Table of Contents
Hidradenitis Suppurativa Remedies
Hidradenitis is a chronic disease of the apocrine glands (sweat glands found on certain parts of the body) and hair follicles. These glands become plugged or clogged. The condition causes chronic scarring and pus formation in the underarm, groin and/or inner thigh areas. In women it can also occur under the breasts. Hidradenitis begins with a red, tender swelling in the groin or armpit. Over time the lesions enlarge and burst open at the surface, draining clear to yellow fluid.
The poorly understood disease is under-reported by those who suffer from it. However, there is some research suggesting changes in diet, warm compresses and baths, and zinc gluconate supplements can relieve symptoms, bring about remission, and/or minimize recurrence.
MOST POPULAR HIDRADENITIS SUPPURATIVA REMEDIES:
| REMEDY NAME | # of YEAS |
| MISC REMEDIES | 4 |
| TURMERIC | 4 |
4 YEA
[YEA] 10/14/2008: Danielle (Mrsdanieluna@yahoo.com) from Fair Oaks, Ca writes: "a few months back i was on here and started taking turmeric spice in warm water, after a couple of weeks i was feeling better and had less "hurts" but one morning i got sick and couldnt take the turmeric since then. my hurts have gotten bad again so i decided i would take the pills, just started today! this time i will be taking 2 pills 2x's a day. and washing with plain old dial soap. after reading about the dial soap i did realize my HS got worse when i started using more body washes and not dial bar soap. i hope everyone that has this problem finds this website, and i would never wish this on anyone! the pain is unimaginable at times, as u all know! good luck to everyone! email me if anyone has any questions, or just plain support. bye!"
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[YEA] 09/06/2008: Serena from Bronx, New York writes: "hi I am a 23 year old female i have been with HS for 7 years. As alot of people on here has done, I have also been to alot of doctor and as most know that there is no cure. I was diagnoise with it about 2 months ago. My doctor told me to use dial bar soap and ever since, my lump have became smaller and less painful. I have not tryed the apple cider vinigar, baking soda, or Epsom salt, but I'm going to try it. thank you for your useful advise"
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[YEA] 03/27/2008: Brian (austininfl76@yahoo.com) from Tampa, Florida writes: "Ailment: HIDRADENITIS SUPPURTIVA Remedy: ANTIBACTERIAL DIAL SOAP!
Ive been reading all the wonderful remedies and suggestions here on your site when i came across a section dedicated to HIDRADENITIS SUPPURTIVA and I just had to share my story as well.
I have a congenital birth defect that caused me to be born missing my left foot, I received my prosthesis by my first b-day. I grew up with NO problems with my leg what so ever and never considered myself to have any limitations. That is until i was in my very early 20's and began getting (what i thought at the time were) cists on my stump. This issue became worse and worse with each passing year and after doctors Lansing two or three of them I couldn’t handle the recovery of each one anymore so I started dealing with them myself as they would appear. Nothing I did would work other then forcing my leg on, no matter how swollen I was and forcing them to break so that the horrible pain would go away. You see as anyone with HIDRADENITIS SUPPURTIVA knows the pain is unbearable so imagine having to walk on it. Most people who have HIDRADENITIS SUPPURTIVA suffer these sores in their armpits, groin, and under their breasts. I had never had any sores in any of those places. Only on my leg. Then as my leg got worse I began to get them under my arms as well.
After suffering through the pain for a few years I finally realized this issue I was having was way bigger then I could handle myself and truly feared doing more damage to my leg so I finally began seeing doctors to get answers. Honestly, this was a total waist of my time and my money!! I went to over 10 doctors, 5 dermatologists and NONE of them had any idea what was causing my sores. After being told that I would have to have the remainder of my leg removed, told that it was my hygiene problem and that I wasn’t bathing properly, being told to stop wearing any prosthetics and be bound to a wheel chair for the rest of my life & even being told that I was too vain and needed to get over myself and realize that there was no need to wear a prosthetic I finally gave up on doctors once again and went back to dealing with the pain myself.
At that point in my life I was getting anywhere for 4 – 5 sores on my leg per week and had lost two jobs due to the inability to wear my prosthesis. I was just about ready to give into the doctor (dermatologist) who wanted me to have my leg amputated when I met a friend of a friend who asked me what was wrong with my leg that I wasn’t able to put it on. After talking to her for only a few minutes and her begging me to see my sores she shockingly lifted her shirt and showed me the scars under her arms and explained HIDRADENITIS SUPPURTIVA to me. She had been diagnosed 5 years before after having two surgeries to remove her sweat glands.
