Table of Contents
- QUESTIONS & ANSWERS
- POPULAR REMEDIES
- Top Remedies Summary
- Acne Soap
- Antibacterial Soap
- Antibacterial Soap, Iodine
- Antibacterial Soap, Turmeric
- Antibacterial Soap, Weight Loss
- Antibiotic Ointment in the Nose
- Antioxidants, Vegetarian Diet, Herbs
- Apple Cider Vinegar
- Apple Cider Vinegar and Baking Soda
- Apple Cider Vinegar and Baking Soda, Epsom Salts
- Apple Cider Vinegar, Turmeric, Manuka Honey
- Avoid Bubble Baths
- Avoiding Chemical Allergies
- Bach Flower Remedies
- Bee Propolis
- Black Onion Seeds
- Bleach Bath, Clindamycin, Prednisonse
- Burdock Root
- Calcium Bentonite Clay, Epsom Salt Baths
- Calendula Oil, Turmeric
- Coconut Oil, Apple Cider Vinegar
- Colloidal Oatmeal
- Colloidal Silver
- Colloidal Silver, Zinc, Apple Cider Vinegar
- Deodorant Connection
- Dietary and Lifestyle Changes
- Dietary Changes
- Dietary Changes, Turmeric, Supplements
- Eliminate Caffeine
- Essential Oils
- Exfoliationg Scrub, Tea Tree Oil Deodorant
- Food Allergies
- General Feedback
- Get a Correct Diagnosis
- Gluten Free Diet
- Grain Free Diet
- H.S. Dressings
- Hidradenitis Suppurativa and Stress
- Hidradenitis Suppurativa Studies
- Honey and Cinnamon Poultice
- Hydrogen Peroxide
- Laser Hair Removal
- Laser Therapy
- Mercurius Vivus (Homeopathic)
- Multiple Remedies
- Oil of Wild Oregano
- Olive Oil
- Omega 3 Oils
- On Scalp
- Oregano and Coconut Oils, Adrenal Support
- Pau D'arco, Red Clover Tea
- Reader Comments
- Remedies Needed
- Rubbing Alcohol
- Salt Crystal Deodorant
- Swiss Cheese
- Tanning Beds
- Tea Tree Oil
- Ted's Remedies
- Tooth Abcess Link to H.S.
- Turmeric, Cinnamon, Raw Honey
- Vitamin C, Aloe Vera, Spirulina
- Vitamin E
- Vitamins A, D, Zinc, Led Light
- Whey Protein Shakes
- Zinc Gluconate
Hidradenitis is a chronic disease of the apocrine glands (sweat glands found on certain parts of the body) and hair follicles. These glands become plugged or clogged. The condition causes chronic scarring and pus formation in the underarm, groin and/or inner thigh areas. In women it can also occur under the breasts. Hidradenitis begins with a red, tender swelling in the groin or armpit. Over time the lesions enlarge and burst open at the surface, draining clear to yellow fluid.
The poorly understood disease is under-reported by those who suffer from it. However, there is some research suggesting changes in diet, warm compresses and baths, and zinc gluconate supplements can relieve symptoms, bring about remission, and/or minimize recurrence.
|General Feedback||7 YEAS|
|Antibacterial Soap||6 YEAS|
|Tea Tree Oil||5 YEAS|
Top Remedies Summary
09/06/2010: Yasmin from London, Uk: "Hi - I have been a mis-dagnosed Hidradenitis Suppurativa sufferer for over 10 yrs old and I am now 33 yrs old. I am so grateful that I found this site - I had almost given up and thought I will just stay single, as I can't imagine getting undressed in front of someone new... But now I have some hope, and that's what makes the world go round! I cannot offer any more tips, but I consolidated all / most of the ideas I saw on the forum for my own benefit, and have posted it below as I thought it might help someone else... Note these are not my suggestions but just a single posting with all of the suggestions with the most positive feedback.....
Things to consider eliminating from your diet:
Wheat / flour / gluten / dairy / caffeine / cigarettes
3 times a day:
Turmeric mixture (the fat is important for absorpotion, as it water temperature)
1 tsp of turmeric; 1/16 of a tsp of black pepper; 1/2 to 1 tsp of coconut oil in 8 oz hot soup; broth or water (when an infection is severe it must be taken 4 times a day and it does miracles in two to three days)
Apple Cider vinegar - 2 tea-spoon full in glass of water (sip slowly throughout the day - also good for weight loss)
Omega Oils - Follow dose
Burdock Root (tablets) - Follow dose
Once a day
Bring 1 tsp of black onion seeds to a boil in one glass of water keep it boiling until the white part of the seed shows, let cool off and drink it
Topical: Tea tree oil, Epsom bath salts, Witch Hazel, Iodine, antibacterial soap (bar not liquid)
Less common Suggestions:
- Bacitracin Ointment to be taken up / in the nose twice a day
- Bee Propolis (a wood supplement)
Note: Make sure you get a bacterial swab to ensure it is HS and not MRSA as there are similar symptoms"
06/30/2012: Laura from Laredo, Tx replies: "Where does one buy the stuff for the first two options? I've had mine for about four years and continue to get them almost every month right before my cycle in the groin area. I had one excised about four years ago but a few months later it came back. Now, it's spread to my inner thigh. You can feel a root from one to the other. I'm desperate now as it's become more painful. I want to try the magnesium and some others that I read on this site but have no clue on where on where one buys any of these things particulary the first two. Well, I'll keep checking on you all and I'l let you know on my own progress. It amazes me how many people are going through the same thing. Good luck to us all!!"
07/11/2012: Jc from Omaha, Ne replies: "Google "hidradenitis suppurativa paleo diet".
I have had HS for 16 years. I have had medical doctors ignore my pleas for help and only prescribe antibiotics - which incindentally, made the issue worse.
I have tried apple cider vinegar, coconut oil, antibacterial soaps, no soap... I can't even remember all of the things I've tried. Nothing worked. For years, I had no hope. The breakouts had gotten worse and the scars kept me in sleeves even in the summertime.
