Sun, 17 Aug 14 17:58:07 -0500
Posted by Sandy (Virginia Beach, Va) on 08/17/2014
Burning Mouth Syndrome for 13 years of hell!
I had RNY gastric bypass in 1999. In 2001 I had what I've now come to know as BMS. I went to many dental professionals, medical doctors, etc. They brushed it off. I've had many symptoms of B-12 deficiency that doctors ignored including chronic nerve pain. It was because I no longer had the Intrinsic Factor to convert cyanocobolomin to methylcobolomin. About 4 years ago (won't even mention everything I went through in the intervening years) I realized this and switched from cyan- to methyl-. After about 6 months I started getting better. Except for the BMS. Then, because of some of the drugs I'd been given instead of methyl-, I had to have my top teeth pulled. Couldn't wear the dentures - it made the BMS worse! New dentist has me doing heavy metal detox because of a lot of fillings and he's saving the bottom teeth with non-amalgam fillings and making new dentures with a material that doesn't bother me as much. I didn't associate the B-12 with it until today. Been taking ALA since I started taking methyl-. New physician is familiar with RNY patients and she's done lots of blood tests. Waiting for the results. Started taking St. John's Wort today for the chronic nerve pain (nothing else touches it anyway).
Sun, 17 Aug 14 17:55:01 -0500
Posted by Karen (Alberta, Canada) on 08/17/2014
[YEA] Folliculitis Treatment:
I usually use a Turmeric/Coconut Oil paste on the small boils, which drains them quickly. Then I rub Castor Oil or Manuka Honey into the small open wounds that are left. This system worked fantastic for me. I say worked in the past tense, because I now head them off at the pass before they can fully form and have not needed to bring them to a head and drain them. Lately, I have found it easier to just start rubbing in a few drops of Tea Tree Oil, let dry for a few seconds, then I rub in some Castor Oil - at the stage where you first know the boil is forming , and they start shrinking immediately and go away! This just takes a few days to work; with no pain, no drain and no scarring.
Sun, 17 Aug 14 17:51:17 -0500
Posted by Cathy (Georgia, US) on 08/17/2014
[YEA] Walmart has lysol concentrate in cleaning supplies.
Sun, 17 Aug 14 17:47:24 -0500
Posted by Joy (Michigan) on 08/17/2014
Try magnesium. I'm in facebook group called Magnesium Advocacy Group and learned there that magnesium acts as a muscle relaxant. I get mine from a simple teaspoon of milk of magnesia 3 to 4 x a day.
Sun, 17 Aug 14 17:46:40 -0500
Posted by Ana (Dubai) on 08/17/2014
I couldn't thank you enough for taking the time to research on this and provide me with very useful information. My doctor said I have Hepatitis B but I don't show any symptoms. Maybe the levels are still low. I think it's best that I postpone treatment with BHT after I give birth. The safety of my baby should be my top priority. A healthy diet and lifestyle should do for now.
Thank you so much for being so helpful.
Best regards, Ana
Sun, 17 Aug 14 17:46:15 -0500
Posted by Meeya (Sunnyvale, Ca) on 08/17/2014
Wow, that's amazing. Do you know what kind of salt was used in the pool? Perhaps those who don't have access to a pool of sorts could at least make a bath with the salts.
Sun, 17 Aug 14 13:15:18 -0500
Posted by Tammyp619 (Menifee, CA) on 08/17/2014
[YEA] I started swimming in a salt water pool every day and morgellons went away in about 3 weeks.
Sun, 17 Aug 14 12:52:35 -0500
Posted by Sam (Il) on 08/17/2014
I read your post and am just checking in. Any updates?
Sun, 17 Aug 14 12:52:02 -0500
Posted by Melanie (Maine) on 08/17/2014
For leg cramps and twitching, put a bar of soap in your bed.
Sun, 17 Aug 14 12:51:40 -0500
Posted by Vinay (India) on 08/17/2014
[YEA] I feel Guava is the best for indigestion.
Sun, 17 Aug 14 09:23:43 -0500
Posted by Lisa (Boise, ID) on 08/17/2014
I have a lot of the same symptoms you have I. E. Skin and breathing issues. I find that if I'm drinking a couple of quarts of water each day it subsides. I'm curious to know if you have had success with the baking soda with any of your ailments.
Sun, 17 Aug 14 09:21:32 -0500
Posted by Jillery (Rawlly, NC) on 08/17/2014
[YEA] I go thru periods of itchy butt. I tried using just witch hazel and it worked!
Sun, 17 Aug 14 09:15:09 -0500
Posted by Arleen (Stanton, CA) on 08/17/2014
[YEA] The earliest I can remember having Restless Leg Syndrome is at 20. I didn't know it than. I now 36 and have found that diet has helped control the RLS. For me, egg yolk and various dairy products spark my RLS symptoms. I also discovered that taking baths or showers with lots of soap prior to retiring to my bed helped reduce my RLS. I use my husbands soap Dove for men or Zest or Irish Spring. All work. When I place a bar in my bath water and let it dissolve and stay there for 20 minutes I get better results. I also found that deodorant Secret clinical strength works when I rub it on my leg. I am sharing this because I have researched many ways to overcome this excruciating discomfort. It is not a joke to me and I can only hope that my sharing can provide someone else with some relief. I too believe that no one persons body chemistry is the same but we have to stick together to find ways to live the best quality of life that we deserve.