I literally began to cry!! Finally I knew what was wrong with me….after 10 doctors and 5 dermatologists there was someone who knew what the hell it was. WOW! The next day I made an appointment at the dermatologists who wanted me to have my leg amputated and told him of HIDRADENITIS SUPPURTIVA. He and 4 other dermatologists after him had never heard of it and didn’t have any answers as to how to treat this condition. Finally I found this amazing dermatologists who did know and I am now happy to say that 6 years later I have only had 2 sores and those failed in comparison to the size or pain of those in the past. The only remedy I have used in the past 6 years is DIAL SOAP!!! Not the liquid or body washes the only one that works is the good ole fashion antibacterial bar soap. It is truly a miracle worker where my sores are concerned and I swear by it. I have even gone on vacations and didn’t have Dial Soap and immediately after only one day of not showering using Dial I have gotten a sore.
I hope in some small way this story helps someone else out there cause I know how hard it was going through day by day in pain and no one having the answers to help!! Good Luck!!"
[YEA]07/28/2008: Sara from Corpus Christi, Texas replies: "Tired of seeing the derm doctor for H.S. so I tried the dial soap (gold bar) and tea tree oil. Incredibly, within a couple of days, the lesions had decreased in size and pain. I also tried hot baths in epsom salts. A week and a half later, I feel like myself which I had not felt like in at least a year. Thank you all for your wonderful information. I am so thankful!"
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ANTIOXIDANTS, VEGETARIAN DIET, HERBS
[YEA] 09/14/2008: Kim from Savannah, Georgia writes: "I went to a naturopath after suffering from H.S. for the last 20 years (since 6th grade) I found taking a trustworthy brand of antioxidants twice a day with food helped tremendously. I also take Echinacea and Goldenseal and eat a primarily vegetarian and organic diet. More than anything I believe a 12/12 probiotic supplement taken daily to be the most helpful for my HS. Do avoid smoking cigarettes or anything for best results. I plan on taking the turmeric and trying the tea tree oil. I experience the pain and embarrassment of this disease every day whether it's because of the scars or an outbreak. Good luck to all."
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APPLE CIDER VINEGAR AND BAKING SODA, EPSOM SALTS
[YEA] 04/15/2008: Vicki from Apple Valley, MN writes: "I have suffered with Hidradenitis Suppurativa for about 10yrs the doctors constantly cut, drain and pack the absesses and they have also had me on 3 different antibotics daily. well I got a severe reaction to them and decided to try a more natural path and it is working I take the acv/ bs dring daily also soak in the bathtub 2x per day with 1 cup epsom salt and 3 drops tea tree oil one day then the next I use 1 cup of powderd dreft with the 3 drops of tea tree oil I also eat tons of garlic and take lot's of vitamins"
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1 YEA
[YEA] 11/03/2007: Sylvie from Ottawa, Canada writes: "I have suffered from HS for 30 yrs and have tried all doctors have to offer alternative remedies for relief. Bach (origional flower remedies)Rescue Remedy in spray or liquid..on boils and absesses 4-5 times daily. When caught early it resorbs/when in full "bloom" it helps drain and heal. I find myself craving Indian and Morocan food lately..will try the Tumeric remedy."
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1 YEA
[YEA] 02/14/2008: ash (aisha_73@hotmail.co.uk) from bolton, lancashire writes: "my daughter is 9yrs old, she is suffering from painfull boils and swollen lumph in a groin area for the last 2 yrs . dermatologist has told us two months ago that she has Hidradenitis Suppurativa and there is no cure for this disease. she is on anitbioitc but believe me it doesnt help.
few weeks ago i read in a book about " black onion seeds" Tiny and black seeds of the nigella plant. in hindi and urdu it calls [kalonji] if you search on the google you will find more information about it. easily can buy from asian shops or buy online.
believe me her boils and swollen lymp nearly gone now.there is no new boil appear for the last few week. and i also give her turmeric powder as well it helps for wounds definately.
1: half tea spoone of "black onion seeds" with water everyday. before breakfast would be better.
2: turmeric powder,half tea spoone with water any time in a day.
3: drink atleast 8 glass of water.