Then I found that HS is an autoimmune condition... Just like my Hypothyroidism, back and joint pain, etc. The puzzle pieces started coming together.
The best/easiest/cheapest treatment I've found is to change your diet to a paleo diet: meats, seafood, lots of veggies, fruit, nuts, seeds and quality fats. Since starting the paleo diet over a year ago I have not only lost 30 pounds effortlessly and kept it off, but I rarely get an HS breakout. If I do, it's generally very minimal and Turmeric, 2-3 times a day, in pill form usually clears it up in a day or two! Gluten tends to be the biggest trigger for a breakout, so I try to make sure my diet is completely gluten-free.
I honestly never thought I would be HS free! I thought I would live with this forever. But now, after just one year, my scars are starting to fade and I even have a couple of sleeveless tops that I like to wear!
There are so many people who have nearly erradicated their breakouts (including myself) by eliminating all grains, sugar, legumes and dairy from their diets - only to find other health benefits as well.
I'm so happy to be able to share this information with you all as I know what it's like to have lost hope for a treatment, let alone a cure! I urge you to do the research and give the diet/lifestyle a try for just 1 month and if you don't feel any better or notice a change (I bet you will, tho) then you've lost nothing.
It's feels so wonderful and amazing to have made it to the other side of this painful and embarrassing condition! Good luck to you all."
08/03/2012: Cassey from Yonkers, Ny replies: "Hello I am happy I found this site. My daughter is 16 and for the last two years she was getting these cysts and I was just not sure what they were. She was diagnosed with HS in 2011 and she is so depressed and will not go out with friends due to pain and odor. My daughter was always fun and loving. She has changed so much. I want to try some of these treatment listed but not sure which one to start first. I wish my daughter had another teen or young adult to talk to. She is too afraid to tell her friends. She wants to have surgery but I do not think it would help and the doctors are no help. Any suggestion please!!!"
08/03/2012: Mmsg from Somewhere, Europe replies: "Cassey, start with turmeric, internally and externally."
08/04/2012: Timh from Louisville, Ky, Usa replies: "Cassey, it is very possible she has an adult tapeworm or a pet or someone in the family w/ adult tapeworm and has ingested a tapeworm egg which develops into a hyditid or some stage and becomes encysted into any tissue it can easily house. I just recently removed an adult tapeworm from my intestines and also have a swollen jaw as the presence of the cyst. The disease is called Cysticercosis and can be very dangerous, especially the pork tapeworm as they easily cross the blood-brain barrier and can cause severe mental disorders. YouTube has all parts of the Discovery Channel's "Monsters Inside Us" dramatizing the presence of Parasites in the human world.
This may or may not be related to the HIDRADENITIS SUPPURATIVA or may not be an issue, but I post this because an expert parasitologist has confirmed almost all adults have some stage of tapeworm in our bodies throughout much of our lives, some problematic some not."
08/05/2012: Lisa from Thousand Oaks, Ca, Usa replies: "Hi Cassey, I'm sorry your daughter feels so alone. That is already a difficult age to go through as it is. You did not say anything about her diet. Start there by eliminating those foods that are known to cause problems in many people's bodies. Get rid of processed foods. Teenagers are not easy to monitor their diets and can be rather rebellious but if you explain that it can help her clear this issue up she will most likely cooperate since she is not happy about it either. That is the approach I have always used with my kids. And I've had five to deal with. A rule I use for my diet is, eat close to the earth.
The other suggestion would be to get turmeric into her daily. Turmeric is a wonder herb! If you go to the HS section here on EC you will find many who have found success with it. It can be eaten as well as used topically. Also, google it to learn all about it because its benefits are so numerous I could go on and on! Hope this helps, Lisa"
08/12/2012: Cassey from Yonkers, Ny replies: "Thank You so much for the advice and suggestions- she started taking the Tumeric pills and I bought the Tumeric powder. It was in the seasoning Isle. Hope this is the right one. My daughter is currently not noticing any changes yet, but maybe it will help soon. My daughter is also having problems because she has these holes under her arms and they wont close. What can she do about that? We also have changed her diet to no processed foods she is also eating more fruits and vegatables and no sugar. Some foods have sugar naturally in it so that is difficult to avoid. She has also stopped dairy which is hard for her since she likes to eat cereal."
08/12/2012: Lisa from Thousand Oaks, Ca, Usa replies: "Hi Cassey, So glad to hear back from you! Congratulations to your daughter and yourself for actually accepting the advice and moving forward on it. Yes, the turmeric you found in the spice aisle is correct. As for the dietary changes, they will pay off. It may take some time. Try to be more focused on veggies rather than fruit as fruit has fructose which is sugar. Can you get her to start eating fermented foods daily? Just a little bit so you can rebuild her internal ecology. The probiotics will help clean her insides. If you can get Bubbies pickles and/ or sauerkraut, that would work. You can also go to bodyecology.com for great advice and delicious, healthy recipes to help heal her body. You say she likes cereal. Well, try substituting chia pudding for a morning food. Chia is very good for the body and full of protein. She can make it with almond milk. Oh, she can also use stevia as a sweetener. It is not a sugar but rather an herb so, it doesn't have the effects on the body that sugar does.
Can you see if you can find a far infrared sauna available anywhere in your area that she can go take? She also needs to be detoxing. Herbs that can help her detox, milk thistle, dandelion, artichoke. She can also do castor oil packs which are powerful detoxers. If you haven't heard of that, google it and you'll find instructions otherwise I can tell you.
As for the "holes". It's a matter of time that they'll heal. She can take MSM to help heal scars and skin.
Anyway, again congratulations for taking the steps to restoring your daughter's health! I wish her the best and hope she's feeling better about herself. The best to you both, Lisa"
10/18/2012: Laura from Somewhere, Va replies: "Hi All, I have an 11 year old who has recurrent boils in her groin. I too, think diet has alot do with it and am elimating, dairy, processed foods (including fast food) from her diet, and nightshades. It is very difficult, but will hopefully be worth the effort. I have corresponded with someone who had HS all over and suggested we go to a Naturopath and have some allergy intolerance tests done. (Will be doing this shortly if our elimination diets do not reveal). The person who wrote me told me his test told him his trigger was dairy and he has been off ALL dairy for 1 year and no more boils...... Right now, she is taking digestive enzymes to help digest her food, eating cleaner, no dairy - not even butter, tumeric twice a day, and a good liquid vitamin. It seems the boils are the body's reaction (via inflammation) to something that is being ingested that does not agree with it. It is our job to figure out what the food trigger is.
