which left me with an 85% burn so the stress and high doses of painkillers I had taken contributed to my seizures, but I was still having regular seizures a year after I stopped taking any kind of pain killers, so I'm guessing something in my brain needed to neurologically heal and it did. I no longer take Lamotrigine medication and am still seizure free
I have been taking Taurine (500mg), Tyrosine(500mg), and B-50 complex. This has helped me control my seizures. I take The Taurine once in the morning. I take the Tyrosine 3 times a day, and B-Complex 2 to 3 times a day. If I take it 3 times a day, it sometimes keeps me up at night because it raises my energy levels up; instead, I take it 3 times a day only for more control or energy. I'm taking medicine still but at a minimal level because of these additional items I'm taking. Accupuncture helped me as well. I went from the full dosage of regular meds. to half the amount. The accupuncture takes some time though, but is worth it in the end.(The type of acupuncture I used was the approach treating the whole body - not just the ears for example.)
Hello, my name is Ola and I'm 26. I have epilepsy for 6 years. Nobody could help my, becouse medicines don't help me. (on average 5 times a month I had epileptic seizure -not hard only - unconscious). My doctor suggested my VNS THERAPY. I didn't know what to do, I affraid. He didn't tell me about side effect. But I decide that to go on operation. After this operation I felt horrible. I couldn't speak for 0, 5 year. And I don't see an effect. Noone in my country could help my. I feel terrible pain when the stimulus is on. Maby it is badly implant? Epileptic seizure are the same or worse. It could't be adjust becouse I feel horrible pain. Now I don't know what to do. What should I do? could somebody help my?
All these work for my frontal lobe seizures : Valerian. Also Yogi Caramel bedtime tea and Celestial Seasons tea with valerian.
I need to find a Dr in South Bend, In. or Chicago downtown, that treats frontal lobe epilepsy. I will refuse all medications unless they are natural. I take valerian for my seizures, it works fine. I was harshly criticized by a Neurologist for this, but I DO NOT CARE.
Aiken, South Carolina
After living with epilepsy for 14years, result of assault, I am tired of countless different meds, their claimed effectiveness and their draining side effects, so, after stumbling onto a website which supplied info about a japanese water diet, which claimed to help people with many health probs, also epilepsy sufferers, I decided I would give it a try. It's quite simple in method, consume a certain volume of clean water every morning and wait 45min. before eating. Since I began this process I have not only had no seizures and noticed an improvement in health, but I have halved my medication dosage, i.e., ceased my evening dose. Now, before I get bombarded with comments relating to how I shouldn't change my dosage without a doctor's approval, I would like to know if anybody has tried this and has had similar results.