4: try to eat healthy food and fruits instead of oil or fried food.
i m reffering this email to Charlene from Hope Mills, NC.
please believe on "black onion seeds" and try it ..it should work.atleast try 1 or 2 months.
i would be greatfull if i get a feed back.
i saw my daughter how she suffers and i can understand how much people r in pain ..please try black onion seeds..
thank u very much"
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1 MAYBE
[MAYBE] 05/12/2008: Jerika from Detroit, MI writes: "HIDRADENITIS SUPPURATIVA: HELLO EVERYONE, I'M BACK WITH MORE SUGGESTIONS ON HOW TO HELP THIS ANNOYING PAINFUL SKIN DISEASE. I'VE DECIDED TO TRY A COLONIC, I REALIZE THAT WITH OUR FIBERLESS, AND NUTRIENT LACKING DIETS THAT OUR IMMUNE SYSTEMS AND INTERNAL HEALTH COULD BE CONTRIBUTING TO THIS DISORDER. THE BUILDUP OF TOXINS OVER THE YEARS FROM NOT FULLY EXPELLING FECAL MATERIAL COULD BE CAUSING OUR IMMUNE SYSTEMS NOT TO PROPERLY PERFORM, THEREFORE ALLOWING SKIN DISORDERS SUCH AS ACNE, HS, ANEMIA FROM MALABSORPTION OF NUTRIENTS, FATIGUE, INSOMNIA, AND SO MANY OTHER HEALTH PROBLEMS.
A HEALTHY DIET FREE FROM REFINED SUGARS, AND PROCESSED FOODS, AND PLENTY OF WATER COULD ONLY HELP THIS DISORDER. I'M GUILTY OF TERRIBLE EATING HABITS AND SMOKING WHICH COULD ONLY BE CONTRIBUTING TO THIS PROBLEM. I STRONGLY BELIEVE THAT A COLONIC WHICH IS LIKE AN INTENSE ENEMA RIDS OUR BODY OF OLD FECAL MATERIAL, PARASITES, AND TOXINS THAT HAVE BUILT UP IN THE COLON OVER THE YEARS FROM UNHEALTHY EATING HABITS, I THINK THAT COLONICS AND A DRASTIC CHANGE IN EATING HABITS CAN DRASTICALLY MAKE A DIFFERENCE IN THE SEVERITY OF HS.
I THINK THAT ANTIBIOTICS AND SURGERY ARE ONLY A BANDAID TO THE TRUE CAUSE OF HS. GETTING TO THE ROOT OF THE PROBLEM IS THE ONLY WAY TO PINPOINT THE CAUSE OF HS. I WIL TRY THE COLONIC AND MAKE HEALTHY DIET CHOICES AND LET YOU KNOW THE OUTCOME AS SOON AS I SEE RESULTS. I HOPE THAT SOMEONE SUFFERING WITH HS AS I HAVE OVER THE YEARS WILL READ THIS AND GIVE OTHERS IDEAS ON WHAT WORKED FOR THEM, TAKE CARE AND GOD BLESS."
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2 YEA
[YEA] 09/01/2007: Jackie from Chicago, IL writes: "Hi. I wrote in last month about the wonders of baking soda for underarm body odor. Well I still agree that it's a great remedy, however I had a side effect that I wanted to share. A few days ago I shaved and after getting out of the shower, put baking soda under my arms. I guess I had knicked an area because it hurt like crazy after the baking soda hit it. That night, I started to feel shooting pain in the same area... it lasted all night. The next morning, still in pain, I looked in the mirror at my armpit and discovered a big ole boil forming. I am guessing that a chunk of baking soda got in and irritated the area. Knowing how great turmeric is for cysts and boils, I immediately went and got some warm water and put a teaspoon of turmeric in it and chugged it down. The shooting pain stopped in about 3 hours and the next day the boil was half the size. 2 days later it is gone. My suggestion is not to apply baking soda to your armpits if you have knicked them while shaving! I continue to use the b.s. but haven't had any more inflammation in that area."
07/31/2008: Rebecca from Woodbridge, VA replies: "Could you please email me, I would like to know if I could ask you a couple of questions concerning your allergy. I think that I may have found that the alluminum may be in other products, such as my body wash, etc. Thanking you in advance."
08/01/2008: Sam from NY, NY replies: "Baking Soda for BO- what to do when you shave
If Baking Soda is used after shaving your armpits will become extremely sensitive even irritated. I use VCO after shaving for a few days until any small wounds (invisible to the eyes but there nonetheless) heals. VCO's effect is not as long lasting as Baking Soda - so on a very hot day a few application might be needed. However, VCO expedites the healing then one can return to the Baking Soda. Hope this helps!