It may not show on the tradiotnal Allergy test, as it may be an intolerance. The posts people have made about food avoidance make sense. We have not yet cut out breads/gluten. But just cutting dairy, processed, etc out has made a difference in less than 2 weeks.
I think it makes sense that is MUST be something going on inside the body, all of the creams, etc being put on the outside will not stop the boils. Nor will surgery, if the offending item is still consumed. So we are trying this route and praying we will find answers. I am hopeful as I have heard from people that have found their answers.
I urge all to try it, it is hard , but ask yourself what is worse, living without some foods or having these boils all your life?
Good luck to all and feel free to email me at lfinks(at)yahoo.com if you would like to correspond. I find a good support group is such a help. Esp if you have a young child!
10/29/2012: Rob from Ottawa, Ontario, Canada replies: "This is in response to the few comments made on dietary changes having an impact on HS. My daughter has sufferred from this desease for 2 years now, and through many hours of research and reading forums and blogs such as this one, we, as a family, decided to cut out certain food groups as another desperate attempt to get my little girls life back. We cut out all "night Shade" veggies I. E potatos, peppers, tomatoes.... We started this at the end of July during a bad breakout, and quite honestly had little belief there would be any improvement. She has been SPOT FREE for 10 weeks now, nothing, nothing under the skin, no sores, no pus, no pain.. Just the remaing scars that may never go away. As of this message, she is also no longer taking ANY medication (2 weeks so far) something we thought would never happen as heavy anibiotics have been a staple for her the entire time since it was identified as HS. I am not a doctor, nor can I say what we are experiencing is an answer to all, I justed needed to share our news.
Our next step is to add foods back in to find, hopefully, the trigger food, but we are too scared to do this quickly as these past weeks have been a godsend to the whole family."
10/29/2012: Lisa from Thousand Oaks, Ca, Usa replies: "Hi Rob, That is so awesome! What relief for your daughter and you, as the parent. I know when my kids were hurting it was so difficult to watch. What I love is how you said you didn't believe there'd be any improvement from the diet changes, most likely from past disappointments of no change. Still you went through with it and now you are witnessing the wonderful results. Time and again people don't see the correlation between the food they eat and their health. I hope you continue with this understanding for your daughter's continued improvement. Consider looking into the Body Ecology Diet. It is a very sound diet based in clean foods and those that don't inflame the body. You can google this and find their site loaded with information and recipes. I have made quite a few of them. I also have a hard copy of the book which I use and help friends with it. Also, consider getting probiotics into her to restore her body after so many antibiotics.
Again, congratulations to your daughter and your family in supporting her. And thank you for sharing your success story- it's a wonderful one. Lisa"
11/15/2012: Ned-lise from Port-louis, Mauritius replies: "Dear sir, my symtoms hasn't gone, I have been having this disease for 5years now and I only discovers what I really had today. i used all the medicine you said but there is no improvement. It is not better but it goes on slowly and get spred itself. I have no other option what can I surely do?"
11/20/2012: Emma from Cleveland, Oh replies: "Re: Yasmin from London's post from 09/06/10: Folks, you should NEVER put Bacitracin Ointment up or in your nose. Are you kidding me? You can get very ill by taking in Bacitracin through your mucus membranes (eyes, ears, nose, mouth)-- it says so in plain English on the packaging. If you want antibiotic treatment for your HS, ask your doctor for a prescription. You will be given something that is used specifically for skin infections (likely doxycycline). Bacitracin is for topical (outside of the body) use only and cannot ever be taken internally. It will do no good but make you very sick."
03/03/2013: Alicia from Utica, Ny replies: "Hi, I have been suffering with hs for 12 years. I hit puberty at age 13 and I am going to be 25 this month, so yeah, 12 years. I have had surgery to my left groin area due to hs, I had an abcess that lasted nearly 2 months, the surgein went in and cleared out all of the scar tissue, my incision was 4 inches long and 1 1/2 inches deep into my leg. That was the area I got my first boil in. I had recurring abcesses there maybe 10- 15 times throughout my life up until the surgery. No more boils there since then but I have had them on the opposing leg and also my butt cheeks. I have seen dermatologists, they just want to give out scripts that literally do nothing. I have found that rubbing alcohol to the area up to 4 times a day I put it on. I apply it with a q tip. I see or feel one starting now and I begin the regimen of putting it on several times a day. I have seen them disappear in two days at times. Warm baths only have ever soothed it for me, not fixed it. I think its worse when on birth control though. I did not get a flare up for months and thought well I will get back on birth control and oh my body decides to grant me two boils at once, that's my favorite... Not. This condition flat out sucks, it does, but the rubbing alcohol does help, for me anyway, there have been studies saying a tablespoon of bleach in your bath once a week helps, this is only a clinical trial though.
From what I have read there are no cures for this condition but things we can do to help prevent and treat them. In personal experience when I put my snug form fitting leggings and jeans and tights on it makes it worse, when I exercise and eat well it gets better. When I was pregnant with both of my children ther were no signs of boils, it was the longest consecutive period of time I have gone without them, two days after I had my first son I got three abcesses. It made a very happy time depressing and painful, but I have done a ton of research and have been examined by several very good doctors and dermatologists and surgeons and I have learned alot about this condition, my mother had it also, for a short time, and my sister. It has gotten better with my age, I am used to living with it now. Don't be depressed, its ok and there are many of us out there. Any questions and feel free to ask. I have only had one flare up in about 6 months, I took care of it and it was gone in about 2 days with the rubbing alcohol trick;) hope this helps.
P. S. I never write on these things but this was totally worth my time because I know how alone you feel sometimes due to this, I have been there."