Sun, 17 Aug 14 09:08:45 -0500
Posted by Oscar (Syracuse, New York) on 08/17/2014
Dear Ana, I woke up concerned about you. What disease do you have ? My concern is this: If you are sick that is not good a developing fetus. I am not positive about the effect of BHT on a fetus. I did look at one of the WHO reports and found this:
4. EVALUATION In view of the probable involvement of hepatic enzyme induction in the development of the hepatocellular damage associated with repeated doses of BHT, the Committee concluded that, in this case, enzyme induction was the most sensitive index of effects on the liver. A well-defined threshold was demonstrated at 100 mg/kg bw/day in the long-term study reviewed for the first time at this meeting, giving a NOEL of 25 mg/kg bw/day. Effects observed in the reproduction segments of the in utero/lifetime exposure studies were also taken into account in the derivation of this NOEL. The Committee used a safety factor of 100 to allocate an ADI of 0-0.3 mg/kg bw for BHT.
Here is a link to this report:
You could print up this report and show it to your doctor and find out what he or she thinks about whether or not you should take BHT while pregnant.
That report does refer to reproductive studies in the statement I posted. NOEL means No Observed Effects Level and ADI means Acceptable Daily Intake. A theraputic dose of 250mg of BHT per day is well below the NOEL but more than the ADI. The ADI is 1/100th of the NOEL and is defined as such. These acronyms are defined at the very end of that lengthy report. Past all the many references.
The best I can do for you is provide the information available. You have to decide what is best for yourself. You may wish to discuss this with your doctor....Oscar
Sun, 17 Aug 14 09:06:30 -0500
Posted by Hpylori (India) on 08/17/2014
Enhance means :-My observation of warm water was increases burning sensation of the upper stomach-bottom of ribs. I am not sure is it because of drinking hot water?
Sun, 17 Aug 14 08:59:49 -0500
Posted by Ana (Dubai, UAE) on 08/16/2014
Thank you so much for your quick response. I'm not sure how bad is my hepa b. The doctor just told me I have it. I am an expat working in Dubai and will be facing deportation because of this disease.
I have read that BHT in food amount is safe during pregnancy. Is a 250mg or half of it per day cannot be considered small amount? If you are not sure, then what other treatment can you recommend? Thanks. - Ana
Sun, 17 Aug 14 08:56:24 -0500
Posted by Bess (Calgary, Alberta, Canada) on 08/16/2014
Dear Mama to Many - Those were the best "two cents" I have heard in a very, very long time!
While I always enjoy your posts, your heartfelt thoughts about Robin Williams were truly inspiring. Everyone can benefit from kindness and compassion - both giving and receiving. So thank you, once again, for sharing with us. Take care, Bess
Sun, 17 Aug 14 03:44:38 -0500
Posted by Timh (KY) on 08/17/2014
What really bothers me is the fact that someone of almost unlimited resources could not find proper care and some working improvement. I realize that mainstream medicine seeks to maintain a certain level of a disorder so therapy can continue indefinitely thus improving profit margin, but w/ such resources this problem can be transcended. Also there is that "victim syndrome" thing going on in our culture as if one is "proud" to be ill. The recent Seymour Hoffman heroine overdose kinda fits in w/ Robin's tragedy. Now both these celebs are more the heroes despite the illness.
From a classical or common sense model, both these cases (as well as many other suicide) have what appears as a chronic sense of loneliness which is often accompanied by self-indulgence. It seems a crime against family & friends to check out and leave them to suffer. I worked for a man several yrs ago that confided in me the financial hardship of being an independent farmer operating on financial loans and pushed around by big bankers. I never sensed his anguish but a few yrs later committed suicide leaving his wife and children behind. It's something treasonous or immoral to have such disregard for others. Human freedom & happiness are well within reach for most folks, yet many live miserable lives.
The words from music from Neil Young seem appropriate here as the possibility of a cure ---"Change your mind, change your mind".
Sun, 17 Aug 14 02:58:41 -0500
Posted by Timh (KY) on 08/17/2014
@K: I would recommend starting Kidney support as HBP causes kidney problems and visa versa. I get good results taking Cranberry softgel fallowed 1 hr w/ Dr Christopher's "Kidney/Bladder Formula".
To reduce the risk of stroke or heart attack take Manesium, Potassium, Carnitine, CoQ10.
If these suggestions don't improve the numbers, drop the K/B formula and start an herbal artery cleans as posted here on E.C. If the herbal cleans doesn't improve the numbers try either Nattokinase or Serrapeptase to remove scar tissue.
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