Anyone has a better interim solution than VCO - please share.Thank you."
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[YEA] 08/11/2007: Chris from paris, texas writes: "i used to get horrible boils (golf ball to baseball size) under my arm pits. i had a doctor suggest that i may have a condition known as (http://www.mayoclinic.com/health/hidradenitis-suppurativa/DS00818) Hidradenitis Suppurativa, he said this was incurable. i do not believe in incurable conditions. After lots of research and a trip to a local allergy specialist i found that was actually allergic to aluminum zirconium, a very common ingredient in antiperspirants (see http://health.howstuffworks.com/question627.htm for more information) i switched to an antiperspirant withouts actually allergic to aluminum zirconium and the boils stopped.
My allergy Dr. told me that alot of people actually get misdiagnosed with Hidradenitis Suppurativa because of boils in the armpit when all that is wrong with them is their choice of antiperspirant. i also want to point out that i have seen this ingredient listed on several feminine hygiene products for moisture control."
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2 YEA
[YEA] 11/04/2008: Sarah Simpson from Brighton, UK writes: "Giving up coffee gave me back some control of the size of my sores.
I have suffered with HS for a long time and had to have an operation on my armpit 8 years ago but was not actually diagnosed until much later. Once I knew what I was dealing with I started to use tea tree oil and echinacea. But to be honest, particularly when I was stressed, the painful sores would still emerge. Finally a dear friend read on the net that coffee can have a massive effect on sufferers. So I gave up coffee (was on 3 or 4 large expresso's a day). And it worked. I'd occasionally get the odd little murmur of an outbreak but was able to control it with a dab or Tea Tree and up until this weekend, I'd been clear of any real offending sores.
Unfortunately I realise that I've been gradually reintroducing coffee into my diet over the last year (hubby got a coffee machine for Christmas) and I am now suffering for it. Safe to say, I'm off coffee again and will try the Turmeric and the other suggestions to deal with my current and extremely uncomfortable sore. I've also changed my deodorant and now use crystal spray which has been great. What a wonderful site. Thank you all for sharing and making me feel less of an outsider."
[YEA]11/14/2008: Linda from Glendale, CA replies: "I was advised by my acupuncturist last year, after having been diagnosed with hidradentis suppurtiva (basically means recurring boils in areas around hair follicles and sweat glands...all the fun spots)to eliminate caffeine. I did, and for the past year, I have had no boils. Recently, I started drinking caffeine in small quantities and now have a new boil. Nothing else in my diet changed, so the connection is pretty clear.
No more caffeine for me.
I am trying the tumeric remedy now for the current boil as I detox from caffeine again.
Also, laser hair removal in areas like the armpits has been advised, the theory being eliminate the hair follicle, reduce the likelihood of a boil from an ingrown hair. I will be trying this."
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2 YEA
[YEA] 01/18/2007: Jan from Perth, Australia writes: "Several people have mentioned cures that did not work for their boils - particularly those people who had a number of boils in their armpit, breast or groin area. They may want to check to see if they have Hidradenitis Suppurativa which presents like boils in those areas but is not curable. There is a lot of information about HS on the web and it seems to be often misdiagnosed so it may be worth seeing a dermatologist for a second opinion."
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[YEA] 01/17/2007: Anonymous from South Orange, NJ writes: "Hi, As I have been reading the comments on your site regarding boils it seems to me that alot of these people, especially those suffering from boils in the armpit, groin area, or breast area that are recurrent actually may have a condition called hidradentis supperitiva or acne inversa. This is also known as an orphan illness because it is forgotten and alot of people don't really know about it. For many like me it is misdiagnosed and antibiotics may or may not help. At present I am taking antibiotics to help control my acne but it is also helping out my recurrent boils which come up every now and then."
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1 YEA
[YEA] 05/16/2008: DIANNE from WAIKOLOA, USA writes: "HI, I HAD HIDRADENITIS SUPPURATIVA. I CURED THIS DISEASE BY GOING TO A HOMEOPATHIC DOCTOR AND BEING PRESCRIBED ELAPSE CORRALINEOUS. I HAD BOILS ALL OVER MY BUTTOCK, UNDER MY ARMPITS, CHEST ETC. IN 10 DAYS IT CLEARED UP AND NEVER RETURNED. I HOPE THIS HELPS. "
EC: When we searched for Elapse Corralineous on the web just now we could find no mention of it, so we emailed Dianne for more information. We will post her response as soon as we hear back!