03/04/2013: Gavin from Manganui, Northland, New Zealand replies: "I had something similar on my back, and used acetone ie. nail polish remover. It seems to kill the bug even if the boil isnt opened you can feel it stinging and doing its thing. Acetone is handled by the body quite well, in fact the body produces it. Just a thought? but alchohol is good, for killing bugs."
[YEA] 08/28/2012: Jude from Manila, Philippines: "I'm not medically diagnosed with HS but I think I have it from research on the net. I'm only in my first year of frequent flareups that drove me to research a little about it and luckily (I just realized this after learning that others have suffered from this much, much longer than I have) I discovered accidentally what you may call a "deterrent" in Acne soap. I only discovered this because I've been using this soap for my face for years and one time, when I had an inflamed lump, I just accidentally picked up the Acne soap from the soap dish and used it to clean the lump. I noticed within hours the inflammation lessened. With more frequency of use the next few days, it settled down and expressed a little bit of pus on its own but without pain and only left me with a bit of hyperpigmentation but no scar. Since then, I've been using the soap to my inner thigh and armpit areas (where I get them frequently) every time I take a bath and extra more when I feel a swelling starting up. Sometimes it does not even express pus out and just resolve entirely without hyperpigmentation or scarring. I hope this helps."
[BETTER BUT NOT CURED] 05/23/2009: Cherie from Brockton, Ma: "I have had HS for 10yrs now. I've had surgeries which have helped it subside in certain areas. I have read on here that some people use dial soap and it didnt work...you need to use the DIAL LIQUID ANTIBACTERIAL Soap/bodywash. I use it and it helps a lot. I also found that using Gold Bond Baby powder triple action relief is a huge helper when irritation occurs. As for flair-ups...I just deal with them..it's painful but I do what I was taught to do; keep the area clean, dry and use Bacitracin ointment and I stay strong. Thats all I know how to do!"Replies
[BETTER BUT NOT CURED] 05/24/2009: Wossta from Jackson, MS replies: "Hi, i have been dealing with HS since I was nine years old, I am now 33. I have went to doctors after doctors, and I have had my sweat glands removed from my left arm pit and my left breast in which I have not had an outbreak in those areas since, but the cyst, boils, or legions have gotten worse in the right breast and arm pit and there now coming in my buttock area. I think my case is the worse because I have dealt with the disease for 24 years, and did not have a clue about what I had until about five years ago, and I have tried everything under the sun. After my surgery the doctor told me to use dail soap (antibacterial only) and hibiclens which is an antiseptic/antimicrobial skin cleanser that you can purchase from Walgreens. It cuts down of the spread of bateria in the infected area. I can honestly say prayer and hibiclens has made it more managable for me. Another helpful hint is when using hibiclens the order is not noticable."
08/07/2009: Contessa from Jackson, Ms replies: "My question is for Wossta from Jackson, MS. I have your same exact problem but I have yet to find the right doctor here in Jackson. I have had HS since I was about 11yrs. old although it was no diagnosed until I was 21! Now over the past 5 yrs. my condition has gotten so much worse that I have lost my ability to function in my everyday life. Please email me the names of any doctors that you have been to that were able to help you. Also, any medicines that have had a positive effect on your condition. I need any and all help from anyone. Doctors seem to minimize the effect this has on my life and the server pain I experience daily with no relief. Just one abscess after the next all in different areas."
09/02/2009: Btw from Seattle, Wa replies: "I have used the crystal before and it works great, however there are two forms I have come across one in a more classic shape and the other in a ball, I recomend the actuall deorderant and not the ball as the ball can become rigid and very painfull to inflamed skin."
02/06/2010: Atlanta Girl from Atlanta, Georgia replies: "I've had Hidradenitis Suppurativa most of my life. However, I have NEVER had body odor, even though I do NOT use deoderant. When I had my sweat glands under my arms removed as a teenager, I began using baby powder to absorb the sweat and it worked very well. Now I use a body powder that you can get at any drugstore and I have no problem with body odor even though I go to the gym and workout."
Several studies have established preliminary links between talc and pulmonary issues, lung cancer, skin cancer and ovarian cancer. This is a major concern considering talc's widespread commercial and household use. In 1993, a US National Toxicology Program report found that cosmetic grade talc caused tumours in rats (animal testing) forced to inhale talc for 6 hours a day, five days a week over at least 113 weeks, even though it contained no asbestos-like fibres. Scientists have been aware of the toxicity of talc since the late 1960s, and in 1971 researchers found particles of talc embedded in 75% of the ovarian tumors studied. However, the U.S. Food and Drug Administration (FDA) considers non-asbestiform talc, that is, talc which does not contain potentially carcinogenic asbestiform amphibole fibers, to be generally recognized as safe (GRAS) for use in cosmetics. 
04/19/2010: J from St Thomas, Ontario replies: "Please describe the surgery. My new Dr has booked it and I am so freaked out, no clue how long I will be off work, I've been off a total of 4 weeks now."
09/29/2010: Jmbd from East Greenwich, Rhode Island replies: "To: Cherie from Brocton, MA
Hello, I was so glad I found your post; you live very close to me. I live in Rhode Island and I also suffer from the emotional and psychical symptoms of HS. I have been to countless doctors and bounced from one specialist to the next as my symptoms just keep getting worst. I would be very thankful for any information you would be willing to share with me regarding your personal struggles and medical experiences with this condition: diagnosis, doctors, medicines you have tried and if the weather affects your HS? I wish you the best."
[YEA] 02/05/2009: Ashley from San Diego, CA: "I have seen two doctors in the last two weeks in regards to my HS. I learned two things from these people. The first is that Dial soap is actually bad for the area. Dial is a detergent based soap which actually breaks down the skin and weakens its defense power. The both suggested Lever 2000 which is moisturizer based. I have actually seen a huge difference in my affected areas since I switched to the Lever 2000. I have also been struggling with the odor that has been associated with my HS and had seen somewhere something about a crystal deodorant. I did find the product and began using it. I asked both doctors their thought and both were rather excited to hear about the product and said that it may actually aid in the healing process as well. The crystal deodorant is a stick of mineral salts that is dampened for use. I found it available at both the grocery store and Wal-Green Pharmacy.