06/05/2008: Rebecca from woodbridge, VA replies: "IN REFERENCE TO Hidradenitis Suppurativa Remedies HAVE YOU FOUND OUT THE RESOURCE FOR (Elapse Corralineous) YET? Thanks so much!"
EC: No, sorry. She never wrote us back!
07/14/2008: Nicole from Concord, NH replies: "Check this link for an explanation of the Elapse remedy. http://www.homeoint.org/books/boericmm/e/elaps.htm Sorry I do not know where you can find it, except that I purchase unusual remedies from my naturopath's clinic. A homeopath's and or naturopath's office should have it or be able to order it for you. Good luck!"
07/17/2008: Karen from Vancouver, Canada replies: "I have to say that I agree with Jessy from Sarasota. The tomatoes or citrus cause me to break out. I have been in recession and I ate a tomatoes every day for a week...and suddenly I had a massive breakout like never before. Beware of the TOMATOES for sure!! Hope this helps."
07/31/2008: Becky (Gomes) from Woodbridge, VA replies: "I originally wrote: 06/05/2008: Rebecca from woodbridge, VA replies: "IN REFERENCE TO Hidradenitis Suppurativa Remedies HAVE YOU FOUND OUT THE RESOURCE FOR (Elapse Corralineous) YET? Thanks so much!"
I am sorry it took awhile to follow up, have you found out any further information as of yet? Thanks so much!"
09/08/2008: Kate from Dayton, Ohio replies: "The reason (I think) that no one could find Elapse Corralineous is because it is spelled incorrectly. I believe it's Elaps Corallinus, which can be bought online at hmedicine.com. A direct link is: http://www.hmedicine.com/homeopathic/dilutions/D-E/Elaps_Corallinus
I haven't tried this yet (I'm still just new to the turmeric and the ACV/Epsom salt treatments) but I'm going to order some of this stuff off hmedicine and see how it works. I think 200cc a day is what it should take, but you might want to ask a homeopathic doctor to make sure.
Hope this helps!"
EC: At long last! Thank you so much!
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5 YEA
[YEA] 07/08/2008: Jessy from sarasota, usa writes: "Hidradenitis Suppurativa Remedies: Please beware of any suggestion to try ACCUTANE, if it is still being scripted. The side effects can be immediate & devastating. Please notice if summer's heat aggravates your HS. There's already an internal body heat issue, coupled with the external heat of the season. There are several Chinese herbal formulas that may be helpful, but they must be given professionally, because each person's constitution is different. PLEASE CONSULT A TRADITIONAL CHINESE MEDICAL PRACTITIONER WHENEVER YOU CAN, as there are a variety of herbal washes, tablets, & foods, that may be effective. I am trying a remedy called Coptis Detox that seems to have been of great relief in reducing the internal heat that adds to the pain of breakouts. Will report more as results develop.
Also, for the Lady & the colonics - YES/YES/YES, they are helpful too, but not without a change in intake of foods that could be aggravating the condition. Notice your intake & break-out routine, so that you can capture what triggers an outbreak. For me, for example, BEER-CITRUS-TOMATOES, much as I love all those things are guarenteed break-out starters, AS WELL AS STRESS & WT. GAIN. In fact if there's any goodness to this, it is that breakouts tell me that a weight gain of at least 10 lbs has happened...Jessy"
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[YEA] 05/29/2008: Jessy from St. Pete, Fla writes: "For more than 1/2 my life...Re: Post-surgery of the right armpit and beyond. In 2000 I had a cyst removed from my right pit. It was benign, the size of a grapefruit, & was an outpt procedure, Was sent home with drains & Oxy-contin. Detoxed self off that, & came through well with the drains meaning little scarring. 6 mos. later I was to return for the same procedure on the left arm, but refused as the right was beginning to swell again. Hence, SURGERY DOESN'T WORK FOR A SYSTEMIC CONDITION. What does?? Every thing mentioned in this blessed site so far! Especially the ACV-Epsom Salt, & Kosher/Sea Salt. Messy as hell, but very healing. Paper tape as well when draining, as it took me years to find a solution to ripped-off skin. Also, Curry powder which contains Turmeric, at night, but it can stain so be careful. Then, Campho-Phenique after bathing can catch new erupts early and stop them, especially in the groin area. Hot compresses of Golden Seal/Burdock/Slippery Elm herbal tea are also effective, but on thin skin they are indeed painful - had to take several shots of liquor before applying - BUT, 30 YEARS LATER THERE'S BEEN NO RECURRANCE TO THE AREA AT THE TIP OF MY COCCYX BONE. Good luck all, will write back soon...Jessy"
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[YEA] 05/11/2008: JERIKA from CHARLOTTE, NC writes: "RE: HIDRADENITIS SUPPURATIVA. I'VE HAD THE DISORDER SINCE I WAS 22 AND I'M 30 NOW. I WAS JUST OFFICIALLY DIAGNOSED LAST YEAR. LONG STORY SHORT I'VE HAD AN AREA THE SIZE OF A MINI GOLF BALL NEAR MY LABIA, YOU CAN IMAGINE THE PAIN, THEY HAVE BEEN LANCED AND DRAINED ONLY TO RETURN. IT'S GOTTON WORSE OVER THE YEARS, IT STARTED OUT AS ONE LARGE AREA ON THE LEFT LABIA AND NOW I HAVE AREAS THAT AFFECT BOTH SIDES OF MY ENTIRE GROIN. LATELY I'VE BEEN CLEASING THE AREA WITH DIAL ANTIBACTERIAL SOAP, OLD FASHIONED YELLOW BAR. 2 TIMES/DAY, FOLLWED BY A FEW DROPS OF TEA TREE OIL, I ALSO TAKE 2 300MG TUMERIC TABLETS DAILY. WHEN I FEEL A FLARE-UP COMING I TAKE ONE ALLEVE WHICH PREVENTS A FULL BLOWN FLARE UP. I SUGGEST TRYING A VARIETY OF TREATMENTS AND WOULD ADVISE STAYING AWAY FROM ANTIBIOTICS, THEY DON'T WORK.THERE ARE SITES WHICH I'M NOT ALLOWED TO NAME THAT GUARANTEE A CURE THAT ARE ALL NATURAL, I WOULD SUGGEST CHOOSING THE ONE THAT GIVES YOU THE INGREDIENTS OF THEIR PRODUCT ONLY. DON'T LET THIS DISORDER DISCOURAGE YOU. IT CAN BE MAINTAINED. I CAN'T STRESS THIS ENOUGH SURGERY AND ANTIBIOTIC THERAPY DON'T WORK, USE NATURAL HERBAL REMEDIES FOR THIS DISORDER. I'VE HAD SURGERY ONLY FOR THE BOIL TO RETURN IN THE EXACT SAME SPOT. I'M A RN AND I SEE SO MANY OF MY PATIENTS THINK THAT SURGERY AND ANTIBIOTICS ARE THE ONLY ANSWER. PLEASE CONTINUE TO RESEARCH AND FIND NATURAL CURES AND LIFESTYLE CHANGES THAT CAN MANAGE THIS ANNOYING SKIN DISORDER. "
05/13/2008: Joyce from Joelton, Tn replies: "re: Hidradenitis Suppurativa: Hello Jerika, Eight years is a long time to put up with that stuff. Maybe its time to try a saturated solution of ACV/epsom salts. I use this anytime I want both an antibiotic & drying effect. You are not likely to have any adverse side effects beyond a little stinging or burning sensation when you dunk a washcloth in it and squeezing it just enough to keep it from dripping while you apply it as a cold compress. Do this about 4times a day for awhile and let us know how it comes out? You make a saturated solution by (I wouldn't mix more than l cup of vinegar at a time)start with l tsp epsom salts and keep adding by l/2 - l tsp at a time until no more will dissolve in the ACV."
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[YEA] 04/14/2007: Darlene (ladyscenna@yahoo.com) from Berea, KY,usa writes: "I suffered from Hidradenitis Suppurativa about 3 years ago, in fact one sore under my arm got to the size of a baseball and my physician did an in office procedure to open it up, and if that did not work I would have had to go to a surgeon for the final draining, fortunately that worked. I swore I would not have that happen again, so I did some research. The problem seems to be linked with a skin surface yeast infection, occurring in the areas that tend to stay moist ( underarms , under the breasts, and around the groin area) so I have taken steps to treat it like a yeast infection with perfect success.
1. Stop using roll on, or stick antiperspirant. the repeated contact while infected only serves to reinfect you when you get clear, plus antiperspirant tends to clog the pores trapping the infection inside. So using a pump spray deodorant such as FDS is much more effective during the treatment.
2. Do not use antibacterial soap it actually kills the naturally occurring good bacteria that helps keep yeast infections in check.