Good luck and hope this helps."
[YEA] 03/24/2009: Sonia from Christchurch, New Zealand replies: "I have had severe problems with HS and a couple of years ago required surgery to mend the lesions in my arm pits. I have since gotten onto using an antibacterial soap along with an antiseptic tea tree oil cream and had very few problems since. This has usually been when I have not kept up this routine. This indicates that it must be working. It is better by far than the countless antibiotics I was having prior.
At times I feel I smell of eucalyptus leaves (an Australian plant favoured by koalas) but it is well worth it and it smells much better than the putrid smell of a HS wound."
07/02/2012: Tea Lee from Victoria, Australia replies: "Tea tree oil has been a godsend. I used to use the straight oil but managed to find a cream from the supermarket, Tea Tree Ointment works for keeping it under control. I use tea tree deo daily but use the ointment when I have an itch or a breakout and between these two it keeps the attacks down to a few times a year. Still hasn't totally eliminated the stinky left pit smell but I can live with that trade off to not being in pain and full of painful cysts. Check out various Tea Tree oil stuff, it's good."
[YEA] 10/14/2008: Danielle from Fair Oaks, Ca: "a few months back i was on here and started taking turmeric spice in warm water, after a couple of weeks i was feeling better and had less "hurts" but one morning i got sick and couldnt take the turmeric since then. my hurts have gotten bad again so i decided i would take the pills, just started today! this time i will be taking 2 pills 2x's a day. and washing with plain old dial soap. after reading about the dial soap i did realize my HS got worse when i started using more body washes and not dial bar soap. i hope everyone that has this problem finds this website, and i would never wish this on anyone! the pain is unimaginable at times, as u all know! good luck to everyone! email me if anyone has any questions, or just plain support. bye!"Replies
[NAY] 01/11/2009: Penny from Portage, WI replies: "Antibacterial soap: Liquid vs. bar. I am so thankful I read this! I have been so frustrated lately, as things have gotten worse. After reading this, I am wondering if it is not just a coincidence that things started getting worse at the same time that I started using Dial liquid soap! I am getting the bar tomorrow!"
[NAY] 03/13/2009: Shantavia from Miami, Florida replies: "Thank you for having this up there. I realized after about a month of using dial soap on and off that it has made my HS worst as well. I began to get more than one break out under my arm. I am going back to my regular soap and going to use colloidal silver to make it better."
[BETTER BUT NOT CURED] 05/19/2009: Brandy from Troy, Mi replies: "I use Cetaphil Antibacterial soap. It is a bit more expensive than the Dial, but it works well for me. My issue is that washing twice a day makes my skin uncomfortably dry and itchy. Is it safe to use moisturizer on the affected areas? I have Cetaphil moisturizer - it is supposed to be pretty basic with no added perfumes or such. I just started taking Zinc Gluconate and Vitamin E to see what that will do to help. I have had success with taking Yaz birth control - the affected area is still spreading and infected, but I have not had any huge lesions in a long time and very few that break open and leak. I am also going to start taking Turmeric to see how that helps."
02/02/2012: Paulette from Rockton, Il replies: "Brandy, Have you seen any info on YAZ birth control and complications it causes. Check this out.
[YEA] 09/06/2008: Serena from Bronx, New York : "hi I am a 23 year old female i have been with HS for 7 years. As alot of people on here has done, I have also been to alot of doctor and as most know that there is no cure. I was diagnoise with it about 2 months ago. My doctor told me to use dial bar soap and ever since, my lump have became smaller and less painful. I have not tryed the apple cider vinigar, baking soda, or Epsom salt, but I'm going to try it. thank you for your useful advise"
[YEA] 03/27/2008: Brian from Tampa, Florida: "Ailment: HIDRADENITIS SUPPURTIVA Remedy: ANTIBACTERIAL SOAP!
Ive been reading all the wonderful remedies and suggestions here on your site when i came across a section dedicated to HIDRADENITIS SUPPURTIVA and I just had to share my story as well.
I have a congenital birth defect that caused me to be born missing my left foot, I received my prosthesis by my first b-day. I grew up with NO problems with my leg what so ever and never considered myself to have any limitations. That is until i was in my very early 20's and began getting (what i thought at the time were) cists on my stump. This issue became worse and worse with each passing year and after doctors Lansing two or three of them I couldn't handle the recovery of each one anymore so I started dealing with them myself as they would appear. Nothing I did would work other then forcing my leg on, no matter how swollen I was and forcing them to break so that the horrible pain would go away. You see as anyone with HIDRADENITIS SUPPURTIVA knows the pain is unbearable so imagine having to walk on it. Most people who have HIDRADENITIS SUPPURTIVA suffer these sores in their armpits, groin, and under their breasts. I had never had any sores in any of those places. Only on my leg. Then as my leg got worse I began to get them under my arms as well.
After suffering through the pain for a few years I finally realized this issue I was having was way bigger then I could handle myself and truly feared doing more damage to my leg so I finally began seeing doctors to get answers. Honestly, this was a total waist of my time and my money!! I went to over 10 doctors, 5 dermatologists and NONE of them had any idea what was causing my sores. After being told that I would have to have the remainder of my leg removed, told that it was my hygiene problem and that I wasn't bathing properly, being told to stop wearing any prosthetics and be bound to a wheel chair for the rest of my life & even being told that I was too vain and needed to get over myself and realize that there was no need to wear a prosthetic I finally gave up on doctors once again and went back to dealing with the pain myself.
At that point in my life I was getting anywhere for 4 5 sores on my leg per week and had lost two jobs due to the inability to wear my prosthesis. I was just about ready to give into the doctor (dermatologist) who wanted me to have my leg amputated when I met a friend of a friend who asked me what was wrong with my leg that I wasn't able to put it on. After talking to her for only a few minutes and her begging me to see my sores she shockingly lifted her shirt and showed me the scars under her arms and explained HIDRADENITIS SUPPURTIVA to me. She had been diagnosed 5 years before after having two surgeries to remove her sweat glands.