3.Twice daily massage natural live bacteria yogurt on these areas like you would a lotion. (note: use unsweetened,unflavored natural yogurt for this, otherwise it is a sticky mess.)(you can also use an over the counter yeast infection vaginal cream for this if you prefer.)
4. Shower Daily taking care to thoroughly wash, and dry prone areas.
5. start a regimen of turmeric to help cleanse from the inside out.
Do this for 10 days and you can virtually say goodbye to Hidradenitis Suppurativa. I did all this myself and have been clear for 2 years, I have also recommended this to others with the same problem and they have also had excellent results. Even after they have repeatedly had doctors draining their sores and putting them on massive antibiotics for years.They are finally clearing up the problem."
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[YEA] 03/16/2007: John (jkrogers1952@sbcglobal.net) from Corpus Christi , Texas, USA writes: "Hiradenitis Suppurativa 1) Stop using any form of Spray on or Roll on Deoderant. Clean with soap and water in Shower (Not Bath). Use a Stick -Type of Deoderant ( and Make Sure No One Else Uses It). Make Sure that you Dry Off very good Before you apply anything and use a Different Towel after Each Shower. If Redness Persists after you have done this, Use Hydrogen Peroxide on the Affected Areas after Shower. Then use Corn Starch on them to keep them Dry. If the condition does not fade or disappear within one week, Go Directly to your Doctor. "
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11/04/2008: Nek from Evansville, Indiana writes: "I have suffered from hidradenitis since puberty. I am now 40 and male. I have read comments about the effectiveness of turmeric for hidradenitis on this site and on others and having suffered in silence for so long I am optomistic, yet skeptical, as to whether it will work. I, too, have tried accutane (God-aweful experience), antibiotics, tretenoin cream, various soaps, etc. (all to no avail) and am very close to making the choice to have a sinus tract surgically removed from my groin. The pain is, as everyone knows, excruciating and until recently (probably the last 1 1/2 years) the disease has manifest itself on both buttocks cheeks. I have connecting sinus tracts all over my bottom (and also have the embarrassing scarring to prove it) and I can only guess that the tissue is so damaged from years of boils on my bottom that the disease needed "fresh meat" and headed to my groin in search of new apocrine sweat glands. Lovely, huh? All of this said, I hope it is understood that I have lived with this affliction for 30-some painfully (literally and figuratively) and, at times, humiliating years and no physician has been able to prescribe a medication that helps.
Inasmuch as I continue to search for a cure, to no avail, I am cautiously optomistically that turmeric is finally the magic bullet that will end the years of pain, scarring, embarrassment, smelly discharge and useless/expensive trips to doctors, who nearly always say that I should be glad it is "down there" and not on a visible part of my body. I always have been glad for that but somehow their words lack true sympathy for the debilitating nature of the disease.
So, last evening, after reading posts regarding turmeric helping combat/cure hidradenitis I ran out and bought turmeric from Walgreens. The pills are 950mg with pepper as a buffer (I guess). I took two pills last night and then made a salve from another pill mixed with neosporin and applied it to the boil (with sinus tract) on my groin. I have had this particular oozing, painful boil at this location for about 10 months. It started to tract about 2 months ago. This morning I took another 950mg pill, a second around noon and a third around 6PM. I'll let you know how the treatment works out after a week."
11/05/2008: Shelly from Toronto, Ontario, Canada replies: "I'm curious if anyone has mentioned botox injections at the groin area for you. it has been a life saver for a few people i know. i know it can be expensive, but you can look into health care coverage, i would rather be out of pocket,than to live through that pain and i totaly sympathize with you i've been there too."
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11/03/2008: Liz from Monticello, MN writes: "Sufferer of HS
I had my first lesion when I was 19, did not know what it was at the time, I am now 43. I was free of flare ups until I was 35, when I gained weight with my pregnancy. Since then, it has been a nightmare. I completely relate to all of you on this sight. Short version...my doctor sent me to a derm. he said it was HS..sorry can't help you, but you can take accutane! NOT!! So leaving there empty-handed and no idea what to do..I learned on my own..to live with it. The pain is unbearable, embarrassing, and completely gross! Mine started on my thighs and groin and have seem to have found their home on armpits. Oh, when I showed the derm. my boils and scars, he asked me if I had any on my armpits, I said no and he said "You will"..gee thanks.Well, he was right about one thing! So, now I have done my own wear and tear on the darn things and they have torn me up worse. I am a firm believer in Dial soap but that is the only preventive measures I ever knew about until now. I tried antibiotics, turns out I am allergic to most of them, great! Band aids..allergic to latex, too. My Dr. once told me, "Boy, did God ever give you a body to deal with".Ya think. She actually lanced one when I was having my daughter. She said not to say anything, I guess it was freebie. Well, I am sure looking forward to trying any and all of the remedies you all have mentioned on this sight. I just don't know where to start and with what doses or mixtures. Can anyone give specifics on this? I also noticed that they seem to flare with PMS, the only problem there is being premenopausal and getting my period every two weeks does not give enough time to heal between outbreaks...What else, huh? So, please, anybody...HELP!!"
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10/30/2008: Devina from Kanpur, India writes: "hi iam 24 years old and have been suffering from hidradenitis suppurativa since i was almst 18 years old. just got diagnosed about a month ago after going through one horrible surgery and getting the sweat gland under my right armpit removed. i do get the lesions at various places in my body but they are fare less than what i used to few years back.its not so painful now as maybe one gets used to the pain..but i agree it can be very embarassing specially the scarring..and dont feel like getting into any intimate relationships..with anyone..and talking about your condition with other people.
thankfully i met a dermatologist..he did diagnose me though i researched on it over the internet my doctor confirmed it was hidradenitis. he gave me certain antibiotics for a week and now iam on these pills for 3 months called sotret..supossed to shrink the sebacious glands.have been given an anti-bacto soap to bathe.since i sweat a lot a form one armpit as the other sweat gland is gone..it even omits a really bad odour.my doctor has a recommended a lotion called the no swet lotion which gradually decreases..the sweat production.
i have been taking this medicine sotret which is also called isotreniton for about a month now and i think it has started to work.real progress only happens after you have stopped with the medicines..condition improves even after that.
i used to be very overwieght at one point of time.i have lost a lot of weight and i realised it makes a major difference..while suffering from this disease however loosing weight can be quite a challenge with this disease and the lesions always flare up with the heat created by excercise.
dont know why god created this disease..but when i read about other peoples sufferings i know i am not the only one and there are people with far worse..cases."
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10/23/2008: Talija from WILKES BARRE, PA writes: "I HAVE HAD THIS PROBLEM WITH HIDRADENITIS SUPPURATIVA SINCE MY EARLY TEENAGE YEARS, I WISH IT WOULD JUST GO AWAY. I AM 24YRS NOW AND HATE MY BODY. DOES ANYONE ELSE EVER FEEL THIS WAY. I FEEL AS IF I WERE ROBBED OF MY OWN LIFE. IF ONLY THERE WERE SOME MAGICAL PILL THAT YOU COULD TAKE ONCE AND YOUR LIFE WOULD BECOME NORMAL. I HAVE THREE KIDS (GIRLS) WHOM I HOPE THAT ONE DAY WILL NOT HAVE TO GO THROUGH THIS. I HAVE ALSO BEEN IN A RELATIONSHIP FOR OVER SIX YEARS AND STILL FEEL DISGUSTING ABOUT MYSELF WHEN AROUND HIM. ANY GOOD THOUGHTS."
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10/06/2008: BRENDA-LEE BLACK from SPRING VALLEY, CALIFORNIA writes: "WONDERFUL WEBSITE: I AM AN HS SUFFERER FOR 10 YEARS NOW, DIAGNOSED FOR 6 YEARS. I HAVE NOT REALLY BEEN TO ALOT OF DOCTORS BUT THE ONES I HAVE BEEN TO HAVE NOT REALLY HELPED. I OFTEN USE CEPHALEXIN CAPSULES. THEY HELP WITH THE ODOR WHILE TAKING THEM AND FOR ABOUT TWO DAYS AFTER THEY ARE DONE. ALSO IT KEEPS THE PAIN AND SWELLING DOWN BUT NOT FULLY. I WILL DEFINITELY TRY SOME OF THE HOMEMADE INEXPENSIVE STUFF I FOUND ON THE LINK. I AM QUITE FRANKLY TIRED OF IT."
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1 YEA
[YEA] 12/28/2007: Tina from Indianapolis, IN writes: "I was Diagnosed with hidradenitis July 06. I have had terrible breakouts in the groin area from my bikini area to my anal area. I have tried everything to stop the breakouts, even bathing 3 or more times a day nothing has worked. Recently I went to a local natural food store and read a natural remedy book were it stated Tea Tree oil, pure tea tree oil will take out the staph from boils and soothe the pain. I tried it several times so far so good. It has a scent of eucalyptus and the same drying action like alcohol. So far it works"
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