I literally began to cry!! Finally I knew what was wrong with me....after 10 doctors and 5 dermatologists there was someone who knew what the hell it was. WOW! The next day I made an appointment at the dermatologists who wanted me to have my leg amputated and told him of HIDRADENITIS SUPPURTIVA. He and 4 other dermatologists after him had never heard of it and didn't have any answers as to how to treat this condition. Finally I found this amazing dermatologists who did know and I am now happy to say that 6 years later I have only had 2 sores and those failed in comparison to the size or pain of those in the past. The only remedy I have used in the past 6 years is ANTIBACTERIAL SOAP!!! Not the liquid or body washes the only one that works is the good ole fashion antibacterial bar soap. It is truly a miracle worker where my sores are concerned and I swear by it. I have even gone on vacations and didn't have ___ soap and immediately after only one day of not showering using ____ I have gotten a sore.
I hope in some small way this story helps someone else out there cause I know how hard it was going through day by day in pain and no one having the answers to help!! Good Luck!!"Replies
[YEA] 07/28/2008: Sara from Corpus Christi, Texas replies: "Tired of seeing the derm doctor for H.S. so I tried the dial soap (gold bar) and tea tree oil. Incredibly, within a couple of days, the lesions had decreased in size and pain. I also tried hot baths in epsom salts. A week and a half later, I feel like myself which I had not felt like in at least a year. Thank you all for your wonderful information. I am so thankful!"
12/15/2008: Zulfikar Panjwani from Atlanta, Georgia replies: "Hi Brian, I read your story here and many others I have had this problem since the age of 15. I am now 33 and still used to keep getting these cysts in my underarms and tail bone. When I read remedies on earth clinic I right away started with Dial Soap and Turmeric Pills. few days later I noticed that the boils did come back but much smaller and less painful. Now i have stopped using Dial soap but still take Turmeric Pills 2 X 1 daily as a routine. Being from India we always believed that Turmeric has antiseptic properties and I know now for sure it does.
...Just 2 capsules 2 times a day for a months and then 2 just before you sleep. Hope this helps."
12/23/2011: Laddeeraven from N Billerica, Ma replies: "I have not had very good luck with antibacterial soaps. They seem to inflame my cysts. They are all pretty raw and large. I have had better luck with an 8% peroxide cream wash and Physoderm.
I had lovely skin until I turned 20. I had terrible acne on my face and back. A year or so later the HS started. It wasn't bad in the beginning, but that changed fast. As long as they drained I was ok it was when the scare tissue was too tough for them o break thru that I had to make trips to the ER to have them lanced and wicked. I'm 55 and overweight (lost 72 pounds in the past year) and they are worse then ever. My arm pits are not too bad but my groin area is a nightmare.
As a result of an infected cyst in my 20's I was hospitalized with a whopping 106.5 temp. While in an ice bath they started IV penicillin, which I had orally without incident so it came as a big surprise when I had renal shut down.
My kidney function did return but my doctor dropped the ball and in 2002 when I got cellulitis for the fifth or with time from the HS it was found that my kidney function was only 40%. So much for my doc keeping an eye on things.
Now it seems my kidneys are not sending the hormone to my bone marrow telling it to make red blood cells. The HS causes and abundance of white blood cells. I am so anemic it has become dangerous.
My cysts generally leak a clear fluid or bleed copious amount of bright red blood. It's a nightmare going anyplace. Hard chairs hurt, I leave stains, I can't wear anything but black and it's pretty impossible to bandage he to the location.
I have been to some of he best dermatologists in Boston but nada! I find I do better hen the doctors treating it. Awhile back they injected the worst ones with a steroid and or a few days I was in heaven. They were nearly nonexistent but then came back with a vengeance. I was talked into trying it 2 more times and it was the biggest mistake of my life. Everyone injected is so much worse that I long for the days before they experimented on me. I've done Embrel (sp?) some IV thing for RA that gave me a bizarre side effect. Every joint felt like it had gout.
So if we don't get the blood thing under control HS may be the cause of my demise. It's such a horrible disease that's so hard to explain to anyone that doesn't have it or love someone that does.
I'm open to suggestions."
12/23/2011: Debbie from Melbourne, Australia replies: "Go to the "ailments" section of this website and type in "H" and then key down until you find your ailment. Many people have cured their Hidradenitis Suppurativa. Read what they did ..."
02/02/2012: Paulette from Rockton, Il replies: "Hi Brian, My daughter just told me about her condition which she has been hiding for 9 months. She also has cellulitus. She has an appointment with a dermatologist Monday. But we are going to try these remedies!
Brian, I am amazed at your courage. My prayers are with you. We have family in Tampa, maybe someday we will meet you.
Antibacterial Soap, Iodine
[YEA] 07/25/2009: Karen from Nashville, TN: "Here's what I have done to completely stop my Hidradenitis now for nearly a month and just for the record, I have had boils in different stages at all times. Some newly forming all the way to healing purple ones and in between. I have NONE now and my scars are actually getting a chance to heal. Morning and evening, I take a body brush and brush under my arms in a circular pattern all over, then reverse the pattern and do it again, both sides. Then I wash with antibacterial bar soap, dry them then swab my armpits all over with Iodine. I use a q-tip to do that. I use the old brown stuff and so far it hasn't stained my clothes. After I put it on, I get in front of a fan and let it dry, which doesn't take long for Iodine, then put my natural deodorant on. I'm thinking I can go back to regular deodorant now cause my natural one isn't so good on me. I get BO regardless by the end of the day. I was desperate and thinking it was my deodorant, but now I don't think that was causing it because I was still breaking out after I switched. You have to be diligient and don't forget. I have forgotten the morning or afternoon swabbing and was ok but I forgot to do it a whole day and started breaking out again. I read somewhere that researchers think it's caused by sweat glands becoming blocked and the dry brushing loosens it all up. I use a natural fiber brush. I would think any stiff brush would do.
I figured after that the iodine would kill any bacteria waiting to get in. That's what surgeons swab you with before they make their incision. Lot of people are allergic to it though and I'm not sure what the alternative would be if you are allergic. If it stops working, I will come back and let everyone know, but so far it's worked for about a month now. I hope it brings relief to others like it has for me. If you're allergic to iodine, google search to see what the alternative to iodine is. I'm sure you'll find it somewhere on the internet."Replies
[YEA] 04/14/2010: Diana from Milwaukee, Usa replies: "This works for me too, I'm just coming off of one of the worst breakout's in years. I'm sick of dermatologists saying part of it is being over weight, i recently gained about 30 pounds due to my thyroid and menopause. I asked this last dermatologist, why have i had this for years, when i was rail thin ??? and i just lost 10 pounds !!!!
All the stuff i've been on over the years and it came down to the strongest anti bacterial soap i could find, good exfoliation, Iodone and making my grandmothers oatmeal pack, i just did this and the next day the "bumps" were flat and the inflammation was gone. get a large container of plain oatmeal, baking soda and sea salt. and generous amounts, boil like you would to eat it,put the salt and baking soda in so it boils, add oatmeal, cook until you can't see the water anymore then mash with a potato masher.apply when temperature is comfortable to you, leave on for 20 - 30 minutes. use an old sheet to lie on, remove with an old bath towel then rinse off. this works even better if you take a baking soda bath first or wash area with hot water and baking soda. you can save the remaning oat meal and just reheat it. then apply your iodine."
09/14/2010: Mili from Dallas, Tx replies: "Can u tell me which iodine solution are you referring to? Is it a tincture iodine or povidone iodine? thanks in advance.."
11/09/2010: Hollis Holloway from Sunrise, Fl replies: "A friend of mine recently shared with me his challenge with HS. Since this is a disease that is associated with immune system deficiency according to medical experts in association with skin inflammation. Inflammation is researched to be a major contributor to major diseases like, Arthritis, heart disease, auto- immune diseases and a host of others. The best way to address these health issues to optimize the immune system naturally by raising intracellular glutathione. Glutathione is manufactured in every cell. Healthy cells equal healthy organs( our skin is a organ) equals healthy tissues. Healthy tissues equals healthy organs. Glutathione according to Dr. Jimmy Gutman(leading researcher in Glutathione and the immune system) is the body's most powerful protector. In his book 'Glutathione-- Your Body's Most Powerful Protector' page 11- part 1 "Without Glutathione your body would have little resistance to bacteria, viruses or cancers"
Raising Glutathione will definitely eliminate inflammation... Guaranteed. There is a unique whey protein called Immunocal that is clinically proven to raise Glutathione without zero side effects. I am putting my friend on this product because what I have researched and know about the science behind the product."
05/24/2011: Sathees from Montreal, Qc/canada replies: "hi ive been reading ur thread and im highly seem like u have a valid theory. Just wanted to knoe if u had any updates on ur frnd using Immunocal. Im sathees and ive been suffering with hs for 7 yrs and would like to knoe any updates with ur frnd.
Antibacterial Soap, Turmeric
[YEA] 10/26/2011: Shygirl from Halifax, Ns: "I would just like to thank all of you out there for your courage and helpful remedies. I am a 26 yo female and like most of you I have suffered with this condition for many years. I suffered with this on my buttocks and inner thigh areas and I had so many areas that would drain all the time I was so embarrassed about it, it took a while to see medical attention. I finally was reffered to a plastic surgeon who would open each area ( about 13) and try to get to the base of the problem then use two different antibiotics on packing gauze to fill the lesions. As you can imagine this was very painful and the gauze had to be changed daily with similar appts happening every 4-6 weeks, yikes! After reading alot of the posts I decided to try taking Turmeric capsules ( or curcumin capsules, as I learned curcumin is the medinicinal ingredient in Tumeric) and only using anti bacterial soaps. I started last week taking 3 capsules per day and washing the areas 1-2 times daily, if you can believe it I am down to one area that is not healed, there is only drainage from one area (limited). I am so pleased how fast this has worked, and I am sooooooooooooooooooooo Thankful to all of you for finally helping me overcome this!!!! XO"Replies
01/03/2012: Jenny from San Antonio, Texas replies: "Shygirl, I have had HS for about 3 years now and am having trouble finding anything that works... I'm about to resort to surgery. Is the turmeric and antibacterial soap still working for you? What kind of soap are you using? I've found that eliminating dairy helps a little bit. Any other tips you have found?
[BETTER BUT NOT CURED] 02/01/2012: Mich from Milpitas, Ca. replies: "I have had HS for a little over 2 yrs. and I have used an antibacterial soap and tumeric daily.... It does seem to help a lot.... I hope you find what works for you"
02/20/2012: Ace from Vancouver, Bc replies: "Go to a naturopath and get a FOOD ALLERGY TEST!!!"
Antibacterial Soap, Weight Loss
02/12/2011: Tracy from Fort Collins, Colorado: "I have kept HS at bay for 8 years now with the following: 1. Wash with Lever 2000 original (Dial does not work for me). 2. Apply hand sanitizer with Aloe Vera "Germ-X" after every shower, and any time you feel sweaty. 3. I wear "Under Armour" compression shorts almost every day as they keep my groin area dry and prevent my thighs from rubbing. After your used to this, it feels comfortable and I feel undressed without them. 4. I think losing weight helped. If you Google images of HS, all the images are of overweight folks, so there is obviously a weight connections."Replies
02/13/2011: Sara from The Beach, Canada replies: "While I'm sure weight can be a contribiting factor, I have had HS since puberty and have no weight issue, but my father had HS all his life too."
Antibiotic Ointment in the Nose
[YEA] 06/01/2010: Lynn from St. Paul, Minnesota: "Finall found something that made my hidradenitis go away completely! I have had hidradenitis my whole life but sometimes I went years without a breakout. 9 months ago I got a bump in my groin area that just wouldn't go away. Every day I had to drain it and you all know the frusteration. I visited many websites and read everyone's suggestions but nothing worked for me. A couple of weeks ago I visited the doctor's office and he suggested I try Bacitracin Ointment in my nose twice a day. I just dab a little on a Q-tip and swirl it in my nose. I can't believe after 10 days my bump is completely gone!!!! He believes HS can be caused by a staph or strep infection that lives in your nose. Maybe I've had this my whole life, I don't know but it worked for me. Bacitracin is an over the counter ointment so no need to visit the doctor. I hope this continues to work for me and if it worked for me maybe it will for you too. Good luck everyone!"Replies
09/21/2010: Candy from Houston, Tx replies: "Hi, Lynn!! I am so glad you found such a simple effective way to take care of your problem. The strep in the nose makes a lot of sense to me. I recently (2 months ago) was very sick with something I had never had before. I believe it was strep. My throat felt like I had swallowed glass and gargled with lava. It put me in bed for a week and then took another month before I felt like a human being again. I did take about 6 days worth of penicillin (an old prescription my boyfriend never finished). Bad idea! I only get sick about once every 10 or 12 years, so when I do it is intense, but the aftermath of taking the penicillin was even worse. I got rash on my underarms (along with other icky stomach and female problems) that burned like hell and itched like the devil! It has taken a month for it to subside only to find that I have 2 small cyst-type things left. My mother has had numerous (too many to count she says) surgeries to remove lumps from underneath her arm and groin area and my first thought was now I have it! I stopped using the crystal deodorant because it burns anyway on the tender skin and I started using coconut oil letting it sink in for a few minutes and then covering the area in corn starch and sometimes a nice smelling all natural no talc powder for babies. Seems to be working to keep it soothed. I am also going to try the antibiotic ointment in the nose as I can definitely see the strep connection. I will report back and let everyone know how this works for me."
06/06/2011: Claudia from Chicago, Illinois replies: "Hello, I was wondering if the oinment really worked for you."
Antioxidants, Vegetarian Diet, Herbs
[YEA] 09/14/2008: Kim from Savannah, Georgia: "I went to a naturopath after suffering from H.S. for the last 20 years (since 6th grade) I found taking a trustworthy brand of antioxidants twice a day with food helped tremendously. I also take Echinacea and Goldenseal and eat a primarily vegetarian and organic diet. More than anything I believe a 12/12 probiotic supplement taken daily to be the most helpful for my HS. Do avoid smoking cigarettes or anything for best results. I plan on taking the turmeric and trying the tea tree oil. I experience the pain and embarrassment of this disease every day whether it's because of the scars or an outbreak. Good luck to all."
Apple Cider Vinegar
[SIDE EFFECTS] 11/04/2013: Eliza from Atlanta,ga: "Hello there...
I had a recent outbreak in my genital area (bikini line) from my HS. I was successful in bringing the boil to a head by covering it with a cloth soaked in ACV and it broke the skin on its own (I did not punture or squeeze out the infection/pus). However, after the skin broke and it appeared to have healed over, the boil returned. Again I did the ACV-soaked cloth and it erupted. But this time it left an open sore or "hole" where it initially broke the skin. Now there is a stinging feeling and it seeps a little with yellow pus and slight blood. I am concerned the hole will not heal or close and that it is still leaking slightly and the pain/stingin is off and on. Please help!! The only thing that seems to put my mind at ease is cleaning the area with hydrogen peroxide and covering the area with sterile gauze. What else should I be doing???"Replies
11/05/2013: Mama To Many from Tennessee, Usa replies: "Dear Eliza,
I would try a charcoal poultice over the area. It should help with the pain and also draw out any lingering infection, as well as helping the skin to heal. You will find, "How to Make a Charcoal Poultice" in the index of the Activated Charcoal page her at Earth Clinic. You can use one poultice for overnight and change it a few times during the day.
You can also take turmeric internally. 1 teaspoon twice a day. You can mix it into milk (dairy, almond, rice etc.) or take 4 capsules.
I hope you find relief soon. Please keep us posted on your progress!
~Mama to Many~
11/05/2013: Mmsg from Somewhere, Europe replies: "Eliza, read up on turmeric for boils."
11/06/2013: Louwrence from Rusteburg, South Africa replies: "Hi Eliza, Grind epsom salts fine in a coffee grinder then add glycerine so that it is a paste & put the paste on the hole, it might burn a bit but it draws the junk out."
11/07/2013: Gavin from Northland, New Zealand replies: "The extra vigin coconut oil, has been a great stopper for boils.The one that had started to develop just turned into a zit after about five days of application.The stuff just slowly goes into the whole area and kills the bug...well worth a try! .I use it to stop jock rash by applying it once every other day."
Apple Cider Vinegar and Baking Soda
[BETTER BUT NOT CURED] 03/14/2013: Julie from Delevan, Ny: "I started getting boils in the groin area and thought it was from shaving, then I got one on my face and another and another. I have done so much research on this and have done a ton of home remedies which most do help but I have to say, taking apple cider vinegar and baking soda and making a paste seemed to pull the pus out fast!! It's a battle that's for sure.. I am on antibiotics and you need to make sure they give you one that is for bacteria!! MRSA is immuned to some antibiotics.. DETOX!!! There is a Detox Tea with lemon.. Best of luck to all of you who deal with this. It is stressful!!!!! I believe the Home Remedies work the best for pulling infection from the skin. Boil-Ease eats the skin if you use it too long and left a bad scar on me. BAKING SODA/VINEGAR.."
Apple Cider Vinegar and Baking Soda, Epsom Salts
[YEA] 04/15/2008: Vicki from Apple Valley, MN: "I have suffered with Hidradenitis Suppurativa for about 10yrs the doctors constantly cut, drain and pack the absesses and they have also had me on 3 different antibotics daily. well I got a severe reaction to them and decided to try a more natural path and it is working I take the acv/ bs dring daily also soak in the bathtub 2x per day with 1 cup epsom salt and 3 drops tea tree oil one day then the next I use 1 cup of powderd dreft with the 3 drops of tea tree oil I also eat tons of garlic and take lot's of vitamins"